
The Feds Team up to get Doctors to Say No to Narcotics
In the fall of 2014 the DEA (Drug Enforcement Administration) made it much harder for doctors to prescribe opioid analgesics. Hydrocodone (found in Lortab, Norco and Vicodin) was changed from a Schedule III drug to a Schedule II drug. That meant that doctors could no longer call in, fax or send an electronic prescription to the pharmacy. Patients in severe pain now need a paper prescription that is good for one month at a time. No refills are allowed.
The FDA Gets on Board:
Now, the Food and Drug Administration has gotten into the act. It has just issued new scary boxed opioid warnings that remind doctors that drugs like hydrocodone and oxydodone can cause abuse, addiction, overdose and death.
The agency has always been cautious about telling physicians how to practice medicine. That’s because the law governing this federal agency doesn’t authorize it to regulate how doctors diagnose and treat patients. But the new stronger boxed warning on short-acting opioids will doubtless scare a lot of doctors, pharmacists and patients into thinking twice about prescribing, dispensing or taking a narcotic
The CDC Gets into the Act:
The CDC (Centers for Disease Control and Prevention) likewise “does not regulate the practice of medicine.” Nevertheless, this federal organization has recently issued a new guideline to curtail use of opioid narcotics in treating pain. The fallout has been instantaneous and contentious.
In essence, the CDC has said that narcotics like hydrocodone or oxycodone are not appropriate for treating chronic pain. For acute pain, such as after surgery or an accident, the CDC recommends the lowest effective dose and says that “three days or less will often be sufficient.” Tell that to someone who has been in an automobile accident and suffered numerous broken bones and soft tissue injuries.
The goal of the guideline is to reduce opioid abuse and overdose deaths. That is a worthwhile objective. It remains to be seen if the actions of the DEA, FDA and CDC will accomplish those goals. But the consequences for people in severe pain could be devastating.
One Reader Shared her Severe Pain Story:
“I have suffered with chronic pain in my neck and lower back due to degenerative disc disease for six years. I am 51 years old. I have had two surgeries for herniated discs in my cervical spine. The pain returned after each surgery. Consequently, I have been taking painkillers for five years.
“During that time, I’ve tried physical therapy, acupuncture, TENS [transcutaneous electrical nerve stimulation], heat, ice, steroid injections, chiropractors, ultrasound and cold laser. (Over-the-counter medicines like Tylenol or ibuprofen don’t touch the pain.)
“Some treatments helped but none got my pain under control so I could function well without painkillers. My lower back in particular drives me crazy because of the buzzing nerve sensation!
“My prescription is for two morphine sulfate extended-release tablets daily plus lower dose immediate-release tablets as needed. I manage them so that on most days I take one of each, and I have never abused them. I would love not to take any opioids but my life would be miserable without them.
“Until you experience chronic pain, you have no idea how it affects one’s ability to function. In recent months, I have been treated like a criminal. I have had random urine tests (which I must pay for), have been required to sign an agreement outlining rules about obtaining and using painkillers and I must go to my doctor’s office to obtain the physical prescription every 30 days.
“My doctor is apologetic and does not appreciate having to play police. She insists that this is not an attempt to take away painkillers from those who need them, but my anxiety level is going through the roof as I worry about what comes next.”
This person seems to have a good relationship with her doctor, who is evaluating the benefits and potential risks of opioids as the CDC recommends. Like hundreds of others who have shared their stories on our website this pain patient is justifiably worried about the new guideline.
Sandra in Alabama shares a similar sentiment:
“I have been ‘certified’ as having chronic pain for the past 30 plus years. I even carry a letter in my wallet stating this very fact from a noted neurosurgeon.
“What is already happening to me is not being able to have access to the pain medications ‘when I need them.’ These meds are very dangerous if used for the wrong reasons and not watched by a physician. However, when one has chronic pain 24 hours a day, 7 days a week, there is only one alternative. The CDC needs to recognize these patients and not ‘punish’ us because we are in constant pain.”
Read hundreds of other stories from people in severe pain at this link.
What Will Doctors Do?
Many doctors may respond to the CDC mandate by restricting their prescriptions of narcotic pain medicines. That means some people with chronic pain will no longer have access to the drugs that give them enough relief so they can meet their daily responsibilities.
We welcome your thoughts about the actions of the DEA, FDA and CDC. Please comment below and vote on this article at the top of the page.
GAH
My biggest fear is that I will live the rest of my life like this, even in old age, with absolutely no compassion whatsoever from the system. I’d rather be dead than forced to live without opioids for pain for good reasons. I’m in life-ruining levels of pain. I don’t get it but I’m retiring to whatever country where you can get opium the easiest!
Mary Myers
I broke the foot off my leg. Had surgery. Sprang the other leg I go to a pain clinic I get 5mg oxycodone. I had signed papers for an operation on my neck. The surgeon told me to take 5mg from the pain clinic. He could not write any pain prescriptions because of the laws. The surgeon said he would call and tell the clinic. They didn’t take phone calls and emails. He did both. The clinic said they only take fax and text. Now since I took 5mg I will have to go cold turkey on my 5 mg . Now none for the week. Is this against the law? I may have a heartache or stroke. I’m scared.
Diane
I just now went online in search of some kind of article that would talk about what I am going through. I found the above article and can relate to all of these comments.
I have peripheral neuropathy in my legs. I can only stand on them for 10 minutes before they begin aching badly. By evening they not only ache, but sting and throb, a feeling like they are almost on fire. Narcotics, such as oxycodone, is all that helps them. I also do have an implanted nerve stimulator, and it does keep the pain from becoming so unbearable that I cry all day. But I still need opiods and wait until as late as possible to take them so I will sleep. I only am allowed 2 a day, from the 4 a day I used to take. This means there is a lot of time during the day that I am in pain. Walking helps, so I try to walk at least an hour a day because they feel better when I walk. But after the walk, I pay the price.
Why should a responsible person like myself and the other people who have shared, suffer because others abuse? I don’t understand this. My doctor keeps saying she wants to reduce my medication and hopes that she can soon. But I don’t get this either. Is neuropathy supposed to get better as you age? I don’t think so.
Arlene
I have experienced this SAME issue. It’s as if EVERYONE has to suffer the consequences of a few people who have abused their medication. I have an ulcer, 24 mm, & deep enough that even on a 124 lb woman of 58 yo, bariatric surgery may be the only option. I can no longer use NSAIDS. My script needs changed. No One Cares. These new regulations have harmed people with real issues & those who abuse meds will continue to do so regardless.
Why are unlicensed, non-medical persons allowed to POLICE something they’ve never experienced nor will understand?
I have spent All Day, Day 1 from the Hospital Discharge, trying to get this fixed. The consequences of intolerable PAIN can be, may well be, DEATH. I want to give up. Seriously. I will not survive Radical Bariatric Surgery. I’m too old & tired. I didn’t even realize I had an ULCERATION of this magnitude, because erroneously, I believed it was POORLY TREATED BACK PAIN… because opioids are now, according to our government, the Devil, Incarnate.
This is ridiculous & cruel. Seriously.
Ginger
I deal with chronic pain due to degenerative disease and damage to my lumbar and cervical discs. I have a high tolerance for discomfort, and if I hurt too badly I can sit or otherwise alter activities when I need to. I went the route of an opioid, which I didn’t like, and steroid shots that became less effective. I take a high quality CBD oil plus plaquenil for RA, and that’s it.
Found a great pain management/anesthesiologist dr. I was scheduled for a nerve stimulator implant for my lumbar and then my neck. I responded beautifully to the temporary one. But I’ve had to put it off until I return from a trip to help a relative who’s in serious condition. I asked my GP if he could prescribed something if I get too bad while I’m visiting her. He prescribed Tramadol, but said because of a new law it had to be electronically sent to the pharmacy. But he couldn’t send it to the pharm I’ve been using for years. And he can only prescribe 5. If I come back the morning of my flight, he can prescribe 5 more. That would be a week later. After that, a month’s supply. He lied about all that. I don’t know if I’ll even need them but I’ll be gone at least 2 weeks. Longer, if I have to stay for a funeral.
I talked to my regular pharm, where I went to ask about how to get my Plaquenil if I’m still away when I run low. She called the dr about the Tramadol. My Dr. would not call the pharmacy. I called his office and had to talk to the PA. She said he explained that my pharmacy wasn’t HIS preference. I said I’m the patient, and it’s my right to choose my pharmacy. She agreed and apologized. But he will not budge. I leave in a few days. I don’t have time to find anything to do about this. His office won’t even be open the morning I fly out, so referred me to another office where his PA will be. That office won’t be open early enough.
I don’t get it. I have NEVER abused medications, and I have had a good relationship with my doctor or years. He and other doctors are amazed and my “toughness.” I want to cry, but “I gotta do what I gotta do,” fly out, and if things get bad try not to show it. I don’t want my relative worrying about me.
jennifer
44512
I was hit by a semi in 2015 and ended up in pain management. I had everything done to me, trigger point injections, steroids, opioids, transforaminal injections, sciatica pain, surgery on l5, s1, etc etc. No one understands how horrible it is to try and sit down for more than 30 minutes and can’t do it but standing doesn’t help either. Im only 42 years old. I am probably going to end up on disability by the time I am 50. The pain management people don’t help, they are in such a hurry to kick people out. I got tired of being treated like im a junkie and dealing. Doctors don’t care about patients and the regulators need to stay out of it. These drs didn’t go to school to have the government and insurance companies do their jobs for them. Its sickening. that truck driver doesn’t care that he hit me. He isn’t in pain like I am. I give up too..its terrible what is out there and how people just think “oh well
Irrelavent
California
I take care of a person who lives with unbearable nerve pain resulting after many back surgeries. A new doctor took over our pain clinic and stopped all pain medications then mark everyone as drug seekers and addicts. . Now, the person I care for can no longer stand the pain and wants to die. There seems to be no recourse or solution for people suffering. Why is there no help for them?
Paul
Plano, TX
I was run over by a drunk driver on my motorcycle. I have been on 40mg Methadone for the past 21 years after 3 years of trying every drug on the list. At one point I was taking 28-32 hydrocodone per day to try to manage my spine pain, radiculopathy, neuropathy and spinal stenosis. I’ve had 5 surgeries on my back, 2 surgeries and a total knee replacement on my left knee, 2 surgeries on my foot, a fusion at 2 levels in Lumbar spine, a femoral plate on left femur, and am due now for double hip replacement at age 60. I have been going to a pain management doctor every month without exception for my pain medication for 24 years.
Last month I was forced to reduce my medication by half, 20mg/day because of new “guidelines”. These are supposed to be guidelines, not the gospel! Since that time, I cannot sleep, I have withdrawal symptoms throughout the night, and my doctor is sympathetic but unable to help. My pain level was 3 and now stays around 5-6. I’m hopeful that the medical Cannabis laws that have been presented to the Texas legislature will pass while it’s in session in 2019. If not, I may be looking for another country to live in, as this one has been ruined by politics on both sides. I hear Belize or Costa Rica are nice Maybe Indonesia, too.
JANICE Y.
california
EXACTLY LIKE THE OTHER LADY I HAVE DEGENERATIVE DISC DISEASE and bulging discs. I am 71 and have had the problem for years. The oxycodone 350 works. I take only one. If not I would run out so even when the pain is still there I do not take another.
However I recently was in a wild fire and lost everything. I had also just lost my husband, and 3 months later my little girl. I had to stay with relatives and leave the town that burned down so I also had to leave my Dr. Now I am treated like a junkie and can get no relief. I stay in bed most days with a heating pad. It helps a little very little but that’s not a life. I don’t go anywhere or do anything. I don’t even care about eating. The latest Dr. said I had to see a shrink because that was the law for anyone with chronic pain. They assume we must all be junkies, of course. I am so tired of the response I am getting. I just am not going to a Dr. anymore except for the blood pressure meds. They haven’t outlawed them as yet. I just give up. I’m tired. I hurt, and I just don’t care any more.
Jane
Louisiana
Every time I read that people are being Involuntarily taken off of their pain medicine it truly makes me cry! The reason is that the #I opioid death is from Overseas/Mexico Fentynal then heroin and coke and then prescription drugs! However those of us that take the medicine correctly are being treated like Felons from the doctors office to especially the pharmacy! My true drug of choice after I broke my neck and got a 3rd degree burn down ( if I had the wreck today I would be in a wheel chair b/c I had to take Vicodin for 1 and 1/2 years to get through physical therapy)the road was aspirin/Naproxen . But guess what DEA and Congress are u listening I have had 4 stomach surgeries due to ulcers! I no longer make iron and have to take it by IV every 3 months!
I totally believe that the doctors ARE breaking their oaths of doing no harm by cutting off people’s medicine when they have NEVER doctor shopped etc! I am 59 and if I knew who to write I would!!! This has gotten beyond outrageous and just wait for people to have to go through the horrific times of gastric ulcers! I pray for each of us !!
Ann
Indiana
Me, too. I have Lupus and Sjogren’s; have had back surgery, part of my kidney removed, was told it might be cancer; also have Lichen Planus, Barret’s Esophagus and depression from pain. How do we deal with all this pain without pain pills? We are dependent and take meds for high blood pressure, but are they taken them away from us?
No! I have never abused my pills, never sold them, or been on an overdose list. I fulfill all the doctor’s terms including pee tests which make me feel like a bad person. Why should we be treated so badly? I think the doctors know who needs them and who abuses them. I have had 11 surgeries and am not in good health. At 63, will I, and everyone else, have to live life in a pain-hell?
What can we do to stop the government intruding into our lives and running/ruining our lives?
Bonnie B.
I too am being punished and full of worry. My dr. changed meds with no discussion. I was living a somewhat quality life properly medicated. Now I’m pain most of the time, have no life, am isolated. I have a legitimate diagnosis and to prove it carry around a DVD of MRI. A home bound senior.
Kathy
Northern Calif
I am a 76 year old disabled woman. I suffer from chronic pain due to multiple compression fractures of my lumbar spine since 2006. I have been told that my Norco will be stopped and why not try Medical Marijuana. Which Does not work for me.The only thing on the long list of things to ease this relentless pain is being taken away. When we feel pain no one on the outside can judge how bad it is. ‘ what is your level of pain 1-10? Come on! The reason given is after we are past 70 we might fall or take too much . I am scared to death as I have tried acupuncture, cupping, warm water movement, yoga, walking, epidural shots, chronic pain classes, etc . I already take cymbalta and lyrics. I don’t know what to do.
Tina
Alabama
I think neither the government agencies nor ins. companies should be allowed to practice medicine. It is a felony to do this yet this is exactly what these people are doing. I worked 30 years as an RN and had a car accident and am now disabled. I am aware that there are abusers but there always will be. Have they done any studies on the rapid increase of heroin use since all this political crap started?
People who live in chronic pain are just existing, and if they are punished for the sins of a few the SUICIDE rate will skyrocket. People with chronic pain cannot have any quality of life without pain meds. I know at 57 that I would be bedridden becauseIi have so much pain. Most take it so they can function somewhat NOT TO GET A BUZZ. I AM DISGUSTED WITH THE WHOLE CONCEPT. IF YOU HAVE NEVER LIVED IT…YOU ARE CLUELESS. There are many more dangerous and fatal issues like alcohol, tobacco and homeless children and hunger. But these politicians don’t listen to the people or care about them eithrr. EVERYONE CALL THEIR OFFICES, AND BY ALL MEANS VOTE!!!
Joey
Texas
I have been struggling with chronic pain since being hit by a drunk driver doing about 85 from behind with no brake marks. I have had 23 surgeries to rebuild my hose and orbit bones x3, back surgeries x10, 2 hip replacements on each side and 1 on left knee 2 on the right and 32 more on my right foot where it shattered from hitting the breaks so far.
I worked for over 20 years the last 5 or so while taking opioids Norco 10 mg 3x a day and was in the top 5% of the company each year. My use of pain meds began in 1997 and has been consistent since and i have managed them effectively because after this amount of time, they only do what they are supposed to do,MAKE ME STOP HURTING WHICH THEY DID.
Since the political jockeying to see who could be the king of doing away with opiods, patient s who really need these larger doses or just doses in general are suffering at the hands of the do gooders who want re-election or are a crusader grouping everyone in with those who Over Dose.
I got news for you. They will still be Overdosing no matter what you do with the regs and all the pressure on practitioners who with the proper MRI and other diagnostic information should be allowed to let a man my age 54 live some QUALITY YEARS RATHER THAN JUST CRAPPY YEARS.. I would rather have 5 good quality years than 15 miserable ones like i am having right now.
Since alcohol kills more than OD’s of opioids, when are all the liquor stores going to be shut down as well as all of the tobacco sales that cause more than 42,000 cases of lung cancer per year. I have recently had my meds cut from 180 pills per month which was perfecta as I was going to the gym, playing golf a little just generally no hurting at an excruciating level most of every day like I am now with just the Fentanyl patches alone as they peak and trough terribly due to their delivery system and their make up. This is a well known fact.
A break through med is necessary almost for someone with herniations and bulges and 1 rupture at every level of my spine according to my latest MRI. I have fractured 3 of my vertebrae since all of the steroid use (prednisone) which was also to keep me off pain meds.
How about we leave the diagnosing of patients to the doctors who have trained for this very thing especially the pain management doctors who spend more time looking at your pee test and your pharmacy records than actually examining you at your monthly appointment
As with anything in life, words like all opioid users, everyone who takes opioids are , etc.. Some of us have learned to manage our medication when dosed properly.
Why does my life which has been a living hell since I was 23 which is 33 years i have been fighting this situation and i move to Texas and it even gets worse because of the governments and the Texas Medical Boards meddling in the practice of most good conscientious doctors who act responsibly and compassionately.
Do no harm, the cornerstone of medical oath Not please all the politicians.. As in any situation there will be cheaters and people who circumvent the situation matter how much you try to control it. Just as i said, the only ones suffering are the genuinely chaotic situation that accompanies anyone with pain that only those of us who have it can explain it to everyone else that has normal pains. You can’t think straight, you can’t stay organized because the pain is beating you to a pulp and you can’t fix it.
So before you lump all of us opioid users into one big partying crowd, maybe you need to get your facts straight first before you start changing regs and making it more difficult for docs to give you something that will alleviate your pain . I am contemplating leaving Texas strictly be.
Yet governor Greg Abbott won’t even raise the level of thc for the children who need higher levels for seizure activity. Cause I am tired of hurting all the time and getting no relief. Either that or start lieing like the drug diverters wo sell there prescriptios or the other group who get theri meds just to get high and have a great time doing it.
Marijuana is a huge debate in TX as well when there are more DWI’s and deaths from alcohol related car incidents than any possible amount of DUI rates. A neurologist at MD Anderson a presstitious hospital at Houston has slowed the progression of Parkinson’s, MS and Alzheimers. Governor Abbott won’t even raise the thc liquid that the children suffering with severe epilepsy still have to settle for the small thc dose.
The Democrats are poised to take away a ton of Republican seats in house and Senate due to this issue as over 60,000 veterans alone want regulatory legislature for recreational use of marijuana. And I am walking living proof that alcohol which has a store on every corner does way more damage than weed every would…..If the Democrats succeed in getting the Republican chairs the Marijuana recreational law will pass and then we have something at least to calm the nerves from PTSD as well as it works great on pain if used properly which is whenever you feel like it if approved for rec usage. Some states are making more on the weed dispensary taxes than on the lottery.
This issue is long overdue to be passed and the citizens are getting restless and votes are going to change. So the Republicans fighting legalization of weed better make a 180 degree change in their thinking. At least with the marijuana legalization, you don’t have to rely on a damn doctor to write you a prescription that they are being scrutinized over by more politicians and liberal feel gooders that just can’t leave the medicine to the professionals. If you want different edicine to happen don’t manipulate the system with politics or peer pressure, go to medical school and learn how to practice medicine or stay out of the way.
In Constant Pain Every Day and Night and a Disabled Veteran to Boot.
Lori
Indiana
I have been a nurse for 28 years and am a devoted advocate for my patients with pain. Pain is a subjective response. Unfortunately, patients are often met with judgement and disdain if they have chronic pain. When I have to continually fight for a patient that is fighting cancer to receive adequate pain control SOMETHING IS WRONG!!! How can I help them fight the battle of their life when they are also fighting the pain. It is inhumane. There are other patients that have proof of disabling conditions. Yet they are informed to take Tylenol. If it worked that would be great, but it does not always work!
I understand close monitoring and patient accountability but I also feel accountability should be demanded by the healthcare community that has sworn to treat patients. The guidelines are failing many, and perhaps psychological counseling would be beneficial. It is not fair for patients to be sentenced to their own private hell, and that is what chronic pain is. This also robs their families of precious time and fond memories that can be made rather than remembering the extreme pain their loved one was in because NOBODY wanted to make the difference.
teresa
mass
I have been in chronic pain for 20 years. I moved from CA to MA a year ago 2 weeks ago. I am in so much pain I can’t stand it. I do not know what to do. Can anybody help me?
Paul
Texas
I’m so sorry, Theresa. I’ve been in pain for 24 years and was taking 40mg Methadone a day until recently. After I was forced to cut this in half, my pain level increased significantly and I started using concentrated cannabis and inhaling it through a vape pen. I also smoke the flower when pain is really high. If you are taking any Opioids at all, it can help them to work a little better and to last a little longer. It can also help you forget your pain, to focus on other things, or not focus on anything at all and relax. I just turned 60 and I find that it helps me to sleep, too! I’m really so sorry for what you are going through. No one should have to suffer like this. I wish you the best with your lot. You can message me if you need some help or just want someone to talk to. I understand how vacant you can feel at times, like no one understands! Please don’t give up! There’s much to enjoy still! Paul
reeve11 at verizon dot net
Anna
North Carolina
I am a physician and agree with you 100%. I also have chronic pain after 2 bad back surgeries in 2016 and then one in 2017 after developing a total caude equina from the waist down, paralyzed. Had another surgery by an amazing Neurosurgeon and it took 7 hours. Have had a year and months of rehab. I am very sparing with my meds but with some other meds, even if you have been on them 20+ years they will not write for you to have even small amounts of hydrocodone.
I am back to work, only up to 24 a week and have pain every day but what devastates me is the times I have really bad pain it doesn’t seem to matter.
As a physician I try to do a better job for my patients.
But the government, insurance companies and others that are not qualified ARE practicing medicine without a license.
The criminals are still getting away with whatever they do, but compliant patients like myself are being treated without true compassion and like criminals.
David
Tennessee
They can’t tell drs what to do. So they make the paperwork so cumbersome that they can’t afford to handle it all. That’s how they control it !!!! My dr has quit helping patients because it costs him money. You can’t blame him. He has to eat !!!!
Don’t know what to do. I am on high dose of oxycodone & always have been correct on count for four yrs now. If the officials in Washington had lifelong pain I bet they wouldn’t suffer like they are making us do!!!
Sarah
MI
I too just went for my monthly prescription yesterday and was told I’m being weaned off my meds from 120 mg of OxyContin a day to 60 mg a day then every month less and less til I’m done. I am in constant pain . He told me ibuprofen will help my pain . Don’t you think if ibuprofen helped I’d be taking it instead of coming to a dr every month to get urine tests and try to find pharmacy’s that will still give us our meds ? Really ? Don’t insult my intelligence . No one wants to jump through hoops every month just to get a pill they need to function. People aren’t overdosing if they take their meds the way they are prescribed . I’ve read so many stories about people committing suicide over this . They have nothing to say about those people though . All those families watching their loved ones struggle and then just end it . I understand how it can happen . You don’t want people addicted to pain meds but it’s ok to have people in chronic pain ? What sense does that make ? What’s next ? Not giving hospice patients their morphine at end stage of life ? Where does it end ? We’re being monitored every month with urine tests like criminals . This definitely has gotten out of control but not by the patients who need the meds and do everything right! I’d like to see them watch someone they love go through what millions of us are going through . How are we suppose to work ? A lot of us can’t function without pain meds and have jobs ! Can’t get out of bed unless we take our meds ! So more people will be on disability ! Or committ suicide or try to get meds other dangerous ways . It’s so frustrating . I really don’t know what we are all going to do. It’s not right. God bless all of you out there going through this .
Beth
Genesee
If only those making these decisions would come to the realization this is not right. To actually cause citizens of this country to suffer horribly and have no life but misery. It is hard to believe they could be so evil. I guess it comes to their greed. I would like to know what they and their families are given. I bet the rules don’t apply to them. When will things turn around so honest people can get the help they desperately need. I pray this torture doesn’t continue. With my illness I am unable to cook, clean, or take a shower without medication to help the pain let up. I believe it is a sin what they are doing to us.
Jonathan
Toronto, Ontario
This is my first visit back since I found this site a year ago. I’m saddened by these comments but not at all surprised. I’m angry at the way the media has put together this ‘crisis’ and focused on the most sensational stories and said nothing about everyday people who have been able to work, exercise and enjoy life because of their pain medications. People are not dropping dead from hydrocodone or even oxycodone. They are mostly dying from heroin laced with fentanyl purchased from sketchy people on the streets. In fact, had hydrocodone not been upgraded to a schedule II narcotic and this whole panic that forced so many of us off our medications, these mass overdoses and deaths would never have happened. I’m also guessing between the overdose deaths and suicides, many of us have lost friends in chronic pain within the last four years.
I really smell a rat here because the way this opiate crisis has been sensationalized points to two things: political gain and MONEY. Someone out there is making money off all these treatment programs and their ability to bill insurance. Get all these people withdrawing, enter them into (often questionable) treatment programs and look at the amount they make every month. They don’t care if the patient is drug-free or not. They got their money. Big Pharma is now Big Rehab.
Bob J
Missouri
I’ve been on pain pills for 15 years now. I have arthritis and I’ve took every pill for it but it doesn’t last nothing works, they even pumped in a fluid but don’t remember what it was did it for 7 months finally told the doctor no more it doesn’t work then they wouldn’t see me any more now I’m with a pain doctor and yes you count pills but I don’t count pills I tell them I take them when and how much I hurt don’t matter 4 a day no matter what.
So, I will take Advil supper 650 or 750 with them so I don’t over take them. Once I took one to many and they push the Red button and it grid up what I had left then with out for 2 weeks. Well when your in pain 24-7 now since 2000 I sick of it 18 years of pain and nobody cares Bob.
Esther Rios
California
I Have Been Through So Much Since 1999, 3 Major Back Surgeries , Been On Actiq, Morphine, Norco, Fentanyl , You Name It. Now, I Am On Oxy, 30mg. Two To Three Times Daily, And Now They Our Saying That I Have To Ween Off This As Well. What Our We To Do Without Pain Medicine? I Got Off Everything Except For Oxy, What Other Pain Medication Can I Take? This Is Crazy What They Our Doing To Us??? The Pain I Cannot Talerate With Nothing, What Our We Too Do If They Take Opioids Away From The Ones That REALLY NEED IT??????
Robin G.
OH
In the same shoes,ugh! I had taken a headache pill from a friend not knowing it was a prescription, so the pain management clinic I had gone to for 5 years said I had dirty urine. They didn’t say what it was, as far as I know, and kicked me out after 5 years of going to this place. I don’t know what I’m going to do. My doctor ever since has been scared by the DEA and is scared to write pain medication prescriptions.
I lost my hand in a 50-ton machine. It fell on me, taking off my right dominant hand and two of my fingers! if anybody hears or knows of a doctor who will treat me please let me know as I am only 59 years old. I am a very good person did not ask to have all this pain!?? I need some help soon so I can function. I have grandbabies to spend the rest of my life with!
Gina
Michigan
My 75 year-old mother, who has never taken pain medicines her entire life, had to start taking them when she was diagnosed with Rheumatoid Arthritis at 74 years old. Also had several compression fractures in her back. The pain was so excruciating, she would call out to us and writhe in pain. Her Dr. at that time had no idea why she was in such pain, but prescribed morphine to be taken every 6 hours. After two weeks of taking it, I noticed she “flipped out”. She was hallucinating, very confused, mean, vindictive, and we thought she was getting dementia! She was not. I googled something and read “thousands of Americans are misdiagnosed with altzheimers and/or dementia every year, when in fact, it is drug toxicity. We immediately stopped giving her the morphine. Two weeks to the day of her last pill, she was herself again!
So, on to a new drug called Norco. That didn’t even touch her pain! So, the Dr. increased the dosage. Still didn’t help, so they added Neurontin to the mix. Suddenly, she couldn’t participate in her Physical Therapy because if she wasn’t in excruciating pain, she was zoned out when it was time for the therapist to work with her. So they dropped her from the program. We insisted on a drug that will help with the pain and keep her awake! Next try. Percocet. One percocet every six hours was good for about a week. No pain! But then, she started with the nasty remarks, the confusion, the terrible drug toxicity. So…on our own…we knocked it down to a half every 8 hours. Too much pain!
So we called the Dr. She needs something to take away the pain. But, she can’t be a zombie either! So, he prescribed a new one for her. Lower dose of percocet, and for break-through pain, Tramodol. She took her first tramodol last night at 9:30 p.m. and by 10 p.m. it put her to sleep! Woke up two hours later in horrible pain! We have no idea what to do. I’m so scared. She has been unable to walk for nine whole months because of all the drug toxicity and not being able to participate in physical therapy. Everybody is giving up on my mom. All I know, is, we just need to find the right pain medicine for her, and things will only improve. Thank you for letting me share my story.
Cathleen
New Jersey
I had 4 spinal surgeries, two hip, and 1 shoulder. In 15 years I had total of 7 surgeries. Like you, I had every pain pill and shot under the sun along with PT and tens unit. I have been on narcotics for 15 years because of all my surgeries and severe nerve damage. I had to come off cold turkey though because I was getting depressed. I told the doctor take me off, and he put me on tramadol . The first month was rough. But God helped me. My pain levels started going DOWN.
It didn’t occur to me that the very thing that was helping me in my pain was making my pain levels worse. I looked it up, and sure enough. Narcotics increase your pain. I was scared to get off the NARCS. But it was getting to the point where I wanted to die. I was that depressed. I feel so much better now. My pain levels are still there but have gone to a 5 instead of a 10. I’m sharing my story with you so you can have courage. God bless.
ALLISON BENNETT
IN
I am 48. at 23 I had a broken in half disc. HAd fusion surgery done. when I WAS 30 had bulging discs. my doc told me pain medicine was my best option.. now they realize i have degenerative disc disease. For years I have been TAKING MORPHINE…. it now cost 224 with insurance .TOTALLY NOT FAIR TO ME… I AM SUFFERING BECAUSE OF DRUG ADDICTED IDIOTS.PERIOD.ALLISON
Ginger
Colorado
My brother is disabled due to hemochromatosis, a rare blood disorder which has caused him many problems. He has severe painful arthritis, cirrhosis of the liver, and many nights of painful muscle cramps, itching and insomnia. His primary dr. did have him on something similar to vicodin for a few months, and now the dr will not prescribe him any more.
My brother never over-did it with his medication and only took his medication about once a day, if even that. The medication really helped him, and now my brother has to live through many days of pain. What does a person do?
andy lee s.
Plum Branch, SC
Until we make all politicians, the CDC, DEA, and FDA employees publicly disclose theirs and their families’ medical records and what pain meds they are, and have been taking, nothing will change. But this most certainly will: You know, there is one law for the super-rich and one for lower classes. We are not going to endure the sucide pain they are inflicting on us, period.
Debraa
CA
I have been dealing with chronic pain for 13 yrs . I get all of this way to much. If I can help tell me I’m in California
Linda
This is absolutely so wrong to take away what keeps us comfortable in our golden years. I was on pain meds lortab 7.5 and only took them when absolutely necessary. I was on Ativan for anxiety. Friday I was told I could have one or the other but not both although I have been on the same drugs for 15 years. Now I lay here at 3:30 a.m. because I can’t sleep. When my anxiety goes up, so does my sugar, blood pressure and cholesterol. I had my diabetes in good control but now it’s all over the place. I am sad and depressed which I wasn’t before. Why are they treating the very citizens that helped form the country this way? I am not an abuser and many days I suffer in pain so I don’t have to be on pain meds four times a day. Some days it’s only one tab, the most two but why take away my anxiety medication that brings on more medical problems without it. I check my blood sugar four or more times a day to keep it in check. Now I suspect all my hard work getting all my labs normal will go out of whack just because of the abusers. This is so unfair and I believe we need to join together and do something about this. I am calling my local senator and state representative and start there. I may see an old friend who is a psychiatrist to get my Ativan back. I think the government just wants the elderly to die off and worse yet without dignity.
Linda
Boston
I read and read and think, “Once again the politics are in play. The aforementioned government agencies didn’t blink when the pharmaceutical companies “employed” physicians to prescribe opiates. Now that there are so many opiate related deaths , those same “approving” agencies are suddenly pulling the plug on opiate prescriptions to protect Themselves from liability. Yes, it’s all about them. Look, I can be objective because I have walked both sides of the opiate epidemic fence. I spent two years dealing with the hell of a loved one hooked on heroine. Thank God she is clean now. However, my 85 year old mother, who suffers severe hip pain and is in dire need of one 5 mg Percocet a day at bedtime and Cannot get a prescription thanks to the new “cure all” practices!!
Does it concern anyone that by suspending opiate treatment to real need patients , they may turn to heroine in helpless pursuit of relief?!
I could keep going but why bother when the decision makers of our fate are so narrow minded and clueless.
By the way, constant pain leads to immune system issues, depression, etc.
Evaluate patients on a case by case basis. That makes sense!!
Charlene
North Carolina
I have talked to quite a few people in the past couple of months who are, as I wondering if the CDC and our government want to speed up the passing of the elderly. Horrible pain, not functional and not functional without some pain medication. For me it is Tramadol.
People in chronic pain will find a way to get help for their pain, probably illegal. It is a horrible state of affairs that our government allows people in severe pain to be treated this way by a sweeping new law that causes more hurt to honest decent people who really need help.
T
robert
covina ca.91723
Well, folks, you are all taking the wrong way to solve these problems. The government does not understand that pain is real but cures are not. The doctors take an oath to help people, not to fear the government. My opinion is that all the people who are having problems getting their pain medicine [not lying disable people] should start filing law suits against these doctors or doing a group law suit. We need a good malpratice attorney. It might be hard to find.
I will now tell you my story. I will be 80 years old and had polio when I was 11 months old in 1938. I had some experimental surgeries that might have helped other patients but that I pay for today. I had many surgeries: leg,knee pinnings to stop growth in one leg,skin grafts, and I lost count of how many back surgeries. Now I have post-polio syndrome, for which there is no cure and many doctors don’t know about, like mine. I never walked a day that I can remember without pain. I have taken every kind of medicine there is.t My doctor won’t continue to give me the medicine I have taken for 35 years and that that worked. He is giving me another medication that makes me sick as hell. I dont want to discuss medicines because some work for people, and others don’t. I’m thinking of suing my doctor for malpractice. I also want to let you know I never collected disability or unemployment. There is alot more I could say but I don’t want to spend months doing this.anybody who wants to contact me. Hope this gives you some food for thought!
Linda
Florida
Robert I totally agree. My doctor took away my anti-anxiety pill because I have to take pain medicine for chronic pain with my back and hip. I also get injections. I do everything I can to eliminate pain but as I age degenerative disc disease and arthritis have entered the picture. My anti-anxiety pill I take on a p.r.n. basis is necessary for me. when I have a situation beyond my control I take one and it relieves my stress. My diabetes, cholesterol and blood pressure all go up and put me in a vicious circle that takes days to get under control. I was coping with my problems just fine and now I have to suffer because of what the CDC is forcing the physicians to do. What can I do to reverse my doctor doing this when she is well aware what this will do to me? Now I’m depressed and lay awake at night and feel horrible the next day without my 8 hours of sleep. I’m 72 and I need that sleep. Before I could function and now I can’t.
George Brown
DE
I have chronic pain and Rsd in my foot and a herniated disc in my low back. I have been on Vicodin for several years. I always used it only when needed to keep the pain at bay and never abused it. Been with my Dr for years. He knows me, and he also checked my blood work and saw if I had any extra meds in my blood, and of course, I never did. Last year when going in for an appointment he said he couldn’t refill my pain meds anymore. That was all he said, no explanation, just stopped. He was the Dr who put me on them, and now all the sudden he can’t give me any more. So stopped cold turkey, and I have pain everyday. Seems to me that the CDC doesn’t care because they don’t live with pain. Drs know patients are in horrible pain and don’t care. I believe this will cause desperate ppl to go and seek help some other way. So it will be causing more problems. It’s a shame to be treated like a drug addict by your Dr who put you on it to begin with. This is not right.
mike
az
I also have extream pain which was managed with 20mg oxycodone daily.Doctor stopped giving me it with out warning.I also have stage 4 liver scaring.I dont drink but now I have to for the pain and it is killing my liver.This to me is legal homicide.Goverment should be ashamed
Worried For All Of Us
LostHope, USA
I am happy to find this thread and find that I am not the only one that this is happening to for no apparent reason. I got a call from my doctor’s office this morning to say that he wants to have a phone appointment with me to discuss tapering me down because I am on such a high dose. A dose that HE put me on years ago and a dose that is well within the new maximum limits set by the FDA. Now he is telling me, years later, that it is too high a dose and wants to taper me down because they are potentially harmful and they “dont work anyway.” How does he know they don’t work? He doesn’t live my life and walk in my shoes every day. If they didn’t work I wouldn’t be able to get out of bed in the morning; I wouldn’t be able to do something as simple as taking a shower and get myself ready for the day if they didnt work. It’s BS, and it infuriates me!
