Loading...
A few years ago we received alerts about an increasing number of serious bleeding episodes associated with the anticoagulant Eliquis (Apixaban). This medication is prescribed to prevent blood clots in patients with an irregular heart rhythm called atrial fibrillation (AFib). The drug is also used to prevent blood clots after knee replacement surgery and to reduce the risks of blood clots in the legs or lungs from deep vein thrombosis (DVT).
Eliquis is one of a new generation of anticoagulants that are being substituted for warfarin (Coumadin). So is Xarelto (rivaroxaban). Many physicians believe that the new drugs are safer and easier to take than warfarin. But in March, 2019 Johnson & Johnson and Bayer settled roughly 25,000 lawsuits involving Xarelto. Lawyers for the plaintiffs asserted that the drug companies did not adequately warn patients about the possibility of life-threatening hemorrhages. How much did the companies fork over? $775 million!
According to Katie Thomas, writing in the New York Times (March 25, 2019):
“In 2014 the German drug maker Boehringer Ingelheim agreed to pay $650 million to settle about 4,000 lawsuits over a similar drug, Pradaxa, which was also blamed in bleeding deaths and injuries.”
Established Eliquis (Apixaban) Side Effects
Regardless of lawsuits, what we know is that apixaban has some pretty serious adverse effects. They include:
Hemorrhage:
- Serious bleeding in the gastrointestinal tract
- Serious bleeding in the brain (hemorrhagic stroke)
- Serious bleeding within the eye
Anemia
Nausea
Blood clots if the drug is stopped suddenly. No one should EVER discontinue Eliquis suddenly without careful medical supervision. This “rebound” clotting effect could trigger life-threatening events.
Spinal procedures such as epidural anesthesia can be very dangerous for people taking Eliquis.
Serious allergic reactions (skin rash, anaphylaxis)
Other, Less Common Side Effects:
- Low blood pressure
- Breathing problems
- Bruising
- Nose bleeds and bleeding gums
- Bleeding at the site of surgery
We don’t know about you, but whenever we see a long list of side effects our eyes glaze over. Reading real stories from visitors to this website makes such complications far more concrete. We received this message from Joe:
“Eliquis is the worst drug I’ve ever taken in my life. After only six days I developed all of the following side effects:
- SEVERE exhaustion. Couldn’t even walk to the mailbox.
- SEVERE breathlessness.
- Hypotension (low blood pressure)
- Blurred vision.
- SEVERE cognitive failure. Felt like my head was stuffed with cotton.
- Periods of rapid heart beat.
- Insomnia.
- BPH (benign prostatic hyperplasia)
- Ravenous appetite; absolutely craved carbs. Would have to get up in the middle of the night and eat.”
Many of Joe’s symptoms (insomnia, BPH, cognitive impairment and increased appetite) are not listed in the official prescribing information so it is hard to know if they were really brought on by Eliquis.
This story is from Margaret is far more worrisome:
“I live in Queensland, Australia. My cardiologist transferred me from warfarin to Eliquis 5 mg morning and night in October 2014. I am 78 years old with heart failure plus AF [atrial fibrillation]. Yesterday afternoon I suddenly had a very major nosebleed, 6 paper towels were soaked, 3 hand towels were soaked and one bath towel was wet.
“I rang one of my daughters and she rang the ambulance while she was on her way. The paramedics arrived and quickly brought the nosebleed under control. I was advised by the doctor at the 24 hour clinic to not take the Eliquis and to go see my normal doctor today. I have an appointment to see him at 2.30 pm this afternoon.
“I will be telling my doctor that I want to go back on the warfarin…Yes, it necessitates regular blood tests but it is far safer than Eliquis and the other two drugs that have been developed to replace warfarin.
“No way will I put myself at risk with these new anticoagulant drugs!”
Margaret isn’t the only one concerned about the new generation of oral anticoagulants. The Institute for Safe Medication Practices (ISMP) issues a publication called “Quarter Watch.” It too monitors the FDA’s Adverse Event Reporting System. In the January 9, 2013 issue it noted that:
“Strong signals continued for three anticoagulant drugs, warfarin (COUMADIN) and newcomers dabigatran (PRADAXA) and rivaroxaban (XARELTO). The three drugs accounted for 1,734 reports to the FDA in 2012 Q2, including 233 patient deaths, reinforcing the conclusion that anticoagulants rank among the highest risk of all outpatient drug treatments…”
On October 17, 2013 the ISMP Quarter Watch reported that anticoagulant medications such as dabigatran (Pradaxa) and warfarin (Coumadin) contributed to the leading drug safety problems reported to the FDA in 2012. The conclusions:
“The 2012 adverse event report data show, in our judgment, that a major priority in drug safety should be to reduce the serious and fatal hemorrhages resulting from treatment with anticoagulant drugs, particularly in the older population with atrial fibrillation.”
Kathy shared this story about visual problems with Eliquis:
“I am having really bad eye issues. Has anybody else had negative eye problems? Sometimes in the night I literally have to use my hands to open my eyes.”
The Bottom Line:
Anticoagulants are important drugs. They reduce the risk of blood clots that can cause strokes and other serious health problems. But these medications must be treated with kid gloves. They require careful dosing and regular monitoring. Patients must be warned about the potential for serious bleeding complications and what to do if they happen. We agree with the experts at ISMP that:
“Numerous steps can be taken to enhance the safety of anticoagulants… More and better information for clinicians is needed about how to manage hemorrhages that occur either as a side effect or as a result of accident or trauma.”
There is now an antidote to to reverse bleeding from drugs like apixaban or rivaroxaban (Xarelto). It is called andexanet alfa (AndexXa). Dabigatran (Pradaxa) has an antidote called idarucizumab (Praxbind). Clinicians need to educate patients about the symptoms to watch out for so that they can recognize a potential bleeding episode early, before it gets out of hand. That way an antidote has a better chance of working.
Want to know more about Eliquis and Xarelto. Here is a link:
Some Eliquis and Xarelto Side Effects NOT in the Prescribing Info
Share your own experience with the anticoagulants both positive or negative. Insert your story about Coumadin, Eliquis, Pradaxa or Xarelto in the comment section below.
Dennis
I had a triple AAA surgery a month ago. 2 weeks after surgery I developed blood clots in my legs and lungs. I was put on Eliquis 5mg twice a day. Since starting eliquis I been having tinkling in hands and legs, pain, and muscle weakness.
Doctor says this is unheard-of with Eliquis. He did lower my dosage but I have had no relief. Does anyone else taking Eliquis have these symptoms?
Athena
Hello, I started Apixaban in September following a DVT in both legs.
I’ve noticed the tingling in my left arm and leg plus cramps in both forearms causing fingers to lock. I also have white flashes of light in my right eye, blurred vision at times and an erratic ache in my right eye.
I too have a nocturnal wheeze and a feeling that I can’t catch my breath .
Symptoms mostly last from 0 – 30 seconds except the wheeze which disappears in the morning.
I do have post-thrombosis embolytic syndrome with slight pitting edema on my legs, heavy legs, fatigue and terrible leg cramps. I’d put my symptoms into that diagnosis but after reading your side effects, I will discuss with my GP.
Previous to my DVTs I was fit, healthy, ultra marathon runner, non smoker and not at all over weight. I have learned that I have a genetic clotting problem.
Mike
I see many people complaining about Eliquis and interactions.
First and foremost, before you consider posting information about a drug that you are taking you should also, with great respect for others, post all other medications you are taking and illnesses you have, including any herbs or vitamins. Everyone is completely different when it comes to taking and ingesting medications, so your issue could be just that: yours and yours alone, not someone else’s. You should not look to promote fear of medications on others just because you had or have adverse effects of a medication, potentially alongside other ailments you may have. Talk to your doctor first, and then if you really need to vent, post, but with respect for the drug and all other medications you are on.
I will tell you that I have been taking low-dose Eliquis, twice a day, for several years for a specific reason. I have no complaints, and if I did I wouldn’t publicly address them versus speaking with a doctor about them. If you really need to be heard and acknowledged, talk to yourself in the mirror, routinely. Stop wasting other peoples’ times and trying to instill fear into them.
— And webbie, web master, administrator, owner: Take off those posts in white blocks as they are not actual facts and do not list other meds and conditions the user was on/has that would contribute to the reactions.
John
Believe it or not – I had debilitating arthritic type pain – which disappeared when I stopped Eliquis. It took about 5 days — 5 of the worst days of my life: Indescribable pain all down my left hip and leg – the only position I could maintain without severe pain was to sit down – dead still. Any movement was excruciating – I tried to sleep in bed, thinking I would find a position that worked – but could not find one – my doctors insisted it was not the xarelto – but I did find it listed on a us website – I just had a mild bout of the same pain after consuming tomato juice in fairly high volume with my cayenne – gone within a day – switched to orange juice.
Raymond
I was taking aspirin on my own and stopped on my own after noting that I bruised very easily. Several months later, after noting irregularity in my EKG my cardiologist prescribed Xarelto for AFIB. After a few months, I was bleeding clots in my urine. He switched me to Eliquis. Bleeding stopped and have had no problem since, with bleeding. I do bruise very easily. Have had several spinal epidurals and an operation on my back. For each occurrence I was told by PA to stop Eliquis 3 days prior to procedure. I stopped cold turkey. Nothing was said about going off Eliquis slowly or how to do that.
After reading other comments, the Good Lord was with me, for which I’ve thanked Him many times.
Jane
Am taking Apixaban. For the last 2/ 3 months have been experiencing blurred vision and tingling in my hands. Sometimes at night the tingling is so severe it feels like my hand’s on fire. It’s only today I’ve wondered if this could be due to Apixaban.
Rick
I have been on Eliquis since 11/10/23 5mg morning and night. Other than not really wanting to do anything except sit and watch TV, I haven’t experienced any other side effects. I’m trying to drink more water because I think staying hydrated is one of the keys to better health.
S. S
Since taking Eliqus for a DVT, diagnosed on December 14, 2022, I have been noticing slight changes in my vision. It has been blurry! My eyes have been extremely dry. I’ve tried drops per my ophthalmologist and still having the same horrible side effect. My eyes are normally healthy, and I never had issues like this until taking this drug!
Does anyone know if Eliquis causes dry eyes and blurriness? Anyone had similar side effects? I’m going to ask my Dr. to change my blood thinner to one that does not cause vision problems or any bad side effects. I’ve asked my pharmacist and doctors about vision side effects, and they all have told me it can’t be from the medication.
I don’t believe that! I know my body, especially my eyes! Does the blurriness go away when the drug is stopped? I highly suspect that Eliquis is the culprit! Going to call my eye doctor and primary care doctor today! Thank you for any responses to my post.
Carol
I am on Eliquis. From the moment that I started, I have had extreme dizziness, headaches, itchiness, problems with concentration and craving carbohydrates. My doctor and his PA don’t believe me and said that these are not side effects of Eliquis. I guess the doctors get a modified version of the side effects, but also don’t particularly care. I hate living like this. I was feeling great before this and now am sick from the toxic effects of this drug. I understand that Xarelto also has these side effects as well as anxiety and depression. If I continue with this drug that will happen as a result also. What can I do?
Con
I stopped warfarin for four days INR (internal normalized ratio) was 1.8. I started 5mg Eliquis, and two hours later had a nose bleed for three hours, and it stopped by the time I got to ER. I refused any more Eliquis and went back to warfarin and home testing. 4 months later with INR 1.8 I started 2.5 mg x2 Eliquis and have been on it for 4 months with no reactions. I’m 84 years old in 2022.
Sandra
I have been on Eliquis for 4.5 years, 5mg. I am 78 years old and eat a very healthy diet, try to swim 5 times a week. But have to really push myself to do anything physical. Thinking about switching to one of the other blond thinkers. My Blood Pressure never was high but now has even gone to 92 over 67! But average 108 over 67.
I am not dizzy, though.
Delilah
After taking Eliquis and Sotalol for approximately a half a year since being diagnosed with congestive heart failure & Afib, I have the bleeding problems plus something more concerning: my legs are very, very heavy, and they hurt–the calves the knees the thighs everything. I never had blood clots, so this is not the reason. And my hair is thinning. I have absolutely so many bad side effects, and I’m always out of breath.
