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Antibiotics are magical. Americans think of such drugs as miracle medicines. It all stems from the discovery of penicillin. Here was a drug that changed history. People who would have normally died from infections could be saved. As a result, most antibiotics, including Levaquin (levofloxacin), are perceived as highly effective and extremely safe. But we have heard from far too many people that levofloxacin left them with long-lasting disabilities. Here is just one such story:
Q. I was prescribed the generic antibiotic Levaquin (levofloxacin) on 6/25/13 for “walking pneumonia.” The doctor did not provide any information about the drug. The prescription was for one a day for 10 days.
After two days (2 pills) I was in such extreme pain throughout my entire body that I could not walk, get up or go down stairs. I was in a wheelchair for a week and had to use a walker for a couple of weeks more. The pain in my joints, especially my neck, upper shoulders, lower back, legs, knees, etc. was almost unbearable.
It has now been almost eight months and I am still experiencing joint pains that seem to move around my body: one day my neck hurts; another day it’s my knees, thighs, hamstrings; then my back is affected.
When the pains began, I tried to contact the doctor. I left messages with her office that I could not tolerate the Levaquin and to please give me something else. She apparently was calling the wrong number, (the office had both my numbers!) and never spoke to me. Finally, after taking 6 of the pills, I decided to stop as I figured I’d be dead with 4 more!
Upon returning to the doctor a week after my first visit, I told her of my experience and that I had stopped taking the antibiotic. She insisted my side effect reactions had nothing to do with the Levaquin and were not a result of this drug! She told me to take 800mg of ibuprofen three times a day for the pain.
A month later in July I saw my orthopedist. He could offer no help, but his nurse shared with me that she had had the same side effects from Levaquin and that it had been a year and she was still experiencing joint pains all over; one day here, another day there.
Going on the Internet I discovered that many other people have suffered the same side effects as I had…some for years! I called the FDA to report the above, but was not able to get any of the required information from the pharmacy (no manufacturer, expiration date, Lot.#, etc.). I completed 5 pages of information on the FDA’s MedWatch form about side effects and such and faxed them to the FDA. I also discovered there are some 3400 lawsuits regarding levofloxacin.
A. You are not the first person to report serious complications from levofloxacin (Levaquin). This is an antibiotic in the class called fluoroquinolones (FQs) or quinolones for short. Other medications in this category include ciprofloxacin (Cipro), gemifloxacin (Factive), levofloxacin (Levaquin), moxifloxacin (Avelox) and norfloxacin (Noroxin).
You are also correct that it is hard to complete the FDA’s MedWatch forms because it is almost impossible to get the essential information they demand (manufacturer, expiration date, Lot # and NDC number) from the pill bottle.
The FDA Comes Clean on Levaquin (levofloxacin) & Other FQs:
Quinolone antibiotics have been around for more than 30 years. Doctors prescribe these drugs for a range of infections including:
- UTIs or urinary tract infections
- URIs or upper respiratory tract infections such as sinusitis or pneumonia
- Chronic bronchitis
- Skin infections
- Bacterial prostatitis
For many of those years prescribers assumed that side effects were not that big a deal. Most did not realize that adverse drug reactions could persist even after the medications were stopped.
Millions of people have taken drugs like Cipro (ciprofloxacin) or Levaquin (levofloxacin) without being informed of potential problems. In 2016 the FDA issued the following safety communication:
“The U.S. Food and Drug Administration is advising that the serious side effects associated with fluoroquinolone antibacterial drugs generally outweigh the benefits for patients with acute sinusitis, acute bronchitis, and uncomplicated urinary tract infections who have other treatment options. For patients with these conditions, fluoroquinolones should be reserved for those who do not have alternative treatment options.
“An FDA safety review has shown that fluoroquinolones when used systemically (i.e. tablets, capsules, and injectable) are associated with disabling and potentially permanent serious side effects that can occur together. These side effects can involve the tendons, muscles, joints, nerves, and central nervous system.”
Prior to this announcement, many physicians discounted reports from patients of long-lasting, disabling reactions to FQs. Even with the FDA’s safety communication, many health professionals do not warn patients in advance what could happen. The only way to appreciate the gravity of the situation is to read actual accounts from real people:
Stories from Readers:
Doug shared his joint problems:
“I was taking a 30-day prescription of Cipro for a prostate infection. After playing full court basketball, I awoke the next morning to knees that felt as though they were encased in concrete.
“My legs constantly ache as if I had just walked 20 miles. Many nights I cannot sleep due to the pain in my legs and, for now, I cannot play basketball as the left knee area, in particular, is too weak.
“Ever since that time (20 months ago) I have suffered in every way imaginable. Sometimes I cannot even walk up my apartment stairs. I have seen my doctor, an acupuncturist and chiropractors. No one can make it go away. This has totally impacted my life, since I can’t play tennis and have a very hard time playing basketball. Do you have a suggestion?”
Ellen reported this reaction to levofloxacin:
“I have had side effects from levofloxacin and I’ve been getting the runaround from the doctor’s office. It has affected my hands, my fingers, my knees, my ankles, my elbows and my hip. It moves around and I haven’t been able to work because of it. I never know how bad one day is going to be to the next.”
Greg has tendon problems:
“I took this medicine four years ago. I was also very physically active before taking it. After 7 days on the med, I developed body-wide tendon and nerve damage that has yet to improve. There are literally thousands of people who have been crippled.”
D.B. is another person who cannot exercise after taking an FQ:
“I had a similar experience with Cipro. I took it a year and a half ago and have had terrible joint problems ever since. The problems started almost immediately after taking Cipro. I’ve had to spend thousands on tests, physical therapy and doctors’ visits. The worst is my feet and ankles hurt so bad that walking is difficult now. I can no longer exercise without suffering days of pain. All this time, there is some improvement but much of the damage is permanent.”
L.P. reveals that it does not take a big dose to cause long-lasting agony:
“I took Levaquin on Nov.14, 2012. After 6 pills I had Achilles tendonitis, small tears, muscle aches and joint pain all over. Two years later I am still suffering from tendonitis, bursitis in my shoulder joints, fatigue and insomnia. I never ached so much in my life and it continues to get worse. I walk with a cane. There is numbness in my foot and leg diagnosed as neuropathy. Levaquin was prescribed for suspected urinary tract infection. It was contraindicated with my other meds and my age. This just should not be.
“This drug has caused permanent damage and ended most of my life activities. Doctors need to be informed what this med does and care about the consequences. I hope this antibiotic gets off the market or is used only in a life or death situation.”
The People’s Pharmacy Warnings About Fluoroquinolones:
We could provide hundreds of other stories, but by now you have the idea. (You can read more in the comment section below or at this article.
We have been warning about serious FQ side effects for over 20 years. We think the FDA was way too slow to alert health professionals and patients to some of the most serious complications of these drugs. According to the Food and Drug Administration, more than 21 million people get a prescription for a quinolone antibiotic each year.
The FDA issued an alert about FQs in 2013 about neuropathy:
“This serious nerve damage potentially caused by fluoroquinolones may occur soon after these drugs are taken and may be permanent… Peripheral neuropathy is a nerve disorder occurring in the arms or legs. Symptoms include pain, burning, tingling, numbness, weakness, or a change in sensation to light touch, pain or temperature, or the sense of body position. It can occur at any time during treatment with fluoroquinolones and can last for months to years after the drug is stopped or be permanent. Patients using fluoroquinolones who develop any symptoms of peripheral neuropathy should tell their health care professionals right away.”
In addition to the nerve damage, these drugs can cause lots of other serious complications, including tendinitis or even tendon rupture. When this happens it can be a life-altering event. Joint pain and arthritis-like adverse reactions have not generally been recognized as a long-lasting complication of quinolones in adults, though they have been noted in children. We long believed the people who reported this problem on our website rather than the official prescribing information for these antibiotics. It took the FDA decades to acknowledge the problems with tendons and nerves. The agency was also slow to recognize the joint complications.
Unlike many of the people who have reported problems on this website, we are not calling for the banning of quinolone antibiotics. Goodness knows, we are running out of effective medications against serious infections given the degree of bacterial resistance that has evolved over the years. But doctors must inform patients of potential fluoroquinolone side effects BEFORE people start taking such drugs. Here is a list to be aware of:
Fluoroquinolone Side Effects and Complications:
- Digestive distress, nausea, diarrhea, constipation, stomach pain, heartburn, vomiting
- Headache, dizziness
- Agitation, anxiety, irritability, restlessness, confusion
- Insomnia
- Tendon problems, tendinitis, tendon rupture
- Retinal detachment
- Nerve damage, peripheral neuropathy, nerve tingling, numbness
- Allergic reactions, skin rash, anaphylaxis (life-threatening reaction requiring immediate medical attention!)
- Super-infections including C. diff diarrhea
- Hallucinations, psychosis, seizures
- Depression, suicidal thoughts or actions
- Irregular heart rhythms, torsades de pointes, QT prolongation
- Kidney or liver damage
- Blood disorders
- Arthritis, muscle and joint pain, weakness
Share your own experience with FQ antibiotics below. We want to hear the pros and cons of such drugs. Let others know how such medications worked for you and what, if any, side effects you have experienced.
Revised: 3/23/17
Richard
I was given Levaquin 3 yrs ago (5, 500 mg pills) for infection. I’m 84 & think that was a lot for my age. I have the same terrible after-effects as every one else. I had no problems at all before. WISH there was a fix!!!
Boone
I was given Levaquin 500mg in 2001 for an e. coli UTI. After two pills, I was hallucinating, so I decided to stop taking them. I was gradually beset by a never-ending list of persistent side effects including chronic pain, muscle tension, anxiety, inability to think straight, digestive problems, chronic fatigue, and on and on, none of which had been problems prior to Levaquin. Doctors were naturally baffled, and agreed across the board that an antibiotic could never cause any of these issues. I have lost faith in doctors as a result.
These and other side effects continued to come and go with varying levels of seriousness for about 15 years. For much of that time I was unable to work, mostly because I couldn’t think or deal with the pain and exhaustion experienced after even the smallest exertion.
I’m mostly better now, a mere 22 years after taking two pills. I’ve tried nearly every natural remedy available, and unfortunately I never found any magic bullets to reverse the severe damage caused by Levaquin. I’m still amazed I survived the experience, because there was so little hope for so long. Today is a better day.
My sympathies go out to the perpetrators of this wanton destruction.
Linda
I’m a 67 year-old female. I took Levaquin for a bad swimmer’s ear infection for 7 days. It’s been 3 weeks since I finished taking it. On day 5 I started to have what I thought was a fibromyalgia flare, although I’ve never had such severe pain.
My thighs, hips, ankles, arms, shoulders all hurt. My legs, especially my thighs were/are extremely weak. I can barely get up from a sitting position. At first the whole body pain was a level 10. I was crying and could barely move. Since then (3 weeks ago) my pain and weakness is at a steady 7. I now realize that it’s not a fibromyalgia flare but something else. I have been doing some research when I came across this site. I realize it’s from the levaquin!
After reading so many comments that confirms how I am feeling, I’m scared I may never get better. I hope my doctor will realize what I am experiencing.
Tammy. Castro
I started Levaquin on 12/24/2022, 750mg for 5 days. On the first day I had a bad headache. By day 3 my right shoulder started hurting. Pain so bad I couldn’t move my arm. Day 4, I started hurting in my left arm; the pain is so bad. Day 5 my right should still hurts; my left shoulder hurt so badly that I cried off and on. I can’t move my left arm without help. What should I do? I have been off Levaquin for two days. I just can’t stand the pain.
Teri
On Dec. 12/15/2022, I was given Levofloxacin for treatment of pneumonia, one a day for 7 days. By Day 4, I started to get pains in my right ankle, and it moved up into both of my calves by Day 7. I am talking serious pain in 7 days. I have stopped taking it, of course, but the damage appears to have been done. I have reported the situation to the Dr. But from the comments on this site, apparently, damage has been done. I am so worried that it will never improve based on the comments.
Sarah
I was prescribed Levaquin for a minor infection 9 1//2 weeks ago. Six days later, I developed Achilles tendonitis. A week later I developed it in the other leg. I’ve been using a wheel chair since. Some days the pain is less severe, other days it’s terrible with swelling in my feet and ankles. I really thought it would go away by now. This drug is the worst thing that’s ever happened to me, but I won’t give up. It’s just got to get better.
Susan
I was prescribed Levaquin in 2020 for suspected pneumonia at age 58. After 1 500 mg pill, I knew something was wrong. I finished the course but my quality of life has was ruined: tendonitis, permanent widespread nerve damage, partial retina detachment both eyes, digestive bloating, constipation, muscle pain and weakness, confusion, severe back pain, insomnia, all of which my doctor said it might have just been the pneumonia. I am permanently disabled.
Cindy
I was given Levofloxacin 1 month ago for a raging ear infection. I took 1 pill, and within 2 hours I had vertigo so bad that I could neither stand nor sit. Crawling to the bathroom required a barf bucket at the ready (and it got used!). Called the doctor, who replaced the prescription with Azithromycin, which took care of the ear infection. I only ever took *one* levofloxacin tablet. But a month later, I still have some degree of vertigo and can’t walk a straight line, though I’m otherwise functional in the activities of daily life. I want the vertigo to end! But at this point, it looks permanent.
Elizabeth H
I was prescribed Levaquin in May 2015 for sinus. I felt worse after I took the first dose, but I kept taking it, thinking it was going to help me. On the third day, I quit the drug. My thighs were hurting me so badly that I could hardly walk. Standing for any period of time is literally impossible. I hurt at night when I try to sleep. Tylenol doesn”t do much for it, plus it has bad stuff going on if you take too much. This was in 2015. Today, April 2021 I still have the thigh pain, thighs are weak, have very poor balance, and my feet hurt all the time. My hips and knees hurt most of the time.
This drug has ruined my life. I was not given any warning about Levaquin. I am 73 years old and healthy, with the exception of this. If anything is out there that would give me some relief, please, I need it.
JANAH
I was prescribed Levaquin in 1999 for a sinus infection. I told the Doctor the only other time I had been prescribed Levaquin, I could only stand to take one day’s dosing, as it made all the joints and muscles in my body hurt horribly. Since I am allergic to so many antibiotics the Doctor told me to take a Tylenol, with the Levaquin, and it would be okay.
I made it for 3 days but was in such unbearable pain all over my whole body despite Tylenol. Every muscle and joint was screaming! Finally, I quit taking it anyway.
Unfortunately, I had already suffered a 6 cm zipper tear of my Achilles tendon. Since then, I have suffered repeated plantar fasciitis, numerous tendon and muscles tears, frequent joint and nerve pain and chronic inflammation issues, which has led to arthritis problems by age 50.
I have been told over and over by various Doctors “It can not be related to the Levaquin. Only a tendon rupture is associated with that drug and only while you are currently taking the drug.”
But the muscle, joint, tendon/ligament pain/inflammatory problems have continued for 20 years. Since I had none of these type of things prior to Levaquin it has always made me wonder if it was the Levaquin that ended my life as a power walker and left me with a constant cycle of painful problems.
I wish the Doctors had been better informed!
Dee
I was prescribed Levaquin for a bad lung infection in 2016. I got pulmonary blood clots in both lungs and was in the hospital for 3 days. Had to start taking Xarelto and need it for life now. After that happened to me I read that 700 other people got pulmonary embolisms after taking Levaquin. Taking that medicine came very close to killing me
Frederic
I was prescribed Leovofloxicin for an abdominal infection. After 3 pills my right leg swelled up, and there was pain. I went to my doctor’s office and was advised to continue taking the drug. After the 4th pill my left leg swelled up, and there was severe pain in my calf so I could hardly walk. I stopped taking the pill. The swelling and pain has subsided but now I have popping and clicking in my legs when I walk. I don’t know yet whether this will also subside and may be caused by tendonitis.
MPFeitelberg
How are so many people with immediate or near-immediate severe symptoms such as neuropathy, inflammation, etc. urged to persist in taking a medicine with a proven, widespread history of causing potentially-permanent damage — in so many persons who’d had no such history?
Jen
OH
Talk to your doctor about chelation therapy. Chelated magnesium and calcium can “leach” what is left of the drug out of your body. This is starting to become a standard treatment for FQ adverse reactions, and it makes sense, since the prescription tells you to avoid antacids with cal/mag, since they interfere with drug absorption. Good luck to you!!
Jen
OH
I was given Levaquin back in June of 2003 for a sinus, ear, and throat infection. This was when the pharmas first started pushing fluoroquinolones in primary care as wonder drugs. 2 days into a 10 day course, my forearms started to ache, but I ignored it as being from work. The morning of what would have been dose 6, I woke up and couldn’t move from the horrible pain I was experiencing from head to toe. I was 32. It took an enormous amount of effort to get myself out of bed and moving. I had no clue what was going on. I went to take my antibiotic, and then something made me pause and think “Is this the cause?”
I started looking around on my computer, and what I found horrified me. I found a whole Yahoo community of over 1200 people (a lot for that time period) who had been damaged by a fluoroquinolone. They called themselves floxies, and what I was experiencing wasn’t uncommon.
This was Saturday, and I called my doctor on Monday to tell them my experience. They told me to definitely stop taking it, and prescribed another a/b, and that I should be feeling back to normal once the Levaquin cleared my system. Two weeks later, I was in my doctor’s office with a long list of symptoms, including severe pain. He gave me steroids, which we later found out were not supposed to be given within 6 weeks of these drugs (for me, more), and it made things even worse.
My life as I knew it changed with those 6 doses. I developed Fibromyalgia, neuropathy, a movement disorder, and it does up damage to my back and neck from an auto accident to the point where in just 8 years after Levaquin, and 11 years after the accident (I wasn’t quite 40), I was riddled with spinal problems including DDD,disc bulges, severe osteoarthritis, and in 2017, I had my right knee replaced (at 46) because I was bone on bone. My orthopedist said he could have been looking at the knee of someone twice my age. Now several vertebrae in my spine are already at a level that fall into the surgical range, and all of my joints, muscles, and tendons rebel constantly. I know it’s because the Levaquin changed mitochondriA and deleted/changed sequencing of dRNA code in my body. I’m now 16 years out from my floxing, and I’ve faced the fact that it’s permanently disabled me.
Cheryl
At routine pulmonary followup 5.30.19 was told I had bronchitis that was not viral, as I had been treated for. The doctor ordered Levaquin 500 with steroids, over my protest. I have already had a tendon rupture (after Cipro and long agony of tendonitis). He said that was really rare. Repeated myself, and he again said it was really rare. At worst, he said, I would have muscle weakness. I said I have muscle weakness from inclusion body myositis, and I don’t need more. He got testy and said this is what I must have.
Felt beyond crap by the time I got home so took the pills when they arrived and woke with dizziness (felt like I was spinning and pitching forward), feelings of icy hot on feet, ankles, lower legs and profound weakness with a feeling like a feral cat when cornered.
Instant Messaged both pulmonary and neuro docs. Got switched to Zithromax over their protest. Then read 5 pages pharmacy sent. It said that tendon issues are worse in patients over 60, on steroids, with hx of tendon issues. It was black-boxed for Myasthenia Gravis but not mentioned by any other NMD. Pulmonary doc maintains this is not-drug related even though persisting to this day. I am terrified that if I get sick it will kill me. One pill has massively increased the deterioration in function I had with IBM.
Shannon
Texas
Last June I had an ear infection and suspected a sinus infection. I took many antibiotics and was not getting better. Then July 2018 I took Levofloxacin, and the next day I had pain in my arms, back, feet. I told the doctor, and she said it was not the medicine. I took the rest of it anyway. I still had aches but they subsided some after I took it. I assumed it would go away. My sinus issues continued, and this doctor kept giving me other antibiotics, and then I ended up on Levofloxacin again, not realizing I had taken it before until I started it again. I feel so dumb that I did not research this. After taking it in July and September 2018 I still get aches and pains, neuropathy, tingling, poking sensations in my feet and lower legs, hands, arms, pins and needles.
I have no one to turn to because all the doctors just think we’re nuts. I know my body. If you don’t have a life or death infection stay away from these classes of drugs. They are not meant for minor infections! You have to be your own researcher. Educate yourself, and read warning labels. If the doctor tells you to keep taking it demand a different antibiotic or get another doctor.
Anne
Idaho
I saw an ENT for a stubborn sinus infection. Despite me telling him that I have a history of many drug intolerances and allergies he prescribed 750 mg Levofloxacin with a pill-form steroid once daily for ten days. He stated I’d only need to be concerned about side effects if I was “training for a marathon” He also stated that either I would have to take this medication or be hospitalized.
After my fifth dose I woke up to excruciating abdominal pain and extreme muscle weakness. My family took me to the ER. I was diagnosed with “constipation” and admitted for a short course of laxatives. The medical staff refused to listen to us when we told them that the only change in my routine was the Levofloxacin and new steroid. Instead the staff labeled me as “attention-seeking” and “fixating” on the medication side effects. I fear for the safety of other patients experiencing similar issues.
Thankfully, my PCP understands the toxicity of the medication and doesn’t embrace the “one-size-fits-all” mentality that much of the medical profession does. He has me trying magnesium citrate and dye-free rehydration fluids. AND, he is treating my sinus infection with a less toxic antibiotic.
Now, I have to go through appropriate channels in an effort to get my case heard by the hospital administration. Why do so many doctors remain ignorant of the effects of this toxic class of drugs when the black box warnings have been out since 2016???
Laurie
indiana
I also took a steroid and z-pak for bronchitis which did not work. I was given Levaquin because I am allergic to Penicillin and Sulfa. I had numbness and tingling in my right hand and feet the first night. It went away by mid morning the next day. After 5 days I developed tendonitis in left shoulder and arm and left knee and had neck tingling and ankle tingling. I too am praying it will go away as I love to run and exercise and have a job that requires lifting. I cannot do these former things at this time.
Pamela
Stafford VA
I have the same symptoms as most of you. Pain, stiffness, in my knees, shoulders, hands and Feet. I didn’t have any of these symptoms until I took levaquin in 2016. I went to the Dr and they said I had RA. My question is will i every get better?
Sharma
Fl
For the second time this year I was on a ten day regimen of levofloxacin for an ear infection. The first time I had ankle pain. Did not think to relate it to the medicine. After I finished the second round I had ankle pain along with elbow, shoulder, knee and muscle pain. I am a 79 year-old female and truly hope and pray that these aches and pains are not permanent. After reading all the comments I am not encouraged. Is there anyone out there that recovered from these maladies?
San
GA
I was given Levofloxacin for walking pneumonia in Oct 2014. After 3 days of finger swelling, my doctor disregarded my comment as if I hadn’t said it. Few days later had to go to work in the clinic where that doctor said that I was having reaction from the antibiotic. Given shot and other antibiotic. My hands got worse in a short time.
Over the next 5 years have been diagnosed with congestive heart failure, lung issues, osteoarthritis, Sjorgren’s, Reynaud’s and am in lots of pain. Other problems have occured with no diagnosis. I’ve kept this pill bottle because 2 months after taken this drug I finally got an answer on a news report of a man dying, and a few others with debilitating issues. My hands are so bad that I can’t bend some fingers and am unable to do basic things such as some personal hygiene things or open bottle of water. I’m now 63 and would love to have my Life back.
Penny H.
Meridian, Idaho
I took my 4th round of Levaquin over a period of 4-5 years. On February 13th, 2017, I woke up in excruciating pain. It was day 13 of a 21-day prescription. My elbows, fingers, knees and body did not want to move. I had severe pain in my hips. Yes, I had been diagnosed by a Rheumatologist years prior to this with severe arthritis and Fibromyalgia but had never experienced this type of pain or the movement issues with my joints. The pain was throughout my body. I also had never had any hip pain prior to this.
I stopped the Levaquin and looked up the side effects, as it was the only thing I had been taking that was different. I ended up with a specialist in physical medicine and rehabilitation. She thoroughly examined all my joints and sent me for X-rays. The results were crazy, and I was in complete shock: I needed every major joint in my body replaced. I had been previously told that a shoulder and knee would be in need of replacement sometime. Keep in mind, I had NO pain in my hips, and they now needed replacement. The antibiotic had destroyed any cartilage I had left. My hips became painful overnight. I could hardly get out of the chair. The doctor told me that we would hope for the best but they do not know the extent or the length of this damage.
Now I am almost 2 years out from waking up that day. I have had both hips and a knee done in a year. I have more to do. I have suffered with episodes of shaking, stomach issues, including loss of appetite, continuing extreme body pain, and emotional damage. I am on a pain contract with the specialist and see her at least every 3 months, if not sooner. I had to quit my job. I am going to see a new Rheumatologist February 28, 2019. My orthopedic is concerned that I may suffer from some tissue disorder. He told me my pain from the surgeries was above and beyond his other patients. It seems like it is never-ending.
It seems the doctors are uneducated about the damage fluoroquinolones can cause. My heart goes out to all the people affected by this family of antibiotics. It is not a journey anyone wants to go on. I am doing my best to remain positive and informed.
Lola
Portland OR
I was prescribed Levafloxacin ( 500 mg) once a day for ten days for pneumonia. After day four my right Achilles’ tendon was painful, and the next day the left one was painful as well. I switched to two other antibiotics, and my internist told me the pain would go away in four to five days. It has not. It is painful to walk. Another internist did an ultrasound and said I was the first person he had ever seen with this type of reaction. He also said the tendons looked normal. I feel like these doctors feel like I am malingering or do not want to admit that maybe I shouldn’t have been prescribed this drug to begin with. I am a 77 year-old female and never had any tendon problems before. I am in Portland, OR. Does anyone know of a doctor with some experience with this type of side effect?
Jodi
My compassion goes out to anyone who took this awful drug. In my case I had a delayed reaction of about 2-4 months after taking the drug Levaquin. Because I had severe recurring sinus infections and not having an immediate reaction to the Levaquin, I did multiple rounds of the antibiotics over a few years. I finally started to notice that I had all this pain a couple of months after taking the drug and googled the drug. It was disheartening to say the least.
Thirty years later I have had 15+ surgeries to repair Achilles, shoulders, knees, back, eyes, etc. I live with horrific neuropathy, joint pain, and fear that if I move anything it will cause an injury. Yet I am grateful that I’m not bedridden or wheelchair bound, as of yet.
I have been to multiple doctors and I have yet had one that really believed me about what has caused all my problems, yet they are unable to find a reason for all the problems and injuries and are constantly surprised. When I ask them to google Floxed or Floroquinolone Toxicity, they just politely dismiss me. I pretty much have found nothing to help me and lost all faith in the medical community.
Rivka
Hi Jody,
I had exactly the same experience with Levaquin. I took it 13 years ago and since then had terrible backache, knees and legs. No doctor associates it with Levaquin. I took many kind of pain killers. Did all kind of therapies. Nothing helped.
I am trying now Lyrica and hydrotherapy. Praying it should help 😘
James
Az
I have taken levaquin for about 20years following triple bypass. Didn’t have any problems until I quit. I now don’t know what is going on and neither do the Drs.
Karen
Calif
I am a 70 year old female, retired RN. I have had two courses of levofloxacin in the last year for bronchitis and sinus infection. My doctor is excellent, and we discussed all the risks vs benefits. I am allergic to erythromycin and amoxicillin, and there were not a lot of choices. Since the second course, completed two weeks ago, my knees, thighs, shoulders, and upper arms are uncomfortable and weak. I’m trying to slowly increase my activity without putting undo strain on any damaged tissue. It’s rather between a rock and a hard place. I was so sick I gladly went on the antibiotic, knowing the risk, but am hoping this is not permanent. My good wishes to all of you. If there’s an alternative antibiotic to go on, be sure and discuss with your doctor.
Robert
75437
I was prescribed Levofloxacin on Dec. 13, 2018 (7 pills for 7 days), for bacterial infection that causes pneumonia. This was at a private hospital emergency room in Greenville, TX. I am 85 years old, have VA medical insurance, and I was sent to the hospital from my VA medical Clinic in the same city. Two days after taking the 750mg Levofloxacin, an extreme pain developed in the rear of my right leg between the calf and right thigh. I could barely walk. Today is Dec. 17, 2018, my VA clinic Dr. called and told me to discontinue the medicine immediately. My leg is worse, I walk with a limp and now the fingers in my left hand are becoming numb. Don’t know about the future, but will let you know, or you can contact me.
Bob
MI
In September 2017 I was prescribed 7 days of Levoflaxin after a standard Z pack was ineffective for a mild case of pneumonia. During this time I also had Prostitis and they kept me on the drug for another 7 days (14 days total). I developed the stated Tendonitis side effects in my upper arms, right forearm and left leg. My left knee swelled to twice the size. I was prescribed a 10 day regimen of Prednisone steroid to alleviate the pain. It worked instantly. However, after coming off the steroids, I now had pain in my shoulders, left knee, feet and at times my hands. I suddenly tested positive for Rheumatoid Arthritis! The doctor insists my pain while on Levoflaxin was R.A but I DO KNOW the difference between Tendonitis and Joint pain! As of this writing I have been on R.A. medicine for a year and still suffer the pain in my shoulders, knees, feet and hands. They want me to go to a stronger drug but I also have an underlying condition known as MDS (Myelodysplastic Syndrome ) so I already have a compromised immune system with low blood counts.
iAnonGuy
Peripheral neuropathy symptoms within days. Stopped and switched to Cephalexin.
Having some “jumpy muscles,” but not sure if that’s a reaction to this medication, or something else.
Can we sue?
RP
PA
Had I not been so sick I would have read the risks associated with taking Levaquin. Since taking this drug I have been experiencing many of the possible side effects it warned of. Additionally, I was taking Ibuprofen for a fever which is not advisable to take with Levaquin. To begin I had extreme pain and tightness in my neck and shoulders.
There is a feeling of a lump or inflammation on my upper right abdomen, stomach and bowel issues, mouth sores, swollen glands and lymph nodes in my neck, a heart murmur, a detached membrane in my right eye that could cause retinal detachment, back and hip stiffness and pain. It has been 6 months and I am still experiencing these side effects.
The symptoms subside at times only to flair up again. In all fairness there was a warning that came with the medication which I did not read until I had already taken it.
Sandra
CA
Hi Jack, I was wondering how long your pain lasted or if it ever resolved. An 84 year old family member took one 750 mg pill and has tightness in both calves and can’t walk in his regular manner. I’m very concerned he will not get back to normal. Thank you for your reply.
Elise
Rhode Island
I urge you to refuse quinolones, there are alternatives. They can be dangerous.
I took Levaquin a few years ago for a sinus infection. Less than a half hour later I was vomiting , had diarrhea, and was shaking uncontrollably. I had no pulse. I was transported by the rescue to the hospital and thankfully was treated immediately. The doctors in the ER were wonderful.
I am writing this now because I was ordered Levaquin again this week when leaving the hospital for pneumonia. Thankfully my pharmacist informed the doctor who clearly did not read my list of allergies on my records ordered it did not read that I was allergic to it. She sent a nurses assistant in the room to ask me if it in fact I was. I do not know if she was unaware that Levaquin is in the quinolone family as that is how it is listed in my records. When I receive a new drug from the pharmacy I always ask them to double check it for me to make sure it is not in the quinolone family before accepting it. I have found that we must all be proactive to stay safe. I always double check with my pharmacy and go online to be sure before I take a new pill.
I do have to be hospitalized occasionally for another health issue and will definitely refuse to be ever be in the care of this hospitalist again.
Never be afraid to say no if you feel uncomfortable taking a new medication or having a procedure until you are further advised. Stay safe.
Dianne
new mexico
I trusted doctors. In March 2018 I took 6 levaquin pills for a bladder infection that it turns out I didn’t have. I have pain in my neck and shoulders down to my hands. My legs are very stiff. I was diagnosed with a torn rotator cuff. I hope that advice can be given on how to start feeling better. I am 75 yrs old and should have never been prescribed this.
I realize that this drug is a last chance for some people but I was extremely healthy. Please advise on food, vitamins. drugs etc to take to get better. I have tried acupuncture and now am on physical therapy, but I don’t seem much better. I live in terror that I will get more tendon damage, and I am very careful when I walk.
ron
SC
7/2018
i was treated in august 2016 for chronic cough that seemed to linger.after a chest xray that came back okay, i was prescribed levaquin (levofloxicin).the doctor asked if i was allergic to antibiotics and i replied no. within a couple days i was having ankle problems and figured i moved wrong so i found an old cane and used my arm to help hobble along. well that weight caused the wrist, fingers, and shoulder,and knee on the left side to have excruciating pain.by day four i was out of work and bedridden with ice packs and heating pads. i took ibuprofin for pain and it exacerbated the problem. when i finally decided to read the pamphlet one of the things i noticed was tendenitis. i immediately stopped but the tendenitis did not. it walked through about every joint in my body on both sides of my body. i have never expoerienced such pain in 55 years.
when i had the opportunity to get back with the doctor he was shocked that i experienced this. he informed me they prescribe it like candy for bronchial infections, and that only 1 in 99000 has a side effect. i don’t fault the doctor, he was merely trying to knock out my terrible cough.
i’ve read many articles since being floxed. being human, thus active, i sprang wrists, ankles, and have the occassional shoulder pain etc., and often wonder if it is related to levaquin. i can tell when its coming on, and it usually lasts about 24 hours in whatever joint gets injured. for example i’m writing this now with an ice pack on my knee.yesterday it was my ankle and had to use a crutch over 24 hours.every minute that passes it gets better, and am walking on my own with only a slight limp now.i can already tell by tomorrow they’ll both be back to normal.
jusy wanted to throw my story into the cyber world. its recorded at my doctors i visit for routine check ups, that i am highly allergic to the levofloxacin family.
Judy
Texas
I was given levofloxacin in February 2018 for pneumonia. The night of the sixth day I was hit with unbearable achiness all over my body; I could not sleep or rest. By morning it seemed to be a little better; however, I stopped taking the prescription. By noon the ache in every joint became worse. After three miserable weeks I took a five-day round of steroids. This helped everything but my right wrist and left leg. About a month later I took a three-day round of steroids. This seemed to help for about 10 days. Periodically the right wrist still has pain. The left leg below the knee still has unbearable pain about three out of seven days. Can’t sleep or rest during this time; very difficult to work or concentrate. I am trying to warn everyone I know about this drug.
Lenora
Dallas, TX
I am 60 years old. Took Levaquin for 5 days for bronchitis. Felt weak the entire time I took it but thought it was due to the illness. On day 6 I was so weak I could barely turn the steering wheel of my car. My appointment that day was up 10 steps, it seemed like a mountain to me. Went immediately to the City Doc and they said it was a reaction to the Levaquin.
I immediately stopped taking it. Since then I have had pain in various parts of my body. One day shoulder, then knees, feet, back, hips, hands. I am a massage therapist and I am having a hard time working, it has been a month since I stopped taking it and I was wondering if the Leveaquin had “long term” effects. I think it does. Thankfully I am still able to move and can handle the level of pain but hoping it doesn’t get worse.
Carolyn
DeSoto, Texas
I was prescribed a 10-day regiment of Levofloxacin 750 mg for a sinus infection in December 2017. After 5 days of taking the medication I felt extreme muscle fatigue in my legs, wrist, and hands.
I stopped taking, and assuming it was related to orthopedic problems, I went to see me orthopedic surgeon. Not sure if I mentioned taking Levofloxacin. I was given a cortisone shot. That did provide relief to the noted areas. However, I noticed the bottom of my feet would hurt after walking for exercise. I now have frozen shoulder and the pain is nothing compared the previous condition in the other shoulder in 2015.
I have constant pain in the right shoulder and it is difficult to sleep at night because of the discomfort. I can not do the exercises for my shoulder because the pain is go great. Actually, I feel fatigued most of the time and tire easily. My body has not felt the same since taking Levofloxacin approximately 3 years ago.
Red
Idaho
I also took this drug about a year ago for H. Pylori stomach infection. I was a very active 60+ yr. old female who was in the gym every day. Two days into treatment the pain in my lower extremities was so great that I would cry trying to raise myself from a seated position. I spent 2 months in ankle bracing for both achilles tendons. A year later I still can just barely take a little walk in the evening. No more gym, obviously, and now I feel much older and walk with a limp. This has completely ruined my life! I can’t believe a doctor would still give this to anyone unless they would certainly die without it. Hating my life now!!!
British Gal
Florida
Prescribed Levaquin Jan 2017 for mild pneumonia. On day 2 experienced shoulder clicking and aches but by day 8 could not raise arms and had to be helped to dress. Terrible. I went back to docs on day 3 saying drug not good for me as I didn’t feel much better. She insisted that it was a good drug for this condition even for a 79 year old, and FDA advised against use in elderly. 18 months later I still have shoulder pain, cannot take pressure nor can I swim much due to ?? bi-lateral shoulder tendonitis. I see a specialist next month.
Why are no law firms keen to take up such a case? My history shows no hint of shoulder troubles at all prior to taking this dreadful antibiotic.
Melissa
Georgia
My 16 year old son was prescribed levaquin because he stepped on a rusty nail at his summer job. He took the medicine on our way home and within 15 minutes, had broken out in a severe allergic reaction. We immediately stopped and got medical help.