However, I am NOT happy to see that there are so many of us that this is happening to who truly need these medications just to get out of bed in the morning to try to live a somewhat normal life because we are plagued with chronic pain 24/7. I am not happy to see they are being taken away from us with no warnings or explanation, other than the obvious thought that the addicts, junkies and street sellers have ruined it for those of us who truly need them, potentially harming or killing some of us who have to live with debilitating chronic pain every day and sending us backwards after many years of working hard to get to a place in our life where we can live a somewhat normal if We have learned to live with and tolerate a hell of a lot of REAL pain, scheduling our days and activities around our dose times just to do something as simple as getting one load of laundry done in a single day rather than 2 or 3 days, making the bed, and just basic every day household chores because the pain is too much and exhausting!
I have been full of anxiety, panic, and in tears since I got that phone call, and I am terrified of what is going to come out of it. Over the last several years my quality of life has diminished significantly because of my chronic pain and the many ailments that plague me daily, preventing me from doing things I once was able to and loved. I’ve basically had to learn to live life over again and very differently than I did years ago.
Am I happy with the way I live my life now? No, I am not in the slightest, but I don’t have a choice. They refuse to do surgery or anything else to try to fix me or help me to get the quality of life back that I once had so I take my medications to live as normal of a life as I can and now what little quality of life I have left is possibly about to be taken away from me through no fault of my own. I’ve never worried about anything that was out of my control or let it bother me. I’ve never been one to be afraid of anything and have always embraced change. But I can honestly say after that phone call this morning, reading this article, and the many comments and other articles I’ve stumbled upon this morning, frantically looking for answers after the phone call, that I am terrified. I am afraid, and I am worried at what is coming down the road for me and everyone else who is in this same position, and this is not a change that I can embrace.
Our lives as we know them are about to be ripped out from under us, and there’s not a damn thing we can do about it. We have no control over our lives anymore. That worries and bothers me for all of us, we have nowhere to turn to for help. I wish ALL of us in the same boat the best!
Kathy
San Diego, CA
I am in such physical pain 24/7 from a severe rotator cuff injury that I am bedridden. However, no doctor will prescribe the pain medicine I need to give me ANY quality of life.
I have never abused drugs, I would never abuse drugs, and I am suffering to a point where my nerves are shot, and I am not sure how much longer I can hold on. The doctor I had before this injury, when I had to have a neurotomy for 5 nerve centers in the lower back, gave me Percocet then fentanyl patch enough to make me comfortable before the neurotomy. The FDA may have guidelines, but it doesn’t mean the doctors are unable to give the medicine. They CHOOSE to treat all patients that have pain the same, as if they are all drug addicts and need their drugs. They have found the data incorrect with the FDA that about 20 percent of older adults with severe chronic pain are not overdosing by accident but on purpose. It is a genocide of the worst kind. Doctors vow to do no harm.
How much harm does it do to dish out a life sentence of pain? Does that doctor suffer from severe, chronic pain? How does he treat his?
Carol
NC
Was thrown out the doctor’s office like a dog thrown out the door today. No options entertained. 10 unabused years of “treatment.” Broken neck in five places, fusions, pinned plated on shoulder. My dog would gey better palliative treatment at his vet’s should he break a leg, etc.
Karen
Jacksonville, Florida
My new pain management Doctor will not write me a script to continue my oxycodone. I have been taking it because of a nerve injury which has caused chronic pain and other issues. My previous pain management doctor will not help me through any of this and will not return any of my calls ( about 7 ) my medication runs out tonight and neither doctor is telling me what is going to happen and why they are doing this to me.
XJ
New York
My doctor recently cut off my pain meds without any warning or any chance to taper. The doctor also stated that is was a new law by the FDA and out of her hands. I don’t want to accuse my doctor of lying but is this true? I can’t find any law that states my meds for chronic pain needed to stop in 2018. I received my prescription with no issues in December and when I called to get my refill in January there was a new law evidently. I am devastated and in terrible pain. I don’t know what to do.
Carol
NC
I have a broken neck with three fusions broken pinned shoulder and osteoarthritis all over
I have been on oxycodone for two years. Basically horrible neuropathy and peripheral neuropathy..permanent
I am now blocked from my med because I take kloptin to sleep. I have taken myself off the oxycodone and can barely do anything. The pain clinic started monthly drug screening before the law took effect on Jan
Without my consent in writing or verbally or letting me know anything they’re them to an out of network / state lab in Seattle at a cost of $750 ×2 which insurance won’t pay.
This is at least a 675% increase from their in-house screening. Who can afford $750 a month? I feel kicked to the kerb, criminalized victimized stigmatized and financially raped help
Lee-Anne
Canada
I feel like a criminal for the pain they caused. When an ectopic pregnancy ruptured and I was left to bleed for eight hours in an er hallway, which resulted in a sloppy surgery to save my life, I figured I should be up and around in a cpl weeks. My thought was women have c sections all the time with no problems. I was wrong. I was really surprised that the pain never went away after. Always this burning, peircing pain that makes it feel like I’m walking through wet sand and my internal organs are gummed together.
But I still have to live somehow. I still have to be a mom and make enough money to pay the bills. Most days it feels like I’ve got my nose out of water just barely. Until dr says recommendations are that I’m on too much pain meds. Not according to my quality of life but according to random studies. So now I have a straw to breath through metaphorically. And they tell me I have to find a way to accept this “breathing through a straw”. I’m alive. But I’m not living. I don’t see much point to being alive if you’re not able to live. The goal of the cdc Ect is to keep people alive, regardless of thier state of wellbeing. Nothing more, nothing less. They forgot one thing though, pain is fatal. Pain is more fatal then then the narcotics, then the NSAIDs, then anything else they can give us to stay alive.
Dee
Kansas
Seems to me the f. D. A. And government officials do not care enough to think about what the consequences could be If they take these meds away from chronic pain sufferers . First of all there will be a lot more people on heroin then you’re going to have a lot more people committing suicide because they cannot live and chronic pain , then you’ll have a lot of them bedridden to ! What about our vets that has got seriously injured serving our country ? Do they deserve to live in pain after they served our country ? It doesn’t shock me that our government does not care about American citizens in anyway ! This is totally messed up !!!
Wendy
Sacramento, Ca
My story is the same. My mother has degenerative arthritis of the spine (among surviving breast cancer, tmj, bladder sling etc) and she is 77yrs old. She has been on oxy for several years. She too has done the pain mgmt., etc., and nothing else works. The Dr. is going to wean her off of them completely, stating that the health risks outweigh the benefits. Well, what about the stress that will be put upon her? So I feel that there should be a waiver that she could sign that says: you have been informed of the health risks and your doctor’s recommendation, however I the patient promise that I will not sue (etc., etc). I elect to continue taking the pain med, as I have tried all other alternatives. I accept full responsibility (etc., etc.,). This is my right as a patient.
Just like the waiver a patient must sign if he checks out of the hospital against the drs wishes. Please if anyone knows where this small group of people can join together to keep getting this pain med or if there is a legal way to get around your doctor, please respond.
Joel S
Pennsylvania
When I was in my early twenties I was demolitioning a huge building where they did a lot of radiation and the place I was working at is where they built plutonium fuel rods for nuclear submarines and they welded them where I was working I guess they cracked and it has cement all around us that was 12 ft thick it was block cement block but it didn’t have any holes in it was solid cement block and they called it shielding wall and the floor was I don’t know how thick it must have been real thick because it was colder in there than what it was outside and it was 13 degrees out that day but I remember them cutting costs and one of those cost cutting things were heat. So the way we stayed warm enough so we didn’t freeze is we would work hard,fast,quick,& like madmen. This made you sweat inside your Tyvek suit and that sweat stayed in there and it could not come out and you kept warm until you unzipped your tie back suit and your clothes were soaking wet from the sweat and then it was cold but that’s how we would stay warm and I got hurt because I was cold it was 13 degrees outside and I tour up L3 L4 L5 and S1 disc and I’ve had 4 back surgeries and I can’t get any relief I have bone spurs on my spine and a lot of arthritis and the doctor said he could go in and operate again but he would probably do more damage than good also from cutting me open in the same place so many times I build up a lot of scar tissue and it’s pressing against my sciatic nerve and boy that hurts so for me working my butt off for our government to keep our nuclear subs in the water I rate two 800 mg Motrin pills and that’s it. Nothing else. when I go to a new doctor and they look at my x-rays and pictures and they say oh my goodness your 47 your back looks like it’s at least 80 years old. Then I let them chuckle a little bit but I really wanted Jim I fist on their throat because they think it’s funny and I don’t and that’s the best medicine I can get. What makes me any worse or better than the Pro ball players we have who can get any kind of pain pill and as much as they want for as long as they want. I know this for a fact because I know a lot of Pro ball players. My sister has dated some of them.. so can anyone tell me what makes them better than me ?!?!? I can
MONEY !!!!
Joel S
Pennsylvania
I got hurt when I was pretty young I was done mowing a nuclear facility the place that we were getting rid of made plutonium fuel rods for nuclear submarines for the government and they wanted to save money so they started cutting costs on little bit here a little bit there one of them was Heat and it’s not a very good idea to have air blowing hot or cold when you’re in a Hot Zone when I say hot I mean an active radioactive Zone because if you get it airborne and you breathe it in and you get it in your lungs or in your stomach you have to either get it surgically removed or you have to pass it out every time you go to the bathroom and has to be in a tupperware container. Gross huh ? So we didn’t have any heat where we worked and it was about 13 degrees Fahrenheit inside and what we did was we wore white kaivac suits and they almost look like a suit that an astronaut would wear and if you’re cold and in use if I’m uptight if you start to sweat in them the sweat can’t leave your body and that actually warms you up and the downside of that is when you go to take your clothes off into the shower room the clothes you’re wearing underneath are soaked with your sweat but you don’t freeze your butt off so this day I was cold out it was 13 degrees outside and I was at working in a cement Pitt and and this cement pit and this Pitt I was working in felt colder I picked up the pace and I tried to
Country
Bibb
If doctors will do operations then they don’t need to just leave us hanging. I had two right shoulder surgeries and then they said my neck was still causing the pain I was still feeling. So I had neck surgery it’s been 3 months since that I feel pain and pressure now in my both shoulders and neck. Now they won’t give me anything for pain. Just told me I didn’t have to come back. I can’t get anything for pain now. I drive a truck so I hurt every minute of the day. If anyone knows of anything legal I can get for pain please let me know.
Tom
Ventura
63-year-old male, Hx of c spine fusion 4-7, bilateral thoracic outlet surgery, and recently had an acute exacerbation of lower back pain with severe sciatica requiring surgery.I had a decompressive laminectomy l-4 l-5 and l5-S1 along with l-4 to l5 diskectomies.Also stenosis, all of which were compressing nerve roots to those areas. Now all these surgeries gave me severe pain most of which are now considered chronic pain, however, this last one has gone on for 12 weeks now and I am still having acute pain. I am on max pain meds and am still in considerable pain. I am sure this is only one out of many, many cases.I am having a more than difficult time getting by on a daily basis even with a great family support system.It is bad enough for me, I do wonder what some will do without this help, and without pain meds.I won’t be on them much longer, and can only pray my pain level goes down.
john
NYC
I’m a 63 Namn vet who had 2 Lumbar burst fractures age 18, I played football which crushed C3+4+5 requiring a corpectomy ( replacement of vertebrae with one solid piece)….Luckily I was a musician and could avoid renjuring my back…u til on tour fell walking off stage breaking 2 fusions n creating 4 new herniations….2 surgeries, every injection ….epidurals, facet joint, and a 2 nerve attempted ablation that failed n damaged my spinal canal…now due to that total,disc dehydration in my cervical area….From 1999 until 2007 I had 4 failed surgeries and was on pain meds n btw I was now working as a certified Drug Counselor…..in 2008 I had a heart attack…thinking it was over I thought soon I should be stable enough to Stop,pain meds…of what he was prescribing …but it was not to be…every 4-6 months until Sept 2015 after 21 stents, 2 heart attacks, Pacemaker….on my b day I had a massive heart attack.
But the blockages stopped happeneing…so I had a year to get strong.
last December I asked my Dr to help,me detox off the 20 mg of ,methadone n 60 mg of MSIR @ 30 mg each one in am 1 before bed….I could NOT be HIGH I have a wife with MS I need to care for.
This pill Factory Dr used psychology on me as during the heart 8 years I lost my Dad to kidney failure, my mother in law to cancer n 10 mini strokes and then my mom to lung cancer ALL within 3 years …so this scum bag Dr pulls me aside n says my heart could not tolerate the pain and refused to remove me off the meds.
I fired him….called a cpl friend and at 62 decided to DETOX myself with all these condition no including Lupus, Chrons, Thyroid, fibromyalgia, RSD all while still taking care of my wife’s MS n starring death in the face.
I was a 2time Purple Heart recepient and have been in some kind of pain since age 5 when an abusive father broke bones as punishment.
In May of this year the fog was lifting. Sure I was in pain but a pain I could live with, as long as I have Lidocaine patches, muscle relaxers….I could keep it at a 3…..sadly fate struck again as a truck hit me in the rea and into oncoming traffic…not only did I rearrrange 15 yrs of some healing from past damage but now with 2 new burst fractures and T9-10-11-12 and breaking the fusion a L3-4-5 S1…..still I had hope I could deal and in 4-6 months possibly ok!
That day has yet to come….I have lost 45 lb from not eating, I can’t sleep n get maybe 2-4 hours Ina 24 hr period……I finally went to my neurologist and he could see it in my eyes….and my BP went from 104/72 to 169/93…so to avoid a heart attack that would certainly kill me at this point I asked for a non narcotic pain reliever…Neurontin…made for Epilepsy but claims of it working for pain….it was like LSD whew!!!!! I took it one day n prefer pain, then I was given 1….5 mg Percocette in am and one for PM
Are they kidding? On top of the thoracic damage that affects the nerves wrapping around your ribs n chest……for 7 months now I have bit the bulllet, but after being told there nothing we can do….I went into shock!!!!
It was just my 35 wedding anniv…..n I couldn’t get to the dinner table let alone take my wife out….why????
All because a few Drs at this hospital were arrested…one facing 30 years for selling scripts of OxyContin,,…12,345 Of em for 180 mg at 150 per script!!!
So here I am now….after the car accident I got a new car….7 months ago I have NOT emptied the first tank of gas and have only 278 miles on it….why?
can’t sit that way without EXTREME pain….
So far I have had 2 CT scans shown no severe damage, but I’m NOT ansurgery candidate due to my heart…and it’s obvious I did NOT wanna take BIG PHARMAS quick fix ( to make them n the dr rich) but after the car accident I hit a pain level,I never knew existed…again I have 2 Purple Hearts so I can deal with pain….but this…..this is TORTURE yet now the DR finally gave my MSER 15 mg…..but told me u have 3 months to heal as I will stop it then….
I can’t do this much more….but I can’t pass on leaving my wife so I am slowly wasting away, eating pain n Nitro to stop heart attacks…..welll it’s at THAT level,that doesn’t exsist and NOTHING helps…not Lidocaine patches, muscle relaxers or the last of the MS ER….but the worst pain I have is when I get myscripts filled I might as well have a gun n mask on…..the pharmacist looks at ya like your a dope addict……
believe it or not but even President 45 ( Yuck) is making it harder n harder to get help…….even the VAnis jerking me around…They gave me an appointment in 8 months….I already have been waiting 2 Of em……
So who is the criminal here…the DR….oh yeah as they all get kick backs, vacationing ms for what they prescribe, Big Pharma….hell yeah, OxyContin, codone are not mean for pain relief they are synthetic n seem to have an ingredient that makes them instantly addictive…….and YES the NON profit hospital that gives these pill farm Drs offices in the hospital for marketing n protection…n BTW the first Dr to give me pain meds in 1999 was at the Pain Management department….same dosage for everyone…..all Records they claim LOST in construction, the DR arrested for selling scripts at his private practice n then they closed the department leaving 578 patients with NO DR, NO SCRIPTS, and NO RECORDS to take to another DR.
So for those of us mostly aging patients who never abused there meds are now bedridden, forced to detox….try getting into rehab with Medicare..you can….but ya have only 3 days to get well??????
The government is loaded with people wh have never been in pain and who helped drug companies make a ton of profit….yup those saying this Epidemic must STOP….are full of it…..they all got rich and many held stock in these companies…….
This must end!!!!!!
But I doubt it will…..they blame us…and in Us are mother, fathers n kids with legitimate problems n yes there r those with NO problems n without MRIs or CT Scans they still give em out…..
A HUGE part of the problem is that DRs today are Drs to make money and ensuring u MUST be back every 30 days make us CUSTOMERS NOT PATIENTS.
so they could kill me in Vietnam Namn…..but the Drs n the government can
God help us all…….TRUMP care will surely make it even worse
take your Purple Heart Bronze Stars n u know where u can put it…how about some respect n compassion for all especially a decorated Veteran
Tracy
Alabama
I am a 35 year old female whom has been in chronic pain since my earliest memories. I was in college at the age of 16, daily by the end of the day after walking campus and most days working I would literally be in so much pain that I would cry myself to sleep, I often wandered if my legs and arms belonged to someone else, during this time I fell several times th me last couple times I damaged both rotator cuffs. After visiting the campus doctor it seemed weekly and then later daily they finally decided it best I see a specialist because something just wasn’t right. I was First diagnosed with MS at the age of 18 and it was so severe I was immediately started on pain medication and not to mention I have had insomnia due to my pain and stress all my life I think when all was said and done I was on a total of 23 different medications. I immediately started having epidurals because my spine was pretty much shot and no surgeon wanted to touch it because I was so young and I had never had surgery except minor tubes and tonsils. Let’s fast forward to the age of 22 at this time I am happily married and we have gotten my meds regulated as so we could try to conceive, well after I don’t know how many surgeries to remove cysts and no countless miscarriages I was diagnosed with ovarian cancer and had to have a complete hysterectomy at age 24. Two months later because of my weak immune system I set up mersa in my abdomen so now not only am I cut long ways all the way across within two months I now am cut all the way up my abdomen, I spent a entire year pretty much in the hospital from pancreatitis, all the way to flatlining from a grandmal seizure. I am now 35 and not only do I have ms I have lupus as well on top of interstitial cystitis, copd, degenerative disc, fibromyalgia and the list goes on I have had a total of 39 operations over half being major, which include a total shoulder replacement, six cervical disc fusions, left knee surgery just to name a few of the major. As of when the new laws came into affect my doctor was open one day and gone the next and pretty much every other pain specialist in my town I was and others was forced to stop meds cold turkey! Unless you have spent one day walking in my shoes I can’t even explain my pain daily, I have never ever misused my pain medication nor have I ever done any type of street drug my husband and I adopted a newborn April of this year and he has been a saving grace but in turn it’s a challenge daily physically but I literally get terrified to go into a doctor for fear of all the questions and feeling like nothing because of my pain. It’s so not fair I see others in my same shoes and suffer as I do and at the same time you see the ones with nothing wrong but a habit going monthly still to pick up a script while we suffer so please tell me what justice is being done? I believe we need a doctor whom let’s our health records and history speak for itself. My fear is dying from my MS or Lupus and having to suffer in pain as I deteriorate because of my fear of a doctor the same one whom took an oath to help all the while listening to the government who had never spent a second with any of us.
Pamela
I agree with you 110 percent! I’m 66 and still fairly bright! Most of us aren’t in our dotage, nor are we idiots-we know what they are doing and it all boils down to the almighty dollar! Ideally, I suppose we should all drop dead before retirement age, my letter from SERS practically accused us of living too long and that we were getting more from retirement fund that we ever put in it! so they froze the cost of living raise! i live on $813 dollars a month which wouldn’t by a tie for our fearless leaders in Washington!
Anyway, Medicare sure doesn’t get you any fancy medical care! I took vicodin for chronic pain for about five years, the lowest dose there is. A year ago my Dr. increased the pills from two a day to three. so when I went for check up in June, he waited til it was almost over and informed me he was weaning all his opiate patients off the pills. Wasn’t too happy a summer! but I have had no pills for four months. for six weeks I felt great! baked over the holidays, felt really encouraged with just my normal aches and pains. Yesterday, I was in such severe pain all over i thought i was dying!Literally hurt all over!
The day before, I was actually playing pirate with my little grandson! Just hit from nowhere and spread. Still hurting some today. No need to call any so called Doctor. Very depressing to have such a violent setback after six weeks! I know there are so many out there that are far, far worse off than I am but needed to vent! I can definitely understand your frustration and your wife’s illness. Blessings to you both for whatever good they will do, they are sincere!
paula
Rapid City, SD
I suffer from severe pain if I don’t take my Percocet. I have had 3 surgeries on my back, spinal stenosis, 2 shoulder replacements and one knee, also neck hardware. My body is getting worse all the time. Soon I will be in a wheel chair. I can’t take things like other non-script drugs due to ulcers. I also have had breast cancer. If I don’t have my pain meds I will be confined to my bed a lot of the time. I have been dealing with this since I was very young. What must be done for the people like us? I know my cancer will be back. Don’t let me suffer for what time I have left.
WILDCAT
I AM IN SEVERE PAIN AND THERE IS NO WAY TO GET HELP!!! I FEEL LIKE 24 HOURS A DAY, I AM CAUGHT IN A WEB FULL OF MISERY!!! I LIVE IN THE USA AND THE MEDICAL SYSTEM IS BEYOND REPAIR!!!
SO FREAKING SAD!!!!!!!!
Chromniac
NA
What is the alternative here? Live a miserable, painful life? I think not. I’m curious, how many suicides have happened because people feel there is no escape from the pain? Do we want suicide risk to increase? And why haven’t we changed our approach to addiction? It’s an illness all its own.
Addicts don’t need to be treated like criminals and locked away in prisons. They need help. A woman at my family’s church suffered from chronic pain. She got addicted, as she has a history of addiction. The response? She was divorced, had her kids taken from her, and blocked from the premises of the Church & its private school (where her kids went). She was completely ostracized from her support system. This TED talk explores this very notion. Portugal has taken the OPPOSITE approach. https://www.ted.com/talks/johann_hari_everything_you_think_you_know_about_addiction_is_wrong
I have Crohn’s. 3 major surgeries, plenty of scar tissue, now uterine fibroids to the mix. I’m 31. Since the age of 17, I’ve been in pain. Narcotics are the only relief. What will the rest of my life be? I love life. I love teaching. I love my stepkids. I love being active. But pain makes all of this difficult. I spent my stepson’s wrestling tournament in the car, in pain. What kind of life is this?
Are we really willing to condemn those with issues such as mine, and yes, much worse than mine, for the sake of reducing addiction issues? Does this even reduce addiction issues?
No one seems to be asking. Instead, we just keep adding laws upon laws.
Bill
New Jersey
I have had 6 back surgeries in 10 yrs. Laminectomies, fusions. The pain never stops it is 24/7.Now all pain mgt will give is ultracet. It doesn’t work. I argue with my Dr to no avail. The only people being hurt by these laws are the people who abide by them and need the pain relief. I no longer have any quality of life. Pain is my constant life.
Ron
Sidney N.Y.
I was told at my pain management clinic that doctors get red-flagged and are scared of being closed down, so they take away meds from patients who truely need pain meds to save their jobs and clinics. This leaves a poor cancer patient, and many other people who depend on their pain medication, suffering. I was almost left without any pain meds right after total knee replacement because a doctor was scared to follow my surgical order. This has to stop. I have no problem with the abusers being strung up and hung but come on! A person fresh out of knee surgery and the DEA and goverment agencies claim they are not targeting people with legitimate reasons. !@#$!!!!!!!! This needs to be addressed!
Anonymous
Richmond
I understand both sides, as I am, both sides… I had injuries from a terrible car wreck and have severe chronic pain. On the other side, I a more unfortunately a person who wants more of the drugs—whatever opiate; doesn’t matter. I didn’t choose this, the wreck & riddled with severe pain, nor the desire to take more. It makes me feel incredibly ashamed, sad, that I am such a screw up…. So much so, I’m in an incredible amount of pain, yet so ashamed to the point of wanting to end “it all”. It’s horrible!
Brian
Idaho
It’s all a bunch of BS 30 some thousand die per year from OD. However, there is no distinction between legal prescription use and illegal drug use. Meaning a lot of these deaths are from people who break the law albeit most likely many because they were cut off by their drug dealers at the drs office. Again it’s s all BS. Do you know that nearly 4 times as many people die each year from NSAIDS?
That’s aspirin folks. Things like Tylenol and ibuprofen are killing 4 times more than prescription pain meds! Where is the outcry for that? There isn’t, because our lawmakers are prejudice. You see if you take pain pills they make you feel good so therefore they are bad. Aspirin does not give you a feeling of well being like pain meds do for SOME patients. If you take pain meds your a “junky” in their eyes. They are full of it, and have no idea what they are talking about.
There really does need a class action lawsuit against this. I never asked for pain meds I was just prescribed them after an appointment. Then when I only took them when I absolutely had to my dr chewed me out for not taking them as prescribed. In other words I was to take one every four hours whether or not I needed one or not. CRAZY! Well, I followed direction and started taking them the way I was told.
What does that sound like friends? It sounds like to me that the damn drs are drug dealers. Add to that the pressure put on them by pharmaceutical companies to prescribe them along with kickbacks to them and what you have is a legitimate drug dealer running their business o]under the board of medicine.
I have been completely cut off without any warning. 0ne month all was fine and the next no more. I was taking 90mgs of oxycodone per day and for the past six years. MAJOR WITHDRAWAL! OMG I thought I was going to die, and I was not given anything to lesson my suffering from my dr. I see that as malpractice, but what could I do I was screwed.
Now, all I have is some Tylenol and Aleve to control fibromyalgia, l4 and l5 disk rupture with sciatica, and a ruined right shoulder. I’m diagnosed with these as well as chronic pain. Uhm…why do they make meds if people like us can’t use them? Shit, I hate taking them they make me a different person, but it’s way better than being in agony most of the day, and absolutely non social. I lay in bed all day every day 24/7. I go grocery shopping when I’m out of everything and force myself to get through. I’m exhausted and in severe pain by the time I get back home and then I still have to put the stuff away. After all that it would be a good time to be able to take something for relief, but nope not me. It’s true they treat you like your a criminal when you take meds and humiliate you with degrading drug tests which I always pass. It sucks, I don’t know how much longer I can keep on keeping on. Suicide sounds better every day.
Nancy
Indiana
Brian, I am so sorry you are going through this. This sucks for you! You have to do something to help yourself get through it. I know you are in pain but is there any way you can exercise at all? The first time I was cut off after one of my back surgeries without warning, I would exercise on my elliptical to increase my natural endorphins, sort of like your body’s own pain relief. It is only temporary and maybe it won’t work for you but it did for me. Also, I drank lots of water. My heart goes out to you. Just please hang in there…I promise you it gets much better and you will definitely feel better when you get through this and then you can try some other methods of pain management. You can do this!
Robert
Grants pass oregon
My spouse has lupus and fibromyalgia, it’s quite bad, their are times where she wants to give in. I hold her at nights while she crystal after a hard days work. She has been taking oxy. For 10 years, like everyone here she does not over do it. 3 a day and none on her days off because she wants to save them for really hard days. We have 5 kids and she wants to show them that anyone can make it in life, even tho use who are with an illness.
Today we got a phone call from the doctors saying they are cutting the pills and they want her off of them in 3 months…
We are freaking out, the pain she’s in is real. With out them she could not work and most likely not live, yet the doctor is giving nothing as an alternative. ..just mombo jumbo surveys that show long term pain med school don’t actually work in the long run.
Any advise or help it would be greatly appreciated
Julie
30132
Had a hip replacement at 49. Since then, I have had a hip replacement, knee replacement, spinal fusion, need to have another knee replacement, have spinal issues in my cervical, thoracic and lumbar spine. I had heel spur removed from right foot two months ago and still can’t drive or walk without pain in my foot. The back surgery was not successful to relieve the pain. I started off years ago taking Darvocet, which no longer is marketed, moved up to Hydrocodone, and now am on Oxymorphone. I had gastric bypass and lost over fifty pounds. I cannot take any of the opoids that are long acting, and my medication goes through my system more quickly than a normal person.
My mom was on OxyContin for years for same kind of issues until she died with lung cancer at the age of 83. She had joint replacements, and several back surgeries, so unfortunately I inherited my parent’s medical issues. I am unable to function without my pain medication. I was informed by my primary care physician today he will no longer prescribe my medication. I would need to see pain management, or go to a rehab center. My only thought at this point is I cannot survive with the pain without pain medication. I feel my only alternative is to permanently get myself out of pain. I will go to pain management, but if I cannot get my medication prescribed there, I find no other alternative. I know I am not the only one in this situation. I don’t have any choice. I never take more than prescribed on my medications, even if my pain medication doesn’t last until the next dosage. I am as low as I can get.
The government should not be able to choose how my medical care is managed. My physician should make this choice. Just wonder how the delegates feel if they are put in the same situation.
Paul
Barton md
I hope and wish that the people responsible for my suffering experience the same pain and suffering that I have had to endure for the past 6 months !!! Because of the drug addicts we who are pain sufferers have to be treated like a piece of garbage! There are going to be a lot of suicides from this. Wait and see. It’s hard to live like this. No one knows what it’s like unless you are here!
JJ
New York State
In 1980 my drunken husband broke my back in 2 places. I was forced to work a very demanding job for another year and a half. “YOU ARE SOLE SUPPORT OF THE FAMILY, YOU MUST GO TO WORK” “NO YOU CAN’T GO TO THE HOSPITAL”! That’s was ground into my brain for a year and 3 months while I was in severe pain.
To make a long painful story short, I left him after getting clean and sober (I’m 33 years clean and sober now) I have had 7 spine surgeries, 10 myelograms, NO trigger point injections, spent 7 years in a wheelchair in severe pain after the first spine surgery 3 dorsal column stimulators (worked my way out of the wheelchair with it’s help). I did not return to being dependent on drugs again.
I now have a condition called arachnoiditis. It is caused by the initial injury and all the invasions of the spine since. Today is Saturday, November 25, 2017. My pharmacy won’t fill my prescription for tramadol 200 er (the ONLY pain med I take) because they think I’m a dirty filthy drug addict (The way I was treated by one pharmacist) and my doctor won’t be in his office until Monday and I can’t get another prescription or have it changed.
Happy Thanksgiving! I sit here in level 9 pain. I am a Mother/Step mother of 5, grandmother of 14, great grandmother of 12. All I can do is sit on a heating pad, and pray I don’t fall getting to the bathroom. You might say it’s my fault. It’s not. I contacted my doctor a week ago and said the tramadol that we were trying for 2 months wasn’t cutting the pain. The first he could see me is on Monday at 12:45.
My prescription ran out yesterday (Friday). I refuse to do what my friends suggest which is go to the street to get some help or use pot. Nope, I’ve been called a dirty rotten drug addict once too many times to do that. I have been hoping and praying that every person who has pushed to get these regulations will have to live in the pain we live in for 5 years with their rules.
Yes, I call myself a drug addict. The neurologist I had in 1981 gave me tranzine, adapin, flexerile, codine and xanax all at the same time. The psych nurse at the hospital where a friend took me when I became suicidal told me that people who have cancer and their pain meds stopped working would take it with alcohol! Try that!
Shortly after, I tried that the doctor in the hospital said I had 3 lethal combinations of drugs in me and when I hit it with alcohol I should be dead! He figured if I lived the next 5 days it would be a miracle and I would have severe brain damage and be institutionalized for the rest of my life. I survived and overcome the brain damage to live a fairly good life! The doctor that gave me the pills – – – she has gotten off Scot free.
She never was prosecuted and is living a very happy rich life as far as I know. Who is to blame? So now I am a dirty, filthy, drug addict for taking one pill for pain when the treatment protocol for arachnoiditis is a heavy narcotic pain med, a strong muscle relaxer and a strong anti depressent. I REFUSE to take all those drugs!
Now, they take my access to the pain killer away and make me that addict again. Before he broke my back I Was soled support of a family of 3, bought a home, 2 cars in the driveway, and had everything we could want on my salary alone! Dirty rotten drug addict I was.
Why don’t they make it a crime with high rates of punishment for those who provide the drugs not responsibly, sell them on the streets or are involved in importing drugs illegally and if someone dies of street drugs or illegally gotten drugs, the person who gave the person the drugs (not neccessarily the doctor) should be prosecuted for murder.
The rules they have now aren’t going to do anything except cause more drugs being imported illegally and hurt the people that need them the most. The government is going about it all wrong. People with severe chronic pain sometimes have no other options for relief. Pain clinics are not helpful to me. I was accused of being a dirty rotten drug addict there, too! If I could go to just one doctor who is educated in treating pain I would be thrilled! Clinic situations don’t do anything to help the chronic pain sufferer. They are too bid, too diverse. I don’t need that. It’s too late for me.
I feel you will be seeing more suicides by people with severe chronic pain. They will just do it another way, gun, knife, hanging, etc. Then their doctors, which are terrified of these new laws, will feel a deep sense of guilt because they lost their patient because their hands were tied by the government.
John
OR
If they experience the same pain they will get a prescription to opiates for sure.
Sharon
Florida
Now my insurance co. Is quadrupling my opioid cost. It is So wrong for those not needing them to literally dictate the quality of life for those who do.
Can’t wish hard enough they end up in real pain, with nothing with aspirin or Tylenol! Free country my foot! How can we fight back?
Paul
Bandon, Or
I have been in chronic pain after having a inguinial hernia repair in 2009. Something was wrong from day 2 but my surgeon ego refused to admit that maybe he had screwed up. He told me take 10 Aleve a day and treated me with several different antibiotics for several months. I finally got a second opinion and was told that either nerves were cut or compromised by the double mesh that was used during the surgery.
I went to my regular doctor and he started prescribing me pain meds. After a year I was up to 240 15mg Oxycodone a month. Then I moved to Oregon and was able to convince the doctor, who didn’t want to help me despite the fact I was on permanent disability and the pain had never subsided. She gave 200 pills a month and made me sign a contract.
Last month, I had a surgery to remove my bursa sac in my elbow and the surgeon prescribed 15 pills after the elbow got infected and I filled them at a WalMart since I was shopping there for groceries. Now my doctor is telling me that I violated the contract by getting a prescription from another doctor and got it filled at a different pharmacy and is going to cut me off next week when my next prescription is due.
I don’t know what to do, I never got a copy of the contract and don’t even remember signing it. I’ve done everything this doctor has asked me to do, including stopping taking Adderall for ADHD, something I have taken for over 20 years as well as Xanax, something I have taken for 12 years. I did everything she asked of me and I didn’t realize this would cause me to loose my medication.
I can’t live without the pain medication, my life living with chronic pain in my groin will make me not want to live. I told my doctor about the surgery and she never mentioned to me this would be an issue. What can I do? It took me months to find a doctor in the small town I moved to(Bandon, OR) and I’m so stressed about being cut off next week I can’t sleep and my anxiety level is through the roof. Please help me.
Susan Justice
Ohio
My mom had cancer in 1980 lung cancer spread to her lymph nodes and was deemed to die in 6 months to a year, and my dad took her to a Cancer Clinic in Zion Illinois where they put her on a health food diet, every kind of vitamin there was, and a drug called laetrile which can only be found in the cores of apples, almonds, and apricot pits anymore because they were banning laetrile back in the day when my mom was dying.
My dad was determined to save my mother’s life, and after they banned the laetrile in Ohio he took her to South Dakota where she was born, and the ban had not yet reached, and I don’t know how he did it but he came back to Ohio with his van full of boxes of the laetrile. But the government was taking away this drug because chemotherapy and radiation was making too much money, and their excuse was that the drug was dangerous, which it was not.
My mom lives today. At the age of 80she went back to Cancer Specialists, and at 81, and they couldn’t find a trace of the cancer in her body. I say if it weren’t for my dad’s perseverance and determination and sacrificing everything he had the government would have killed my mother by taking away that laetrile when she started treatment.