Barb
Been on Eliquis for 3 months, and my hair is thinning excessively. Wondering if this could be a side effect of the drug.
Delilah
Absolutely!!
Cindy
Can’t function normally while on this. Have been taking it for about a week due to a DVT, and it just knocks me for a loop. Zero energy and pronounced grogginess.
Roberta
Breathing problems are a worry for my husband who’s on Apixaban.
Brenda
I lost about half of my hair while on Eliquis for 5 months, went off of it and my hair is growing back. Anyone else have this problem? My doctor said he hadn’t heard of this before.
Chris
I was put on this “miracle” drug after COVID. 1 month of taking it made me feel like an 80 year-old man. I sleep 10 hours a day with unrefreshing sleep. Have severe weakness in limbs and confusion. This is the worst drug I’ve taken in terms of fatigue-inducement, and believe me, I’ve taken a lot of different types of medication. Now switching to nattokinase, B1 and Vitamin E.
LORRAINE
I am very worried about this Eliquis. I had bad itching for over a year. Went to all of my doctors. I knew it was the medication because I had the itch when I took it. I finally got off the medication I was taking, and a miracle, no itching.
Now they put me on Eliquis. I swear that after taking it I started itching. I was in the hospital with high potassium levels. Why did they put me on this? I cannot sleep and am very tired. My eyes are itchy and a little blurred. I want to go back on Warfarin. My old heart doctor told me to stay on Warfarin and not to look for trouble. My new doctors pushed it on me without telling me the side effects.
I am really suffering from the side effects of Eliquis: My feet swell. I think I need my heart valve replaced and have to see if I am a candidate. I have been in hospital 4x due to my heart. In hospital they gave me 2 medications that were affecting my kidneys. They finally told me and took me off them.They sent me home with high numbers. It is crazy! I am worried. Do I have to suffer until I die? Medicine will probably take my life.
Elizabeth M
I was put on Eliquis (Apixaban) 7 years ago after the decision was taken because I was told I had A/F.
First Cardiologist did Echocardiogram ecg 48hr tape all clear then miraculously a decision by g.p recommended this God Awful drug.
I have severe spinal stenosis, and you cannot take NASAIDS with it but you can take cocodamol, and for the 7 years I’ve virtually had little sleep, been in loads of pain and suffer now from horrendous tinnitus.
It has done something to my blood, and I now have B12 deficiency. I also have toothache-like pains finger tips, chest, legs, you name it. I have such pain.
Would I recommend this drug? Definitely not. Now, after an EKG, the Cardiologist has notified the GP that I should be taken off it, as I have Ectopic beats and tachycardia.
Who do you believe?
I am petrified to come off this, and the doctor says that’s nonsense. There is no need to be weaned off. Just stop it,he says. However, the pharmacist said withdrawal should be done in a controlled manner.
Noel
I take warfarin for Afib, and the only side effect I notice is the necessity, on occasion, to have to open my eyelids with my fingers during the night. The blood test every 2 weeks is not really a problem for me.
Cate
I have been taking warfarin since 1996. I hate it. Why? Not so much for adverse events from using it, but because it interferes with a major part of the foods and supplements that can boost and maintain our health. But I have a rule, which is that I never allow anyone to prescribe an Rx for me unless it has been on the market for at least ten years. Period.
Valerie
It might be best to index all these comments or organize them in some other way. The information submitted, I believe,is crucial. I hope it is being transmitted to the FDA.
Personal experience (minor compared to those I’ve scanned): My husband began taking Eliquis prior to and following an ablation for A-fib. About a month after the procedure he developed petechiae covering his lower legs. (Petechiae are small areas of capillary hemorrhage–he was polka-dotted with red spots). The on-call cardiologist had us go to the ED for platelet testing–which was normal. He was repeatedly questioned about itching. There was none. It was not a “rash”, which is a known side effect. The ED physician just shrugged. Said petechiae was not a known side effect. He had to have a follow-up visit to cardiology–the response there was also shrugs.
He never had any other signs/symptoms of abnormal bleeding. The petechiae eventually resolved. He’s supposed to continue this drug for a total of three months following the ablation. I did report the side effect to the FDA adverse event system. Unlike warfarin, Eliquis is prescribed in a “one size fits all” dosage. It’s convenient for the FDA that there is no required testing–but scary that there is NO test to evaluate whether anticoagulation is optimal, or whether the risk of bleeding is imminent. And the drug which might reverse resultant bleeding is VERY new and unproven.
Thankfully, he’ll be able to ditch the Eliquis and resume aspirin soon. Aspirin isn’t without risk–but he was on it for years without issues.
We’re not just ticked off about the cost of the drug, but also the cost for the ED visit AND the requisite follow-up appointment with cardiology. Not to mention the angst! His cardiologist wouldn’t even consider an alternate drug prior to or following this incident, despite my concerns as a 40+ year registered nurse. pHarma scores $$ yet again.
ELIZABETH
I knew 2 people personally who were killed by Xeralto. Fortunately, our good friend who has had 3 heart attacks was unable to get that or a similar drug because his insurance would not pay for it; so he has to take coumadin. Yes!!
Berge
I have been on Coumadin since 2001 and have had no problems. My cardiologist recommended Eliquis but I ignored her advice, as I have had no problems with Coumadin which has an inexpensive antidote (like Vitamin K, which can be used as antidote).
As it is, drug companies make billions on drugs that may be harmful to patients
Mary
My husband has been on Eliquis since 11/5/18. They say he developed a blood clot from surgery to remove his cancerous esophagus. We could not figure out why he wasn’t feeling better. EVERY test they ran came back excellent, but he still felt tired, achy, foggy-headed, headaches, rapid heart beat, weak-very weak, low blood pressure, and on and on and on. I was going through my email and came across the Peoples’ Pharmacy newsletter and read about the side effects of Eliquis. He had every single side effect that “Joe” had.
We are now doing our homework so that on Monday we can call every one of his docs to let them know what we found. What I have a hard time understanding is why you can’t just come off of Eliquis. He has a procedure done every 2 or 3 months, and they tell him to stop the Eliquis 5 days before the procedure and to not go back on it for 7 days after the procedure. He has been off of it for almost 13 days at that point, with no problems, only to have to go back on it…crazy.
THANK YOU from the bottom of our hearts for “sharing” what folks put out there. We would have continued to go on in life-changing pain and discomfort if not for your very informative posts.
Elvira
I started Xarelto 15 mg.in October 2018. after hip replacement. During October last year, I had genital bleeding and nose bleeding that could only be stopped at the hospital, and shoulder bleeding. I am still taking Xarelto since I have A-FIB.
What can be done?????
Ruby
For years I had irregular heart beat and took digoxin and lanoxin. The irregularity got worse, and I had rapid beating to the point I would nearly pass out. These episodes would come on suddenly. I never knew where I would be, and it was very scary. After a couple of trips to ER I went to a different cardiologist, and he prescribed Eliquis 5mg twice daily, along with another drug. That was 13 years ago, and I have had no bad side effects and no problem with Afib since. So for me this has been a great drug and has made my life much easier.
Peg
I am 87 and last year, 2018, I was diagnosed with A-Fib. Dr put me on Pradaxa. My stomach felt terrible. Went to ER, and I was hemorrhaging horribly. Later the dr put me on Eliquis. I didn’t want to take it but was told I have to take it with A-Fib. The same thing happened as it did with Pradaxa. Now I am on 325 Aspirin. I will never take blood thinners again. Also, my husband had horrible nose bleeds, bad enough to go to ER. He is also now on Aspirin.
Mary
When seeing all of the commercials on TV pertaining to all of these brand new drugs. You just wonder if it is worth it taking the drugs. With all of the side effects that goes with it. I sometimes wonder when are grandparents were growing up they did not have any of these new drugs. They used the old fashion way of treating their aliments. I wonder if we all go back to the old ways of treating ourselves the old ways. Would it be worth it?
Noah
I have been using Eliquis (5g, AM & PM) with no side effects and no bad reactions. I began the Eliquis two years ago when I developed afib. At the time I was also on aspirin and clopodigrel due to a stroke, and I immediately developed what I thought of as “thin skin” or a tendency to bleed rather heavily from a minor scrape. My doctor advised me to quit the clopodigrel, and then the aspirin and that annoying symptom went away.
Not everyone has a bad reaction.
Rick
Sarasota Florida
I’m a 56 year-old heart patient and three heart attacks in my life. I recently had triple bypass surgery and was put on Eliquis and isosorbide 30 mg.
Ever since I got out of the hospital I have been experiencing no sleep filled with vivid dreams. I can fall asleep but I wake up dreaming, going back to the same dream over and over. I’ve been doing this for almost 4 months. I just can’t figure it out those are the only two new drugs I’ve been taking since my surgery but on the other hand I was also having prescribed medical marijuana for the last several years for my anxiety agoraphobia. I’ve never had a real problem sleeping until my surgery. I was in the hospital for almost a week.
I’ve quit smoking pot (medical marijuana) and started taking these two drugs and I’m just having these very vivid dreams every night. I know I’m not getting any sleep so they did a sleep study on me and said I have sleep apnea. I never had it before the surgery and now all of a sudden I have it. Can anesthesia cause this or the pills or not getting stimulated by the marijuana and just cold turkey stopping it’s been over 3 months. I really need some help they say that sleep apnea and using the mask should help but I haven’t seen any so far I’m just getting to my wits end I haven’t slept in over three-and-a-half months.
Margie M
Ok
I had aortic and mitral valve replaced with tissue valves in September 2019. Had Afib 3 weeks post- pop and was on amiodorane for about 3 months. Also was taking warfarin for about 7 months until cardiologist switched me to Eliquis. I have been taking Eliquis for 3 months, 5mg twice a day. I also take a low-dose aspirin and 12. 5 mg of metoprolol.
After a routine CBC it was discovered that my platelet count was 104.PCP Had me go to a hematologist. Platelet count went up to 110 then 122 and now back to 114. Now hematologist is wanting to do an ultra sound of spleen and liver. This is freaking me out. WBC, RBC! And hemoglobin are normal. Do you suppose low platelet count is related to medicine I am taking?
Helen
I was diagnosed 18 months ago after my Covid vaccines with Afib. It was very Serious too, nearly died, was lucky there was no stroke. I am on Eliquis Aphixiban 5mil morning and night. And my memory is not very good. I am 75 this year. Are these symptoms anything to do with Eliquis? I am baffled. It all came about recently. I am grateful for the tablets but also very concerned.
Rich
CA
Glad I’m not the only one who seems to be suffering ill effects from this medication. I’m 74 and am starting to develop Afib. Actually, I’ve had it for several decades but it seems to affect me a lot more lately. So my doctor put me on 2 Eliquis 5mg tablets daily, plus a heart pill, Cardizem. Right away, I noticed extreme fatigue, shortness of breath and pressure in the top of my head. If I bend over, it increases the pressure greatly. My tinnitus kicked into overdrive, and I can hardly sleep at night because of the breathing issues. I can barely get out of my own way! Gardening has become a drudge, and I tire immediately. I’m beginning to think that the cure is worse than the ailment! I agree with the person who said it was the worst drug they’ve ever taken in their life.
David
South Bucks, England
Headache is my Apixaban issue. It can be quite strong at times and then again moderate, but it never fully goes away.
Galini
Greece
I am 88 years old. I was on another med for 6 months and had nosebleeds. Then I switched to eliquis, and I have hematuria.
MARIE
Connecticut
My husband suffered a massive stroke 3 1/2 years ago and was on warfarin since then until he was recently switched to Eliquis. Suddenly it’s like he “woke up.” He is more alert, tries to talk more, is moving his paralyzed toes on command, and tries to do more things on his own. So glad we made the switch. He has had no side affects and has been on Eliquis about 2 months now,
Aaron
Been on Eliquis 5mg twice a day, less than a month after being hospitalized with multiple PEs. I have a PFO, which will be fixed sometime in the fall after being treated with Eliquis. I too have felt much of what others have said. I am still severely short of breath on exertion, extremely tired, and depressed. I even take a medication to combat fatigue, and it isn’t touching it. I’m hoping that once the hole in my heart is fixed, I can come off this drug. I’ve also been told that my symptoms are related to pulmonary hypertension that resulted from the PEs. No one has said it could be the Eliquis. Clearly not the case.