After talking with the emergency doctor and doing my own research, I am appalled, frustrated and hopping mad that our doctor prescribed this medicine for my son. I am extremely thankful that he had an immediate reaction and will not take several doses before we see any other symptoms.
Ron
California
My husband had a prolonged use of levofloxacin, 20 days, due to a hospital stay which started with a bladder infection and turned into sepsis.
Ten months later, he is still suffering with pain in his feet, these pains started in his upper thighs and moved to his hips, knees and legs. The pain is worse at night.
Three different doctors, including his G.P., Urologist and Neurologist and a pharmacist have been extremely skeptical – saying it is highly unlikely that the pain is caused by use of the antibiotic.
Peach
Los Angeles
I have had pneumonia since February 2018. So after a standard Z-pac round of antibiotics followed by months of coughing, it was decided I would take 500 mg of Levaquin fo 10 days.
I was told by the pharmacy to not “lift weights” and be careful.
I was very careful and took all 10 days of the meds.
But now (around day 11) my knee swelled up. And my left shoulder has been in pain. I had a knee MRI which showed two small tears. So after the initial cortisone shot, I am now getting a series of three injections of “gel” into my knee.
The shoulder cortisone shot worked well.
I ice my knee about 5 times a day.
However, the worst problem is my voice. I am hoarse and can barely talk. Tomorrow I will begin to see doctors about my voice. For now, I am on “vocal rest,” and it’s very difficult.
I plan to report this to the FDA, but evidently they know already. I guess someone is making some money. And this Levaquin is out there.
Dede
Missouri
I have COPD and get pneumonia at least once or twice a year. My doctor has been prescribing either Cipro or Levaquin probably for the last 10 years or so (I have been going to the same dr for 25+ yrs). My dr is aware that I have severe leg pain caused from neuropathy. Also have muscle weakness to the point it is extremely difficult to walk up and down stairs.
I have always trusted in what she prescribed was accurate. This last dosage (just last week) has brought on more medical issues. I started having trouble with my eyesight ( blurry & seeing double), plus my upper left arm hurt so bad it was difficult to move or lift anything. I made an appt with my eye dr. (I had just seen him in Feb. and got new glasses).
After checking my eyes, he was confused as to why the problems were happening. Everything physically checked out ok but the tests did prove my vision in my left eye was impaired. He prescribed ‘prism’ for one of my lenses.
Today, I decided to check on side effects of levaquin because it is the only thing different that I had done since my last visit to eye dr. I AM SO UPSET TO SAY THE LEAST! Is it possible the Levaquin or Cipro has caused all these (not the COPD) problems?!? I have spent thousands over the last 10 yrs for either medical bills, tests, or prescriptions!
Louise
USA
I took levaquin several years ago. I have never experienced an allergic reaction before so I was a little slow on realizing. Shortly after I started taking Levoquin I experienced muscle weakness, extreme enough that I was dragging my legs to take steps, and I had to use both arms to raise my hand to get something.
I told my doctor after a couple days and he immediately told me to drink lots of fluid and stop taking. My weakness eventually got better, but I still have joint pain in both my hands and my elbows. I was also told not to take Cipro as it is in the same category.
About a year later, I was told I should have reported this to the FDA but I did not. After reading some comments I ‘m glad I did not try, it sounds like a very frustrating process.
dennis k
PENNSYLVANIA
I was given 500mg. Of levofloxacin for walking pneumonia 3/27/18. The medicine made me experience pain worst than at age 70 I have been living with. My knees are in such pain that by the end of the day going up the stairs is a torture. My neck pain now affects the front of my shoulders. Elbow pain comes at any time. My tendons in my feet have given foot pain I never had. This drug is the worst drug I have ever taken. Never had any experience like this. Could only under worry take 8 pills of the ten.
Marie
Texas
I was damaged by taking one dose of Levequin ( Levofloxacin )
July 9, 2016 & it has drastically changed our life. I took it about mid morning & started noticing pain, in different parts my body, within a couple of hours. By 11 PM, I was in ER, in excruciating pain & I’ve been in pain ever since. My doctor was less than sympathetic & I can certainly say, in denial.
According to test done by a very kind & sympathetic Neurologist, the Levaquin caused me to have acute nerve & muscle damage in both my legs, especially my right leg & foot, both my arms & part of my back. At first, it affected my face & my speech & crippled my left hand. Thank God, with my own therapy, I’ve regain the use of my left hand, I am left-handed. At first I couldn’t control either one of my legs or my arms, which caused me to have to use a wheelchair to get around in my home. This caused me to become non-ambulatory which resulted in blood clots (deep vein thrombosis) behind my right knee, which cause my right leg to die, twice, which caused me to have two radical surgeries to improve the blood flow to my leg & my foot. Thank God for a, more than wonderful Vascular Surgeon.
The doctor informed my husband that this could take my life &/or cause me to have a stroke or a heart attack or brain damage or cause me to have my leg amputated, at my hip. Thankfully, none of that happened. I still have trouble controlling my right leg & continuous concerns of blood clots. Because of this, I have to take blood thinners, the doctor tells me, for the rest my life. Because of this, I no longer drive the car. That, in itself, is a life changer.
At first, I had to use a walker & most of the time, I have to use a cane but if I walk longer than five minutes, I have to use the wheelchair. I live in constant, 24/7 pain, from one degree to another, sometimes severe. The only time I’m not aware of the pain is when I’m asleep. Thank God, I can sleep but I don’t sleep much at night. I have to take two, high potency pain killers.
This is all very painful & discouraging. Thank God for my Wonderful Husband ( 50yrs. :) who helps me, tremendously. My heart goes out to other people who are suffering damage from this heinous drug. God help all of us, we need it!!!
PJ
MO
I was given two rounds of Levaquin in 2007 for Bronchitis. After the first round, I noticed that my feet hurt so bad that I felt like I had fallen arches. We traveled to the beach for vacation the next week and I couldn’t leave my hotel room. Next, the pain moved to my knees, then hips and shoulders. I’ve had knee replacement and need another one on the right leg. I believe the damage was from the Levaquin. I have found that if I take Magnesium daily (never miss a dose) that the pain is bearable and some days I am free from pain. I had read on another site, that the Levaquin depletes your body of Magnesium. If I ever miss a dose, my body goes back to the all over pain and stiffness. (Look up “floxed”)
Irene G
Maryland
Why is the medical community ignoring life-threating situations like this? Our health care practices could use some overhauling. There is more to patient care than filling out forms and providing insurance information.
Irene
Maryland
I have been prescribed Levofloxacin to treat a UTI. I have a history of reaction to any medication so I have not taken the prescription. I am 93 years old and have not been given any information on the possible danger of using this drug. I finally got an appointment with the prescribing doctor (a uro-gynecologist) for this week and will be exploring the possibility of an alternate treatment.
Linda S
Brandon Mississippi
I have been on levaquin for a week and I am in bad pain all over especially in my neck and shoulders and back also hips,I’m having trouble walking…I had no idea it could do this untill I looked on this site, now I’m terrified.
Laura
South Carolina, US
My husband had back surgery on March 27th and a post operative UTI he was placed on Levaquin because of the bacteria that grew out from His urine Culture. He had a terrible headache for Three days it was so bad they thought he had a brain bleed! Beware.
Cindy
South Carolina
On 2/9/18 I was prescribed Amox/K Clav for sinus infection and bronchitis. I improved around day 3 but then by day 5 it was worse than when I first went on Antibiotic. So on 2/16/18 Dr. put me on Levofloxacin 500 MG. This did knock out the infection but around day 5 I could not straighten my knees to walk as the back of then were like a balloon. My shoulders and elbow also hurt. Day 8 I stopped taking the Levofloxacin. Knees have improved but I am left with my right elbow not fully extending or bending. I am seeing Dr today at Steadman Hawkins. Now I am thinking this is left over from the Levofloxacin.
Jan
VA
I was admitted to the hospital for an angiogram and needed three stents placed in a couple graphs I had. I was not feeling well for almost a week so I went back to hospital because of pain in my lower groin area. They found that I had DVT deep vein thrombosis. This was caused when I had the cath. They also found I had pneumonia so I was put on 3 blood thinners and Levofloxacin. The doctor gave me one levofloxacin before I was sent home. I filled my prescriptions and continued to take my drugs. After I took a couple days of Levofloxacin I was having knee pain thought it might be from the blood clot so went back to hospital and had more test to see if it had moved, they could not find anything. I asked about the Levofloxacin because I had now read the side effects of the drug. The doctor told me that it was rare cases, but I see from reading more peoples comments there are too many people having bad side effects from this drug. My pain has gotten worse plus it moves around like some other people have said. Both my knees were so bad that I stayed in bed for 3 weeks I put ice on them. It was the last time I went back to the hospital that doctor said I diagnosed myself I had tendinitis. I just was in the hospital again for my feet swelling and blood pressure up I was not sure if it was from blood clot, but they say I do not have it anymore. I have a lot of pain and it moves to different parts of my body. I have tendinitis in my shoulder before this, but now it is hurting bad. I have osteoarthritis and bursitis in my hip and that hurts now also. I have heard the pop and was concerned of my tendons tearing.
The first thing that was on the medication guide says the most important information I should know about Levofloxacin (Levaquin) it can cause serious side effects, some of these side effects can happen at the same time and could result in death! How can you give people such a drug and to say that they are rare side effects. I did not want to be on them, but I took them because of the pneumonia and having stents put in my heart I was trusting the doctors. # 1 symptom after that is Tendon rupture or swelling of the tendon. This drug has been black boxed that is the most serious label for a medication. The side effect can happen 3 months to a year after taking the medication just one pill. Now I see the side effects can last for years this is terrible now I may endure the side effects for years. I am in so much pain and it does move through different body parts. The thing that worries me the most is it can rupture or tear your tendons with irreversible complications, I think mainly with people like me over 60 years of age. Please call the FDA (1-888-463-6332) and tell them about your side effects hopefully this will keep it off the market. I think my pharmacist should have talked to me about this dangerous drug, not just stuff medication guide in a bag. It says to ask your doctor well he gave me some at the hospital how did I know about any side effects then if he did not tell me. If you have the side effects stop the drug and do not exercise it makes it worse. See your doctor or a new doctor because that one gave you the drug and had to know the dangers it was black boxed!
#2 Peripheral Neuropathy #3 Central Nervous System #4 Worsening of Myasthenia Gravis. The side effects are so many just some of these are Liver damage, intestine infection, serious heart rhythm changes ( I have a heart problem they gave me this drug) Joint problems, changes in blood sugar, sensitivity to sunlight. There are so many ask your pharmacist they should have given you a medication guide with prescription. You can google it also.
Karl
Oklahoma
I am a 64-year-old male. My doctor prescribed 500mg of levofloaxcin for 7 days for an bacterial throat infection. He did mention to me in rare cases there can be issues with Inflammation of the tendons. I am athletic and usually run and bike 6 days a week. After the third day I went for an easy 4 mile jog with my friend. Within a mile, I immediately noticed my calves were locking up and began walking. I came home and I could barely walk, experienceing pain in my hamstrings and calves. Now after reading the side effects, there is no doubt that this medication affects the tendons. I’m going to stop taking the medication and call my doctor in the morning.
Mort
New Hampshire
July 10, 2018
I am 82. Contracted pneumonia about ten days ago, and was prescribed one Levofloxacin 760 mg for 7 days. After about five days I felt sharp pains in my right calf while watching TV, and had trouble walking for several days.
Then similar pain in my left calf. Not too severe in each leg, but enough to slow down my gait. Finally, I looked at the side effects and noticed the potential damage to tendons among other dreadful consequences. I try to keep in shape by running on the treadmill, and minor machine weight lifting.
Then stretching, which includes stress on my calves, thighs and and Achilles. As Karl suggested I started taking Magnesium, but from all the horrific stories I’ve been reading here, there seems to be some justification to look into a class action suit.
This is the first time in my life that I have experienced side effects of this seriousness.
Sadie
Texas
I was prescribed Levofloxacin 500 mg. for an U TI by A specialist and was supposed to take it for 7 days. During the first couple of days I could not sleep and when I did I had weird nightmares. By day 5 My Rt knee became so swollen and it would collapse on me and I stopped the medicine, but the next day both knees were hot and swollen.
Now, both of my knees go out on me, and apparently there is no cure for the side effect. Now I either have to have my husband to support me as we walk or use A cane, as the leg may seem to be OK for awhile and then the knee will just give out on me so you never know when it is going to happen
Blanca S
Miramar, FL
I was prescribed Levofloxacin 500mg on April to treat a suspected infection. I was showing an inflammation on my chin. As soon as I’ve started medication I’ve started with a type of Flu symtoms pain allover, specifically my knees, fatigue, a severe weakness, could not sleep well the whole week waking up every hour, and after finishing the 7 pills I’m still feeling pain in my knee and the mouth of the stomach. I hope after the chemical gets out of my body I can feel well. Will never take this medication again.
David
Fort Myers Florida
On the evening of April 10th I picked up my prescription that contain 4 750 mg tablets I’ve Levaquin. I was to take one every other day and it was to treat double pneumonia. I took one pill on the evening of April 10th and then I took my next one on the morning of April 12th. Within an hour I was experiencing severe pain in the calves of my legs. I was told by a nurse to call my doctor’s office because this antibiotic can cause permanent damage. I called my doctor’s office and they told me not to take any more of that drug and they would prescribe a different antibiotic. It has now been 10 days since I took the last 750 mg tablet and the calves of my legs are still very very sore and it is difficult to stand or walk any distance at all. The pain is not as severe as it was on that initial Thursday or Friday it was unbearable then now it is just very uncomfortable. After reading all the reports from the other folks I just wonder how long this will last?
Sandra
CA
Hi David. I am sorry to hear what happened to you as a result of Levaquin. I was wondering if the pain in your legs ever went away because someone I know is having the same problem after just one 750 mg pill. Thank you for your reply.
Julie
Oakville, Ontario
I started taking a five day course of Levofloxacin for pneumonia. By day three the Levofloxacin had given me severe joint and muscle pain throughout my whole body. I have never experienced such pain in my life and it continues four days after completion of meds. I feel crippled and it is very difficult to stand up straight and walk. I will never take this drug again. Everyone is different so I suggest you discuss all the possible side affects with your doctor.
Cathy
Illinois
Took 5 doses of Levaquin (750mg), and I had terrible side effects. On days 1-3 I did not sleep, other than dozing once in a while. When I dozed I had horrific nightmares. Day 4-5 I had heart palpitations/racing, severe dizziness (whole room spinning), severe neck pain (left side), and radiating up over my head. Terrible headaches.
I stopped taking it. It has been 4 weeks, and I still have the severe neck pain and headache. No OTC headache meds even take the edge off. I was not on any other meds before or during the levaquin nightmare.
Tonia H.
Florida
I started taking the generic Levoquin 750mg for flu on March 23, 2018, and 3 days later my shoulder was hurting. Then by day 5 I could hardly lift my arm. Then on day 6 my knees were swollen and hurt. Now 4/9/18 both shoulders hurt, right elbow, right wrist and hand, and both knees all hurt something awful. I cannot move well, cannot squat or kneel at all.
It is awful, and to think it will last for who knows how long is terrifying. I have to work, and I clean and paint for a living. What am I going to do? I pray for us all.
(I had already taken a z pak and predisone that did not work on the flu. That is why my doc gave me this strong med.)
Cappy
Chicago
500mg Levofloxacin for 5 days. Last pill was 4 days ago. Today developed significant aches and pains primarily in shoulder area, and to a lesser degree in neck and backs of calves. My hope is that this will pass, rather then becoming an on going problem. What is particularly irritating is that this drug was prescribed “prophylactically” because doctor considers my lungs compromised. Never will I take this drug again!
Bev
Baton Rouge, La.
I was ordered to take Levofloxacin 1 per day for 10 days. By the 7th day I thought I was dying. I was really alarmed when I stated bruising terribly. I picked up a box, carried it to another room and had a dinner plate sized bruise on my stomach. The weakness was terrible. I was getting worse not better. I was terribly depressed. I hurt all over like I had run a marathon. I quit taking it because I thought it was killing me. I have now been off the medicine 5 days. I am still weak and have to use a walker now. One of the muscles in my left leg feels like it is sprained. I don’t seem to be getting better. My advice is don’t ever take this medicine.
Terence
North Carolina
Levaquin ruined my life! I am literally disabled for life and Johnson and Johnson will not take on the responsibility of the damage this drug has caused me.
Rita Jones
AR
I can’t even stay up long enough to give u all the problems this has caused. It may be the death of me yet as i went into A Fib and am still in it. This med should be banned before it disables or kills more people. I would like to hear from anyone that has gotten past these symptoms.
Sue
Bellefonte, PA
I was put on levofloxacin for pneumonia for 10 days a few weeks ago. I finished my prescription with some occurrence of joint pain. However, a few days after I stopped, my joints were in extreme pain from just some light activity at work that never bothered me before. I am still hurting, but it has lightened up with resting and no activity.
Bev
I would also like to know has anyone gotten past these horrible side affects? I feel like I will be this way permanently.
Ben
P.R.
I was prescibed Levofloxacin 750mg per day for 30 days on January 30,2018. I started getting pain in my hands, arms and left shoulder, and at times it was like a pulse of extreme pain. When I moved my right hand I could hear my bone crackle in my hand and arm. It would also swell. I felt weak and barely able to move. I didn’t know that it could have been the medication until I read about it on this page. This medication was given to me for bacterial prostatitis. I would also like to share information that worked for me. I was surprised when I ate some name-brand light salted cocktail peanuts. That same day I had a reduction of pain. I stopped feeling the extreme pulse of pain.
Kathy
Palmetto Fl.
I started taking Levofloxacin last Wed for suspected pneumonia. Today, Mon., after the 6th pill I was walking back to my car and got a horrible ripping pain in my right calf that stopped me in my tracks and started me crying. I hobbled and cried out to my car. I am now on ice and am going to call the dr.
Bobbi
Florida
I am allergic to penicillin and all antibiotics in that “cillin” family.
After trying 2 other antibiotics with no success to treat a recurring UTI, I was prescribed Levofloxacin 750 once a day for 10 days.
The first 3 days were horrible! No sleep, brain fog and aching all over. Then I started to feel better. I assumed my body had adjusted to the medication and it would be smooth sailing the last week. I was mistaken!
On day 5 the muscles behind my right knee began to hurt. Then, my right shoulder had stabbing pains.
And I still continued the medication thinking I had twisted my knee while walking my dogs. I finished the Levofloxacin 750 two days ago, and I am typing this with my very swollen knee resting on a pillow with ice packs.
This is so frustrating! I am not super athletic but, I do walk daily and work out 4-5 days a week. Now, I sit with ice packs or hobble around.
If you do decide to take this antibiotic be very aware of any or all symptoms.
Sylvia
San Antonio, Texas
I was put on Levaquin for 10 days for bronchitis. I’d read the side effects before taking the meds but I was done with my cough & feeling sick that I took the meds. I mean you trust your doctor when they give you a prescription, right? After 2 days I was feeling much better, but after 5 days I stopped taking it because I started feeling joint & muscle pains in my hands & shoulders. I’ve been off for the meds for over 2 weeks & I am still in so much pain that I can’t sleep at night. I can’t raise my arms, grip, hold or open things without having extreme pain. If all these side effects are true, why is it still on the market. I’m sure there was another prescription out there for bronchitis without all the severe side effects. To make matters worse I am having a relapse…bronchitis again!!
MARY-MINN
EUGENE, OR
Levaquin for 10 days for pneumonia: 2 days after I finished Levaquin, some food still has unpleasant sour aftertaste. Due to lack of appetite, I’ve lost 13 lbs. since I first got sick 4 weeks ago. I have no complaints about low appetite and not craving sugar. I’m usually a food junkie and sugar addict, with over-refined taste buds (olfactory and gustatory “eidetic” memory. It’s just a little odd. How long does this last?
Lu
Ca
After failing Zithromax for sinus infection, my MD prescribed Levaquin. No warning or cautions were given. Within minutes of the first dose, I became very dizzy, sedated, and drugged. Shortly thereafter, I became confused, and started to experience pain in all joints, and then numbness on both sides of my face.
I was in touch with two MDs, they did not suggest coming off, and I was so cognitively affected by that time, that I did not research it. Pretty much all I could do was lie on my bed in a daze. I took dose #2, and the symptoms escalated. By then my daughter was involved and researched Levaquin, then told me to stop taking it. She had to navigate with the Dr, as I was too stuperous and generally out -of-it.
Today is the first day off Levaquin. Still dizzy and disoriented, still experiencing pain in neck, shoulders, hips, knees, ankles and feet. Can’t walk well or securely. Sides of face still numb. I am 81 years old, this is by FAR the worst drug experience of my life. I just hope these side effects fade!
Am going to update my healthcare directive to state that forbid the use of Levaquin in my medical care.
Denise
Yakima, WA
I started taking levofloxacin 9 days ago, after several other antibiotics and steroids failed to clear up my bronchitis and sinus infection. At first my skin hurt to the touch on my shoulders and arms. Now my muscles and tendons in my shoulders hurt so bad, I can barely lift my arms. I am awaiting a return call from my doctor, and hoe that if I quit taking the medicine, the pain will leave.
Denise
Yakima, WA
Four days off the medication, and I can still barely move my arms. My shoulders ache, and I can barely sleep. I will never take this medication again.
Denise
Yakima, WA
It’s been a few months. My upper arms and shoulders still hurt. This medication needs pulled by the FDA. Too many people are having serious problems, that are life altering, after taking it.
Christine
Belleville
I’ve had a severe cough for many months and have been trying to find out the cause. I went to an ENT, got x rays, a CT scan, and even checked for acid reflux. He suggested I go to a gastroenterologist because I showed a mild case of reflux. I noticed he didn’t check all the scans and went to another ENT who showed me an infection in my sinuses. She prescribed Levofloxacin because I’m allergic to penicillin. I’ve taken Cipro and Levofloxacin before without any side effects. This time I was on one 500mg per day. I had pain in my muscles after the 5th day but thought it was due to the weather. By the 8th day I was in severe pain and stopped the med. She prescribed doxycycline. I’ve been off the Levofloxin for 8 days and have really severe pain in my upper arms and the muscles above my knees. Getting up from a chair, couch or toilet is a major effort. Don’t know what to do.
David
Metairie, is.
Levofloxacin 750 for 7 days to treat pneumonia, I stopped after 5 doses, and yes it did cure my pneumonia I have a side effect that I haven’t seen mentioned hardly. I’m 62 & I still work in the maintenance field. I started back to work 3 days after my last dose & guys I’ve been experiencing an amped up feeling in my head that just won’t go away. I come home, and I still feel amped. With that it makes you very tired all the time because you’re not getting the beauty sleep. This is a very powerful and toxic drug. Do not use unless you read the warnings and are willing to say the benefits outweigh the damages. I hope my side effects will fade as time goes on. Whether the effects are permanent I just don’t know.
Mark
Ohio
I was prescribed Levaquin 500MG 2X a day for a suspected prostate infection, even though the test for bacteria was negative. The physician merely mentioned the name of the drug, which I had never heard of, and nothing about the warnings. I read the pharmacy insert with warnings of “rare” occurrences of tendon problems and muscle pain. I was due to take Levaquin for 10 days but stopped on day 7 as I was developing leg cramps and numbness in my feet. I stopped taking the medication over 2 weeks ago and still have leg and foot pain, am unable to exercise and even a short walk makes my legs feel like I have run a marathon.
Darlene Turner
Tennessee
I had a runny nose and headaches which I thought was a bad cold. A doctor in Chattanooga area recommended a drug call Levaquin 500 mgs. I took the drug four times and felt horrible. I felt real bad pain in my legs, and this occurred after four days of being medicated. I have since had a torn rotator cuff due to torn tendon, and now I found out I had a torn tendon in my right hip. I called the doctor on the fourth day after taking this medicine and explained to him that I could not walk on my whole foot and had to walk on my toes. I am now experiencing pain in my right shoulder, and it feels like a torn rotator cuff as well. I went to a pain specialist, and he found both torn tendons on my left shoulder, and now they tell me I have torn tendons in my right hip. I need some help in getting better. I can’t sleep, as I was told I need a CPAP. Please give me some advice that might help me in this pain problem.
Geraldine
Indiana
Thank you all so much for sharing your personal experiences. My husband picked up my Levofloxacin 750 to be taken 1 for 5 days. I read all of the warnings and side effects and was in shock. My doctor was hesitant in prescribing this medicine to the point that I asked about any worrisome side effects. She only mentioned the possible tendon injury. She even said, because she had treated my upper respiratory infection, sinus infection and thrush with a z-pack and I was getting over the flu all in the last 3 weeks, that she would need to go to the “big guy” to treat my on going nagging cough. After reading the side effects out loud to my husband we agreed I could not take the medicine and would call the pharmacist. I then found this location, and I’m so thankful I read it. I already had some of the problems before taking this medicine. I can only imagine how much worse I would be, based on so many experiences. I agree this medicine should not be taken.
Jennifer
Pasadena Ca
Was prescribed 500 mg Levofloxacin, after one day I cannot bend my ankle and have tingling in my tongue. Looked at the side effects and sure enough I feel like I have them. Allergic to Cephalexcins and have only one kidney! Was advised by a friend of all of the terrible side effects stopped taking it immediately! Going to my regular doctor tomorrow.
Sandra
South Carolina
After taking only 1 levaquin I started running a high fever, had severe diarrha, nausea, vomiting, excrutiating muscle and joint pain. I could not walk. I truly thought I was going to die. Everyone should be warned about these side effects. Plese don’t take this drug.
Rhonda Y
ND
I was given levaquin and steroids for pneumonia…after 4 days I could not walk and was diagnosed with archilles tendon ruptures in both ankles. It has ruined my mobility as I cannot walk over a few feet. A walker doesn’t work because I still need to put most of the pressure on my ankles, I apparently have no recourse and am now unable to go for a walk or stand for any period of time. My life is now a struggle just to get around. It is a shame that this can happen and no help for a wheelchair or scooter to increase mobility.
Kathryn
Tx
I was prescribed levaquin two years ago. After a couple of days my joints hurt so badly that I couldn’t turn a door knob or go up a step without being in severe pain. My doctor insisted it was not the medication and tested me for RA, which of course came back negative. I will never take it again.
Rebecca
WI
I have pneumonia, and I took my first pill today. My tounge got tingly, and my throat started feeling weird. I had already read the pamphlet, which scared me to death. I have asthma so I am on albuterol, which is a steroid. I called the nurses’ hotline, and they said to go back to the ER in case of allergic reaction. My arms are very weak, and my legs are hurting like I’m getting little pinches. They are not treating this very seriously. I’m so angry that all of this has happened. I’m more angry that I see everyone going thru a rough time after already being sick! I’m only 28, and I don’t want to feel like this forever
Cristina
East Coast
After taking Levofloacin 1 tablet 500 mugs day on 3 rd day extreme pain in my wrists and right thumb as well as upper arm near shoulders and back of neck Also restricted movement in left arm couldn’t fasten bra or comb hair without piercing burning pain it’s been over 1month & I still have the pain some days worse than others
Donald
KS
I was given Levaquin while in the hospital for a chest condition. At first I had the sensation that I was going to die, I called the nurse and they stopped the IV that was giving me the product. I had the sensation that my arm was asleep at first, now it is constant pain, tingling in my fingers, constant pain in my right arm.
No doctor will admit that Levaquin caused any of this. I had surgery but that sure didn’t help. No attorney will take my case. I am just out of luck and a right arm.
Cristina
East Coast
After taking Levofloacin 1 tablet 500 mugs day on 3 rd day extreme pain in my wrists and right thumb as well as upper arm near shoulders and back of neck Also restricted movement in left arm couldn’t fasten bra or comb hair without piercing burning pain it’s been over 1month & I still have the pain some days worse than others
Deborah
Washington, state
I took it to prevent infection when I got a nail in my knee. This was several years ago. I have felt like my ligaments are disintegrating. I have neuropathy and joint pain. I had always been very active. I have weakness all over even though I keep trying to stay fit.
Why does this medication have this effect? What is in it that destroys body tissue?
George
Kenya
I can’t believe what I’m reading here I just started levofloxacin 500mg*2 day for 5 days but I’ve just taken 4 tablets and I really feel like I’m going to die if I finish this dose. I’d rather get an alternative antibiotic for my uti. I’m completely weak and pain pricks in my joints . this page has just confirmed my fears that levofloxacin is close to poisonous.
Sue
Portland, OR
Jan 2018: Right now I am experiencing horrible muscle fatigue and joint aches all over my body after taking Levofloxacin (Levaquin) for 9 out of 10 days. Generally I am an athletic, sturdy 55 y/o female – but prone to sinusitis and allergic to penicillin, plus some other common antibiotics. After getting the nasty common cold going around in December, which went straight into sinus infection, and taking a round of Zpack- the sinusitis returned, and Dr. prescribed Levofloxacin with the emphasis on watching for Tendonitis /tendon tears.
I read through the other warnings but it wasn’t until doing online research that I discovered the muscle fatigue and joint pain associated with this medicine. I certainly hope it goes away!! Even when feeling under the weather I like to walk the neighborhood to get fresh air and a little exercise. Doctor and nurse said that would be OK, and yet by day 5 or 6 on Rx the muscle fatigue began settling in. Like someone else mentions, I feel like I just finished a marathon and boxing match. My hands, shoulders, lower back, knees, and quads (thighs) feel achy, fatigued, weak, and I feel like I’m 120 years old.
It’s not a tendon so much as the entire joint/muscle group in each area. And occasionally I experience the hoarse voice, extreme agitation, and brain fog. This is scary to me, and I certainly hope it goes away as I have my seasonal ski pass – and I can’t imagine skiing right now. Getting up/down from the toilet takes every ounce of strength :( And my quads are normally super strong!
Sue
This was my dosage: Levofloxacin 750 mg, 1x per day, for 10 days. The first 3-4 days I experienced the trouble sleeping/waking often even though my cold medicine usually knocked me out – and then the muscle aches & fatigue began.
Mary
Pennsylvania
I was put on Levaquin 500mg once per day for 20 days along with doxycycline 100mg 2x per day for a Sepsis infection from Breast Cancer Reconstruction Surgery. I am severely allergic to Cephalosporins so am limited on what antibiotics I can take. I was in the hospital for 6 days on IV antibiotics & they sent me home on these 2 .. I have taken Levaquin in the past with no issues. Once I reached day 8 I started to have muscle/tendon pain in my left shoulder which continued to get worse each day & adding in knees, ankles & hip. I am now on day 16 & can barely lift my left arm. I know I should stop taking it but so afraid the sepsis will come back!! These side effects are real & debilitating.. I will stop & not take the last few days of pills & call Dr on Tuesday – seeing Dr on Friday anyway to check on the infection..
Ann
Georgia
I was prescribed Levaquin in November 2017 for a bad cold, sinus drainage in ears and throat. I took the pills for 3 days and started feeling poorly, but since my cold seemed better, continued to day 6. After that day things were noticeably worse. I had cramps In both calves, pain in the upper leg to the pelvic bone, tingling in my fingers. I stopped taking the drug and let my Dr. know never to prescribe that for me again. I am now on a different medication; however, my leg pain and tingling in fingers has gotten worse. At times I have trouble sitting and cannot sleep well. I wonder if this is something that I will have to live with. I cannot understand why this product is still on the market. It seems to do more harm than good.
Desta
Winnipeg, Manitoba
Prescribed for sinus infection. 500mg levofloxacin a day. Have taken my third pill, and my eyes feel really weird. They don’t look different but I feel as if I haven’t slept in days. Felt this yesterday too. Today I have been also feeling sick to stomach. I was not informed of any of these serious side effects. I read they can be worse if taking steroid drug at same time. My doctor prescribed steroid nasal spray four times a day. Unbelievable. Wish I had read up before taking first pill. I know I have taken my last!
Robert
Texas
I am a 61 year old man and was given Levofloxacin for strep throat 500mg for seven days my worse side effect is severe fatigue I went back and seen a pa she wouldn’t even consider the medication the cause I went in the next day for blood work and don’t have the results yet. I took my last dose on the 12 so it has been 12 days will the fatigue go away if so how long does it take.
Joyce
Michigan
I took one dose of this levofloxacin 500 9 hours ago. I noticed a strange feeling come over me an hour in. Then I became a bit shaky and hyped up. I noticed I couldn’t taste my food so well tonight, chalked that up to having a very bad upper respiratory infection/virus. I also noticed I kinda felt a vertigo_0 type sensation, could be the sinuses, I thought. Then 2 hours ago I went to use my essential oils and noticed I couldn’t smell them at all. So I sniffed a few of them and became very worried. I am wide awake and shaky right now filtering through every bit of internet information I can find about side effects of this drug and I am scared to death. I’ve also begun to have diarrhea with blood in it. My God this is insane. I’m so scared. I wish I could find something that would give me an answer to, if I take benedryl will it somehow help stop this reaction I’m having. But I also had a shot of depro today as well. I’m also wondering if there is a way to flush this from my system. I don’t panic, I’ve been through too much at this point. However right now, I’m panicking.
Jack
Colorado
Had only two doses of Levaquin and now am unable to walk! Severe calf pains and ankle aches and pains. This pill should be off the market. It was prescribed for bronchitis.
Ronda
Bainbridge, GA
Had Levoquin for 7 days. Now severe muscle spasms,joint pain, and stiff tendons. Would like to know what to do.
Deb
Las Vegas,nv
I was prescribed Levenfloxine after 7 days out of 10 I stopped taking the pills. It has been 3 weeks and I still have trouble walking. Thinking seriously about a law suit.
Toni
Maryland
I am suffering horrible pain in shoulders, knees and legs since Nov when put on Levaquin for bronchitis. It started almost at the end of taking this drug. I have heard and read horror stories of this lasting 2 yrs and some permanent. I cannot use my shoulders, the pain is non stop.
Stairs where I was healthy and went up and down with no issues are extremely painful now. I went to my rheumatologist thinking anarthritic or jointnof something. As soon as I told him I had been on Levaquin he gave me the sad results of this drug for me. I have severe tendon issues where 10 days before that I was perfect.
Seriously FDA…seriously!!!! When you have the amount of people with quite possibly life damage what the heck…does this need to happen to one of you first! I go on record as this is real and a real issue for healthy active people to be crippled!!!
Judith
Cleveland, OH
I had been diagnosed with bronchitis and pneumonia that I caught while on a cruise during the last week of January 2017. I was given Levofloxacin on January 31, 2017 and took it for 8 days until I begged my doctor to let me stop taking it. That drug made me more sick than the pneumonia! I had fevers and was tired before I started taking it. However, after I started it, I became extremely weak, dizzy and very nauseous.
The roof of my mouth and my gums were so raw that I could only eat very soft, bland foods, such as yogurt, cottage cheese, applesauce, broth, etc. The nausea was very severe and I lost 15 pounds in 2 weeks. There were only a few foods that I could tolerate and that lasted well after I stopped taking the drug, at least a couple of weeks. I also lost a lot of hair for months until I started taking a B Complex and a thyroid supplement.
My right knee, left elbow and right hand joints are now all hurting for several weeks. Don’t know when this will end, if ever. Prior to this, I was mostly a healthy person and was seldom sick.
Carol
Texas
I was prescribed Levaquin for 10 days for Chronic Bronchitis and a Sinus Infection. Within 3 days of taking this medication I had serious issues with extreme pain in both legs when I walked or did anything requiring the use of my legs. On top of this, I already suffer with Trochanteric Bursitis, Sciatica, lower back issues and have an artificial hip. I did not know where this additional pain was coming from until I logically figured it out and read more about Levaquin. My doctor only advised that I not do any heavy lifting due to the possibility of injured tendons due to the Levaquin. I avoided any lifting. Additionally, this medication did not help in curing the Bronchitis or Sinus infection.
I asked him how long before the adverse effects from the Levaquin would go away, and he has no idea if they will ever go away. In that I am already disabled with the other issues, this is not something I want to deal with. The pain is excruciating and debilitating. Why is there no class actions suits against these drug manufacturers for all the issues that a huge number of people suffer due to these medications? Staten drugs have done a similar thing to me and are the main reason I had to have a hip replacement much earlier than originally predicted. It also forced me to retire from my job as a truck driver. It seems like the drug companies are trying to slowly eliminate us. They certainly don’t help us.
Donna
Freeport NY 11520
I’m a person that had bleeding bladder infection and was prescribed Levofloxacin, 500 mg for 10 days. After 6 days of taking the medication my whole body was in pain, especially my right knee. Went back to doctor and showed him knee, and was sent for a sonogram. Was told that I have bakers’ cysts. My leg, knee, and ankle have not been the same since. I cannot bend or kneel down on my knee. Every night my whole leg blows up swollen to the point I have to go to bed-at 7pm at night. I feel like my life is ruined due to taking this medication. I’m so upset about this. To think I will be like this for the rest of my life is unbearable.