The government has always tried to determine how we are to be treated when we are sick and especially when we are dying. I have multiple disabilities and medical conditions. Fibromyalgia is an extremely painful condition. I am constantly in pain, and the government took away my Percocets–Percocets that made life possible for me, to continue to work a job, take care of my house and grandkids, and now I am back to being crippled and in constant chronic pain because they won’t let me have my pain meds or want to put me through a bunch of b******* at a Pain Management Center getting stuck with needles in my neck, epidurals in my back which I will not do. I will not put myself through more torture than I go through on a daily basis for a temporary solution. It is not fair to us who suffering the extreme because of idiots who want to abuse the meds and end up dying. Who’s to say they didn’t want to die. The government cannot save the world any more than any of us and this is b*******. I am tired of the government trying to control everything when we are supposed to be a free country!
Jo
Arizona
I am 65 and have had 3 scoliosis surgeries. The last one at age 55 only because my old Harrington rods had broken, and my spine was curving again. My curve was measured at 90 degrees and was crushing my right lung. I only had 50 percent lung capacity. I had to go to Texas for revision surgery. The surgery lasted 11 1/2 hours. One week later I had my gall bladder removed and 4 days later I
had cardiac arrest. I was in the hospital for a month. They cut a portion of a rib and my spine to straighten it. I have never been in such pain. Four months later I was still in agony. I was put on Norco which barely touched the pain.
These morons who think 3 days of pain meds after surgery are full of crap and totally ignorant.
It has been 10 years, and I am on 10 mg of morphine and Norco for breakthrough pain. If I am really busy doing things and driving and shopping I need the Norco to be even partially comfortable. I hate taking these pills. Planning trips revolves around when I can get my next script.
I know there will be more overdoses, suicides and people buying illegal drugs.
The CDC, DEA and FDA have no idea what they have done. I wonder did they ask any people with chronic pain what they go through on a daily basis?
Paul
Bandon, OR
I agree. Let a few senators get chronic pain and they will get any medication they need. It simply isn’t humane to the rest of us in chronic pain to suffer because want to abuse the medication because they don’t have a life. And the numbers the government uses are inflated because any old person that does and has any amount of opioids in there system is an opioid related death. Plus heroin deaths are included in this number. Those people are obviously living lives of quiet desperation, I’m just trying to LIVE a normal life.
Saundra H
AL
I am 52 years old. I was awarded my widow’s disability in May of 2017. I currently go to a pain clinic . I will be having surgery due to a car wreck where they are attempting to use rods,plate and screw to help repair my cervical disk. My thoracic and lumbar are very dismal as well. For the first time I managed to loose my medication. I ask my mom to help after two days we called my doctor for help. I did not receive any. I take
Tracy
MN
I think that this whole situation on opioid drugs is ridiculous. Why should people that have pain, real pain the forced to go to the streets and obtain drugs illegally. I can understand why they do not want to give out opioids to just anybody or in large doses but I feel like it should be able to be monitored in small doses so that the abusers don’t take advantage of it but yet people that have severe pain like me that can’t even put their clothes on or even get to the bathroom and are able to keep up on their hygiene, and then be expected to actually hold down a job and support themselves.
What do they expect people to do that need temporary relief of Major Payne quit their jobs live in the streets? I asked you how is this Fair or humane I live with pain on an everyday basis I take ibuprofen or Tylenol which doesn’t help and we’ll probably end up killing my liver or kidneys or severely damaging my stomach I mean can one person take too much Tylenol or Ibuprofen?
What is the alternative to living with the pain? There has to be a better way to be able to help people that need relief from Major Pain.
Dorothy
California
I have suffered with lower back pain and fibromyalgia for years, have been taking Hydracodone for about three, they no longer work very well, so doctor wants me to quit, but cannot offer any other non opiate to stop my pain, otc drugs don’t even touch my pain, I haven’t been able to sleep without getting up twice a night waiting for pain pill to kick in, so I’m very sleep deprived, I’ve thought of suicide many times, a person can’t live in constant pain and lack of sleep forever. My dr. gave me a 13 page document on a 13 year study in Europe, and 7 year study in America on fybromyalgia, of all the drugs their patients took none had much effect, the synopsis stated that the only thing they noticed was a steep increase in suicides. The government should not make everyone who doesn’t abuse opiates pay the price for those who do, or a few years from now they will have an big increase in suicide rates and know they’ve made a mistake handling it this way, but too late then, the people will be just as dead.
Michael
Ontario
It time that all pain speak up, to meeting, to government and your doctor, And write a journal about your pain. Myself I am writing it, they is no one know your pain as you. My doctor cutting me off bit by bit also, so I face him telling How I feel about cutting the drugs off The doctor walk out of the office. It like he was saying you don’t like it it to bad. If every one get a lawyer go after them for pain and suffering . Putting pain people to become criminal by using drugs not legal for they pain. I Wish every one well and don’t give up,The Lord say come to me all of you who are in pain and worries and I will give you peace.
Karen
CA
I’ve had CRPS/RSD (extreme nerve pain) since 2003 in all 4 of my limbs. In 2005 I got my 1st neurostimulator implant. The implant takes care of about 50% of my pain but the other 50% is controlled by different opiodes including Morphine & Norco. My pain mgmt doctor had started decreasing Morphine (60mg 3xday) by 10mg/mo.
Then I broke my arm. Being at such a high level of meds already I was given Nothing more for pain! I’m down to 30mg 3xday & I’m feeling more pain every day. When I complain to my doctor he quips — “I’ve only decreased it by 10mg.” THAT is what I’m up against, and I’ve no idea how much lower he plans on going. I’ve tried physical therapy, warm packs, acupuncture, spinal injections, breathing exercises, etc.
Aside from my stimulator & the ever reducing meds that gives me immediate relief is smoking marijuana. Thankfully it is legal. After my urine tested positive for it my pain doc refused to treat me if I continued to smoke so was forced to find another pain doc. What, exactly are we supposed to do without our pain meds? I’ve never abused them, taking only as prescribed.
Due to a buildup after missing a dose here or there after a while I had built up a months supply, thus declining a refill! Doesn’t our record of use count for anything?? There HAS got to be a better solution than just taking meds away from chronic pain users! Where is our voice in this nonsense??
GARY
I have stood all the pain I can. I think that’s is what is causing all the suicides. if I knew I was going to have to live in this pain the rest of my life hell no.
Angel
Virginia
Well, has anyone thought about what is happening in this Country? Since when have the people who are writing the laws become doctors? Tell me why the people of this country are not marching on the Congressional Idiots who have decided that they can prescribe medicine? I know about a pain management clinic that are loosing their doctors because they are not allowed to prescribe the right medication for their patients.
The sick notion that the patients receiving pain medication are criminals is beyond anything I have ever seen! The criminals are the law makers who have attacked sick people because they are SICK ! Wake up America! who is going to be the next group they Attack? I thought America was a caring country!
If a sick person decides to take an pill for pain how is that a criminal act for the doctor to give the proper medication? Again I repeat, what had happened in America?
The druggies are on the street selling Drugs! Where are those sacrosanct Law Makers? At home patting each other on the back, say Ain’t We Special! Like Nancy Reagan? We have Drugs Under control! Where the Law Makers? Having a double Martini! Their drug of choice!
Baba G
Mesa, AZ
I am 82 years old. I have suffered from osteoarthritis since I was 35. At first, the pain in wrists, shoulders, knees and hips was controlled with aspirin. My doctor warned that it was causing bad results with my stomach etc. Two hip replacements relieved that source of pain, but the hands, arms and shoulders continued to be VERY painful without painkillers.
Vicodin made me very sick and I was switched to Percoset. By the time I was 78, I was taking more Percoset than my doctors said was safe. 3 years ago I was put on 1 10mg. oxycontin every 12 hours. I never abuse it, but it allows me to care for my husband who is wheelchair bound with Parkinson and care for a grand daughter who lost her mother.
This week, when I got my new prescription, I was only given 50 pills and the doctor said that next month I would to “stepped down” to 40. I haven’t decided what to do next, but I will probably be chair-bound with pain by that time. I lost one personal physician who no longer treats arthritic or other patients who have chronic pain. The current physician is heartbroken because he has no recourse for me. It is not just the pain. Without pain killers, I simply cannot use my fingers to do the simplest things, such as dress myself or my husband.
Rodney H
Indiana
I Need Help! I can’t spell to good at all so bear with me Thanks
But when I wad 14 I made a bomb that blue up my right hand and in missing fingers my nerve endings are Shot well my hand is i have tried every thing I can think of and nothing works that good but they are going to take the pain meds from me that does help And this is “no joke” I want my right hand ! This is hard for Me to say but…
If I have it cut of the pain will be gone Why do i have to have this trouble here “I Don’t Do Drugs” that hariwin drug and that other junk out there is the problem not the Mom and Dad pharmicy you just get 60 a month 2 a day pill I need this !
Like I said i don’t do drugs But when I wad a kid I tried Pot when I wads in my 20s and that does help I live in Indiana you can’t get that here then help us ones that need this pain meds get us help that need it make that pot where you can buy it if not things are going to get out of hand and fast “You Watch”
Thanks God poles help me Rodney
Kim
New Jersey
Having a chronic, unusual illness. I’m in pain management. Same MD, 9 years. I never thought the CDC guidelines would effect me. They were written 4 primary care physicians & had a clause protecting established patients taking over 90 mme a day.
How the CDC presented it 2 the public who wouldn’t agree? Besides drug addicts & Md’s writing unneeded scripts 4 $. The guidelines Not written 4 pain specialists & established pain patients r now being forced as law upon all of us.
All Americans should worry if these recommendations can b forced into law without public knowledge. Is scary, 4 everyone.
Other guidelines maybe forced into law that will effect . Opioids r a miracle 4 chronically ill patients & a nightmare 4 people with addictive personalities. Most of us lost normal body functions now we r losing our voice as chronically ill patients. But it’s more about forcing guidelines in 2 law & that’s how our voices will b heard.
Carolyn O
TN
I have rushed disk, bone density, divertilitous, torn rotor cuffs, without percocet,I would not be able to get out of bed,I do go to pain Dr I do not abuse them I take every 6 hours as I suppose to for 5 years now, hope they don’t stop them.
Cindy
Mn
I’m on my second knee replacement, arthritis in all my joint, neck and back I will probably need a shoulder replacement , I’m in pain all the time I’ve been everywhere to physical therapy, chiropractor, injections, etc. I’m 60 yrs old dont take the one thing that gives me relief. Ur just listening to half of the ppl, look at the whole picture, this is life for alot of us.
Jim
gainesville, Fl
I am a US Veteran of the end of the Viet Nam War, I worked Law Enforcement during the evacuation and have seen my share of BS. In addition I worked Drug Enforcement and US Customs and I am accredited with numerous narcotic busts.
During my time working law enforcement and in the line of duty I suffered three TBI’s as well as Spinal Injuries. I was actually in pre-op surgery for same and had a heart attack so surgery was postponed. Like so many before I have tried everything under the sun to relieve the pain but with me my Migran Headaches dictate my life, my back secondary. I have a standing offer with the VA they can have my legs just get rid of the headaches. The Va recently had me try Amitryptilene it caused severe chest pains, I tried Lyrica and the same thing happened.
I tried gapapentine and my legs swelled like elephant legs. My neurologist has said the only drug he knows of that actually blocks pain other then pain block injections is opiod based. I have been taking Hydrocodone 10/325 for 15 years and it is the only drug that allows me quality of life. Seems most doctors want to treat muscular not neurological issues. My issues are not muscular. I am leaning towards stem cell regeneration but the VA will not authorize same. How long before sucide rates start to increase do to pain and lack of quality of life. I am against some of the harder drugs except in severe cases but so far there has not been one case of anyone overdosing from taking prescribed Hydrocodone. When taken as prescribed.
The way I see it the Government is going to take law abiding, including law enforcement officer who suffer and turn them into criminals just to have quality of life. It makes no sense. I bet there are those in Congress and Senate taking same and they are not regulated. As long as it is monitored and and the person is diagnosed with severe chronic pain what is the issue. My Question is there another non-narcotic drug without side affects one can take to block nerves. The answer is no.
Like everyone on here I received a new Primary care physician and she treated me like I was a criminal and abusing. If I could go without I would. I asked my neurologist if people go crazy from the extreme migrans, his response people have been known to commit suicide. My issue is the VA is my only medical so we will see how long I last before life will no longer be worth living again.
Marti
Florida
I’ve been prescribed 60 mg a day of methadone by pain management, the same dose and same doctor for seven years,never thought this would happen to me, I never abused medications and I have legit pain, I have Lupus, RA, Intercystial Cystitis, Scoliosis and Fibro and when my doctor moved I was sent to a new pain management doctor who immediately lowered me to 40 mg a day and I was on that dose for almost a year and in pain, in tears in his office, tried many antidepressants and anti inflammatory meds which caused a stomach bleed, anyways even got even worse, he tells me he has to lower me to 20 mg a day but won’t lower anymore!
I want die, the pain is so bad I’m sleeping with ice packs and contemplating suicide everyday, it’s like being treated for pain relief now is like living in communist Russia , the govt controls it and controls the doctors who are afraid to write opiods even when patients are in debilitating pain and if your lucky to have a doctor willing to treat ur pain then you have to find a pharmacy who will fill it.
If you live with chronic pain like I do and your life has been turned upside down from not having pain under control and having no hope at all, u just want to die to make the suffering stop, I can’t live like this anymore.
Gary
Pennsylvania
My thoughts are the same as most I have read. I could go on and on repeating what others have said, but I want to know how to stop this atrocity before it starts killing more people (the ones that cannot write their comments here). I have just been cut to less than 1/4 of the medication I have received for more than 20 years (I was in a train wreck), I never complained, I was just happy that I was able to get the relief that I was getting from Oxycontin and Percocet for Break through pain. They may as well just thrown me into the streets of some big city where I could get my own medication and die comfortably or get mugged and die quickly instead of suffering for the rest of the time I have with a degenerative disease with no cure.
Margaret
NY
My sister tried to kill herself on Mother’s Day in 2015 and as karma would have it, was unsuccessful. She ended up having to move away from TX to another state where the pain management physicians are less restrictive. But when that stops, as it seems it may, she will kill herself again. And I’m sure she will not mess it up that time.
Lynn
NC
I want to understand what percentage of drug abuse can be attributed to medications obtained legally by patients from medical doctors. Doctors are an easy target for the Federal Agencies, but will intimidating doctors with Federal sanctions to curtail their use of narcotics with responsible patients make a dent in the war on drugs? My bet is that penalizing law abiding citizens who need pain medication will barely make a dent in the abuse of drugs.
Yes, there is a serious drug problem in this country, but the Government’s efforts to address the problem of drug abuse and overdoses has resulted in discriminatory practices. To deny narcotics to those who have medical conditions resulting in chronic or severe pain is a blatant form of discrimination. We are a new class of individuals targeted intentionally or unintentionally for discrimination, and the Government is the discriminator. We are not criminals, yet we are deemed guilty without opportunity to prove our innocense.
It’s time for a class action initiative to make our voices heard.
JONATHAN
Downtown Toronto
I’m very angry at what’s become the ‘new normal.’ The physicians here, particularly the young ones, if you even bring up the name of a narcotic pain medicine, you will be told to get out and possibly even have your chart red flagged as ‘drug seeking’. Not only will you not receive any pain medication, but you can’t even talk about it anymore.
I understand why they continue to push things such as meditation, massage, chiropractic clinics and yoga (all of which are not covered by insurance); these doctors are avoiding their worst nightmare: getting sued and potentially losing everything. So it’s become all or nothing. We are all potential drug addicts, and we all could potentially sue these doctors for prescribing these medications to us.
What’s upset me the most (since the narcotic reclassification changed hydrocodone to a higher scheduled controlled substance in 2014) is nobody is stepping back and looking at the results of all this tighter controlling of controlled substances. Now people are going to the streets and dying because they don’t know the streets and don’t know the drug scene. In a pharmacy you know the dose, what you’re getting, and how much to take. On the streets – who knows? You could be getting rat poison. You could be getting fentanyl. Most likely you could be getting children’s aspirin and getting ripped off; the dealer only cares about getting all your money – not whether or not you’re a satisfied customer.
Darrel S.
Bixby, Oklahoma
I’ve been in constant pain, 24 hours a day 7 days a week for almost 30 years. Its huge bone spurs in my neck and middle back. They’ve grown together and press on my spine causing severe pain!!!! I’ve spent 1000’s upon 1000’s of dollars trying to get help. It was 90% from my pocket because I couldn’t afford insurance. They decline operating because it is too dangerous, may paralyze. I’ve told my story so many times I’m sick of talking. All they do is take xrays draw blood, charge me for it then not even discuss anything about the results. Right after I finally found out what my problem was my doctor at the time in my home town saw the xrays and said, Derrel you don’t even know how much pain your in. So he prescribed me pain pills. One day I ask him will I get hooked on these? He said well what would you rather be, hooked on the pills or suffer the pain. I had never thought of it like that, but with this pain that’s a no brainer. He said Derrel your not going to get hooked on no more than I’m prescribing you, which was 60 per month. Well one day he just up and moved away, and that was the end of me feeling like a halfway normal human being. No sleep, anxiety, depression etc. I’m so sick of it I guess I’m going to turn to the street pharmacists.
Kay
I’m in the same situation, I don’t want to have surgery because they cannot guarantee success and it may cause paralysis. I’ve gone to PM after PM and despite having all my paperwork from Neurosurgeon’s and my entire history I have not been able to get meds. Sadly, I turned to the streets just to have medication that will allow me to function doing daily activities.
Christine
California
Until you experience chronic pain, you have no idea how it affects one’s ability to function. In recent months, I have been treated like a criminal. I go to a pain management clinic, and they do not return my calls and do not fill my med. I was taking oxy 30mg and norco 10 mg BUT now nothing. These were very low doses for knee, hip neck back chronic pain. I do not want surgery(s) I am 68, and this is horrible. I can barely go to the grocery store. Most days I am confined to the house. What a hell my life has become. There are no children in the house, and I have been on med since I was 55 yrs old. 13 years of suffering and now hell.
Karen
NC
My sister was put on Percocet in the late 90”s for pain. Kaiser kept increasing the dose and put her on Oxy. She is 75 and not at all well.
First Kaiser should be sued by a class action law suit for Ruining lives with their careless drug prescriptions and now killing people by hearing them off. How did all these people get all thes drugs. They were doctors getting paid off yo PUSH.
Jeff
Camarillo California
Fully understand Chronic pain I broke my neck And back I’ve had 4 surgeries on both the pain everyday is brutal if I didn’t have my pain medicine I wouldn’t be able to run my company.
Gail
Celina, TN
I am a 51-year-old female like many others I suffer from severe back pain 24 hours seven days a week ive been taking opiates for 15 years for the back pain. I have degenerative disc disease osteoporosis herniated disc’s spinal stenosis a fracture and several other things that cause pinch nerves and severe back pain, I’ve had two back surgeries I’ve got rods and screws in my back I’ve had fusions, I recently found out that I also have the degenerative disc disease and osteoporosis in the upper part of my back all of the above is from in the lower back.
I’ve never failed a drug test or missed a pill count, I am afraid every time I go to the doctors that I’m gonna be cut off from my pain medicine, I couldn’t live without pain medicine just like a person with heart disease needs to have heart medicine a person with diabetes has to have diabetic medicine I need my pain medicine to make it through the day. I’ve tried to go without pain medicine and I want to die the pain is that bad it’s not an option to be without pain medicine when you have these problems.
I have seen the same doctor for five years and I’m going to the same pharmacist for three years and my doctor really does understand and she agrees that I do need to pain medicine she does not like it at all what the CDC in the FDA are doing they have her hands tied, like she said it’s not easy working with your hands tied. To the CDC and FDA, please please rethink what you all are doing, no one should have to live their lives in everyday severe pain.
Pamela
Portland
I’ve suffered with chronic pain since 2001 when a nerve was damaged during surgery. I also suffer from osteoarthritis with my knees so bad the DR says I don’t have knees any more, just deformities. A few months ago my DR informed that I needed to get my dosage of morphine sulphate down to 30 milligrams. We discussed the issue of the drug enforcement efforts by the government. He said years ago it was a different world where DRs were encouraged to make patients comfortable and not let them suffer. I suffered greatly getting my dosage down and have no idea what I’m to do now. 30 milligrams is of little help. I’ve had to pay for drug tests at my expense which I passed. Stupid. My DR offers Tylenol products for my pain. If that had been effective ever I wouldn’t have needed the morphine. Big brother is indeed watching us
G
Arizona
Gail you’re so right. If I’m not mistaken this watchdog FDA began during the last administration, and it does NOT make any sense to CHRONIC pain SUFFERERS. Evidently they either do NOT care, or they devised this unbalanced, unrealistic, plan and just threw everyone in to make their numbers on their war on drugs look good. Did they establish this because of users of ILLEGAL DRUGS, and THEIR addictions, abuse and over doses, OUTSIDE of the thousands (millions?) of patients with legitimate CHRONIC pain? How many people who take pain medication for actual, DOCUMENTED CHRONIC pain have over dosed, or abused their prescriptions? Doubtful, but “maybe” “someONE” with unbearable CHRONIC pain might decide they don’t want to live with it anymore and ON PURPOSE, use them to end their lives, but even IF any have, that number should NOT be included with the number who are users of ILLEGAL DRUGS and have become addicted, overdosed, or committed crimes while on illegal drugs. AND illegal drugs INCLUDE those drugs which are STOLEN from people who have them for legitimate chronic, life altering pain.
But I rarely hear of ABUSE, or overdoses, by any people with CHRONIC, tormenting pain, and the equally debilitating anxiety it causes. BECAUSE, most of us take them AS prescribed, and if there are ANY the numbers would be so very low that they would not compare to illegal drug users, and should not be counted with them. These are two (2) different things. One is ILLEGAL drug use. The OTHER(use) is to RESTORE some semblance of QUALITY in the lives of those who SUFFER from LEGITIMATE, debilitating, and/or handicapping, CHRONIC pain, and should not be included in the last administrations’ war on ILLEGITIMATE drug abuse.
I personally know what it is like to be without the necessary amount of pain medication, and NOT being able to function, take a bus, take walks, vacuum a room, stand very long, play with grandchildren, or even try very simple chair exersizes, etc. PLUS, there are other things that come with the pain, or injuries, etc, causing pain, that no one, especially not the FDA, or those making these rules, ever think about: Like severe muscle spasms, restless legs, headaches, anxiety, and more, they do not know, OR they do not care that it is we who SUFFER if pain medication is dosed TOO low to ALLEVIATE the pain and some of these other things. NONE of us want to switch from function restriction caused by pain, to being too drugged to function. Should we start a Change.org, or Whitehouse petition, or should we all just file a complaint with the FDA?
G
Sorry about errors in my post, I am visually impaired and can’t scan over to check grammar, punctuation,vetc.
Druid
South Carolina
Both my husband and I are disabled, he due to a work-related injury in 1996, myself due to an awful “rollover” car wreck in 2012. We both have spinal injuries, and I also broke my hip socket in 3 places, an arm, ankle, had a TBI. We go to different docs and tae different meds. He’s on oxycodone 15mg and I’m on oxycontin extended-release 15mg and oxycodone 20mg for break thru. We both had to sign pain contracts and have to have urinalyses to insure we are taking our meds and use no illegal drugs. I’m scared every day that we will lose our meds because of the gov’t and everything they are doing. Opioids are now the “in” drugs that everybody wanted to get high on a couple of years ago. Now it’s heroin mixed with fentanyl, but overdoses are still being wrongfully somewhat attributed to oxycodone.
It’s supposed to be “physicians do no harm” but so many are being made to because of the DEA. Let’s face it: some parents were not being responsible with their pain meds (years ago). Our kids are all grown but our meds are kept in a key locked fireproof box. We take our meds like we’re supposed to and enjoy being able to have some quality of life, to actually just be able to enjoy each other’s company now that it’s just the two of us.
We’re 53 & 50. We don’t drink anymore; that’s for the young. We don’t really go out to dinner since we’re on Social Security disability (not alot of $$/mo). We just go to doc appts, grocery shopping, hunting during deer season, and visit with family or friends every once in awhile. Other than that we just sit and read or watch tv or “enjoy” each other’s company. If we were to lose our meds like is happening with so many of our chronic pain suffering brothers/sisters we would cease to exist. I do not think either of us could live with the 24/7 unrelenting, excruciating pain that would be the end result. No, we are never completely not in some amount of pain, but nothing like what it would be without the opioids we are fortunate to be on. Yes, they’re habit forming but if we’re both gonna be on them for the rest of our natural lives, who cares. The gov’t needs to stay out of healthcare unless it’s to fix Medicare, Obamacare, and the like, but stay out of the treatment of chronic, intractable pain, and leave our opioids alone. Get rid of the coke, meth, crack and heroin!!!!
Ann
Norwood NJ
I agree I’ve been on different opioids for 25 years trying to deal with working and fibromyalgia that is severe! On top of that I have severe osteoarthritis in many areas of my body. The doctors always gave me painkillers which I never abused and would never take more than one a day even if I needed it because I don’t want to become addicted I am not addicted but!
I have some very bad days that I can do nothing because of my pain and I have tried everything from soup to nuts with massages with physical therapy with acupuncture With osteopaths and now I amwent finally on disability the last couple of years because I could not work anymore now the state gave me disability because of my pain I could not drag myself to the car any longer after work in tears!
Now, the doctors that know us are not allowed to keep helping us to get through the day. I want to be able to function it takes the edge off of the horrible pain. When I can I exercise which is very hard unless I am in a pool of warm water. Then sometimes I get even worse from exercise but I am always stretching and going for massages deep massage is that a very painful!!
After a couple of days with the massage, at least I get some relief from the knots and triggerpoints with myo fascial release! My life is becoming very stressful which is adding to my pain! What’s going on with all these agencies is unfair to the people who really need painkillers and do not abuse them! It’s horrible.
Susan
Ohio
My boyfriend is in pain 24/7. Way back when he was hit head on by a drunk driver and was supposed to never walk again…. now he has been diagnosed with RSD…. Its very very terrible… how can drugs be made but people who truly need them cant even get them! Why even make them then…. these new rules and regulations are totally ridiculous!
He has been handed from doctor to doctor… The pain specialist wanted him to have $150,000 dollar implant that only may have given little relief if any at all… so why cant he have some relief from some pain medications that actually work? What kind of torture are you putting people through… ?
Bonnie
Muskegon, MI
Reading all the comments are as if I’m reading about myself and what I’ve gone through with physicians.
A year ago my pain clinic Dr. retired and the company brought in a young newbie. With the Feds/State cracking down they decided to “clean house”. I was told at a visit suddenly that after review of my chart that it would appear that I have a tendency to be opioid dependant. Really? No kidding. I have been on pain meds for 25 years. (they make you then they break you) After 13 years at the clinic with injections and prescriptions for low back pain from herniated discs (right and left) much arthiritis throughout spine caused by an autoimmune disease and moderate scoliosis they decided to release me for being “dependent” on opioids. They suggested a prescription NSAID but everything that was named as an alternative I had tried in addition to PT, TENS unit, Injections, exercises, wt loss (gastric bypass surgery), rest, ice, heat, etc., etc. etc.
That was it. The Dr. threw up his hands and I was left to detox off of NORCO and Fentanyl patches by myself at home. HORRIBLE experience but I made it.
It’s been a year. My pain is bad again, discs buldging and I need another surgery that I DON’T want to have. My Dr. told me yesterday that there was nothing she could do. Now that my history labled by as a “drug abuser” I will likely NEVER get a prescription for anything stronger that Tylenol. My gastric pain is horrible from taking OTC NSAIDS that I shouldn’t take because of my gastirc bypass and I will likely end up in ICU with a GI bleed before long. The only thing I have now is alcohol and my family has a huge history of alcoholism (three of my siblings are alcoholics). Thats what the Feds and Dr.s have reduced me to…and btw, I am a R.N. , now on disability for my back!! Disability for a condition that no Dr will aide me in relief of. Does that make any sense?
One more thing, yesterday my Dr. sent me on my way with the suggestion that I try a topical Lidocaine patch. ???? For several spinal nerve compression problems? Really?? Do I look stupid?
John
Lucedale Mississippi 39452
My name is John. I’ve had a head-on car wreck which shattered both of my feet, all the bones, and collapsed my leg bone into my feet. I’ve had back surgery, and another disc is messed up. Now my leg is shorter on one side. I also have nerve damage, which makes it hard for me to urinate. I have to catheterize sometimes. I’ve been on Methoadone for 10 years at 100 mg a day. This is the safest drug you could take. They give it to drug addicts. I’ve never abused it in any way. My doctor is now cutting me all the way down to 40 mg a day and may take it away completely. He says I’m just a number, and nobody cares about people like me anymore. Please if there’s anyone that can help me not lose my medication so I can have a halfway normal life let me know.
Barb
Loon Lake, Wa.
That’s exactly what’s happening to me. Believe me, I’d love to be off meds but even more I love to be out of pain. My stomach is a mess. Ibuprofen actually works better. I just can take it. What’s to become of us?
Carol
Mid Missouri
I have terminal lung cancer and was told to go to physical therapy. This will not end well in the long term. Pain is a powerful motivator. Its the most horrific thing Ive seen a country do outside of Adolf Hitler.
Ed
Maryland
I have had 7 back surgeries, which includes two; one to put a spinal cord stimulator in and then to take it out! I’ve been in PAIN EVERY SINGLE DAY for over 10 years, and in the State of Maryland, they are telling the Patients, that ONLY Cancer Patients matter, that everyone else is being CUT OFF! WTF is the matter with this picture? Are the Pain Mgt. Doctors going to be Happy as EACH patient ends up in a Nursing Home, at the State’s Expense? Where do you draw the line? What can a patient do? These Pain Management Clinics popped up at the same time the FDA and CDC started to cut patients down! If ANYONE knows on how to handle this, please post here, because I know of 3 others in the same situation! Thank You Very Much!!!
Nancy
Grafton, Wisconsin
I too, am on Methadone 30mg a day and oxycodone 20mg 3x a day. That dose is down from 40mg methadone, and a total of 120mg a day. I weaned myself down to current dose because I could see that was the way the CDC and FDA want it. They do not care that I have been on a stable dose of narcotics, that objectively improved my pain and functionality, for 10 years! I am 100% compliant, passing any drug screen, using same pharmacy and one doctor only.
I followed every “rule” and was doing well. Then my prescribing doctor retired, and trying to find a new doctor to prescribe what has proven to work has been nearly impossible. I was given 3 months to find a new pain management doctor to take over prescribing…well good luck finding that! I have seen 4 different pain management docs in 3 months and none of them will prescribes my meds. Some won’t prescribe the methadone, some won’t do the oxycodone, and some think I should stop taking all narcotics, at once, cold turkey because “I’ll feel better!” What a joke!
I, like many of you, fall into the catagory of patient that did well on narcotics for chronic pain, and the docs don’t know what to do with us. The CDC and FDA made no guidelines for functional, compliant patients because they deny we exist. Or at least don’t want to talk about us because they don’t want there to be chronic pain patients to be successful using narcotics. That would prove their thinking is wrong!! I am so frustrated by this horrible situation and would like some ideas of who to contact to voice my opinion, and be heard by the CDC, FDA, and the medical community. Any suggestions?
Kris
Orlando
I have to honestly say , you nailed it on the head. The new pain refs from the CDC and the FDA are barbaric.
I am 50 and have been in PM for about 10 years. I have two autoimmune disorders- one is a motor neuron issue and I also have a genetic disorder that causes immense pain. In the past few months my PM doctor has been drastically reducing my pm meds. 160-60 mg reduction and yes it tossed me into withdrawals.
Jesse
Michigan
Hi,
My name is Jesse, and I have been dealing with lower back pain for 4 year’s now, and nothing is getting done about it. I have gone through doctors about this, and they just don’t really understand the meaning of PAIN. At first I was told that I have bulging discs (I had an MRI done twice). Still, nothing was done about it so now I have this doctor who told me that I have something worse going on.Sshe told me I have deteriorating discs. OK, well, I have been to pain clinics, and the injections don’t work for me. So I got told that surgery won’t happen, and I have been in and out of ERs. They are not wanting to help with the pain that I am having.
So can anyone tell me why would a doctor say no surgery will happen but they want you to be in so much pain that you wanna punch someone? I have taken Norco for my pain, and it works. I don’t feel any pain at all when I do stuff that I enjoy the most in life. But now it seems that everything has changed, and the people who are in a lot of pain don’t get the help that they need all because of people who are overdosing on Norco and dying. Well, that’s their fault because they don’t know how to use the medicine, so we all SUFFER. It’s not fair to the rest of the people who are needing the help for the pain, like me
Wade
AZ
25 years with sudden onset fibromyalgia and chronic fatigue. Narcotics help a lot but are far from a perfect solution.
Went really high levels, now low. Took myself from very high levels down to low levels VERY gradually then clear off once. Took me two years. Slow torture. Weirdest thing: After final withdrawals I was almost symptom free for a few weeks! I cried rivers of tears of joy! Then the symptoms returned! I’m still mystified. Couldn’t stand it after a couple months went back on low doses of morphine, and I’m still on them. Poor quality of life. Only 25% functional. Wake up EVERY morning fighting off thoughts of death.
I’m gonna make another try at going slowly off and see what symptoms do. Don’t know what else to try.
One thing is for sure: The government needs to get the hell out of our doctors’ offices! People with real chronic pain should decide with their doctor’s ADVICE. Educate us but DON’T dictate to us, as long as we behave. I’ve ALWAYS followed the rules. The one time that I started to lose control, my wonderful pain doc read me the riot act and I got my act together. It’s a VERY tough balancing act for those with chronic pain to exercise good self control in the use of narcotics.
I DO believe that narcotics produce their own pain syndrome. It’s really tough to know what to do. That’s why I’m going to try going off meds again. I think that a lot of people on meds should give this a good try. Be careful and smart about it though.
I’d much, MUCH rather be drug free! But if I give it a good long try, say several months off morphine, and the pain doesn’t subside, I’ll go back on meds. If the ONLY choices are be a drug dependent or a suicidal invalid, I’ll choose being chemically dependent.
But, I’d advise people on long-term narcotic pain management to consider slowly going off at least once to see if life MIGHT be better. Again, be smart. Take it VERY slow. Make good health choices to improve your chances of success. Depending on your situation you might or might not want to tell your doctor. In some situations, once you go off, the stupid system might not let you get back on meds if you should find out that you REALLY need them. Sad state of affairs that one has to think about whether or not they should be perfectly frank with their own doctor.
John
I agree with you. I’m in the same boat. I left a comment on this page earlier. I don’t know what to do. Is there anyone that can help people like us? Why do we have to suffer for other peoples who just want to get high? Why would the government treat their citizens, American citizens, like this, the ones that are really hurt that have proof of their injuries–all kinds of Proof? Is there no compassion left in the world now? You can bet that all the politicians who are wealthy, if they are injured, can get anything they need. Dear God, help all these injured people who need our medications. Don’t let us lose it, so we can live a half- way life at least.
C
California
I totally agree with you. I comply with my doctor. I do all the necessary urine tests etc. and gave shown I don’t abuse them. Yet, my doctor is pulling all her patients off their meds. This has made my life a living hell. My pain level is a 10 24/7 and life is hard to live. The pain is so bad. I don’t know where to go now. I just want to stay on the meds I was given.
I didn’t have high doses either. I took 3 norco 10’a a day and a soma at bed time. I really need to be on the regiment. Only thing that helps relieve a portion of my pain. No-over-the-counter meds work at all. Pain patients should be viewed at differently than citizens just looking for a high. It is not fair to punish those that actually need it.
Kathy
I to suffer chronic pain. For 20 years I been on almost all pain meds. I now wear a100 and a 50 mag fentanyl patch. It was 20 and this is A Day. I was also just as 162 a day. He just again changed it to the 150 mcg a day. I also Have Hep C from a dirty needle getting a tattoo done in 1986. Now am going to start a12 week program to get the hep c gone.
I was told I might have to lower my Fentanyl patches. In my pain i am terrified to. As also that WILL be the start of the end if that were to happen. My Dr would Never raise me back up with what they are doing with the opioids crisis in Canada. Now do I say No to the Hep C treatment to stay fairly pain free or risk getting taken way down or off my patches. Not sure yet what my Hep C stage is at because I just went to my first appointment for my blood work and there I was told if on the pills to I hope cure my Hep C
She told me the pills and the Fentanyl could lower my breathing. So what do I do ?
I am 56 year old woman. I have a little cerosis and a little inflammation and scaring / and a little fatty liver. Took 31 years to get that bad and at 56 years old maybe will take that long to get really bad liver cancer or cerosis so do I not do it and keep my Fentanyl patches and have no pain or risk losing and deal with the Hep C ?????
I can NOT handle this pain 24/7.
Lost in Canada.