Terri
MI
My mother was put on Eliquis for blood clots. A side effect which is often listed is Rectal bleeding to death.
It was listed on one site in a triangle and skeleton.
When this happened the hospice nurses were attending her they continued to change and clean her without checking into it or contacting anyone to see what to do if possible.
NOW I AM READING THE WARNING THAT SAYS PATIENTS MUST BE MONITORED CLOSELY. SHE WAS NOT. ALSO IT SAYS TO CONTACT A DOCTOR IMMEDIATELY IF BLEEDING LIKE THAT OCCURS. NOBODY DID THIS. SHE CONTINUED TO BLEED TIL SHE DIED.
Another side effect listed in the skeleton triable was DYSPHAGIA: It used to say that a person could stopping able to swallow. Now it says that some swallowing difficulty may occur.
THOSE TWO SIDE EFFECTS WERE WHST KILLED HER, WE ARE SURE. WARNING. THE COMPANY KNOWS HOW AWFULLY DEADLY THIS MEDICATION AND FAILED TO WARN THE PATIENT, MY MOM, PROPERLY.
Jaki
UK
I was put on Eliquis December 2016 after having 2 TIAsa and having history of intermittent AF at the age of 48 years. I had some side effects for about 3-4 months: severe bruising, bad headaches, dizziness,thirsty through night, drank loads of water, and anemia because of heavy menstrual periods. I think a lot of drugs give you side effects but I say if you can stick it out for a least 6 months or so then they should pass. I’ve now been on them 2 years and 6 months. All ?
Abigail
Ohio, US
My husband recently had surgery on his shoulder, then after his post-op appointment they sent him to the ER because of pain in his leg. They found a clot and diagnosed him with DVT amd immedately put him on Eliquis with no discussion. He has been on it for about two amd a half weeks now, amd has developed severe mood swings and outbursts and unusual anger issues. Has anyone else had any experience with this on Eliquis?
Summer T
Pittsburgh, PA
My husband started taking eliquis about a month ago, for DVT in his right arm (with a 2nd case of cellulitis in 1 1/2 years). He has a prior history of cancer, most recently in his salivary gland. His vein is partially collapsed from surgery and radiation which they feel contributed to this. He feels awful: shortness of breath, symptoms of anemia (has nearly fallen over a few times in the last week) as well as stomach pains. He is absolutely miserable and severely fatigued, can barely make it past 7-8 o’clock at night. His appointment with the V.A. is not until June 13. We are going to try to get it bumped up due to his symptoms to see if they can switch medication. It’s horrible and heartbreaking to watch, being he is only 43. Hopefully they can move up the appointment and switch him to something else that doesn’t have the same effects.
TonyL
Australia
Hello and thank you for this helpful forum
I am 79 years old with permanent fib..because of a Chad2 score , I was prescribed Xarelato.
After 8 months on this drug i Started to break out in itchy rashes and pimples that spread throughout my body a point where I would get blood filled pimples that burst leaving drops of blood on my skin..the itching was so unbearable i would wake 3/4 times a night having to take hot showers to ease the itching only to have the same symptoms return every 4 hours.
Recently Doctors tried changing me to Eliquis…and now my condition is even worse…I am depressed and stressed out over this. Can any good people or Medical professionals out there suggest what can be done to help…ablation, lariat procedures are out because of my type of Fib.
I was getting along fine with aspirin until my Chad2 score..is it really that dangerous to go back to Aspirin..or last resort to try Warfarin?
George Ferenzi
Age 72. Got a Deep Vein Thrombosis and Pulmonary Embolism after a long bus trip. Since starting Eliquis 5 mg twice a day have had loss of appetite and gastric issues such as burping, Gerd, and acid reflux. Things I never had before. Plus occasional stomach pain and fatigue. I was told I may need to be on this for 3-6 months.
Dale
Florida
Just been on Eliquist a short time after my first A-FIB. So far 2 RED itchy spots showed up on my legs. Then I was so short of breath i can not hardly walk to the corner. Sounds familiar to the other comments.
Lisabeth G
NJ
Hi.my name is Lisabeth.I have to take Eliquis for a DVT I got in my leg.I have some of the same side effects as Joe.severe fatigue.My head feels like it is cotton and I am winded when I try to go for a walk.Hopefully want have to be on it for a long time.I have been on it for only6 days.
d budd
England
Not sure what to say, but here is my story, I am 76years old still working full time indeed 7 days a week, don’t drink or smoke and keep fit. in March 18 I had a pain in my calf [I jog every night] my daughter forced me to see the Dr who prescribed Quinine Sulphate, that night I took my first dose, by mid night I was delirious, but I carried on for a further 5 days and my whole body was on fire. I was sent for a scan. 4 days later driving to a meeting my phone kept ringing, I pulled over and it was from a Dr who asked where I was, I said on my way to a meeting, she said please go immediately to the day A&E dept. On arrival there were 2 Drs and 3 nurses waiting for me, they carried out a whole raft of tests including putting me on a running machine, lung tests, heart, test, blood tests and many others . At the end the main Dr said they cannot believe it, he said I have to huge blood clots on my lungs and one in my leg. I immediately stopped taking Quinine Sulphate and I was prescribed started Eliquis Apixaban 5mg twice a day, the only symptoms I have had are unusual red marks on my arms and I occasionally get a head ache and dizziness. Later I had another blood test which showed my WBC count had gone up to 83000 and I was diagnosed with Chronic Hodgkin’s Lymphoma blood cancer. My consultant sent a letter to my Dr and a copy to me in which he said that the Catalyst that caused my cancer was the prescribing of Quinine Suphate.
Since march 18 I have had 4 appointments with my consultant and 5 blood tests. 2 things: First Quinine Sulphate is banned in many countries and the NHS advises Drs not to prescribe quinine sulphate except as a last resort. Second: Since taking Eliquis Apixaban the only symptoms I have suffered are as above, except in the past 2 months my dizziness has become more frequent at 4 x a week with tingling in my fingers. I am still working full time but my symptoms worry me as it may affect my driving. 2 nurses I met in my work said that they had been on Eliquis Apixaban and now don’t take it as they feel it needs more testing. Another nurse who was taking Quinine Sulphate and then Eliquis Apixaban said it has ruined her life and she will not take it any more. I have now taken the decision not to take any more medication. Summary: When being prescribe Eliquis Apixaban or any drug ask your Dr, what happens if I don’t take my prescribed take, how will it affect any other drugs your currently taking. In the UK our Drs prescribe more medication than in any other country in the word not to mention they get back handers for the more they prescribe, with repeat prescriptions with out follow up test.
Deb
Uk
I had a PE on 22 nd March, started on rivaroxoban but had severe dizziness, then they changed it to apixaban. 2 weeks in and I was in agony with back pain ( I am 42 with no previous back issues) it is a less common side effect. Saw consultant yesterday and asked for it to be changed and now on edoxaban. I’m just praying the side effect wears off soon!
Beth
Melbourne, Florida
I had been on Warfarin for six years for Afib. I changed cardiologist; he then switched me to Elouise. It has been four months now, and even though I called in immediately to report my symptoms, he told me to give it more time. My symptoms are: dizziness, some nausea, mood swings, itching, and sweating profusely. I went back to see him and he said that unless I was coughing up blood or breaking out in a rash, to stay on the drug.
I am calling again today and insisting he switch me back. I never want to take Elouise again. If he won’t, I will change doctors!
Shirley
Midlands, England
I had heart bypass surgery in November 2012 develped A/F so was put on Warfarin. Luckily, after 6 weeks I was able to stop Warfarin. In December 2016 I developed Fast A/F and was given Apixaban which I have been taking quite happily. However in January 2019 I had an Angiogram which was fine but when I was watching the TV at home with the subtitles it looked as if there was pink tissue paper over the words. My Opticien did a load of tests and said that I had a bleed on the Macular, she asked me to have blood tests which I did and my ferritin levels are low so I am now awaiting my hospital appointments with the ophthalmologist, and gastroenterologist. I’ve already seen the cardiologist. Anyway watch this space for updates.
Mark
Boston
Started Eliqus 9 mos ago due to an afib episode, hearing and eye sight were very noticeable from the beginning. Then left side numbness of my face, arm and hand. I had all kinds of tests to rule out TIA or a mild stroke. ENT Dr couldn’t find anything so off to a Neurologist who ordered CT scans, and still nothing showed up. At this time I was feeling dizzy, no energy, along with previous symptoms. I can’t change anything because I’m going in for an ablation, but I am convinced it is this damn Eliquis. Thinking about talking to the Dr and going on warfin after the ablation.This sucks!
Debra B.
TX
Was on Xarelto for 6 months due to a pulmonary embolism. No evidence that it came from a blood clot in my legs.
2 months after beginning this medication my hair began thinning and falling out. I now have developed several bald spots on my scalp. Am receiving injections on my scalp and have 2 different prescription shampoos. Nothing is helping. Used to have thick shiny hair. My mother also had thick hair into her 90s.
I also developed extreme dry eyes around same time. Had to have eye plugs along with 2 different prescrip drops and steroids. This also is not resolving. Too coincidental for it not to be related. Also short of breath, tired and brain fog. Anyone else have these symptoms together? Just being treated for symptoms, not the underlying cause. Treatment not being coordinated or linked together.
DEE VS
Michigan USA
For 23 years I have been on Warfarin because of 3 pulmonary embolisms due to a blood disorder called Prothrombin Mutation deficiency. It is hereditary. Now my granddaughter has it. Now a new hematologist wants me on Eliquis. I must be blessed to find this page about all the side effects of you people. I am so sorry about what has happened to you all. I will not take this drug. I would suggest you all demand CHANGE. Sometimes tried and true works better it seems. May God bless all, and please help yourself to get better advice. Many Blessings.
TB
MA
I have been on Eliquis for nine weeks now due to a DVT from a broken leg in a cast. Since taking it I have been very tired, fatigued and have muscle aches. I went in for blood work, and all came out normal except my liver enzymes were elevated above normal range and have never been in the past. Is this a side effect? I plan to retest once I have stopped taking it in three weeks.
Kinberley King
Milford NH
I’ve been in Elequis for 4 weeks. I have become depressed, irritable and having a hard time sleeping. It was given to me because of a DVT. They did a Ultra sound yesterday because Km having terrible lower leg pain. They didn’t see any blood clots, not even the original one. I’m wondering if Elequis is causing the leg pain, Depression, moodiness and trouble sleeping. I starting getting really bad lower abdominal pains lastnight.
Josie
Scotland
Been on Apixaban since Jan 2016 and Bisoprolol for Atrial Fibrillation Felt terrible with ,tiredness and breathlessness all the time In 2017 changed my bp tablet to Atenolol felt a bit less breathless when walking.Also have had severe abdominal pain for a while for which .I have had various tests all coming back clear.Then last weekend suddenly developed a bright red pin prick type rash on lower part of one leg only Doctors not sure what it is but on looking up forums have found rashes to be a side effect of the medication.Will just have to put up with effects,
AJ
Arlington, texas
I’m new to eloquis. I gave polycythemia Vera. FVI protein C and C disorder. I had a massive stroke as a result. I’m 48 years old . I’ve been on eliquis for 3 months. Two words: awesome drug. All I hear is complaints about it. LOL I wonder if these negative reviewers aren’t anti Vaxxers as well. Geez, it sounds like you copied a book report! Optimism is the key, people!
wilma
ga
Does eliquis cause liver cancer? My husband was on it for 16 months and then developed liver cancer. Had no sign before taking eliquis.
Terry Graedon
Eliquis has been linked to liver injury. No reports of liver cancer, though that doesn’t mean it isn’t connected.
Loretta M.
Ontario
There is an antidote to Pradaxa … it’s called by its brand name Praxbind in Canada and the generic name idarucizumab, This makes Pradaxa the first in its class of new generation oral anticoagulants to have a reversal agent. I had my cardiologist switch me from Xarelto (with no antidote) to Pradaxa when I saw how potentially dangerous Xarelto could be.
Janet
Maine
I took Xarelto for A-fib from March to August of 2014. It “zombified” me physically and mentally, and each time I urinated the toilet water was red with blood. My gynecologist also found blood pooling in my uterus. I took myself off it and got my life back.