Mary J
AZ
egad I have been taking Levoquine for 18 days. today my arm hangs and I cannot lift it up. my leg is starting to lose strength and my back is killing me. I have been constipated cannot sleep.
I can barely hold down my food. do I need to go to the emergency room.?
Cherilyn
I’m having the same issue with my arms! I took the full 7 day dose for diverticulitis, but started having the similar issues on day 6, but finished the course (as instructed). I have a call into my dr right now, but am also heading to my PT that was already scheduled to talk with her about it.
I hope you are having better luck.
Mary
Sun city Az
egad I have been taking Levoquine for 18 days. today my arm hangs and I cannot lift it up. my leg is starting to lose strength and my back is killing me. I have been constipated cannot sleep.
I can barely hold down my food. do I need to go to the emergency room.?
Rhonda
South Carolina
Broke/shattered Humerus bone in 3 places. Two surgeries and 10 days in hospital on strong antibiotics. Sent home on Cipro 500 mg/3 times a day along with Levaquin 500 mg/1 a day for over 9 weeks. Complained within first week of joint and muscle pain. Knees swell and feel like cement blocks are in them….VERY PAINFUL! Was told that the good of the drug outweighed the side effects. I suffered through those weeks and was elated the day that I was told I could stop them! I have been off them for at least 3 weeks AND I AM STILL IN PAIN. Standing, walking, stairs, kneeling are all super painful! I pray that this will get flushed out of my system soon. Can’t imagine living this way. Feeling disabled @ 52. Ugh!
Paul M
Maine
I was prescribed Levaquin (generic) for a chronic sinus infection. I had taken it before without noticable side effects, so I wasn’t too worried about the listed potential problems. 10 days, 500 mg/day. After 2 days, I awoke with a minor pain in my ribs on my right side that got progressively worse through the day.
I didn’t put it together with the meds, but by day six I was in complete agony, feeling like I had broken ribs. The prescribing physician suggested an x-ray, but a new doctor, an ENT, told me to stop the Levaquin immediately, citing potential musculoskeletal problems.
I’m into day 2 after stopping, but still experiencing pretty severe pain. Hoping that this will recede soon, but after reading so many stories of long lasting damage, I’m pretty worried. Wish the 1st doctor had been familiar with the 2016 FDA warning and told me to stop when I first complained about the pain (day 3).
Kathy
MA
I am a 67 yr old female and was administered an intravenous antibiotic to treat acute bronchitis, plus a nebulizer and 7 days of Levofloxacin 500 mg in tablet form to be taken once a day. I assume the nebulizer and IV were both Levofloxacin. I developed diarrhea and pain in both shoulders plus extreme tiredness upon taking this drug. The shoulder pain goes away with Ibuprofen, but seems to return, and the diarrhea has stopped. Prior to this I had an issue with an intermittent dark vaginal discharge which seemed to puzzle all the specialists I visited. I had a pelvic ultra sound and other tests which were all negative and, I exhibit none of the symptoms of a Urinary track infection.
To my surprise after taking the Levofloxacin this dark discharge appeared to have ceased! I then read and realized that Levofloxacin is also used for bacterial UTI’s . So, the bronchitis is gone, the mystery dark gray discharge is gone, and I am now waiting to see if the shoulder pain too will go.
Donna
Clearwater,FL
I was given a 10 day prescription of Levaquin for upper respiratory infection. My knees and lower legs have had problems since taking this medication. Especially my knees and the ligaments from the thigh to the knees. It has subsided some but still painful getting up and down from a sitting position. It is okay when walking although I do get a zinger now and then behind the knee. Also had some swelling in the knees on day 3 which has now gone. This was my first encounter with this medication and I will not have another!
Barbara
Florida
I recently had to go to the emergency room for abdominal pain. Diagnosis was a bacterial infection, which was the third occurrence in 6 months. Other two were treated at an urgent care facility with a Z-pak and steroids for a week. Emergency room doctor gave me Levaquin intravenously (2 doses) then a script for 7 pills. I took all the prescription, and during and after I had joint pain in my hands, wrists, shoulders, back and knees. I felt weak , and although not quite as severe, I still have the joint pain. Also feel weak and tire more easily.
Al
Kentucky
I was prescribed Levaquin over two years ago (unfortunately, I can’t remember what it was prescribed for). On day 2, I developed a rash all over my torso. I also had a fever and severe pain in my legs. I informed my doctor who told me to come immediately to her surgery. Once she had seen my condition, she told me to stop taking the Levaquin (I already had done) and to drink copious amounts of water for the next week, to flush it out of my system.
Two years later, I am still suffering with leg and hip pain, ankle pain and even pain in my instep joint. I am 70 years of age, and my quality of life has definitely been affected by this medication. I am amazed, even concerned, that this medicine is still being prescribed when the side effects obviously outweigh the benefits. Perhaps as a last resort to prevent more serious illness, floxins can help but I have alerted all my medical providers, patient portals, relatives and friends, etc. that I am allergic to Levaquin. I also carry a note to that effect in my wallet/billfold and would suggest you may want to do likewise. My sympathies to those of you who are suffering far worse than I.
Sharon
Nashville Tn
I took Levaquin and steroids at the same time for pneumonia which I have had many times and has also caused Bronchiecktasis in both lungs. I have often gotten leg cramps for various reasons in my calves. But with the Levaquin I experienced pain going down the outside of my legs from the knee down to my ankles? The pain was so severe that I screamed from the pain…especially when the pain hit my ankles on the outside of my calves… on the Achilles. I screamed and cried!. This was so much worse than a Charlie-horse which I had had occasionally when I was young. I thought the steroid had caused it and quit that med but the pains still woke me up at night…. always going down the outside of my calves till it hit the Achilles’ tendon. Thank God I quit the meds before the tendons were ruptured but I have suffered from random pain in my neck and joints …currently the pain is on the outside of my knee. Please don’t take a chance at taking Levaquin! Sharon
Sandy D
61465
I started taking levofloxacin on 9/24/17 in the hopital through my IV got out of the hospital on 9/28/17 was perscibed to take 750mg tabs once a day for 11days. Today is day 7 and I can barely use my arms they hurt so bad. I am afraid to take anymore. I went to my Dr today and she said do not stop taking what am I suppose to due by tomorrow U might not be able to use my arms at all.
Sandy D
IL
I would say I will not ever take levaquin again very serious side effects.
Mary
Florida
I was on levefloxicin 500 mg for 10 days for a recurring respiratory infection. That was 1 year ago. As soon as I finished the medication my quads started to hurt esp when I went up or down stairs.
After 2 weeks I went to my Chiropractor. After 3 weeks the pain was getting worse. I have back,pelvic,hip,leg pain. I only sleep 3 hours a night the pain wakes me out of a sound sleep. I have been to 5 doctors had numerous procedures,MRIS and medications and the pain is getting worse. I was diagnosed with a skin disorder 3 months ago and was on prednisone for 5 weeks.
I felt great while on it only to have the pain come back as soon as I finished taking it. I used to play tennis 3x a week and go to the gym the other days but haven’t done that in a year since this all started
My social life is almost non existing. Just getting ready to go out and run a couple errands is difficult. My diet is awful because it’s to difficult to stand and cook or even shop for food. I’m very discouraged at this time.
Deb
PA
I took Levaquin 10 years ago for Bronchitis. It ruined my life. After 1 dose, I went to bed and woke up several hours later hallucinating. My spouse took me to the ER and they told me I had had a CNS reaction to the drug but it would wear off in 24 hours or less. I went home and expected to get on with my life.
What followed was weeks of “out of body” experiences, insomnia, nervousness. Then my legs started to feel very heavy. My doctor tested me for MS, low thyroid etc and couldn’t find anything. 10 years later, I am still experiencing chronic fatigue and pain/weakness in legs and arms which all started with that one does of Levaquin. I would never ever let anyone I care about take this drug. It’s not worth the risk.
Nancy
FL
I took Levofloxacin 750 mg for double pneumonia and had no problems. In fact, I was given a double dose because I still did not feel up to par and was taking a trip to N.Y to see the new 9-11 memorial.
Toward the end of the last dose, I began feeling really bad at night time…restless, not able to relax…so I stopped taking it. Now, 4 months later, I went to the doctor for bronchitis…had a chest x-ray with no pneumonia. I was given the same med because it took away the double pneumonia that I had previously.
I did read the label before beginning and I saw that there were severe warnings in the paperwork with the med bottle. I was told…”Oh they have to warn you about everything for all medications because it affects people differently.” Made sense to me. So I began the Levofloxacin.
This time, I had strange sensations in my lower body…like heavy lead weights. It would come and go. So before taking day 3, I looked online and found this site. What stories!!! I decided to not continue! The scary thing is that it seems to be able to come on a person even a long time after stopping taking the medicine.
I am allergic to so many medicines, that I was hoping this would not be a problem…but I can’t take a chance. Thanks to all of you who wrote. May God Bless you!
Mary D.
Philadelphia, PA
I took Levaquin twice that I know of. Most times I recall haven taken other anti-biotics, like Azithromycin. I get Bronchitis a lot.
The first time I took Levaquin was last year, sometime in 2016. I read the side effects from the pharmacy, but I trusted that my doctor would not give me anything dangerous unless he felt I really needed it, and he knew the side affects were temporary or the percentage of risk very low.
Afterwards I noticed my knees would crackle and pop and every so often making a slight turning movement while walking, I would experience a sharp pain so terrible I would cry out and reach for something to hold onto. I guess it was some sort of instinctive reaction because I would curl up into a fetal position even if I was standing, what they call doubling over.
I began to be afraid I might fall. Going up and down the stairs was increasingly difficult. I wondered if it was from the Levaquin, but also thought it might be related to being overweight.
The second time I took it was either after the Holidays in December or early 2017. I can’t remember the exact date. When I saw that the doctor had given me this awful drug again I was afraid to take it. But I was really so sick I was afraid not to. I should have called and asked for something else! I began to experience side effects right away.
I was very ill. In bed for at least 6 weeks and not really 100% even after that. Though I was recovering from the Bronchitis / touch of pneumonia I was having more and more trouble with my legs. The back of my ankles would feel as if they were in a knot. I had various muscle cramps here and there.
I was hearing very plainly noises of things that actually didn’t happen, like my husband walking up the stairs with the dog, entering our bedroom, putting on his work clothes and sitting in the big armchair we have by the window. I was in the next room. Imagine my surprise when I went downstairs and both my husband and the dog were lounging on the couch right where I had left them. I asked him and he said hea hadn’t moved. There was another incident like this but I don’t recall the details.
I had various numbing, tingling and burning sensations.
I also had the “Agitation, anxiety, irritability, restlessness, confusion” on the side effects list. I began to think I was depressed. I felt like my life had no meaning, I was not having any fun, nor was I determined to take on challenges as is my nature. In fact I did less and less. I was not sure why I should continue in this world of woe.
I remember a night so frightening because I had a sense this drug was taking over my whole body. I could almost feel it moving up my spine. I was praying and I somehow reached somewhere deep within myself and fought it like my life depended on it.
Since I am 64 and overweight, many of these symptoms can be considered part of the aging process but by now I knew it was the Levaquin.
So when I saw my doctor later on for something else, I told him please do not ever give me this drug again. He explained he had to give it to me because other drugs were not working on whatever was going around / causing upper respiratory illness at that time. And he said, the drug should be out of your system by now. I persisted, and he made a note of it. He said to please call him if I ever have any problems with any medication. I am sure he would have given me something else if I had asked. But I was surprised he did not seem informed of the longevity of side effects associated with this drug; especially when they feature so prominently on the literature from the drug store.
The warnings do say side effects can happen even months after taking the drug. I told him next time give me something else or just let me die. I walk with a cane now when I am able to walk. Considering a walker. I cannot put any pressure on my left heel. It results in excruciating pain in my knee. The doctor thinks I have arthritis and I have pain pills I take every day. They do help with the pain but what hope do I have of ever getting better?
Don’t be foolish like I was. It is not worth the risk. ICertainly would be very scared to give this medication to children. To my mind it is poison.
T
NC
Was given Levaquin after being diagnosed with two blood infectious diseases five days after surgery. I took this medication for a total of nine days. Two days in hospital and the other seven at home. The dosage was 750mg. Hands started shaking and they tingled. I can’t close hands fully in pain constantly. Forearms have knots in them along the tendon and they hurt and burn along with wrists. Ankles, feet, calves, and Achilles’ tendon stay on fire. Ugh I wish I would have known all the effects. I was told only the Achilles and tendons would be effected (sore) but they will go away. Nope not so it’s been a lil over a month and the pain has worsened. I have a toddler (2yrs) and I can not pick him up, I can not hold him, nor can I run after him because I don’t not have the strength in my arms and legs to do so. I hope this does resolve I miss holding and rocking my son to sleep.
Karin
Clinton, IA
Hello, was prescribed Levaquin for pneumonia. I already have 2 nerve diseases and other medical issues. After two days on the Levaquin I started with headaches and pain and aches in my neck. Third day I started w severe pain on tendon on top of my foot. By end of third day my right knee started to swell under the knee cap that I couldn’t bend my knee. Fourth day not only under knee cap was very swollen but on right side , back and top of knee were just as swollen. More than twice the size of other leg. Pain and deep ache as well. I already had mild shaking on left hand from my nerve disease.
Now it has gone beyond mild. Can’t use my left hand to type this as can’t hit the right letters! The Dr who prescribed Levaquin was not my regular Dr as he was gone for 2 days. I informed him of all 5 diseases to include the severe nerve diseases. He didn’t blink in still prescribing this to me. He should never have given me Levaquin with two severe nerve diseases. He even asked me what treatments I receive for them. I told him the epidural, stellate ganglion block, and two hour ketamine infusion every three months for 30+ years. He still put me on Levaquin. I Deal with so much pain daily before Levaquin and now this Dr has caused me even more. This drug should be last resort drug used to fight infection.
Sue
Ny and Fl
In April 2017 I was prescribed Levaquin 750 mg (5 pills) for sinusitis. I took 2 pills and then stopped due to leg pain. Now 5 months later I have Achilles tendonitis, a full and a partial rotator cuff tear and a meniscus tear. My orthopaedist just informed me that I need a shoulder replacement. I am going to PT for my knee and am just suffering daily with heel pain. The doctors deny that these devasting effects could have been caused by the Levaquin. I used to play golf 3 times a week, but now resort to playing bridge and reading. What a travesty! I would like to sue the pharmaceutical company for ruining the years I have left with my family.
ALICE
FL
I took 500 mg of Levaquin once a day for seven days to treat walking pneumonia. On day for, I had pain in me feet. By day seven, my hands began to ache with pain in my finger joints. It’s been two days since I finished the meds, and the pain in feet is gone, but I still can’t make a fist without pain that limits my ability to grip. I called the prescribing doctor who said the symptoms should abate over a short period of time. Sadly, I have read stories of people where side-effects we’re permanent. Has anyone else had this “hand/joint ache” and if so, did it go away? Alice
Dirk
Indianapolis
Five years ago was prescribed Cipro for prostatitis. I WAS a very healthy and active 40 years old man who loved running, and did so up to 5 days per week, logging upwards of 15-20 miles weekly. At that time, I was 195# and very physically fit. Five years later, I have been battling a mostly losing battle against chronic joint issues, including plantar fasciitis that put me out of running and elbow, knee, ankle and shoulder joint inflammation and extreme pain.
If I play the couch potato, I’m not in constant pain, so I can choose to sit life out on the couch, which I have had to do much of this five years, gaining 50 lbs of fat, OR I can keep trying to somehow get back in shape. I have been taking things VERY slowly since last fall, starting with walking, stationary bike and working out with VERY light weights. I can feel when my joints start to protest, so know to quit at that point or deal with elbow tendons that are locked with extreme pain for a week. It is almost a maddening pace of progression, but I don’t want to become sedentary because of this drug!!!!!!! I REFUSE!!!!!!!! Educate yourself on the side effects of these drugs before you take them. For me, I am certain they have caused permanent and chronic joint/tendon issues.
Lainey
new york
Hello,
I am so glad all of you are telling your stories. This entire site should be sent to the maker of the drug and to the FDA.
I too have had many problems and it did not dawn on me till a few days ago when I was on levaquin. I have taken levaquin quite a few times the past few years. I only take levaquin as I am allergic to most anti-biotics. I never really felt any problem with the drug while I was taking it , or did not relate any issue I may have had while taking levaquin Let me explain my story……
About 3 years ago, I started to be off balance! Always fearful of a fall! (I have fallen quite a few times in the past 3 years). I am not old, when this first started I was only 54-55 yrs old.
After the balance issue started, I started to get severe ankle and heel pain. If i walked to much or lightly cleaned my home, I was in severe pain and had to lay down and take tylenol until it sort of passed, but, not fully. I also began to walk funny, as if I had a disability. I was terrified to walk up steps anywhere if there was no railing. This all became debilitating and embarrassing for me.
This then turned into, lower back and hip pain, which now is almost constant. Bringing the laundry basket from the basement to the 1st floor became a very difficult issue.
I have told my GP, 2 rheumatologists, physical therapist, personal trainer, and finally a neurologist. The neurologist diagnosed me with Neuropathy, damaged nerves. He is the one who sent me for physical therapy which did not work, I always came home in more pain.
Well like I said, it was not until last week when I was on levaquin and after day 5 extreme pain in my back, heels and hips, swollen left ankle, swollen right knee. I immediately stopped the levaquin, as I got really scared. That night I started to look up neuropathy to look up all my symptoms and there it was on Youtube….Neuropathy and levaquin.
After seeing all the video’s, I was convinced that this was my issue, the levaquin caused my neuropathy, nerve damage. Please , please, warn everyone that you know not to take any Fluoroquinolone drugs such as levaquin, avalon, cipro,or floxin. Bring this to the attention of all the doctors you go to , as from what I am researching is that this is a permanent condition. It has terribly and sadly changed my life dramatically. I went from an active person, going to the gym, gardening, decorating, shopping,,,etc, loving life to being sad from all of this.
God Bless all of you going through this terrible ordeal, and please go onto every site that you can to learn more as there are many other symptoms, like disc probs in the back, panic attacks, insomnia……Take Care.
Kathie
Milford pa
I was given levaquin 500 mg twice a day after sinus surgery back in March 2017.
After taking this for four days I started noticing weakness in my ankles and knees ! Within a day I was experiencing pain in both my ankles and knees! The swelling in my knees was so bad I could barely get pants over them especially the left! I stopped the levaquin hoping this would help!
When I told my ent he just said some people have bad reactions and stopping was good ! Nothing more ! The pain and swelling kept me from going back to work for an extra week but it eventually subsided enough to be bearable. Since I have never had issues with my joints this is completely new! My left knee can sometimes be sore but not as bad until Sunday of this week (08-27-17). I started feeling tenderness in the evening and by bedtime the pain in my knee was unbearable!
I could not even have anything even touch it! My hips are even tensor and this is new ! I had to call out of work for the last 2 days! Yesterday, I still could Not walk on it at all ! Today from iceing and Tylenol I can bare the pain and walking is possible but not without difficulty ! I am hoping with rest it will subside once again.
Apparently, the effects are still something I will have to cope with as it’s been 5 months since taking this !! Anyone with suggestions, please help.
JH
Surrey
I was given Levofloacin for H pylori. After taking the first tablet I woke up in the morning feeling very heavy and could not walk properly, as if I was very drunk. Spent the day in bed after taking the second tablet. The pain was a lot worse throughout my body, especially my legs. I also had very bad suicide thoughts on the 3rd day. I could not understand what was happening until I read the website about these tablets. I immediately stopped taking them and will refer back to my GP. They are very dangerous tablets and should be stopped!!!!!!!!!
Joan
Pennsylvania
I was given Levaquin by IV in the hospital and then in pill form for 6 weeks for a knee replacement infection. I ended up with severe shoulder and forearm pain that was so bad that it was worse than my knee surgery. I ached all the time and could not even stand the weight of holding my coffee cup. My shoulder pops and cracks when my arms move and pain shoots through my arms. It has been three months now and although slightly improved I still ache and have problems moving my arms. The doctors could not understand why I was having the problem. While researching my medicines I read about Levaquin side effects and realized that was the problem. I eventually had to go back to work and I try and hide the pain I am in. I wander if Iwill ever heal.
Susan
Seabrook, Texas
In 2004 I was prescribed Levaquin for a URI. I filled the prescription and went home to go to bed. A few minutes after taking the first pill, I had a severe anaphylaxis reaction. I stumbled to my bedroom door and made it to the hallway before collapsing. The lady that cleaned my house happened to be there and heard me. She immediately called 911 and they arrived in about 4 minutes. I feel certain that I would have died if she hadn’t been there.
Since that time, I have heard of this happening to several other people. I was told in the hospital that this was EXTREMELY rare. I do not allow either of my children to be prescribed any drug in the quinolone family. These drugs should not be used except as a last resort when no other drugs are not effective.
james
FL
DO NOT TAKE UNLESS YOU ARE ON DEATH’S DOOR. I am a healthy 35 yr old, not overweight, no previous injuries. I took levaquin, they prescribed for a UTI. During the week of treatment my joints and esp. fingers felt a little “warm.” 6 months later, unable to run, unable to sleep comfortably.
Joints popping and cracking in every part of my body: neck, back, hips, sternum, shoulders, wrists, fingers, ankles, knees. If I move something pops out of place and hurts. Disks in back sliding out. Pain is constant. Cannot lift things, cannot go to gym. Cannot bend knees fully. Feel like this is going to get worse….. very sad! READ BEFORE TAKING MEDS!
Donna H
Georgetown , Texas
I went to Next care for upper respitory, laryngitis and ear infection. I was put on Amoxcillin 875 clavulanate and the Medrol pak and levoflacin 750 for 7 days. After last pill I started having severe knee pain, shoulder and neck pain. Nothing was said about side affects of any kind.
The day I went to Ear Specialist, I noticed when walking back to my car my knees were really hurting and my neck and shoulders. I sent a email to Nextcare and will check with my new primary doctor when I go for wellness visit on 17. This is devastating, the knee pain is much worse than the infection was in ears, throat and chest.
ALICE
That’s terrible. I have achy hands and a swollen joint in my finger after a week of Levaquin. Have your symptoms gotten any better?
Ann
Missouri
I have a persistent sinus infection. Amoxicillian was first prescribed, then levaquin. I am working through a stenosis issue and have a history of tendonitis. I saw the Rx insert and called my doc to ask whether I should be taking this. What I should have done was advocate for myself and say I’m not taking this, but when my doc said I should be ok, I took it…for 7 days. Day 5 I noticed some aching in my shoulder/upper arm which I attributed to a new PT exercise. By day 7 I was in pain that radiated into my back and up my neck. I stopped the meds. Massage relieved much of the pain, my chiropractor is using ultrasound to relieve some pain. I see my doc tomorrow. I have no idea what will be suggested- I keep icing, using an NSAID and resting. I should have listened to myself. The damage is done- I hope it will clear up quickly, but from what I’m reading, I suppose I should expect this to be a recurring problem. Sigh.
Cynthia
Idaho
I was put on Cipro for 15 days, then Levaquin for 7 days to treat pneumonia. The Cipro, come to find out, has little effect on lung infections, so it was a useless 15 days of prescription. I only made it through 4 days of Levaquin before the side effects got so bad I couldn’t stand them. Unlike others, my joints and tendons (so far) have remained unaffected, but my nervous system took a beating. It’s been 4 days since my last pill, and I still feel on the verge of a panic attack. My chest is tight, and I feel as if I’m breathing through water (though that could be residual pneumonia), I’m dizzy, clumsy, weak in muscle strength, and “loopy.” I feel as if I’ve drunk 20 cups of coffee at times. Then at other times, such as when I first get up in the morning, I can barely move or function. Levaquin is terrible! It will never enter my system again. It’s my prayer my nervous system will return to normal soon otherwise life is going to be quite different and much more challenging.
Suzanne
Winter Garden, Fl
I was prescribed 750 mgs of Levaquin for 14 days in April of 2016. I am 70 years old and probably should never have had it at all. After I stopped it I noticed stiffness in my calf and thigh muscles and pain and lumps on my Achilles’ tendons. My doctor apologized but the damage is done. I was on Prednisone for seven months for lung disease and am now off of it. Since coming off the prednisone all of the side effects have returned. I try to walk 10,000 steps a day and usually have to take 600 mgs of ibuprofen on most days. It is very debilitating, and I had no idea this could happen.
ryan
Rhode Island
My step father took Levaquin for 10 days and less than a week after finishing his foot is swollen and achilles tendon popped, probably torn. A second doctor told him to stop taking it and that there was a black label warning. Great that we find out after the fact. He has many other symptoms but that is just the worst of them. He can’t walk well enough to work, but is going to anyway. He is hoping it will heal, but from what I’ve read it doesn’t seem too likely. How can doctors just toss this poison around with no warning?
Darlene
Ohio
Recently I had rotator cuff surgery because of torn tendons and bicep tear. This can only be from taking levaquin for years. I wouldn’t wish this surgery on my worst enemy.
Diane
46312
I totally agree. I took this medication as well and just recently had rotator cuff surgery. I was totally unaware of the side affects of this medication. I was not warned by my primary doctor.
Michelle
South Dakota
I took Levaquin almost three years ago for a serious sinus infection. Shortly after, I suffered two tears in my left calf muscle. About a month ago I suffered a tear in my right calf muscle. I have had consistent tingling and numbness in my arms and legs, however the leg numbness has gone away but my right arm and hand constantly feel as they are asleep. Fearing a tumor, I have had numerous tests to rule out a brain tumor or MS. I FIRMLY believe these events are due to taking Levaquin. At the time my doctor did say there was a possibility of tendon rupture. I have not had a tendon rupture, I believe am experiencing long lasting side effects of this drug. If he would have said I would suffer muscle tears and constant numbness in my arm and hand I would have suffered through the sinus infection. I am very active and am worried that muscle tears are my new normal.
Nicole
Trinidad
I was given Levaquin 750mg for 7 days but at the 5th day was in so much pain that I informed my doctor and stopped taking the tablets. Its been 3 weeks since I’ve stopped but still suffer body pains and occasional bouts of rapid heartbeat.
Bill
Alabama
I am 70 years old and fairly active. I was walking 18 holes of golf three times a week. I had a persistent sinus infection and my Doctor prescribed Levofloxacin. I took two courses of it to get rid of the sinus infection. Now I cannot walk a round of golf due to knee and foot pain. I am having surgery to repair a ruptured tendon in one foot and a partial tear and tendonitis in the other. I walk like a 95 year old now. Don’t take this if you want to remain active.
Peggy
CA
I was diagnosed with pneumonia exactly 3 weeks ago today. While I am coughing less and not as exhausted, my joints are aching. I had no idea this was a side effect of the Levaquin. It is especially painful in my shoulders and elbows. I wish I had read more carefully about the possible side effects before I finished the medication. I am hoping this will resolve quickly, as I am struggling to get through my day to day activities. I think it should be mandatory for patients to be informed of the possible long term complications before they choose to take this medication. I would definitely have opted for something else.
Jo
Iowa
Jo
In 2015 I was prescribed levofloxin. I had gone, feeling fine, but I had grass blow on me during lawn mowing and could feel something chewing on me under my skin. At my request, because I rarely take medicine, she prescribed tablets of 250 mg where they normally prescribe 750 mg. I was to take one a day for 14 days. The first one I took, swelled my throat so I could only swallow 1 vitamin at a time whereas before I could swallow easily 4 to 6 capsules, and it made the entire inside of my mouth raw. I put collodial silver on a wash cloth and put it in my mouth and it healed within an hour that problem. The second levofloxin I took gave me a rash from my neck to the bottom of my stomach, again I treated the rash with collodial silver and it went away.
I went back to the doctor and she told me to keep taking it. I took 3 more tablets, one a day for 3 days and was so sick I stopped. I had a headache, a fever, a stomach ache and my muscles hurt from my neck to my feet 24 hours a day. I could not breath and walk at the same time, I could not lay down or I could not breath. I am still sleeping in a chair after two years, just the last couple of weeks I can lay down on a bed and still breath, but I do not sleep more than one hour in the bed – the rest of the time it is in the chair.
It attacked my lungs, and my heart, it shrunk my blood vessels so tiny in my arms and wrists you could hardly see them. I had three blood clots from it – first one in the leg and then later two times in my neck. I was taking an aspirin once every five hours so I could breath and it dissolved the blood clots. The doctor, because of all the lawsuits on this drug, first sent a sample of my blood to Mayo Clinic trying to say it was the collodial silver I use. That blood test showed that I had no problems with silver levels in my system.
They wanted to do eploratory surgery (a liver biopsy and an angioplasty). I was so sick I told them I would not live through that and refused, so they refused to treat me – so I had to treat myself. I was taking 50 mg of selenium and vinegar capsules daily before this happened, in my blood tests I found that the toxin was being removed because my liver and gall bladder had normal than average toxin levels, which with continued use of those two items, lowered the toxic levels in my liver and gall bladder. To get rid of the muscle pain I ate toast with cherry preserves (not jelly). The toxin re-attacks and multiples itself with heat. I looked up the chemical formula to see what I was dealing with. I lost 34 lbs the first 5 months.
Vinegar neutralizes the toxin. I take it internally and put vinegar on cloths and put it on my legs when they swell, you can actually feel the toxin coming out to the towels. They kept draining fluid out from around my lungs and I still could not walk and breath at the same time. Finally in 2016 I read an article that told me everyone should take a deep breath counting to four and then blow out through their mouth counting to four for ten minutes a day. I did that one day and can breath and walk at the same time now and feel much better, but if I get out in the heat, the battle begins again. Two days after I did the breathing, I read that the heart pumps the blood, but the lungs pump the lymph and the lymph is what the body uses to get rid of toxins in the body. Two days after that, I read that the heart normally puts some fluid in a sack around the lungs, but it is the lymphs job to remove the excess. I have been breathing fine ever since, but I do the deep breathing everyday now just in case. (I don’t do it for 10 minutes straight, but I do it several times a day) This is a terrible drug and should not be on the market!
Before I experimented with an attack on this drug, I tried to find antidotes and everywhere I looked, people were begging for antidotes and were being told there were none.
Daniel Lim
Singapore
I was diagnose of Testicle inflammation and was ask to take antibiotics for recovery, a initial syringe of penicillin to start earlier was injected on the morning. The Levofloxacin was prescribe for the next 10 days for recovery. But after a lunch, follow by LF cause numbness on lip and constriction on throat(Almost suffocate to death on the way to hospital). Till date, almost 1 years plus, this tightness on throat never leaves me after many consultation with ENT, Respiratory, Gastro, and Endoscopy done with endless medication had resolve the problem. This medication is terribly dangerous and should never be given due to its nature of disaster to ppl life.
Dave
Wildwood, MO
Levaquin (500mg) should be banned. I only took a few pills and my joints were a mess. My doc switched me to another antibiotic. Never had a reaction to a drug before…and try to stay away from meds. This one did a number on me!
Roxy
Fargo,ND
I was prescribed Levaquin for an ongoing ear infection (7months) that Augmentin did not help. I already have RA. After 2 days of Levaquin I started experiencing calf pain, horrible constipation, extreme joint pain in new areas. Thinking it was from activity & stress , I took three more days& then started searching side effects! I have severe carpal tunnel, burning,tingling pain. Muscle weakness, foot and ankle pain, hip pain… on and on. This is the craziest thing I’ve ever experienced! I am a hair stylist. It was almost impossible for me to finish a client today. If this doesn’t go away, I don’t what I’m going to do!?
Shannon M
Lubbock, TX
I took Levaquin, the antibiotic three years ago. I was taking other medicines for a sinus infection, and doctors said the only way to know it was this medicine was to take it again to be sure, but I had never taken this medicine, I was sure. It caused a horrible rash all over my body, that took forever to treat. Then I was never the same, it completely changed the chemistry of my body.
I’d been to doctors trying to figure out what happened, and no one ever said it was this medicine. I developed a horrible mouth infection, that they couldn’t figure out. A skin irritation that was sensitive to water, temperature, touch, etc., and no one could figure it out. It felt like ants biting me from the inside out. It’s so painful, and to finally learn it’s this medicine… I feel some relieve, but still angry. I can’t believe it could do so much damage.
Anna
Louisiana
I have a lot of experience with this drug, and after my experiences I am never going to take it again. Although it is great at getting rid of infections, the side effects for me snowballed until the physical and mental pain has caused me nothing but suffering.
I have taken Levaquin (750 mg) 3 times from 2016-2017 for three serious sinus infections that were not responding to other drugs. Having had two sinus surgeries in three years, I do not play around with sinus infections, and if I cannot get rid of them with saline washes and OTC methods after a few weeks, I go to the ENT.
Last summer I took Levaquin for 5 days after suffering from sinusitis for a month, but I stopped the medicine after having sharp pain in my feet and calves (in addition to the usual nausea/diarrhea from antibiotic use, which I take Align for). This unusual side effect scared me enough to quit the drug. The muscular pains went away after about a month. Sinus infection had luckily been cured in five days. (5/10 days prescribed).
The second time I got sick was the following December, right before we were leaving for a vacation. I weighed the options, and decided to take Levaquin again and just deal with the tendon and muscle pain (and stomach upset), since I knew it would cure the sinus infection, and if I didn’t take it, I would likely get worse after an airplane ride, etc. This time I lasted 7 days on the medicine (supposed to be 10) and again had the same tendon and muscle pains, especially in my feet. This time I noticed new side effects: tiredness, lethargy, and bouts of depression, which lasted about a week after finishing the dose. Again, I recovered from all side effects within a month, I assured myself Levaquin would be my last resort drug in the future.
I got sick again in May, with the worst sinus infection yet–swelling and pain for weeks. I finally had to go to the ENT before I left for a trip where I was chaperoning students. I knew I had to be well on this trip, so I again agreed to take Levaquin before the trip to make sure I was well enough to shoulder my responsibilities as a coach. This time it took 9 days to see any relief from the sinus infection, but by about day 7 I was again noticing lethargy and depressive thoughts that were really uncharacteristic. I made it through most of my coaching duties during the trip, noticing to myself that I was feeling “weird,” but nothing prepared me for my body’s reaction. Halfway through the trip, I was overwhelmed with crying, vomiting, and diarrhea.
I have horrible intestinal pains that I can feel all the way through to my back. For three days I’ve woken up feeling depressed and panicked more than I’ve ever felt before, in what can only be described as a monster of a panic attack. I feel like I am literally losing my mind. Yesterday I tried calling anyone I thought could help–my ENT, a psychiatrist, a pharmacist, my regular doctor–but there wasn’t anyone available anywhere on Memorial Day weekend. Needless to say, I left the trip early, and am now home, counting down the hours until someone in a doctor’s office will pick up the phone to see me. Levaquin seems to have really destroyed something in my gut that is making me sick both mentally and physically.
For anyone out there who might be considering taking this, I would recommend trying literally anything else except Levaquin or Cipro or the drugs in this family. My body, which can usually handle mostly anything, could not handle nine days of this drug. Now I may have to take antidepressants and who knows what else just to feel slightly normal again. As horrible as the sinus infection was, I would rather have gone to the hospital and gotten IV antibiotics rather than take this drug at home.
Shannon
Ohio
What I wouldn’t do to turn back time. I was given Cipro and later Levaquin (several rounds) in late 2011 and early 2012 to treat ongoing, worsening sinus infections. I began experiencing weird symptoms, odd perception of time, dizziness, agitation, restlessness, tinnitis, problems with sound, insomnia, crying jags, depression.
My husband spent $20,000 trying to get a diagnosis for me (one summer!). I ended up with 3 wrong diagnoses: Hypoglycemia, Diabetes, Epilepsy! All wrong! The medication did help the sinus infections & my dr did warn me about tendon problems, but Nothing was said about possible central nervous system issues. It is now 5 years later and some of the issues have waned, but others have begun.
Now, I get muscle pain that moves around, confusion, freezing cold hands, skin rashes, thyroid-type issues. But my blood tests do not show anything is ‘wrong’. I’ve been to dozens of doctors, specialists, etc. No-one seems to know what/why, but I found a group on social media which is for those who’ve taken Fluoroquinolones and been hurt (a support group).
A friend told me ‘that sounds like you.’ I didn’t know anything about being ‘floxed’ from these FQ’s. At nearly 60 years of age, I’ve had to quit my teaching job, spend lots of $ on integrative treatments (some DO work!) and face a different future than I had ever expected.
I share your pain out there. I am sorry it happened to us. If the Drug companies are listening, DO NOT keep selling these harmful, life-altering drugs.
Patricia G
Sylacauga, Alabama
I am a 68 year old lady. I had 2 heart attacks in Dencumbered 2016. A week ago I had kidney stones, which is hard to handle ,went to ER on Monday night and was prescribed Lortab a for pain and Levaquin for infection. The second day on the Levaquin I could tell something in my body was not right.
The meat on legs felt like they were coming off. They are so week that it is all I can do to put one foot in front of the other. Weak can get no weaker. In pain need an answer what I can do to stop this company from making such a terrible antibotic. There need to be more people to report this bad drug.