Robin
Ventura, CA
Åug.20th my 58th bday. Born with FIBRO/CFIDS. mother had is(passed 5.5 yrs ago at about 89 IN 24 stressful mental bro with FIBRO as well she was caretaker!). HER mom had it. I am drs. daughter. Dad gave me vicodin but could not work on it so quit in 1995. Went thru many life stressors. My kind new gen. practioner is learning about FIBRO etc. but my pain level is so systemic the inflammation organs skin ANY part of body MIGRAINES EYES BULGING LIGHT soul crushing gut pain(since 4ever) now I need to ask him for more than 3 norcos a day. I have for four years taken LESS than that refilling every SIX wks not 30 days.
I AM LOSING MY MIND IN AGONY I take rescue remedy and he did up my anti anxiety 1/2 pill (*I take 1 at night to help sleeping with valerian, tons, and melatonin and 1 ambien). pain has gone from scale 1to10 from 450 to 5000 last few weeks trying to get re fi STRESS marriage STRESS, lost bills payments LIFE STRESS . I just SNIFFED 1/3 a norco I am ready to buy heroin. I cant take this pain. I wonder if he’d give me stronger. I want to die everyday and end this misery. my healers clear my liver which is why i lasted so long on so little but now they are at core issues so 58 years of others pain, hurt, genetics and negative crap I absorbed and unable to digest protein I am lost. He even gave me donatAL phenobarb for gut OLD med very expensive. Puts me to sleep lyricA stopped working.
I cannot take anymore f’ing stress I have suffered so much so sick north of L.A. hoping he might help. He says he has limits to adhere to. BUT SHIT 58yrs of arthritis colitis adrenal fatigue skin crap you name it. body is shutting down. I feel a moment of peace with 2 norcos at once. I rarely sniff it. but God I was crying as i do everyday and WTF can you do???????? heroin, maybe. its around the corner in my nice neighborhood because living hell is not living. God help us all RRK
Shirley S
Arkansas
I had an accident 17 years ago and have had severe pain ever since. I had three small upper back fractures. I also have stenosis and bulging disc in lower back. I am now 82 yrs young but feel 100. I am a veteran of Korean conflict andcannot get any help for pain–no pain meds. The VA sent me to a civilian pain clinic where, over the past 3 yrs I have had 6 cervical blocks and 3 rhizonomys. I am now an invalid with out any meds at all. I just don’t think I can go on without pain meds. The doc did suggest 800 ibuprofen. I could take a bottle full and not get relief.
Robyn
Florida
In 2012 I was involved in an automobile accident. Since that time I have undergone two shoulder surgeries and one wrist surgery. I have had the glenoid bone removed from my shoulder, but I continue to have bone spurs and synovitis in that shoulder. I recently discovered that I have two slipping vertebrae, four bulging discs, bone spurs and narrowing of the spinal cord in my cervical spine. I have osteoporosis in both shoulders, my spine, my elbows, my hips and my knees. I am 28 years old.
I have tried everything from physical therapy to facet injections to TENS units to heat and ice. Some of these things help temorarily, but none of them would allow me to live the somewhat normal life I currently live with my low dose of pain killers. The only thing that keeps me from going crazy is being able to work, but without the pain management regimen that I am on I would not be able to do even the part-time work that I do now. I have been on the same regimen for the last three years, never increasing my dosage and never abusing my medications. Still, I am treated like a criminal because of the actions of others.
I do not want to have to take pain medications. I would love to have a life free of constant, never-ending pain. I would love to not have to worry every single month if I’m going to be cut off or if I will be able to fill my prescriptions. I would love to not be treated like a criminal or a junky. Unfortunately, at this time none of that is possible.
I am glad that the pill mills have been shut down, but the pendulum is swinging too far the other way and we aren’t even addressing the actual root of the problem; addiction. There is a reason we now have a heroin epidemic. We shut down those pill mills without even considering what would happen to those addicted patients and surprise, surprise! They’re overdosing daily on heroin and Chinese fentanyl.
The problem is not people who are in chronic pain. The problem is people who have been cut off without any other option and are now desperately using whatever substance they can find.
Janet
New Mexico
Having been a nurse I know the agony of pain. I came across an artful healing mode called Jin Shin Jyutsu (Gin Shin Jit shoo) it is a very individualized to harmonize your body and has the potential to help everyone. What I also like about it is that you learn to help yourself. It is a tragedy people are not informed or encouraged to try energy medicine. It is a powerful way to shift things in your body. I know that personally.
Kathleen
Austin, TX
I, too, am stuck in the “politically correct” arena in which pain mgmt docs are weaning patients off of opioids without considering the individual patient’s needs. They are responding to the feds tightening down on opioid prescribing due to the increase in opioid addition and suicides in the general population. I had a spinal cord injury in 2003 (bone spurs intruded into my spinal cord, causing a bruise), which left me with 2 types of extreme chronic pain: localized pain in my lower right back (sacroiliac area) and burning nerve pain which extends from my mid-chest to my feet. Since my second spinal surgery in 2012, I have been taking three 15mg oxycodone tabs daily (for break-through pain) along with a 75mcg fentanyl patch every 3 days. Over the past 3 months, I have been weaned off of oxycodone completely. My pain has increased significantly and my quality of life has suffered tremendously. I was told at my last appt (late July) that at the next appt, I would begin to be weaned off the fentanyl patches as well. I am terrified at the prospect! As I stated, my pain has already increased significantly & my quality of life has suffered. I don’t know how I will manage at lower pain medication dosage. I don’t know what to do except try to convince my pain Dr not to do it. We’ll see how that goes, but I’m not optimistic. Government needs to deal with the opiod addiction (& suicide) epidemic in the general population, not get between pain Dr’s and their patients with a legitimate need for pain meds!
Debbi
Henderson, NV
I developed migraines after chemotherapy for Hodgkins Lymphoma. When I get an aura, I take limited and 10mg immediate release oxycodone. This will usually prevent a full migraine and the associated pain, nausea, and light sensitivity. Also as a result of the chemo my vocal.vords were paralyzed, which lead to a tracheostomy and a chronic cough that is only.vontrolled with a hydrocodone-based cough syrup. The “normal” dose is twice daily, bit I need three times a day.
Then I had an accident at a restaurant where a chair broke, which resulted in coccydynia. I took methadone for the tailbone pain in addition to the oxycodone. I saw a pain doctor for a few years, who then transferred my care back to my primary care physician (pcp). I was stable on this combo of methadone, hydrocodone, and oxycodone for ten years. Because of my asthma, I was taken off the methadone. Do for a few more years I was limited to the oxycodone and hydrocodone.
Then I started developing flank pain, which took three years to finally be identified. My pain was so severe that I was prescribed hydromorphone. The kidney stones ended up destroying my left kidney; I had a tube through my side to drain the kidney, then had half removed due to damage, and then after almost two years, got the rest of that kidney removed. The hydromorphone handled the kidney pain, but not the migraine, and vice versa.
In the aftermath of all the surgeries, I developed incisional hernias. About ten years ago I had a hernia that became incarcerated/strangulated; until they could get me into emergency surgery (about eight hours), I needed 5mg morphine IV every 30 minutes. This was by far the worst pain I ever had, even worse than the kidney colic.
When hydrocodone was reclassified, my pcp sent me to a pain specialist. They have kept me on the oxycodone for pain and hydrocodone for cough. I have to go back every four weeks and give them a urine sample.
I am due to have surgery for my three hernias in just over a month, and I’m afraid that I won’t get any additional pain meds post-operatively.
I have been incredibly lucky to have had all my doctors believe me and not ascribe my need to an addiction. My pharmacy fills the prescription with no problem. Only had a couple of times when the prescription was delayed in the mail and was too old by the time they got it. And a couple of times when they gave me tablets instead of capsules; for some strange reason? it takes 15mg of oxycodone tablets to provide the relief of 20mg in capsule form, I end up having to take more pills and have run out before the end of the month.
Nancy
Grafton, Wisconsin
I am so sorry you are going through this. I will probably be forced to do the same. There has to be someone who will listen, and help our voices be heard that there are compiant, functional, chronic pain patients, who need their narcotics to live. No different than needing insulin if you are a diabetic! The CDC and FDA must hear this and allow our treating doctors to prescribe what works without fear of penalties! I pray someone on here knows who we can reach out too! In the meantime I pray you are able to manage your pain without horrible suffering. It’s just not right!
Shelley
Encinitas, CA
After going through a debilitating colonoscopy which left me in severe state of shock, couldn’t eat, felt like I was smothering for 5 years, then two hip replacements which changed the structure of my skeleton—which caused severe, severe, (did I say severe?) back spasms because of which I had to sit up in a chair to “sleep” for months, physical therapy which caused rib pain, chiropractic which did absolutely nothing except jolt my spine even more, herbal remedies, opioid regiment which I couldn’t stand, and then going into a severe depression for two and a half years after I retired, I changed my medical group to Kaiser.
After going through about a half a year of the usual treatments, my spine doctor referred me to the pain clinic “upstairs.” Kaiser has a pain clinic? My doctor said just about the whole second floor. There is a pain psychiatrist, a pain psychologist, a pain physical therapist, a pain counselor, a pain physician, a pain pharmacist (just for pain), a pain case manager, a series of intensive pain classes that teach Cognitive Behavior Management that retrains your brain to produce new synapses to help you think and feel differently than you do now about your pain. There are special pain exercises (you have to get invited to go to the class—they want to make sure you are not just there for opioids so do testing and questioning of your intent. They teach about ways to distract yourself from pain, offer a laugh session, sleeping strategies, meditation, and tons more.
Kaiser also offers classes on dealing with pain, anxiety, mindfulness, and Tai Chi. They have a load of info on their website. Once you have completed the 12 session class, there is a maintenance class once a month. This is the future for this horrible condition. A concerted effort on changing your brain is the way to start feeling better!! A year ago, I was afraid to wake up in the morning. Now, I am starting a new business, and trying to get myself out there in the world again and enjoy being alive. It’s not ever perfect or totally pain free, but life is so much better. Do what you can to take the first step.
Judi
Atlanta GA
My husband has had 11 back surgeries. He will never be pain free. He attempted suicide to free himself twice. Some people need opioids. The DEA and CDC should all go break their backs and see how they feel,
kelly B.
Connecticut
Hi, This is KB.
I had my back fused about 3 years ago due to my herniated disc from degenerative disc disease. I’m 54 years old. I’ve been taking. Oxycodone for years, 4 pills a day, 15 mg each. I was told i have fibromyalgia and now rheumatoid arthritis. I feel like life is over. Because of my pain it’s hard to even do my daily things like showering. Anything that requires bending hurts. I don’t enjoy much of anything anymore. Most of my time is spent sitting on the couch. I’m in agony. The pain meds are starting to not work as well because of being on them so long. I’m in agony. I wish someone could fix me.
Rene
IL & AZ
I have SEVERE DAILY CHRONIC NERVE DAMAGE.Pain so bad Drs call it most excruciating condition known to mankind. I lost my Dr due to his help bcz he had sympathy that I was in crying pain daily, often wonder when I myself should stop all this!! I have had 5 major brain surgeries looking for alternatives to meds a stimulator in my brain & battery in my chest was last, it caused seizures half with what I have take their life the first 2 years.
It’s why my daughter after she weds will try for a family right away so maybe I can c one of her kids the pain is so. Bad my family has chipped in to get me a place in SW away from Chicago & husband & son bcz the weather gives me small relief in IL Grandkids or not I would have to stop the fight the agony too great I’ve tried everything hypnosis, Acupunture, injections, surgeries, u name it!! If I lose my meds I will lose my life I hardly hold on with them!!!
Don’t I matter at all? I raised 2 moral respectful kids! Why can’t I live & I know I’m at legal limit last 7 out of these 15 yrs of killer pain. If I have a built a tolerance than how can going up a bit to make me comfortable at least a bit more in the time I have left how can that hurt me?!?! Dying Slowly & extremely painfully in USA !!
Mary S
LasVegas
I am 79 yr old with severe scoliosis, osteoarthritis who has complied with every directive from MD for Ortho visit, pain mgmt treatment which lasted over a period of years. I,too had “spot” checks with urine tests to see if I was using the meds or selling them. All questions were in compliance and now they have cut my oxycodone by 25percent with another 25 percent coming. I suffer chronic back pain, don’t sleep well at all and am very limited in activities. I also live alone with no relatives or help. What is next? Where do we get help?
Robin
I am with you hun. Soul crushing slowly dying from the stress of intense accute chronic pain so bad I cry daily. I beg God Daily. Town of 110,000 here and not many ‘pain clinics’ went to one guy er dr. He laughed at my FIBRO being hit walking by a car kidney nephritis daily sinus occipital pituitary gland migraines gut adrenals lymphedema lymphs skin covered in psoriasis erythema and eczema. every body part and system is agony.
How can I take less than the 3 norcos but I have. I want to die each day. do have hub finally 4 yrs former London paramedic who has thick skin just like dr. dad and both ignore or don’t want to hear it or think hospitals FIX Fibro and chronic fatigue immune system dysfunction and full blown system strep, candida, and more. Suffering is NO LIFE, IT’S HELL so hugs to you.
Debbie
I have been taking OxyContin 3 times daily for 18 years. My doctor has increased the strength 3 times. In 1997 I went in for back surgery with thoughts of a small piece of my hip bone being used. When I woke up, I found out it wouldn’t work due to so much damage and he had to place 6 rods and pins. I wish I hadn’t had surgery. Nerve damage came soon. I have “Radiculopathy” —so painful. I now have SLE Lupus with extreme arthritis. I was always in pain but could at least enjoy family, etc.
Last month, my Medicine got changed to Morphine. I am not allergic BUT it consipates me horribly and changes my mood. I don’t sleep good. I haven’t been out. My ‘Break Thur’ Medicine had to be reduced. Something about the ML allowance.
I wouldn’t mind any of this is ‘drug addicts’ lives are saved but honesty I believe so many more will die using tainted heroine. Deb
Rich
Maine
37 years of daily constant Pain, for which after more than 10 years of suffering in daily constant Pain and that nothing worked to ease my Pain- but for Morphine, just then as I was losing my mind for so long suffering due to severe injuries to my head, face, upper body, and spine/neck, I was finally allowed to be treated with Morphine Medicine and the Morphine Medicine and Pain Doctor saved my life and the two other Doctors who have also treated me with Morphine Medicine.
Till now and how they have taken away a correct Morphine Medicine dosage that not only saved my life, but also gave me somewhat of a life that I do not have without Morphine Medicine. I have used two different dosages for my Pain for 26 years with NOT one measly problem. Yet they have taken it away from me and NOT only ruined the life that I had to fight for, but I now live once again in a suffering torturous Hell from Severe Chronic Pain.
That is also due to a head on collision that was caused by an illegally drunken driver in an 18-wheeler truck who caused a head on collision with our vehicle coming the other way. We did nothing wrong, I was 18 years old when it happened (two of my friends were killed from it- who were 19 & 20 years old, and like I said- we did NOT one thing wrong!
Yet 37 years later I am being made to suffer with life ruining tortuous suffering Pain for nothing! When what works well and I fought for and used responsibly and of which saved my life and gave me somewhat of a life- is there and works, but is forbidden for me to use and so I suffer in Pain for nothing, but what I can truly classify as not only very unfair, but also cruel and inhumane.
As I have learned first hand, there is more concern for drunken drivers, drug addicts, and terrorists, than for us people who suffer with a daily, constant, Severe Chronic Pain that not only ruins your life, but is a torturous suffering Hell- that we are once again forbidden to use a Medicine that has been for me a literal G-d Send, Miracle Medicine, and a Life Saver! Yet once again it is forbidden for me to use, I am punished and made to suffer, for other people’s wrongs that I have absolutely nothing to do with or am to blame for!
I already had to suffer through a torturous Hell for more than ten years for some stranger to my friends and self who did wrong, have NOT been compensated for at all, and yet again I am being made to suffer a torturous existence for other people’s wrongs I do NOT know nor have anything to do with or am to blame for.
Freedom? Rights? Etc., etc.!
Joie
Wisconsin
I need help. I am at such a loss. I have been a chronic pain sufferer for about 10 years. 5 years ago I had a complete hysterectomy that intensified my back and leg pain amazingly. My MRIs and xrays have shown no more than DDD and osteoarthritis. I have gone to PT, pain management, had multiple injections as well as all of the nerves cauterized in my lower back. My doctor has had me on narcotics since then, and in the last year we have found a good balance that has given me my life back. I am able to move and be a member of society and finally find some enjoyment again.
Last month I received a letter from my doctor stating that she was leaving the practice. I sent her an email back asking where she was going, and could I come with her? She stated she was moving three states away and that it wouldn’t be possible. I let her know that I was concerned about the current regimen that I was on and worried about having a new doctor. She assured me that doctors would be more than willing to work with me and allay my concerns to rest.
Last week when I called in to refill my prescription I received a call back telling me they were setting me up with pain management. I told them I was confused and that there must be a mistake since I had already been through pain management and just needed a refill on my prescription at this time. The nurse then told me she would call me back. When she did call me back she let me know that the current doctor did not agree with my treatment regimen and would not be refilling my prescriptions. I told her I would like to schedule an appointment to discuss this and go over my charts and find out if she had any other suggestions as to what I should do at this time and that I was more than willing to try something new but I would like to remain pain-free while we explore new possibilities.
The nurse called me back 10 minutes later to let me know the doctor didn’t see any reason to have an appointment at this time. I’m absolutely terrified right now of being in the amount of pain I was in previously and setting me back. The regimen my previous doctor had me on has allowed me to lose weight become more active and live again which is only going to help me help my back pain. Never in my life have I been treated so poorly by a physician. This leaves me in the position to find a new doctor which is scary in itself because I don’t need to be judged. I just need to not be in pain. And I don’t want to have to bankrupt myself again trying all the things I’ve already done. HELP
Tula
Alabama
It is time for doctors to TAKE BACK CONTROL of their patients’ needs. The government needs to stay out of the doctor’s office because they cannot control what is needed for each individual patient. Stick with focusing on the illegal drug people. Those are the ones you need to keep in mind. Go after the criminals, not the doctors, not the pharmacist, and not the people who need help. Thank you, and God bless.
phyllis
if we could only make that happen!
Gina
CA
What are others doing to ease pain since the immoral and benighted CDC and FDA have mandated at best a tapering of narcotic pain medications?”
I have had chronic pain and untenable insomnia for many years. Those who experienced the life changing effects of intractable pain understand. I’m at the point that I would do anything to reduce the pain-it has changed me into a person I never thought I’d be. I’m 73 and have thought I would never do anything illegal or dangerous. I would now, but don’t have that option. I have been made to feel like an addict. I’ll stop as this synopsis suffices.
Please respond if you have advice about reducing this hell on earth. Thank you. I pray (even though I’m a non-believer) for all of us. I’m very angry and admit I consumed by self pity.
Your thoughts, anyone. Thank you and I’m so sorry for those of you in this situation.
George Stark
Exactly, report the illegal crackheads and throw them into jails.
I totally agree Betsy McGee
New Jersey
I totally agree. I was on Methedone for back pain I received from a chiropractor I had been going to. He put all his strength into cracking my back . I had originally gone for tightness in my neck. But as many of you know, who have been to one, they try to adjust your whole body.Well I felt an electric shock go into my hip and down my left leg. I tried everything to get rid of the pain. I tried acupuncture, Vax- D therapy (which was a fortune, but again no success physical therapy, 13 cortisone shots, then finally I resorted to surgery 4 spinal surgeries, then a spinal stimulator.
All with no success. Finally, I resorted to take Meds for the pain. I was on them for about 10 years. Then about 2 years ago my doctor told me he could not write my prescriptions any longer. I felt lost and betrayed. I was told by a pain management doctor that I had to go off all the Meds I was taking, and was thrown into a detox center. I felt like a drug addict, and that was who was there. A bunch of young addicts, who talked about how they were going to get high as soon as they got out of the rehab. For the next 3 or 4 months I sat on my couch, because it was too painful to even stand for more than a few minutes. I then went to a Methedone clinic for about a year. I then found out that my insurance would not cover a phychiciatrist.
So now I pay $160.00 a month for my prescription. Soon my money will run out, then what will I do? Yes I also believe that the government should stay out of the Doctors offices. Let the Doctors do their jobs.
Tanya T
Indiana
I’ve been on prescription pain killers for 10 years started as a result of failed a/p lumbar fusion due to degenerative disc disease. After being on NSAIDs several times a day every day for about 3 years and born with fatty liver disease, I developed type 3 liver disease.
The doc said it was thru no fault of my own. N.A.S.H. aggravated by nsaids. So, then I was prescribed morphine er and roxicet for breakthru pain. Which was unchanged for the last 4 years. I was at a dose that worked. I also have polymyalgia rheumatica, fibromyalgia and chronic osteo arthritis.
I had a full hip replacement. Cubital tunnel decompression on rt arm. And carpal tunnel decompression on both hands. I’m disabled. My pain doctor took me from (3) 60 mg morphine er and 4 roxicet per day down to (2) 30 mg morphine and (2) 10 mg roxicet per day. And he “weaned” me down in 2.5 months.
Since I’ve gained 30 pounds, which is confusing since I hardly eat. I sleep maybe 6 hours every 3 days. My pain keeps me from all the things I used to enjoy. I cannot take any nsaids because of my stage 3 kidney and liver disease. I have zero quality of life.
My blood pressure has been as high as 150/98. I have chest pain. My pain doc has become my enemy. He wants to give me meds that will burn up my liver or cause my blood pressure to go higher or worse. I want it all to end.
Just went to my kidney doc. Because I’m in so much pain with no help from my pain doc, I started taking ibuprofen about a month ago. It pushed my stage 3 kidney disease to stage 4 in only one month. My kidneys are operating at 26%. Which could lead to hospitalization or death. Does any of my doctors seem to care? Not really. Does the CDC or DEA care…not at all. I’m disgusted.
I wasn’t depressed before. I am now. Psychological meds are not a cure.
MOMEKAT
NW
Try having chronic pain in a state with legal cannabis, medical and recreational, and being tested and denied pain meds for using it for anxiety, which was prescribed by a pain management specialist. A complete catch 22.
Jane D
California
Why aren’t the doctors fighting back and demanding that the CDC,FDA, and DEA stop trying to regulate how doctors diagnose and treat patients??
I understand that some bad doctors including my first pain management doctor, prescribe too much and for too long without any plans/guidance to get off these medications really caused harm to a lot of people.
I couldn’t understand how a doctor could put someone on a medication that is physically addicting, doesn’t have a good proper taper off plan to safely stop the medication when the patient no longer needed it?
The people who are overdosing aren’t using a lethal prescription from a doctor, they’re usually taking something they’ve purchased on the streets because the doctor who started them just cut them off cold turkey!
I know I absolutely couldn’t handle withdrawals at all! I was very blessed at the time I was to stop and reevaluate my need, because I had a wonderful psychiatrist, yes psychiatrist not pain management who gave me the medications and instructions to safely and comfortably taper off.. Didn’t take too long to realize unless the spine injuries are actually fixed the pain will always be there!
My spine is not fixed so it’s basically human torture I’ve been sentenced to for the rest of my life for the crime of growing bone spurs and disc degeneration causing permanent painful spine damage.. What a sad thing to happen to good people in 2017.
If my dad was still alive, as a doctor he’d be furious.. The doctors need to obide by the Hippocratic oath first and foremost! If doctors are letting non medical agencies bully them to force them to go against the Hippocratic oath with pain meds what’s next??
Debra Ann
NY
I will be 55 this month. I have had progressive pain throughout my body since I was 12. No muscular degeneration or tissue disorder thankfully. Multiple arthroscopic knee surgeries. Unfortunately, like many of us who have suffered debilitating neurological pain. There will never be a cure , and now we are not allowed relief at all.
So what next: we’ll I will most likely have unnecessary surgery that I as well as all of my physicians would have advised against. At what cost, more pain. It easy, for people to ignore the obvious..
Genetically, I should live long. Logically, to live in this body without relief is suicidal.
Mary
Wisconsin
When my Grandmother was dying from ovarian cancer, and her feet were turning black, they would not give her pain medicine because they needed to reserve it for the people who weren’t dying—–about 41 years ago. And now you have to be labeled as dying before they will give you pain control? How about everyone goes back to the word pain, and then throw in some common sense! Animals are murdered everyday so they are not in constant pain, but people? There are conditions where all doctors can do is give pain medicine. I think people need to realize that people on pain medicine are not sitting there by themselves laughing and getting high all day. When you take pain medicine as directed it just gets rid of the pain. So we can try and live our lives to the fullest potential like everyone else gets to do! So we are dealing with people who prob. never took a pain pill except for wisdom teeth removal or others who abused it and want to stigmatize/hurt everyone.? We don’t allow animals to suffer! Pain patients have rights too!
Adele Luna A.
Florida
I moved from KC. MO the last of March 2017, to Florida. All was well, I had my doctors in place for years. I didn’t think twice about about it. I’d found an old friend and decided to move. No one told me to “be wary ” about it. I get to Florida, and Florida is going through a severe opioid problem. I had no idea. It takes a little bit for insurance to kick in, and trying to get the meds I was on in Mo., you would think that I had been one of El Choppo’s right hand people! I am made to feel as though I am no better than the greasy drug addict lying in the gutter!! I was going over ALL my meds with the doc, and when I mentioned my pain meds he says, and I repeat verbatim ” Oh, now we get to it…” I repeated about the pain meds I had been on, ( I had also had a print- out of my pharmacy list that went back 2 years) he says AGAIN ” Now we get to why you came. ” I was floored! I said ” No, I need all of my meds and this is just one of them.” He wouldn’t “discuss my pain.” And this is the doctor that is to become my Primary! What’s up with that!? Im here now, I guess I screwed myself. I asked him to please get my records sent from KC. We’ ll see. I believe that with this crack down happening, they are going to “CREATE ” drug addicts, cause more horrific suicides, and what the hell are the folks who DO know how to take their pain meds supposed to do? Ive found that there is more help out there FOR the addict/ alcholic than there is for a person who doesn’t have these problems. Someone out there must rethink this entire problem. Someone with enough smarts, that can think OUTSIDE the box, use some of the innovation that it takes to build organizations, and solve this. If I CAN think this way, and I’m a nobody, c’mon people, let’s get with the program!
Sharom
U.S.
This is B.S, I have never been addicted to any opiods, because I don’t abuse them, but now that dr.s are being coached to take I’ll patients off, I am struggling to get thru everday, I park I page in pt, I have butran patches, which are a joke and eating advil, like no tomarrow . I don’t know what to do. Life like this stinks
MOMEKAT
My heart is with you . This is a disability and it should be treated as such. Acupuncture has been amazing help for me in my withdrawal from both Tramadol and Fentanyl. Community acupuncture.
Pat
I see people in chronic pain who cannot get Med’s for their pain turn to the streets for their pain medication. They say 90% worlds of pain medication used used in the Us and it shouldn’t be that way. Doesn’t the Us also have the world ‘s longest longevity rate. This is NOT a good thing. This is going to turn into a country of only certain people will die from unnessasary drug overdoses, is this going to apply to everyone? I don’t think so. I know my death will come much sooner than expected.
Pat
Texas
I was sent to a rhuemetolologist due to some morning paralysis. It is a rare side affect from a medication I have been taking for years the rheumatologist ran tests found nothing but hip bursitis. She wanted to give me a cortisone shot. I adamantly told her no!
Years before I was in an accident and given cortisone shots they never worked and even telling her this she insisted. She had to make some money. I was on SSDI which we all know puts your health in hell. It was determined that this was a side affect of my medication. .The shot worked for two days but now I was getting pain everyday. I had no intention of going to her follow up but did just to tell her she turned an occasional flair up to everyday. She was gone and I saw This PainManager who had a new toy and was eager to try it. He sent me for an MRI and I needed some deep cortisone shots.
During a course of 2 months he gave me 6 cortisone shots. Now, I could barely walk and was in major pain. He gave me Percocet. A week later he sent me a registered letter saying he would no longer treat me because my husband threatened to sue. There was a month’s prescription and a couple of sentences saying He would send my records wherever. Wherever? I didn’t know.
I chose a neurologist as my PCP recommended. That lead to three failed surgeries with daily pain. I can’t walk because the nerves in my feet are dead and walking creates a sensation that I am walking on rocks. I was going to get a spinal cord stimulator but had to move because after all the money spent. I asked my pain manager how much does this cost. He told me, honestly I don’t think you can afford it.
I got so mad he played me I went to through the trials and then tells me I don’t have any options. My only option was to move in with my parents and together save the money, we were also on the verge of eviction, I saw the doctor who was supposed to do the spinal cord stimulator but he told me to get off the pain Med’s come back in two months and we can talk about it then. I don’t know what I am going to do
Jessie B
California
I’ve been dealing with chronic pain for 15 yrs. I’m 38 now. I went on tramadol so I could continue to work until that would not even help anymore. Many times I have not been able to get in to see my doctor at the health clinic because it’s been so busy or my doc is on vacation. No one else at clinic will supply refills to someone else’s patient. I just recently had to go to a crisis center because the withdrawals and pain were so bad that I was going to off myself. Even though I didn’t particularly want to it seemed my only choice left. Had I owned a gun I would have ended it quickly. I’m getting off the trams once I can get a psychiatrist to help with panic so I can get off the meds and maybe handle my own pain. If it doesn’t work then I know that’s it. Some people need these to exist with their pain. So what there are people who abuse it. The drug addicts will get their drugs if its in pill form or not. Why make everyone suffer for the actions of a few. I think that more suicides will happen when those that are in pain realize they have no recourse.
phyllis
boca raton, florida
So right, it is disgusting what this country has done to people who live with chronic pain.
Cindy
MI
I recently fell and suffered a severe left shoulder injury. I am left handed so doing anything creates horrible pain…even getting the half and half out and stirring it in my coffee. I can’t get comfortable, can’t sleep, it hurts to breathe, hurts to sit still, in short, I am in pain every second of every day.
I do not have any broken bones but tests are still being done to determine the extent of my injury. I live alone and don’t have anyone to cook for me or help me minimize use of my arms….arms plural because any use of either shoulder creates pain. Because they are afraid that I, a 62 year old woman, will become addicted to pain killers, I am left in continuous and severe pain.
They have the means to make me comfortable while I recover but they won’t do it. I guess they think I’ll go looking for these drugs on the street after I become “addicted”. Really? I had major back surgery and was on strong pain medication that I couldn’t wait to get off of. I certainly never got addicted. So what am I doing. Taking a liver damaging amount of ibuprofen. I have no other options. These ridiculous regulations are implemented by people who are not suffering with debilitating injuries or diseases. Shame on them!!!!!
Donna
Gold canyon, Arizona
This process is so ery sad for so many people all over the United States! I too have been suffering for years after an auto accident injury in 1979. I have been through the gamut of trial and error procedures. My family physician and I finally was able to get me to a point where I was not in pain 24/7.
Of course, it was with Opiods. I have been on 20 mgs of Morphine sulfate ER and 7.5 / 3.25 of Oxycodone! I have NEVER abused these medications, and have been able to be a happy functioning human being up to now.
It is with all that is happening, that I am now with a pain clinic, Dr that is slowly but surely taking my pain meds away from me. It’s only been about three weeks, and the pain in my neck and back are right back where they were in 1979!!!!
Please people…..think about what you are doing to those of us that need those meds, have not, Donn D nor would ever abuse them……Thank you! Donna….Arizona
Lisa
MD
I sent the following to my state governor via his website – maybe if enough of us write to the lawmakers they’ll be forced to reconsider?
“I searched online to see if I was alone – I have had 2 spinal surgeries and have deteriorating discs, spondylosis, and nerve issues. I’ve had rounds of spinal injections for pain, and have been on a regimen of Hydrocodone for 10 years. This July 3, I went to refill my prescription and was told I couldn’t have it. Not until the 12th, which would leave me without pain relief for 9 days! If you know spinal pain, you know that OTC medications don’t touch it. I’m sitting here typing nearly in tears because I have 1 pill left after rationing my remaining 3 pills from the 3rd – 1/2 per day. The pharmacy told me they could fill 7 days’ worth of my 30-day prescription, but if they did that I’d forfeit the remaining 23 days’ worth!
The insurance company said that they need the doctor to fill out a “pre-approval form” for them to pay out. I asked the pharmacy if I could just pay out of pocket and was told no! How is that possible?? This is insane. I literally sat in my car in tears for 20 minutes after trying to get my prescription filled for the 2nd day in a row, to no avail. Tonight I found the following website: https://www.peoplespharmacy.com/2016/03/28/how-will-people-in-severe-pain-cope-without-narcotics/ This is widespread – I am NOT alone.
I’m sorry if it sounds callous, but I couldn’t care less about some dumb people that get addicted and die. I really don’t care. Because I am so crushingly depressed by my limitations – I barely function because of the pain, I have trouble getting from the parking lot at work into the building – I don’t even want to try anymore. Is that what the government wants? Millions of people who WERE functioning suddenly unable to function? Because I will not be able to continue working at this rate.
I don’t even want to think about it! I’m too young – 48 – to stop working. I’m otherwise healthy. I love life, or I did – and I want to live again. PLEASE work to change the regulations – they’re hurting FAR more people than they’re helping. And they’re hurting the ones that are already contributing to society – what will you do without us??”
phyllis
I am so sad for you and experience the same issues. Is this the United States? They are making people suffer for the poor judgement of others.
anthony
UK
Hello, I am from the UK and I have just experienced an almost identical experience as yourself. I have had 4 spinal operations including a spinal fusion done from the front [very painful] ALIF I have lived with deteriorating spinal and leg and foot pain for 20m years.
I have lost sexual function and at one stage required a supra pubic catheter for three months. I have been diagnosed with the most painful condition known to man complex regional pain syndrome[ CRPS]. My regular doctor is lovely and kind but the other doctor is a narcissistic pure cold person who let me crawl out of the surgery in agony.
I was so ill that I thought that I was going to die. I had driven there but had a friend drive me back home as I was too ill to drive. Thankfully the prescription which I required 2 days early unbeknownst to me had already been signed off for me to get it !! So that thankfully I took the prescription from the doctors receptionist and got my meds other wise its my belief that I would have died last night.
I also have Crohn’s disease, which is very painful too. I could not believe how I was treated by the cold person. My daughter who is a lawyer when berzerk when I told her!! She could not believe that some one could treat her dad with such cruelty.
I was treated like a junkie when I have proven medical issues including both illnesses that I have already described. It’s disgusting that people like us as treated so badly by some medical people we are ill and will be until we die ..yes many of use that has been on long term opiate will not be able to manage without them but we don’t ever get euphoric from them [high] all it does it take the pure evil pain down from 10/10 to an 8/10 ot on a good day 7/10.
I have never been able to sleep for more than 2 hours but now I can’t even sleep in a bed. I have to sleep on a recliner and that only from an hour or so. If you don’t have intractable pain you won’t have a clue just how bad it is to live with pain 24/7 its there on your birthday its there on your wedding anniversary its there at Christmas and holidays are more trouble than they are worth.
We are genuinely ill. We should be treated like patients, not criminals.
To the author of this post please contact me anytime it sounds like we have a lot in common
ANTHONY S
KY
The CDC’S comments are asinine and they are sticking their nose where it doesn’t belong. Although their opiate dosing guidelines are just suggestions, many physicians are treating it as the gospel, fearing that prescribing a greater amount will trigger a DEA investigation, which is exactly what happened to my primary care physician.
The DEA told him he was under investigation for overprescribing, not that he was actually overprescribing they told him it was too much for a family physician to prescribe versus a pain management clinic. He was forced to retain an Attorney for $20,000 which forced him to close his practice.
This is the kind of thing that the CDC and DEA scare tactics are accomplishing. There has to be a happy medium where documented chronic pain patients can access pain meds if they want them without fear of retribution. This policy of opiates bad, doctors should not prescribe them not matter what is just irresponsible and easy for someone to say or support if they AREN’T the person in excruciating pain.
I wish there was a way to make all officials who are against pain meds no matter what to have to experience the debilitating pain that some people live with every day, let them have to live with it for about a week without any pain meds and then at the end of the week, ask them if their opinion is still the same, because I truly believe that is a lot of what we are dealing with, too many people who are making these asinine decisions who have never really experienced strong chronic pain ever in their life.
If they had experienced it, I don’t think they could make statements like opiates are not effective treatment for chronic pain. The worst part to me is doctors who write prescriptions for opiates then one day quit either because they get scared or they decide it is not the right treatment, most don’t seem to care about the patients who have become dependent upon them and all of a sudden get cut off and go into withdrawal.
If a doctor is going to cutoff a chronic pain patient, they should at least have to get the patient into a methadone or Suboxone clinic to help the patient avoid withdrawal, not as a long term solution but a short term solution to help them avoid withdrawal.
Darby
I see a common theme here, that many posters are saying they just want a normal, pain-free existence. Maybe you have forgotten, life is not pain free for anyone. And of course no one ever abuses their meds.
As an RN and former opiate addict myself- and current pain sufferer, lemme tell ya, hyperanalgesia. Opiates actually magnify your pain. They were never meant for long term use.