I was fine until another A-fib episode in December of 2017. Since then I have been taking Eliquis. I currently feel “crippled up” with joint and muscle pain throughout my body and physically zombified. My cognition is fine. My current life existence is like trying to run in thigh-deep water. When I was admitted to the ER for the A-fib episode in 2017, the doctor there told me that if I didn’t take the medications they prescribed me, I’d be dead in a year. I tried four different heart meds but couldn’t tolerate them. My doctor finally threw up his hands and said that I MUST at least take the Eliquis. Now I am just existing, not living my life. It’s all just a waiting game for me now, as far as I’m concerned.
John
Cramlington England
I posted earlier. After further consultations have been recommended to try and continue on Elquis but for long periods especially in mornings my head feels fuzzy, and I worry in case my mind is being effected. Anyone else had this problem? I have a long drive to do tomorrow (Sunday 28/4/19) and hope my concentration will be ok. Any helpful comments will be welcomed.
Johnny F
U.S. KENTUCKY
I was admitted to the hospital for blood clot in my left calf. The Dr put me on 20mg of Eliquis for 7 days then 10mg for 21 days..not sure what then. But my leg feels better, and the swelling went down. The only thing different I’ve noticed is blurred vision. Ive been taking Eliquis for 5 days now. I’m worried now after reading all the side effects. I hope and pray Ill be ok.
John
Cramlington England
I have been on this drug for just one week and having awful stomach pains, and my throat has swollen. I constantly feel sick and am unable to sleep. I have stopped it until I can contact my Doctor.
Ron
NC
84 year old male taking Eliquis for two weeks. Yesterday started having pain near left kidney, anxiety and inability to sleep for more than four hours. Will check with Dr today to see if I can go off this Med. Eliquis was prescribed after I had a flutter recorded on a machine that tracts my heart at night.
Samantha
Nj
Been on Eliquis for three months. I have noticed I have uti symptoms but no uti. I took multiple ute tests, and all negative. I don’t really have the burning when urinating but I have that constant urge to go and a little burning when just sitting. Seeing if it could be caused by Eliquis.
Nancy W.
Poplar bluff mo
My mother is experiencing the same side effects from eliquis. Weak, nose bleeds, sore legs, and more.
Discouraged Leigh
USA
I was started on Eliquis one week ago for upcoming cardiac ablation . I am a runner and a very active . I only weigh 124 pounds literature says anyone under 60 kg (think I’m 54 kg) should only take 2.5 mg twice a day . My electrophysiologist has put me on 5 mg twice a day . The same amount my 240 pound brother-in-law takes . Needless to say I feel horrible. Weak feel like I can’t stand on my legs at times hard to get through the day. I tried to talk my cardiologist into cutting my dose back to 2.5 twice a day but he won’t. Any thoughts . Very discouraged as I am type A and right now my life is sedentary except that I do make myself go out and do a run every day just not as far . Thank you for your input
Guy
Illinois
Started Apixiban (eliquis) one month ago after diagnosed with DVT. I no longer sleep through the night. Takes an hour or more to fall asleep and then I only sleep about a half hour before waking and then taking another hour or two to fall asleep again. Since I started on this drug I feel drained and exhausted all the time. I can’t stand on my feet for more than about 40 minutes or walk more than a hundred feet or so without being totally winded. I have a cough all day long and a hoarse throat and sometimes trouble catching my breath. A trip up or down even just a few stairs wipes me out.
Sallie
Leicestershire UK
My blood pressure has dropped slowly from 140/95 prior to Apixaban to 107/77 today. I have been experiencing unsteadiness with intermittent breathlessness and have periods when I feel thickheaded. 61 years old and have been on Apixaban 4 weeks due to PEs after surgery. My heart rate has also dropped but this may be because of PE resolution. While taking double dose at beginning the symptoms were worse. However, they are there everyday and if due to side effects they are severely hampering my recovery.
Colleen
Gloucestershire
I have just been reading the comments from people using the drug apixaban. I am somebody who has to be regulalary transfused due to a rare blood disorder. Feb 2018 i was diagnosed with AF and was put on to apixaban. My transfusions at the time were every eight weeks, I started the drug and suddenly my transfusions started to become more regular 6 weeks then 5 and this time 4, I feel very unwell headaches tummy pain ( something i have never suffered before). I am very depressed and i am struggling to keep going my limbs hurt i am breathless i can’t sleep and just feel generally unwell even sometimes feeling like i don’t want be here, although not a suicidle type of person, just very fed up and unhappy. If anybody knows of an alternative drug that will not compromise my red blood cells, i would be glad to hear from you..
Joanne Stevenson
Ft. Collins, Co.
I have been on Eliquis for over 3months after being on Warfarin for 12 years. My first side effect was rash on arms & legs…then scalp dryness & scaling.
In the past two weeks my vision started to deteriorate a great deal. Today in a restaurant I could not read the menu. I now realize I must take a magnifying glass.. although I have not had great vision for the past yearIt has greatly deteriorated very recently. I asked my primary care Dr. about it & she ordered blood tests which I took today. I asked technician what tests were ordered & she stated CBC & thyroid….since my daughter is her patient & has thyroid.
Also my hearing is getting much worse. True I M 85 years old & find it strange to get so many things wrong so recently. I feel ThevEliquis is somehow responsible. Next step. Report to FDA ?
Sophia
UK
I have been asked to take Apixaban temporarily pre and post my cardiac ablation surgery. I have been taking it now for five weeks. I felt VERY ill at first, and caught a cough which devleoped into the worst chest infection I have ever had in my fifty two year long life. I could not shake it but actually got worse and worse, until I thankfully remembered Black Seed Oil which cured it quickly. I thought it was senseless to take antibiotics just in order to stay on the drug that was making me ill, and was intending to stop taking the drug as my surgery would have to be delayed anyway. Luckily I got better in time.
Here are the symptoms I felt: groggy, exhausted and unable to do things except the required minimum, depressed, and a lot of mental fogginess which is totally unlike me. Now, these feelings are decreasing as my body presumably adapts. I was not warned about stopping suddenly. I have to wait until four months post op for an appointment with the cardiologist. I want to stop taking this drug before then but had better find out how to do so safely, and how long to stay on it post surgery.
Angela S
Southfield
A couple of days after starting eliquis I began having vivid dreams & sleep disturbances. They are the type of dreams that when you wake up you’re not sure if it was a dream or a memory of something that really happened, and you don’t feel like you slept. I wake up after about 3-4 hours and am awake 1-2 hours before I can get back to sleep. Now after being on Eliquis for 1 month, I am hungry all the time. None of these are known side effects of eliquis. I’ve spoken to my pharmacist, my perscribing doctor & the manufacturer.
K.h.
Enumclaw
I have been on Elouise for a couple years, never bruised. 5 months ago I quit drinking and now I’m bruised everywhere, mostly fingernail size red purple ones on my arms, some on legs but for no reason. They just pop up. I look diseased. Is this normal?
Kevin story
Salem va
I think Eliquis causes throat spasms tightness in the throat
Michael
Leicestershire
I have a undiagnosed blood clotting disorder. When I was 27 I had a D.V.T. That went from my Knee to the base of my aorta. I was bedridden for 2 month. Warfarin (Coumadin) saved my life. I took it the first time for 6 months and then I was done with it. About 6 months after I came off it I had (and still have) chronic edema in my leg and I developed Cellulitis after being laid up in bed with that for a couple of days I developed a second clot. The doctors concluded that I was prone to spontaneous blood clotting and put me on Warfarin for life. They are now 9 years later trying to change me to apixaban. I worry because I am a lot younger than the average person who would take this drug for the rest of their life and if I live an average life I’ll be on it for 40-50 years. I wonder If you have any information from long term users with information that can help me to decide whether or not to move to apixaban. Any help, advice or information would be very welcome. Thanks.
Bunty
Newcastle uk
6th post on this great site,we are all suffering our awful side effects,I have been on apixiban 5mg bd got 3 years following small partial lobe strokes.i Know can’t walk far my knees are huge due to arthritis but this condition has exculated due to drug ,I’m very short of breath and unable to walk far or climb Stairs,I m a nurse still working part time I’m 55 but feel 85 wish I had the courage to stop ✋ taking it ,all my gp and medical colleagues tell me it’s the best drug but I feel it is taking my quality away unable to do much can’t walk my dog or go shopping or meet friends if it involves walking,so low and a depressed,Keep strong all of you and let’s pray for a miracle ?
Larynn
Waukesha WI
I went in for a CT scan of my chest and they saw two blood clots in my left lung. Everything else looked good. Which they said it’s from the birth control pill I was taking. So then I was prescribed Eliquis for three months, ( my three months are done). I have just taken another CT scan and now I have cancer in my chest they think it might be lymphoma. It just seems like a weird coincidence!
Gillian
Monterey, California
I’m 80 and have been on 2.5mg of Eliquis twice day for Afib. It’s my understanding that Tumeric works just as well as a blood thinner and has many other benefits. I’m going to discuss with my Doctor but don’t expect him to agree with this finding. I’m ready to,get of Eliquis.
Gillian
Monterey, California
After many hours of research I’m finding that Tumeric is said to be just as effective as a blood thinner as eliquis with no side effects and many more benefits. I would like to discontinue eliquis and take Tumeric. I’m going to discuss this with my Doctor but don’t expect him to agree. I’m on 2.5 mg twice a day. A fib is the reason I take it. I have an irregular heartbeat but it never races. Heart itself is healthy. I’m 80 and don’t take any other medication.
Vikki - Jo
Queensland Australia
My husband has had severe side effects from 3 different blood thinners: Xyrelto, 3 x bleeding eyes. Then Eliquis with extreme lethargy, breathless, extreme dry mouth, unable to walk up stairs, has to pull himself up with handrails or I pushed him from behind. He used to walk everyday and was extremely active. Now he spends his days doing a little activity and then sleeping, lying down or sitting in a chair. Then he was prescribed Pradaxa, and he deteriorated even more. Doctor did an ablation for his AF. Now Dr has stopped all meds. Doctors would not acknowledge blood thinners are the cause. We are hoping and praying he will be 100% improved. Never again will he use these drugs!
Kay
Florida
Three years ago just days after starting beta pace and Eliquis I got up one morning and my feet and legs felt like lead. I went thru visits with my doctors, scan of my legs, visit to a foot doctor, told every physician I met, no one seemed to have any clue, to include the rep for Eliquis. My cardiologist thought it might be neuropathy but I had that checked out and no. So here I am three years later. My a-fib is in pretty good control, but my legs are the same or worse and I now have occasional stabs of pain, in my toe, back, neck, chest, hand etc. etc. I also can only sleep about 2hours at a time and have to get up and move around. I really am sick about it because I am really in pretty good health for 84. I really hate meds.
Jim
Michigan
I’m 82 and always in good health no heart problems other then Afib 3 years ago and as far as I know never had it again. Walking 3 miles daily, fishing on Lake Michigan by myself putting a 21 foot boat in and out of the lake by myself. Avid hunter with gun and bow. Plus have guardianship of my great grandsons 8 & 9. I had been put on Xarelto 3 years ago for Afib after being on this medication for about 6 months developed a colon bleed and lost over 1/2 of my blood. I was rushed by ambulance to a hospital in a larger city. Very scary and close to dying when my body started to produce blood. The hospital stopped the Xarelto and put me on Eliqiist 5mg twice daily and after 3 days in hospital finally got to go home. Since starting Eliquist I have developed the following
1. Head and eyes feel like I have a bad cold most of the time 2. Blurred vision which sometimes lasts all day 3. heavy legs 4. Loss of balance and have to be very careful walking 4. No energy have become a couch potato. Loss of memory in the last 6 months. 5. Very short of breath. 6. light headed, dizzy. 7. Blood pressure high160/75 most of the time after running in the 120/65 for 2 years. 8. Kidney function at 46 before this drug ran over 60. All I know is I feel terrible since being put on Eliquist and feel sure that it is the cause of my problems and I want to get off this drug but my doctor advises that I will be on it lifetime. I have cut the 5mg twice a day to 2 1/2mg twice a day but still feel the same. If my doctor doesn’t take me off this drug will have to chance stopping myself
Doren
Virginia
I was very briefly prescribed Eliquis because cardi thought he saw an AF in a test. Almost immediately I began having nearly every symptom the posters here have suffered thru. Worst of all were the leg muscle and hip joint’s awful pains. Then came the severe red rash on one leg. My GP said exposure to sunlight interacting with normal skin while on this drug was the cause. He gave me a steriod based creme which has been slowly helping. Also the extreme fatigue, loss of cognitive function, weight gain, general malaise have ruined my previously active (runner) military lifestyle. I very scared about the future effects of this drug. I take no other meds. The website that tries to track compensation given to prescribers shows over $4500, trips, dinners and such he has received to prescribe Eliquis.