Julie
CA
Hello,
I have had a similar medical history as you, including chronic sinusitis and well, I wondered if you have ever been tested for lyme disease? So far the only doctor that has been able to help me has been a lyme literate doctor, and I’m seeing much progress after 0 hope. Just wanted you to know that this is what I’ve come up with in case it’s helpful to you. Happy to chat more.
Maureen
Quebec
OMG, I cannot believe so many people have been affected by this drug! I was prescribed this drug in February 2017 for a very bad chest infection. A few weeks later my shoulders and down the front of my arms started hurting as if I tore tendons, and lately it’s been my legs and ankles too. I cannot stand this pain. Every day and every night, it just never stops. Plus, I get RLS that lasts for hours! I just found this site. Am curious to see if anyone else had the horrible knee and leg pain? Now I know: others have it too! What are we supposed to do about it?? I am going out of my mind with this pain!! It can’t possibly get worse! I hope someone helps us, please!
Cheryl J
Maureen, there is a Face Book group called fluoroquinolone toxicity that has many that have been harmed by these drugs. You can ask to join, as its a closed group, and find out what can help with your symptoms. The members of the group are wonderful and willing to help. All of them have been damaged by a fluoroquinolone.
Jim
Colorado
Began Levofloxacin 500mg x 7 days April 25, 2017 per V.A. clinic doctor. By May 1, 2017 I chose to stop dosage based on concerns regarding leg pain and side effects discovered on line. Currently have severe pain in left leg to the hip. Less severe pain in right leg. V.A. doc denied the pain could be caused by the meds. It is not twenty two days of pain unrelieved by analgesics.
Kay
Alabama
I too have severe leg pain from my hip all the way to my ankle…It is horrible. It takes me forever to get comfortable enough to go to sleep. Pain in my shoulder and neck as well.. I took levaquin for a severe sinus infectiion for quite a while and the symptoms began shortly after.
I did not however connect the two. I am just now figuring out that the issues I am experiencing are due to the levaquin. There are times that I can hardly walk. I am so sitff and the pain is almost unbearable.
Laurie
Iowa
I hope my situation is not what I am reading in the article. I went to urgent care after being sick, bad cough, swollen glands, sore throat. Doctor said negative for strep, did an x ray, came back pneumonia. She prescribed Lexaquin for 10 days. Day 4 of the antibiotic, some relief, went to work for 2 days. Weekend followed, joint pain in knees, wrists and fingers, muscle pain in thighs, chest pain in front and back, sick to stomach. I went to the doctor today, 1 dose left and thinking I was getting worse. New doctor said your chest x rays came back normal, and you are having a severe reaction to the Lexaquin and to stop taking it.
She ran blood tests which came back negative and a few others that won’t be back until tomorrow. In the mean time take ibuprofen and plenty of fluids. I am currently having chest and joint pain.
Allen B
California
Levofloxacin after 3 daily doses has progressed to near inability to walk. I have little gastrocnemeous strength. No Md has been able to improve my symptoms. I am scheduled for Physical Therapy. Several patient entries indicated that PT was no help.
Cynthia Lewis
I took Levofloacin for pneumonia and one day after finishing the antibiotic, my knees started burning and I had pain just trying to walk. It has been over a month and the pain seems to get worse rather then better. I had also taken prednisone for my pneumonia and from what I have read it makes it worse. I feel like I’m going to be crippled. When I sit very long I’m in so much pain when I stand up. it seems a little better if I walk a little but if I walk much then I’m in more pain.
Cindy
Illinois
I stumbled across side effects on accident. When I was on Facebook one day, I put Reynaud’s syndrome in the search box. I kept reading different people’s stories with Reynaud’s syndrome and found they had all sorts of other things wrong with them that I have been suffering from for years, I was shocked to see they all had these ailments from Levaquin.
I got pneumonia in October of 2011. After being hospitalized for 3 days and given several antibiotics and three different steroids I was released. Of course I had numerous scripts to fill to continue to take at home. One of those was levaquin. Ever since then, everytime I get a cold, bronchitis or recently in January, pneumonia again my doctor prescribes me levaquin, sometimes back to back if I’m not getting better.
So for 7 years I have been prescribed levaquin, several times each year since I get bronchitis often. I’ve had severe neck, upper and lower back pain. Numbness and tingling in my arms, hands, legs and feet. Aching joints, unbearable in my knees and ankles at times. Reynaud’s Syndrome which used to only happen when it was cold, lately I’ve been getting it more often, even in 60 and 70 degree weather. I suffer from insomnia, restless leg syndrome which is also felt in my arms at times. Bouts with headaches, dizziness and blurred vision. I have severe acid indigestion that has caused 2nd degree like burns in my esophagus, at night once in awhile I would wake up gagging and choking on acid reflux coming out of my nose and mouth, this last month it’s been happening alot.
Within 5 months(October -February ) I was prescribed levaquin 4 times. At times I go through nausea, it seems like it happens for up to a week at a time. I am either constipated for weeks or have diarrhea, I rarely have normal stools even when eating healthy. I’m gonna be 48 and always had 20/20 vision and at a rapid speed my eyesight has taken a dive. I know this happens gradually when we age but mine has progressed it seems like out of nowhere. I’m often irritable but I just chalked it up to my pain and lack of sleep.
After reading articles and people’s testimonies on Facebook and now researching here, I wonder if many of my problems are due to my taking levaquin. When I go to my next dr appointment in May, I’m going to discuss all this with my doctor. Thanks for the informative article and to the people for their testimonies. I have so many things wrong with me that I didn’t have before…Makes me wonder if this is why.
Kathleen P
Englans
I have had several courses of this horrid tablet been left with neuropathic pain joint and muscle pain tiredness etc.
Miranda
Nj
5 months ago I took Levaquin after not responding to a zpack for a sinus infection. I couldn’t get out of bed and was in serious pain from it. I thought it was from being sick. Shortly after stopping levaquin I completely lost my sense of smell and taste and my body is still in pain. I have been to an ENT and had MRIs and catscans and found no reason for it. I recently spoke to a nurse in urgent care about an unrelated issue and mentioned this. She immediate said Levaquin was know for this.
Charles
CO
April 24, 2017
Took Levafloxacin for 10 days and then developed pain in both hamstrings. Pain has continued for 7 weeks now in both hamstrings and hips. Difficult to squat and straighten up from sitting in a chair. Degree of pain varies throughout the day and from day to day. Occasionally, also pain in shoulders.
No suggestions from ENT other no activity or exercise: walk or stroll.
I had sinusitis issues for over 40 years and Levaquin is far worst than the sinusitis. I am 66 yrs old. Levaquin has completely screwed up my retirement: can’t exercise, can’t bike, can’t ski, can’t garden
Joanne
CA
I have many of the same problems as listed above for 4 years. The main problem is pain in feet and ankles. Walking has gotten difficult.
Barb
Chicago
In the fall of 2014 I had recently turned 79. I had had a fall a couple of months before resulting in a torn hamstring tendon, but had recovered full function within a couple of months without surgery, then I had another fall hitting my knee pretty hard.
My knee and leg swelled up and there was a substantial lump on my knee. I went in to the clinic to see if it might be infected. An internist I saw there said it was definitely infected and I should be on antibiotics. There was a difference of opinion; the emergency room doctor said it was not. I decided to play it safe and took the prescription for a sulfa drug. I soon developed an allergic rash, and was advised to stop taking it.
I was then put on another antibiotic (can’t think of the name at the moment). I was a bit concerned about it because it has been linked to C diff, but although it wasn’t causing any problems I went back into another clinic for advice. The doctor there, without giving me any warning, given the increased risk due to my age, took me off of the other antibiotic and prescribed levaquin.
On about day 8, my shoulders started popping, and I knew somthing was wrong. Since then I have never been the same. My legs became tired and achy, and even so I am an active person. I continued bicycling walking and recently started working out at the gym again.
Suddenly, I developed pain where my hamstring tendon had healed, making walking too difficult. I also began to notice that my muscles seemed to have melted awayinspite of continually trying to stay in shape. I can’t help believing this is the levaquin.
Pat A
Florida
I have neck pain following levaquine for 1 week. Terrible pain nothing helps. I was put on prednisone 6 day pac and had some relief first few days now pain returned, I can’t sleep with the insomnia from prednisone and cannot find a comfy position to sleep. Heat cold, TENS, even acupuncture hasn’t helped much. How long will this last – few weeks, months or years ?
Mary
Texas
I went to an Urgent Care clinic on 03/12/17 feeling ill. The diagnosed me with Sinusitus and prescribed me the generic for Levaquin (5 pills). After 3 pills my legs started hurting and I could hardly walk. I felt really weak. I have spells of feeling really hot like I am going to pass out. I have been having bad headaches, can’t sleep very well and now I hurt all over my body. My legs are not hurting quite as bad, however, my hips wrist, shoulders & finger joints are hurting bad. I can’t move very fast. My right hand fingers go numb and it takes along time to get the numbness to stop. The base of my neck also hurts. I am very concerned it is not going to go away. I was not informed by the clinic about the side effect in advance. When my legs were hurting so bad I called them and was told that was a side effect of Levaquin. However, even then they did not tell me I might start having all these other issues. Does anyone have any ideas about what can be done about this?
Ted
Kingston, NY
I have serious disability in my lower legs due to taking an 8 day dosage of Levaquin back in August of 2008 after gall bladder surgery. I ruptured the Achilles tendon in one leg and have serious neuropathy in the other.
Carol
virginia
I was prescribed Levaquin for pneumonia in March 2017. After three days I could not get out of my chair to stand, walk or go to the bathroom. My life has changed for the worse after taking this drug ! The ER physician and my primary care Dr. are sure this is from taking this dangerous drug ! It should be banned and not given to anyone else.
Joyce
Maryland
After three days I could not walk. Started having pain in my back hips hamstrings. I stopped taking drug after 7 days. Feel terrible. Still having difficulty walking constant pain in my hamstrings and thighs. Will this ever go away. Reading all the complaints some are still feeling the side affects from this drug. This drug needs to be off the market. We should file a class action suit immediately.
Ted
Kingston, NY
In August of 2008 I was prescribed Levaquin. The following March (7 months later) I ruptured my Achilles tendon. Then in December of 2013 I developed severe neuropathy in my leg.
Frank
New york
I was prescribed levaquin in December 2011 for pnemonia . I was in hospital and given it intravenous. Which I was never informed about this drug! After being released soon after the fall of 2012 I tore my bicep tendon, 2013 tear in right knee, 2015 tore hip flexor and quad while running, march 2016 tore rotator cuff and proximal bicep tendon causing 2 surgeries to right shoulder. Now none of these injuries were from any sudden impact or contact sport!! I have always been an athlete and in great physical shape with no problems until they gave me levaquin. I have constant pain everyday and was also informed I have bad bursitis and tendonitis in left shoulder out of no where. Not to sound conceded I was always looked at like superman , always strong full of energy and great shape. I just turned 40 and every joint in my body hurts or has been damaged making me feel like 70. There is no doubt in my mind it’s from the levaquin I should have been warned about it. Now when I tell doctors I am allergic to levaquin they say that stuff causes tendon damage my reply is really I am the proof!!!! Shame on the FDA I am sure someone made there $$$$ off this drug
Wendy G
Virginia
I had awful sinusitis before I retired and was on my third round of Levaquin when I became unable to walk across the room at work. My feet and legs were very painful. I called my doctor who said I needed to come in immediately. I was finally able to shuffle slowly and painfully out to my car and drive to the doctor.
She told me to stop the Levaquin and not use any drug in that family again but years of muscle weakness and excruciating leg pains followed. I did not realize they could be related to Levaquin. I still have a burning pain in my right foot which I cannot explain unless it relates to the Levaquin.
Sue
NH
I have been taking Levaquin for years on and off for an Intersitial Cysititis issue that my doctor continued to prescribe for me. I started with nerve damage in my face after having a crown put on my tooth. I attributed it to the trauma to the tooth but now realizing it all was from taking Levaquin. About six months ago I got tendonitis of the elbow and has still not recovered even after PT. Still I never put tow and two together.
During Christmas in 2016, I was having a flare up with IC and started taking Levaquin again. The only side effect my Dr has told me was that it could cause achilles tendon rupture, and it is very rare. I started with symptoms after taking the dose with really low back pain that has gotten better with Chiro and PT. If only that was it. Then came the tendonitis of the knee along with leg shaking/jerking while resting or not, and severe leg muscle ache/pain with muscle twitching and tingling all the way down to my foot.
I have been to numerous Drs and no one can say exactly what is going on which is crazy to me with all the people with this problem. It has now been four months and I still have leg cramps/aches/weakness that hurt everyday. I also have crepitis and knee/thigh tendonitis. Wondering if there is anything else I can do to help or make it go away. I am currently taking vitamin D, B, Calcium, Magnesium and amitryptyline. I also go to PT and thinking about acupuncture. Massage helps when I’m in deep pain and trying to work out to get my muscles stronger. Nothing seems to ,ake it go away. Does anyone have any suggestions on what else can help and will it eventually go away? I really want some hope!
Laurel
Davis County, Utah
Two years ago I had a small mucous cyst on my little finger joint. It became swollen and ruptured when an acquaintance squeezed my hand too hard. A hand surgeon felt it might be infected and recommended emergency surgery. She left the one inch incision open and prescribed three IV antibiotics. Note that there was no fever, little pain, and minimal swelling after the surgery, and no drainage from the incision.. She attempted to diagnose MERSA, which lab cultures did not find. After three days in the hospital I was released and directed to give myself a daily infusion of antibiotic and to take Levaquin daily for six weeks! She did not inform me of the side effects and risks of Levaquin. I developed a vaginal yeast infection during this time. The doctor denied that it could be the result of taking antibiotics long term, and assured me that she had never had a patient who had a yeast infection. I have had muscle cramps, excruciating back pain and insomnia for the past two years. Doctors who prescribe antibiotics at this level to patients who have minor infections are irresponsible, and put patients at risk, not only from the serious side effects of these medications, but of developing antibiotic resistant immune systems. I will never trust a doctor again who is more concerned with ordering drugs and hospitalizations for patients which will give them paybacks and satisfy corporate quotas. My great regret is that I didn’t stand up to the doctor, and walk out the first day of that nightmare experience.
Anna
You can definitely get yeast infections from antibiotics. Anyone who says otherwise just needs to open a medical textbook. The most often pill prescribed is fluconazole, and you can get a prescription for a cream like nystatin. People of all ages, even children, can easily get this side effect.
Diane
AL
I took Levofloxacin in May of 2015, right away I had a lot of the side effects of this drug. I stopped taking it and returned to the doctor the next week for my appointment, told her about my problems with it and she dismissed it. I contacted the FDA and they sent me paperwork work, I filled it out and sent it back. I have had problems ever sense. I started having problems shortly after. Little things, but because I had no insurance I could not get the right help. My left knee has no Carthage, my left foot is giving me trouble, both shoulders, and a host of other problems. My muscles in my left leg are always hurting. Because of not having insurance I dismissed a lot of things.
Vickie
Oregon
I was on cephylexyn fo 60 days for sinus infections, did not work so was started on levequin which helped. 30 days worth but infection came back so 45 days more until surgery was scheduled. It did work but have been in pain since. Knee, back, headache, shoulder and all over pain and feeling awful. Hope this is not permanent as others have said. I asked my Dr. After getting 2nd dose about risks listed online and she said it’s rare so not to worry. Don’t believe it now! Miserable.
Sharon
My experience with Levantine was that I was awakened with absolutely horrific pain moving slowly down the outside of Both Legs at the exact same time from my knees down to my ankles. I was instantly crying and screaming from the pain and after many minutes of torture it would begin to subside! I did not realize that my tendons in my ankles were about rupture. It happened night after night and I thought it was from the steroids I was on for polymyalgia …instead it was the Levaquin given to me for Pneumonia! I would not wish that pain on anyone except violent terrorists! I do have leftover problems….neuropathy and finger tips that go completely numb. I pray for myself and anyone who suffers with this agony caused by such dangerous drugs!
Darlene
Georgia
These drugs simply need to come off the market. This is unrepairable damage in most cases. Black Box warnings are not doing the job. We as a society, the ones unscathed from this have accepted unknown reasons for unknown Diseases and Syndomes, all can be connected to this Antibiotic. If you look!!!!!!!
Margot
Raleigh, NC
I’m ready to join in a class action against this drug. Almost all of the comments I’ve read describe my experience with Levofloxacin.
I stopped after 6 days, and some of the most acute pains stopped within 3 to 4 days. Foolishly, I thought I’d caught it in time! However, in the past 2 weeks some have returned, it’s all very random and unexpected, like awakening in the night with a severe achy pain in my lower spine and hip area; yet getting up in the morning without the pain. I’m really upset with myself for not stopping those pills after day 3 when I started noticing my unexplainable joint and muscle pains.
My dosage was for 10 days , for a secondary respiratory infection.
I had been prescribed levofloaxion before last November. By a cruise doctor, taking it for 5 days. I didn’t have a harsh reaction, as I recall. I really do hope people will be aware of the dangers of this medication.
Dan
NC
I’d like to thank the author of this article and those who shared their experience with him to provide supporting information. I was prescribed Levofloxacin this week. I read the medication guide and was immediately concerned regarding possible tendon problems. I’ve had several Achilles injuries and plantar fasciitis in the past related to running, so I followed up with a Google search that led me to this article.
This article made it clear that the risk of tendon issues was not small nor isolated. The link to last year’s FDA statement was especially profound. Weightlifting and running is a huge part of my life, and I concluded quickly that the risk with Levofloxacin was not acceptable. I called my physician back, and ended up with Ceftin. Although it still has potential side effects (as all drugs do), they are a much less signficant for me. Thanks to the author and all who shared their stories!
Kathy
NC
I’ve suffered with “idiopathic” neuropathy in my feet and legs for years never knowing how I developed this condition. I’m currently taking 1500 mg of gabapentin a day to manage the pain, so I can perform daily activities.
I’m glad to finally have a possible answer to why I experience this condition!
Kat
CA, USA
I think there needs to be a worldwide campaign to restrict docs from prescribing this class of antibiotics unless a culture is done and tests run to show this is the only antibiotic that will safe patients life!
Sandra
Florida
I have taken Cipro several times and levaquin once and have peripheral neuropathy plus lightening like pains over my whole bofy. Finally taking gabapentin which takes care of most. of the discomfort . Never realized it could come from antibiotics . Don’t drs realize all this. I guess it’s why they call it the practice of medicine
Colleen DiChiaro
Nashville, TN
Several times from the year 2000 until 2014 I was prescribed Levaquin and Cipro for simple sinusitis, bronchitis and once for a ‘suspected UTI. I am in so much pain each day of my life. Peripheral Neurapathy in my feet is borderline disabling. Lower back pain that I’ve been to so many different doctors for and had so many different tests for that NO ONE can figure out what’s wrong or why.
I KNOW WHY! I’ve been poisoned. I have at least 30 other side effects going on from these fluoroquinolone medicines including rotator tears and surgery from the ‘floxing’ that are just too numerous to write in a comment section. These dangerously poisonous antibiotics aka flouriquinilones that are ruining lives and killing us need to be taken off the market or at the very least they should be limited for life and death situations only.
Mark
England
I was prescribed Cipro for a non-bacterial prostate issue in June last year. The side effects have been horrific. Chronic tendon & joint pain, floaters in my eyes, & blurred vision, disturbed sleep, chronic fatigue, dreadful skin – This type of medication is so toxic for humans. It should be banned
Cheryl
Twin Cities, MN
I took generic Levaquin in July 2014. Within the first couple of pills I had shoulder and finger pain. I didn’t realize it was the Levaquin because I was told it could RARELY affect the Achilles tendon. I took 6 pills before I stopped. I also was taking ibuprofen for the pain, which, I found out later, can increase the potency of the fluoroquinolone. The symptoms kept on multiplying. I have widespread tendon damage, muscle wasting, neuropathy, trouble swallowing, trouble urinating, digestive problems, a vitreous detachment in both eyes, decreased hearing, insomnia, body jerking, hot and cold intolerance, and more. I was in the medical field and had to resign. I’m on disability and can no longer function or do the things I enjoy.
Mary F.
Michigan
Seven different doctors ordered Cipro and Levaquin for me from July 2013 to January 2014. I was 64 years old. I had three suspected mild UTIs, diverticulitis, bronchitis an ear infection and mild inflammation of the colon. I now have Parkinson’s disease, neurogenic orthostatic hypotension, SFN.
Elizabeth
Lorain, Ohio
I took 2 levaquin pills Aug 4 and 5, 2016. I immediately developed knee pain, which the first day I attributed to gardening. The second day after I took the pill I called the pharmacy and asked about side effects which they at first denied. I asked pharmacist to double check, and he finally came back and said possibly but rare so he doubted it. I was part of a research study and thank goodness for that doctor who could not treat
me but told me magnesium was key and to get off my feet and ice them. The third day after the levaquin my knees, besides being grossly swollen, developed even bigger bakers’ cysts, making climbing stairs impossible. I ran a 100 degree fever for 3 months with severe exhaustion sleeping 18 and 20 hours. Terrible joint pain. Impossible to clean my house. Too exhausted to cook or grocery shop. Brain fog unbelievable. Depression. Frustration.
My family doc of 20 years came up with fibromyalgia. You do not develope fibromyalgia overnight. Still sick and exhausted and in pain but a little better. Have to really watch what causes flares and what to eat and what to avoid. Organic is great, and supplements help but $1000 a month does not go far, and I live alone with my children out of town. The worse thing was calling every department and the ombudsman in Cleveland clinic and got nowhere. I am sure my chart is tagged as a nut case. The most important thing I lacked was all the help and information and advice from floxie hope.com.
I hesitate to think what would have happened to my legs except for research docs advice about magnesium and getting off my feet. I was trying to exercise pain out. We need to get these drugs off market but also to post what to do if you start with symptoms. We need to state clearly no NSAIDs or steroids be taken with them. These drugs have ruined my life.
Sherry
Waxhaw, NC
Thank you once again for reporting on these drugs which must also include ALL of the other named fluoroquinolones, Cipro, Avelox, Floxin, Noroxin etc etc in EVERY form, pills, IVs and topicals such as ear and eye drops all of which I have been harmed by.
When I first wrote to you on January 31, 2014 and on February 1, 2014 regarding this article, I was already “floxed” from the 90s and again in March of 2013 unbeknownst to me during a surgery, and I have been very ill since then, worse than I ever was with newer problems.
Also since I first wrote to you, new information came out in October 2015 that fluoroquinolones can cause aortic aneurysms and dissections. My dad died in 2011 from a ruptured aortic aneurysm 6 weeks after being given Levaquin IV for the pneumonia he never had. He also hallucinated very badly for those 6 weeks prior to his death. There must be so many people who died from this, and their families will never know that it was from a drug they were given.
It saddens me that these drugs are still so commonly being used even after the FDA revised the labeling in May of 2016. I was one of 34 speakers at a huge FDA meeting in November of 2015 where we sat in front of over 30 doctors who were aghast at hearing about our “constellation of symptoms” as they put it. Unfortunately, the FDA hasn’t spread the word with Dear Doctor letters as they are relying on their Twitter and Facebook pages to read about it!
As part of a very large Facebook group we are “welcoming” more and more people every day and wonder how many more we would be “welcoming” had they connected the dots.
Please keep up the good work you are doing by spreading the word but please also include the other names as people will tell their doctors they don’t want Levaquin. Unfortunatley their doctors will give them Cipro instead!
ray
Do these horrible side effects occur with aural dosing only?
Joan
Red Bank, N.J.
I have been on both Cipro for salmonella and Levaquin for walking pneumonia and have never experienced any problems. I also have an immune disorder CVID. I was told only Cipro cures salmonella, and it did. Why is it I never had a problem?
charles
North Carolina
As a physician my advice to patients is that any new symptom which occurs after starting a new medicine must be considered as a possible causative agent, and the patient should contact me or my covering physician.
Lida
As pharmacists what would you recommend as safe alternatives to this class of antibiotics for the same conditions? I would rather trust advice on drugs from a pharmacist than from a prescribing physician. It would be helpful to have included this information in the article.
ml van
Texas
I took CIPRO for two days..and I could not move my legs…..I called the dr..and he said to come in for a antidote…….I said..what part of this sentence do you not understand….I CANNOT MOVE MY LEGS….MUCH LESS DRIVE……That was two years ago..and I still feel like sueing him…!!
Ell
Connecticut
I took levofloxacin in January 2017
I woke up with my knees not being able to bed I called the doctor they said I was going to be okay I thought that I was having jelly legs due to just being weak from the pneumonia on the levofloxacin my my fingers started to curl like trigger finger my joints in my fingers and then my whole arm and hand swelled up my other arm was swollen my knees my ankles my hip and it travels around some days I can’t get out of bed because I can’t walk up the stairs or down when I do it can be one step at a time other days I’m able to walk up and down okay but not like I once did and everybody’s passed me around to every kind of doctor except through but I think I need someone for tendonitis they have discovered that I have a aneurysm on my liver I’m not sure if it’s caused from the medicine I have an enlarged heart I’m not sure if it’s caused from the medicine I need some answers and help
Kaylee
FL
I have just taken levaquin for 7 days and my doc has called in for another 10 for a total of 20 days by the time they are all gone. The first few days I was achy all over and I thought maybe I had the flue and not just a sinus infection – this is one of the worst sinus infections I have ever had and even after 7 days is still pretty bad.
I took Cipro years ago several times – probably again for sinus infection – then I started taking probiotics and using Oil of Oregano capsules and stopped getting them so often. But one of the reason I am seeing my doc is that I seem to be falling apart – I have had 9 joint/bone surgeries and now when I lean against something as soft as a bed my cartilage tears – she said I have brittle cartilage syndrome and that there is nothing that can be done – now I have to wonder if all the joint pain I have ALL the time is from Antibiotics – my life started falling apart 25 plus years ago and is now often a living hell.
Denise
WV
So is there any hope that these effects will subside??? I am terrified right now!
Joanne
Pennsylvania
In December 2003, I was given Levaquin after breast cancer surgery. Upon discharge, I was informed “the antibiotic is a nasty drug. If you have any problems, contact your physicians.” With six drainage tubes running from my chest, two days later I began blistering and burning. I contacted my physician and was instructed to stop taking it.They called in another. I believe it was Cipro.
Later, I encountered severe chest pressure followed by a sensation of being “tazed”. It has been a decade and I am still having major medical problems. In 2005, I became completely disabled. To combat the neuropathy, I have been taking Neuroton. I have seen approximately 15 physicians in search of the ongoing pain and discomfort. I have had every test performed, with contrast and without contrast.
No doctor could give me an answer. By chance, at 3:00 am in the morning, I seen the commercial regarding the Levaquin lawsuit. Upon them listing the medical issue, peripheal neuropathy, I did not put it together. Now, I know my medical problems and it is not in my mind, as one doctor stated. I am not a hypochondriac. Similar to so many posts, I lost my quality of life. A decade of suffering just so J & J can make $ billions.
Pat
Ohio
I was given Cipro in March 2016 after 4 other antibiotics failed to get rid of walking pneumonia. In July of last year, I woke up with numb ring finger and pinkie on my right hand. I developed nerve spasms in same hand, that pain has not gone away. Numbness has not left. My wrist and arm are so sensitive to touch, it’s like a severe burn, I cannot touch my arm. That symptom comes and goes.
I have cubical tunnel syndrome. I have never got over the cough from the sinus drainage so I was given leviquin this March 2017 and 4 days into the pills I felt like I had shin splints in the back of my knees. I finished the last 2 pills anyway. A few days later my knee pain stopped. My hand and arm pain is still going strong. I’m 69 years old so aches and pains are expected but not this nerve pain in my hand and arm. One thing is certain. I will not take either of these drugs again. I can’t prove this is what caused this pain, but I am suspicious now.
Tina
Indy
I took 3 doses of Levofloxacin mid Feb. 2017 for an ear, upper respiratory and sinus infection and started having tendon pain in my right elbow. I did not know the side effects and continued to take it. I was not getting an better and went back to the doctor. I told him I was not feeling better and had started having elbow tendon pain. He told me it was the antibiotic and to stop taking it. He prescribed a different antibiotic, but the pain from the Levofloxacin has not gone away and it is now almost the end of March.
It keeps getting worse. I have an appointment with my doctor on the 28th and I am hoping she can help with this pain. Will keep everyone posted. I am scared because of how bad it hurts. Can’t straighten arm now.
Benita
Beckley, WV
I had a heart transplant almost 8 years ago so I will be on anti-rejection drugs for the rest of my life. I seem to catch everything that comes along! Last year, 2016, I had pneumonia 3 times and was hospitalized each time. I was given Levaquin each time and 2 days worth after being released. I started, within a few weeks after my last round, having excruciating pain in my feet and legs! I didn’t have a lot of pain when I was up and moving around but when I sat down or went to bed, oh my goodness, pain that was almost unbearable!! I never thought about it being caused by an antibiotic, I’m taking over 30 pills per day so I never suspected an antibiotic!! Now, almost a year later, I still have this pain that keeps me awake at night!! They say hind sight is 20/20, well never again will I take anything stronger than ampicillian!! Hope they can find a cure for this “cure”!!
C. A.
I firmly believe fluoroquinolones were the reason my son needed a heart transplant. He had been on 3 rounds of Cipro that sent him to the ER. While in the ER, he was hooked up to a Levaquin IV and went into multi-organ failure. Other organs recovered, heart didn’t. He had numerous external heart pumps and two LVADs. He clotted them all. Life altering would be an understatement.
Also, they are not supposed to give fluoroquinolones to transplants patients, nor should they combine them with steroids, which most transplant patients take.
Erin
Sikeston MO
I’ve taken Cipro but it no longer works for me. I don’t recall any problems but I’ve been suffering from stage IIIB squamous cell carcinoma in my cervix for the past two years. I’ve been undergoing radiation treatments and chemo so certain side effects may have gone unnoticed. Recently I’ve been on my second or third round of levaquin and all of a sudden I have joint pain in my left arm and pain so bad that I can hardly get my own shirt off and on. After reading this article today I have discontinued to take the remaining capsules. I hope this will heal. I’m miserable with this on my left arm. It’s disabling. Praying for no severe damage.
Kim
Amory, MS
My mother was prescribed Levoquin over 2 years ago at the age of 79 for an upper respiratory infection. Since then she has really gone down hill. She was pretty healthy until she took about 2 days of the levoquin 500mg. She quit the antibiotic right away. Her legs, ankles and feet were so swelled and sore that she could not even walk from her house to her car.
It was not only tendon soreness with her. She had shortness of breath, stomach pains, weight loss, dizziness and terrible itching spells with her skin. She developed a rash on her legs and arms that would not go away. After about a week she went to her nurse practitioner that would not admit it could be the levoquin. She gave her some cream for the itching and that was that. To this day she still has side effects from it.
Sometimes the swelling will go down then the next week it will be right back again. This past year she was also diagnosed with lymphoma and had to under go chemo treatments, which I have no confirmation that this was caused by the levoquin. I have found a few that have confirmed a diagnosis of lymphoma long after being treated with levoquin so I am not sure.
Anyone that I know that is going to the doctor for a simple sinus infection or bronchitis I absolutely warn them about levoquin and the other fluoride antibiotics of which there are 3 right now. This makes me so mad because it is not suppose to be prescribed to people over 60 at all. Apparently money and whatever kick backs these doctors are getting for prescribing this poison is more important than their patients health.
They all say it is only a small percentage of patients that have these problems but the health problems the drug causes in most of the cases is very real to them. Her NP said well since she was not taking it anymore it should be out of her system and just laughed it off.
Needless to say my mother does not see her any more!
Peggy
Pa
I took the “hell drug” three weeks ago for pneumonia. Felt like I was falling into a black hole, but continued to take it to take care of the pneumonia! Two hours of sleep every night…but wake up feeling like I can’t get out of the black hole. Heart racing and feeling weak.
Went to ER twice, they pumped me with IV fluids and said all was well! WILL THIS EVER GO AWAY? Feeling generally anxious and nervous, can’t settle. Doctor gave me Atavan for “anxiety”, which I’ve never had before, I’m afraid to take it. WILL THIS EVER GO AWAY? I’m frightened! Haven’t been able to work!
Ell
I’ve taken Levaquin too and since then and I’ve had all kinds of problems with my hands my fingers my elbow my knees and my ankle I’ve been to the ER myself.
Dr at ER said i have tendonitis my doctor sent me to every kind of doctor
I want me to see
arthritis doctor who can’t find anything a vascular doctor because they found an aneurysm time right kidney not sure if this is caused by the medicine I also had all kinds of tests ran out I found it in large heart I’m not sure if this is caused by the medicine and 53 years old I was healthy until I took this medicine
Char
West Virginia
I was given levaquin in a out of town hospital 01/2016 for a uti infection .now here it is a year later and I wake up at night in severe pain.I had went to my dr.when I got back in town in 5/2016 for the pain he told me it was arthritis.But as many of you have noted the pain has not diminished sometimes worse.I hope they can do something for us.The Drs have given directions for us to have the medication.
Sam
Palm Springs,CA
MARCH 10, 2017
Add 3 Drops of Oregano Oil to Water and SEE What Happens to Your Lungs, also take
CoQ-10, 1000-mg Vitamin C for 5 days.
Pneumonia is an infection of one or both lungs which is usually caused by bacteria, viruses, or fungi. Prior to the discovery of antibiotics, one-third of all people who developed pneumonia subsequently died from the infection. Currently, over 3 million people develop pneumonia each year. Over half a million of these people are admitted to a hospital for treatment. Although most of these people recover, approximately 5% will die from pneumonia. Pneumonia is also known to be the 6th leading cause of death worldwide.
Hear the warning and do not take Levofloxacin
Ell
I’ve taken Levaquin too and since then and I’ve had all kinds of problems with my hands my fingers my elbow my knees and my ankle I’ve been to the ER myself.
Dr at ER said i have tendonitis my doctor sent me to every kind of doctor
I want me to see
arthritis doctor who can’t find anything a vascular doctor because they found an aneurysm time right kidney not sure if this is caused by the medicine I also had all kinds of tests ran out I found it in large heart I’m not sure if this is caused by the medicine and 53 years old I was healthy until I took this medicine
Hollie
Seaside, CA
I to am having the exact reactions to Levofloxacin taken on January 30th 2017. I thought it was only me but I can see I am not the only one. I am experiencing severe joint pain. Pain pills have not worked, nothing has. I’m just suffering with it. I have really bad insomnia now as well.
Thank you for sharing your stories.
Hollie
Lea S.
Iowa
I was prescribed Levaquin over a year ago for a sinus infection and my life hasn’t been the same. I have been suffering from severe, arm, neck, leg and foot pain ever since. Some days I can hardly walk. I seem to be getting worse instead of better. May God be with everyone that has been severely effected by this drug.
Ell
All seem to have related symptoms here where do we go for help
Cheryl
Westminster, Colorado
I first saw the commercial for a class action lawsuit involving Levaquin just a few nights ago. I am reading some of these posts am am just in complete awe of what I am reading. I was given Levaquin for a staph infection in 2010. I have been having nerve issues for the past 4-5. My dr is saying I have cervical as well as lumbar stenosis. But my symptoms are very similar to many of the symptoms I am seeing here. The numbness and tingling in both upper and lower extremeties, with my legs having been real achy as of late. I have experienced at least 2 extremely painful cramps in my thighs which strained my back. And some recent tendonitis in my arm. Most of my issues however are neurological.
Nancy
Clearwater, Florida
On February 3, I came down with a bad case of Bronchitis. I was given a Z Pack and steroid, and nothing help. Back in the ER, I was given another steroid, and Levofloxacin. I was told not to use it unless I was coughing up yellow or green. Since my cough did start to turn yellow, then green, I started taking the antibiotic, and with never having a reaction to any drugs, I failed to read about the side effects attached to the medication. Within two days, my shoulders and joints became so painful, I couldn’t pull my shirt over my head, or attach the hooks on my bra without extreme pain. At the time I didn’t put it together with the drug, so continued to take the medication. It wasn’t until a week into the drug I put two and two together that my pain started two days after I started taking the drug. I decided to Google the drug to see if it could cause what I was going through and found this sight. I am stopping the drug immediately and pray I don’t have permanent damage. I must say, my husband has been on the drug during the same time period for the same diagnosis, and he hasn’t had the side effects. Sad that big Pharma has not been held accountable for these drugs that have ruined people health.
Debra
Ormond Beach
I was prescribed Levaquin 500mg for sinusitis and bronchitis on February 18th. I started researching this medicine after experiencing joint pain so severe over the last few days and I could not sleep last night or make it up our business steps today. This is a serious side effect. I have finished the last of the 10 day and after reading the effects could last for months am frankly quite scared.