Ray
PA
There really should be a way we could fight back. God I so wish. This treatment we are getting is so terrible and unfair. I hate these people.
That guy in pain
Aren’t u a peach.
That guy in pain
That was meant for the Rn who said these aren’t meant for long term pain…. as she was an opiate addict? Dependency and addiction are two different things.
Darby
Sorry, it sounds harsh the way I said it. Thing is,there IS no difference between an addiction and dependence. They are the same. The doctors making a living off of creating addicts won’t call you a drug addict. They’ll say you’re physically dependent. It’s a load of bull and the government doesn’t differentiate bc no matter what you call it, you are altering your mind, i.e taking drugs, only making excuses for it. Addicts, dependents, it’s the same phenomenon, different word. You know when you get in a vehicle and drive on prescription opiates, you are driving while intoxicated and you can be arrested? Gone are the days of using pain as an excuse to endanger others. You don’t realize this is the case because the drugs alter your perception. Yeah, Im a peach I guess. But I help people rehabilitate and get off the crap. What would you people have done 200 years ago? Pain pills aren’t doing you any favors, the doctors don’t care about you.
Kara
Texas
Just moved from Colorado to Texas. Since 2005, I have abided by my doctors rules, treatment and have been an A+ patient. I trusted my doctor and was able to function. Now I’m in Texas and no doctor will accept me. I’m being punished for doing what I was told to do. I need an advocate. Anyone advise? Thank you!
Jon Bray
United States
I have been in severe pain from my scoliosis for over 5 years and have been on pain medication Norco 325. But I have been trying to get him to give me the 7.5, but he won’t do it because of government. It takes all I got to make it through a days work, and it is back breaking work. I will be 57 in 2 months so I am out there trying to support myself and my family and our country with my tax dollars, but they don’t want me to be able to live my life without being in pain. It isn’t right; I am to old to get surgery on it ain’t going to do any good. Most of what I read it has made it worse.
If I was a lame dog or a horse they would put me to sleep. I feel like I am a slave to the system and the harder I try the worse it gets. When I get home from work anymore it isn’t long and I am laying in bed. If I got things that got to be done I really have to force myself or wait until I get a day off work. Now it’s seems I got a bout of depression. I used to fish all the time, my whole life since I was a kid and I haven’t even gotten my license this year. I also was in a coma and have been wondering if this could be making me feel worse since my back and my brain are connected to my spinal cord, please help.
ANTHONY S
KY
Not sure what you mean by the dosage. Hydrocodone (Norco,Lortab etc) is mixed with APAP, normally acetaminophen. So, the normal dosage strength of Norco would be 7.5/325 which means 7.5mg hydrocodone and 325mg acetaminophen. So, are you trying to get your physician to move you to a higher dosage, which would be 10/325?
You say you are on 7.5 and you want the doctor to move you to 325? I really don’t know what you are saying. Are you wanting just 325mg of acetaminophen only? Please clarify.
Cc
They come in 5’s, obviously
Dave
Dublin, CA
I have broken my back at L3, had 21 varying surgeries including 4 neck, 1 lumbar, 7 knee, ankle, gall bladder, etc. I have Degenerative Disk Disease, and already all my lumbar disks are dead. Additionally, I have Degenerative Arthritis that is active in my spine, neck, left shoulder, knees, hips and rt ankle.
Prior to the government making it almost impossible for my pain management doctor to prescribe opioids, I was using a 75mcg/hr Fentanyl patch and supplemented that with 15mg oxycodone tabs 1 every 6 hours as needed. Now I have no patch and only 2 tabs per day of Oxycodone 15mg. My life is again in misery. I cannot sleep, trouble walking up and down stairs. Cannot stand for more than 15 mins without pain getting worse. Nerve pain in left side of neck is unbearable. I can go on and on but I think I have made my point.
Our wonderful, intrusive federal government in their wisdom to curtail the problems with narcotic over-prescriptions and misuse has painted us all with the same brush, and I now have exactly zero quality of life. I am only 62 and already dread each day and don’t want to live like this. I pray someone with common sense will step in so those of us that truly need narcotics daily to just live can get them prescribed by our pain management doctors who know what we need.
Ben W
Alabama
Broke my back twice . Blow out disc . Neck surgery . I live in pain . An don’t even ask for pain medicine because ur treated like a drug addick . But all the pill heads at my work have hand fulls of pills . Dam shame .
Martine N Beaumier
RI
People who live everyday in chronic pain are suffering more due to junkies. Chronic pain patients are being cut back on meds. Open a shooting up area so government or state can document on these people. I live on pain I take my meds. And as many Americans they count my dose. Why should we suffer if we following Dr.s orders?
Ryan
Ohio
I feel so bad for everyone who is needing their meds and are being denied by doctors or getting the run around from ( Barney Fife ) the pharmacy. It is ridiculous to go through this.
Where I live, they are producing fake pills on the streets that look like the real thing. People are dying trying to get legitimate pain pills because they can’t get them from the doctor.
Where does it end??? It’s pretty bad when you could find heroine on the streets easier than getting a prescription from your doctor.
MITCH
Arizona
Each person that is on here needs to make a short clip of the pain they are having in their life today and get it on you tube!!! The very young people in this country needs to get involved!!! This means every labor poker that lifts a box or is working by chemicals that is going to make their life in pain needs to plan a march on Capital Hill and refuse any job that may hurt them in life until the white collard people pay attention. This is what is going to change the system from what’s going on is kids refusing to work or they may get hurt and need to commit suicide for pain control.
Jennifer
Arizona
I have been on pain meds for the past 15+yrs or so and been completely under control until these new regs began and I had the bad luck of moving from California where I had a wonderful internist that handled my treatment, to Arizona where the healthcare seems like something you would find in a 3rd world country.
I have never abused the medications and even took less then I was prescribed. Some months I wouldn’t need to fill my prescription for 2 months at a time because I would have extra. I have been treated like a drug addict due to monthly drug tests just to confirm I am taking the drugs they prescribed. One pain dr even screwed up on the drug test and told me I failed the test for Oxycodone when I was only prescribed Hydrocodone and Morphine, so they were cutting me off immediately. I had to fight with them and threaten a lawsuit before they actually called the lab and found out they had messed up and I hadn’t failed the test.
Anyone who is under a pain contract knows that if they are labeled non compliant it’s just about impossible to get pain meds anywhere else. I was under constant stress going to appointments since I didn’t know what they would do the next time I came back. I have been completely cut off my morphine 12hr pills which were a lower dosage then the 4hr hydrocodone pills they have me on currently. I tried to get them to just stop the hydrocodone and prescribe the morphine only since they last longer and I do better on them, less breakthrough pain but it’s like they are appeasing the government instead of even following the guidelines by the drug manufacturers.
So now instead of taking 1 pill twice a day(30mg per day) and remaining virtually pain free, I take another pill 4 times a day(40mg per day) and am in pain. It makes no sense. They actually upped my dosage while at the same time upping the pain. Since then I have gained 30lbs due to the pain and stress they have caused along with my medication being changed which has screwed up my overall health.
This has happened in less then a year and it hasn’t been good for my overall health. The added weight gain has made the pain worse then ever and they actually told me to stop exercising because it was harming my back more. Now instead of being healthy and virtually pain free and able to exercise, I am overweight now because I am in pain and unable to exercise. Wonder what the CDC would say about the added weight on my overall health. They need to stop trying to police doctors and leave medicine up to the doctors.
None
Private
I am an elderly person who has been on Hydromorphon and Methadone for over 15 years. Have been in constant pain for 18 years. Have many major health issues due to an auto accident cause by drunk drivers. Some extreme rare issues prevent having surgeries and certain treatments.Have major brain injuries, bone disease, and had cancer comeback. Nothing else can be done.
I never abused any drugs and always made 1 month of meds last 2-3 months. Now all of a suddenly doctors won’t fill my prescriptions, after being transferred to Texas. I am going to die. Am repeatedly told by every doctor, etc. that I cannot stop these meds suddenly due to risk of heart attack, death, etc. I made my last pain meds last several months. Now I can’t get a doctor to help or medicare to pay. Guess what’s going to happen. Am getting a lawyer. I was against this drug to begin with. Was strongly advised I had to take it. Hope folks who are not drug addicts, as I am not, get to take this all the way to the Supreme Court. This is nothing short of an extreme issue for the thousands who are going to die due to this racket.
Shanon
Texas
I am 58 and have been dealing with chronic back pain since I was 20 years old, when I was injured on the job. I was hospitalized for 2 weeks while they ran every nerve test imaginable until they found a lumbar strain that was pressing a nerve so painful I could not walk without screaming in agony, no medication at this time as they were not sure yet where the pain was coming from. The the main orthopedic dr. Figured it out and prescribed flexeril a muscle relaxer. Therapy. And back exercises forever, only one problem I continued to work doing the type job for 37 years.
I have been on few painkillers as my doctors thought I could handle it, til 7 years ago I had a new dr that dug a growth out of my back and prescribed hydrocodone/acetaminophen (liver killer) Anyway this medication worked fine for my chronic back pain so he prescribed it for the next seven years until the DEA decides to become my my doctor and takes my pills away and need to go through all the pain management clinics at 400 $500 a pop with a urinalysis to make sure that I’m not selling or I am not using the pill which is a joke and now I’m back to misery.
what is going wrong when A government controls the doctors whom have had schooling to treat patients and these bureaucrats don’t know the first thing about it. Who is that cares if these drives are addictive that doesn’t matter as long as they get rid of the pain you can continue taking them forever and they won’t be any harm especially if They take the acetaminophen out the addiction is much easier than the pain I can’t wait to see somebody that’s written this law of course they will get whatever they want
ANTHONY S
KY
I am just curious are you taking Dilaudid (Hydromorphone) and Methadone at the same time? If so why? You usually don’t see two medications like that prescribed together unless one is an extended release medication and the other is immediate release prescribed for breakthrough pain.
Although methadone is most commonly prescribed by drug treatment facilities to help people get off other opiates it can also be prescribed by regular physicians for pain but as I said it is usually not prescribed along with another opiate especially one as strong as hydromorphone. As I said I am just curious.
Randolph
Maryland
My migraine and cluster headaches started at age eight.At the time I had to hide because I was labeled as retarded.Vomiting several times a day did not help.When I was 18 or so I started experimenting with mescaline and mushrooms.I did not get a headache for four years.A once every four month period treatment did the trick.As I grew older the psychedelics became unavailable so I was back to suffering.I could not hold down a job until a doctor prescribed narcotics.They worked fine until the rug was pulled out in 2017.Now,at 64 I suffer worse than ever.Suicide or street drugs are my only choices.I asked my doctor why more people in the medical field did not stand up to the new regs. and she said they were afraid of the retaliations.The medical field is apparently cowardly.What can we do?
Charlie
Continental USA.
I’m 75. My “medical” includes cancer, CABG, O/A, severe accidents, type 2, disability,& radiation poisoning. Lots of expensive drugs, therapies, surgeries. I have a TENS, Silver Sneakers, and a blue tag for parking, plus a J88 on my chauffer’s & motorcycle operators permits. I fail government regulated DOT exams as they discriminate against HOH Americans in this State.
I cold turkeyed hydrocodone 3 months ago, but my physician insisted I try Tramadol HC 50’s twice a day.
I take prescription alprazolam & diazepam, one for anxiety, the other for levator ani spasms. I am married, and my earned retirement plus a $70. Monthly pension pays the rent, electric, utilities, insurance, Charter, & AT&T.
I eat cheap foods plus McDonalds & Burger King. I sleep 4-5 hours at night, maybe nap during the day.
I rarely go anyplace, as I have to deal with incontenince issues both bowel & bladder.
My weight is stable & under 250 pounds. My meds include blood pressure pills, a statin, a BPH pill, and on occasion Bentyl for IBS. I see my PCP once a year, for a free physical. He’s 30 miles away, and our car is 11 years old.
High medical bills in spite of having excellent health insurance plans until 9 years ago, forced us into medical bankruptcy 12 years ago. We lost our home of 21 years the following year.
Neither of us can afford to get sick, as the government will step in and control everything at that point. They will attempt to get $$ from any of our relatives, attach all our earnings, and put me in diapers, park me in a corner, and make me watch some liberal owned media telling me that some politician actually cares…..enough to try & win my vote.
Is this as good as it gets? Or is the younger, healthier, wealthier influences in the establishment going to find a quicker way to do late term abortion?
Cheryl
Florida
Has your dr prescribed you to go to pain management ? Maybe you already tryed this!!!
ANTHONY S
KY
Can you explain what medical bankruptcy is? 75 and disabled, I assume you were on Medicare or Medicaid? If you had hospital stays, could you not apply for payment help from them due to low income, or did you owe money to doctors?
I know a cousin of mine owed several thousand to a hospital for a stay, her income was 21,900 on social security disability. She applied to the hospital for payment assistance and based on her income and bank account, her amount owed to the hospital was covered 100%.
Of course, she still owed money to doctors, which she worked out a payment plan for that, so I am just curious how you got into “medical bankruptcy”.
Anna
MI
First, thanks to everyone here for sharing their terrible stories – I’m so sorry for what you all go through, but if there is a positive note, you have helped me see I’m not alone. I’m like you. I became disabled due to severe spinal disorders and several other medical problems. If you’ve gone through the process to get SSDI, you know the level of scrutiny is out of this world.
It’s a long process that takes a lot of doctor visits, tests, your medical records, their doctors evaluations, and appeals. My cases was decided by the appeals judge on the spot in my favor. Okay, great for me. I have three college degrees and went from dreams of a future to poverty level living on SSDI. Grade 2 Spondylolithesis, Spinal stenosis, degenerative disc disease, a pars fracture, an unstable back, subluxation, bone on bone with my vertebrae.
I’m in constant pain. All day. All night. I’ve been on short acting pain meds, but they dull it and make life a better quality from the relief they provide. I’ve had numerous rounds of PT, and last consultation with a surgeon said it would not do me any good. I have seen three spinal surgeons, with each noting in his consultation report that my condition is worsening. I don’t want surgery though. I was told I’d have to have two surgeries with both posterior and anterior approaches. It sounds horrible. I also worked medical a long time ago and SAW many, many patients with what was termed “failed back surgery.”
I saw people have multiple surgeries to correct prior surgeries, and then develop scar tissues and even worse problems. I have a right to say no to surgery. The problem? The PM place I have ended up the last few years, I am seen by a nurse practicioner there. She acts like I’m a lying drug addict if I don’t want surgery. I also declined injections, I was terrified of them. I’d heard stories about bacterial tainted steroids in injections giving people menningitis a while back. She threatened if I did not have injections I could not have medications.
Over the time I’ve seen her, she has used my medication to manipulate me into procedures, and even done three MRIs!! Those are over $2500 where I live! Why three? My bill is astronomical. She typically changes me from TID to QID, from Norco 7.5/325 to NOrco 10/325 in accordance with my agreement to procedures. I did finally start getting the injections, and frankly I did not get a whole lot of relief from them. The drug tests have been $500.
The whole thing is completely humiliating. Then, going to the pharmacies is another round of abuse. So many treat you like a low life because of your medication. None of their rules are consistant, it depends on the tech or pharmacist you get. I’ve gone at midnight because my husband gets off work at 11 pm, and once was yelled at by a hefty pharmacist who said, “No, no, I’m not filling this.
Every one in the state comes in at midnight and we have a rule you cant have this until after 8 am.” It was a 24 hour pharmacy! What did I do wrong? It was the correct date. He literally yelled and was red in the face. I cried when I went to my car, just felt like garbage. Others say they won’t have it in for days, that they have a “quota” on how much they get. Then I get told I have to come back in an hour or two. Then, some fill it right on the spot. All the same place, so how is it they have a “policy?” I don’t go to the ER ever.
I don’t go to multiple doctors. I try to make the short acting, small amount of meds I have last, but have to take 1/2 to one extra some days and that’s enough to really create a catastrophe. This whole thing is a horror story for all of us who suffer from chronic pain and are undertreated for it. I do resent the law makers tampering with my medical care. I resent the NP who is blackmailing me with my scripts to make me rack up a huge bill for all the procedures she can think of forcing me to have that do not work or I don’t want.
I resent paying hundreds for drug tests. I resent even carrying my urine in a cup to a nurse, it’s degrading. I resent pharmacies who do not know my condition, who have not seen my MRI’s, who have not consulted with the surgeons and specialists I have and then have the audacity to judge me and hate me because they don’t like the medication I have to take to even be able to walk.
This whole thing needs to stop. We should be treated with dignity and respect, and offered whatever will give us a shot at a day with lower pain. I know, I’m rambling, but I’m just sick of it all. I know you all are too.
Anna
PS my opening point about SSDI was that once you’ve proved yourself to that degree of pain and disability, you think it’s credible, but it’s not. You start that all over again with every new doctor and pharmacy. You start from scratch it seems, like going to a new PM.
Cheryl
I wish we could get a lot of us together with all of our medical proof and go to congress together!!!!
ANTHONY S
KY
Well said! All you ever seem to see in these guidelines by the CDC and others is how bad opiates are and how they are over prescribed, blah, blah, blah but you never see them interjecting the human factor, which is, yes there are a downside to opiates, as there is to all drugs but if we restrict access to them how do they propose to treat patients who have documented chronic pain who may not get any relief from other procedures such as yourself.
Do we just let them suffer each day in pain? It truly is a disgrace that the CDC and DEA have seemingly made all pain patients who are on opiates the “bad guy”. As you say, it seems most physicians and pharmacists seem to assume if a person is on opiates, they are some type of drug addict. They are just as many if not more people on benzos like Xanax etc. that don’t really need them.
And what I have read is that they are harder to get off of than opiates. We don’t hear anything about the abuse of those drugs or the number of people on them and whether they really need them or not. Maybe that is the socialistic CDC’s and DEA’S next target, but right now it isn’t right to try and single out opiate users as all abusers or liars.
The government has truly made a mess and never took into account how their decisions would affect the honest person who happened to just have chronic pain.
Bry
California
Anna, your story was exactly what I’m dealing with for the last 7 years. Have worked hard all my life until my back failed me and caused me to retire early. With the multiple surgeries needed there would be no guarantee they would eliminate the intense pain I experience.
I have been with the same pain management doctor for the past 5 years and continue to take my medication as prescribed (Hydrocodone 10/325 4 per day and 15 mg er morphine twice daily. I have not abusesd this medication in anyway and the pain is still present but I’m able to function because of this medication including walking, standing and sitting longer.
I have always been active and I’m not over weight as I continue to stretch and work out daily. Turn 60 in December and can’t see how I could manage with out this medication. I have had multiple MRI’s multiple spinal injections , physical therapy , chiropractor and many many other medications until we found the right medication and right dose that gives me hope for a more functional life.
I’m truly sorry for all that suffer from daily pain in their life and wish those that make decisions for those in constant pain would experience our pain for one day and they would think differently about all the changes taking place. Those that abuse the drugs we pain suffers need daily , not only hurt themselves but those that depend on them to function day by day.
I’m also sorry for those families that have lost love ones by overdose and I’m also sorry for those that take advantage of the system by abusing the medications we need. Like you I feel mistreated when I go the the pharmacy as I’m treated like a criminal for having an Opioids prescription. Maybe we just need the pharmacies to have copies of all of our medical records and copies of all the other treatments we have experienced. However they are not doctors and they should not pretend to be.
This is the first time I have viewed these comments, and first time I have responded. In closing, if I was no longer able to receive the needed medications the intense pain in my neck, thorsasic and lower lumbar would put me back in bed more and would be the end for me. For I have been there when the pain was so bad I could not function, (Meaning I could not sit stand or walk for more than 10 minutes).
However, if by chance the medication was eliminated I would not go to the black market for other drugs like heron. I would have to say good bye to the world instead. Best of luck for all that are challenged with daily pain and the stigma of having to depend on Opiods to function.
Dina
Buffalo, NY
I’ve been suffering lower back pain for approx. 7 years but bc of my age <40 my doctor wouldn't treat me or give referrals to specialists. The last 3 years has been excruciating, my daily living skills are becoming non-existent, I have no quality of life left.
I cannot do yard work, gardening, running, walking, I cannot ride my motorcycles, I cannot sit and enjoy my patio with our children, ect.ect. the list goes on. I have in the last two years been prescribed rx strength ibuprofen and acetaminophen, muscle relaxers, codine all to no relief. I am now despite my age, after some serious pressure to my GP, I do have actual documented, real, spine related health issues. I am finally under the care of a spine specialists who with new regulations cannot prescribe long term pain medication.
And now with pain management doctor's under scrutiny and are afraid to give pain medicine, I'm wondering why do these specialists even exist anymore. I just want to go back to work, I want my life back, I want my family to not be afraid to be around me. I've had the injections. To no relief. I've tried the nerve medication and the SSRI's, which are becoming the "New Standard", which both have interacted negatively with my actual antidepressant and deteriorated my mental health.
All this after repeated conversations with these "specialists" that my body responds negatively to these medications. So instead of prescribing any type of actual real pain reliever and helping me to "MANAGE" my pain they have instead made me to where I am just a shell. I've also, under my psychiatrist have documented proof that my DNA responds differently to certain medications. But I no longer have a voice, I can not any longer advocate for myself bc how can I possibly know my own body better than a doctor?
I do what I have to do to take care of my family which also includes frequent trips to the bathroom to cry and my bed to get off my feet bc I don't want them to know how much I am suffering. It makes them feel worse. This isn't all about just me. My family is hurting too, not physically but definitely socially and emotionally. I just don't even want to continue wasting my time and money to be a guinea pig in this social experiment the government is conducting. That's exactly what it is, we're wasting doctors time, wasting money on copays and insurance costs, wasting money on transportation to appointments. And all this does include people who are less fortunate and have state level Medicaid, Obama care insurances, Medicare, Medicaid cabs, the repeated failures of other so called treatment options all the costs included in these treatments is outrageous, let alone the pain we suffer getting out the house to attend to these appointments.
It saddens me to know this is probably going to be my life, 20 hours a day in bed, weight gain, loss of all function, wasting away basically. All in the name of saving our country from these "terrible opioid medications".
Laura
I, like many others, have dealt with chronic back pain for 33 years now. I fell down a flight of stairs at work back then. The first 25 years I would only need pain medication maybe 2 or 3 times a year but as I got older working as a hairstylist has taken its toll. My doctor was prescribing 3 5mg tablets of oxycodone a day. This enabled me to be able to walk a little on my treadmill and clean a room or two. I’m on disability now for my back and other things. I have a new doctor because my old one quit. The new doctor doesn’t prescribe narcotic pain medicine. She gave me one last prescription and set up an appointment with orthopedics. They can’t fit me in until the end of June and that’s just a consult. So I have to wait at least two months to get a damn cortisone shot.
I stopped taking my oxycodone nine days ago. Cold turkey worked for me. I flushed the rest, about 70 pills down the toilet. Today I hurt my back volunteering at the senior center. I’m in so much pain and don’t know what to do. My doctor called in prescription strength ibuprofen. Does anyone out there know if this helps or if there’s any other non-narcotic way to treat pain relief. Help!!!!
Jeff
North Carolina
I think if you are a adult you should have the right to take any pain medicine you need no one on earth knows what each of us feel if a person says they are in pain well who is to say they aren’t stop trying to control people’s lives it’s ridiculous Tax payers money is what pays the DEA And FDA so the taxpayers should have the right to fire them as well some of us n need our medicine so leave us alone
Jeff
I suffer from pain every day and it’s really getting ridiculous every time I go to my doctor I am afraid I am gonna loose my medicine it’s not fair I could not manage even a day without my medicine I can’t get my doctor to increase my mess I have been taking for almost 2 years I get out of the doctors office then my next adventure is to get them from pharmacy so ridiculous not everyone is a addict or should have to worry about their medicine all I hear is DEA and FDA they need to stay out of it doctors go to schools for many years why should the police decide if a person is in pain or not and if they need pain medicine or not we are supposed to live in a free country but we are slowly but surly loosing our rights to anything including living a normal pain free life
Molly
I have had cervical fusion with bone from my hip, thoracic laminectomy and am now facing open lumbar fusion with screws and rods with NO PAIN MEDS. Same surgery as 25 years ago when pain meds were available,but now suddenly this procedure is PAIN FREE! Tylenol will be offered except that my gastroenterologist has said I have maxed out my digestive tract with Tylenol and ibuprofen.
So, I guess my only option is a stick to bite on! This treatment is barbaric and a class action lawsuits suit against CDC and state government that allows this should begin. I also suggest taking away pain meds from women giving birth, novacaine from dental work, fixing broken bones etc. If spinal surgery is NOT PAINFUL then I guess no one else can feel pain either! How is it that some pain is legitimate but others are not?
John
United States
I have been through 6 failed lower back operations damage nerve scar tissue on nerve 5 deterioration disc upper back 3 severe multiple bone spurs sticking me in my nerves and 2 bulging disc in my neck and another bulging disc in my lower back pain going down my right leg and my right leg is very weak keeps giving out on me.
I need both kneese replace going to need much upper back operated on my neck both kneese replace and I can only stand and walk for 30 minutes then must lay down in severe PAIN my pain doc wants to lower my pain meds that will put me in SEVERE PAIN and I will be spending most of my life laying down and with my severe depression and severe sleep disorder there is noway I will be able to handle this severe PAIN getting to be to much now.
And the government FDA CDC DO NOT CARE ABOUT PEOPLE THAT ARE SUFFERING IN SEVERE CRONIC PAIN IF THEY WE’RE THEY WOULD KNOW JUST HOW BAD IT IS I have no life now and dropping my pain meds it’s getting to the point now we’re I’m thinking there is only one other way to end my severe cronic pain DEATH!!!! and I blame all the people that have taken there life because of severe cronic pain and getting no help on the government FDA CDC and there are going to be alot more taking their own life because oh the stupid act of making pain management start dropping their pain meds. DISPICKABLE
Samantha
Sedona
If the government is so worried about people taking opioids then why are they so lax on the drug dealers and people bringing drugs over the border? What it comes down to is the government putting more restrictions on the American people. They don’t care about us all they care about is exerting control and telling the doctor’s what they can and cannot prescribe. I thought we were in a free country but I guess that’s my mistake.
ANTHONY S
kY
Not sure how they are lax? Millions of dollars of illegal drugs are seized each day at border patrol stations each day along the Mexican border, not counting amounts confiscated at international airports. Sure, they probably don’t get but a fraction of the actual amount that is shipped.
I agree with you about the prescription pain meds but don’t agree the country is lax on allowing illegal narcotics into the country, sorry.
Pain all the time
Eastern PA
And doesn’t the CDC admit in April that chronic pain patients aren’t the problem with Opioids. Oops!!!! So what you you going to do about it CDC. 6 years I have suffered because at the age of 44 I couldn’t possible be in that much pain. I played softball for exercise did PT had surgeries ended up tearing muscles and ligaments as I believe the hospitals used Flouroquinalones (so) on me for antibiotics and they wreck your body. Something must change my PM lost his license and I’m up a creek. The only way I can get anything right now is by tapering off. I was on 20mg sr oxycontin 2 a day and 7.5/325 oxycodone 4 a day.
I am now taking 15mg sr 2 a day and 5/325 4 a day. This has been the worst I have felt since my pain started. I have AS, DDD, both knees repaired, my left hip and ankle repaired. My Abdominal muscles sewn back together, injections out the wazoo,herniated L2, and now some type of auto immune disease. I take Enbrel I see no difference was on humira did not help. More and more Dr’s dont care. I take CBD and Kratom but that is expensive and I am not sure it’s working. PA is a year away from MJ but I get some every now and then it helps way better than THE CBD. Answers better come soon I am sure the suicide rate has gone up since this crack down. May they rot in hell for what they have taken away from me with my wife and two young children.
Raven
Arizona
Here’s a question, if you have a medical condition that specialists in the field of your disease agree that prescribing opiates will help ease your pain who gives the pharmacies the right to over rule you and your dr, to not fill your scripts for opiates? And they don’t know anything about what you have? CRPS is rated higher than cancer pain on the McGill pain scale. I’ve never had cancer pain and I know it really hurts those who have, so I’m not belittling those who have.
So, why should they have a say as to whether or not I have to suffer because it’s not cancer. Or any other well known disease that creates that vicious pain cycle we go thru. I hate taking vitamins let alone the crazy cocktail I have to take to live. All the medical proof is there that I have CRPS and that it is painful. I left the -40 below zero winters of Chicago to Arizona for the dry heat here. I didn’t ask for this disease. I don’t want to be on meds but I am a very responsible person and patient and my drs know that.
Unfortunately, you can’t fix stupidity. It’s hard to keep going sometimes but I don’t have any other choice. CRPS does not define me as a person. It’s what I have. I think that says enough in itself. We as a people have to have a way to protect us! If they have something else that will help all of us with our pain, then do it. Don’t punish us!
Nana
Earth
I have sciatica, fibromyalgia, endometriosis, osteoarthritis, and rheumatoid arthritis. I am a 51 year old female. My doctor was prescribing me hydrocodone 10/325 and I could take up to 6 per day even though I never took that many. I was on this medicine for over 4 years and never abused it or became addicted to it. I was dependent on it for my pain only. My doctor suddenly took me off this medicine about 3 years ago and I have suffered daily since. I now have depression and anxiety due to my pain and not being able to work or even do daily routines. I am in bed 80% of the time each day because even exercise is excruciating for me. Over the counter meds do not help and Tramadol is a joke.
But while I suffer daily with zero history of abuse, I know people that are mentally unstable, have a history of abuse, and have criminal records of selling their pain medications and their doctors have absolutely no problem prescribing them with narcotics. One person is on oxycodone and went to the ER for pneumonia and they also gave them hydrocodone on top of what they already have and this person is a convicted felon for selling their medication.
So, please someone tell me what is really going on here that someone that does not ever abuse meds cannot get the meds they need but a person with a mental illness, history of drug abuse and a felon (all same person) can get whatever they want? Maybe they just want us to kill ourselves off because sometimes I feel like death would be easier than suffering 24/7.
Chris
Meridian Ms
I have had 3 major back surgeries due to a 30 ft fall on an offshore drilling rig. My last surgery was the most in depth and painful. They had to insert 2 spinal cages, 1 spinal clamp, 1 titanium plate, 4 titanium rods and several screws. I am only 42 years old and am raising a 1 year old son. Ever since all the new laws dealing with opioids went into effect, it has been a nightmare trying to get the medication I need on a daily basis. My insurance company is tired of all the drug screens they now do, and having to see the Dr every month as well. Also, this gets very expensive on my end because of the co pays every month now and a lost day of work. I make $210 per day and it’s hard to lose that every month now. These so called law makers and watchdogs should try to live in my shoes daily and then have someone else tell them they do not need the medicine, or that they must miss work every month now to see a Dr. I hate living on medication daily just so I can be productive and function with my wife and son. Also, I don’t want my son growing up seeing me take these pills for the rest of my life, but we do what we must do to survive and have some sense of a normal life again.
Cheryl
Alton, NH
You are so right, I am a 57 year old female, I suffer from chronic back pain, ( failed back surgery) as well as painful nerve condition on my hands, the water hurts to touch, I don’t have any history of drug or alcohol abuse, but because I lost my son and grandson, they won’t write me meds to help me cause I am grieving, But I know plenty of drug addicts that get prescribed drugs, and trade for heroin, I have called to alllert them, they don’t WANA even do a pill count, If we are grown adults over 50, believe me, are days of getting high are over, I’m tired of being in constant pain, waking up in pain, going to bed in pain, I know people that aren’t even in pain, and neverhad a surgery anywhere and they seem to fool the doctors, I am sick of it,
Pam
NC
This is the worst mistake the government can make for people suffering from Fibromyalgia, Lupus, Degenerative Joint Disease, MS! This is so unfair to people whom want to live their lives as pain free as possible whom are already dependent upon these medications, are med compliant and are in need of these medications to function to their fullest ability possible.
The government allowed these medications, the physicians were informed to write such meds for relief for chronic pain sufferers and now they are recommended not to write the scripts!! The amount of pain and suffering as well as major depression has come into play from this uncalled for so called boo boo from the Fed goverment.
Vickie Fisher
Tennessee
I too have been reduced to feeling like a criminal I have beenon oxycontin oxycodone for 5 years due to a horrific car accidentI am now treated like a common criminal I do not know what to do last month my workers comp board stop all medication and I had to Bare knuckle withdrawal of both products and have been reduced to not getting out of bed what can we do for the people that are severely injured I’ve had a disc replacement getting another disc replacement a rotor cup tear in knee injury from the car accident my doctor’s just look at me like I’m an addict it’s so ridiculous I don’t know what to doI have never abused my up Wade’s I have never done anything wrong I’ve been reduced to having pill counts every month down to urine test it’s crazy and they look at you like your trash I cannot stand it need help 56 year old grandmothernever been on any pain medication a day in my life before this
Murphy
Washington
Boy, I feel like I’m in the middle of the road with this conversation. I used to be an Addictions counselor, so I know the effects of what various drugs can do. I’m 65 and I’m experiencing severe sciatica due to a herniated disc in the L5-S1.
I was given Dilaudid and took it for twelve days and then was prescribed Gabapentin and only took 3 pills of that before it messed with my mental state and balance and I got ticked off and stopped the Dilaudid and that.
I experienced withdrawal after only twelve days! During that twelve days I’d decreased the Dilaudid to twice a day and STILL went through withdrawal! I still have some left and I’m sure could have it refilled if I asked for it. Now I take liquid Oxycodone and I’m trying to stop it. What scares me is I get sciatic flareups only at night which is when I have taken the Oxy. So what concerns me is that is the pain ‘real,’ or as a result of not having the Oxy which the body grows accustomed to. I’ve been taking a naturalpathic doctor’s compound to detoxify my liver as I was to have disc surgery but because the liver enzymes were high, they wouldn’t do it, so now it’s the waiting game. I identify with you who are immobile because of the pain, as I am too. I also am so fearful of that rebound thing with drugs that I don’t want to be dependent on them. So all this said to say, I think drug monitoring is important because of what happens with addiction. Yet, some who have been on it so many years have altered the brain chemistry (through no fault of their own) to where they HAVE to have it. It is a Catch 22, but I think meds do need to be regulated better. I’m constantly doing my own research and fnding info that doctors aren’t aware of. We as society definitely have overprescribed and that’s why we’re in the situation we are today.
Tina
South Carolina
I agree I think we need to stand well sit or lay down together. We need to fight back. That being said it is hard to do.
I struggle to get thru the day just doing what little I can and some days and I mean days at a time I can’t get out of bed. I was ran over by a car at thirteen, numerous car accidents that some were my fault others weren’t. I worked until about 5 years ago. I had a three disk fusion done on my neck and many ruptured disk, stenosis etc. I worked till the day before my surgery. I never was able to return to my job.
I have went thru depression, thoughts of not wanting to live like this etc. You name it. I have good pm Dr’s that realize I am not an addict I have real problems. Well it started today that the pharmacy called my Dr and said that I needed to come off of one of my prescriptions. So we picked one and we will see what happens. It is anxiety medicine that I have taken for close to thirty years because of anxiety. I am scared that this is only the beginning.
I do feel that I have my pm support and my practitioner also. We need to stand up as a group. Our stories need to be heard. I say we go to some of these weekly news shows. The ones that are reporting about the deaths from opioid abuse. Well let’s talk about the lives of people using opioids. The lives we won’t have if they keep messing with our medication.
I believe a lot of it has to do with our lovely insurance companies not wanting to pay. This is bs. Or government has more things to worry about than this. Also some of these high profile deaths like Prince, Michael Jackson, etc were not using there meds right. They had twenty four seven Dr’s and that too had made it bad for us. I think if we don’t stand up and get our stories out there then we will be forced to live in pain and laying in bed. I don’t want to live like that but I also do not have the energy to fight but maybe if we all do it together we can get something done. We need to write letters to the people we have voted in to office. We can be strong not as one but as one group of many.
I realize we can’t go to the streets but I think some of these TV shows that are putting out all this negative information should hear from us. People if we don’t do it together it won’t get done. Plus what is the worst that is going to happen. They take away or meds. Well they are already doing that. I could go on and on but I hope we can come together and raise awareness for those of us who really need medication to have some resemblance of a life because if we don’t then our lives are over. We need to do something to raise awareness. There are alother veterans that are in threes same shoes, lots of people of different walKS of life. We are all fighting for the same reason and we are all the same.
Coral
Portland, OR
I have degenerative arthritis, fusion of lumbar 4-6. I have scarred tissue that gives me non-stop pain in my left leg, I have bone spurs in my spinal column in my cervical spine, Pain medication/narcotics takes the pain away without the usual side effects that people “normally get” Because of these stupid new guidelines ALL OF MY DOCTOR’S think I am lying and just “looking” for narcotics. I AM NOW A CRIMINAL BECAUSE THEY THINK I AM JUST LOOKING FOR A HIGH AND NOT TO BE ABLE TO DO ANYTHING. I do one thing like take a shower and the pain gets so bad I pass out. How is this fair???