Jodi M Keener
West Virginia
I was put on Eliquis from Coumadin back in May. Was on it for about 3 days and ballooned up to 284 pounds with swelling. Couldn’t wear my shoes. Couldn’t breathe. I was swollen all over my entire body.
My cardiologist put me back on Coumadin (my family doctor was the one who switched me and wouldn’t switch me back. Said it wasn’t the Eliquis making me swell). My cardiologist also had me do an adverse event rwport with the FDA. He said they needed to know about an adverse reaction that severe. After he switched me he put me on Lasix 20mg daily to help get the fluid back off. It took a couple of months. Finally in October I am back ro normal and happily back on Coumadin. Never again will I complain about getting my INR checked. Never again will I put that drug back in my system.
patricia
ga.
I think they should take it off the market
Martine
Australia
Commenced on Eliquis by cardiologist who told me that it was a much better drug than plavix. I had an ablation for AF which was mostly effective, only having short bursts now instead of hours of AF. Have been on it for almost 10 months. I have no energy, not sleeping more than 3 hours until completely exhausted after a few days, then sleeping 10-12 hours, still waking up tired. Binge eating, craving the carbs. Having Nose bleeds. Can’t go for long walks without getting breathless. I preferred taking plavix because fewer side effects. Only mild bruising when I accidently knocked into something. Now when I do knock myself the bruises are large and painful.
tina
great britain
I am a 67 year old female. Never been ill or broken anything, Fell in snow in March and broke my ankle, a couple of toes and my shin bone. Lying about for 8 weeks but only given 3 weeks stomach injections to avoid clots. Got PE in both lungs and put on apixaban. Got a few symptoms, light headed, dizzy a few palpitations but it all calmed down. My legs however feel so heavy, like lead in the morning, getting down the stairs is a nightmare. My doc says I’m OK now and can stop taking it middle of November. Just stop? All the warnings are that this shouldn’t be done? Anyone else taken it for six months and just stopped please?
Di
CA
I am a 53 year old female who went through a double pulmonary embolism 04/18. The Dr’s called it an unprovoked event. I spent two days in ICU, spent some time on coumadin, when that failed I was put on Eliquis. Now I am feeling dizzy and my heart rate is out of control. I want my Dr to take me off this medicine. I went from being very active to feeling like I cant get off of the couch.
Ann Chee
CA
occasional hunger pangs. I am very concerned about the long-term side affects of Eliquis, such as colon cancer, dementia especially if one has been on the meds for years. What are we all facing in the long run from being on Eliquis?
Ian
NSW Australia
on Apixaban for a second time in 2 years. First time was ok. Have been on this current prescription by same cardiologist for 2 months. Absolutely no energy, can’t sleep , wake after 3 hours, and lie awake for hours, then very disrupted sleep. Dizzyness, disoriented, bouts of double vision, legs feel like concrete. 5mg x 2 daily. Renal Dr recently suggested Apixaban could be the culprit. Cardiologist denies it but I have experimented with cutting dose in half and feel much better. I see GP today to discuss other alternatives, as I cannot function like this. Am a 73 yr-old male. It was prescribed for occasional AF.
Ian
NSW Australia
Update: Swapped to Pradaxa. All above side effects have eased over a period of 6 weeks. Some faster than others. Generally feeling much better. More energy, fewer head spins and double vision (down from around six events a day to 0-2). Extreme fatigue has gone.
phylis
somerset
Hi, Following my hip op it was discovered that I had A F.(atrial fibrillation) I was prescribed apixaban 2.5 twice a day.
For six weeks I was so sick nauseous and dizzy that I thought I was going to pass out at times. I had a severe thirst which lasted through the night as well as during the day. Food felt like cotton wool with no taste and the sharp pain in my stomach was on going. Before my op. I took CLOPIDOGREL. After discussion with my G. P. I am back on clipidogrel. I am told clopidogrel is not as good as apixaban for A. F. because of the risk of a stroke.
It’s two days since I have stopped apixaban and I am feeling better. I am able to eat again and hopefully will start to recover from my operation.
Peggy
TN
I was diagnosed with afib last year and placed originally on flecinide (sp?) which caused my feet to balloon up at night while in the bed and the swelling would not cease. Was then put on Eliquis.
I had never had any kidney functions problems before starting this drug. My creatinine was .89 and my GFR was great. The Eliquis was started in December 2017. From Jan 2018 until May 2018, my kidneys changed and I am now in stage 4 kidney failure. I had to have a kidney biopsy in august, and as a result was told to stop eliquis for 6 days prior to the procedure and 2 weeks after. The day I left the hospital, the day after the biopsy, my kidney function was turning around a took a sharp trend toward normal.
After 2 weeks I was told to start Eliquis again, and have done so. In the past month of resuming the drug, my kidney function has worsened even more and I am looking at kidney failure and dialysis if this trend does not stop. I told my doctor that I thought it was eliquis, which, she said is not a drug that affects the kidney. Well, if it doesn’t I don’t know what it could be.
Taking it is the only thing different, and obviously stopping it caused improvement. I have to stop taking this drug and give my kidneys a chance to rebound somewhat. They will never recover to the normal function it was before taking the drug, but I feel I have to be proactive and try to literally save my life and the surety of dialysis in the near future. Any one else having this sort of reaction? Well wishes to all of you.
Buford
TN
I am a 58 year old male that experienced unprovoked pulmonary embolisms. ! was placed on eliquis for blood clots. I believe the medication has helped thin the blood, cause the slights cut or scrape I leak like a sieve. My legs feel so heavy and memory is more than just foggy. An overall tiredness has taken over and I’m sleepy all the time. When I ask my doctors about the side effects it seems to fall on deaf ears. I have asked how I might have got the blood clots and I have been told by more than one doctor that it didn’t matter, it would not change the way I would be treated. This is frustrating I have never been sick other than an occasional cold up until 2015 and I got sick and was treated for Pneumonia. After treatment I still had a persistent cough it seems now that I had a condition called scardious. They have treated the lungs and I’m breathing great. But I still do not know why I got the blood clots. My legs feel so heavy and after I sit for a few minutes because of the leg pain it is a real effort to walk again. Overall weakness of the body and legs make me feel really bad. I do not like this feeling. Has anyone else had scardious and Blood clots and some of the same side effects from eliquis?
Tessa
montana
I hope you have stopped the Eliquis because I think you are correct. The doctor will never admit the Eliquis caused your kidneys to fail because you may sue her. That’s just my personal opinion, of course.
scott
san diego ca.
on elequis about a year , I’m very active , couldn’t figure out what was happening with my legs , felt like lead , espsicaley in the glute region , an back of legs , have hiked a lot , and with dogs , don’t ever remember this , now i think its the elequis , trying to figure this out ! and yeah , its scary to no how to handle it .
Lois
Wva
I was having severe pain in eyeballs,bleeding in urine,very bright and a lot,nose bleeds,numbness in legs,nightmares,itching,rash,went to doctor,they couldn’t find any infection in kidneys,eyes ok,numbness blamed on back,sodium so low,told if I didn’t get it up,would have to be hospitalized and put on I V,stopped eliquis,told to drink Gatorade,and extra salt on food,5mg twice a day,also heart palpitations,went t 1/2 pill still symptoms,cut out completely, and all better, was on it a year.
Dave
cape cod
I have been on Eliquis for a few years have gained significant weight am Dizzi and lightheaded, hard breathing very tired, many more A-Fib events! Etc
Chris
Bristol
My consultant haematologist changed the Clexane I was taking to Apixaban on 9 August 2018, and since then I have been feeling light headed and dizzy.
I also cannot sleep. I stay awake at nights until 4 or 5 in the morning and get up around 8 or 9am. After a few days of this I am so exhausted that I sleep for one night. Then the pattern starts all over again.
I am a 62 year-old female who had DVT with blood clots in my leg and abdomen caused in part probably by Ulcerative Colitus.
I will be seeing my doctor and requesting a change of blood thinner, as I can’t go on like this.
Jerry
Texas
Had bypass surgery 3-01-18. Started A-fib on the second day. Was started on Eliquis, 2 per day. It has been six months. I lost my smell and taste right after surgery. Went through Rehab thinking I would regain smell and taste. It has been 6 mths. No smell or taste and problem thinking at times. I have discussed with Drs. and have no answers yet.
Penny
Schdy ny
On eliquis 8 mo. Rashes itching wakes me up. Feeling of burning under my skin. Unable to sleep swollen face and eyes wake up craving carbs Put on drug after broken back. No other illness.no follow up by dr who says it’s unnessesary. 77 year old female formerly healthy.
Jack
Thornton, pa
I’m a 64 yo male who was prescribed eliquis due to a blood clot in my calf that came from a minor car accident. Took it two months. Had vertigo, vertigo,vertigo;2 ER visits; depression; light-headedness all the time in between vertigo attacks; can hardly function. Doc tells me I have Meniers disease.
I took charge of my own life and threw the Eliquis that I paid nearly $500 a month for in the trash. I figured the way I was feeling I had nothing to lose. I almost wanted to die. Two weeks later after stopping I’m feeling a bit better. Have a better outlook on life with the dizziness getting better.
Richard
Florida
I have been on Eliquis 5mg twice daily for about 4 months. Started with a blood clot forming in abdominal artery which the Eliquis managed to dissolve. No previous history of blood clots, nor any since. Unknown cause according to the doctors which numbered many at the hospital. Was told I would have to stay on the Eliquis ad infinitum to prevent the possibility of future clots inasmuch as the source could not be found. I am scheduled in 4 days for a spinal procedure (open back surgery) which necessitated my withdrawing from Eliquis for a week prior to and a week after the operation. I have been off it for 3 days and I am going through some awful withdrawal symptoms. Diarrhea, upset stomach after eating, tiredness and much of the same problems repeated throughout this page. The upside however is that I am beginning to wonder if the symptoms for which I am undergoing back surgery are not also being caused by my use of the Eliquis. I may end up cancelling my back surgery if I discover that after a few more days off this stuff I discover that it was the cause of my tired legs, loss of balance etc.. The bottom line is that this is one powerful drug with many side effects and I doubt that, regardless of the outcome of my operation should I decide to go through with it, I will ever take that drug again. I will go on aspiring and take my chances. At 75 years old I figure if it’s my time to go then so be it, but I’m not going to live with all the side effect from this drug.
jean m
highbridge somerset
Have just spent 3 days in hospital suffering from shortness of breath, weakness ,tingling in my legs , confusion and depression. This is after being on Apixaban(Eliquis) for 2 years and ‘blaming’ every other medication that I’m also on for high blood pressure and odema, now believe it’s Apixaban that has been causing the problems.
Janice
Tennessee
I like your attitude. I’m not even sure the doctors know that I have a-fib. In 20 years with the same doctor, it NEVER has shown up after testing. I’m sick of tests, such as a device called The Loop, which I didn’t want to begin with. Now it’s implanted in my chest. Diarrhea after eating is worse than IBS. No control, omg.
D
NC
Since starting Eliquis on June the 29th: I can’t sleep, feel worn out, memory not what it was, and now I have shakes, plus paying $440 a month. Open for suggestions.
JAMES G. B.
PA
I’m a 66 year-old male who started on ELIQUIS. Last week, after awakening with an irregular heart beat and calling 911, was diagnosed with AFIB, after several hours in the ER, they got my 180 BPM heart rate and 200+/100 BP back to normal. I was taking 81mg asprin, but after awhile was scared into taking ELIQUIS. I’m on 5mg twice a day.
Today, 5 days after beginning it, I felt unreal. I took my bath, felt scared as I felt like I’m not here, restless and agitated, and extremely short-tempered. I feel unwell. I already have prostate cancer. Have tried hormones/radiation. Couldn’t handle the side effects, and now I feel like I’m on my way out. I wish I would not have started Eliquis. felt like cutting my wrist. Just had blood work done. Starting to feel like a pest to the Drs. My older brother has occasional AF. He’s on aspirin. He refused any blood thinner. What do I do? I feel for everyone who is going through this.