Ell
I have had many of the same side effects of this medicine as well my hands my fingers my elbow and my knees for weeks I couldn’t hook my bra pull the sheets over me and sometimes I still have the same problem the pain imoves around from one hand to the other one knee or leg or foot everything always has a constant pain but some days are worse than others I haven’t been able to go to work because I need to use my hands . I can’t walk all the time very well can’t bend my knees very well and everything is inflamed with inflammation some days are worse than others. Nobody knows.
What Dr to send me to I’ve been to a rheumatoid arthritis after everything comes back negative want to send me to infectious disease doctor can’t get into finally got someone to make an appointment with me for tendonitis from my hand went to a podiatrist for my feet who says I have tendonitis went to the ER they said I had tendonitis went to the ER for other things they don’t know nobody wants to take any responsibility that this is the drug that has done this.
Kim
Dallas, TX
I took the generic levaquin for ten days in January 2017 for a UTI infection. I had recently started exercising and though my soreness in joints was from exercising for a few weeks. But I then realized it wasn’t muscle soreness and began looking into side effects of levaquin. I had all the symptoms and seemed to get worse with each day that passed. My dr agreed it was side effects and told me to take Aleve twice a day. It barely helps the pain. It has now been a month and a half. From reading all posts it doesn’t look like there is any relief in site.
Elisa
Illinois
We are dealing with the nasty nasty nasty side effects of Levaquin that was prescribed for our 15 year old daughter. After taking 750 mg for 14 days she started experiencing horrendous pain in her feet, calves and knees. I called her dr. He said maybe she has “the flu”. Two days later she complained that now her arms and shoulders hurt so bad. We called her doctor again, he said maybe we should have her “swabbed” for the flu. So we did, it wasn’t the flu. Duh.
Three days later, her knees were popping like crazy and the spot where they took blood now Has a ruptured tendon. So I called him AGAIN, he won’t admit it was the levaquin. So he referred us to a rheumatologist saying maybe we should have her tested for LUPUS. Thankfully, the rheumatologist finally said exactly what we knew….. she has the horrible side effects of Levaquin. They told us it could last weeks, months, years or be permanent. Not what you want to tel your 15 year old that is active and has always been healthy before!!
Barry
Georgia
I have experienced what everyone else has and it’s only getting worse daily. I feel like I’m disintegrating. Apparently, the short time interval one must file a law suit within has passed. However, I’m more interested in treatment and getting well. Has anyone had success with any form of treatment?
I called Johnson & Johnson and had a most unpleasant experience with their corporate attack dog. She said she could not talk about treatment because it would violate people’s HIPPA protections. Crazy! I said I was not asking for names and addresses just any treatment protocols people have found helpful. I got more blah blah blah. I can’t tell you how angry this made me. J & J allowed dangerous warnings about Levaquin to be suppressed by FDC chairmen
Dr. Margaret Hamburg whose husband ran a hedge fund heavily invested in J & J. Hamburg’s income increased from $10 million to over $100 million based on trading profits due to insider information from Dr. Hamburg.
No more J & J products for my family. If we can’t get help from the manufacturer of the product then we need to ban together and boycott all their products. Spread the word. Let’s fight back while we are still able to. Screw J & J!!!
Sheila
charleston wv
Was prescribed this for a sinus infection. Did know a person who had taken this drug, and had the ligament tearing that had to be surgically repaired. But was told by my doc that it only happens in 1% of the population.
Day 5 of treatment, sores in my mouth and throat. Also so stiff, unable to move. My toes hurt. Ached. Don’t have time for this kind of health issues. Stopped taking it it that day. Went to see GP, said it was reaction. Guess I’m in the 1%?
Jeff
Texas
OMG! Why doesn’t the FDA take these drugs off the market? I was prescribed Levofloxacin 500 mg once a day for 7 days for a severe sinus infection. After 3 days I started aching all over like the flu so figured I should keep taking the antibiotic. The next day I couldn’t lift my arms. They felt like lead, and my shoulder pain was unbearable. I was so dizzy I couldn’t stand without holding onto something. Well, being a “dummy,” I finished off the rx this morning.
I had no idea that the FDA had issued an alert on the medicine. I would have never taken it. My PCP never mentioned it. I had taken this drug before with no side effects, but I guess it’s like not being allergic to something one minute and allergic the next. I just wonder how long it actually takes to wear out of your system. I see above that some people are still having symptoms years later. I thought the purpose of the FDA was to protect us.
Robyn
Butler, PA
I took levaquin for 5 days for pneumonia. The day after I completed my medicine I could barely get out of bed. My knees hurt so badly, and they felt like hundred-pound weights were on them. THEY FELT STIFF AND SWOLLEN. It has been difficult at work as I am in nursing. I REFUSE TO LET THIS MED TAKE OVER MY LIFE, BUT THIS IS A REAL BATTLE.
Paul
Texas
I was prescribed Levaquin 2X for diverticulosis about 5 or 6 years ago. Shortly thereafter, I suffered two partially torn Achilles’ tendons and a torn left hip tendon. These injuries are very painful and are now recurring. From time to time I need to wear a “boot” to immobilize my left foot to allow for healing. My orthopedic surgeon told me to expect it to take up to a year for a partially torn Achilles’ tendon to heal. My mobility has been dramatically impacted by this terrible drug!
Bob
Indiana
Prescribed Levofloxacin April 2016… now Feb 17, 2017 and still have tendinitis. Tried all sorts of things, diet, exercise, vitamin C, K2, D3 etc. (from article i’ve read) Today just found something new to try… CoQ10 and Liquid Magnesium. Hope it works cause this pain sucks and I am too young to be 80+ already.
Patricia
Ashburn,VA
I was prescribed Levaquin in January 2017. I was told of the Achilles pain but suffered such insomnia that stopped taking. Recently I started getting discomfort in my right Achilles. I thought it was from taking cycling class but I thought how could that be since I stopped taking the med over a month ago. After reading these stories I would go to a doctor but it appears all of you have but to no avail. I will start a class action suit but will need to do some research.
Jacqueline F
Australia
I sympathize with everyone who has been affected by this terrible drug. I was prescribed levofloxacin 500mg, one a day for 10 days in concert with amoxicillin and one other drug for a stomach ulcer, because previous treatment failed.
Levofloxacin is not generally available for sale in Australia but 10 capsules were made up for me by a compounding pharmacist here, who told me he gets a small $1000 vial of the stuff at a time from America! I stopped taking it after four days! I had nausea, vomiting, stomach pain, swollen stomach, acute constipation, pain in my shoulders and arms, excruciating pain in my feet, ankles and calfs – still do and can barely walk, blurry vision, depressed that I have no inclination to go out or even talk to my friends or neighbours.
Cry so much it’s crazy because I’m usually a positive happy person. My ulcer pain was nothing compared to this. I’ll keep taking the other two drugs but never will I take another Levofloxacin. I’m not complaining but just writing to let you know you’re not alone. Take care everyone. Sending you best wishes and big gentle hugs xo
Robin
Alabama
I was prescribed Levoquin on Feb. 6, 2017. It has turned my life upside down. My knees and shoulders are giving me such awful pain. It’s almost bearable to get up and down. Steps nearly impossible. I hope this is reversible!
Robin
Alabama
I started taking the drug on Feb. 6. It’s now Feb. 14. I can hardly move. My knees, ankles and shoulders have all been affected. I just hope this goes away.
Glen
Orlando, Florida
I have taken only 3 750mg doses of a 7 day regimen for a sinus infection and suddenly developed severe neck pain and stiffness in my upper neck. I had read the inserts and so was aware but not unduly concerned until the symptoms appeared today. I am ending he course and calling my GP tomorrow. I am male, 64, and otherwise in good health. The neck pain and stiffness feels as though I slept wrong but is more intense, and appeared mid-afternoon with no precursor activity, and is bilateral and high in the neck/occipital area.
Karen
Pennsylvania
I was prescribed Levaquin years ago for an upper respiratory infection. I have also been on Cipro in the past for UTI’s. It started off with pain in my wrist a few years ago. Today i have pain everywhere, from my wrist, to my shoulder, back and feet. I am only 41 and I feel like I am 81. This is not normal and I am so afraid it will only get worse. Some days I can’t even get up from sitting on the couch. At the rate I’m going I swear I will be in a wheelchair by 45. I’m sick of taking pain meds. Something has to be done. It is getting worse all the time.
Ranjana
Delhi
One tab of levofloxacin tab gave me swollen face itching in body. Headache that lasted for 24 hrs. Stomach upset. Had to rush to hospital to get emergency treatment
LAURIE
Louisiana
I was hospitalized twice in 2016, each lasting six weeks, for a severe infection from a knee replacement. Each time, I was given levofloxacin. Both times, I experienced severe pain in my shoulders, to the point that if felt as though my arms were being ripped off my body. I did report this to my doctor and they said it was probably a side effect and should eventually subside.
It has been four months and the pain is still as bad as ever, making it almost impossible to sleep or anything else. I have also developed severe pain in both wrists and fingers. My thumbs are also crooking over and locking up. I have had cortisone injections, which have not helped at all. This is extremely painful and makes it difficult to write, pick up objects, etc. I am hoping this side effect will eventually go away.
NANCY
island heights, nj
I took Cipro several years ago and developed severe pain in the tendons of my lower legs. I have RA and take prednisone and should never have been given the drug. This month i was given Levaquin and was assured by my Dr. and 2 pharmacists that i could have it. I asked if it was related to Cipro and was told no. I now have the worst pain of my life. I can barely move and after reading these comments, I’m worried that I’ll never improve.
Mikie
I was on Levaquin for 6 days. I stopped before the last 4 doses because I had extreme joint, muscle and limb pain. My vision became fuzzy at the computer. Brain fog was another complaint. I was prescribed this drug for a sinus infection. The otolargingologist laughed when I told her I thought I had torn a ligament in my knee.
She said if that were the case I couldn’t walk at all. It has been 2 1/2 weeks since I stopped taking Levaquin. I can only take the stairs one at a time with excruciating pain in my legs, left ankle and back. Last year we rode bikes through South America.
This day, I can barely put one foot in front of the other without pain. I have trouble sleeping. (if you can see the time it is 2a.m.EST) Will these symptoms abate? Will I feel human again and will the depression clear up. I can’t live like this.
Carrie
Ohio
I was given Leviquin in Oct 2016. It is feb 2017, and my life has never been the same. My pneumonia is gone of course but the joint pain is unbelievable. Orthapediic spots, RA appts all are taxing. From neck to toes, everyday is different. ☹️ Something has to be done.
Loretta
Yes, I agree something has to be done.
Sherry
Birmingham, Alabama
I was prescribed Levaquin January 3, 2017, after 7 pills of a 10 day regimen, on day 7 the pain in my entire body was so unbearable, I thought that I was dying, I stopped after the 7th pill and I still feel horrible, my body hurts all over and nothing helps, I am being treated for neuropathy, spinal stenosis going thru physical therapy. We all need to ban together find an attorney and sue this company who still has this deadly medication on the market….My quality of life is horrible, I never have a good day any more….I never feel like doing anything, my energy levels are drained even upon awaking from a decent night sleep ( of course with taking something to make me sleep) we deserve compensation for this and this medication needs to banned from EVER being given to any one else…..I am ready to make a move, is anyone with me ….I am tired of hurting and feeling horrible.
Mike
virginia
I took 2 dosage of leviquin in June 2016 and experienced severe joint pain in my arms and legs including burning. Severe muscle weakness throughout my body. cannot lift or do anything normal. All the tests came negative and not sure how long will this last. The pain seem to get worse in cold weather.
Sheila
Oregon
I so understand what you are feeling. I was in the hospital being treated for bacterial pneumonia. After going home I wasn’t improving so my GP gave me (generic for) Levaquin 800mg, 10 day supply…I took it all but seem to start having cramps and weakness in my legs, arms, back shoulders, also my hands shake and I can’t control it…I also have fibromyalsia and thought it was from that…I have never experienced any pain like that in the past 4 years of being diagnosed with Fibromyalsia.
I went to my Dr again about a month later…she told me after having me push my leg in her hand, that it didn’t seem there was any tendon tears…..but that I should take Ibprofen for the pain! I did and it didn’t even touch the extreme pain I was experiencing!! I am 65 but I have always been able to push through the Fibro and get around fairly well. This is different!!
I went back to see her, and my husband had to wheel chair me in….she gave me gavapentin for the nerves so I could sleep at night. after a little over a week, I called and told her it was’t working, so she had me double the Gavapentin. I am on a walker because trying to get from one place to another is so difficult…I am so sorry others are suffering from the effects of this medicine…I understand I needed gorilla-cillin to fight the bacteria, but couldn’t something less harmful be better?
Some of the medical people might not know what this drug is doing to people….I know I am not the same and might never be! It has affected my job performance, my home life, my self care, and my relationships. Please help us find a different recourse for others and help us treat these symptoms that are ruining our lives!!
NANCY
I’ll join in on the law suit. This drug has ruined my life.
Loretta
Fl
I was prescribed Levaquin 2015 April for a ruptured appendix. I have been though the worse pain all over my body been seeing different drs ever since no answers just lots of medicine that does not help. I have never experience anything like this. I literally thought I was dying slowly. This is Jan 2017 and nothing has changed but my wife can’t sleep , I loose strength in my legs, twitching, pain, knees feel like they are going to pop at anytime. I have elevate heart rate. Why, why why? There have got to be repercussions for all this suffering. It has effected me in every way. Sometimes I wonder how long this pain is going to last or is it permanent. There has got to be answers.
Kim
Pa
I took Levaquin in 2008 for a sinus infection a few months after having a baby. From pill 1 I had felt odd but likened to the infection. My head felt funny, and can only explain it as my brain felt swollen. On about day 10 I had Joint pain, muscle pain and weakness. I was sitting on the floor and handed my baby off to someone else because I couldn’t get up. When I finally did something popped in my knee. The problems started in my head and worked their way to both my Achilles’ tendons. The severity of them was mostly on left side of my body. I was told I had serum sickness also. It has been almost 9 years and I still have problems. Last year I spent months in therapy for my Achilles. It had thickened over the years from the old injury and lost my range of motion. I have not had a Doctor admit to my ongoing tendon and joint problems that started from that first pill admit that it was because of it. They just tell me to not take it again and it’s on my allergy list.
Nicholas
Bali Indonesia
I take note of this drug I have taken it on presciption and whilst in hospital for pneumonia.A few weeks after severe pain in upper chest & back return to hospital x ray spots 2/3 on lung yrt again this drug Levofloxin,all ok till another 2/3 weeks when walking after taking this drug I find pain after 200/300 mtrs and awkard walking as it gets intense in the groin area I think tendon tear??Considering these large number of complaints a class action against the manufacturer??but one draw back the internet report on this drug says possible tendon tear.My Doctor just issued the drug to me without any indications!!!!
Joe
Chicago
This medication sucks!!! I took 1 pill 250 mgs. For ten days that was 9 months ago. I am still feeling pain through my body at the joints, Achilles heals ,hands, calfs, back shoulders. I guess the accidents that I have had makes the side effects worst. If you had joint problems or been in any accident that caused broken bones, joint damage or muscle damaged do not take this drug!!!
Meg
Miami, FL
I was given Levaquin intravenously in the hospital for a small pneumonia found on chest x-ray. After 4 days, the constant searing stomach pain started & never stopped. I wound up not finishing the last pill, at home, because it was so bad. I also suffered hot & cold chills, & extreme sensitivity to touch. All in all, I felt much worse than how I felt before they started treating me!! Many days later, & I feel just as awful. I can’t eat, & cannot take care of my child.
Erin
Missouri
I am suffering the same symptoms as many listed above. Pain in joints that comes and goes after taking 3 courses of Levaquin due to a nasty sinus infection. I have found that taking multivitamins and eating red meat seems to provide some relief. On days where I do this, I feel better the next day. On days when I have chicken or pork, I do not feel as well the next day. I have also noticed that sugar consumption seems to aggravate the condition. I’m sure there is science behind all of this, but I don’t know what it is. I hope this helps someone.
heidi
new york
I took levaquin in 2004 and one week later i was in excrucitaing unrelenting pain in my knees , legs…feet.
nothing i did helped.
I rested…I tried ice… lower shoes… nothing helped. Went from being totally active to almost disabled overnight.
The change was so dramatic..and never went away.
fast foward to 2016….I came to live with the unrelenting pain, particularly my knees and now come to find..my cartilage is completely gone..my meniscus is torn as a result… my tendons are very sensitive to the slightest overuse…and now i might need to total knee replacements. I am sure that all of this epidemic of knee , hip replacements and torn rotater cuffs are a result of this poison levaquin…just most people dont connect the dots.
I am so angry and how this affected my life and now i might be facing major surgery because of it. im walking with a cane now…depressing…. dont take levaquin!
Dennis
Gladewater,Texas
I have taken levaquin several times accompanied by flagyl for diverticulitis and I believe for other flu or pneumonia bouts. Cipro was also one of the major antibiotics. I suffer from severe muscle cramps and spasms, joint discomfort, drawing up of fingers and tendon, and ligament pain sometimes making me have to straighten my fingers out with my other hand. It happens in my feet, ankles, and toes and also in my back. I drink huge amounts of water every day and night. This problem happens day and night. I can find no real relief.
Mike
Broward County,Florida
Has anyone tried to file for disability had ad any luck? I also have taken Levaquin along with Prednisone for bronchitis and also after surgery on both elbows (2009 & 2010) to repair torn muscles going back to 2001 My orthopedic surgeon who specializes in elbows and knees told me “I’ve been doing this for 30 years and this (right elbow) is the worst one I’ve ever seen. There was literally just one strand of muscle holding that muscle group together.” The pain in my whole body, particularly my back and knees is so bad that I’m now on 100mg morphine,10/325mg Percocets & 300mg Neurontin for the last 12 yrs, as well as 10mg Baclofen and before that it was Soma’s ( muscle relaxers ) for the muscle cramps. Now I’m horribly addicted to the pain killers. But the pain is absolutely debilitating to the point where the pain killers only make it bearable. Standing, sitting, bending, squatting, kneeling, even lying in bed hurts. And now the DEA & FDA are waging a war on pain killers to the point where Heroin overdoses have skyrocketed, yet they seem to have little concern for Levaquin.
louis
35750
the levoquin seem to have taken all the strength from my waste down the day I came home from the hospital with pneumonia the dr.gave me 10 levoquin pills ,one a day after a couple days I began to get mad or ill at anything but like a good patient I started having severe anxiety that turned into hard core panic attacks I bout went crazy until I went to the the emergency room .if it weren’t the levoquin I have no idea what its causing my delima . I never had panic attacks and anxiety before taking it there is no pain from it
Nancy
Kentucky
I just took the last of a 10-day dose of this medicine for bronchitis, and I am so sorry I ever took it. My neck and shoulders hurt horribly. I can’t sleep more than an hour or two at a time. And my calf, ankle, and foot pain is so bad I can hardly walk in the mornings.
I am (was!) a healthy active 66 year-old woman, always exercising and generally in excellent health. I just lost my sister a few weeks ago, and I think my family thinks I am depressed and rundown, but believe me this pain is real, and it is UNBEARABLE.
I plan to call my doctor tomorrow and hope I can get some kind of relief. I will never touch this drug again.
W
McDonough
OMG, I was put on Levaquin 500mg for sinusitis and took 7 out of 10. I am 60 years old. After suffering from nausea and diarrhea then insomnia and excruciating pain in my hands and wrists all night I called my MD and pharmacist and stopped the medication. However, the pain in my left wrist is unbearable. It actually feels like my wrist in broken when I move it. I certainly hope this goes away as I am raising small grandchildren. I will never take it again.
Patricia
new York
I was put on levaquin 750 mg for ten days. Three pills left I am in horrible pain. My feet swelling hurting burning sensation. Pain in and behind knees, especially where I had meniscus tear. Legs ache shaky. Severe pain in shoulder thought I slept on it wrong way pain is something I never dealt with but never was on this dosage before. I don’t know whether to see a doctor or when will it stop hurting. Tried muscle relaxer, Tylenol. Nothing helps. And cold weather isn’t helping things much. I am surprised never had this with 500 mg before.
Kathleen
Connecticut
I am 70 years old and I took Levofloxacin for 5 days due to a UTI. I am allergic to PCN and Sulfur so the doctor prescribed this.
After about a week I noticed that by upper back and shoulders hurt so that I was using heat and ice and taking Tylenol throughout the day.
My arm muscles felt weak and lifting my arms was uncomfortable. My doctor did tell me that if I was over 60 what the side effects could be. I have taken medicine for years and always knew that there could be side effects but never in my life did I think this would be so sudden and so uncomfortable and painful but do to the fact that I am limited because of allergy’s to other med’s and that I had a UTI that did not want to go away I felt I needed to take this medicine. I am paying for it now.
Rick
Sacramento, CA
I was given a 10 day course of Levaquin (750 mg) and Prednisone in February 2015 for walking pneumonia. I have had 2 bouts of achilles tendinitis, each lasting about 4-6 months. I’m in and out of a walking boot. I also have episodes of constipation as well as neuropathy in my lower extremities.
My life hasn’t been the same since this event. I was so glad that the FDA strengthened the warnings on Levaquin this year. Hopefully, other people won’t have to go through what those of us on this forum have.
Jill
Missouri
OMG help I have been taking levofloxacin for a skin infection and this is my second round!! The pain was and still is unbearable. Will this pain go away by stopping the medication!?! I am beyond depressed, I can barely walk. The pain started after the first pill second round… will this pain go away!?
Terry Graedon
Contact the doctor to report this reaction. Don’t just stop the medication without talking to the doctor–and don’t just keep on taking it and suffering!
Theresa
MD
I have had lower back pain and neuropathy. I have muscle aches and stumble a lot since taking cipro and levaquin over the last 5 years. I didn’t make the connection until recently.
Lauren
New Jersey
I was diagnosed with bilateral pneumonia on 11/3/16 and given 500 mg Levaquin 1x per day for 10 days. On the ninth morning I woke up with severe pain between my shoulder blades and attributed it to the pneumonia. The tenth morning I woke with severe pain in both elbows and lower back. No position is comfortable. I didn’t take the last pill. Will this go away?
Lisa
Roswell, New Mexico
I was given Levaquin for 7 days, 500 mg tablets. I had scarlet fever. I was in very bad pain from the illness itself. Then I started the Levaquin and the infection went away. Two weeks later and I still don’t feel good. I’ve had some pain here and there, but that is not new to me, but I’ve also had bad abdominal pain, inability to eat, and just generally not feeling well. I saw the doctor earlier this week and explained how this started: around two months ago with a five day fever, no other symptoms, then the fever went away and about 5 weeks later experienced a rash all over my body, bright red, and it HURT. I was given the Levaquin for the Scarlet Fever. This feeling sick has been going on for six weeks. I’m not sure what is going on. The medical care here is poor. Very hard to find a place to go for urgent care. The doctor’s office I go to tends to not have enough staff to have time for urgent patients and I am told to go to the ER. Not a good situation.
Cathleen
Central CA.
I was given a prescription that I had filled three times for Levaquin for a skin infection. I already had some significant bowel trouble but this pushed it over the edge, I’ve had chronic diarrhea ever since, I have a torn Achilles’ tendon, I have chronic neuropathy, my feet and hands and I have been in bed for the last eight days due to some sort of an unknown issue with my knee.
I NO LONGER TRUST AMERICAN MEDICINE. I suffered from a reaction to gadolinium which is where the skin trouble started.
I feel I have been poisoned twice Now! Only a FOOL would continue to see a doctor after what I’ve been through.
Heidi
California
It’s been at least 15 years since I took Levaquin. I am still suffering through bouts of joint pain and body aches (which no doctor can give me a diagnosis for). I wish there was a way to reverse the side effects of this toxic drug.
daveabbadini
46342
I too took Levaquin 250 mg for 10 days for recurring UTIs, it did get rid of infection, but I continue to have severe vertigo symptoms always stumbling. In addition I hhave post stroke issues such as spasticity which already affects my limb tendons, at times the pam in my left foot is so severe, I cannot walk or stand. I now use a cane for balance, but my infection is gone for now. This med totally screwed me up. I also seem to get very weepy watching sad tv shows
Joanne
Rhode Island
Severe Levaquin peripheral neuropathy, swollen joints, difficulty walking.
Sunne
Grand Prairie, TX.
I, too, have had complications from elbows to hips. Much less activity due to extreme fatigue and weakness. The pain does jump around but is mostly in the elbows. Very faint, and vision seems to be worse.
It all started with PCP recommendation for Colonoscopy. Came out of hospital with Aspiration Pneumonia. Thus leading to the Levoquin. That has been 8 months now, and gradually getting worse. I did not want to do that Colonoscopy but after constant recommending, I did. Wrong!
I wish I had never done it and I tell everyone I know about Levoquin. We all deserve answers and to be warned about from our Physician about medications. In fact, mine said my elbows may hurt, but do not worry it will go away.
Debbie
Florida
On September 21, I went to my Dr for what seemed to be a long cold. Come to find out, I had pneumonia. So I was taking Levofloxacin.
About 3 days into taking the medicine, my knees started hurting really badly. Then about the 4th day, my upper arms and shoulders started hurting. I have neck problems to begin with. Now, the pain is worse then ever. To be perfectly honest, I hurt so badly that I can’t take the pain.
betty
texas
I was given Levaquin 250mg for 10 days for a kidney infection caused by too much pain medication after a wreck. I knew within 2 days I didn’t like taking this med and asked my doctor if it was necessary to continue with this one and he said keep taking it. I finished it and was careful not to injure my Achilles tendon in the coming weeks. I thought I was pretty lucky that I didn’t rupture it after reading up on the effects of Levaquin. My feet and ankles really hurt but I thought, well I’m getting old.
Months later (maybe 9 or 10) I pulled a muscle in my leg and it seemed to take forever to heal. So I stopped drinking diet drinks….(Aspertame, you heard those stories right?) thinking maybe they were having an affect on my joints. It’s been a few months now and I have had an MRI and an XRay for my shoulder that I thought for sure had a torn rotator cuff. Results were nothing needing surgery at this time and had an injection.
It’s been 6 days now and the pain is excruciating in my bicep muscle area. I read where nerves can mimic torn rotator cuff. Now I am starting to think about that darn Levaquin I took over a year ago. I really just want to be pain free. I’m starting to think I will never be pain free again. Some of the things that have been hurting don’t seem to be bothering me now unless its just being masked by the other pain. (you know let me stomp your toe so you will forget about your hand. or something like that). Is it possible for this drug to really continue to cause additional issues or is this something completely different or am I just going crazy. I will be seeing my doctor again really soon. I intend this time to bring all this up in the hopes that there is something that can be done. I would very much like to return to an active lifestyle. I really miss it. Upside….I will never again take a medication without reading up on it first.
john
massachusetts
I was prescribed Levaquin for tonsillitis and prednisone for asthma at the same time. Almost immediately I experienced arm pain and headaches.
3 months later I have ruptured my right bicep distal tendon and underwent surgery last week. I have a long road to recovery.
Melissa Stockman
Pennsylvania
I was given this for MRSA (which should not have been used) after 3 days I began with the Pain and shaking and weakness in both my lower legs . Its been nearly a year now and I am still dealing with the pain , its hard to walk and stand for a long (sadly 10 minutes) time . Would never recommend . This was a life altering experience for me . I can no longer do near what I was able to do…..
greg
Oakland, CA
I had prostatitis and was prescribed ciprofloxacin for 10 days, then levofloxacin for another 10 days. At the time, I was experiencing side effects of hot lower back pain. It was so bad, I quit the levofloxacin and took ciprofloxacin for the remaining days of the prescription.
Days later, while sleeping, I started experiencing severe lower leg cramps that I have never had before. The cramping muscles are in front of my shins, the tops of my feet, and sometimes my calf muscles.
When I get out of bed, I can barely stand as I have lost control of my lower legs. It happens often when my room is below 75 degrees. Those prescriptions were 21 months ago and I still have the side effects. Otherwise, I am a very healthy retired man.
Julie
Florida
My accident happened on Sept 8, 2016. I literally filleted my left knee open down to the bone. The ER prescribed me Levofloxacin 250 mg for 7 days. Only took it for 6 days as Im so anti pill its not funny. Today is Sept 16, 2016 so far all I can say is Im still very sore from how I fell in my accident so I cant say whether or not its side affects from this drug but as I have been reading I see the horror stories and I pray to the good Lord I will be a lucky one. I did visit my doctor for a wound check on Tuesday this past week she saw the drug and explained to me not to do anything strenuous for the next couple weeks as this drug has an affect on the muscles. She told me one of her patients a little older than myself was playing some sport and her achilles tendon ruptured. (my eyes bugged out when she said that) so when I go back to get my stitches out this Monday Im going to ask how long do I have to wait to be able to ride my bike again or go upstairs to bring my vacuum cleaner down etc. If I would have known now what I have seen here posted I would have asked for some other medication. I will say though it has helped my knee to heal but we shall see in the next few months what lies ahead. I pray things will be alright. Best to everyone on here.
Chris
Simcoe, Ontario, Canada
Both my sister and I had a reaction to Levaquin. I was prescribed it for bronchitis and, at the time, was also on prednisone as I have asthma. After taking just one pill, my legs swelled up from foot to thigh. I had no ankles, just roundness the size of baseballs. It was scary! This lasted for 2 days. I called the pharmacist and he told me to keep taking it as they did not want to risk pneumonia!!
I took just another half…and then started reading online all the scary stories. I read that there was only one light at the end of the tunnel. A naturopath said to take a megadose of magnesium….1000mg. I did this and had my legs raised up very high. I fell asleep and when I woke up about three hours later, the swelling was gone. It was like a miracle. When I wanted to fill out a form re “adverse reaction” at the pharmacy, he said they would not take it seriously because I was on steroids at the time and they would blame it on the prednisone. So I did not.
Sadly, my sister, who had similar asthma issues, also took Levaquin for bronchitis. Her legs swelled up right down to her toes after taking the full 10 days of the drug. The swelling in her legs never went down and she died at age 69 from a combination of health issues. But I believe that this severe edema was one of the causes because it is so hard on your heart and your kidneys to have this fluid buildup. I am just so grateful that I did not take the whole prescription!
Doctors know the potential for side effects but no one wants to talk about it. They continue to prescribe it. And when I mention it, there is a sharp defensiveness.
Some years ago, there was a documentary on the horrifying side effects of Levaquin on CTV’s program 16X9. It revealed the terrible side effects of this drug. However, I have not seen further information or studies in this regard. I am one of the lucky ones..my sister was not.
Mollie
Kansas
I’m a 24 year old that is pretty active. Went to an urgent care suspecting an upper respitory infection that turned out to be pneumonia. Doctor prescribed 5 days of 800mg levofloaxicin. Left there at 8pm and took my 1st dose before bed at 10. I woke up around midnight and couldn’t move. It felt like my whole body was in concrete and I had no strength. The only pain was my head felt like it was going to explode. After finally being able to get my husbands attention what felt like an eternity later, I was crying and starting to panic. The only words I could muster the strength to say was “I can’t move” “I feel so heavy”. He quickly carried me to the bathroom and put me in some lukewarm water as he thought it may be side effects of a high fever. It seemed to slowly wake up my nerves and eventually I was able to get up.
I thought I was going crazy when I first woke up. I could hear my daughter coughing in her room (she has an upper respiratory infection) but it started out muffled. I wanted to go check on her when I realized I couldn’t move. My body felt so weak, my teeth and gum’s felt tingly and my head was throbbing.
Now 2 hours later, I’ve drank a bottle of water and taken Tylenol for the headache and feel better. My husband is worried that I had a seizure but I’ve never had anything like that before. After reading reviews on this medicine and now stories on here, my experience doesn’t seem so crazy. I’m afraid to take another one tomorrow.
Aria
Toronto
I hope you quit taking the drug. After 2 doses one of my best friends has lost the use of her legs and the pain is excruciating. Nobody will help her.
Michelle
Ada, OK
On August 22, 2016, my Doctor prescribed me Levofloxacin 750mg and Prednisone 10mg tapered; 40mg for 4 days; 20mg for 4 days; 10 mg, then 5mg for 4 days each for Asthma and Sinusitis. After day 5 of both the Levofloxacin and Prednisone, I stopped cold turkey. I have never felt so much pain in my life, my left upper shoulder muscles hurt so bad that I can’t lift my arm above my head. My lower back hurts so bad, it feels like it’s breaking in half, I had the worst headache and nothing would make it go away. I’m still have palpitations, feelings of anxiety, and fatigue. They really need to re-evaluate both drugs, I’m not sure which one is worse.
Aria
Levaquin and steroids absolutely CANNOT be taken together!
Lori
Indiana
I am a 57 year old, active female. I was prescribed a 750mg/day, 7 day course of Levoquin, along with a 7 day course of prednisone, for an upper respiratory/pneumonia in late April 2016. While still on this course of meds, I developed pain and swelling in both knees. The pain in my right knee increased till ultimately I felt a “pop” and couldn’t put any weight on it. Went into the orthopedist in a wheelchair. Told him about my pain immediately starting while taking the Levoquin and prednisone. He said in his experience, that is mostly associated with a rupture of the Achilles tendon. Had Xrays and an MRI. There were some tears in the meniscus, but no way of knowing if that was normal wear and tear or something abrupt had happened.
Had a cortisone shot. Now could get around on crutches, and sometimes could do without even them, although my gait was somewhat halted and unnatural. No significant positive change, so arthroscopic surgery was decided upon for right knee on June 30, 2016.
The day before the surgery was to take place, I felt a “pop” in the back of my right calf, followed by some measure of pain, but eventually could walk. I mentioned this to the doctor the day of surgery, but he just said we would keep an eye on it. Healed well from the surgery and THOUGHT I was doing better, although my calf was very stiff and developed a huge bruise on the back of that calf. He said I had had a ‘baker’s cyst’ in that calf that had burst. Sent me to physical therapy for calf stretch exercises.
The exercises aggravated my knees so I ceased going. By the end of July, my calf developed some swelling and then an itchy red rash. It was warm to the touch. The orthopedist was out of town, so his office suggested I contact my family physician. She said when that cyst burst, it put extra fluids down into my calf, and that I was developing cellulitis and prescribed a cream and an antibiotic. The rash cleared and the large bruise was dissipating and the swelling was much decreased.
During the first week of August, my left wrist developed a nagging ache in it. I could do most everything, but it hurt to press in one particular area at the outer wrist joint. I also stepped wrong on my left leg and jarred my left knee terribly. Was back on crutches and back to see the orthopedist. He ordered an xray and found nothing broken, and gave me a cortisone shot in the left knee and put me on an anti inflammatory. I am now able to get around without the crutches, but not able to walk with a normal gait and have some measure of constant pain in both knees.
I go back this Monday for a follow up and if it isn’t significantly better, he will likely order an MRI of that knee. Now tonight, August 18th, I patted my brother on the back a couple times and felt a very sharp pain in my left wrist. I can’t move my wrist at all without terrible pain! It hurts so bad, I could believe I have broken my wrist!! What is going on!!?? I’m so discouraged!! I have no doubt there is a correlation between taking the Levoquin and having all these problems in my knee joints, and now my wrist!
From the simplest of movements, the outcome is such great pain and immobility! Questions I have: Does the Levoquin cause actual joint/ligament/tendon damage? Or does it weaken the areas making them more susceptible to injury? Is there any way to reverse the ill effects of having taken this drug? Are there any drs. that specialize in the negative effects Levaquin has on the body? Are there any encouraging stories of having fought back and beaten the ill effects this drug has on the body? Help!!! :(
Lori
I forgot to add that I also suffer with strange pains that travel up the fronts of my thighs. And I also suffer from numbness in my thighs from time to time. It comes and goes without reason. Never experienced ANY of these or the above symptoms before taking the Levoquin. I am an otherwise healthy, active 57 year old female.
Brenda O
Bella Vista, AR
Hello. I was prescribed Levofloxacin in early Jan 2016. I remember the pharmacist saying ‘be careful and do no do any housework or anything strenuous while on this pill as it could hurt your tendons’. I didn’t think much of it – I have taken meds before. (I was being treated for Pneumonia..2nd dose of antibiotics along with a steriod.)
By Jan 15th (apx 2 days after taking all pills) I awoke to excruciating pain in both knees. Encased in concrete and being beaten is a good description for it. Immediately contacted my doctor and of course, completely they disregarded what I was saying. I hurt every day, every night for months. No position was comfortable.
Finally about the first of July I started feeling a little better..had a few good weeks. And then it started again. Had an MRI done of my left knee and now have to have surgery to repair a tear in the tendon in my knee area. Massive swelling, large cyst, etc. All of this happening to my good knee.
My right knee hurts but not torn up yet. From all of the information listed above, the surgery may not heal everything. Very discouraging and I am worn out. I’m still limping in to work every day…praying for a miracle. Please take caution before taking this drug. Sure wish I hadn’t.
charles
tennessee
I took levaquin for a sinus infection. After the first pill I felt like my nerves were popping out all over. After the second one I never ached so much in my entire life; every muscle and bone in my body hurt, so I stopped them, and now I have to wait and see if I get back to normal.
tommy
Aurora, Colorado
I got very sick just a few days before Thanksgiving of 2015. I went to my Doctor suspecting a respiratory infection. The Doctor ordered Xrays, and checked me out thoroughly, and with the Xrays and her exam, diagnosed me to have Pneumonia. I was pretty sick.