Ruby
Florida
Those of us that suffer legitimate chronic pain should not be penalized because of others that choose to abuse pain medication. I have suffered from chronic pain in my lower back due to a work injury. My condition is degenerative. Before I went to the hospital, because I couldn’t take the pain anymore, after work I would drive home in tears because of the pain. When I was prescribed my pain medication it was a big relief. Yes I tried everything prior to taking this medication and nothing worked. I am now able to function better and be somewhat more productive in my life.
So as others have said if you’ve never suffered from chronic pain, you can’t really understand what it’s like.
Elizabeth
Va
I am a female 46 years old that has been diagnosed from my family doctor with chronic pain from degenerative disk disease, bulged disks in my lower back, osteoporosis that my family physician that said my osteoporosis was as if I was in my 60s. I have had multiple tests and scans but the bone scan I had done showed how bad my back was with these problems. If I wasn’t on my pain medication I could not function with daily activities. I even give a test try and went without my medications for 3 weeks. It didnt get any better. I was miserable. I couldn’t even keep up with daily activities.
I am also on xanax for my nerves for panic attacks. I’ve took panic attacks since I was 15 because of the circumstances I grew up in as a young child. I didn’t finally turn to nerve medicine until I was in my 30s and pain medication a few years later. I’ve been in several car wrecks that wasn’t my fault. I also used to ski alot and damaged myself alot plus several of my family members older than me…aunts and uncles that have bone degenerative disease. I’m like other people that I have read their stories…WORRIED! I FEEL IT’S NOT FAIR TO THE PEOPLE THAT ACTUALLY NEEDS PAIN MEDICATION!
It’s sad that people that are only using these meds to get high, plus hurting the people that actually needs it. I do drug tests and they come back fine. I don’t have a problem with taking a drug test. But I do have a problem for meds taking from people that needs them and having to suffer for other people’s stupidity. Thank u.
Vickie Fisher
I know I’m experiencing the same thing we have no recourse I was reduced to going through withdrawals after being on opiates for 6 years with nothing to help me it was like payback punishment from these doctors something has to be done I can’t shower I can’t move this is so ridiculous my quality of life is gone
Ed
North Carolina
Is there anything we can do to stop them from punishing those of us who rely on narcotic pain medicine to be able to perform the most basic functions that we have to do. Please, someone tell me because I cannot function without my medicine.
Anna
LA
It’s bad we have to suffer because of the ones who want to use it for recreational reasons. They know it can kill them so let them do it ,we shouldn’t have to be in pain for them. I hope the people who want to control it for those reasons find out how much we have to suffer because of the people that use it for other reasons than pain.
DLB
TX
I am a 46 year old female who has suffered with Ulcerative Colitis for 20 something years. In January 2016 I came down with C DIFF Colitis and while in the hospital they started me on Hydrocodone. I am, unfortunately, highly allergic to Steroids, which is what is used to treat flare ups for UC. Anyways, upon leaving the hospital I was given a script for Hydrocodone and made an appt. with my Internal Medicine doc. He has been prescribing me Hydrocodone ever since my hospitalization. I am not a junkie and follow the directions that are on the bottle. For over a year now, I can finally lead somewhat of a normal, pain free life. If my pain meds are taken away from me because some junkies like to get high, I don’t know what I’ll do. May God help us all and let us continue to receive the meds that help us to function and live a somewhat pain free existence.
Patricia
Louisiana
I believe that the Government needs to take care of what is happening to the United states of America with Donald Trump being president he has the DEA FDA an the CDC distracted on medication that people need to be able to be a part of Society all your doing is going to cause is law-abiding citizens of United States of America that are responsible for their on actions that obey their doctors orders should be left alone because all your doing is causing people to take their on life because they can’t take the horrible chronic pain that they live with everyday an to take the medication that helps them get to take care of what little things that they can with their pain medication we are still law bidding citizens that pay our taxes an for Government to basically stick their noses in the privacy of our on life home I thought we lived in the Land Of The Free an I should have the right to treat my pain the way I see that is best to me an I do believe what the DEA FDA An the CDC is doing is against my constitutional right to have my decision on the care of my pain just like being in a hospital I even have say about my care
Christopher
Akron Ohio
I’ve been on pain medication since 1997 because of 5 ruptured back discs and 4 ruptured neck discs living a normal pain free life because of pain medicine. Then my doctor gets arrested for fondling woman in his office and they close his office and let me with no where to go. Since 2013 no one will give me anything. Every Doctor thinks your just looking for pills. Well I had to medically retire from my job after 28 years. Had over 20 back injection shots over 2 years with no avail. Physical therapy made it worse Now from laying around in pain for 3 years I got blood clots in both my legs and lungs and almost had to have my right leg cut off. The hospital said it’s because I’m not doing anything and I need to go on pain medicine so this will not happen again. No one will still not give anything. These doctors destroyed my life and should be held accountable. We should all file a lawsuit over this because this is no way to live.
Jerry
South Carolina
I am a 58 yr old man that has suffered with degenerative disc disease and severe pain for 16 yrs . I am currently on 30 mg ms contin twice daily and 50 mg tramadol three times daily . I just left my pain mng Dr who now informs me they are not going to give me anymore tramadol or increase my morphine which is far from the max dose . My anyone with severe lower back (sciatica) knows that it is a living nightmare! This particular Dr insist I do injections but I’ve done it so much that it worries me about what the steroids are doing to my cartilage.
I just don’t get it why they are making people who deserve to be treated correctly are made to suffer!!! It is my body and my choice and I’m sick of Drs. who play God ! I Am Not a Drug Addicted so Please quit treating me like one !! I am praying for all you people who have to go through this mess. Thank you for somewhere to vent my frustration!!
Teresa
Virginia
Yes, my thoughts exactly. Doctors oath, first do not harm.
I think about suicide at least once a week because I cant stand the pain I am in. A huge number of people in Chronic pain need to March and give speeches to Congress and the Senate. They are killing us.
k
kentucky
Have already done so and I believe that prayer is now best option for all.
k
kentucky
When are our Legislators going to help all the innocent people whose lives have been destroyed by all of this hoopla? Dear God please hear the problem!
Deb
Arizona
The new laws have really created issues physically and financially for my husband and myself.
1st. Our primary physician, who we have seen for over 20 years, an internest has been told she is writing too many prescriptions for class 2. She has mostly elderly patients in chronic pain and many other issues. Now it is best for her if she just doesn’t write any class 2 as they are bundling her with pediatritions and other physicians that do not care for the same kind of patients she does.
We still have to go to a primary physician for everything else, BP, theyroid, cholestoral and I have internal issues. Now instead of having 1 physician to get my pain meds from I have to go to a pain management place which does not want to prescribe but the bare min. so that means our medications are cut in half. We are both in severe pain so we are not able to lead any kind of life. It is bad enough to not be able to work after 40 years of working, that now we are treated as criminals.
We have never abused our medications. Now, we have to get steroid shots that are very bad on the heart and we both have heart issues already. And you are only allowed 3 shots in 1 year. so if you need a shot in your neck, shoulders, right and left lower back, both knees and both hips your are out of luck. God forbid if you ask for pain pills to help you with the other issues. Please there must be something we can do about the new laws that are hurting our primary physicians and ourselves.
Paul
Truckee, Ca 96161
It is unfair to punish those of us who through no fault of our own find ourselves in chronic pain because of other people’s abuse of drugs. The government should have no business interfering with my doctor and myself. The government is taking away my right to happiness and has no Right interfering with my life.
DLB
TX
Amen Paul, Amen. May God help all of us who suffer from chronic pain, everyday.
Justin m
Pennsylvania
As i sit and read this sad stories i feel obligated to tell mine .Both me and my wife are on Social Security Disability Benefits .I have been on Social security since 1997 due to a condition called complex regional pain syndrome ,It is incurable ,has deformed my right ankle and foot .My wife has fibro which is probably the worst thing a women could have .She has pain like me from about 20 minutes after waking up which continues through out most days I never am not in pain.My pain is more like an electric shock that burns down my ankle into my toes .The pain was so bad on many occassions that i thought about and tried to cut my leg off from the ankle down to just get rid of the dam thing.This happens despite the fact that for the last 18 years i have been prescribed and taking 80 mg of extended release oxcycontin 4 times a day along with 5 mg of oxcy ir 3 times daily for break thru pain.My wife sees the same doctor as i do and he prescribes her fentanyl patches at 50 mcu ,she gets 3 boxes of 5 in each box .Each patch lasts 3 days .She also has been prescribesd dilaudid 4mg a4 times daily.
Besides thiswe both have multiple herniated discs down the mid back area down the bottom o f the back . We both begged the doctor to try to reduce the meds and change the meds to what the doctor called their morphine equivalence.3 months ago he said he would do this for us in the most compassionate way possible and as slow as need be so as to cause us the least amount of problems .He also 3 months ago wrote me a referral to have an MRI for my neck which has bothered me since a 72 year old broadsided me 18 months ago .I was having so much pain in the neck that it was affecting the way i was tilting my head in a certain way and then caused me to lose the use of my left arm.
Because of my disabilities it took me almost 10 weeks to just schedule and go get the mri and the mri office is less then 1 mile from our house .It literally was the 1st time in 10 weeks where my pain subsided enough to where i felt well enough to be able to leave my house long enough t get this Mri.Well today at an appointtment with out any warning despite the mri showing that i have 3 additional herniated discs in my my lower neck and another higher up on right side of back out of nowwhere he said that he was giving us 3 months of prescriptions after that he said he no longer wants to treat us due to the heat he said was coming his way.He said that Because of Newjersey passed a very strict law regarding opiates being prescribed that he isnt going to write us any more schedule 2 meds at all.The problem with this is that we live in pennsylvania not Jersey and i said to him why this law would effect what he does with us.He staed that he knows its coming to pennsylvania down the road and that was that.He feels no obligation to find us a new doctor that would take over our care.I asked him to recommend us to a pain management doctor he knows since we would have a hard time finding a new doctor .He said no we needed to find the new dr and in 3 months or else we would do without.
I told himthat this makes zero sense ,that he is obligated to since he prescribed us the meds for 19 years .He then said that its not like he was making any money from us and that by law he only needed to give us a months notice .I said why are you bringing up what the law is when you have a moral obligation to help us and you said you would use compassion and take as much time as needed .He said i changed my mind and dont want to give anyone the chance to look under the hood and then said that he thought that there was a pill pussher doctor 2 miles away that he thinks for 200 dollars cash will do it.At this comment i started to argue with him for even insinuateing we go there .I told him that we have seen him a total of 360 times over this time period so to say something about him not making money was crap.It was him who said we only need ed to see him once every 3 months since he knows we aren’t druggies ,havent missed 1 appontment in 19 years and said we were the most awesome and lovely patients he ever had .What changedi n my mind is the stigma related to oxcy and fentanyl ,both of which he prescribes to us.
Raven
ARIZONA
I totally agree with you and what everyone is saying here. I have CRPS complex regional pain syndrome was diagnosed in 2005. I have had several series of stellate ganglion blocks, bier blocks, cervical epidurals, trigger point injections cortisone shots, 9 anticonvulsants, 3 antidepressants, 2 anxiety meds, 1 sleeping meds for insomnia, 7 (5 day epidural infusions with fentynal, clonodine, bupivocaine), muscle relaxers, pain meds.
I have been a science project at Rush University Medical Center in Chicago. I even have a medtronics spinal cord stimulator implanted. I also have median nerve neuropathy, myofascial pain syndrome, peripheral neuropathy, peroneal neuropathy, radioculpathy, osteopenia because of CRPS. CRPS has no cure. There is no one medication that we can take to help control the vicious pain cycle that we are put thru to include stupid drs paid by work comp to say we never had it, it will burn out, etc.
I can’t take morophone, fentynal patches, nucynta, savella. I have all the proof in the world as to why my pain dr in Chicago put me on and thru the things ive been thru just to help me have somewhat of a life. I tried no pain meds where I weaned myself off. I have come to the understanding why they call this progressive nerve disease the suicide disease. Then take our pain meds away because of addicts?
So, how can a pharmacy have the right over my pain drs to say I don’t need it. I can do medical marijuana which is legal in AZ and IL for CRPS, the federal govt will take away my 2nd amendment right with my CCW because it is federally illegal to take it. But its state legal. If people have gotten into trouble for not taking care of their kids drs or pharmacies can deny us our right to not be in sever pain 24/7.
And the USA is not the only country with the problem of medical field interfering with our right to be in less pain to be able to function. It’s hard to stay as strong as we have to. After doing the Autonomic Balance test it is of concern that CRPS is affecting my heart. So are we supposed to suffer over stupid people and govt that doesn’t care about us and surviving or would they be happier if I killed myself. Which isn’t going to happen but have a better understanding of why people do. I wish everyone who suffers easier pain days. My thoughts and prayers are with all.
David M
Louisiana
I hear all of yall greaving over the federal goverment actions on the opiods and fully agree. I had my back damaged in Vietnam working with the United States Army Special Security Group, USASSG. I handled Top Secret Communications for the CIA.
You worry about your doctors chicken shit on you because they are to scared of loosing there license. How about the oath of DO NO HARM they took .
I really feel crapped on because i voulenteer to give my life for my country going to VIETNAM to keep our boarders free to were their children could go to college to be the doctors that are too afraid to thank us patriots for the freedom it took to even be born. At one time i was on 400mg morphine a day with 120mg for break through pain. As bad as my back was, i was able to function very well everyday. I will be the first to agree the VA doctors were over medicating me. They have cut me in small doses to 60mg twice aday and 120mg oxycodone for break through. It was extremely hard on me and now i only leave my house to go to a doctor. I can not even go to church anymore for the pain.
There goal is to take every veteran down to 100mg aday. For 25 years i did so well, and now i think of ending it daily. Were is our President, he could at least tell us veterans why we are no longer important, and how you are going to get people to join the UNITED STATES FORCES knowing if they get injured, they will not be treated for cronic pain. It pleases me when someone thanks me for fighting for there freedom, but if they knew what i gave for there freedom they would cry foul, and maybe share a tear with me for my daily pain.
William P
Breckenridge Michigan
I believe DEA sould be responsible for the death suicide in this country for pain and suffering.
What gives them the right to play god with people’s health and how much money and land have they stolen and incarceration of are people on lies to the people for a profit?
This is the devil running are country, god has nothing to do with it.
Allan
usa
As can be seen from the 60s with equal rights and vietnam, only blood will get results. However I believe that’s what the people who created this mess want.
We are screwed as a people and a natiion.
Carl
Eastern kentucky
I see no problem cutting 18-20 year old people off narcotics, but my age is 65 years old been taking methadone for 24 years university of kentucky started me on methadone said i could go as high as needed they said it was a miracle drug now i am looking at a complete drug no more let some one have chronic pain they will have a different attitude.
Michelle L
I think it’s ridiculous to take away or “wean down” just because the Dr. is afraid of his or her own self! If we has pain issues, and there’s proof(MRI, etc), why take it away? Makes zero sense to me! It’s ignorant, and selfish for them to let people sit in pain!!!! Then if you were to go to another Dr./hospital, you get in trouble? If the Dr. wasn’t helping, and made you feel like a crack head or something, why would anyone NOT try another Dr?!!
Kasey
port charlotte fl
I am 25 and am not able to have any more surgeries. I am in constant pain yet you say the younger people need to be cut off. when I’m not on my pain meds I cant even get out of my chair. (Note I say chair because I can not lay down in a bed). I cant even play, pick up or do anything with my 4 year old. He tells me daily that he hates me because I cant do anything. Now when I have my meds, I still have a lot of pain but its more manageable. I have to live with a level 7-10 pain daily, and can barely walk when its so bad. When I’m on my meds it takes it down to a 6-7 which helps me to do minimal things. It’s to the point where I say that I would have rather just died on the table with my last surgery. So yes, younger people can have just as much pain as you do. No one deserves to live like this, no matter if you are young or old.
Cheryl
Where is this petition, good start, but do not know is it strong enough.
Howard
Encino, CA.
I have a couple of crushed discs. As well as disc degeneration. Add in my Osteo arthritis and some other problems and the pain level is off the charts.
So far my doctor has continued my meds as they were, but after over 3 years when I asked for an increase she said no and mentioned that “they” wanted to get rid of the oxygen I was on and give me Tylenol.
If this was not so pathetic and ignorant I would be laughing. Unfortunately it is not a joke, but for real. It will reduce my quality of life, as it will to many others to ZERO. Other then removing needed pain killers from those who genuinely need them and do not abuse them it will increase the suicide rate. I honestly do not know how long I can continue to suffer the way they want before seriously contemplating ending it. With no life that is even close to being worth living…what else do they leave for me and many other in the same position.
As usual the government is doing more harm then good. Maybe one of the group here that is in the same boat is an attorney and will help us start a class action.
Howard
Gary
Henderson Nevada
I suffer with chronic lower back pain I have torn my disk at L4L5 I have a bad case of spinal stenosis , the pain goes from my back down my left leg and into my left foot. Know my back left and right foot hurt all the time my right thigh region is know getting numb like my left leg . I’ve been in pain meds for going on 4 years everyday to have a some what normal life.
I gained a lot of weight since my injury at work. 146 pounds for a total weight of 376 ponds. I get 4 Oxycodone 10/325 mg pills a day . Hardly enough for a big guy like me and being in meds for so long. But am scared to say anything. Worried about losing what I get now. The worst is morning I barely make it out of bed. And I have to take two pills or no relief that leaves me 2 for the whole day and I’m up a 6:00AM everyday. I just learned that my insurance company does not want me at pain Managment anymore and wants my PCP Primary care position to prescribe be my pain meds. This happened 1 day before my appt. at pain Managment so I did not get my refill. I went to my PCP and was told no.
They do not describe narcotics to their patients. My meds ran out yesterday. I really do not go through withdrawals. Just st feel a little like shit but not bad. The worst is my pain I want to stick a gun in my mouth to end it. Laying in bed helps but really do I want to spend the rest of my life in bed I’d rather be dead.
It is not fair that these junkies are making chronic pain people have to suffer. Why can’t they if there so worried set of at the local pharmacy a daily release of your medication. Or something nothing why in the hell should I suffer. I’m going to see a neurosurgeon on April 4, 2017 today is March 8, 2017 . I’ll try and suffer through it. I can not even get medical marijuana which is legal in the state of Nevada due to the fact Social Security disability is a federal agency and the federal government says marijuana is still illegal so even if I get a medical marijuana license to smoke if I get caught with a drug test I can lose my Social Security disability and my Medicare pretty messed up.
These idiots at the DEA, FDA, CDC have never dealt with chronic pain so they have no idea what we go through. I pray that some kind of law is passed through help chronic pain sufferers. Thank for listening / reading my RANT!!. God bless all of you chronic pain sufferers out there I know what you’re going through first hand
Gary
Henderson
I hear you Howard. I’m going to say something but it just BS Talk, ok hear it goes, when we chronic pain suffers kill are selves they still won’t care . But before we do we go and take out the doctors who agree to take away pain meds from chronic pain sufferers it might than change for us. Ok get a good laugh.
Now for real, it is March 8, 2017. And yesterday I was to go To my Pain management appointment to get my refill for my pain meds. The day before I get a call from them saying my insurance refuses to Allen w me to go to pain Managment anymore they want my Primary Care Physician to prescribe my meds, so I went to my primary care physician.
To get my refill and she said hell no we do not stop t prescribed pain meds here. So, I lie in bed writing this while suffering. It helped some lying in bed. But trying to get out of bed after 3 hours in bed, is a challenge all in itself.
I hate suffering and I hate the way this country is going in treating chronic suffers God bless you brother I hope you keep getting your meds because when they go life sucks
Malgorzata Mackmull
South Carolina
I have been on same dosage for 5 years. I receive an extended release & one for breakthrough, which allows me to tolerate the pain level where I can do basic stuff, w/o meds my pain is through the roof. I have chronic back pain (car accident). I take regular urine testing, even a DNA test to show how my body materializes the meds & which ones work best for me. What else does DEA,CDC,FDA want from us people with chronic pain. We are not responsible for those that take the pain meds for fun, which I do not see any fun effects except my pain is minimized to a level that I can tolerate & can function. Now You DEA, CDC, FDA are basically making all of us in pain bed written, that means for most, better get ready for DISABILITY like myself. We’ll be forced to rot in bed as life goes on by. This is not acceptable.
I have given up so many things that I can no longer do or are afraid not to irritate my pain. The stress alone from my doc lowering my breakthrough meds is making everything worse. Since my lower dose I’ve been living in bed on ice in pain, what kind of life is this? My husband is having surgery this week & I have 6 rescued dogs (FurBabies). I wonder how I’m supposed to take care of them when I lay in bed in severe pain crying. My house is a mess, I don’t socialize. Why don’t you put someone with chronic pain that can fight for us in pain. You should leave the people that trust their Dr. to help manage their pain. You should look for new patients on pain meds or fun, not us that have been under Dr. Care for years. Same dose, urine, DNA test, we are like guinea pigs. Stop, leave us the responsible people alone, you’re taking the last thing that we have to an already very restricted life. Why live at all? Your pride, purpose is gone.
Mya
Greenville SC, Burlington VT
I am lucky thus far in that my treatment has been uninterrupted. I have had numerous denervations, via burning and freezing. Steroid injections, physical therapy, cold heat, rest, exercise… Too many discs/areas are herniated and deteriorated for surgery. And the accompanying spinal damage makes it unlikely I’d get
relief.
I’m lucky to have my medication still prescribed in a stable way. …but I live each day in fear that will change, about my medication in particular! I am prescribed FENTANYL Patches. Everyday I see articles about Fentanyl overdose deaths and what a deadly drug “this new Fentanyl is”. It’s not a new drug. Only injecting it recreationally (or cutting your heroin supply with it before dealing it to unknowing users) is new. The “street Fentanyl” is coming mostly from China, where it’s easy to get. Of course the DEA blames prescription pain patients, as if we could acquire enough OR be MOTIVATED to flood the streets!
As if that’s not bad enough for addicts, China has made it easy to acquire carfentanil (an elephant tranquilizer), a sister drug to Fentanyl that is 100x stronger. Addicts are also dying from unknowingly having carfentanil mixed with their heroin. It is as easy and legal to get, right now, as an internet connection. How/Why does the DEA not connect these two substances to the same source, when they’re available in the same catalogue from China? No idea.
The only real piece of “advice” I have, if your Doctor can’t do your meds anymore– I see an actual Physiatrist
(fizz-eye-uh-trist). A M.D. who is specifically educated and trained in the treatment of physiology, pain & rehabilitation (the way a cardiologist is trained in treating the cardio-vascular system). It’s what they DO. They feel confident that they KNOW whether you need meds and which ones to give. MANY Internists, Family Practioners, or Primary Care Providers are VERY intimidated by the DEA! And why not?
Gary
I hear you, I’ve been in chronic pain for 5 years now on pain meds for almost 4 years. I get 4 Oxy condone 10/325 a day. I gained a lot of wait since my injury 146 pounds to be exact . I weigh over 330 pounds so 4 pills hardly dies the trick but am scared to say anything last doctor when I asked for an extra pill called me an addict and refused to treat me any more, so I’m scared to say any that by anymore.
These addicts that use these pills to get high are making Chronic pain suffers actually have to suffer, while they change from doctor prescriptions to a drug dealer to get there fix. So exactly what is the DEA, FDA, CDC Actually doing the prevent these addicts from over dowsing next a damn thing put him re the chronic pain sufferer. And actually turning pill addicts to Herion Addicts that’s all, making Drug cartels even richer. WTF!!!
Darlene
VA
I’m 52, I have chronic pain due to a connective tissue disorder, arthritis, degenerative disc disease, spinal stenosis, and neuropathy. I was injured in a car accident, hit head on by a driver that was under the influence. I ended up having a anterior cervical discectomy and fusion ACDF of C5/6 and C6/7 that didn’t help my neck problem.
I’m still having many problems from my neck and shoulders. I don’t want to take pain medication and I never did until the pain got so bad I couldn’t function. All I could do was sit around in constant pain and my life was basically useless. I take my pain medication as prescribed and some days I don’t take the entire dose if I’m having a better day. I don’t feel like I’m doing anything wrong by trying to control my pain so I can at least function and do many of the things I used to be able to do.
I don’t overuse my medication and I don’t ask to go up on my dosage. All I want is to be able to get my medication without feeling like I’m a horrible person because I want to live somewhat of a normal life. It’s wrong to treat people this way. I know there is a problem and something needs to be done about it but taking away medication from people who truly need it isn’t the answer.
Hillary
Gulfport, Mississippi
I’m 27 years old and a female with 3 children. This is not how I ever imagined my life would go. I wanted a big family and love children and want to be able to give them all the love and attention they deserve. I want to take them to the park and push them on the swings but my reality is that most days I can’t move off of the couch. I have a congenital defect in my spine that never bothered me til after childbirth–degenerative disc disease. I also have osteoarthritis, herniated disc, and sciatic nerve pain that starts in my lower back, wraps around my pelvis and hips and goes down both legs to my feet. I have arthritis in my joints and my knees are starting to give out. It took 3 years to even get an MRI and a proper diagnosis. I’ve tried the cortisone shots in my spine, physical therapy at home and at a facility in town. I do heat,ice, Tylenol, Ibuprofen, Salonpas patches, yoga, and Pilates stretches for sciatica and strength building. I used to be a dancer, and I have always been active. I played soft ball beginning at 8 years old until I was a senior in high school and even as an adult. But it’s been one injury and one problem after the other since I was young. I believe most of it is hereditary. I didn’t ask for this life.
I don’t want to live like this, and I’d rather not depend on any medication. I want to heal my body, and I will do anything I can to get better. The sad truth is that in everything I have tried nothing, absolutely nothing provides the relief and the same daily function that strong pain relieving medication does. I have been to numerous doctors in the past year since we moved here from Hawaii. In Hawaii I had an amazing doctor who managed my pain without any hesitations or judgement. Here doctors are annoyed by me, and they treat me like a drug addict. They are condescending and neglectful of my care. They’ve left me in pain with no medication, and I’ve suffered needlessly for so long and so has my family.
I want to bring a lawsuit against them but there are too many doctors to count that have treated me this way and made me into a desperate person. Where to turn now? The street? Like someone else said, I don’t want to die. I have never abused my meds. I’m just a person. I’m a human being with a disease that’s totally out of my control. I’ve been treated like a psych patient whose pain is only in her head, even with well-documented history of my diseases and treatments.
Am I person anymore? It doesn’t feel like it. I feel so helpless and hopeless, and the only psychological problem I have is that I can’t receive the treatment I need, and so I can’t care for my children or husband the way I so desperately want to, and I am becoming extremely depressed because of it.
I should also mention that I’ve been going to school for a nursing degree but had to take a break because I can’t stand up for long periods of time anymore. I have a medical assisting certificate, and my goal one day is to finish school and have a career and provide for my family but I don’t know if I will make it anymore.
mark
Detroit
Was just refused Rx for 120 7.5/325 at Kroger. They will not fill prescription for chronic pain anymore. This is a double-whammy because our insurance is through Kroger, and they don’t allow us to fill Rx anywhere else. I have been taking same Rx for a number of years. My doctor sees no reason to stop, so where does the pharmacist get the right to do so?
Malgorzata Mackmull
I am right with you. I don’t have the same disease as you but the pain is the same issue. I tried everything suggested by the Dr. with no avail. Like you, I’d rather do without meds, fix the problem. Since meds are temporary, but w/o you’re worthless. I don’t have 2 legged kids but have 6 rescued FurBabies. I will sign a PETITION or whatever for DEA to target the real issue. People without any lengthy history to get these meds that they use for a high. I don’t get a high but do notice a relief of the pain. Still have pain, always, but with meds I can tolerate a certain level. I didn’t ask for the person to run into my car & change my life forever. It should be determined by your Dr. what you should be prescribed. The DEA needs to allow for legit pain management. Dr. Help us.
DLB
TX
I don’t understand why Kroger is doing this to you? I get my pain meds there and have never had a problem. Sounds like the Pharmacist is just a jerk. Good luck.
Shasta
Sc
I work in the medical field and I will say this; I myself have been on pain med for about 4 years and I cannot work with them. No abuse, I don’t want to die, other drugs mixed with pain meds kill people and yes some people take way to many to get high. But I think most of these people are mixing with meth. I think and speak my mind strongly about this. They may be save one group of lives and kill our group. Yes it’s very scary every time I have a Dr appointment now.
Mya
SC/VT
If your Pharmacist finds out that you are “double dipping” (ie getting pain meds from more than one Doc and trying to fill them) s/he has the right not to fill your meds. However, if you’re just routinely filling your meds, they deny YOU- then sell narcotics to anyone else…THAT’S illegal.
I have been a “chronic pain” patient, in VT & SC, for over 12 years. I’ve taken Fentanyl, Morphine, Dilaudid, you name it- I have a severe disorder. I have NEVER been refused ANY medication. Occasionally I’ve had to wait 2- 3 days for a medication to come in if they had to order it. This is at various pharmacies: Brooks, CVS, Walmart, etc.
Malgorzata Mackmull
Somewhere in Augusta
I think people with pain don’t get a “high” only the ones that don’t suffer from pain. The experience is totally different and if you have no pain there’s a “high”. I don’t get that affect, I get pain relief.
Dawn
High River
I’m 56 years old and I’m dealing with pain all the time. I wake up and I’m bend over. I don’t take pain meds yet but it will come a day I will be. I really hope not. But I do know people that do suffer with pain all the time like my mom she is 78 and goes to get a shot every three months. And I know she needs this I know there is a lot of people who abuse this. But taking away what helps it will only make people go to the underground and who knows what they will get. Remember probation look what happen too some people when they got bad booze well this could happen with this but worse. Yes there has to be something that needs to be done. But taking away something isn’t going to solve the promblem.
Cheryl H.
ut
YES – I believe in a class action lawsuit! I am in. This is not ok!
Hillary
I’m totally for this. We need to fight back and fight for our healthcare.
Cheryl
Vermont
I know, you are absolutely right about “Class Action Law Suit”. I received a phone call from my physicians office an hour ago wanting to set to appointment to discuss my pain meds. We know what that means. I currently have degenerative disk disease with osteo arthritis, stage chronic 3 kidney disease. I have DVT, high cholesterol. blood thinners, which I will need to take the rest of my life.There is not a day that goes by that I can get out of bed without pain as you are all perfectly aware of my life. If I could I would rather have no pain, just to be normal again and not have to rely on pan meds for some quality of life. Sometimes I think death is more preferable.
I am seriously thinking about taking all my medications to the doctor’s appointment (which are substantial) and giving them back to the doctor. Of course I know I will die without these meds eventually, Any ideas people? There must be someone out there with ideas on how to handle this situation.
cheryl
ut
So how do we as people with chronic pain and very well-documented health issues get the FDC and DEA to change their policy? I was told in my doc’s appt yesterday that now I get to choose between anxiety or pain. No more could she prescribe my klonopin with my pain meds – WHAT? So she gives me an “alternative choice for anxiety.” Ha Ha! This combination has been working for me for 17 years. How dare the DEA and FDC decide what is good for me. How about they let my doctor just be my doctor!
Can we as a people petition these people that have no idea what they are doing to the ones that will truly suffer?
thomas
sagle
My wife has scleroderma, which leads to other diseases , scoliosis, crohn’s, tissue hardening, ect.
She was on 5 methadone per day. that allowed her to cope with her pain. now she’s being forced to survive on two. She can barely use her hands because of the hardened fingers which are very painful. she can barely walk because her spine is severily twisted . Her pain level went from a 2 to 5, to a 7 to 10, since her meds were cut back. the doctor does not know what to do for her because her hands are tied. there seems to be no compassion in our government system. these people in pain make people around them very stressed out. having a life with pain and not being able to get relief in my mind is criminal .
Anthony D
willow grove pa
I’m from PA the suburban rural areas. I’m 39 and have been on pain meds, particularily oxycodone, for 10 years from injurys in my spine at 29……also gout in my knees….irratble bowel syndrome….diabetes….uretheral srticture and a broken pinky finger that healed on its own swells up all the time…without these meds id really be in pain.
Laura
DACULA ga
I have MS, myasthenia graves, mastocytosis, chronic fatigue. Oh and had non Hodgkin’s lymphoma for 31 years with 6 surgery’s. I fell in my house and went down 23 stairs and broke 1 ankle that had to have hardware Installed. Then a auto accident where someone hit me in the rear of my car, pushing me into another car, and my right knee went thru the dash.
So therefore I HAVE pain!!! Oh there is more, I passed out from pain, with no medicine and hit back of my head on coffee table. That one little fall earned me 3,4,5 ,& 6 vertebra were broke, so I have the bionic neck.
I just wish, I could throw all of this pain on DEA, and my PCP. Just for 1 hour they should feel the pain I am in. My PCP diagnosed me with Whooping Cough which last about 6 weeks, she only gave me 1 bottle of cough medicine. I went 5 days where Only slept 9 hours in 5 days.
Somewhere I heard…..Doctors are suppose to do no harm. Well this did some major damage. Yeah I forgot, I was sitting on my sofa watching TV with my husband. Something popped inside of me. I have a have surgery a 8×8” mesh put in my upper abdomen. The coughing tore part of it loose.
So to all the people who say we don’t need pain medicine. Live 1 day in my shoe.
Something needs to be done ASAP, some of us are suffering. Maybe a class action lawsuit.
Charli
Western Slope Colorado
I’m a veteran who has chronic pain from several different injuries. I’ve been on opioids for over 20 years and have never sold, misused or otherwise abused my medications. Yet the VA treats me like an addict. My meds are counted, and I’m subjected to urine tests and blood tests to make sure I’m not selling my meds.
The VA has cut my pain meds in half, telling me that I’ll be fine. I’m not. Every day my pain gets worse. I use yoga, stretches, meditation, and many other methods to deal with my pain.
Before (my meds were cut) I was able to do things, and now I’m unable to even care for myself. When the pain gets too bad, I will do the logical thing, I’ll kill myself. We need to stop this war on drugs. Since the DEA can’t get the illegal drug dealers, they’re focusing on us. There will be a special hell for the people who enforce this idiotic policy. They could learn something from Portugal, where they legalized drugs 16 years ago and have solved many of their drug related problems.
Dena D.
Daisytown PA
I have a rare tarlov cysts in my spine several around 13 or so. This is extremely painful, as it effects my whole body. It affects all the nerve roots of your spine. The NERVE ROOTS are incased in spinal fluid and over time cause perminate nerve damage and organ failer. I hurt 24/7 days a week.
I was on Morpine due to the fact that cannabis is passed but not ready for the public yet here in PA, which is one of the drugs that helps me the most . . Centerville Clinic ( Yablonshy) of south west PA suddenly stopped all pain meds.
My Dr was told he could not write anyone anything. This is so unethical in my eyes. How can you just stop people who were on meds like that… I’m tired of medical pepole looking at me like I’m a addict or something.
Yes, they are out there but not everyone is one… I hope the peope who make these decisions have pain and see what we folks with Pain go threw everyday…. for me, it’s a quicker death sentence now from the pain.. and my condition. So thank you for making my life Hell again…cause we can’t get meds.
Julien
Georgia
The same CDC guidelines urges pain clinicians to NOT test for THC and if they do find it in a drug test that the clinician does nothing about it. People who augment their pain management with marijuana generally use 50% less opiates… HOWEVER, I have pointed this out to my clinicians and doctor. They pay attention to the new restrictions but ignore this suggestion from the CDC.
Today is 11/29/2016 and today I asked a pharmacy worker why they are not accepting any new pain medication clients. I figured it was paperwork and BS from the government (and it may be) but she said it is because the DEA is cutting the supply of narcotics by 1/3 as of January 1, 2017 and there will be a supply problem.
To me this shows the unacceptable stupidity of government. ALL this will do is increase the flow of untested, unknown painkillers on the black market, because where there is a demand there WILL be a supply. Their approach is backwards. They seem to care more about some poor drug abuser than they do about law abiding citizens with legitimate needs, it is insulting to put it politely. I hope Trump and HSS Secretary Tom Price will have better sense and make these “regulators” back off.
G
Alabama
We know we will never be pain free. It turns it down a notch or two so we can get out of bed. Until you go through what we go through, L 4&5& S1 fused, cervical fusion, ankle fusion, CRPD and fibro most compliments of the US Navy, you will NEVER EVER know what we feel. This whole article makes me feel like you are making fun of us. Really? With the depression that gpes along with not being able to do anything, this really make me feel so much worse.
Dr. G Cavalli
Bug
Nc
This reminds me of the gun laws. They go after law abiding gun owners instead of the criminals. This is insane and this WILL bring about consequences that they WILL regret. There will be more deaths and suicides from this than the ones they think they are addressing now. God help us. I pray trump reverses the damage these stupid alphabet agencies are doing.