Doris S
FL
I have been on Eliquis for 6 months, and have developed neuropathy in my feet. It is getting worse each week. I cannot walk on uneven ground without losing my balance. Has anyone else had this? I am an 82 yr. old female with Afib, not overweight, but not very active.
Anna
Kissimmee, Fl
I have had satisfactory results with magnesium water. Dr William Davis suggested this in one of his books or you can look it up online. It might not be the solution for everyone but the only times my heart has gone out of normal rhythm was either when I forgot to drink it or once when I decided I was “cured”.
I am in my middle 80s and don’t take any blood thinners because I have normal heartbeat. For the price of a bottle of seltzer and a bottle of milk of magnesia, isn’t it worth a try?
pat m.
ga.
How much water and how much magnesium?
Smitty
Virginia
After receiving a defib unit (Boston Sci.) and 4 drug-eluting stents, I was taken off Prasugrel and given a really expensive “new” drug, Eliquis. Within 72 hours, I began to have increasingly lengthy nosebleeds which were difficult to get stopped. The worst was over 15 hours.
After discontinuing Eliquis, but continuing my daily regime of simple 81-mg aspirin in the a.m., I have had satisfactory checkups for 2 years with the Echo machine and a complete cessation of any nosebleeds.
Kay
Tennessee
Been on Eliquis a few years. I was about 100 lbs over weight and was breathless etc. also had leg swelling. Decided to lose some weight.
After losing 35 lbs I no longer am breathless my legs are not swelled up. I ride my bicycle 1 hr every day. I am 71 yr old female. This drug has helped me I have a fib and high blood pressure and hope to improve my blood pressure.
Now, lost about 65 losing. I feel wonderful every day losing the lbs has truly changed my life.
Barbara
United kingdom
In February, my cardiologisty changed my m d from warfarin to Apixaban I have suffered with head and knock a herbs and come out n with little spots all over my body even my face very tiny I very itchy tir dress dizziness tingle feeling in my jaw I’m seriously thinking of asking my doctor to put me back on warfarin, which I have been on for st least 15 years or more for my atrial fib. Would it be safe to do this?
O
John
Brigg, North Lincolnshire, UK
I am taking 5mg apixaban morning and evening. I have been hospitalised twice in the past 9 months for total stay of 6 wks. I collapsed on the golf course with very severe dizziness. I have had numerous tests in hospital including brain scan, heart and lung check, kidney, electrolytes, hearing, carotid artery. They found I had a sticking heart valve, massive blockage of carotid artery but none of these problems would cause the dizziness. The specialists finally diagnosed that my medications for bp and heart were causing the problem together with dehydration. I stopped a bp tablet but still get dizzy, muscle pain, and feeling of tightness in my chest after walking for 3 hours. If I reduce my apixaban to 2 and a half twice a day I don’t seem to be dizzy. I have finally discovered by myself that this tablet is causing my problems. It’s a pity I have had to sort myself out.
A
Has anyone ever had severe constipation and diarrhea on this drug?
Been on this for 2 months and up until recently I’ve been having the worst case of constipation and diarrhea for 3 weeks.
I haven’t had any other side effects besides this showing up out of nowhere.
norma
edmond, okla
I must say after reading everyones comments about eliquis, I agree with you’ll. It has certainly done a number on me. I have COPD, AFB, and am overweight, but I still could get around and at least walk where I wanted to, but as each day goes by I am robbed more and more of my agility.
My nights are like so many of you that have commented about waking around 2;30 to 3;00am and ten lie awake another hour or two. Then all day next day feel wiped out, no energy, hard to breath etc. I feel like the meds I take daily are doing more harm than good. May need to change cardologists or do something, I just know I certainly dont like the way im feeling now.
Any comments?
Eva S
NEW MEXICO
I have the same symptoms taking Eliquis. Don’t like the way I feel.
MamaD
Canada
I have been on Eliquis for 3 weeks as a result of a PE. I’m told I must be on them for the rest of my life. I’m in my 50’s. The first week was taking 10 mg twice a day. I was so fatigued weak, dizzy,fuzzy headed. Week 2 I reduced to 5 mg twice a day which will be the dose I will take permanently. I am dizzy and suffer headaches every afternoon. Followed by flu like symptoms. Also tooth sensitivity. I hate taking meds, and I’m struggling about what to do. All these anticoagulants have extreme side effects. I asked the doctor if she will monitor me but she said no, there is no need. I beg to differ. I’m not feeling well. But because of blood disorders Imust take them. I’m told this is the safest drug, but I sure don’t like it. Not sure what to do.
Will
Georgia
My husband, who is only 63 years old, recently was sent from his doctor’s office directly to the hospital for Tachycardia and AFIB and pancreatitis. Upon arriving at the hospital they immediately put him on medications for all of the above including a blood thinner. That blood thinner was Eliquis. About 3-4 days into his treatment I started noticing some cognitive disorders. He was very confused, disoriented, unsteady balance and was sleeping much more than normal. The doctors ended up doing a Cardio Version on his heart to get his heart back in rhythm. I mentioned my husband’s confusion. A staff doctor told me it was probably just hospital delirium? I didn’t really buy it then but they are doctors.
The morning after the Cardio Version they had planned to released him. However, his blood reports came in, and it showed that his kidneys had received a traumatic injury. His levels had more than doubled OVER NIGHT. They began treating that, and 2 days later (a total of 8 days altogether) they released him. He still seemed very confused and disoriented. These symptoms continued to get worse not better, It was like taking care of a mid to end-stage Alz. patient at home.
I began searching his medications, looking for some answers when I found out about these major side effects. I was terrified. I called his PCP the very next morning and told him I had pulled the Eliquis from his daily medication routine. And he told me to have him in his office the following morning. He will be doing a brain scan to check for a brain bleed, and this has been one of the most horrifying experiences I have gone through. I can only hope that there is no long lasting effect from this drug.
With all the information I was able to find on the internet how in the world can they still use this drug!
MARILYN H.
Virginia
I have blood in my eye and am so tired I can hardly move. This is bad medicine.
Kelly
OH
I’m reading through all of these comments, and I am astounded by the number of people with the same side effects from this drug. I started doing research for my mother who has lost her quality of life, and I believe it’s from this drug. Has anyone considered a class-action lawsuit against this company for not putting these side effects on the label? There’s something wrong here!!!! People need to start taking their health back and demanding change.
Kim
NC
I am a 43 year old female who was prescribed eliquis after a dvt 2 months ago. I was in the er a week after i started, and had elevated liver enzymes, but after a pulmonary embolism was ruled out the dr mentioned the liver numbers in passing but didn’t seem concerned. A few weeks later, i had a bout of nausea and vomiting followed by chronic nausea, loss of appetite, extreme fatigue and all-over itching. At first I thoought it was a virus, but it kept coming back. By the time I went back to the dr, my AST and ALT were 20x the upper limit of normal – one was almost 800 and the other over 1000- labeled high alert on the lab report. I’ve been off eliquis for 4 days and am still feeling terrible. Had blood drawn today and hope to start seeing a slow but steady trend down soon. Drug-induced hepatitis from eliquis is no joke. I am also reporting to FAERS. This website is one of the pieces I used to figure out something much more than a virus was going on, so I aporeciate the alert.
Kate
North East England
https://www.atsjournals.org/doi/abs/10.1164/ajrccm-conference.2017.195.1_MeetingAbstracts.A6199 Can’t always rely on eliquis to help with pulmonary embolism – I’m still trying to get my doctors to pay attention and switch my medication as my symptoms have been increasingly worse after switching from clexane to eliquis (tachycardia, shortness of breath when walking a few feet) but noone is taking ownership and listening….
Kate
North East England
Update: So I found out I was wrongly diagnosed with a pulmonary embolism due to a misinterpretation of the scans. The whole time I was taking Eliquis I felt dreadful: shortness of breath on any exertion, fast heart rate, dreadfully heavy periods, dizziness, bloodshot eyes sometimes. When another team of doctors realised after 7 months that a mistake had been made, I was finally told I was allowed to come off the medication. 2 weeks after coming off it I started to feel so much better. I’m now 4 weeks off it and feel great and back to normal health. And yet the doctors denied it was the tablets causing the symptoms. I have reported it through the yellow card scheme – everyone who experiences side effects should do the same.
Trillis
97330
I am 81 years old I had a stroke at the end of Jan of this year and they immediately gave me the clot buster medicine when I got to the ER so I don’t have any after effects from the stroke. Now comes the crap part since I was told I had 1 incident of Afib the ER docs put me on Eliquis and high blood pressure meds to “prevent another stroke” about 6 weeks into taking the Eliq. 5mg in AM and 5mg atPM seems to be the usual dosage.
My left arm muscle started to hurt like the devil and I had a hard time using my arm then that eased up but my right arm started to do the same thing only worse, hurt all the way up to my collar bone and down to my wrist. I couldn’t lift my arm to brush my hair. or to take a glass out of the cupboard. told the doc and the answer was “the nerves are trying to re-connect after the stroke” so I being a dumb-I bought it, but now after reading some of these other problems brought on by these meds I am having doubt and will bring this pain up again with my doctor, nerves connecting HA! BS
If it was’t for the the misdiagnoses our country would not be hooked on morphine my own thoughts…thanks for reading my blabbering hope all of you get well soon
ARTHUR
apple valley ,ca.
I have been on Eliquis for about 3 mos now. and I have had a little itching , but over the counter anti- histamine took care of that, and I have had no bleeding problems , but the main problem that I have notice is that my temper is very short and it doesn’t take much to set me off. I don’t know if that is the result of the Eliquis or just the fact of that I have been through the past months,, ie: Double pneumonia , lung infection, and the Blood Clot in the lung on top of it. I would be curious to know if any body else has had the same problem.
Susieq
california
Boy oh boy! I am so glad I found this page and thank you to all who are sharing your experience with Eliquis…I knew that this drug was the culprit for my decline in health and vitality and Im only 65..always fit and athletic, now I can’t walk to the corner, get on a bicycle and go far or climb the stairs in my own home.
Last January, my cardiologist asked me to take 2.5 mg twice a day of Eliquis for AFib protection…I used to take an aspirin as my AFib episodes were only 5% occurring in my last 2 week monitor..not an alarm but worth addressing. I agreed to “try” it..now three months later I feel like I’m 90..I just made a list of my complaints which mirrors everything everyone else has experienced here! I see him tomorrow and we WILL be discussing how to stop carefully and go back to aspirin.
I seriously think that the pharmaceutical perks for our doctors are responsible for Americans taking so many drugs..each creating a new health problem that requires more office visits and more pills! lets all stay SICK shall we?..I was never at risk for a stroke or at least not yet..my blood pressure is 120/80 and has been for years..my EKG’s and echo cardiograms indicate my heart is normal and a angio gram showed zero blockage.
I have played tennis and golfed for years, great diet and no stress..I am truly blessed with a loving family..but I may be losing my marriage should I continue to live like this. Weak, tired and in a lot of joint, leg and back pain…forget golfing with my sweetheart. Well, thank you again for helping me to feel confident with my decision..the pills are getting a new home, in my trash bin…
Geoff
Inverloch, VIC, 3996, AUS.
I have had a very similar experience. Four years ago I spent a week in hospital with, A lung infection, Bronchitis, pneumonia and followed shortly after with a Viral lung Infection. 18 months ago I had multiple blood clots in both lungs and am now recovering. Taken off Warfarin and put onto Eliquis, 2 x 5mg tablets a day. I am always short of breath, testy and irritable, very lethargic and little energy. I am having a heart stress test next week and if test is clear will cease taking Eliquis tablets and will risk further blood clots.
gad
Houston, Tx.
I have experienced a shortness of temper also since taking eliquis. But that is not the worse thing. The hallucinations are.