She told me that she probably should put me in the hospital, but because of the Thanksgiving holiday, we would wait and see if the medication helped? She prescribed some medicines, Levaquin, and an inhaler, and some Mucinex to clear up my chest congestion. I was coughing badly and had to sit up in my recliner chair at night to sleep a few hours and had to take some ambien to get any sleep.
After the long weekend, I suddenly developed pain in my left Achilles tendon and could hardly walk. However, the pneumonia symptoms had greatly subsided and I was feeling much better, and felt like I was recovering. However, I couldn’t figure out why my left Achilles tendon was so troubling and painful like I had torn it?
I had read the information packet that came with the Levaquin, and it did list tendonitis as on of the possible side effect. I didn’t give this much thought at the time because I was sick, and it didn’t matter, getting rid of the pneumonia was my priority. 6 days after taking the 500mg tabs of Levaquin, my pneumonia symptoms had abated, and I was feeling good, but now hobbling around because I could hardly walk. I tried to do some simple exercises thinking that was loosen things up with the tendons. It did not.
I spoke to the Doctor about this, but this did not seem to be a major concern to her at the time and she said I would get over it. I was crippled up for about 2 to 3 months with the left calf pain from the Achilles tendonitis which slowly got less painful to where I wasn’t gimping around, when almost spontaneously I developed pain in the left knee, right neck/shoulder area.
This left knee had been replace (metal prosthesis) 18 months previously in 2014. I recovered well from the knee replacement (it was the second revision, the 1st one failed after 12 years), and I was doing fine in rehab, but 6 weeks post op of knee replacement, I took a step down some stairs and felt a pop in that knee with some exquisite pain. After that occurred some days later, I found that I couldn’t lift my left leg, and I subsequently fell in the shower, and fell just getting out of bed. I realized something was wrong, and went to the orthopedic Doc who informed me that I had torn out the quadriceps muscle and I needed immediate surgery to reattach the tendons and muscle.
Two days later I was in surgery on the 3rd of July, 2014 (6 or 7 weeks post op to the knee replacement surgery). This was very painful. My bout with the pneumonia occurred almost a year + later in Nov. of 2015. Anyway, as the tendonitis in the left Achilles tendon subsided, my knee was afflicted with tendonitis and almost as painful as when I had the reattachment procedure.
I went to the orthopedic Doc, who did the reattachment procedure the prior year, and he said that I had a very rare reaction to the Levaquin, and that I should go to physical therapy. I went thru 8 weeks of physical therapy with very little improvement, and I still have some instability, and weakness in the knee.
This has now been going on for 9 plus months with very slight improvement. I still have difficulty with stairs, and uneven ground. I do exercise routinely almost 5 days a week, but to no avail. I still can find no one who knows what is wrong, or how I can get better? Seemingly, the answer is “just give it more time.” So, I am still gimping around with a limp, and a stiff knee. So, does anyone out there have a “magic pill” or a cure?
Lucetta
Georgia
I was taking levaquin 750 MG for eye infection. After about 7 days, every joint in my body began to hurt so much. My neck and back also hurts constantly. After I was prescribed levaquin, I read up on it and asked my eye doctor and later my family doctor for something else would do the job but didn’t have such severe side affects. I was told that this medicine was very common and it was what my eye doctor recommended for treatment and that it should be oKay to use. So I started taking the levaquin but after 7 days, I stopped taking the medicine myself because it felt like every joint in my body started to hurt, couldn’t sleep, itching, headaches, confusion, dizzy, weak and hard to breath at times. Yes, it was the levaquin causing me these problems because the day before I started taking levaquin, I had a doctor’s appointment for a check up and I had none of these problems. If I had, I would have told my family doctor at that time. It was the next day following my check up when I started on levaquin and not long afterwards, these side affects started. Even though I no longer take levaquin, the pain and suffering is still very much present! If anybody finds something to stop or help ease the pain, please share. Thanks
Dinah
Ohio
I have taken Levaquin on and off for more than 7 years, as I have COPD with constant bronchial infections and pneumonia. About 3 years ago I started having hip and leg pain which caused me to limp and spend much of my time on the sofa with a heating pad. I am retired but my pain has severely limited my life. I am unable to play with my grandchildren, cook dinner, and struggle to dress myself.
Before realizing what was causing my pain I spent more than 12 weeks seeing a chiropractor, had several tests done including MRIs, spent 8 weeks in physical therapy, and saw a back specialist, an orthopedic surgeon, and a arthritis doctor, looking for answers. I even kept a pain journal in an attempt to document when and why my pain was better and worse. I was never able to make any correlation which might help me determine what was wrong. All the above doctors and therapists finally said they couldn’t help me.
About a month ago, I happened to notice online that nerve, muscle and tendon pain are a side effect of the drug Levaquin. I suddenly realized that I should simply have contacted my Pulmonologist, who had been writing all of my prescriptions for Levaquin for several years, with no mention of the obvious side effects. It just never occurred to me to associate my pain with this drug.
My pain comes and goes at will. I can be miserable with severe pain in both hips in the morning, and by evening the pain has radiated through my knees and into my feet. I have classified it as an 8-9 on a scale of 10 marking unbearable pain. I have a difficult time sleeping as I can’t put any pressure on my hips, so no side sleeping, and I find that sleeping on my stomach provides the best nights sleep, in addition to Lyrica and a sleeping pill.
This medicine has pretty much ruined my life and I understand there is no relief other than pain medicine. I long for my old life where I could perform simple tasks and not have to think about pain every moment of the day. If anyone knows of the class action lawsuit that seems to be ‘out there’ I would certainly like to be added as one of the plaintiffs. Please advise if you have info on this active court case and where it is filed. Like countless others, this drug has pretty much ruined my life.
Pam
Ohio
In May of 2011, I took 1 pill of Avelox for a sinus infection and became extremely ill. Bloody diarrhea sent me to the emergency room. I was diognosed with c- diff and spent the next 4 days hospitalized. It took me at least 6 weeks to start feeling better. I now suffer with arthritis in my neck, hips and feet as well as joint pain.
Barbara
Massachusetts
I was prescribed levaquin 500mg a day for 10 days for a UTI. On day six I started to experience leg and knee pain. I was not even able to get up off the toilet and had difficulty walking up and down stairs. This lasted about a week to 10 days. After some research I realized this pain was related to the levaquin. I will never take this drug again.
Sharon
Virginia
My mother was hospitalized for a bladder infection, after the second dose she started hallucinating. We tried to get help for her and the nurses told us it was sundowners, my mother had no dementia before. We stayed with her through the night and refused to allow her to be given further treatment but she was never the same. A friend told me her father had the same hallucinations.
Deborah
California
My diagnosis was double pneumonia, was hospitalized for 5 days They administered I. V. Levaquin and was sent home with 10 day prescription of Levaquin as well. The pain I my shoulders [ where the joint is at ] started while I was in the hospital and has pretty much stayed constant, it has been approximately 5 weeks since my discharge.
It [ the pain ] does not allow me to raise my arms over my head, I have to sleep on my back…. sleeping on my sides is way to painful, any type of movement whether it be washing or combing my hair, getting dressed or even sneezing does not go without a high amount of pain.
My question is, is there going to a light at the end of the tunnel? The pneumonia is completely cured, but I am left with constant pain in both my shoulders with seems to be from the antibiotic I was given to help get rid of my pneumonia…..WHY ?? How do I go about getting over which seems to be some form of a terrible adverse side effect or possible Levaquin poisoning. Any feedback would be very much appreciated, Thank you for your time.
Kathy
Los Angeles
Was prescribed 750MG of Levofloxacin for 5 days for pneumonia and took my last pill over 8 days ago. The left side of my rib cage is sore to the touch, my back is aching and I am having pain in my right knee. I don’t know what to do. Called the Doc and he said just roll with it, the pain will eventually go away….. really? I took this stuff to fix me, not to keep me in this pain. Any suggestions???? HELP ME!
k nand
michigan
I took levofloxacin for 6 days to treat pneumonia, and on the 6th day instead of getting better, I developed fast heart beat, more coughing and fluid in my lungs! Have an antibiotic skin test first before you take this! It can really ruin your life! So sad doctors are still prescribing it to make their patients come back!!! Now I had lung fluid extraction, and have difficulty speaking. I’m trusting God and vitamin C to reverse the damages. I read somewhere that vitamin C can cure pneumonia. Sad to deal with money making doctors!
kevin
Philly
Was prescribed several strong antibiotics, including Lavaquin over about 2 months for chronic sinusitus. These drugs are toxic and poison. Had knee pain, feet hurt, hip pain, ankle pain, inability to sleep many nights, difficulty standing up after waking, The only thing that seemed to neutralize the pain were steroids, methylprednisone. Of course, you can’t stay on them too long either. I had to stop taking the last antibiotic post-sinus surgery after 6 days of a 14-day course. Like many others on this site I have always been active but now somedays I just want to get thru the day. I cannot believe that there isn’t a bigger back lash about these drugs. When I complain, which I hate to do, but seem to be getting better at, I feel like a crazy person and people just kinda say, really antibiotics can do that???? Yes, everyone on this site has my sympathy, and I pray time heals.
DS
Missouri
I took Levaquin and Cipro as my “go to” antibiotics for the past 20 years, because I am allergic to most other antibiotics. I never noticed an immediate problem, but would have horrible joint pain for months. My fingers would hurt so bad that I could not dry them with paper towels in public restrooms. I dreaded having to shake hands with people. The pain would be random, but intense. Also, my shoulders would hurt so bad at night that I would be in tears. I would have to literally throw myself off of my side to roll over. I never put it together that it was because of those drugs, until the reports came out last year. I still have shoulder pain and issues sleeping, but most of the other random pains have stopped. I will never take anything from this family of drugs again. Not one Dr. ever indicated that there could be these kind of side effects, and not one Dr. ever suggested that my pain could be from those meds.
margaret
ga
Was prescribed Levofloxacin (generic of Levaquin) 500 mg for 10 days by a pulmonary doctor for a spot on my upper right lung. I am 74 years old and was in very good health. After taking the 2nd pill I had very bad pain in my bones from shoulder to ankles and muscle pain in arms, wrist, knee and legs. Just had a liver scan today because my Alkaline Phosphatase levels are high due to taking this drug.
I have seen Rheumatology, and I don’t have Arthritis. My right leg is swollen and very painful. I had 4 X-rays taken of my right knee, and the orthopedist said nothing was wrong and prescribed physical therapy. Never in my life have I had a pain in right leg until I took the Levofloxacin. I stopped taking it.
I have been off of it for 2 months and still have pain in my bones and muscles with right knee swollen and pain all the time in it. I would never have taken Levofloxacin if I had known the bad side effects.
Before this medication is prescribed the doctor should make it clear what it can do to you. To me it is poison. I told my doctor that it should never be prescribed and was told that if everything was taken off the market that hurt someone, they wouldn’t have any thing to prescribe.
I just wish I had found all these responses about how bad it can be before taking Levofloxacin. I go back on July 5, 2016 for a CT scan of my lungs. Pray for me that the spot is not there after this horrible ordeal with the drug. I go next week to see the cardiologist to see whether damage has been done to my heart and chest. Also, I have an appt. with a neurosurgeon in 2 weeks. I pray there is no nerve damage.
Kimberly
Texas
I took Levaquin for 5 days in February 2016 for very bad phenomenon. After 2 days my hands started hurting so badly I could not open a water bottle or make the bed. I told a Dr who gave me a different antibiotic it has been 4 months and I still suffer from all over body aches and joint pain. I am miserable most days and in doing research on it, it seems as there is no relief to be had.
Maryann
18370
I was prescribed Levaquin along with steroids back in March 2016 for bronchitis. The dosage was (1) 500mg pill once a day for 10 days. After several days on these meds I started to have severe joint pain. By the 9th day I couldn’t take the pain and decided not to take the last pill. I reported this to my doctor who had prescribed this medication, and she told me Levaquin could cause tendonitis.
It has now been more than 2 months and the pain in my joints has gotten more severe, especially in my knees. My knees swell up, especially behind the knees, and I have difficulty standing up from a sitting position and also have difficulty walking. I have pain and a burning sensation down my legs to my feet and also in my feet. I also get pain in my upper arms/shoulders. Every now and then I get a strange pain in my eye. I have taken Meloxicam, Advil and Alleve to try to get some relief from the pain but it doesn’t always help. Had I known the damage this drug would cause me, I would have suffered through the bronchitis without taking anything. Every day is a struggle, and I basically do nothing, no physical activity due to the constant pain.
Carrie
I was prescribed Levofloaxacin for a kidney infection and after two doses had severe neck and shoulder pain. I just took my eighth dose. The pain is not too bad during the day but is unbearable at night. Decided to look this stuff up today to see if it was what is causing the pain. Wish I would have read all of this before this mornings dose. I would not have taken it. Now I am just hoping that if I don’t take anymore it will get better. I will never take this again. My question at this point is, has anyone had this and gotten better after or is this going to be permanent?
Susan
IA
I took Levaquin for a bad case of bronchitis 18 months ago. Right after I finished the course I began having joint pain that seemed to travel through my body. At first it was bad and kept me form activities I enjoy. The cramping of muscles and joints still wakes me up at night and interferes with my job. As if I didn’t have enough to deal with before I took this stuff. I don’t believe in taking antibiotics as a preventive measure, why take something to fix an infection that isn’t there? But I’ve had breathing problems and every time I have an episode the doctor wants me to take antibiotics. I believe they should be a last resort because the cure can be worse than the problem.
K
Tennessee
I just took generic Levaquin for a bronchial infection or pneumonia. Within the first couple of days my knees especially began to get really stiff and hurt. I’ve been off the drug for a little over a week now and my knees are maybe only slightly better. I have to really hold onto stair rails (going down stairs is especially painful and feels as if my knees are going to blow out), and I now have to assist myself in rising from a seated position.
If my knees are straight, it hurts to bend them. If my knees are bent, it’s painful to straighten them back out. Most of my issues are in the knee area but have noticed odd pains shooting intermittently throughout various parts of my body. Basically for me, it seems that anywhere I already had some muscle, tendon, or joint irritation, the pain got worse when I was on the Levaquin. The pain and stiffness hasn’t subsided since going off the med even though I am not doing any exercise regimen now. I am pretty regularly using Ibuprofen especially at night so I can sleep and also so the pain of moving my legs does not wake me up. I will not take this drug again. I hope this pain and stiffness goes away soon as it is really limiting what I am able to do.
Kathy
I have the same but only in one knee…..has it gotten any better?
Sarah
Buffalo
MOVING ON: I have been suffering from Levaquin damage for 5 years from terrible tendon pain, knees, shoulders and achilles cramping. I used to be completely active. Now I am like a 90 year old. ( I am 70). I took Levaquin for 12 days for sinus infection, and on the last day I could not walk for almost a month. Achilles tendon was near breaking/ripping for a year. Before that I was hiking up mountains.
What I would like to know is — has anyone found any relief from any treatments for Levaquin damage? Has there been any research on WHY this drug is so toxic? If I knew why, what chemically is happening, I might be able to use alternative therapies to help me. I don’t understand what the drug has done on a cellular level. Does anyone know anything? Thanks
MOONBEAM
utah
They say this class of drugs works on altering DNA. Potassium and magnesium have helped me.
Anglela
Lawrenceville, GA.
I have taken Leviquin for varies reasons ranging from sinus infection to bladder infections through out years. At first, i thought my joint pain came from exercise e.g. jogging or aerobics, but i notice my joint pain was getting worse. I went from doctor to doctor trying to find out what was going on. They ordered blood work, x-rays, MRIs, and even put me on anti-immflammtory and pain medication. It only helped for a moment, then the pain starts back. I have a history of bronchitis and sinus infections, and the first thing I am put on is Levinquin or Cipro. My joint pain had gotten so bad that my Doctor ordered a series of test to see did I have Lupus or Rheumatoid Arthritis all test came back negative. I am sure this medication is a HUGE contribute to my joint pain.
Carol
CA
I have been allergic to Levaquin for sometime now. I took it before 2011, not sure exactly what year it was. I do not remember how many I took when I noticed rash’s from my scalp down to my waist. I notified my Doctor and he told me to stop taking them, which I did. Since that time, little by little, I’ve had different problems, which could be related to this drug. I’ve got COPD, on O2 24/7 now, plus inhalers, nebulizers, chest shaker, and take mucus relieving drug when needed. I have Vitreous Detachment (eye where the retina is attached). I have cataracts. I have had balancing problems (gait), neuropathy, tremors, CMC of the left hand, Scolosis of the cervical and lumbar areas, and degenerative hip and spine areas. I am 70 years old, so I’m assuming some of these aliments are from aging, but my God all of them????? I now have to see a Cardiologist on Wednesday 5/18 for possibly Abnormal Heart Rhythm problems. My heart while at rest starts to beat very fast. I’m so confused and don’t know if I should persue this further with an attorney??? Comments?
Anne
LA
I have taken both Levaquin and Cipro over the years …but this last prescription (for sinusitis) has laid me out. I thought it might be that I’d never had generic Levaquin before and the formulation must have changed. I also have peripheral neuropathay that was thought to have been caused by my Type 2 diabetes. But now I wonder….. since it came out of the blue a few years ago, if it was related to usage of these drugs. I have stopped the 500 mg of Levafloxin on my 3rd dose today and pray I will be okay. Guess you have to Google before you take any drug these days !
Frances
Queens, New York
I was on Levaquin for 5 days this past October for a severe infection. About a week later I nearly fainted on the job and was found to have hypotension. The doctor cut my BP med in half. Next, I awoke feeling as if I were getting the flu or I’d been beaten up. My entire body was achy from head to toe. Although I had no fever, I had chills that no amount of blankets could alleviate. I lay curled up in bed, exhausted, for two days. There were 5 more episodes over the next eight weeks. Three doctors found nothing wrong with me. A fourth doctor, a rheumatologist, tentatively diagnosed fibromyalgia. I know that was wrong. I don’t have pain at any of the classic pressure points. Since January, I’ve had migrating muscle and joint pain with no apparent relation to a specific activity or degree of activity. I’ll wake up with an aching right upper arm and shoulder, then it will go away only to be followed by pain in my neck, back, ankle, or knee. Tingling or pins and needles sensations in my hands and feet have become normal. I ignore it. As I write, my right elbow, forearm and wrist ache. Thus far, Lyme disease, rheumatoid arthritis, ms, lupus, sleep apnea have all been ruled out by tests. I am not diabetic. Knee and ankle pain has prevented me from walking, formerly my main form of exercise. I used to walk for miles on end. Now I’m in too much pain to go any farther than a block or two. I have to sit and rest before turning around and walking back. Stairs are difficult, some days more than others. Unfortunately, I both live and work on the fourth floor of buildings without an elevator. I make it up and down, but one step at a time, clinging to the railing or bracing my back against the wall. I require 9-10 hours sleep to function decently the next day. I used to get along fine on 6 1/2 hours. I have a neurologist appointment in three weeks, but I’m not getting my hopes up.
If anyone else has had this, did you get better over time or find an effective treatment?
Lisa
Michigan
I took Levaquin for 10 days for a staff infection from a dermatology procedure. Three or four days into it I started noticing my legs were very tired and my knees were stiff. I thought it was because I was resuming normal activity after six weeks of keeping my leg up and not doing anything strenuous. However two weeks later my knees are still very sore and stiff. Not sure if it is getting better, maybe a little bit the last day or two but I need to take Motrin to sleep or do any sporting activities. Never had knee problems before this so I am sure it has to do with the Levaquin. I am a 61-year-old female .
Margie
NY
Hi All,
I feel your pain. I was prescribed Levaquin for 10 days 500 mg per day for a supposed UTI. (later tested negative for it but had been suffering with it badly so I continued to take the med) I happen to have also had an infection going on in my nasal sinus’s and a little bit in my lungs and something around my heart .. and had been to ENT for this.
I was out of town when I went to urgent care and they gave me the levaquin. My UTI symptoms did not really get much better but ultimately did and I tolerated the meds okay.. one MAJOR important comment I’ll make is that the Doctor that prescribed this said in somewhat of a scary tone.. “YOU MUST DRINK ALOT OF WATER WITH “THIS” MEDICINE”. YOU MUST.. something made me think this was very serious.. so I made sure that I went off all other vitamins (that might have interfered) and only took my blood pressure meds .. ate well and drank and drank and drank large poland spring bottles 3 a day…always with the idea that as soon as I took the last pill..
I was going to start high quality probiotics.. well by the time I got to the 10th day and a few days later I had tendontitis in my hips, weakness in one leg and weakness in other areas too.. but I diligently took the probiotics immediately I think that would be good to take for 30 days..and I started to research the drug more carefully. I read somewhere that it affects your enzymes..
I was very lucky and started taking enzymes. I was diligent to go slowly with moving around and I made a good recovery.. I think enzymes and probiotics and plenty of water is the key.. I think it will still do anyone out there good to take these.. I only took the enzymes 2 weeks and now intermittently..I didn’t want to suppress my own body from making enzymes and unlike probiotics, enzymes I believe go in and out and don’t stay.. so you have to not get your body dependant upon these as well.. but to take them for a week or 2 and then every 5 days or 7 I think would be okay..
I also started to take my high potency vitamins again..I asked around what helps stimulate your own enzymes to work and someone said “bitters”.. our local chocolate gourmet shop makes his DARK chocolate with bitters!! I lucked out again and happen to go there a few times after this whole ordeal and had his own home made dark bark and I asked him. why am I not getting sick or symptoms from this chocolate.. no stomach ache.. no zits no nothing.. he said.. because I don’t use sugar I use bitters!!!!!!! and sweet cocoa.. wow.. this all happened right when I needed it too.. I had about 3 huge helpings over that week and half and I think it helped.. it was delicious also!..homemade dark chocolate made with bitters.. how did I stumble upon this?
The good news is that the levaquin CURED my sinus infection (remember I was prescribed this for a UTI and it ended up curing 2 other ailments that were pretty bad.. but the UTI.. that seemed to have cured only slowly) So my sinus problems got cured, my gurgling around my heart got cured.. I stopped hearing the gurgling/palpitation that was around my heart.. which I also think was from an infection..(it showed up on an echo cardiogram and the doctors didn’t offer anything for it.. by accident I took the levaquin for the UTI and bingo the heart thing got better..
This is a potent drug and probably should truly be only given out for only certain ailments and with STRICT instructions and immediate follow up with probiotics and enzymes.. I hope this helps someone out there.. lots of water too.. good luck and God Bless
Alice
San Francisco
Margie, did you take enzymes and probiotics at the same time as the antibiotics? I’m on third day, so far no reaction but by reading all these reactions I’m getting scared and want yo everything possible to avoid or prevent these scary side effects. Any other advice what to do? I gave 4 more days to go, daily 500 mg. Thank you!
John
Frisco Tx
I took Leviquin for 10 days, had no symptoms while taking it for a serious cough and congestion. The day after taking the last pill, I felt very sick, flu like symptoms, and legs are hurting and aching. It’s been 1-2 weeks now and my legs feel worse everyday. Took aspirin to help rid pain, but that isn’t working anymore. Wondering if anyone had similar symptoms and if so, how long will this last. Pain and cramps in my legs are unbearable. What can a person do to ease the pain? Totally miserable in Texas.
Mona
Alabama
I took leviquin for 7 days for a kidney infection. Ever since I’ve had worsening leg, knee and ankle pain. It seems to get worse instead of better. I have no idea what to do from here.
Daniel
Calif.
In February after pneumonia in the hospital I was given Levofloaxacin for 7days dosage at home. About ten days later my legs, ankles and feet began to swell, blister and peel with excruciating pain radiating throughout, up and down non stop. Three months later it remains much the same even though some swelling has subsided. It was only the other day on TV that I heard a woman tell of her nightmare after taking this drug and then I learned what has happened to me. The pain doesn’t stop no matter what I’ve tried except for a little relief from Lidocaine burn spray( about 5 minutes worth). When I told my doctor he more or less waved me off;”didn’t know”. This drug is poison.
Delois
NC
I was diagnosed with pneumonia on March 23, 2016. Was given a shot and put on Levofloxacin and told to come back the next day.
Saw a different doctor and she said she believed it to be flu, so never really found out for sure what I had, but primary a week later said she thought I might have some of both. Was very sick the whole time while taking the drug with symptoms of the infection, but soon as I finished, I started having my heart, with the least bit of exertion, to feel like it would pound right out of my chest and could feel every beat of my heart in my head and would feel like I was going to pass out and would get so short of breath that I had to just quit doing anything.
Went to the ER twice and they did all kinds of test but found nothing wrong with my heart. I have had to have my daughter come in to take care of me for over a week but am now having a day or two when it is not as bad and then wham it is back again.
It is now the fourth week since the infection started and I am now in more pain than I was before and having to use a walker to get around. I am 81 and have been in pretty good health until now. Haven’t been able to drive myself to the doctor, am having to have help from Advanced Home Care, having to have my children bring in meals for me and am wondering if I will ever get over what this drug has done to me.
Kat
Biloxi
In 2009 I was given 2 rounds of levaquin for strep. This was just after my first chemo treatment. My stomach has never recovered. I took probiotics then, and have continued. I also have the traveling nerve pain. I thought this was from the aggressive chemo treatment until a friend mentioned severe damage to her ears that started during a treatment given to her for an infection, also several years ago. This is when I looked it up, since doctors don’t seem to find anything wrong. I was shocked by all the posts, and saw so many that I could relate to.
I wish that I had been able to research before I took this med (I was a very very sick single mom).
Dennis
Colorado
I was prescribed a 10 day course of 750mg Lavaquin for a sinus infection, no one warned me of the side affects. On day two I went to ER for night palpitations, they said everything was fine, no one said anything about the Lavaquin I told them I was taking. On the third day my achilles started to ache to the point I could not sleep, on the 6th day, after research online I realized it was the Levaquin causing the issues and quit taking it. Now 12 days later, Left achilles still in PAIN. Both legs ache and feel a bit stiff. legs have slight muscle spasms/twitching and burning. I have emailed doc and went in, but does not seem to take me seriously. This sucks. Is it permanent?
Tee
Florida
I am currently taking the levoflox 500 mg for 14 days and it is causing major problems mainly on my feet and ankles (swelling) to include my legs slightly up to my hips. My legs felt so heavy and i could barely walk by dragging my feet. I informed my Dr. Thru her nurse and was told to take ibuprophen or change to another drug. I decided to continue taking levo.. along with ibuprophen and it helps a great deal. However, im still concerned due to the continous pain and swelling in feet/ankles. After reading these comments i wonder if i should stop. I have seven days left. Prior to levofloxicin, i was given doxycicline and i had similar aches and pains and decided to stop on my own only to be given this one.
Beth
After significantly intense oral surgery, I was prescribed Levofloxacin (Levaquin) 12 days ago for a massive bone infection on my maxilla (upper jaw bone) and within 4 days had suffered a retinal detachment. I consulted the doctor who had prescribed it and he insisted I continue the medication since the infection had proven resistant to all other medications and was threatening to have a severe impact on my future health.
During the time I was taking this drug, I maintained a daily log of meds taken, my physical status, diet, activity, responses, and my own self-treatment, as well as a photographic record of responses to the surgery that had been performed on my jaw to show swelling and bruising. Thus, I have a good record of day-to-day status to support my claim.
My concern in this respect is that, while I am in my late 60s and have had one small incident of a small retinal tear in the other eye, my left eye has been fine. But knowing that my retinae are compromised by my age, I doubt that anyone would believe that this current damage was related to the Levaquin, leaving me with no viable reason in legal terms to blame the damage on a dangerous drug.
Because I am a massage therapist and complementary medicine user, and need to move freely to do my work, I was most concerned about the issues around tendonitis, especially in the Achilles tendon. I used Reiki, acupressure and moxibustion (which brings moisture into an area) as a preventative measure and while I began to experience some minor tightness on the 3rd day of the dosage, I found that I was able to manage that issue and am finding no impact as yet. I do continue to be concerned about the possibility of damage in that area and while my dosage is complete, I continue to use moxa (mugwort) to thwart any possible damage.
Cindy
California
I just finished 10 days of Levaquin for bronchitis. The pain in my muscles and joints is becoming constant and severe. Tylenol and Advil don’t even touch the pain. Heat does seem to help my low back and hips, but not for long. My fingers, calves, hips, arms, and low back hurt constantly. I pray this goes away soon. I’m terrified after reading all these comments.
jr
minnesota
Pull it off the market , doctors in hospitals do not tell you about the side effects & now its to late – If they don’t take if off the market lets all start filing lawsuits
and then they will have too.
Greg
Maine
The side effect I’m having seem to change weekly, left arm, right arm, knees, chills without fever , insomnia or maybe 4 hours of broken sleep etc.. I stopped taking the drug first week of January for pneumonia. Levaquin 500 mg 10 days.
CS
MN
Yes, prescribed for a sinus infection, after receiving the patient information brochure read it before taking, said all over that it has tendon issues, called my physician, took a day to get back to me as having a surgery at end of month involving tendon in thumb, said no problem, we’ll now I have shoulder rotary cuf pain, really !!! I work out daily nothing strenuous just to keep limber. Wish I would have seen this before, or atleast my physician should have changed plan of action when I suggested my concerns! This is horrifying that I was put on this drug. Seeing both my docs next week to see?
Jeanna
Philadelphia, Pa.
I was DX with a big toe abscess, it was cultured and found that the infection was MRSA. The doctor prescribed Levofloxacin one a day for ten days. I am a very healthy person, who does not take any other medications for anything. On the 6th or 7th day started experiencing head fog, weakness, extreme fatigue, severe pain in my upper back shoulders and down both my arms to my elbows, by the end of my day I would feel like I had a ton of bricks sitting on shoulders and sometimes, could not lift my arm.
I would never ever take this medication again. It has ruined a healthy person, thought I was going to feel better, instead for worse with a whole new host of problems. So disappointed spent my life doing everything to be healthy and have a healthy life. This medication has robbed me of my healthy feel good life. As a result of taking it, I have
Nancy
Southeast USA
I was prescribed Levaquin, generic, for diverticulitis. I’ve taken it before and have taken Cipro before also, and I don’t recall having these side effects. My current experience is this. After the first 750 dose, I could not sleep for over 24 hours. Since this dose was 1 day after Daylight Savings Time went into effect, I attributed it to that. After my 4th and final dose, I could barely stand or walk because of the searing, burning pain in my hips and thighs. My shoulders and neck hurt. My toes and fingers ached terribly. My legs and feet tingled. I was very fatigued. I’ve been using a heating pad wherever the pain is the worst, as that changes. I’ve been taking Tylenol with codeine, napping. It’s miserable. I can’t stand, walk, or sit for very long at one time. I don’t know how I’m going to work all day like this. Tomorrow, Monday, I call the doctor to tell her I stopped taking it on Thursday (her office is closed on Friday ). Doesn’t seem to be anything she can do, but I’ll let her know because I will never ever take this antibiotic again.
Hayde
hernando fl
I was prescribed Levaquin for bladder inf. after that I had pains in the cord in the back of my ankles. dr did not know why. soon after that started with neuropathy. I have been given Levaquin 3 times for bronchitis and got weak and fell all 3 times. I did not know what was wrong until the last time and am having a hard time regaining my strength, I still can not walk and balance is bad.
Maria
Minnesota
I am in tears reading these comments. I have a 15 yr old athlete who is dealing with this same issue. She was given Levosloxacin for walking pneumonia in the ER. She took 1 tablet daily for 10 days ( 500 mg). As a high level athlete she was complaining of joint pain and I chalked it up to her sport. It has turned into a nightmare from there. She wakes up on a daily basis unable to move either her shoulders, knees, ect. The pain moves around and around. She has complained of nausea and light headedness. She has been off the pill for 8 weeks and still has major pain. I took her into Children’s Hospital to run tests due to the fact she couldn’t walk one day. All tests came back normal (Praise God). It is absolutely heartbreaking to watch and wait. We were told after 8 weeks it should pass through her body. It hasn’t and now reading some of the posts it sounds like it may be a long time. Which is crippling for a High School Athlete. IS THERE ANYTHING THAT CAN HELP !! She has done acupuncture, Fish Oil, D3, Probiotics, Ortho Biotic and Glucosamine. We’ve seen wellness doctors and chiropractors. We are so desperate for a fix.
Chad
Pennsylvania
Maria – I am so sorry to hear about your daughter. I have spent 2 years trying to recover from taking a 14 day prescription of levaquin, and have finally returned to a semi-normal life (still with issues, but livable). I won’t go into my symptoms because I think they are very common as it relates to muscle, joint, and tendon issues. I am not a doctor by any means, but felt like I have had to become one over the last couple of years. That being said, here is what has helped me the most:
– See a good massage therapist (myofacial release). My massage therapist has been more helpful than any doctor I have visited because she took the time to listen. I still see her 2X per month after initially going 1 per week.
– Seems contradictory, but figure out what is difficult to do and try to work those muscle groups. Nothing hard, but find a way to engage them. I went so far as to buy a thigh-master to work the inside of my legs as they became chronically tight
– A good stretching routine was key for me. It was a daily routine that lasted about an hour every morning. This was developed by a physical therapist. It is not daily for me anymore, but still I need to do it 2-3X per week if only for my own mental state.
– Good nutrition, including probiotics. It is a good thing to note that levaquin kills off a lot of the good bacteria in your gut, so it needs replenished if you were not using probiotics during the course of the treatment. The probiotic I take has 150 Billion bacteria
– Stay hydrated
The hardest thing to do in all of this is keep active because it is the last thing you want to do. Even if it means just getting outside for a walk. There are still days when I don’t feel like moving, but I can enjoy most of the activities I used to participate in, and I can enjoy my time with my kids as well.
I hope this in some way helps. I feel so bad for everyone that has to go through this and wish you and your daughter well.
tibeaux
nj
praying for your daughter, Lord heal her completely and give her and her mother your perfect peace! Amen!
Keisha
New York
I am soooooooo glad I found this website. I was give Levaquin / Levofloxacin in December 2015 for 10 days. I finished the subscription at the end of December 2015. In January 2016 I began experiencing really bad shoulder and neck pains. Horrible to the point where I had to sleep sitting up and / or without a pillow. It is now the end of February 2016 and I am still experiencing the same pain….. I read the instructions about the possibility of causing tendon issues. I purposely chose not to exercise while on the medicine. I have been nauseous every since. I went to urgent care in 1/2015 because I couldn’t take the neck and shoulder pain anymore. Now I am experiencing ear issues as a result of the neck and should pain.
agnes
ohio
Taking levofloxacin for 10 days I have developed heartburn since. Has anyone had the same side effect and if so what did you do to get rid of the heartburn?
Gregg
West Fargo ND
I was prescribed levaquin while in the hospital for pneumonia. Within a couple of days my shoulders and elbows were extremely painful. My legs are so swollen from not being able to eliminate fluids and my vision is still blurry. I can’t believe doctor’s prescribe this medication without discussing the possible side effects prior. I am only 54 and already have arthritis and fibromyalgia and I can only pray that the muscle aches and joint pain gets better. Mostly the blurry vision is aggravating because I work at a bank and have to read numbers clearly!
jd
houston, TX
For approx. a year now I have been taking Levaquin & Valtrex, both antibiotics, both at a dose of 500mg’s per day. This is a result of me being treated for MDS a form of blood cancer which had me needing a blood transfusion about every 10 days. I was placed on a trial chemo drug on Dec 14, of 2014 and have gone over 400 days without a blood transfusion. Because MDS compromises my blood cells; reds, whites, and platelets, my immune system is compromised.
The antibiotics have been quite effective in keeping me infection free. I have not caught a cold or been sick due to any infections in quite a number of years. Out of curiosity I wanted to find out the long term affects of taking these drugs. So I found this blog/feedback/link. I have not encountered some of the problems that has been reported here. I have some shoulder joint soreness and stiffness almost daily, which has been going on for approx a year.
However, none of this: the cancer, the drugs, the antibiotics has prevented me from getting on with a good life. I play golf (walk with a pull cart) frequently, I do cardio workouts at the gym, I stretch with my Pilates stuff, and walk a lot. I utilize fitbit to monitor my caloric intake as well as track my physical activities. Again I am very concerned about long term affects. I have observed that in treating cancer sometimes it is the treatments that do more harm than the disease. However, no two humans are a like and a lot of things have to be taken into consideration when comparing. Genes, diets, physiology, attitude, alcohol consumption…etc..etc. It’s important to get in “real” touch with your body and find out the best cocktail that works for you.
As medicine is a science it is important to do your own research, do consult the experts, but when they say take 3 pills a day, you should determine if 1 or 2 is sufficient. As you may be required or it may be recommended that you take a prescribed medicine for a long period, I inform my doctors of what I am doing, why I am doing it and challenge them on things that concern me. At the end of the day, if you are an adult, you have to be in charge of your body and your health. Your care takers are there to work with you and guide you. Also, stay hydrated and flush out your body, make sure that you are rotating that inventory in your body by having regular bowel movements.