Cindy
My husband sustained a severe back injury in 2006 resulting in 10 back surgeries/spinal cord stimulator/injections. He also tried the TENS unit without relief. He also went to physical therapy which made things worse. He is unable to work and has been deemed disabled, which depressed him severely. This was a man that worked a full time job as well as part time jobs and now is doing nothing, due to his severe low back pain.
His doctor sent him to pain therapy, and those doctors placed him on Methadone and Oxycodone, which do nothing for his pain but screw up his mind. He is in so much pain that he can do hardly anything anymore. I am a nurse and realize that, yes, there are lots of drug abusers out there. These are the people who make it so hard for honest people suffering from chronic pain.
I told my husband that I hope that one day soon they legalize marijuana for chronic (severe) back pain since no physician will put him on a pain medication that will give him some quality of life. Not only has this put a lot of strain on my husband but if affects me, too. I just want to see him smile again and be able to do something simple and not be in severe pain 24 hours a day, 7 days a week!
tim
new jersey
I hurt my lumbar spine on the job over 12 years ago and have had a 3 level disectomy, a 3 level laminectomy, and a 360 spinal fusion. I’ve been on pain meds now for 14 years and have in those years went through the whole full detox thing and I can tell you that after the detox was done, the only thing left was severe severe pain!
Alot of people an doctors just assume your an addict or don’t really need the meds being prescribed to you. I have been on all and every pain med that is out today and I still taught about suicide on more than one occasion because I was and still am in constant pain from the time I awake in the morning till I fall asleep at night…
I was like 26 years old when I got hurt, I was in excellent condition.
The 3rd 360 lumbar spinal fusion fixed the specific l2-l3, l3-l4, l5-s1 area but left both legs from the knee down feel like cement and now have a constant throb, and above the fusion locks up extemly often. So from l2 to s1 is fixed but all above that is pain p ain and more pain. The only thing I have to look forward to each day is a great giant handful of pain.
Now the pain meds dull it a bit but I have learned to live with a certain level of pain.
I had a great union job working for the electrical union local 164 making great money, now I am on disability and cant afford all my med’s everytime I go to doc.
IF DOCTORS AND OTHER PEOPLE WHO THINK PAIN PATIENTS DON’T NEED IT OR DON’T NEED AS MUCH HAVE NOT WALKED A DAY IN THEIR PAINFUL SHOES, IF THEY HAD THEY WOULD CHANGE THEIR TUNE.
Luanne
NJ
would it help to send all these letters to Christy in NJ? I , too am in the same predicament. I have been on narcotics for the past 12-15 years for chronic intractable pain due to interstitial cystitis. I did every thing right too, but my Dr is now afraid to treat me. I have been calling everyone in NJ and no one wants to help. can we go out of state? That makes us look like junkies. I cant imagine going back to the horrible , painful days. I thoght the chronic intractable people were exempt from the new rules? is there a petition? is detox the only answer? I am 66yrs old. we will all end up in the ER for detox and a life of misery afterwards. who can help us? letters to Christy, expounding rules for the chronically intractable ill? We have to get started..i dont even know if I will be able to fill my script on 3Mar. what then?
Nicole
Illinois
I have a shard of glass in my spine that I have lived with since I was 2. They cannot remove it or I’ll be paralyzed. I also have several lock jaw and can’t eat solid food without my hydrocodone.
I think it is wrong that they are punishing the people who actually take them they way they are prescribe and don’t abuse them. And for the abuser out there, thanks alot for doing this.
Felix
Springfield MA
I suffer from cronic pain and my doctor stopped my narcotics because of the CDC. Since then, I have a painful, misarable life expending most of my time in bed.
Mkitty
Earth
I’d honestly rather die than continue the battle to get my prescriptions. I’m in pain anyway after not getting my refill for my anxiety meds because too early, and the dose barely takes edge off anyway.
I’m always early. I’m just done. I will either buy illegals or die. I can’t go on anymore. Every year it gets worse, and no matter what I do, between scripts and other forms of therapy or alternatives, it just gets worse. I have no teeth at 31 and no life anymore. It’s all spent just trying to not take too many pills.
I should’ve just taken them all when I had the chance. I have no life anymore. My husband puts me in a bubble afraid that I will die from my meds. Apparently my doctor and the government do, too. And no matter how much I want to die, the meds do nothing anymore to help me. Can’t OD if I wanted to. So I give up because life isn’t worth living this way: 10+ years of bullshit.
Appalled
North Dakota
I share the same pain and treatment or lack of treatment as those who have written before me. I, too, believe there should be some kind of class action law suit. It is the only thing to get the serious attention this situation needs. Withholding medical treatment should be a crime, and since there is much harm being done it is a violation of the Hypocratic oath. It seems strange that once you get dependent on a drug that works for you, the doctor can turn around and order you to get off that medicine and require you to try every possible option out there to no avail. I had an epidural which made it worse and have a referral for acupuncture–the earliest opening is 2 months in the future.
I am sickened by the way I was treated after years of following all the rules and managing to live a fairly decent quality of life. I was to be weaned off the morphine and oxycodone I had previously been prescribed. We managed one reduction the first month and then the second month I was unable to get an appt to see my pain provider and was 2 days into withdrawal when I got to see her. I was so sick I could hardly sit in the chair. She told me I was over the worst of it, and she would no longer refill my presciptions for both drugs. I told her I thought this was too fast. I had no clue what lay ahead. I was so very, very sick. I am a 63 year-old woman living alone, and at times thought I would die.
Three weeks later I drove myself to the ER, still suffering from nausea and diarrhea. I am being considered for an implanted stimulator for my pain. In order to get this device I had to be seen by a psychiatrist followed by a 2-hour test and a revisit with him. And because he found me to be depressed, irritable, and anxious, I have to attend psychologist’s appts and see a psychiatrist for a couple of months. I also have to see another pain doctor since the person who was treating me was a registered nurse practioner. That’s 9 apps!!! And so far nothing to improve my quality of life. And the doctors who do the implant procedure are backed up for a couple of months!!
Tell me this isn’t criminal to some extent. I cannot voice my dissatisfaction in any way or could risk being disqualified for the stimulator. I have never believed in lawsuits but my eyes have been opened – this kind of treatment has got to stop!!!
Lynn
Marlton, New Jersey
This situation is such a disgrace. I can’t believe how so many people are being treated like addicts simply because they need pain med’s to cope with chronic pain. I have suffered with low back pain for 16 years, and the only thing I took for it was Tramadol, as most other pain mes made me sick.
However, the pain started in my leg and was so umbearable, I had to have surgery in 2014. My husband went to pick up my Vicodin post op, and was treated like a Columbia Drug Lord by the pharmacist. I was only taking half the dose that was prescribed. THE surgery alleviated the legbpain, but the lower back pain and hip pain remain. I saw an orthopedist the other day who diagnosed arthritis in my hip and referred me to a hip specialist for possible replacement.
I also have scar tissue from the surgery and arthritis throughout my lower back…so severe that walking to my mailbox us excruciating. I asked him for pain meds. HIS response: I can’tell prescribe anything because I am not a Pain Management Specialist. We all know that’s a lot of crap. HE did, however, suggest that I might want to try Medical Marijuana. I couldn’t believe it. I have had all kinds of injections that raise my blood pressure; cause extreme bruising and make me extremely irritable.
PHYSICAL therapy, accupuncture, chiropractic, back braces, trigger point injections and use a Tens unit. None gives me any appreciable reluef. So, I hobble around, with a TENS unit syrap I ed on a nd pray for relief. THIS us such a violation of patient rights. All of these other treatments are extremely expensive, time consuming and do not help enough for me to live a life I enjoy.
I would encourage everyone to write not only to the CDC and FDA but also to their state representatives and the Surgeon General. THE CDC and FDA rely on funds from the Federal Government. Maybe if they get enough pressure from Washington, they will change these Draconian regulations!!!!
Margaret
Wisconsin
At least there is some comfort in knowing I am not alone in my frustration. But my heart goes out to you, and I realize there are many who are suffering more than I do.
I have spinal stenonsis, degenerative lumbar and sacral discs, scoliosis, and a disintegrated lower back which gives me severe cramps most of time despite a lumbar fusion in 2010. I am 83 yeas old, a happy and fulfilled person with plenty of people to love and creative lifestyle of hobbies and activities. I was able to cope well and remain very active for nearly a decade, thanks to a moderate dose of Vicodin. I never got refills as soon as the prescription called for, taking nearly 1/3rd fewer pills than allowed by the prescription. I stayed with one pain management doctor and one pharmacist the entire time–until 2014 when the restrictions hit.
My doctor began by lowering the dose of Vicodin and ended up switching to Tylenol 3, which was all but useless for my chronic pain. So after a year of taking the Tylenol 3, I quit, figuring it was silly to take an useless drug.
I never had any withdrawal, and the pain grows steadily worse. I still have some of the T3 and Vicodin in a drawer, but refuse to take them without a doctor’s permission. Maybe I think if I hang on responsibly, something good will happen, and I’ll once again have the meds I need. (Naive?)
Meanwhile, the disc pain continues and has progressed up into my neck, causing headaches. At the moment I also have a grizzly sinus infection — which I’ll leave to your imagination. I cannot move my head in any direction without severe pain and the crunchy sounds that accompany bones rubbing on bones. And yes, I know that I cannot voice my discomfort and discouragement without arousing suspicions, even though my responsible use of the hydrocodone when I was able to have it would be in my favor.
A long time ago I learned the tragic truth of the old saying, “You can’t fight city hall.” But I will keep on trying, if there is any way I can! Thank you for reading!
P
Yeah, right...
I cannot even remember the last time I woke up without pain, went to bed without pain, or was able to do the most simple of everyday tasks without wanting to cry. Now, I am treated like a drug seeker by everyone, given dirty looks at my pharmacy and lectured repeatedly about the dangers of narcotics. Let me say this one more time doc…..I DON’T WANT DRUGS, I WANT TO BE OUT OF PAIN!!! HELP ME? PLEASE?!
I do not have unrealistic expectations, but I am willing and prepared to do just about anything now to get some relief. I am so desperate now, I am even preparing my life and getting my affairs in order in case I need to take my own life. To the DEA, CDC and all other 3 and 4 letter agencies who are black mailing us chronic pain patients, may your loved ones never need pain meds, because then they will have you to thank for their suffering.
AND HERE IS THE LAST STRAW. My boy is dying of cancer. My physician decided to close his practice because of all of the new medication laws and Obama Care. My new doctor says he wants me OFF of the meds, and start all over again (you chronic pain people know what I mean by that)….Nsaids, aspirin, blah, blah blah. Low dose, increase a bit, then a little more, try this one, try that one, what?
You have more money in your bank, oh, let’s get that first, one appointment, another appointment, see you in 2 weeks, one month, 3 months. Then come the referrals. I just can’t take it anymore. So, while I’m struggling to just get his laundry done, let alone start breakfast, I’m thinking about how in the hell I can start lunch when I can’t even walk anymore today. Thank God for Hospice. How can a Physician do this, knowing that my boy is depending on me. Because he’s afraid he might lose his license? You have other things to worry about now doc…if my boy dies while you are making me piss in a cup again, I’ll remember that. And so will God.
Jeff
California
This should be some sort of class action lawsuit. I’m in so much pain I can’t even walk
Jeannie
Arkansas
I’m a 59 year old retired (due to disability) teacher with four problems that cause pain; fibromyalgia, Sjögren’s syndrome, bone on bone arthritis, and lipedema. I was given a 30% increase in my extended release meds in August but in September, my doctor decreased the same medication by 77% and my immediate release meds by 50%. He told me he was supposed to decrease them even more but he decided not to because he could see what intense pain I was in. Does he have to go by their guidelines? I live in that pain everyday now. I gave him a prepared chart showing how I functioned before the cuts and now after the cuts, a couple of prescriptions I never filled because I hadn’t needed to and I showed him old leftover meds that I never took because he gave me something different that worked better. If I was an addict I would have taken them!! I asked him to note these things in my charts but now I’m realizing it isn’t going to help, is it. I didn’t fill the prescriptions because I was told by his nurse that he would be in trouble if I did. I’ve had him for years and really don’t want to lose him but why didn’t I fill them earlier and just keep them on hand? I guess I was plain stupid!
So now what are we going to do? What if we all write letters to the CDC and anyone else that we know is responsible for this? This doesn’t feel like America anymore. We should at least have adequate pain relief when we need it! We can’t just sit here and let them do this to us. Are they wanting us all to die? It’s starting to sound a lot like Nazi Germany.
I personally won’t ever consider suicide because of my beliefs and the fact that I lost my beloved husband (who battled being bipolar) to suicide 7 yrs. ago. I can only tell you the emotional grief from losing him was the worst pain I’ve ever felt and still experience on occasion. I could never let my family experience that again. My physical pain level tripled since then so I know stress can influence pain.
I’m going to write the CDC. It may not do any good but I can’t just sit here and do nothing. I have to admit, like a lot of you, I’m still in shock that they could even attempt this. If anyone has any better ideas on how we can effectively fight this, please let me know! I need my meds because I love my life and want to be able to truly live it! God bless you all.
John s
After reading through all the comments on here all i can think of is how screwed up our govt really is. I have seen first hand both sides of this coin being 30yrs old and having lived with chronic pain for a little more then half my life (football injury age14) 2herniated disks with degernative disks, i also have many friends who were, are, or have been opiate addicts.
Until this new bs law i had no issue, i went without anything for 6 or 7 years, tried everything under the sun short of surgery then at about age 22 started getting rx for norco, eventually moved to methadone at age 26 and for 5 years took exactly what i was perscribed with no issue and was able to actually lead a productive and joyfull life, still in pain but it was managed and i was happy with that, then overnight the dea decided they knew best and my doc took me off those and gave me oxycodone (which is what most addicts are looking for) that basically took me from a decent place in life all the way back to contemplating suicide on a daily basis just to end the pain. And like so many others whos lived were upended through no fault of their own i turned to the only thing i could find to ease my pain, heroin, imagine having to become a criminal to simply try and live without agonizing pain. Long story short i ended up going to a methadone clinik just to get the pain meds that i had and did not abuse before. And i know my story is far from unique many good honest people were forced to become something this whole bs law was created to curtail. Now look at the heroin problem that is raveging the nation, great job US govt
Bug
Let’s all Twitter trump, maybe just maybe it could work.
Bug
Do they still allow methadone clinics?
georgeanne
Oklahoma
I am 62 years old and had 7 weeks of radiation therapy for a cancer in my throat. I have been in more pain the last 3 months than I have ever been in. I have had mucositis since the 29th treatment. I had 35 high dose radiation treatments.
Not my cancer team, not my ENT have ever diagnosed mucositis but it doesn’t take a rocket scientist. I wasn’t even warned about that side effect.
After begging 3 doctors, oncologist, ENT, and primary, I finally got some pain medication. Not enough to last for a month and I, too, had to beg and felt like I was a criminal trying to “score” something to use for other reasons than pain.
I have never asked for pain medication from any doctors until this and I cannot believe what I had to go through to get a low dose Hydroco/apap (whatever that is). I cannot get a refill. I cannot believe that abusers are the reason people in severe pain cannot get relief. The government seems more concerned with criminals or addicts than the people who actually need pain relief. Boggles the mind.
richard
Grantspass oregon.
I am 62 and have struggled with chronic lower back and cervical spine pain for over 20 years. I had two discs in my neck fused and with a titanium plate for instrumentation. I had this surgery back in 1998. The surgery never helped as far as the pain. I have tried many medications, Anti-depressants, anti-inflammatories, neuropathy drugs like Lyrica and hydrocodone and soma.
The vicodin and some helped initially, but after time, you have to increase the dose for the same pain relief. Back in 2006, my DR put me on methadone and this drug has truly given my life back. It has controlled my pain and has no pychoactive effects. The doctors are being pressured to cut down on all these opioids. It makes me angry that they treat pain patients like some type of druggie because they depend on these drugs to have any quality of life. They don’t do this for people who need insulin, or cholesterol meds, or asthma.
SHARON
wallowa, oregon
My only thought on a daily basis is death. I feel as though I truly would rather die than to go through this pain anymore. I don’t have the ability to fight anymore, especially while I’m already down. It was hard enough fighting while on pain meds. Now, I’m supposed to jump through hoops and I’m just TIRED.
Stephan Clark
MO
I have been in severe chronic pain since a failed fusion and permanent nerve damage caused by the surgery and the physical therapy after. I had had a few surgeries before that and with my extreme allergies to things i chose not to take pajn meds until the fusion surgery. Then as i was healing from the surgery i went off the pain meds i could take.
A few months down the road and my nerve pain became unbearable. My nerves r damaged in 3 areas in my leg and spinal cord. Over these 12 yrs the muscles and nerve fibers cause an agony i cant stand and is nothing like any pajn id had before. They found a combo of meds inckuding a pain med that helps but the pain is still intense. Without the pain meds there is no way i can live without them. The pain gets so high i an in fight or flight mode with a blood pressure so high i will stroke out even with 3 blood pressure meds.
When i was given a second pain med to get my blood pressure down i was able to function more and i no longer needed any of my blood pressure meds anymore. How can giving me 12 different meds with side effects of their own be better than 3 meds that i only needed when my pain was treated? How can taking the pain meds away that puts me in perilous health conditions because of the amount if pain it sends me into shock be better for me? I dont want to depend on the meds. I wish id nevef gotten so hurt. But i did and i am. The laws and policy made trying to keep meds from the people who dont need them do not work. They only cause problems for those of us who actually need meds. People in small towns go to those drs the dea do not check. They get meds when they don’t need them thus selling them and bragging about it. If they don’t get meds one month they don’t care because they don’t actually hurt.
Then those of us who tell the truth and go to our same drs r treated like criminals and threatened to maybe loose r meds. I couldn’t live in that much agony! The people who come up with these silly ideas to take away meds have never been in real pain! Pain meds were made for a reason! Some situations need them. Esp pain that their guinea pig surgeries they like to try on us go wrong.
isa
CA
This is not only a nightmare, but a death sentence for many pain medication patients!! Patients who have never abused, doctor shopped, asked for more than what they were to be prescribed, passed urine tests, signed/upheld contracts and have had no ‘red flags’ on their records for years. Disabled patients, veterans, seniors…will all suffer as we are lumped into one huge category with heroin users and opiate abusers who dont even have prescriptions or misuse them. Where are the statistics for all of the people who have been on opiates for years that didnt have anything CLOSE to an overdose or abusing them?
Like many of these stories, *I* too have been on pain medications for going on 17yrs due to having Ehlers Danlos which is a progressive/degenerative illness…(thats pretty long term for them to say that they dont have any ability to work on a long term basis). That you just build up tolerance. Okay, well dont you build up a tolerance with most drugs? I know my mothers heart medication has gone up a few times just in one year. Not to mention medications for treating anxiety, depression and/or insomnia that are just as easy to overdose with. An addict will find anything to high get off of …even cold medications.
So how Do they safely expect to just stop peoples pain meds? Seriously the withdrawals would kill me. Furthermore, what *do* they plan to implement for pain management instead when everything has already failed many of us? Ive had times when ive had to go without for one day and instantly went into seizures because the pain was too much for my nervous system to handle.
By taking away our ability to manage pain, you take away our ability to be functional people. You will force people to get drugs off the streets which will in turn cause even more deaths….or suicides because they cant take it anymore.
Wayne
MA
The VA is on board with these new drug laws. After almost 20 years of being on pain meds prescribed by their own doctors the opioid clinic moved in and now treat every veteran like drug abusers. God forbid you disagree with these people or they will cut you off and claim you threatened them. One called my local police and the next morning three cruisers showed up loaded for Bear. My threat was she should quit her job because she is hurting Veterans and that is why there are 22 Veteran suicides a day.
Glenda
Oklahoma
I have been in chronic lower back pain for 12 years. My spine has been deteriorating! I was told today at pain management that they will be cutting me off my meds over a period of time. I am still in shock! These are all new doctors and my long time pain doctor just retired. My husband passed away a few years ago and I must work to raise our son and make the house payment. Without my meds, I can’t even walk! Now I not only fear the pain without meds but the fact of losing my home and possibly my child due to not being able to work. I don’t even want to discuss the thoughts I am having right now! I don’t think it’s fair that the doctors can just say, we are cutting you off! I have never abused my meds and the doctor treated me like a criminal today. I am so scared right now. I even told my doctor, I will lose my home and he didn’t seem to care!
PainorDeath
USA
This is not a light conversation to be read as dismissed.
I was always one of those “suck it up and stop complaining” type guys until I cracked 5 discs in my back 10 years ago.
I’ve tried every option and the severity of my injury is inoperable. Pain medication is my only option and it works extremely effectively, yet bescause of laws that throw a national blanket over everyone that administers and takes pain medication, I can’t get the amount needed to function daily and the doctors are in DEA imposed fear of providing me the amount I need.
The insensitivity and naivety of lawmakers, the DEA, and the media all have a trickle down effect that influences doctors, friends, family and neighbors alike.
I once was a white-collar successful business person who influenced hundreds of people who went on to be successful salespeople, managers and business owners. Today I am considered a loser, drug addict, a selfish loner who puts drugs above all other prioirties, which of course is a complete and utter fabrication based on the insensitivity of people that have never (and I hope will never) suffer life in sever pain.
The fact is; doctors can easily sniff out addicts and pill shoppers from patients with severe pain. When an xray is taken and shows 5 levels of my spine crushed and compacted to bone-on-bone-on-bone-on-bone, it’s pretty easy to tell “this guy isn’t here to get high or buzzed, he’s in severe pain.
You can’t stop addicts from seeking drugs but you can surely stop doctors from prescribing them to people who don’t really need them.
So if the DEA and lawmakers really want to identify “the problem” then start with certifiying trusted doctors to dispense “whatever a paint needs to live in less pain” and deny doctors who dispense pain meds unresponsibly the ability to do so.
Today and every day is a decision for me; to live or to die? The pain meds I receive provide about 3 hours of reduced pain, enough for me to want to live. The other 21 hours I’d rather be dead. Now add these days into weeks and years and ask yourself… If it were you, would you be so radical in your views of denying yourself or a loved one and extra 2 or 3 pain pills to live a happy life? Or is it better to live 85% of your life not caring if you were hit by a stray bullet?
If I did not have 2 children…. I would absolutely find a way to dissapear and die. Death actually is a very attractive option compared to intense pain every single day. I won’t do it because I know how it would effect my kids for the rest of thier lives.
On the other hand, if I was told tomorrow I was terminally ill, it would actually be welcomed news.
I know my story won’t do a damn thing towards changing the insensitivity of government, federal agencies and hand-cuffed doctors, but if you know a person diagnosed with severe pain, don’t do like my former friends and my own family and turn your back on that person.
While we struggle with the prospect of living another day, the pain killers really do help, but true understanding and love is just as important as the medication.
I think I speak for most people in my situation when I say; we don’t want sympathy and we don’t “choose” to take narcotics, but narcotics are a medical miracle that gives us a chance to choose life over death and combined with love and understanding, we can at least spend a portion of each day experiencing the quality of life that 95% of the population get to live every day.
The point of this is to convert just one person to embrace and show love to someone in my situation. I can assure you, being alone and white-knuckling it while knowing the relief we need is available, but is being withheld simply because of the people that abuse drugs, is pushing us into the psychological conundrum of; “repeat tomorrow in torture or die today in peace?”
Understanding this just may save the life of someone you love.
I wish the people I had around me at one point would have gotten the same advice – but just because I’m alone and in pain, doesn’t mean someone you know has to be.
Don’t depend on someone else to take action. Embrace someone in pain and you will be a true hero – someone who not only gave a life hope – but also quite possibly saved a life. Godspeed.
Gina
USA
There are additional ramifications to be noted here the social security department uses the medicines and dosages of them to help determine the severity of disability for initial approval and then later during their reviews of patient files. If the patient is deemed to be less disabled due to a cut in meds they can be deemed able to work and kicked off the disability payments. So now you have significantly disabled people thrown into a state of higher levels of pain and putting them on the homeless rolls when they lose their benefits. The government may even be doing this on purpose in an effort to cut social security disability payments to genuinely disabled people.
Pamela
Virginia
Bravo, this is exactly how I feel. Without RX to keep my pain at a “livable” level of pain, I would not want to live. Perhaps they should track suicides from NOT getting the pain meds needed.
Kara S.
Hampton VA
I’ve been going through the exact same problems with my doctors where I live, only difference being that my doctor was an AFB doctor. I’m so absolutely saddened and disgusted at the way I was treated by the people at this base. Nobody should ever be treated like this. I’ve been on high doses of fentanyl and vicodin for years and my doctor ended up telling me that she wasn’t going to write me any more scripts knowing I didn’t have anywhere else I could go, so I would go into full withdrawal, which isn’t even safe to do. I don’t even know how that’s ethical in my opinion. But I’m so very thankful that I’m not seen there anymore. I guess we can just pray for them. Them. They really need that.
;) ;)
brad
tx
I take hydrocodone 10/325 I use to get 120 a month then it was 3 aday for 28 day now 3 aday for 37 days I have been on pain med for
15 years never had a problrm until now worry make the pain worse
not knowing if DEA will let u have a refill I have had neck fused and still hve two more dises that are blown out but I will not have the
surgery the first one didn’t stop the pain only made it worse. I now also ge migraine headaches do to muscle tension the brain doctor
told me the cause. DEA is afraid of the drug cartels so they go after
pain petaints ease target for them I have limited my work now to
next to nothing I don’t like the pain thw DEA has driven up the cost
of medial care and insurance getting to cost to much I guess DEA would like me to die
Ishmael
NY
This is baloney! My 13 year history of responsible on and off use of low-dose Lortab for severe spinal arthritis–without any issues–should trump any urine test findings related to cannabis.
Beau
Fort Worth
I have been diagnosed with chronic intractable pain for twenty years. I have tried everything from NSAIDS, to Lyrica and Neurontin, cold laser, nerve blocks, TENS, acupuncture/acupressure, biofeedback, radio frequency ablation and finally pain killers. I was started on Tramadol, then moved to Vicodin, then to Percocet/Oxy IR, then to time-released meds like MS Contin, Oxycontin and finally Fentanyl. I was finally stabilized on a 100 MCG patch every two days and Oxy IR for breakthrough pain and remained on that regimen for six years.
One day at a routine pain appointment, a couple of months ago, I was told I would be taken off my pain medications and offered other interventions such as nerve blocks and RFA which I have already tried. I declined the interventions, as the anesthesia risks for no benefit seemed awfully high in my case.
Now, I live on no pain meds, with a blood pressure on most days of 218/157 and a heart rate in the 160’s. I have seen three cardiologists who say that my blood pressure, high heart rate and dangerously irregularly heartbeat were due to untreated intractable pain.
All they have offered me is a diagnosis and the knowledge that without treating my pain adequately, I will, at best, be bedbound, which I now am, and at worst, die of a heart attack or stroke.
Vicky
I have read so many of these comments and see so many people going through the same thing I am. I am 51 yrs old and have had back pain since I was 14 yrs old. I finally went to my Dr. about it after I had my first child, the back pain was unbearable the last 4 hrs of labor, the epidural wore off in my lower back area and it was horrible. My Dr. did an MRI and there wasn’t anything showing that surgery could fix, like so many people, I have degenerative disc disease. He put me on hydrocodone and for the first time in almost 20 years I was pain free, and could actually sleep at night. Over the years my pain spread and got worse and now I have arthritis in my knees and not only do I still have the lower back pain, but also have it in my upper back. I have pain every single day of my life and I am very sick and tired of it but the pain meds help. Recently my Dr. has been lowering the mg. and I am prescribed 90 a month, 3 a day, 1 every 8 he’s. 1 every 8 hrs does nothing for me. It changed so fast on me, I used to get 10/650 4-6 per day, the government changed it so the Dr’s could only prescribe 325 rather than 650 and now I get 5/325 which at first I had to take at least 1 1/2 pills with them lowering the mg. Now I am down to 3 a day and I am in constant pain but the government tries to say that people like me with chronic pain due to degenerative disc disorder do not need much, if any pain meds. How the hell do they know what I feel or any of us pain sufferers? I am absolutely fed up! I know as I continue to age my pain will continue to increase and there will be nothing I can do about it because of our corrupt government. They need to focus on the huge heroin problem, that’s where all the death is coming from, the very addictive drug that it is. They drug test all if us to be certain our pain meds are in our system, well with 3 a day for a month? I will be out of them long before 30 days is up. I was getting 90 pills every 2 weeks, now 90 a month, just one more thing our government takes from us.
Gerald
AZ
I have been a Chronic Pain sufferer for 15-plus years due to my back where I finally had to have surgery to repair 3 discs and now I have titanium rods, pins and screws in my lower back. I also have diabetic neuropathy as well in my legs. I have been using Oxycodone for the past several years for my pain. I don’t abuse my prescription. In fact, I don’t like to take it on a regular basis because I don’t want to become addicted, but when I need it, I really need it.
However, as a veteran, the local VA hospital Chronic Pain Management team wants to “talk” about pain as a replacement for the medication. They think that if you “talk” about your pain when you are in pain, it will distract you from your pain. I think that those running that clinic have never truly been in pain. My thoughts on the new changes, those that follow the rules that need the medication are paying the price for those that abuse the system. As for the governing bodies making the changes, they should try to put a little more effort to identifying a solution rather than applying a blanket solution over everyone that is a weak at best.
Dian
California
I am a 73 yr old woman who has been experiencing debilitating pain for years. To try to avoid opiates my former doctor was prescribing Naproxin. He kept me on it until I had renal failure and now have stage 3 kidney disease. I have disc problems in my neck & lower back, spinal stenosis, fibromyalgia, arthritis, sciatica, bone spurs pressing on my spinal cord, migraine headaches & other problems.
Have tried PT, spinal injections & everything doc’s recommended. Finally 220 mgs of opiod medication gave me relief. Now they have cut me down by 100mgs per day & I am SUFFERING! These pencil pushers should not have the power to dictate what we should or should not take. I have been in a pain clinic for 15 years trying to establish a viable plan to deal with my pain.
Why don’t doctors that truly understand the need for meds stand up for those if us that suffer?!? This mandate WILL NOT reduce the amount of overdose deaths! I have never abused my meds nor asked for early refills. Why should I suffer because others abuse or die from opiates? WHAT CAN WE DO ABOUT THIS FOLKS? Can we hire the ACLU to do a class action suit against the feds & CDC? Someone should be helping us that really need this type of medical assistance.
I don’t have much time left on earth due to my age and kidney problems, but I’d like to live the rest of it without being in agony 24/7!
Shauna
NC
I have worked as a Pharmacy Tech. I have seen what drug abuse does to people’s lives and also had to help document information on Dr.’s who abused the system. I have suffered in pain for years. I was diagnosed with Lupus 12 years ago.
Throughout the years I suffered not knowing why. Lupus is a hard disease to diagnose. I have arthritis throughout my body. I have spinal stenosis throughout my spine. Cervical, Thoracic, and Lumbar. I also have bone spurs. My medical records are documentation of my health issues. I’ve had MRI’s, Xray’s, CT scans etc. I’ve been to specialist who say and document that this is something I have to learn to deal with. How do you learn to deal with pain on a daily basis without some help.
I’ve recently gone through Physical Therapy AGAIN!!! I am on disability and funds are very limited.
I was seeing several different Dr.’s cause now you have to see one for you finger, a different for your head, a different one for this and that. You get my point. Each one prescribing me some kind of medication. I did not and still do not like this. I have a primary care physician whom I think should prescribe all my medication so as to have a mishap that could possibly kill me. When I need to see a specialist then I go but I want that specialist to send suggested medical therapies to my PC and he prescribe my therapies. Whether it be medication or other treatment.
I have suffered severely in the past with migraines. For years I couldn’t get my PC’s to prescribe anything for them. I’d have to go to the ER and get the cocktail shot to get relief. In one incident I had just put my 2 year old in the tub for a bath. I was by myself and I suddenly got such a severe headache I couldn’t get her out of the tub. I couldn’t reach anyone to come help. I was scared that I would pass out or something and she’d be in the tub and get hurt. I was finally able to struggle while crawling on the floor to get her out wrap her in a towel and lay in the floor with her. I was about to call 911 for help when finally a family member who had gotten my message showed up. It took 3 of them to help me to the car and go to the ER for a shot.
WHY should someone who has medical documentation go through so much. I also like many others strayed being drug tested at my Dr’s office. The first one they lied to my. But since I had previous medical experience and training I knew what was going on. The story I got was they wanted to make sure my medications were getting into my body and working properly. REALLY!!! I did let my Dr. know of my dissatisfaction of the way it was handled. I told him I didn’t oppose to them drug testing me. I was taking my medication no one else was getting it nor would they. I was in dire need of it myself.
When my most recent issue came up where I was in such pain I couldn’t hardly function my Dr. gave me a higher dose of my pain medication I took it along with a steroid treatment that they were hoping would work and I started physical therapy in hopes that would work. I was told there was nothing they could do and I’d have to learn to deal with it. After a couple of months of treatment I asked for my pain medication dosage to be lowered. I didn’t feel like I needed that high of a dose since the treatments lessened the pain. It didn’t take it away but it was more manageable with the other treatments and a lower dose.
Now here’s what I’m facing. My Dr. who was prescribing my medication has left this office. I’d go where he is at but I don’t want to go to prison, that is where he is practicing now, he’s the prisons Dr.
I’m being told they will no longer prescribe my pain medication. I will have to go to pain management. I don’t mind so much but here we are with a specialist visit constantly which drives my healthcare cost up again, more than one Dr. prescribing my medications constantly not just temporarily and I’ve already been to the best of spine specialist that has told me there’s nothing they can do, learn to deal with it. I’ve been to PT they’ve got me where they can I guess cause they haven’t returned my calls for any further treatment and we’ve lowered my dose of pain medication. I’ve tried the lower potent pain medications and they haven’t worked.
I will also probably have to go through several painful and long tests, blood work etc. again. I’ve had nerve conduction tests, very painful I might add. I’ve had spinal taps no fun when you get a spinal fluid leak and a headache that don’t stop till you have a blood patch. To me I feel it’s a money maker for the government. The more Dr.’s are getting paid the more they have to pay in taxes the more the government gets. The solution to prescribing pain medication is not to cut it off from those of us who legitimately need it but to document what the use is for. If you go into the Dr.’s office and do not have a documented reason for pain medication you don’t get it. Simple as that. If you have surgery and are given pain medication due to that it should be staggered to lower doses till not needed. If you have a disease that causes you pain and will for the rest of you life and it is documented with test results etc. there shouldn’t be an issue. Especially if you are submitting to blood test, drug test, and others as needed.
Why is the government and government agencies so hellbent on hurting those who are hurting enough as it is. And imagine how many of them are actually addicted themselves. They don’t have these issues cause they work for the government and they are trusted???!!!! Ha really????!!
And those pushing for these restrictions don’t have to worry about healthcare cost like is little people do. Even though when we work and pay taxes were paying for their healthcare through their big paychecks. It’s not right and it could be solved without rocket science being involved. If they’d make stricter laws for those selling drugs etc. there wouldn’t be a problem. And they are the ones causing the bigger problem by not allowing those who need relief of daily pain what is necessary to function. I’m not saying I would do this but people who are desperate to function without pain will do desperate things. Government needs to get off their high horse and really help the people.
Sally
I was called this week by my doctors office that the DEA has forbidden my doctor from prescribing oxycodone to his many patients, mostly elderly in pain. Oh goody.
I have been in pain for years and on narcotic painkillers since 2001. I managed and functioned well with them keeping the dosage limited and rarely increasing it until 2012 when my low back became inflamed, my legs wouldn’t work, I could not sit or stand. Extreme Sacroillitis. Getting treatment was incredibly difficult with my Medicare advantage (HMO) plan and it dragged on for years with mistakes in the type of injections I was getting, delays in referrals, medication refills, you name it. It is a long 3 1/2 year story that could have been much shorter with proper medical care. The low back pain, pain in my legs, feet and the upper back spasms are overwhelming.
Now what am I to do? I’m 70 years old with severe sacroiliitis, unspecified osteoarthritis, neuropathy, fibromyalgia, and other big words written on paperwork and records. I have experienced pain for 26 years. I spent the first twelve trying everything I could find non narcotic and mostly natural. Finally I made the lifelong decision to take narcotics during the period when it was the so called answer to life and everyone was prescribing methadone, OxyContin, oxycodone and who knows what else. The pain killers bandwagon. Now “they” have decided that the doctors and the patients are addicts or whatever derogatory term they can come up with under the guise of calling it opioid dependence which it is but the way it is presented on the DEA White House site gives the impression we are to be ashamed of our so called weakness and should be relieved of it by the DEA.