MT
California (US)
I have been on Eliquis for approx. 8 mo. This medication is poison as far as I am concerned. Since taking this, I am exhausted all the time. Short tasks in the daily life, I cannot accomplish. I have muscle weakness, exhaustion, almost fainting spells, persistent tiredness, and the list goes on and on. I am weak every day, and can’t even walk to the post office just a short distance from my house. I never felt this bad before taking Eliquis. I will talk to my doctor about this horrible medication. It is ruining my daily life. I was taking 2 aspirin a day 325 mg. and never a symptom like this. My dr. forces me to take this medication, but I cannot live like this the rest of my life.
Terrian
perth
this is the second thoughts on this item, i am slowly taking myself off this horrendous medication, i wake in the morning like i have partied all night and have no energy, i feel worse for taking this medicine and enough is enough, i have had arrhythmia for a long time and so far so good, i do give this advice, stay away from any food that has caffiene in it, chocolate, tea,coffee, cool drinks, i have been doing that for years and i know it helps, if i have a large piece of chocolate i know i am in trouble about half an hour later, but this medicine has made me feel older then i am and sicker then i need be, no more there must be other alternatives then this.
Dan O
Kansas
I started using Pradaxa was on this for about 2 months started bleed in stool so the doctor changed me to Xarelto was on this about the same time period started have morning sweats and bad head aches causing me to sit down for about 5 -7 minutes until it passed, changed doctors when I moved to another state, then finally had my A-fib heart worked on and they put me on Eliquis , after a couple of weeks I complained to the doctor that my feet felt like they had bricks on the bottom of them when I laid down and I felt weak also, I was told to lose weight well I have tried and here in the last 9 months it has taken me down. this medication is very bad for a lot of people in November I begged the doctor to put me back on Coumadin to see if that would help me I was told No No and there was no side affects of this drug I need help badly because in the last 9 months it has toke my job ran up a bunch of doctor bills and I’m getting worst where do you turn to for help ….Dan
Vanessa
Melbourne
I have a DVT & was started on Xarelto. After two doses I went to bed & noticed my mind felt a bit odd as I went to sleep. I woke suddenly in the night with a rapid, pounding heart & irregular breathing. The hospital couldn’t account for it (I noted that my resting heartbeat fluctuated for hours while I lay in a hospital bed) but Internet research shows that panic attacks & sleep disorders are a possible side effect. I immediately stopped the Xarelto & switched to Warfarin. I seem to get joint & muscle pain from the Warfarin but at least that’s bearable.
carol
How do I get my husband’s doctor to agree to take him off Eliquis?! I’m watching my husband fade on a weekly basis, and the doctor’s office just said to go in for another blood test so they can see what’s going on. I KNOW what’s going on! I am staying upset over this. What a mess! My husband realizes he is not his normal self because of weakness and sleepiness.
terrian
perth w.a
I have been prescribed Eliquis, and because I have bad arthritis I had to get off the medication Mobec. For several days I was in so much pain I couldn’t even shower myself. I went back to the doctor after throwing this medication away and told her I would rather take my chances than suffer like this. What annoys me is that between two heart specialists one said I could take the Mobec, and the other said no. We patients are the test bunnies in the middle. This makes me angry. Now I have cut the tablet Eliquis in half; take half in the a.m. and half in the p.m. and take my Mobec regardless so I can function like a human being.
Some of these medicines are horrendous, and I wonder if enough testing is done before they are put on the market. I have noticed one thing, whether its connected or not: since going on this medicine my eyesight has deteriorated quite a lot to the point that I am thinking of having my eyes tested. The reason I mention this is because it has happened since I started to take the Eliquis.
Also, I walk every morning, and I walk like a drunk. I didn’t take it one morning till after the walk to see if there was a difference. Yep. I noticed that I walk better, so I take it later. As for taking half a tablet, I would rather take a chance then be a 24-hour help case. So is warfarin better than this Eliquis. Maybe I should have a change of medication.
Carl
Canada
Hi all my wife was very serious in the hospital in ICU for 2 months as a result of that she developed a blood clot in the lung, She started taking apixaban 2 1/2 twice a day followed by 5 mg twice a day After the first week, she got a lot of pain in her whole body, especially in her back lower back actually all over,severe fatigue, muscle weakness and a serious electrolyte unbalance which made us go back to the hospital.
It took to the whole medical team 2 and a half weeks to balance her electrolytes, I husband explain to the internal medicine doctor, the neurologist, the cardiologist, the endocrinologist and the hematologist and the GP and nurses,actually like 50 people from the medical team explaining that all those side effects are for the apixaban, first of all they never really showed me some results of said blood clot in the lung and was a resident who came to tell me about it.
Second of all she lost a lot of weight in her hospital stay and I have read that people less than 60 kg of weight should take only 2 1 / 2 of apixaban, my wife is under her weight she weighs 37 kg and is on 5 mg 2 times a day also she’d been losing a lot of her hair and she has only been taking this poison for 7 weeks and supposedly she should take it for 12 weeks I am very desperate and I do not see the time that this damn poison is out of her system. all doctors nurses even the GP agree that this poison apixaban does not do that therefore so I told the please someone explains to me where all those evils side effects come 20 minutes after my wife takes apixaban all these uncommon that’s how they call uncommon side effects coming from .
Lizzie
Scotl and
I have been on this drug now for three years and really wish that I had never started it.
Originally I was put on it as I was told by G.P. there was A.F. despite consultant saying Carotid Scan was normal as was ECG and Echo Scan.
I was sent home from G.P with notes on A.F. And told to consider going on A liquid to prevent a stroke.
I did and decided it was better than being left like a vegetable.
I started with terrible sweating head and neck usually after 6 hours of taking it and then my tinnitus which became bearable had now returned with vengeance I.B.S is down to almost weekly BUT now for the worst part of it severe cold feet and tips of fingers are very sore almost like freezer burn that along with toothache like pains face head chest I put it down to only one thing and that is ELIQUIS.
Once I return from holiday I will put in for an appointment to see G.P and see about changing this God Awful drug.
I don’t want to start anything just right now as I fear It wou l be too dangerous so I will keep you all posted as to what happens but I suspect young doctors are trying to keep you on this But I intend to come off it and try something different.
Jean
Wales, UK
So glad I found this site. I’m on apixaban for the last 6 weeks and feel awful: extreme exhaustion, confusion, unable to get restful night’s sleep. I had a very large saddle clot with clots in both lungs, apparently lucky to be alive.
I asked to be put on apixaban instead of warfarin but I’m wondering if I made the right decision. I don’t have any quality of life, and the doctors just say that my body needs time to recover from the trauma of the clots.
Reading the comments here has helped as now I know that what I’m experiencing is the result of taking apixaban.
Weak
Belfast
I do not want to take this drug I took it for 4 days and was totally exhausted I’m coming of it and I have to see heart specialist in a few was time I will be telling him I had to stop taking this drug I felt great before I started it but felt really ill after taking it so must stop.
Becky
Tucson, AZ
Switched from Xarelto to Eliquis because it was supposedly safer. As soon as I started taking it got tired and suffered from insomnia. Within a month I was experiencing shortness of breath and tachycardia with any type of exertion. After several visits to doctor they thought I had a virus and finally, after 2 months of the shortness of breath and tachycardia, ordered blood tests and found my hemoglobin was down to 4.8 (12-15 normal). Sent to ER for extreme anemia and given 3 units of packed cells and then IV iron. Now undergoing tests to determine if internal bleeding or just the drug that led to the severe anemia. So far no signs of bleeding.
Stan
Knoxville, TN
I am 75. I experienced my first Afib attack in late January 2018. Have been on Eliquis for about two months. Am now experiencing random attacks of dizziness and out of focus vision. Usually wipes me out for the day. Am now experiencing extreme joint pain and I have to see a nephrologist as my creatin has suddenly gone up. Had a brain MRI. My neu;rologist sees nothing requring attention. Warfarin is a pain, but I’m thinking I should get off eliquis. I cannot continue like this.
Joy
Lowville, ny
This medicine is very scary. My husband developed afib after lyme onset.
Taking elequis 2.5 for a while. Does seem less energetic. Sleeps more. But 84.
Pulse is pretty regular with no long gaps but there is no regular rhythm even so.
Was taking as our choice only once a day in evening but have been told to take twice or else! Has had no problems but now gums bleeding more already. Very nervous about this drug.
Teresa
England
I was on Xarelto for 5 weeks, and from day one of taking this medication my right wrist swelled up and looks bruised, is hot to the touch, and has become more painful every day that I have been taking the drug, to the point where I could not function as a human being. I am also suffering with extreme fatigue. I was also doubled up with chest pain like someone has punched me in the back and still suffering with pain today, which now feels like my chest is bruised.
I am now taking Eliquis which I started 3 days ago, and this morning when I woke up the whites of my eyes were red with blood. I have not been able to return to work due to the ongoing side affects of these medications and explained to my doctor that the meds might be keeping me alive but I have no quality of life since being on these anticoagulants.
I feel that the medical profession does not understand the impact these medications have on their patients, and maybe they never will until they are in the situation themselves and have to take these drugs. These are not just little side affects; they could be potentially dangerous.
Lorna
Sydney
After being on Eliquis for AF for 6 months I broke out in burning itchy hives. The cardiologist changed me to PRADAXA, and the rash cleared in a day or two. Now after 4 months of PRADAXA it’s happened again. I can’t get hold of the cardiologist so went to the GP who told me to stop the PRADAXA completely, which I did three days ago. The hives are still arriving twice a day as the drug wears off but not as seriously as last week. I’m wondering how long PRADAXA takes to leave one’s system? I gather from reading about it that stopping the drug abruptly like this could be dangerous, but my GP didn’t seem concerned.
Im seeing the cardiologist in two weeks. I really don’t feel happy taking these drugs that my body rejects. I’m 82 years old, and I’m tempted to dispense with all drugs that have so many adverse side effects.
Deb
Canada
Hello Lorna,
My husband sounds like he is experiencing exactly the same side effect as you on his Eliquis. His doctor and pharmacist here does not believe it can be from the Eliquis as it took 8 mos before he started having the severe red, blotchy, itchy skin that comes and goes. Taking an antihistamine when he gets the hives really does help. I am interested what your cardiologist recommended when you saw them? My husband is 69 and has had Afib for years. He just had an ablation 2 weeks ago that seems to be good so far.
carol
texas
I am very concerned about the loss of strength my former “muscleman” husband has experienced. It’s been gradual, but today he could hardly lift a box of groceries I easily lifted and carried with one hand! The only OTC he takes is Eliquis. He is convinced he has no problems (he also has mid-stage dementia) with the drug because his doctor prescribed it. He had the same problem with warfarin, but his loss of strength came on much quicker than it has with Eliquis. I don’t know what to do about this.
Lori
Charleston, WV
My mother was recently hospitalized and had emergency surgery due to a staph infection. While in the hospital, she had a-fib and PE so they put her on Eliquis. After reading all of these posts, it seems that the normal dosage is 10 mg twice a day for approximately 7-10 days after which it is reduced to 5 mg twice a day and eventually reduced to 2.5 mg twice a day, but mom was prescribed 10 mg twice a day with no plan for reduction and has been taking that dosage for SEVEN weeks now (despite the fact that she has kidney disease). She has also had severe joint pain, dizziness, headaches, nausea and colon pain, all of which we thought were attributable to the IV antibiotics she has been taking for seven weeks as well for the staph infection. She finally sees the cardiologist tomorrow (first time since coming home from hospital 6 weeks ago) and I’m glad I saw this site before her appointment. This Eliquis sounds dangerous.
Calli
Ohio
After my stroke 7 months ago, my doctor initially prescribed Pradaxa. In about one week on Pradaxa I was experiencing some muscle and joint pain. My prescription was changed to 5 mg Eliquis, twice daily. Today I am experiencing a myriad of problems, and am seriously concerned about how “old” and unhealthy I am now feeling:
1. Muscle and joint pain, mostly at night, is so severe that I need to sit in a chair for minimal relief. Between 2:30 and 3:00 a.m. EVERY day, I awake, then sleeplessly sit, hoping and praying that the muscle and joint pain go away.
2. Pre-stroke, I walked the stairs, sometimes two at a time, without a problem. Now new pain and stiffness challenge me with every step.
3. During the day I experience, especially in my upper arms, aching as if my arms had suffered bruising. (No visible evidence of bruising.)
4. Pre-stroke, I was very active. I slept well, and rarely felt tired. I used to look forward to being busy every day. Now I feel profoundly tired most of the time. It has affected my daily routine at home and socially. And I think that the fatigue is compromising my ability to concentrate.