These are my thoughts and how I live, which may not work for you. thanks for listening.
Janice
Hollis, NH
It has been 6 months since I was prescribed Levaquin in my local emergency room. I went due to severe abdominal pain and was diagnosed with divurticulitis. I was told to take it for 10 days. On the second day on the drug my ankles swelled and became very painful. Then my knees and shoulders became stiff and painful. I could hardly walk for about a week. After I finished the drug these symptoms slowly subsided. It took 3 months and doctors visits and physical therapy for the ankles. I did not realize what had happened to me until I saw a local news report about flox toxicity and the FDA being forced to put a black box warning on this drug for doctors. At this time I had developed chronic lightheadness with some dizziness. Also heart palpitations and chest pain. This landed me with brain scans, extensive cardiac tests and thousands in medical bills. All of these tests were normal and I am greatful for that. But there is only one reason this could be happening to me, Levaquin.
All my symptoms had subsided completely over time until 4 days ago. The dizzy lightheadedness and chest pain have returned and I was sent by ambulance to the hospital. Again all tests are normal. I did some reading and much to my shock these symptoms can go away and return for years. I hope not and don’t know where to go from here. I am not totally disabled like some but this is not good health by a long shot.
Michael
Denver, CO
I went to ER because of severe bronchitis. I was given IV s of Levaquin and solu medrol along with prescriptions for prednisone and levaquin to be taken over the next 3 and 6 days. Two days later I returned to the ER with severe calf pain in my left leg which mimicked a DVT. It was diagnosed as a muscle strain. It has been about two weeks and I have developed significant knee, shoulder, neck and leg pain and weakness. I am writing this at 1:30am as I was trying to figure out just why I was having these symptoms. Now I know. I am 75 and in excellent health. What does my future hold??
Steven
on Dec 28th i had gotten oral scope of my stomach to drain a small sutocyst on pancreas. I was told i had infection on pancreas. no other issues in stomach. no ulcers, bleeds or anything. I was put on levaquin and on dec 30 at noon i drank a lot of water as directed by instructions on bottle. 30 min later felt sick. left work at noon on Dec 30 on threw up 1 1/2 liters of blood. went to hospital 4 hours later another liter of blood and was taken to emergency surgery and there were 3 major bleeds and i had only taken 3 levequin over past 3 days. did not wake up again till jan 19, 2016. had strange visions for days and drs said i kept shaking uncontrollably and had no idea why.
is this issue to pursue. I literally almost died and was even given 4 units of blood because i lost so much.
Terry Graedon
What a terrifying experience! You definitely should request that the doctors review your case with you and explain what happened. It is possible an injury occurred during the scope, but there may be another explanation as well.
Morgan
Costa Rica
I was prescribed 750mg for 14days due to prostatitis. My doctor never mentioned any serious side effects. 2 days later I went on a surf trip for a week and continued the 14 day treatment to the end. 3 days after finishing I woke up and my shoulders were in serious pain. Like nothing I had felt before. Its been 2 months since I finished the treatment and I have horrible tendonitis in my right arm and elbow. I can even feel the damage on my fingers and hips. Its getting worse and I cant do any exercise or its 3x as bad. I’m feel like I will be like this the rest of my life.
Nancy
Orlando Fl
I was prescribed levofloxacin 500 mg on Jan 15th and took one pill on the 17th and had trouble in my legs that evening. I did one more dose on the 18th and the stiffness and pain became worse. I stopped all of the rest of the 10 day treatment and now on the 23rd I still am having calf and leg tightness. I reported it to my Doctor so there will be a notation in my record. Thank goodness I had the presence of mind to not continue this med.
Susan
Indiana
I started taking Levaquin (750 mg for 5 days) for walking pneumonia. After the third dose my left knee hurt so bad and became so stiff I couldn’t bend it. Immediately stopped taking it. Since then my knee is better as I can bend it now but it still aches and now my wrist and neck ache. It scares me to think that these aches and pains might not go away.
Susan
Just a follow up: I mentioned above my knee started feeling better but I had other aches. Well everything went down hill from there. My joints in both feet, ankles, knees, left shoulder and right hand swelled and the pain was horrendous. I felt like I went to bed a 58 year old woman and woke up an 88 year old woman. Could barely walk. Doctors had no idea what to do besides offer pain meds and steroids. This lasted for 4 weeks. The good news it that my symptoms have now mostly gone away. I have quit taking the steroids and have started taking turmeric and ginger, fish oil, and vitamin D. The only thing not quite right yet is my right hand where 3 fingers still have varying degrees of numbness. I feel with time I will be back to normal. Very scary ordeal to go through. My prayers to out to all who are suffering from this drug.
Rachel
Michigan
This is how I feel. I have taken 6 doses and was wondering what is happening to me. I just called the doctor’s office and am waiting for a call back from her. My hands, legs, knees, back, and especially my hips hurt really bad. It is difficult to walk, let alone try to take the stairs up and down at home. I am having a hard time even standing up straight at times. I woke up last night in tremendous pain so decided to research the drug and found that if I have joint pain and stiffness I should be contacting the doctor right away. So I called first thing this morning.
I was prescribed Levaquin for a bad sinus infection. I wish I would have researched the drug first. I was staying in a hotel over the past weekend so I was attributing the pain and lack of sleep to the different bed and pillows. Well not anymore after sleeping in my own bed and finding the pain is getting worse.
Hannah
Maine
I was prescribed a 30 day treatment course of Levoflaxin after sepsis. (Two 10mm bilateral kidney stones caused it). I have had lithotripsies in the past, but this one (Dec 28) and my recovery time was never this long. I got off antibiotics yesterday, I can hardly walk from my bed to my bathroom (like 10 feet), crippling headaches that leave me shaking & vomiting, hip, knee,ankle & finger pain (stiff, hard to move without forcing it), insomnia, anxiety, and now I’m off it having withdrawal like symptoms.
Ralph
Il
I was prescribed leviquin 750 and prednisone 40 mg.ms per day for bronchitis. My symptoms cleared in 3 days, but on the 3rd day my left, calf suddenly cramped. I suspected a reaction and did not take the 4th dose. To no avail as my right calf cramped also. Trying to walk is almost unbearable. I researched this drug too late, and found my age, and the steroid dose were significant contraindications. I am trying self help tonight(magnesium pills and Epsom salts). The comments about long term pain are scary, and I am upset that my Dr apparently was unaware of my higher risk status. This drug is dangerous.
Melissa
Pa.
I was prescribed Levaquin 750 mg for 10 days for MRSA. Ever since then I have muscle weakness, joint pain (but I have arthritis as well) and muscle pain if on legs a long time. I try telling my doctors this but they feel its from me compensating because of arthritis in my right knee. I cannot walk long distances my legs shake and they want to give out on me.
Greg
maine
Headache, dizziness
Agitation, anxiety, irritability, restlessness, confusion
Insomnia
Tendon problems, tendinitis
Most started weeks after taking the drug Levaquin, calf pain both legs after just a few doses. Doctors will not acknowledge these side effects buts its been over 2 month still feel bad and have left arm pain tingling and wasdiagnosed as tennis elbow lol idiots.
Karina
Riverside, Ca.
I too was prescribed levaquin after a round of antibiotics didn’t work on my UTI. Four days after taking meds my legs were about to give and my knees were so painful. Next morning, I could barely get up as my lower back was almost stuck! My hands, arms, shoulders, fingers, toes, shins, legs, thighs, knees, neck and back were a mess! I felt as i had been in a horrible accident. I conitnued to take it and didn’t get to dr. Until I was almost done with treatment. Before i got all thise symptoms i ran on two hours of sleep for two days and my rapid heartbeat was at its best! I didn’t want people to think i was stressed or think I was crazy. I’m a mess crying as I read all of these other comments. I can’t imagine living like thus forever. I’m really sorry for all you that are going through this. I feel so sad as I’ve never felt before. Good luck everybody!
Amanda
South Africa
So sorry to hear Karina…experiencing the same symptoms after just finishing a7 day course…hardly able to move, my joints are so weak and painful!
Greg
Maine
I think we should make these companies pay ! I’ve been miserable after a 10 day course. I saw a fill in doctor for walking pneumonia and when my regular came back he personally called me and said STOP taking this drug. I’ve been miserable for weeks.
Lee
U.S.
My exposure to Levaquin was more than ten years ago. Getting anyone to believe what was happening to me was a nightmareI, and I was a R.N. I have had a tendon implant, my toes have been fused, neuropathy of my legs with grossly atrophied lower legs, muscle weakness and am having an ultrasound next week because now I fear aortic involvement. I force myself to walk as much as I can, because I was told that even a short period of immobility would result in the loss of the little muscle I have left
Maria
Did anything ever help?
runner t.
Illinois
I was prescribed Levaquin for a sinus infection. I started having restless lega. Then sore legs, feet, and knees like I had ran too far and wore the wrong shoes. Finally my legs hurt so bad When I went up or down stairs or got up from the couch or chair. I went to the doctor. She said nothing to do but rest, ice, and take Tylenol. No excessive activities for two weeks.
Mario
And how are you now?
Virginia
Illinois
I also was experiencing aching and swelling in ankles and calves. I soaked in Epsom salt in a nice hot bathtub of water before bed and the next morning and swelling and pain was almost gone.
Clyde S
Melbourne, Australia
My fiancée (29) was prescribed a 14-day set of antibiotics (Levofloxacin 375mg, Rifabutin 60mg, Bismuth 300mg, Omeprazole 40mg, and Furazolidone 100mg) for her stomach treatment (Helicobacter pylori) in June 2014. Prior to that, she has always been fit and healthy. During her time taking the medicine, she experienced diarrhoea, fever, urinating issues, nausea, tingling, joint and muscle pain, stiffness, burning pain, and numbness. She started to worry on her fifth day when all these side effects started happening one after the other.
We contacted the specialist who had told us that these are “normal” and is what we should expect, so she continued on taking these medicine since there’s nothing worse than not being able to eat food for the rest of her life. Finally, on the twelve day, she had to stop after a battle with fever. When she went for a Gastroscopy, they had confirmed that all H. pylori was cleared and we could finally move on. Unfortunately, her side effects of joint and muscle pain, burning pain, stiffness, and numbness prolonged its stay.
This is coming to our 1.5 year anniversary since taking the medicine and the side effects are still present, although improved with Physiotherapy and pain killers – but that’s only a temporary relief. We are now desperate. The specialist had not taken full responsibility and even dismissed the idea of this actually being the cause of her pain. She further developed depression and anxiety after being traumatised by the course of drugs and is now desperate to find a cure. We’ve seen Neurologists, Pain specialists, Rheumatologists, tonnes of General Practioners, who we’ve asked for an opinion about Levofloxcin and none of them believed that this is the cause. How can someone who was so healthy start to develop these pains suddenly while taking this drug?
Juliet
Sydney Australia
Hello, my name is Juliet, I am 34 from Sydney. I was treated with the same therapy for helicopter Baxter pylori in late 2014 at the centre for digestive diseases, and he combo had levofloxicin in it. I had Glute \hip/ back pain whilst taking it for four days… I rang the specialist and they said to keep taking it… I stopped anyway, but the damage was done. I have been to so many physio”s Osteo, dr, specialists, rheumatologist etc and spent thousands, no one can really help me… I only realised it could be this… I have Glute tendonopathy and sacroiliac joint pain and it has ruined my life for a whole year… Thinking of trying the floxy hope e book diet and probiotics… Have you heard on how to treat this ?? How is your wife now?? I’d love to speak to her about her experience, sounds so similar to mine…!
Cheers And good luck
Maria
Minnesota
Have you found anything or had any improvements on this? I have a 15 year daughter who is suffering badly I just wrote post on her.
Peggy
Warren, Ohio
I had no bad affects while taking the medication, but after the last pill the pain started. First in my back and shoulder and then in my knees and hips. Now my calf muscles are so cramped I can only hobble. I’m so tired I can barely get out of bed and as soon as I get home from work I need to sleep for two hours. I am miserable!
Sandy
Tacoma, Wa.
I, too, am suffering with extreme pain and weakness that started when I finished one week of the medication. I need help to stand up from a chair or toilet because of my knees. I can’t leave home for long because I need help to go to the bathroom. I’m 72 so I already had some physical challenges, but now its been 2 months of pain and disability and reading these comments has caused me concern for the future.
Diane
Queens, NY
I started the medication last Monday and have since started with lower back pain and now my whole back. Did you get any better
Louis
Memphis
On September 15, 2015 I was prescribed 500 mg of levaquin from my family doctor for prostatitis. Finished the prescription first week of Oct. and prostatitis was gone. Returned mid October and I went to my Urologist. He put me on 500 mg of Levaquin for two weeks. I was hurting all over, especially in my shoulders and couldn’t sleep. I got an appointment, gave blood and urine. He said that I was all clear. I told him that I ached from the top of my head to the bottom of my feet.
He then put me on 750 mg of levaquin for two weeks and 500 mg for two weeks after. My last dose was last Monday, December 7th. On Tuesday my hell began. Starting aching all over so bad I was bedridden and had to take 4 whirlpool baths a day to just walk. I have had to leave my office every day at 10 am, go home and sleep for two hours just to be able to get back to work by 1 o’clock. I called the Urologist office, spoke to his nurse and she got very defensive about the levaquin. In fact she said that if it was the levaquin it would have affected me during dosage.
I told her to look at my file and she would find I complained of achiness the entire time. I have an appointment tomorrow (Dec. 16). I am 61 years old and it took me very little time to Google and find out what Levaquin’s side effects are. My question is why wouldn’t a specialist (urologist) know or not tell me of the side effects. And what liability does the Doctor have? From what I have read my entire life as I know it now might change.
Sofia
Athens Greece
I was treated with the same therapy for Helicobacter pylori starting ….just 10 days ago ……I was told by my doctor to take 1 Tavanic( same drug Fluoroquinolone, just different name ) 500ml two times a day for 10 days. Ι had not been feeling well but I thought it was because of the problems I already had with my stomach…….on the sixth day after taking the drug…..I started having bad pain in my knees and eventually all my joints started to hurt …..fingurs, lower back . elbows, wrists…all over…..I thought maybe I was coming down with the flu or something to that effect…….until it hit me last night…..that it might be the drug…….after looking it up ,and reading about it, I am terrified…….
I relate to all of you as far as what you have been feeling…..but I cannot accept that there will be permanent damage and that I will be hurting like this all the time even now that my therapy is over as of today…..I will go see my doctor tomorrow I hope he realizes that the use of this drug is responsible for what I feel and helps me find a way to deal with it. I must admit that after reading about it I am totally flabbergasted. I hope and pray this will go away along with my Helicobacter pylori. God give us all strength. I wish all of you the best.
Terry Graedon
Sofia, permanent effects are not the norm. We will be hoping that you will recover quickly.
Grace
Phennsylvania
Daughter took Levaquin for Pneumonia and just after one IV and one pill, she started to experience the adverse reaction such as neck pain, lower back pain, and the stiffness of her neck. Is there any hope to improve the symptom? Desperate mom is crying out for help.
Julie
Massachusetts
I’m another person who has suffered serious side effect to Levaquin. In my case, tendonitis in both achilles. I saw an orthopedist and he said he’s seen many similar cases, some who had torn or ruptured their tendons as a result of Levaquin. Now I can only walk short distances and have to be very careful not to walk too fast. Can no longer walk my dogs and they are not happy about it! I wish that my doctor had warned me about the possible side effects. I have learned a very painful lesson and will now read the documentation that comes with medications very carefully. I also don’t understand how this medication can continue to be used.
Manda
Texas
Anyone get headaches from this medicine after finishing the medicine? I took a 5 day treatment for pneumonia and I’ve had a rough time with my body since then. I have issues with my legs and feet and also have noticed my arms and hands feel numb and heavy. Now last night I noticed severe headaches. It’s absolutely annoying. If I’d have known that it causes side effects like these I wouldn’t have taken them. The fda needs to remove it….
Shaun
ND
I am a 36 yr old woman who has benign hypermobility joint disorder, and RSD in my right leg. Four months ago I was given a rx for levaquin for a sinus infection. I did not question the dr at that time. The second day of the rx I began experiencing right calf pain. I chalked it up to the RSD. A month later I was dx with CAP(community aquired pneumonia) as I was short of breath and the X-ray indicated pneumonia. I worked as an aide on an oncology/medical unit at our hospital. The first round of antibiotics were not working and my asthma was exasberated, so I went back to the ‘walk-in’ clinic and another dr prescribed me the levaquin again-this time with prednisone to help the asthma. Shortly after that I had severe pain in all my joints. I’m used to pain in my joints due to the BHMJD, but this was all to new, and much greater pain. A month later I was helping to boost a patient and ended up with a partial tear to my left rotator cuff-supraspinatus tendon was fraying(dx MRI). When I spoke to the dr who prescribed, I asked him about my joint issues and nerve condition and how safe the levaquin would be for someone like me. He brushed me off, saying it won’t be a problem. Well, it is. I’m experiencing horrific pain in all my joints, now both of my feet, both shoulders, and hips and knees. The pharmacist here says the levaquin did not cause this exaberation of pain, the Ortho’s NP says the fraying of my rotator is more wear and tear. I already have the start of osteoarthritis in many joints due to the hypermobility of the joint. But now my RSD is spreading, as my nerve pain is bouncing everywhere. I can’t get my physiatrist/pain management dr to believe me and I’m forced out of my job to a lower paying job. I enjoy my new position but it is not a guarantee-I may lose my job. I’m praying and suffering from some desolation and depression. I cannot use ice, it flares up my nerves, and my stomach is beginning to become raw from the Aleive and Motrin. I cannot take Tylenol as it causes the collagen in my joints worse breakdown. Any suggestions? I’m already taking a lot of zinc, vitamin b, d, calcium, magnesium, and a multi-vitamin made for women over fifty. (I’m postmenoposal due to a scare with ovarian/uterine cancer-TAH 12 years ago). All I know is my pain is at an 8 almost constantly with no or little relief from my prescribed opiate pain killers. Before all the levaquin I was at a 4-5 pain while putting 5-8miles on my feet everyday. This in itself is a miracle since I was told with the RSD I would not be able to walk normal again. Please help…any advice is a Godsend and a blessing. Praying for all here, to find hope and comfort in their suffering…
Deb
Staten Island, NY
I’m a 47 year old woman. In May 2015 I removed a tick from my calf. I watched the spot with an eagle eye & 9 days later a bullseye started to form. I was put on Doxy 30 days but after 3 more days the bullseye was worse, raised, red, and hot. The doc took a look and said it looked like cellulitis so he added Levaquin for 7 days. I asked about side effects & he said, “some people get a little tendinitis but you’ll be fine.”
The bullseye began to get better immediately. I finished the 7 days of Levaquin, stayed on the Doxy and all seemed well. Until 3 days after stopping Levaquin, I woke up with tendonitis in literally every joint in my body. Fingers, shoulders, inner elbows (that was the worst), wrists, hips, knees, ankles. At the time I was training for the NYC Marathon and also doing hardcore weightlifting. Plus I work at Trader Joe’s which encompasses lifting, bending, reaching, stretching, carrying.
Despite the tendinitis I just kept on with my routines, running, lifting, even though I was in pain in literally every joint. I think doing that actually helped. The pain in my joints lasted 5 months, with a few exceptions that finally got better. Right now, even after finishing the marathon, a few of my joints appear to be permanently affected.
vivian purifoy
prescott arkansas 71857
I to taken the drug levaquin for sinus infection after the second dose i notice i started hurting all over really bad but i took four more doses i started hurting in my arms and shoulders both sides is so sore i cant hardly move my arms that was a week or so ago and im still hurting so i read upon this medicine and i have no doubt that this medicine is responsible this is miserable and it should be taken off the market.
AC
ny
Levaquin
My mother (72yrs) was hospitalized with a kidney infection. She was given Levaquin. The infection cleared up almost immediately (according to lab cultures the bacteria she had was E. Coli and was sensitive to most antibiotics with the exception of ampicillan – so basically most antibiotics would have cleared this bug up). After second day in hospital and taking Levaquin, her labs were coming back negative for bacteria infection, BUT instead she was having SEVERE BRADYCARDIA and low oxygen stats. These symptoms continued while receiving the levaquin for almost 2 full days. She had numerous medical tests (CT/bloodwork/sonos), and nothing could explain the bradycardia. We are seriously question whether it was the antibiotic, and the doctor must have been suspicious about it too as she discontinued it asap (Pulse was dropping to mid- high 30’s).
Once Leviquen was ceased, the pulse and oxygen stats went back up to normal. Was it just a coincidence that as soon as the Leviquen was ceased these symptoms stopped???
After seeing this I NEVER want to take this antibiotic EVER.
This review is based on our personal experience. Others may have a different opinion.
Pam
Illinois
I was prescribed Levaquin three months ago for asthma and COPD problems. No one advised me of the side effects. Even the pharmacy did not provide warnings or side effect information. On the last day of taking the medication, I woke up in horrible pain. My joints and muscles all hurt. My Achilles tendon on my left ankle felt stretched almost to the point of tearing. I could barely get out of bed. I was scared and called my best friend. I thought I needed to go to the emergency room. She asked if I was taking Levaquin. She had the same thing happen to her once. I looked up on line and found it said women over 60 ( I am 63) taking prednisone should be especially careful. I called the doctors office and was told it happens and I should be over it in a week or two. That was 3 months ago. I still am getting no relief and no sympathy. I can barely walk, it takes 5 minutes to get off the couch. My shoulders,my knees, my hips and ankles all hurt and make sleep very hard. I am exhausted. I am depressed. I can’t go shopping. I can’t play with my granddaughter. Hospitals, Doctors and pharmacists need to let people know about this..
Kim
United States
I am 12 pills into a 14 day run og levo. I was prescribed this for a really bad case of pneumonia. This followed a 7 day Cipro script for a nasty UTI.
Now, I haven’t had a UTI or Pneumonia in over 15 years. Its odd they cropped up together like this. So, the medictions were to combat an unknown systemic infection I somehow came down with.
I was ok until this morning. This morning, my left shoulder is screaming in pain. I realize now that the stiffness in my hips and knees is related as well.
I stopped the levo, but its probably too late.
Kirk
usa
I got sick Aug. 8 w/fever, that went up a degree a day. By Aug. 12 it was 104 and had my wife take me to the ER. They said I had pneumonia, gave me an IV of Levofloxacin i.e Levaquin. sent me home with a script for 5 more pills, 750mg each, once a day.
2 days into the meds (2 pills) the vivid dream/hallucinations when my eyes were closed were unbearable. and some horrifying. they kept waking me up. went to my family MD, told him straight out I’m not taking this anymore. my legs were sore from just walking to get the mail.
the worst effect was, I always had a photographic memory and the Levaquin gave me moderate to heavy short term memory LOSS. I’d lose or misplace things all day long, sometimes 5 things at a time in a period of 30 minutes. This med really burns your brain out.
My specific med was made in India by SANDOZ, and imported to USA. the conditions and qc for meds in India are 3rd world !! I looked up Sandoz and they have multiple drug agecy violations to import to USA. spoke to a microbiologist, he said these meds are made not to spec by not using the right recipe of proper amount of ingredients, many drug plants have been shut down. If you take any med make sure it’s NAME BRAND and read ALL the side effect history.
it’s now Oct. 24 and the effects still have not gone away. some days my mind is just in a fog and I can’t get going or remember things, or be driving down the road and forget where I’m supposed to be going for a few seconds. scary stuff. DO NOT TAKE ANY FLOURIDE CONTAINING MEDS.
Cheryl
Day 6 of this medicine and the pain is unbearable. I started Monday it’s now Sunday. My knees and ankles are on fire. My joints feel heavy and painful. I was told about the tendon issue but not this. I have 4 more to go and will call my doctor in the morning so he can switch me out. I was given this for pneumonia. Normally a very health fit, gym going person with no problems.
Dawn
Barberton, OH
I have asthma, and on June 22, 2015, went into respiratory distress, had to be put on a bipap machine and was hospitalized for 8 days. During my hospital stay, I was given 750mg Levaquin a day and high dose steroids as well. While I was in the hospital I began having severe headaches and nightmares that seemed to pour in to my “real” life. I became paranoid and truly terrified at times. They prescribed me non-narcotic pain meds for the headaches and told me not to worry, that these were normal side effects from the medicines I was on. Mind you, I was not totally with it mentally, so these are things the nurses and doctor told my family. I also suffered from severe leg swelling and a hot rash that itched terribly. Again, I was told that the medicines can sometimes cause these effects and that it would subside when the meds were discontinued. Upon leaving the hospital, I was given prescriptions: 1 for Prednisone, a couple of different nebulizer inhalants, 2 different inhalers, and a prescription for Levaquin 750mg (14 days worth).
Just so you have some background on me, I was running marathons last year, and was just beginning to train again after having some cartilage removed from my left knee (which was due to the constant wear and tear from running). I am a police officer and have always been extremely active up until now. So, here I am, 4 months later, and the legs that use to take me 26.2 miles in 4.5 hours, can barely carry my body up the 3 steps I have on my front porch. I am in constant pain and am dealing with the mental aspect of not being able to be active anymore. I am reading all of these stories. and I must admit that I am afraid of what the future might hold for me. A lot of the stories speak of Levaquin or Cipro at 500mg for 5-7 days, and not that I am dismissing anyone’s pain or suffering because I, of all people, understand what you are going through, but I am concerned that my dosage of 750mg for 21 days, will make the side effects worse. f my effects will be worse or not.
I am afraid. I am depressed, and I feel like I was never given the choice to take these drugs, that they were just given to me. And although I made them aware of all of the adverse effects I was having while on them, the doctors kept telling me it would all be ok. Well, it is far from ok. The pain gets so bad in the bones of my right leg, and in my hip, that I have wished at times that they would just cut my leg off. I am not a believer in narcotic pain medications (and I can’t take them in my profession anyways), and Ibuprofen and Tylenol do not touch the pain at all. I am not sure where to turn or what to do, but I feel all of us should be offered some sort of help from the drug companies that supply these drugs.
Unfortunately, pharmaceutical companies are the biggest business now and have all of the politicians in their pockets, so I feel we are all out of luck. God bless all of you who suffer with me, I will continue to pray for all of us.
tibeaux
nj
praying for you dawn, for a supernatural healing touch from the Lord and His peace which passes all understanding. I also am athletic and really tough but this thing has been the very worst affliction I’ve ever experienced. I’m now supplementing with magnesium and other stuff, detoxing with greens.
Kimberly
Pennsylvania
I’m 41. It has been 8 years since I took Levaquin for a sinus infection. At the time my Doctor had diagnosed me with Serum Sickness.
I am still having problems with my tendons. Mainly my Achilles and my knees. They are screaming today and can feel the heat coming off those areas, since I tried to exercise and walked a few miles. I’m fairly active and like to keep busy and some days are better than others. Stairs? I mostly have to hold a railing to go down them.
Derek
East Sussex
I was prescribed Levofloxacin 500mg by a ship’s doctor during a cruise for what he said was bronchitis. After just three tablets I developed severe pain in the calf and was exhausted after no effort. Even walking slowly was difficult. I stopped taking the drug and expected the leg pains to reduce but, after three weeks, they are just as bad. Having checked out all the side effects, how can such a potentially life-changing drug be dished out or even been given a licence in the first place? A short course of Amoxicillin I feel sure would have been sufficient for what was not a life-threatening condition.
Rachel
Florida
I was given Levaquin 500 once a day for seven days for bronchitis. On the fifth day, I felt as though every joint in my body was raw and sore. I stopped them, and called the doctor who prescribed it, and a “note” was to be sent back to him about it and they’d “call me back with an answer” but that more than likely, they said, I’d have to come back in. I never got the call, and two months later I’m in worse agony. I had just started with a new neurologist who had my pain under control pretty well with Gralise and Amitryptilene, and I was so upset that everything had come back with a vengeance. I don’t know where to turn. Neither of the doctors seem concerned that the Levaquin could have done this to me. I have read about natural remedies to take to recover, like Vitamin C supplements.
Vandy
Easley
I would have died without Levaquin. It was given in the hospital and two pills at home. I was on total bed rest and plenty of fluids. I was weak for a week. or so, but am fine. I think people try to be super human and don’t rest like they should .
Corinne L
Suffolk, England.
I and my family, my husband, my son and my two grandchildren, flew to Florida on Tuesday, March 4th 2015. I contracted a bug on the flight over as did all my family and it became increasingly worse during our 10 day visit to Kissimmee resulting in an emergency drive for me to FH Centra Care, Orange Lake, Kissimmee where I was prescribed with Levofloxacin 500mg course for upper respiratory infection. This got me back on my feet but resulted in increasingly severe pains throughout my body, my tendons, my arms, my shoulders etc….every day/ night I have been in pain since. I need pain killers, muscle relaxants and anything which will lessen the constant pain….it seems to be getting worse now and we’re into October. I wake feeling tired, aching and try to keep up my daily walk but it seems to make things worse instead of better. All of which happened since I took this wretched antibiotic! It is threatening to come between myself and my husband who doesn’t understand how chronic and debilitating this is for me. I am afraid to seek medical help as that is what put me in this state in the first place…I am very frightened as prior to this I was so active and healthy. Please bring this to light for all us people who are suffering and now compromised by this antibiotic.
Valerie
Boston
Levoquin has taken every movement or exercise or walking, from my life. There are days that I an confined to the bed and mostly weep with sadness over losing the life I used to have. I can’t hike, I can’t camp, I can’t walk on the beach and I can’t join my friends for our normal outdoor adventures. I am devastated.
When I was prescribed this antibiotic for pneumonia, the nurse practitioner told me to call her immediately if tendons or acute body ache occurred. On the 4th day the dastardly side effects began and I immedistely stopped
the medication. The side effects have taken me out of the game of life and I am at a loss as to how to live now. I have just befun seeing a Pain Management Dr. and he has begun a treatment of Nucynta. I have no idea if it is successful because I am in so much pain. Does anyone have any positive resolutions after discontinuing this antibiotic?
Jennifer
Canada
This happened to me after taking cipro. I carefully wrote the name of this class of drugs and kept it in my wallet to keep it from happening again. I took another drug, cefuroxime, which a doctor assured me was ‘like a penicllin substitite’. It happened again.
With cipro, I recovered after about 2 years, and after a torn cartillage from no muscle stress whatsoever, and eventually all the pain disappeared. I am still in pain from the cefuroxime.
This is what I have found helpful. These drugs are bound to a fluoride ion. This is what they all have in common. I have found that the pain gets much worst after bathing. I wash my hair in tap water, but I only take sponge bats. I do not use fluoridated toothpaste, or drink tap water. This really helps.
Hurting
Omaha, Ne
I just finished taking Levofloxacin for 20 days after a bad diverticulitis attack. The pain didn’t come on immediately. It built up slowly, and I unfortunately attributed it to other issues such as arthritis and a back that gives me issues sometime.
I started feeling worse again after at first feeling better after the diverticulitis. I felt so achey and weak. It got worse and worse, and I thought maybe I had the flu, but no stomach symptoms. Yesterday and today are the worst! I couldn’t sleep last night until I finally took two Tylenol PMs.
All of my muscles and joints hurt, ache, and sometimes I have really sharp shooting pains. I have been so strong in the past, and now I struggle to get up from sitting down, even falling the last foot or so when going down to sit. I can’t hook my bra, can hardly lift my laptop, and am now scared to death this is going to be permanent. My retirement party is scheduled for October 3, and I was looking forward to an active retirement of bicycling, working out, motorcycling, camping with grandkids, hiking, gardening, etc…. I pray this will go away.
I go back to my doctor for a follow-up tomorrow. In the meantime, I’m drinking lots and lots of water and taking Tylenol now and then, as that’s not good for me either (allergic to aspirin). I am scared this could have screwed up the rest of my life!
Jhon
New york
Up your water consumption I too was experiencing joint pain and stiff muscles side effect, I waited a little longer the next day to take my dose of levofloxacin , and upped my dose of water by 6-7-8 glasses of water and a lot of eating , drink plenty and plenty of water it is the key to not continuing these side effect stay healthy all and god bless….!!!!
RT
Dallas
Took 5 pills of Levaquin plus a shot of Prednisone which is contraindicated and makes a bad reaction much more likely. It has sent my endocrine system haywire. Weak, shaky, anxious, shortness of breath, blood pressure spikes. After lots of tests in the hospital docs told me there was nothing wrong and concluded it was all in my head. My primary doctor threw me out of his practice, I guess because he didn’t know what to do with me. Four months later, with the help of a natural medicine team, I am slowly improving but I have no idea where all this will end, or when, or even if.
D stroyed by Levaquin
San Diego
Never believed a properly administered drug would prove my downfall. 79 months ago I was given Levaquin, without consent OR Advisement for my pneumonia. The next 2400 days, nights have been PURE H E L L! !! The next nerve sensation will send you for a Devilish ride of itching, burning, shocking, BUG crawling, spider web se Mmm sensations that POE & KING would best describe. IT NEVER stops!
Leeann
Erie, PA
Was diagnosed with Blepharitis ( inflammation of the eyelid.) Optical ointment was prescribed, but after 10 days, I still had some discomfort. I didn’t wanted to be stuck with a chronic infection, so I called the doctor’s office and asked if perhaps I should be on an oral antibiotic. So they ordered Levofloxacin (sp?) After taking two doses, I felt like I was run through a ringer, dragged through a knothole, and beat up. Every joint on my body ached. Also got terrible cramps in my calves but blamed it on exercising. Seeing how it was an antibiotic, I was afraid to stop taking it and continued for five more doses. Today I am absolutely miserable and researched this drug and stopped taking it even though I have three more pills left to take. I read that this is used to treat Anthrax and the plague! So, what doesn’t kill you will make you…weaker? Just hoping no permanent damage has been done, and, I don’t have very much respect for my MD anymore.
Val
37643
Was prescribed for a respiratory infection that would not clear on its own. Did not take the time to research, my mistake. Day 6 I was at the store 5 minutes and passed out? Blood pressure was so low, and tried to stand 3 times over 30 minutes but immediately would get woozy and vision would become greyed out. Extreme fatigue, mind fog, diarrhea, ongoing nausea and feeling faint for 3 weeks after completing 7 day treatment. Never had low blood pressure, never had a problem like this and not one medical professional suggested the Levaquin. No tests found anything wrong. Then I spoke to my neighbor who had extreme, ongoing medical issues after taking Levaquin…Of course I can’t prove it but can it really just be a coincidence?
Jewell
I took levaquin for ten days for diverticulitis. I began having muscle and joint pain and dizziness. Fortunately the muscle and joint pain has mostly gone but the dizziness has gotten much worse and I am now in my seventh week. I am mostly chained to my house. Can’t drive. I have had six sessions of physical therapy with little success. Have others experienced this?
Pamela
I was given Levaquin in 2012 for a sinus infection. After 5 days of an 8 day regime I developed bilateral Achilles tendonitis. I was told by the same doctor that prescribed it that the infection could have been treated with a Neti Pot.
As of approximately 2 months ago I developed peripheral neuropathy in my feet and legs. I now have pain in my knees, and other joints. Until I took this medication people referred to me as a ‘work horse.’ Seldom sick. Active. Sturdy. Strong. There has been a downward spiral of mysterious neural pain. The neuropathy is now causing jabbing pains in my hands and feet. The drug doesn’t affect everyone adversely, but in my case and others, there were clear contraindications.
I spoke to a casual acquaintance recently, and she was being treated with this medication for a similar ‘non-life-threatening’ sinus infection. Her doctor, like mine, did not discuss the potential side effects. I have been told by 2 doctors that exercise beyond short walks will trigger the neuropathy. Their words. My experience. My experience has been that there is no recourse. Doctors continue to prescribe this medication. Supposedly the ‘black box label’ is sufficient warning. It is not. Until doctors stop prescribing it for non-life-threatening conditions, it will continue to injure people in unbelievable ways and, as for myself, possibly alter the course of their lives. Thank you for opportunity to share.
Debbie
Summerville
I went to the doctor and was prescribed Levaquin for what they thought was pneumonia. I took it for 8 days but after 2 doses I started having pain in my knees and my left upper arm. It got progressively worse and by the 8th day, I could barely walk and getting up and down in a chair was almost more than I could bare. The doctor didn’t want to believe that it could be the Levaquin even though he said it was a rare side effect. I then asked, what could it be then, because I haven’t done anything to myself to cause this. I went back in to see him, he ran some tests and my labwork came back elevated for inflammation. I had already stopped taking the medication, obviously, and he put me on a steroid. It took a few days but I finally started to feel better. Now that my course of steroids is done, the pain is back. And every day it’s getting worse….just like before. I was told that the half life for Levaquin was a week, well it’s been 9 days since I’ve stopped the Levaquin and the pain is back. So is this going to continue? What are we supposed to do? If it gets to the point it did when I was taking the antibiotic….I won’t be able to function. This is a nightmare.