Sadly this new flare up I am having isn’t being helped much and I imagine a new plan needs to be made since I no longer can get my medication and my pain has increased, but what? Will I go to detox for 3 days and before I am through withdrawal sent home since my insurance will decide that is the time it will take. And I with a major depressive disorder on top of it. Usually the depression lifts in the spring when it warms up but not this year. It did but after trying to cook breakfast and not being able to hold up my body I took a muscle relaxer and lay down. The upper body spasms got the best of me.
I wish these people who make up these rules could experience the pain that all of us with chronic pain do. Let them live with this. My spirit is eroded and the fight is gone. I have lost my motivation. I have always been able to reinvent myself during changes and fight for my rights with letters and phone calls but there is really no point. I have gotten nowhere. My recent request to get my referral for the correct lim spat epidural steroid injection was denied. I was told it was impossible for me to speed up the process.. I rallied for years but no more. I am simply too tired.
I wonder how many suicides will happen after this method of saving us from dependence! What a joke. Sales of new medications will triple, more muscle relaxers, more methadone, more alcohol though I could never do both it made me too sick but I always got sick when I drank. A wimpy drinker.
This is yet another stupid plan for the “war on drugs” or better yet the “war on doctors and patients”! I am so upset and disgusted and can no longer type as it hurts too much. I’m still trying to write the president (who I supported and really like) about this new policy which will not have any effect on those that know how to work the system, score illegal heroin and prescription drugs. They are much smarter and more motivated than us and are in need of treatment (or incarceration in some cases) but not limiting doctors ability to help their patients. It is just the wrong approach!
melissa
martinsburg
I see all these people complaining but I see no one trying to help us , I suffer everyday I have severe rheumatoid arthritis lower lumbar degenerative disc disease and fibromyalgia and no one is willing to help me at all. Do they not realize that there going to run alot of people to st drugs right now its not the prescription drugs that are killing people it is the heroin with fentanyl and it’s killing people around our area, they going to have alot more death s on their hands
Audre
Sun city center
I think comments should be directed at the 3 agencies which apparently have not taken into consideration the extent of the population that needs such medicine to live a useful life. If an elderly needs the meds to live a productive day give them the meds that will help make them enjoy what is left of one’s life.
Why is when one is given a little power they feel they have to control everyone and everything. Someone has selfishly felt that they know best for the population instead of letting them figure out what is best for oneself. What type of government have we become?
Carole
Vermilion, Ohio
As usual, the people who don’t have the problem are punished for those that do. Why not treat people as the individuals that they are? Will they be happy when some of these folks that are suffering can no longer take the harassment and pain, and commit suicide? Enough already
Freedom Fighter
60458 (Justice, IL)
I think this a war on older folks. The government would be happy if we just all died and got out
the way or killed ourselves because of chronic pain. My hope is that some these geniuses get a kidney stone or some other malady and then be denied pain meds or very limited access to same. I’m pretty sure they would be singing a different tune.
Bill
nc
I have suffered with chronic back pain and nerve damage from degenerative disc disease and a spinal tumor that was surgically removed five years ago. I live in constant pain to the point that sleep for more than an hour is impossible because I wake when I move or if I sleep for more than two hours then the stiffness and pain make it impossible to even stay in bed much less sleep. And then whenever the nerve pain decides to flare, each breathe is excruciating. I have been disabled with my condition for six years and went from earning a reasonable income to now trying to figure out how to live on less than what minimum wage would pay. This year, with no increase in benefit, my supplement cost increased $25 a month and I must come up with the extra cash to drive 45 miles round trip to pick up my prescription each month. All this because of the illegal, unethical or just plain foolish behavior of a few. It is inhumane to treat people that are in pain in this manor.
s
ITS OKAY the cdc says pain only last for three days…
Lauren
Citrus Heights
I am a chronic pain sufferer and have been going through this issue with doctor after doctor. Stating plainly that if they want to remove the painkiller opioids away that’s fine, but how are we going to manage the pain in the meantime? Consistently I have been told to “get used to the pain” and “there’s nothing they can/will do.” I don’t appreciate getting treated like a criminal because my body doesn’t work properly and I am a “young girl.” Last time I checked my chronic pain and illnesses didn’t check my ID before they invaded my body. More and more frequently I find that doctors (whether that is a specialist, PCP, or at the emergency room) are in the shame-game. They would rather make you feel bad about being in pain than try and do anything about it! I have been very open-minded and done research that I’ve brought up to them and doctors I’ve seen still push me aside and act like I’m a bad person for being in pain.
s
Dont worry your body gets better with age and the older you get the healthier you are and all of the childhood diseases (or injuries) of your youth will vanish! It is magic!!!
Gina
USA
Don’t worry they will all be in pain some day too as their years roll by they will get their due. Every dog has his day, and theirs is coming soon
renate
MO
Tramadol works on receptors in your brain by telling you that the pain you are feeling
is not as bad as you think. I’ve been on that and if you take antidepressants watch out
because it severly messes with your brain chemicals and causes serotonin syndrome
which you never want to go through. Even a pharmacist can’t tell you that this can happen to
you if you ask him what the effects will be by taking whatever antidepressant you are on.
They say ask your doctor well they are not even sure. That in itself is sad.
renate
MO
I now know I will have to do more research about your website with the FDA, but I will find out what I want and follow suit in any recourse action by the FDA. I have had to do this on more than one occasion.
renate
MO
Moderation really I’m interested enough to wait what you moderate in my original
comments.
Jim
land o lakes, fl
I have tried all the alternatives such as physical therapy (which only INCREASED my pain) etc. To say Opiates don’t help is total baloney.
My pain management doctor administered DNA tests a couple of years ago. it proved that the most appropriate medication for me is Vicoprofen. This was after trying all sorts of other drugs, most containing tylenol. Those were totally useless for alleviating pain. The vicoprofen allows me to function although the pain is never totally gone. If they go further, and cut me off from the drugs, I don’t know what I will do.
Laina
I pray you and others here are taken care of.
Reading there are DNA tests for such as pain is fascinating. The very first time in all of my reading to know this.
Sharon
The DNA test that was done on me was explained as: How each medication is processed through your liver. Each person processes differently.
JimP
Winchester, VA
1. I have twice had spinal fusion due to degenerative disk disease. Because of all the reports about developing addiction to oxycodone, I was determined to take as little as possible. After both surgeries, I found that I needed to take oxycodone for a week to keep pain at a tolerable level. For the next six weeks, I sometimes needed to take an oxycodone in the middle of the night to be able to sleep. During the day, I still had pain but could tolerate it. I would have been miserable if my Dr. only gave me a 3-day supply, and I knew that my pain would eventually go away as I healed up. Before surgery, I tried all options — cortisone injections, physical therapy. The only treatment that worked was chiropractic; it delayed my first surgery by 8 years and my second surgery by 2 years. But eventually the disks deteriorated so much and the pain was so severe that I couldn’t function normally.
2. The danger of the “guidelines” is that the DEA will view them as standards of practice. The DEA might prosecute Drs. because exceeding the guidelines, they might claim, has no medical treatment value. Defensive medicine is taken to a new level when you’re trying to avoid losing your medical license or going to prison!
3. My daughter has nerve damage from a vehicle accident and is prescribed a Schedule 2 drug, so she has to make an appointment every month with her Dr. to get a refill. If her Dr. has to cancel the appointment, the staff may not re-schedule her within the 30-day period and she runs out.
Gary
Michigan
Why don’t more people with chronic pain look at the benefits of medical marijuana? I don’t believe one commentator memtioned this obvious choice.
Jim
land o lakes, fl
I would LOVE to try medical marijuana but it will never be legal in our State .
Larry M
Rale
Gary wrote “Why don’t more people with chronic pain look at the benefits of medical marijuana?”
Or acupuncture. It’s very effective against nerve pain, not invasive, and has no side effects. When it works, it’s wonderful. If it doesn’t work, no harm is done.
Gina
USA
It is still illegal by federal law which means you could lose your housing if you are on section 8 or even in hid housing.
L.R.
TX
I wonder why we don’t have better, more modern meds for chronic pain? Opioids truly are bad drugs, but there is no choice out there for some of us. Why don’t we have better, safer options for pain management? Yes, many of us have PROGRESSED to opioids after trying physical therapy, alternative medicine, etc., etc., etc. In my family we have chronic, progressive, debilitating diseases that modern medicine cannot control.
I’d also like to know what doctors are doing to address the problem of new-ish requirement for us to go in monthly for paper prescriptions? I know the new requirements are more costly for doctors, but they can now collect office visit payments monthly, so are they really that interested in opposing the new regulations?
Celia
WA
I think doctors should be more careful about the prescriptions. Too many seem to be paid to push various meds. However, if someone is really in pain, the doctor should be able to give them the meds they need. Doctors just need to know what the patient is suffering. If people don’t get relief from pain, they could end up killing themselves – so that would be no better than overdosing. Maybe doctors need more training in knowing when a person is in real pain and when it is an addiction.
Sharon
Murrieta, CA
I agree about people dying from chronic pain. I almost DIED from OTC drugs trying to avoid opiates. Chronic pain is nothing to just put aside to deal with. I’m 65 and I know now that it’s impossible to function at all without pain relief. I tried for 2 years. I was unable to eat, think, sleep or do anything that people do daily to live. I had a morphine pump for 13 years which goes to the spine through a catheter, not to the bloodstream. Regardless, it affects the pain receptors. Worked great until it started coming through my skin and had to be removed. Oral medication is all that was left.
Peggy S.
I wish I knew, CA.
I’ll tell you how I will cope without the benefit of drugs for pain relief: Tried it, don’t like it. Suicide is my answer. My blood will stain the hands of the DEA, FDA and CDC.
And until you’ve experienced long term, debilitating pain, don’t judge me. You haven’t ‘walked’ in my shoes, you couldn’t even put them on. You can’t possibly tell me what medication works or doesn’t. How would you know? Have you suffered for more than three decades of chronic pain? I think not. I’ve labored long and hard to reach the point in my life to live as a functioning human being. The alphabet agencies are denying me the right to live as I choose. This is MY LIFE!! It’s not a life lived from a bed, suffering from 24/7 pain. I get one life, no refunds, no second chances, and they took that away from me. Addicted? At 64 yrs. old who cares? I want a quality life-who gives a damn about 20 yrs from now. I WANT TO LIVE NOW.
Millions of us are wrong?
These ‘facts’ quoted in this article are proof of the alphabet agencies Scrambling to justify their over-bearing, I-know-whats-good-for-you, let-me-save-you-from yourselves intentions.
I don’t have to defend myself, my actions, or apologize for my thoughts. I cannot live a semi normal life. The life that so-called healthy people take for granted. I hope you have a tylenol when you have your surgery. Don’t ask for anything stronger! It doesn’t work! Here, have 80 mgs of aspirin for the compound fracture. Or, you! the burn patient. Here, have a motrim and be strong cuz you can’t have anything more potent.
I am going to exercise my God given right to live my life as I choose. And I choose not to live in pain.
If you ain’t got your health you ain’t got nuthin’.
Terry Graedon
We hope that you have a compassionate physician who can help you overcome the obstacles the FDA, CDC and DEA have put in your path. It is still possible for physicians to practice personalized medicine for their patients.
We hope that you can continue to live a meaningful life with appropriate and compassionate care from health professionals who pay attention to what you need rather than what the bureaucracies want.
Sharon
I would just like to thank you for sharing my thought/anger. So well said. I’m 65 and understand exactly.
Nancy
Missouri
I think it’s terrible for those of us that need the pain medication for real pain,the pain center here in St.Joesph Mo.is a joke,beens the shots in my back didn’t help they was done helping me,after the last shot was done wrong and my doctor there hurried to fix the wrong he done,with whatever he put it my back to stop the wrong he had done,my legs felt numb and stomach too,but he said nothing, until my next appointment, that he was done helping me.My doctor sent me there again a year and a half later for I was having problems with my legs and feet in pain,she said had to be nerve damage, so did the foot doctor when he said I had planters fascitis, which is from nerve damage in the lower back,hum!what that was from.So it’s not right we that need the pain medication are being treated like drug users,it isn’t right.I also have alot of bone problems my doctor said,and told me to be very careful. Please stop the madness of treating us bad.Stop letting to drug users out of there wrongs Not ours
John
Georgia
It’s very interesting that (recreational) marijuana is now legal in some states, and Prescription opiates are being squeezed. I agree that many people may end up on illegal drugs when their prescriptions are no longer available. The quality and dosage wont be controlled, The dealers could be dangerous to conduct business with… the concerns go on. Those who remain law abiding may commit suicide because of enduring intensive agony. I understand the effort to curb abuse, but it sounds like legislation IS now abusing the patients.
Laina
Yes…. I have seen there are already suicides blamed in letters and filmed / audios of this severe restriction being the reason. Horrible.
News flash: Not hurting is addictive!!
I’ve never used marijuana and pray to God I never feel like I want or need to. But I will try not to judge.
Rosemary
Phoenix
When I was teaching bioethics at University of Nebraska Medical Center in the late 1980’s, I heard a lecture by the Ph.D. who was responsible for the Hospital Pharmacy. He told us that the job of the Hospital was pain control, not drug control.
I subsequently worked for health care systems in various States and served on committees dedicated to making physicians aware of the importance of detecting and treating pain.
Now, in my 70’s, I am married to someone with severe spinal degeneration, for whom pain meds have been necessary for several years. He is one of many patients who have not developed an addiction, but uses the meds as needed, depending upon his activity and pain levels. We were able to go on a month-long pilgrimage that involved a great deal of walking and standing, something he could not have done without the ability to control his pain.
I am amazed that I haven’t heard of major doctor/nurse associations (especially geriatricians and oncologists), and AARP taking on this issue!
Janie
Most of us who require opioid pain medicine would much rather not have to take any drugs. Having some bloated government entities making judgements on broad matters they have no actual experience with. When they feel the pain themselves their tune will change.
Frances
Arlington, Ma
I am 88 and I have all of the above since I was 55yrs old and at 70 I was told Fibromyalgia I manage to deal with it with every six hrs I take excedrins aspirin free til 3pm and then go to tylenol At nite
Loss husband and on Xanax and Paxil and Gabapentin once a day
And still climb stair and exercise. I danced for fifty yrs (ballroom)
I have had 4 major Oprtation ,deal with IBS and still manage to stay in my apt. Medicine helps but accepting what you have and you can do it If you really want to. My family 3 children and one oldest at age 30 tp now 65 and I see what she does and on a lot of med but on Walker and Manager to take care of %% grandchildren so find some to give you the courage to stay off hard drugs as your back. Pain won’t kill but the drugs will. Mrs L
Jeff
connecticut
The war on drugs just got a lot bigger with the government making it more difficult to get painkillers for patients who need them. Now both patients who really need them and drug abusers as well will be in the streets for painkillers, a good deal for the cartels.
Susan Piper
PORTLAND, OR
These guidelines are not only to chronic pain sufferers but also to accident victims with severe injuries and for patients with serious surgeries. I recently underwent knee replacement surgeries. Three days of Vicodin would not have been nearly enough to get me through the first two weeks. Even after that I occasionally needed something stronger than Tylenol now and then for another two weeks.
Janisse Gass
North Carolina
I have a debilitating defective gene that therapy, OTC was on Tramadol ER all it did was make me tired. I can’t walk without pain and ALD/Lorenzos Oil disease . As one of those in pain till I go to bed , sleep well tonight and tomorrow is a good day! We are supposed to be tough, it’s hard:(
Robert Morphy
NYC
A very kind doctor in Upstate NY lost his license because he frequently prescribed hydrocodone. He was unfairly criticized in the press. He made no profit from pain prescriptions. Pain medication is both dangerous and necessary. Public policy faces impossible challenges.
Diane
SLC,UT
Another example of the Federal Government’s ineffectual interference in the lives of its people. The abusers will continue to get the drugs, and the chronic pain sufferer’s anxiety and misery will escalate, while their quality of life descends further. The rope around our doctor’s hands continues to tighten on so many levels.
Ethel
Minnesota
I do not know who Nora is. I read her comment with fascination because, as a chronic pain sufferer and as someone who watched 2 parents die in incredible pain in their older ages, all I can say is that drugs to reduce pain are needed by many who are not addicts, are not likely to become addicts and, as in terminal illness or advanced age, need not worry about addiction. Again, like others before me, it is the many punished by a remedy intended for a few- and changing doctors’ behaviors when often, pain was already poorly treated.
art
Michigan
Maybe by makeing hard for people to get these meds,and makeing some people to go to underground drugs,some one is makeing billions.But we will never know,it will come out by the year 2089 or so when we will all be dead,is’nt it the way it all works.
Deborah
Apache Junction, AZ
Quality of life ? I don’t get to go ANYWHERE and sit home with no fun, nowhere I can go if I have to walk. I have NO life. If a friend doesn’t take me with her brothers wheelchair, I can’t go. I haven’t walked in a mall shopping in over ten years. I can’t go with the family to Disneyland. I can’t hike, walk, bike, or sleep. But, can I get pain pills? Nope! Thanks to our beaurocrats I life in my box and that’s my quality of life.
Larry
Nevada
I wish The Peoples Pharmacy could do a report on Kratom, is it good or bad? It’s still legal over the counter, it has the same pain reduction effects as opiods
Carl
Ohio
I suffered major head and spinal trauma in 1973. Suffered from chronic pain precipitating from the trauma that began less than a year from the accident. I have taken literal cases of Advil and Tylenol to little and then NO avail. Began opiates in 1997 and finally got SOME relief but never total. A neurosurgeon told me he could get me a little relief but never total due to the extent of my injury. My pain mgt. doctor said the same along with stating my entire back was in a giant muscle spasm from nerve damage so and I chose the less aggressive approach. I’ve lived with this agony for over 42 years now and there is NO end in sight. To force me to drive two hours round trip, pay for the privilege of a two minute exam and a big charge to insurance and to me and then try to recover from a trip I should not be forced to drive monthly is cruel.
Those silly enough to make blanket statements that no one suffering chronic pain should receive an opiate are described by words not fit to print here. Any legislator should be required to be injected with enough substance P to generate significant chronic pain for a full month before being allowed to vote on any pain medication reduction law. In fact their entire family should have the same done to them to get the point across, walk a mile in our shoes, if you can BEFORE you make blanket judgements. We need the real doctors to make these decisions, not the misinformed in Washington D.C. or alleged experts with an axe to grind against those requiring opiates to live any life at all and not one writhing on the floor in pain day and night.
Why all the animosity to the subset of patients who require these drugs to live at all. Are you ready for the increase in suicides because you had better be, they will follow and soon as patients realize the hell they live has no end in sight unless they themselves precipitate it. With opiates I have a small life, without opiates I have no life. Please think about that before making more blanket statements or blanket regulations, made by unelected bureaucrats. As if the constant, grueling pain is not enough I have to read this tripe, stop already.
The best part is the illegal drug business just got a big boost in sales, prices will rise and they will become richer. No law will stop drugs from being sought or used whether justified or not, look at prohibition, what a wonderful success, right?
Claudia
Idaho
I too have endured chronic pain for several years. Took Norco for about five years before total hip replacement and then serious gastrointestinal problems developed and was no longer able to take. Finally had spinal cord stimulator implant. It’s only been six weeks since the surgery and I surely could have benefited from medication for pain relief at the surgery sites. Why in the hell won’t the big pharmaceutical companies with all of their big money make something that will genuinely help with patient’s pain without the side effects of possible death?
Bill
Hickory,NC
I am a pharmacist with almost 50 years of experience in the community pharmacy setting. I did not see an increase in the use of hydrocodone or oxycodone until about 5 years ago when the FDA suddenly took Darvocet off the market. I never read a good explanation of why the FDA took this action but it pushed physicians to use more opiates when Darvocet was a much safer product for mild to moderate pain.
Frank
Cumberland, R.I.
This is how the government generally reacts to problems of this nature. When people are doing something wrong, they respond by regulating people who are following the rules. This particular problem parallels the gun control argument. Read “Freakonomics” by Steven Levitt where he successfully argues that it is stupid to regulate a legitimate industry when a thriving black market for the product exists.
Sylvia
Waco, TX
I have had numerous surgeries in my life, including a knee replacement and abdominal surgeries, and I can tell those regulating agencies that three days of pain medications post op are not anywhere near sufficient. They need to get out of the practice of medicine. I have some sympathy for those who are addicted, but just because some people choose to abuse narcotics does not mean persons who truly need them after accidents, surgery, and for chronic pain should be deprived of them. It makes absolutely no sense to torture those who legitimately need these medications to try and force others not to abuse them. Healthy choices are extremely difficult to force upon people, and I do not think it is right or moral to cause thousands of innocent people to suffer to try and somewhat protect those persons who choose unhealthy addictions. All choices have consequences, and I will not appreciate personally suffering as a result of other people’s unhealthy, poor choices. Those people have no right to cause me and others to suffer post op and during rehab — and neither does the DEA, FDA, or CDC. That is in no way fair or right. Many of those people who choose to take narcotics recreationally will find other ways to self destruct, even with the limiting of narcotic prescriptions. For the record, I hardly allow myself an Aleve a couple of times per year due to my concern about NSAID side effects, but there is nothing at all wrong with a few weeks of pain reliever post surgery and during rehab.
Helen
In view of the new painkiller policy, it’s time for Medicare to cover acupuncture treatments. It’s possible that it would help some people and be worth a try. Medicare, and other insurance, has always argued about $50 chiropractic treatments and refused any acupuncture, but have covered more expensive treatments. The old stigma against chiropractic remains. Chronic back pain is very difficult to deal with day in and day out for years on end. One has to grasp at anything that might give relief. I have always avoided the strong painkillers because I don’t tolerate them well, but there are days when nothing else helps. Not everybody gets addicted. The problem is the drs. don’t know who is apt to be the addict.
Gayle
NC
… “there ought to be a law!” A common sentiment when we want something to change. It’s easier to change a law than fix a problem, however, and I think that’s what’s happening here. Drug seeking individuals will find their drugs. In the wake of these laws, in combination with cheaper and more available heroin following the elimination of Taliban rule in much of Afghanistan, heroin use has soared. As has death by overdose. Now that these tragedies have moved out of the ghetto into white middle-class (what’s left of it) neighborhoods, legislators are taking notice. As they should.
I do hope alternatives to narcotics are increasingly employed, but we need a thoughtful, comprehensive approach to the problem, not just a law. We end up punishing the legitimate users in need of the medication and meanwhile create incentive for a more dangerous, expanding black market for the illegitmate user, which is damaging to the producing countries as well as ours.
rosemary
Midwest
People who need pain killers should have them, and not be thought to be criminals. Heroin is just pure Hydrocodone and Hydrocodone, the difference being the monster drug companies make billions of the meds, the street gangs do the same with Heroin.
This is the Medical professions ‘dirty little secret’ and it won’t go away, ever.
And yet they keep trying to outlaw Herbal Meds, yeah, right——-cause the big drug companies want even more billions.
karen
Florida
I am in constant pain with fibromyalgia, neuropathy, and arthritic pain throughout my body OTC meds do not work and reg prescription meds do not work. I have a TENS unit. I have tried ice heat chiropractic (he told me he could not help me) I am now going g to try gabapentin and see if that works. Sometimes only opiates will work.
charles
NC
Maybe if some of the same people saying that these drugs should be stopped needed some relief because of injuries or their loved ones had to have them for some reason, they might change their ignorant and thoughtless minds. I sure hope they never need them but if you do, I do hope that you can find some way to get relief. It is amazing of how obtuse some people appear to be on this page. But whatever you do never take anything for endless
pain, just tough it out for the rest of your life and see how it that works.
Kathleen
North Carolina
I am scheduled to have 2 spinal surgeries in the next month. I already experience intense back pain on a daily basis. I take one oxycodone a day. I feel I am responsible in handling my medication. I have always had to pick up the prescription from the Doctor’s office, which is not an inconvenience.
He has always monitored all my medications, checking on the interactions with my other medications. I do not feel that the majority of people on pain medications abuse them. Government is already trying to rule over people, instead of people being in charge of their lives.
Tyna
Georgetown,Tx
This is already scary. I too submit to drug testing every month, but that’s ok when I have to have Percoset to kill the pain from botched surgeries and knee replacements. I travel quite a bit and still have to be careful about the times I leave town, cause it all depends on how many pills I have left. I hate being tied to the doctor
Marilyn
GA
About five years a go, I fell backward and broke the L5 in my lower back.
For almost ten months, I couldn’t sit, stand or lie down. I walked around the house and when I couldn’t walk anymore, would sit on a stool as it was higher than a chair. Then, it would be walking around the house again day after day.
Went to several doctor’s but no real help. Finally, someone suggested a Pain Management Clinic. I went and had six shots in my back which did nothing to help me. The next step was six Radio Frequency shots which helped after three and a half weeks.
I thought I would lose my mind from the pain. I heard an Orthopedic surgeon say we have remembered pain and if we have something that gives us great joy, it breaks the pain cycle. Some people keep a daily pain dairy and after anywhere from six weeks to a year have found some relief from the pain. Mine came when my granddaughter came to visit with my new great-grandson! I had prayed and prayed that God would bless me enough to hold him for a minute or two. (I could’t even hold a paperback book!) What happened was that my joy at seeing him was so great that it broke the pain pattern and I have less pain on a daily basis.
I still have pain and I still can’t sit in a low chair or soft cough etc. But, I can sit on my stool in the kitchen and that’s where my guests have to sit too. No one complains. I felt when I had that pain so bad that I would have to try to find a way to end it somehow but now life is good even with pain each day. I’m so grateful that they were able to kill those nerves and that I have most of my life back! Good luck to all those out there! Hope my story helps someone!!
Nora
Opiates have never been appropriate for chronic pain. Unfortunately, the insurance companies are reluctant to approve physical therapy and exercise based treatments for pain in early stages. Doctors don’t often recommend diet based solutions.
And patients often don’t follow such recommendations. Many of our pains are lifestyle based. We spend too much time sitting. We eat too many high calorie, low nutrition foods. We clean our homes with toxic chemicals. And we want a fix that doesn’t inconvenience us.
Long term opiate use is so big that there are ads on TV for remedies for opiate induced constipation! All of these people do not need addictive drugs! Some of them need to lose weight. Some of them need to walk more and drive less. Some of them need to spend some time doing exercise to strengthen their back muscles and abdominal muscles.
I’d like to see more doctors actively working on the problems of addiction. Maybe spend some time working in a community detox unit.
I’d like to see insurance providers be more proactive in supporting healthy lifestyles as a way to cut their expenses and not wait until the patient is critical to cover expenses.
I’d like to see drug ads off the TV!
I’d like to see doctors free to practice medicine for the benefit of the patient, and to see them support each other when they need to say no to a persuasive drug seeking patient.
People who want drugs will get drugs. Laws have been unsuccessful in stopping this.
This is a topic that demands education and discussion.
Helen
Alabama
To Nora who said, “Opiates have never been appropriate for chronic pain.” Never say never! My son has had chronic pain for the last 25 years due to amputation induced neuromas. He has had them surgically excised twice and they have grown back both times. A neurosurgeon then said he wouldn’t touch him with a 10 foot pole. My son has been on opiates as the only thing that will help deal with the pain. He has never been given enough to eliminate it and is still in constant pain, he’s just not screaming and writhing on the floor. And yes, he has tried acupuncture, steroid shots, TENS units, meditation, etc. He also is treated shamefully with expensive random urine tests and rules implying that he is a drug seeker. He would like nothing better than to be able to find something other than opiates so that he could have a normal life and do things he planned but had to shelve.
Diane
Clearly, lady, you have not suffered from the desperation of chronic pain. It is living in hell. To say that this kind of pain is caused from diet and/or obesity is a benighted attempt to paint with a very unsympathetic, broad brush. Try walking the proverbial mile in their shoes!
Brian
Philadelphia, PA
I don’t understand your statement about “opiates not to be used for chronic pain.” I believe you are referring to people who develop pain as a result of their lifestyle. However, I don’t believe that it’s an accurate statement when it comes to people who have debilitating pain, such as cancer patients, & people who have been severely injured. For some, opiate medications, are the only medications that can help with severe chronic pain.
I am extremely disheartened to learn that the federal government is basically interfering with pain management practices. I understand that there are people who will con doctors into getting a script for opioids. However, anyone addiction to these powerful drugs, will ALWAYS find a way to get them. That may mean one will turn to illicit drugs like heroin. But, I sincerely hope that medical professionals can employ common sense when discerning who is actually in need of a prescription opioid. I fear that people who have been receiving these meds for an extended period, are very likely to get involved with illicit opiates if their doctors start refusing to prescribe. Even when hydrocodone became a schedule II, I was disappointed and sympathetic with those that had to now make a monthly appointment.
Bill
NC
Thank you, Judge Nora.
Joan
I am appalled by Nora’s statement that opioid are not appropriate for conic pain. I am 76 years old, I have RA, degenerative disc desease, scoliosis and heart problems. I cannot take any over the counter pain relives because I have had to take them for so long that now if I take 2 ibu I throw up. The only thing that keeps me walking around is Vicodin 2 or 3 times a day. I am not overweight and I eat sensablely. I do not sit all day but because of my handicap I find I cannot exercise as I used to. I don’t wish my pain on anyone but something could happen to you Nora and you will need opioid for pain. Then you will realize what people like me go through.
Amelia
North Carolina
I tend to agree with Nora regarding exercise and being overweight. I have sciatica pain from my lower back and down the back of both legs. I take an Aleve once in a while if the pain is bothering me but what really helps is that I get outside and WALK about two miles, on a paved track, and then I can manage to do grocery shopping and housework easily.
I see so many people in the supermarket riding the motorized carts and they are almost all overweight. Walking is free and it also lifts one’s spirits to see the beauty of Springtime coming to life.
C
Valdosta
Opiates are for people in chronic pain “Nora” , not general aches & pains of everyday living that you can take extra strength Tylenol for. Don’t be to quick to judge people who need these meds and take them responsively until you have walked in their shoes.
renate
MO
Yeh to Valdosta on her comment she said it all in a brief and concise comment.
Lisa
Nashville, NC
My husband was diagnosed first with chronic pancreatitis then stage IV pancreatic cancer. The doctor was limited with what they could give him for pain. It was not until he was under the care of hospice could he finally have enough. It was a horrible experience to watch someone you love endure the pain he did. There has to be some flexibility using the Doctors discretion.
Katt
Washington state
These new regulations are completely unfair to all the people with chronic pain. They are punishing innocent people for the misdeeds of a few. If they (the law makers) were the ones that were suffering then I bet there would be a turn of events…
Diane
New Jersey
Katt,
I agree with you 100%! Couldn’t have said it better myself. Years ago, when my grandmother was dying of cancer, her doctor didn’t want to give her pain medication because he thought she would become addicted. Really!?!?
Suzyq
MI
I should have lower lumbar/disc pain. But, I barely have pain even though I lost 2 inches in my height. Because I have celiac disease I DO NOT EAT ANY GRAINS including “GF” foods, “normal” grains including corn & rices, nuts, dairy, night shades, starchy vegetables, pastas, baked goods, sauces, gravies, salad dressings. Rarely do I eat candies including chocolate or ingest flavoring placed in beverages or in any food substances. My diet of all kinds of meat & non-starchy veggies is quite tasty w/salt & pepper & a small amount of butter (my body tolerates real butter) or olive oil. Please refer to:breakingtheviciouscycle.info.
Luis
China already has strictly regulated narcotics — people go for acupuncture instead of pills, booze and dope–their population is 1.3 billion people too.
Luis
I think organized crime is going to get very rich off of this. I think all drugs should be legal–people who want to get it, will get it. People who don’t, won’t. During the turn of the century, even opium was over the counter. These guidelines will most likely cause these things: Either that they will get drunk more often. Alcohol is a narcotic and it is legal. Or get it off the streets if the government cuts off their legal supplier, that is, their doctor or nurse practitioner (they peddle dope–they just have a license to do it).
Janet O.
California
I’m facing a full knee replacement in a month. It will be my second one but on the other side! I know the pain I will be facing. I’m somewhat hesitant to delay it due to not having enough prescribed pain medication during the duration of recovery. I have a friend who had a knee replacement surgery just a few months ago and she still suffers from immense pain. We are both in our late sixties. I anticipate physical therapy to commence one week following my surgery so knowing the kind of pain I may be facing, and the pain that my friend still suffers, I’m hesitant and frightened! I’ve had a very high tolerance for pain medication, such as novicane for dental work so my records show that and I was able to wean myself appropriately from pain meds the first go-round, but will it make a difference for the surgery I’m soon facing? I recall my Orthopedic Surgeon asking me if I responded to Ibuprofen or aspirin, etc.. Ibuprofen does nothing to alleviate pain or help towards recovery from surgerical pain! Why on earth would surgery patients be denied their pain medication during their recovery? I wonder if their family members (DEA & the CDC) too must be denied their pain meds after having major surgery? It makes one wonder!
Janet O.
California
I’m facing a full knee replacement in a month. It will be my second one but on the other side! I know the pain I will be facing. I’m somewhat hesitant to delay it due to not having enough prescribed pain medication during the duration of recovery. I have a friend who had a knee replacement surgery just a few months ago and she still suffers from immense pain. We are both in our late sixties. I anticipate physical therapy to commence one week following my surgery so knowing the kind of pain I may be facing, and the pain that my friend still suffers, I’m hesitant and frightened! I’ve had a very high tolerance for pain medication, such as novicane for dental work so my records show that and I was able to wean myself appropriately from pain meds the first go-round, but will it make a difference for the surgery I’m soon facing? I recall my Orthopedic Surgeon asking me if I responded to Ibuprofen or aspirin, etc.. Ibuprofen does nothing to alleviate pain or help towards recovery from surgerical pain! Why on earth would surgery patients be denied their pain medication during their recovery? I wonder if their family members too must be denied their pain meds after having major surgery? I seriously doubt it!
Brian
OREGON
I WAs Hit By A Bus in 2004. I’m Hemiplegic, Left Side Spastic Hemiperisis. I’ve Incured Stress And Compression Fractures Thoroughout My Spine, Neck To Sacrum. I Have Severe Rotator Cuff Damage To My Right Shoulder. I Need Surgery To Prevent The Loss Of My Only Funtioning Arm.
I’m Meeting With My PCP Tomorrow To Discuss Pain Management. After Reading The Article On Warning Labels And This One, I’m Dreading The Meeting. I Will Post A Followup
Nadine
Buffalo, NY
I have been worried about the crackdown on opioids too. Last year my 25 year old son developed a rare, poorly understood condition (Loin Pain Hematuria Syndrome) that causes constant pain and acute flare ups every few weeks that require several days of hospitalization with IV Dilaudid to “break the pain cycle.” He has a budding career, but does require hydrocodone to keep his pain level down to a 5 – 6 in order to get through his work days. Addiction is inevitable, but substance abuse is not the same thing. He does not want to be anchored to narcotics on a daily basis, but in his case it is a necessity. He feels stigmatized by some emergency room attendants, some doctors, and some pharmacists. The pendulum needs to swing back a bit in the other direction for recognition and empathy for those who are truly in chronic pain.
Don
Idaho
I’m 72 years old. I had a total knee replacement, right leg, last October. Prior to surgery I learned that for such surgeries, Medicare (assuming one stays with Medicare plus a supplement – mine is an F plan…..I have no idea how the ‘advantage’ plans approach this) pays for inpatient physical therapy at a facility that will accept Medicare assignment. I had the left knee replaced a little over a month ago. For both procedures I spent three days in the hospital where surgery occurred, then transferred to an inpatient facility for intense physical therapy (10 days the first time, 13 days the second)…
Following both procedures I used oxycodone while at the hospital, then switched to hydrocodone at the inpatient facility. By the time I was ready to be released from inpatient the first time around I was totally off the hydrocodone. The second replacement (left knee in February) has left me with a little more residual pain than did the first, but given that, I’m now down to 1 hydrocodone per day and will taper even further next week by decreasing to 1/2 per day….etc.
My point – the inpatient physical therapy consisted of almost 2 hours of therapy per day for 6 days straight, then one day off….cycle repeated as needed. That intense physical therapy, I’m convinced, helped me work through the pain involved with total knee replacement – with minimal help from the opioids…..I’m convinced that the physical therapy (occurred during first 3 days while in hospital too) is the key with the help of opiods – at least for my particular situation. I’m very pleased with the two new knee joints that I’ve received within a 5 month period. And am doubly pleased that with the insurance I have, that I had $0 out of pocket costs.
LL
Following…
Janet O.
California
When I mentioned their relatives…I was speaking of the CDC and the DEA …and their immediate family members whom under go an surgical procedures.
Michael
FL
Here we go again. The majority suffers because of the actions of a few.
Suzanne Bolwell
Wa.
I am a Registered Nurse and I am appalled that pain experienced by patients will not be adequately treated.
I do not think it is fair that patients in pain will not be prescribed pain medication because the government is trying to deal with opiod deaths.
People addicted to drugs will get their drugs anyway and many of them simply turn to heroin.