Karen
Detroit MI
Prescribed 10 day regimen of Levaquin October 2010 for pneumonia. Seven days into the 10 day treatment, experienced sever tendonitis lower left leg. Over period of 6 months, the pain moved from left calf to left thigh, then to right calf, right thigh, then moved on to arms.
Five years later, I still have side effects- muscle weakness, leg cramps. It’s permanent damage. I can cope but have very weak legs. After a year of personal training, my legs are stronger, but the side effects still resurface on occasion. This drug should be removed from the market. Or…. at least it should be used as a last resort only for critical needs.
Patricia
Somerset County
Last week I went to Medi Merge for a sinus infection. I was given 500 mg. of Levaquin for 7 days. On day four I began to feel pain in my right knee and all the way down my leg to my foot. I thought I hurt myself and I now realize it is from taking Levaquin. I unfortunately finished the 7 days but will never take this drug again. I am taking advil constantly and using heat and ice, I pray that this will pass in the next couple of days and not go on for months as I am reading. Please look into the side effects before taking this drug.
mary
alabams
I was given levafloxin for a uninary track infection it raise my blood pressure so high they said I had stroke I think it was nerve damage cause by a server reaction to the levafloxin
Paul
Atlanta
I was on Levaquin for 9 days ( I stopped taking the medication) and was having significant difficulty urinating….I had a urine test which was negative, no pain, no burning and my prostate was not enlarged. After doing research, I realized that the Levaquin can cause urinary problems….how long will it take to get back to normal? I stopped two days ago, still having the same issue.
Michelle
MN
How long do this symptoms last and can they continue to get worse years later?
Joan S.
allentown, PA
I am 79 years old and was prescribed levoflaxacin for a body wrenching cough and sinusitis.
I took 5 pills and felt terrible. (stopped taking them 3 days ago) I didn’t have any pain but I had extreme weakness through my whole body to the point that I thought I was going to faint. I get so tired that I have to lie down.
I am active and this is killing me. I take high blood pressure medication and tamoxfin also vitamins and supplements. I didn’t have any gastro problems and I attribute this to the probiotics I took along with the pills. I do tai chi and am trying to rid myself from the toxins. Also I soak in Epson salts baths. I still feel tired and woozy. I just want to know how long this will last. Thank you
Michelle
Indiana
I was prescribed Levaquin for a sinus infection on March 5th. On day 3 of taking this medication, I woke up with hand, elbow, shoulder and hip pain. My NP had informed me of the side effects so I quit taking the medication and called my doctor. He told me to absolutely never take this med again but that, in the thousands of Levaquin prescriptions he had written, I was only the third person to have reported these symptoms. He suggested Aleve or ibuprofen for my pain but also told me that it could take a year or more for the pain to go away. It is now mid-May and the pain is gone in my hands and shoulders and is greatly improved in my elbows. However, my hip pain could possibly be worse. I can’t sit for long periods and have trouble with the pain keeping me up at night. It can be exhausting. The OTC pain relievers aren’t really effective but I don’t want to take narcotics. I don’t know that there is any other recourse than to wait it out
Kirstn N Cook
United States
I was given levaquin through iv at the er and then a script that I took 3 pills of and stopped because of the pain in my whole body but also because I felt it was making my brain mush. Only way I can describe it. It’s been 4 days off and my body is still so achey and soar. And now I have the terrible headaches that just won’t go away. This drug is awful!
Rocky Mountain Gal
Ellicott, Colorado
I’ve taken Cipro a few times in the past with no problem. I was prescribed Levaquin about a month ago for pneumonia and within 24 hours, my bones, joints, and muscles were so sore I could barely move. I was very sick, so completed the 7-day course. Today, I am still so sore it’s nearly crippling. When the x-ray tech asked me to raise my arms for my follow-up chest x-ray, I couldn’t because of severe shoulder pain, bilaterally. This has impacted my life and my quality of life, and nobody can tell me when or if the effects of this medicine will cease. I work as a medical transcriptionist and it’s nearly impossible now to get through a day of typing because of wrist and hand pain. The pain has impacted my production, which is how I get paid, and hence, the medication has impacted my income, too. This is awful!
Daniel
Kansas
I was prescribed Ciprofloxacin and have had multiple tendon and ligament ruptures, permanent double vision, peripheral neuropathy. This was confirmed by my doctors the Ciprofloxacin was the cause.
Terri
California
In January of 2014 someone posted about retinal problems. I have not been able to locate the entire article even though a snippet how’s up in the search. There was a mention of a retinal problem followed by another one two months later. Perhaps People’s Pharmacy can find that for me. I had a retinal tear on day 7 and fortunately caught it and had it repaired with lager surgery. Worrying it can happen again.
The People's Pharmacy
Perhaps you were referring to this comment?:
https://www.peoplespharmacy.com/wp-admin/comment.php?action=editcomment&c=2987096
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Michael
USA
I was prescribed Levaquin 750mg for a stubborn sinus infection & bronchitis, never again, I’m feeling severe pain in my neck, glands, shoulders, and jaw. I called my doctor and she had me stop the Levaquin I just hope and pray these nasty side effects will go away.
More people need to take the time to report side effects of medications to the FDA. In my personal opinion Levaquin should be removed from the market, after doing a Google search and also talking to a pharmacist as well I have heard horror stories about Levaquin. Doctors need to also be more educated & warn people about possible side effects. For those who aren’t aware of it, Avelox and Cipro are related to Levaquin meaning they are fluoroquinolones antibiotics.
Elena
Rock Springs wy
I have more of a question. I was prescribed levaquin a lot as a child and teen age due to my tonsils. Now I’ve noticed it more and more that my arms loose feel for no reason at all. It comes and goes. But is this caused by the frequent use of levaquin as child?
angelfire1712
Minnesota
I took 750mg. Levoflaxacin for 2 weeks and three weeks later I started having unusual upper body pain..called the Dr. back wondering if my pneumonia was back..but then, after a few days the pain shifted to my lower extremities and for the next 2 years I went through pain like I had never had in my entire life. At first it seemed like my ankles were dislocating from my legs, I couldn’t hardly walk, the pain progressively worsened to the point where if someone gave me a gun, I would have seriously thought about using it…and I’ve never felt like that in my entire life. I had, what is known as, the Lyme disease limp…but I didn’t think Lyme at that point. I couldn’t figure it out until 3 months later when I felt so bad I went to the ER thinking I might have pneumonia, AGAIN, and didn’t but they prescribed Levoflaxacin AGAIN. I took one and then for some, unknown reason..looked up the side-effects and there it was…Levoflaxacin..BLACK BOX ANTI-BIOTIC and a description about what I was going through…bingo. But get a professional to agree with you…ah, ah.
I went to a lot of doctors, even the Internal Medicine dept. at Mayo Clinic, Rochester, MN…and got the run around. The only one who helped me, and I believe cured me of all the major problems was an osteopath who said, ‘hell yes, I think you’re right. We’re going to take some blood tests and measure some nutrients, esp. Vit. D and then we’re going to build your system back up. I’m 65 now, this happened when I was 62. ‘ My vit. D was low…so he put me on mega doses to get back to normal, a vitamin B drip, magnesium…all the nutrients this anti-biotic strips you of…but it took months to overcome. I had a physical job and at times would have to pull myself up with my arms to get off the ground. I couldn’t do yoga positions any more…my legs felt stiff, the back of my knees the cords would snap and you could feel ridges in the back of my thighs, my legs started to cramp during the day and night … even in the thigh area. I couldn’t sit for long due to the pain..it felt like those who would explain to me what arthritis felt like. It was extremely tiring, not only dealing with the pain but not getting enough sleep because of waking up a lot with leg cramps. I only used advil and that only helped somewhat…I didn’t want any other meds because I drove for a living. I kept at the nutrition..kept pushing myself and after 2 years the leg pain went away and the cramps slowing subsided but that took a little longer. I just wonder what it may have did to other parts of my body… I would suggest that if you are going through problems to see someone like an osteopath who is educated in nutrition. I love my doctor…I think he saved my life.
iris
United States
I was taking Levaquin for a kidney infection and 2 days into taking it I developed severe diarrhea and abdominal pain. It has been almost a month since I took it and I’m still having abdominal pain, abdominal swelling, diarrhea, nausea and vomiting. No doctor can tell me why this is happening. My life has been ruined by this. I can hardly leave my home due to the pain and diarrhea. I’ve already passed out from the pain several times. I don’t know how much more of this suffering I can take. I need answers..
Linda
martin county,fl
Glad you found help. I am going through extreme back pain which jumps from lower to upper middle, side ribs was bedridden from this! I didn’t want to take this drug & told the disease specialist I was high risk due to having ra (rheumatoid a) & on prednisone, diabetic. Research said this should be consider only LAST resort. He didn’t seem to listen,care & now I’m worried I’ll have this all my life, which I can’t live with. I hope they STOP THIS DRUG NOT JUST A BLACK BOX THAT’S MAKING PEOPLE WISH THEY WERE DEAD.
Rob
I took two, ten day prescriptions of Levoflaxacin, 500mg. I have been having digestive issues since then for about two months. They range from diarrhea, abdominal pain, nausea and too much digestive acid. The worst of it all is the nausea. It has kept me out of work for almost the entire two months. I can’t figure out how to get my digestive system back to normal. Does anyone have the same situation that they have recovered from?
Toni
Missouri
I have the same situation for about a year and a half. I take extra strength probiotics every day. The levaquin killed my gallbladder too, so I had it removed a year ago. I didn’t have stones or slug, I had chronic inflammation. No doctor will even consider the levaquin caused this but I never had digestion issues or gallbladder issues before the levaquin. I still battle ibs and flares. Good luck to you!
Brenda
Virginia
I am 66 and had a kidney infection was given Levaquin 3 days by in my arm 750mgs and 7 days by mouth 750 mgs I am in a wheelchair, and have severe shoulder pain knee pain and numbness in both feet I don’t know what comes next.
JC
I am almost 32 F from India and this drug has really crippled my life. I was prescribed Levofloxacin last September for three months!! This was for TB. And within 48 hours, I suffered from severe joint aches especially knee. I couldn’t sit, stand, was in pain even at rest. I went back to the doctor twice but she told me to keep taking the pill..Finally after 2 months I couldn’t take more. I stopped the drug, but the pain didn’t go away. I am living on painkillers now, my knee pain flares up anytime. I have cancelled so many vacation plans, I cant dance, cant cycle, cant walk fast…I was absolutely normal before I had the pill. I have got MRI also done, been seeing an orthopaedic regularly who said they shouldn’t have given me the drug particularly when I am severely allergic to a sister drug – ofloxacin. It is extremely disheartening. Wish the doctor had told me about the side-effects. The doctor who prescribed this originally acknowledged that the drug causes severe pain but then later said it’s not proven that the drug is behind it. I took it for two months! When will this get ok??
hamid
I am 46 and on April 12, 2013 I was prescribed Levofloxacin 750 mg. for 10 days because the “doctor” couldn’t figure out what’s wrong with me and he was worried I had traveled abroad. So he threw a dart in the dark and prescribed me this “medicine”
After taking 7 pills I had mild sensation on back of my left heel, so Dr. ordered me not to take the remaining pills and stay off my left foot.
During the course of medication, I also had insomnia, anxiety, suicidal thoughts, but once I stopped the medication the psychotic effects all went away fairly quickly.
I completely immobilized myself for two full weeks, even though I was very active before, working out (cardio. and weight training) every other day.
However, my left ankle tendon got worst. I started feeling burning pain on the back of my heal and tingling and needles and pins feeling at the bottom of my heal. The pain is come and go, increases if I stand or walk and decreases if I rest and put no weight on it.
For two weeks I was on crutches (and wheelchair in airport) until I saw two orthopedic doctors (they did MRI and bunch of tests all neg.), who told me not to worry about tendon rupture and if I can bear the pain then it is OK for me to walk. Only, I need to wear high heal and place a heal support in my shoe and prescribed me anti-inflammatory medicine. At this point my pain is 1-3 in scale of 10.
I also have been taking multivitamin, magnesium 500 and Vitamin E.
After two weeks pain was worst, having pain 1-5 on scale of 10, and my right foot started having the same symptoms as I had on my left foot early on.
I had other issues too. One episode of sever pain in shoulder (first right then left), 3 cases of severe muscle weakness and muscle pain in my calf and the back of my tights, 3 episode of lightheadedness and almost fainting, and one case of right bicep tendon tenderness. But, they don’t seem to be persistent and are fine now. Also, my left calf muscle size is visibly reduced by about 25% compare to my right calf. Dr. says it is because of me staying off of it (I hope he is right)
I try to keep in shape by swimming and doing stomach crunches, but despite my best effort my health and body are visibly degraded.
From January 2014, I lost all symptoms for almost full 3 months so I was very happy, thinking I have dodged the bullet. However, in April, again I started having off and on pain in my left Achilles tendon.
Things got worst. I have had sever and continuous pain/burning sensation on my left Achilles tendon for the past 3 weeks
It seems like I have to live with this pain for ever and I may well be permanently disabled.
It is hard to believe this drug is available. This drug should be only given in life and death situation. I have already filed a complaint on with FDA MedWatch and I encourage anybody who suffers from the adverse effects of this drug to do the same. I think the side effect for this drug is overtly under reported.
L
At age 45, I ended up with a staph infection (MSSA), and was prescribed Levaquin. I ended up with a rash on my chest and tight breathing. At my request, the doctor prescribed another antibiotic, doxycycline hyclate. The staph infection returned 4 months later (same location), so I was put on Bactrim DS followed by a Hibiclens 4% daily body wash and a Bactroban Nasal 2% treatment, and kept the location swabbed daily with alcohol and povidone iodine (2x per day). That did the trick. I had no problems with the doxycycline or Bactrim DS.
I have noticed that, since the staph infection, I regularly have burning in both legs and chronic insomnia. I also experienced a vitreous detachment in one eye and then, two months later, a retinal tear in the same eye.
L.k.
I was given levofloxacin 500 mg for a sore throat. After 4 pills, I woke up this morning with tendinitis in my elbow and experienced some light headedness, both printed symptoms, particularly for those over 60. I’m 66 and very fit, so the tendon problem is of concern. I’ve had Cipro in the past with no obvious side effects. I stopped the meds and will see where it goes, but I regret taking the medicine.
Kahleen
Very good thought Trish, but I would think that the doctor prescribing the medicine would take that responsibility.
edna
@Trish- interesting. I wish I had done more research when I was sick, but the operative word is SICK, & I was with walking pneumonia, very sick, no time or energy to do that, then you rely on the docs. I won’t take that Levaquin again and steering clear of cipro too!
tx for the info.
SB
Had a sinus infection that didnt go away after 10 days of 1,750 ml of Augmentin. Went back to Dr, gave me Levaquin to take for 7 days, 500 mls. Took one dose, felt better after a few hours, however, it gave me insomnia and felt like I was in a fog. Took the second pill then decided to do some research. I am terrified by what I found. I immediately drank a bunch of water, ate food, took Vitamin C, ate yogurt, and bathed in Epsom salts. I am 35 years old, no health issues. I am praying this will not affect me but I am so scared. It’s scary to know that months down the road symptoms can start to appear. Is there anything else I can do to rid my body of this?
Trish
Reading these comments makes me wonder: is it possible much of the problem is too high a dose? I just listened to a news report that concluded men and women should not be prescribed the same dosage of a drug.
ss
I developed weird joint pain in my legs on the next to last day of a z-pack (azithromycin) so didn’t take the last dose. I was told the meds stay in the body for several days after taking them. The pain disappeared 5 days after halting the meds. Years ago, I took Cipro on several occasions for UTIs with no ill effects. Now, several years later, I have tendonitis on either side of both of my Achilles that are not responding to PT and/or new orthotics. I don’t know if Cipro has a delayed reaction. I do know that the Z-pack gave me joint pain that disappeared shortly after stopping the meds.
DJ
A year and a half ago I was hospitalized with severe gut pain. I was tested for various possible reasons and was given, among other medications, Cipro. Six months later I was undergoing leg wraps for lymphedema for three months. During this treatment my feet became numb. Pulling on compression stockings made my right arm begin to hurt. That has never stopped.
Now my shoulder and arm are hurting all the time, my feet are still numb, and I still wear compression stockings. After reading your article, I am quite certain Cipro was a contributing factor is these afflictions. Lymphedema, numbness in both feet, and pain in shoulder and upper arm muscle.
Six months ago I was given an antibiotic for an eye infection, but I don’t know the name of that medication. Now I am very wary of all such antibiotics.
Mrs. Mickey Garcia
Since I have started reading your articles I have become healthier. When you get older… the md’s just give you a pill. If that pill doesn’t work… another pill… and on and on and on. I now read all of the papers on the meds also… question the MD. The younger MDs do not mind the questions it is the older generation that rather you not ask questions.
omar
you can actually get some of that info from the prescription label like NDC # and manufacturer name. the other’s gonna have to call the pharmacy you filled the prescription and ask for the lot # and other info off the bottle they used to fill the RX.
omar
I agree with on this, although I’m a pharmacy tech, but I’m against the use of medication for every little thing that arises with your body, people need to do their own research about everything concerning their health, and stop taking shortcuts with medications.
Kahleen
I appreciate TMI on both sides of the issue. Thanks to all the people who wrote in. It has been very helpful to know; even though I have never had to take the drug.
Kahleen
Looks like the two different Labs were producing the same drug with different ingredients (very scary!
KB
I have problems with asthma and infections in my lungs. If I didn’t take Levaquin I don’t know what I’d do. I usually end up taking it once a year. I don’t usually read these types of things because I think they tend to put fear in people. Some people develop every single side effect they read about! I would suggest caution when reading these stories if you are such a person!
The UCSD Fluoroquinolone Effects Study
UCSD Fluoroquinolone Effects Study
Have you taken an antibiotic such as Cipro (ciprofloxacin), Levaquin (levofloxacin), or Avelox (moxifloxacin)? Would you be willing to help in a survey-based medical research study?
Dr. Beatrice A. Golomb and her colleagues at the University of California, San Diego are conducting a new study to identify and describe side effects and risk factors for good and bad outcomes involving antibiotics in the fluoroquinolone class. Other example fluoroquinolones include Zymar (gatifloxacin), Floxin (ofloxacin), Zagam (sparfloxacin), Trovan (trovafloxacin), Tavanic, and Vigamox.
Whether you believe you have experienced side effects or you believe you have tolerated them, you are invited to participate in this voluntary study. Participants possessing English language fluency from all countries are accepted.
Study participants will be asked to complete questionnaire(s). By participating in these surveys, you can help us further understand the effects of fluoroquinolones and report findings to the medical community (including prescribing physicians) and the general public. Surveys will cover your overall health, well-being, fluoroquinolones taken, and symptoms; impacts on your life and career; and your personal story.
For those without side effects, there is currently just one survey taking 20-30 minutes to complete.
For those having adverse effects, there are currently 3 (voluntary) questionnaires that can be done separately, each taking approximately 40-90 minutes (time varies per individual). Each survey addresses a different set of concerns related to fluoroquinolone effects. More voluntary surveys may be available in the future. Compensation for taking the surveys is not available.
If there is a chance you are interested in participating, please visit our website at:
http://www.fqstudy.info
for further information on this important study.
If you know of anyone else who might consider participating, then please pass on our website address. We truly appreciate your participation and referrals.
-The UCSD Fluoroquinolone Effects Study
Maureen M.
I was prescribed Valacyclovir lgm for shingles had it filled at my local supermarket. The manufacturer for the product was Cadista Pharmaceuticals. The seven day course of meds. did very little to help my symptoms. When additional blisters appeared I returned to my physician.
I had another script for Valacyclovir 1gm filled at a local small drugstore. The medication they gave me was manufactured by Roxanne Labs (same dose and duration). Within two days I had relief from most of the pain and itching.
Is it possible that all generics are not created equal?
Sherry
Please understand that even one pill can do you in, so don’t think you are in the clear because you stopped them. I am sorry to say that weeks and even months down the road, this drug can rear its ugly head and you will get all these weird symptoms happen to you. Just be aware of your body. If your eyes start to bother you or your tendons, muscles etc just know it was from those few pills you took. Be careful.
edna
If Docs & PharmD’s get kickbacks for prescribing these meds, do you think they’d NOT do it? I’m fairly certain they do get something from the pharmaceuticals, why else would they be used without batting an eyelash? Alternative medicine docs would tell us I’m sure. I’d much rather work on staying healthy and NOT take pills. Those years I mentioned above in my comment were working years, no time to do anything but get better. Ya, and look at the long term issues that prevail for so many, and what can we prove? Those scrips were from over 10 yrs ago and in the last 5-7 yrs, and if I had the records, which I keep for taxes, who would listen?
TS
I was prescribed Cipro for a kidney infection; 500 mx two times daily for two weeks. Within 2 days, it made me feel so strange, somewhere between agitated and floating above the clouds! Scary… but even worse, the antibiotic made the pain in my back and backside even worse! I called my doctor; she was unconcerned but did prescribe Vicodin for the pain.
Knowing full well I might be making a big mistake, I stopped the dosage 5 days before the prescription called for… I simply had to trust the signals of distress my body was sending me, night and day.
The kidney infection seems to be gone, knock wood. Okay, here’s what is really disturbing:
My sister was prescribed the very same antibiotic and asked the doctor about side effects. The m.d. said she’d never heard of any… although I’d given her an earful just two weeks prior about the pain, strange feeling of psychosis, etc.
Either doctors just aren’t listening to us, or they are forgetful.
It is pointless to blame the sufferers for these side effects; my pharmacist didn’t bat an eyelash on being prescribed the Cipro! I did, however, had to sign an acknowledgement to receive the Vicodin… strange world!
A small dose of painkillers, albeit strong ones like Vicodin, merit much more attention from pharmacists, the FDA, and the medical community than the very real dangers of Cipro!
Mary
I had frequent UTI for several years and then ordered a Removable Bidet and with frequent use and after every bowel movement, I have not had a urinary tract infection in 5 years. These attach to the toilet seat and can be ordered off the internet. Mary
N. O'Hare-Baker
I ended up in the emergency room and no one would believe me until I asked them to look in the PDR. It affects the elderly more often.
jk
I’ve taken these antibiotics without side effects. Does that mean I can tolerate them in the future? Or can the nerve damage occur anytime you take them, not just the first time?
Thanks for your information.
MTB
This is the only medication that I have ever had a reaction to in my life; and what a reaction it was. Approximately 8 years ago I came down with a nasty prostate infection. Running a very high fever I went to the urgent care clinic run by my physician’s group. After a number of tests confirming the prostate infection I was prescribed Levaquin. This was in the evening after 7 pm.
After arriving home I immediately took one of the capsules and went to bed within approximately 1/2 hour. Before I could even get to sleep I started having thoughts of killing my wife and committing suicide. I started hallucinating and experiencing real terror at the thoughts I was having. I got out of bed, got dressed and told my wife, who was still up watching television, what I was experiencing and then I went out for a long walk till the effects wore off. In hindsight that may have not been too smart but it worked out for the best. There is now a notation in my medical records to NEVER prescribe any quinolone medication to me.
CBB
I have taken Levaquin many times in the past with no adverse effects. This past spring I took Levaquin 750 mg tabs for pneumonia and developed severe left knee pain and swelling, severe left shoulder pain, and overall muscle pain. It was so bad, I had to take almost the whole summer off from work. I did extensive physical therapy for my knee (including a prednisone shot) and shoulder.
After 6 weeks of PT, I had an MRI of my knee which showed 2 meniscal tears. I did not want to take a lot of ibuprofen, as that can cause it’s only problems, so tried the raisins/gin remedy without any success. The things that helped me the most were weekly massages and Epson salts baths. After I started feeling a little better, I added acupuncture too. I ended up having knee surgery in November and am not 100% better, but getting closer everyday!
I have no doubt this was all due to the Levaquin. Although my physician, nurse practitioner, surgeon, physical therapist and massage therapist cannot say it was definitely due the Levaquin, they all concur they have heard similar stories. I think more extensive warnings should be placed on fluoroquinolones and patients educated about the potential effects so they can make informed decisions about medications to take. Thank you for bringing this important subject to the attention of the public!
GOA
In February of 2011 I fell ill with a COPD exacerbation, and went to my pulmo specialist and was prescribed Avelox, and prednisone. Within 24 hours of taking the meds I was in pain all over my body, having panic attacks, felt like I had been hit by a bus. I called the pulmo’s office and told them something was wrong.
I was told that prednisone was a horrible med, and the side effects were bad, but keep taking it, I would feel better. I kept taking it all, two days later I was worse and called them again. Now I could barely walk, the pain in my legs, and arms was tremendous. I had to use the wall to keep from falling over. I felt like my heart was going to pound out f my chest.
Once again the pulmo office said, the doctor understands, but keep taking everything, you will feel better. I completed the course of Avelox, but was still on the prednisone and not getting any better, I was getting worse. One night it was so bad, I couldn’t breathe and my son took me to the emergency room, where I was admitted and placed in the Critical Care Unit.
For the next 9 days I was pumped with massive doses of solumedral, and more antibiotics and was released barely waking on my own. I got home and laid in my bed for the next two weeks only getting out of bed t use the restroom a few feet from my bed, hanging on to something the entire way. My son took me to my primary care doctor as I seemed to be getting worse. Diagnosis – Severe Adverse Reaction to Avelox! The reaction was worse due to the steroids I was given.
I was all but bedridden for the next 2 months, then went to using a wheelchair, to a walker, to a cane which I still use almost 3 years later. My heart, liver, and lungs were damaged. I went from 68% lung function to 31% lung function. Am now on disability, and living a life limited as to what I am able to do.
After 2 years of not healing from the reaction, I was diagnosed with Fluoroquinolone Toxicity Syndrome. I went from a patrol car in February to being labeled permanently disabled in 7 months. I now have chronic tendonitis throughout my body (not just the Achilles like the commercials indicate,) lung function 31%, pulmonary hypertension, diastolic heart failure, joint issues, muscles issues, cognitive issues, neuro seizures, and the list goes on.
Hundreds of thousand of dollars in medical testing later, I still have no answer as to why this happened to me, and am told there is no “cure.”
Candace B.
3 years ago I was given a 7 day prescription for Levaquin for a sinus infection. I read the pharmacist information sheet and immediately and went back to him, explaining that athletes should not be prescribed this med. He told me that he had never seen a problem with that medication and since it was just a 7 day prescription I wouldn’t have to worry about it.
On day 8 my ankles swelled and my wrists got sore. A week later I was in so much pain that I couldn’t walk, couldn’t get up off the toilet or use my hands. This extreme pain lasted 3 months but eventually subsided in those areas. However, soreness and stiffness have since migrated to my knees, my hips/thigh region and my shoulders, in that order, but have mostly subsided in those areas now too.
Now the stiffness has migrated to one side of my neck right into the skull. I have found that what works best for the stiffness for me is the prescription anti-inflammatory drug Arthrotec. One pill will give me some relief but the pain never completely goes away. I try not to take this medication except when the pain/stiffness returns and interferes with my daily life, 2-3 times a week. After 3 years I wonder where/when it will all end.
Dave K.
Is amoxicillin or azithromycin included in this class ?? I have nomadic pains in my wrist, knee, elbow and thumb that last for sometimes days, sometimes weeks….but never more than one at a time. I attributed it to joining the “pain a day” club when I turned 50. In addition, I have problems with the tendons in my hand that connect to my little finger and a tendon problem in the balls of my feet. Plus cold hands and feet. Side effects or old age (I just turned 60) ??? Interestingly, the problems are worse on my left side.
Ellen C.
In 2005, I was given four days of levaquin in hospital for kidney infection. I developed hallucinations and four different cardiac arrhythmias, one of which is still with me. A friend whose husband is
a doctor suffered a ruptured achilles tendon from Cipro. Her husband will no longer prescribe the quinolone antibiotics.
Nancy
I’ve suffered with diverticulitis since I was 37 (now 55) and the doctors always prescribe Cipro and Flagyl. Both drugs always made me think the cure was worse than the problem. I never had the pain described by other readers but there were so many other side effects that I always dreaded having to take the pills. A few years ago, a physician’s assistant suggested that I use an ice pack on my abdomen whenever I felt diverticulitis pain – and that has worked! I haven’t had to take those nasty drugs for years. After reading this, I don’t think I will ever take them again! Thank you for sharing the news.
ruth
husband had mrsa from a hospital stay for pneumonia (he has copd, asthma and diabetes). was treated with antibiotics for 3 weeks but still had small spot in lungs. dr. gave him avelox. on the first day he had stroke like symptoms that lasted for about 45 minutes, on the second day they were more severe and longer lasting. by the third day the symptoms were so bad he couldn’t walk, find his words or breathe without difficulty.
back to er where they tested him for stroke and other weird things. the avelox was the culprit as he had stopped taking them after the first 2 doses. the meds affected an area in his brain from a stroke 9 years previous. he had the muscle pains and weaknesses and still does 2 months later. we did read the flyer from the pharmacist. the warnings were the same for all the meds we get, therefore we didn’t realize the avelox was the cause.
CDR
I too was given Levaquin but it was administered in my anesthesia. I was also given a Rx for Cipro, which I filled, but after reading the side effects on the information sheet I decided not to take them. Thank goodness I didn’t. My reaction to the Levaquin was a retinal tear. I had to be checked every 3 weeks for over 2 months w/a retina specialist for detachment issues. I found a website that said quinolones are accumulative in your system & side effects can show up months later. Do not take this drug unless it’s a life or death situation… but realize you may not have much of a life after taking it!
nb
Having had lung problems for years, I have used some of the above meds. Each time I have wondered why I had joint and bone problems. Fortunately there has been no need for any in the past few years. My husband was also prescribed them in his last years. Doctors tell me that my joint and bone problems are because I am old. Who knows?
FD
I was prescribed Cipro on a Saturday Emergency room visit for a UTI. I experienced “spacey” feelings on Sunday and Monday and since Cipro was the only new thing in my life I was afraid to take more. I called my regular DR. and got a Rx for Amphicillin which I was more comfortable taking. I experienced no side effects with that. Having read since then all of the awful adverse reactions people have I am grateful that I only took it for a couple of days.
There are so many metabolic pathways which are blocked or antagonized by Fl that the many diverse reactions are not so surprising. I always warn people not to let anyone give them this drug.. It should never be used as a first choice as it so often is. DR.s rarely believe me when I list that as a not tolerated drug.
Sherry
Once again, this group of antibiotics makes news in your column! Thank you for writing about them, but unfortunately 99.9% of the medical community disagrees that these drugs are harmful BUT if they do, they are not admitting it because nobody knows how to “fix” us. Even if we read the inserts, and let me add that I have been told by doctors not to bother reading them as you wouldn’t take an Tylenol, most of us wouldn’t think we would end up being that 1% that get those terrible side effects and would take the medication that their trusty doctor told them to take. The statistics are quite erroneous. There are many more people than 1% getting ADRs from these drugs. I have been sick since 1997.
Sethu S.
@Fourkatz: What you are saying is not at all realistic. First of all it is impossible to read all the small print information sheet that comes with each medication. Second, the doctor prescribes the medication for the specified illness (out of a few that are indicated) and he is not privy to all the complications. He/she can only go by what the drug companies have divulged. Thirdly, if some medication is new, not all the ill effects are available to the general public/internet. Fourthly when you are sick and have to take the medication right away you don’t have all the time in the world to do extensive research. Finally there is no medication that is completely safe. If it kills the bug it will cause you some problems too because we (including the bugs) share some common genes (from the bacteria to the dinosaur to man).
es
I suffered severe agitation, I thought I was losing my mind. When I asked my doctor to change the antibiotic, he poo poo’d the idea, but I insisted. Luckily this side effect wore off, I have never experienced this before and it was very disturbing.
H Long
I was prescribed Ciprofloxcain for severe case of bronchitis. It was not getting better. My Dr. changed me to Levofloxacin 500mg once a day. The second night I had hallucinations, and psychosis. I immediately stopped after 2 pills and was prescribed Amoxicillin 500 mg 3 times a day. After the bronchitis got better I had a x-ray which showed COPD. I thank God I stopped the Levofloxacin.
FourKatz
I’m sorry that the first commenter had a bad reaction to Cipro but I have to say where was the pharmacist in this whole situation? I don’t think I have ever had the DOCTOR tell me much of anything about a drug he/she was prescribing but I ALWAYS get a brief “talking to” by the pharmacist if it’s a new prescription AND a big long sheet attached to the prescription with all kinds of possible side effects, drug information, etc. Didn’t this person read all that? We have to take personal responsibility for our bodies and knowing what we are ingesting is part of being personally responsible. Additionally, I always look on the internet for any information available about a new drug I might be taking. I have had Cipro many times with no ill effects but it is concerning to hear about all this and I will probably ask for something else in the event it is prescribed for me in the future. Also, if I tried to contact my doctor and they never got back to me about something like this, I’d be finding a new doctor.
LL
Yikes! I just finished a course of Cipro for a uti. I already have some nerve damage in my shoulder, so it’s very scary to hear of these other side effects. Thanks goodness my infection is cleared up and I don’t have to take any more, I dodged the bullet on this one.
Simo
I was a perfectly healthy and athletic 45 year old until I was given Cipro in 2003. The past 11 years I have been completely falling apart. I have had ankle surgery, hip surgery, two neck surgeries, back surgery…. just about one surgery a year …. and I have an appointment with my ortho next week to discuss surgery options on my dual torn rotator cuffs.
One of the black box warnings on Cipro is for tendon ruptures and tendonitis. For some people, like me, the damage to the tendons is permanent and catastrophic. It is damage at the cellular level that never stops.
There are thousands of people like me that are working hard to get this word out. Plus, there are hundreds of studies documenting the damage these meds do to the tendons, ligaments, connective tissues etc. dating back 20+ years. Please listen – this entire class of antibiotics are very strong and dangerous and need to be taken in life and death situations only.
Doctors are giving them out for minor infections and preventatively. I never thought my life would turn out like this and I would be commenting on wonderful articles like this to spread awareness, but I am worried about my children, their future plus my body is so broken that I can’t really do much of anything else. Please avoid Cipro, Levaquin, Avelox and all fluoroquinolone antibiotics – insist on something else – when not facing a life and death situation.
Carla
Honestly, The People’s Pharmacy saves lives! It is pretty frightening that Terry and Joe are the only people standing between the American people and death, but in the absence of a functioning health system and effective regulatory agencies, we are certainly lucky to have you.
Since breaking my left wrist six years ago, and subsequent surgery to repair the complex fracture, I have had significant neuropathy in the third finger of my left hand. Perhaps I was administered one of these dangerous antibiotics in the hospital; I don’t recall. The symptom is best described in the FDA warning published above as a “change in sensation to light touch, pain and temperature.” Fortunately, this is mostly a relatively minor annoyance, and not a life-altering condition.
paulbyr
I took Cipro twice for prostate infections, about 2 years apart, in the 1990s. The second infection occurred when I was on a beach vacation – after 3 or 4 days, I called a “phone book” local Dr. and fortunately he said it sounded like prostate problems and referred me to a local urologist who immediately correctly saw it was prostate infection and prescribed Cipro. As it had on the first bout, the Cipro quickly cured the infection.
Bottom line is that I never had any side effects – but – this was during the time when Cipro was the real stuff, not a generic copy from India!
Why don’t you badly affected people write to your congressman and senators and ask (no, tell) them to put the screws to FDA about this massive wave of bad generics! It’s the perfect time, an election year!
Louie b Free
Terry & Joe,
THANKFULLY, we have YOU TWO to inform US!!!!
BPZ
I also took Levaquin and it made me deathly ill. I had taken almost all and went to the pharmacist and told him and he said I should continue taking all the pills DUH Thank goodness I did not. It took me quite a while to get over it.
edna
While I haven’t taken Levaquin for about 3 yrs, I had taken it a few times over 5 years for sinus infections. The first time was walking pneumonia as above. The pneumonia got better but I wonder now if the knee pain and weird cramping and spinal issues aren’t associated with it. When I had the WP, I also got a shot in the doc’s office because I was so sick. Sigh… I had forgotten about these side effects till reading this.
I’m not sure what to do at this point because obviously there is no records (different docs) for the Levaquin. I’m more interested in treatments if any to alleviate the pain. Tylenol helps but the deal with that scares me so I maybe take one every other day, same with an aspirin, too much is no good.
I’ve tried the gin soaked raisins and it helps for a couple months, then I take glucosamine mix each day but don’t see much help there. Tiger balm works if I use it at night and let the knees rest. Another thing, not sure if it’s all related, but my balance is bad. I’m 62. Not good. My steps are watched and calculated.
If anyone has any ideas on therapies (like PT? – but scared I’ll do more damage) and can say exactly WHAT that Levaquin DID…or ways they are treating it..I’d appreciate the ideas.
CharlesW
Looks like it’s a good idea not to have a prescription filled without first doing your own research about it on the Internet. I had a few very short courses of Cipro several years ago but haven’t had any of the side effects mentioned… unless they haven’t shown up yet.