*Considering that what my doctors and I had recognized initially as a remarkable recovery from stroke, I now have serious concern that Eliquis is compromising my recovery.
Questions: Could Eliquis be causing my problems? If so, what would be a better, safe blood thinner for me?
Terry Graedon
We could not recommend a medication, but we do recommend you bring these symptoms to your doctor’s attention. Not everyone needs to stay on an anticoagulant indefinitely after a stroke, and you should ask how long you will benefit from taking such a medicine.
TRW
Scotland
My GP seems to be on a mission to change all Warfarin users onto Apixaban. My doc said that because I can have an occasional up and down INR, which requires more blood tests especially when I am abroad, (I have been on warfarin for more than 20 years) I should change to Apixaban where I would only need an annual liver function check? I have other medical conditions which concern me regarding bleeding. I have read about users of Apixaban and their side effects. I have decided I will be telling him I am sticking to Warfarin.
Pamela
Bangor, Maine
I have been on eliquis for 2 years, I’m 71 with asthma, possible COPD, never smoked, spinal stenosis and very overweight. I have had fluttering of my heart since early 20’s and after 1 trip to a new doctor he says I have afib. Within the last 2 months I have been a little breathless, my legs ache real bad, problems getting off couch, chairs and toilet. I’m having dizziness, fast heart rate (not afib), very tired, yet can’t sleep at night, cramps all over, very dry itchy skin, depression and anxiety. I think I now have anemia if all this is from taking Eliquis will all this get worse? I am worried I will end up in wheelchair. HELP
Bonito Day
Charlotte
Hi Pamela, I was doing research on Eliquis. Please visit the following website https://www.everydayhealth.com/drugs/eliquis
You may copy it and paste it. It will give you the answer to your concerns. You might want to ask your doctor if he/she can prescribe you Coumadin. It is much easier on the body, but you will have to have your blood checked (PT) once or twice a month. My mother is on Coumadin for 15 years. She has not presented any side effects.
Rebeck
Minneapolis, MN
I started Eliquis on Feb 8 and I feel miserable all of the time. My joints ache, I can not take a flight of stairs without pure misery. I have NEVER had trouble walking stairs. My back hurts all the time. I thank all of you for writing. I will demand to see my cardioigist tomorrow and stop this HORRIBLE drug.
John
NC
My husband is 69 and had triple bypass surgery 6 mo ago. He is taking Eliquis-5mg twice a day. He has pain in his hips and legs and has stopped rehab three time due to pain. He is anemic and is taking B12 shots monthly. Two times in the last month he has had nailbed bleeding. Doctor is not concerned or interested in changing dosage.
Lisa
Iowa
I had a stroke I’m 58 yrs old. my Dr put me on Eliquis…I am thought my vision was going bad until I noticed it was this medicine…after reading up this I’m scared to stop talking it now. I’m very very upset still don’t understand why he put me on a drug my insurance won’t cover. They are giving me samples every mth. Must be getting a kick back I’m mad as heck!
Pam
Forgot to mention, I read an article that stated there is no antidote to stop a hemorrhage however activated charcoal can hasten the removal of Eliquis from the body. I thought it worth sharing and will try and find the article, can’t believe I didn’t save it!
Pam
IL
On the eve of my 60th birthday Jan.22nd this year, had severe pain in right calf. Went to ER and had scan, chest x-ray, labs. Dx was prominent appearing mediastinal lymph nodes, blood clots in the legs and lungs. After being hospitalized overnight, I was prescribed Eloquis 10mg. twice a day for a week and then reduced to 5 mg. twice a day for a week. Husband said hospitalist recommended 1 yr. on Eloquis.
Recently, I have begun to have pain in the upper portion of my arms that is worse when bent at elbows and similarly in my legs when bent at the knee. Lost my regular doc before I was discharged from the hosp and have started over with internist. He sent me to hematologist/oncologist for further investigation. Scan tomorrow 3/1 and consult 3/8. Then back to internist. Don’t really know anything for sure but I do not think I can withstand much more muscle pain on Eloquis.
Jan
I’m a 73 year old female. Started taking Eliquis about a month and a half now. I’m experiencing pain in knees, back, feet, etc. I can barely get up from sitting position. I had these same symptoms when I was on high chlorestrol drug which I went off of 4 months ago and the aches and horrid discomfort went away. Now, on eliquis I have it all back again. I need to get off this medication and go on plain baby aspirin. I don’t seem to have any Afib since I began sleeping with a CPAP machine in june.
Elaine
NY
I have been on Eliquis for about two years now. I’ve had previous problems with kidney stones but had been doing well until this past weekend. After an emergency room visit, I was sent home to drink lots of water. Although I am struggling to pass the stones without intervention, there is a lot of blood in my urine. No doctors seem concerned about the connection between Eliquis and bleeding but with ongoing lightheadedness and overall malaise, I am of the mind set that perhaps either the cardiologist or urologist should be paying attention.
Robin
Sterling Heights, Mi
I was on a very low dose of Metroprolol and one adult aspirin a day . I hadn’t had Afib for 15 months. Then I had an episode that wouldn’t convert. I had a cardio version. The Doctor also at that time switched me to Propafenone and Eliquis. During the year that followed the Med change, I have had 8 episodes of Afib. Also having some serious joint pain in my shoulder and hip. Not sure if it could be the Eliquis causing it. Going to see the Doctor in 2 weeks. Hopefully they find a better Med combo for me. This is not working!
Gary
Va.
I’ve been on eliquis for a year after two dvt’s, non provoked, no side effects. It has even stopped my weekly leg cramps from happening. I took xeralto for the first six months with all kinds of complications, bleeding, back pain, ect. I’m glad eliquis 10 mg a day works for me.
Maryann
Dover, Fl
I was just started on Eliquis 5 mg 2 x daily. I was really nervous about taking this stuff. My dr. says I’m on this for life. I had started a new diet and had an Afib attack. I was given the Eliquis after cardiac testing revealed no blockages or valve problem. I do believe the diet created an electrolyte imbalance and that was the reason for my Afib. One and only attack and placed on this medication. I believe the doctors are too quick to prescribe a pill and don’t even provide the side effects and potential for harm. I am 70 years old and need to find a doctor that will assist me in getting off this harmful stuff.
Kent Torch
Jackson, Tennessee
At 84 years of age, I went to see my cardiologist yesterday to inform him of the problems I had been having for the 2+ years I have been on Eliquis. I present him with 13 different episodes of problems I had experienced during that time. I included the fact that I gained 50 pounds of weight the first year and the doctors loaded me down with water reduction pills that combined with Eliquis was about to kill me. So I told the doctor in desperation I had cut my Eliquis in half and lost 9 pounds in the first week. He stopped the Eliquis and replaced it with one 325MG aspirin daily. The results will be interesting. Hoping to loose this 44″ waist line and get back to my 34″ waist again.
Donna
Huntsville, AL
MaryAnn, were you able to quit taking the Eliquis? My story is similar to yours and I don’t know why I have to take this medication for the rest of my life! Too many aches and pains, fatigue, and dizziness since I started taking this medication a little over a year ago. I want to go off of it, too!
Dee
Worthing West Sussex
It’s now 2.30 in the morning and once again I’m awake! Been to see GP earlier this week about very bad rash on my neck and the fact that I keep waking up sweating ! after reading the comments on this site I think it’s down to being put on Apixaban about six months ago. Also my blood tests are showing a problem with my kidney function this was never a problem before ! I’m getting onto the heart consultant when the office opens later ! This can’t go on any more !
Gary
London, Ontario
I have been on Eliquis for more than 4 years since I had my stroke.
It has only been recently that I have got blood in my urine. I figured it was a UTI infection. I got an antibiotic for it and it went away. I thought I would get some d’mannose and was already taken Cranberry pills, and I increased that dose. However, it has returned and this stuff has done nothing. Reading up on my bp meds shows that Eliquis does do this. But after 4 years on it I didn’t think it could be that.
However, our bodies change all the time. I have been AFIB for a couple of years. I thought it might be the BPH in my prostate. I also have a stone in my bladder. I will be calling in the morning to both my doctor and my cardiologist. I will be seeing a urologist in a few weeks
Pam
Cannot drink cranberry juice or take the pills while on Eloquis. Ask your pharmacist if it is not listed in instructions that accompany script.
Deb
Are there any other foods that people think may cause reactions or enhance side effects?
Heath
Canada
I have been taking Eliquis 5mg twice a day for 1.5 years. No side effects at all. We love to travel so the fact that I don’t have to have regular blood tests on this drug has been a real positive for me.
Charles
Houston Tx
75 y/o male. I have had AtFib for 10 years under control completely via 325Mg aspirin daily, plus cholesterol controlled by pravastatin and Cardizem. B/P had been 120/80, and my Oxygen level was always 97-98 %, and with any exertion- 99%– all my life. AFib became more common last year, and finally I was prescribed Eliquis 5 Mg. Within 1 month I had itching, hives, B/P from 70/40 to 190/100, slight continuous headache over right eye, crusty red mucous from nose. I broke tabs in half/dayx2 for one week, then back on aspirin. For the first time in my lifeI have kidney pains intermittently, and my oxygen level avg now suddenly is 90-93%. If there is a class action lawsuit I want to be a member, not for money, but to get this stuff off the market. What was a nuisance has now become a life changing reality!!!!!
Timothy
Pawcatuck, CT
Having nose bleeds quite often since I stared taking Eliquis. Sometimes it so severe I can’t do anything to stop it.
Florence
Louisiana
My name is Flo and I am having side effects with the Eliquis. Joint pain all over my body, my blood pressure is uncontrollable, I’m not sleeping very well because I wake up sweaty and can’t go back to sleep. I am tired all the time.
My next appointment is coming up and I am going to ask my cardiologist to take me off of Eliquis and put me on a daily regimen of aspirin. I just can’t take the uncomfortable feelings any longer. Thanks for sharing now I know what I need to do.
Claudia
Denver Colorado
Hi,All,
My mom lives with us and is going to be 86 this year. She’s relatively healthy but 2 years ago had a pulmonary embolism and was prescribed Eliquis. She has been experiencing intense tingling in her feet often so bad that she cannot sleep. It’s getting progressively worse over the past several months. She’s been told that she has neuropathy so she did some alternative therapy and $5,300 later still has no relief at all. She’s not diabetic nor does she have a family history of neuropathy. She’s going to her doctor today to talk about transitioning off and starting a new medication.
In the last few months she’s also had problems with balance. We tease her that she walks like she’s drunk. Her feet also go numb all the time. She has a feeling of tightness in her feet; the tightness you get when you’re swollen but her feet aren’t swollen. Putting her feet above her heart or below has no affect on her tingling or numbness. Has anyone experienced any side effects specifically related to their feet? Some of the side effects talk about joint pain. She doesn’t have anything like that. This is just numbness and extreme tingling and balance issues. Has anyone experienced anything like this???
Bj
US
I have been having tingling, burning & sometimes numbness in my feet since I started Eliquis. I’m not diabetic & no history of neuropathy either. I’ve been exhausted & have had all the off-balance issues as well!
Marie
I have been on Eliquis for a year and have the tingling sensation all over like my nerves are on overload. The Doctor said Eliquis does not have this side effect and changed my Afib meds but I still have the pulsating feeling. Did your Mother’s Doctor take her off Eliquis? If so, did the tingling stop?
Anja
Lübeck, Germany
Hi, I’m not a pro, but from what you’re saying, the numbness, tightness around the ankles and to a degree also the unsteadiness in walking are most likely linked to your mum’s neuropathy which in all likelihood is gradually worsening. My mum is suffering from the same-all of it, without taking any blood thinners at all. Personally, I have just been but onto Apixaban 5mg/2 a day, and after only a week of this have started suffering from an extremely itchy rash all over, aswell as very mild nausea and weakness after getting up in the morning. Will see my GP tomorrow….all the best for your Mum!
Anja
K
upstate NY
yes …I fractured my tibia, nearest my right knee. I was put on Eliquis about 7 days ago due to a clot formation. I am allergic to all Nsaids , so I couldn/t take aspirin… my right foot is numb, tingling, a very odd sensation. Also the pain I feel is not always near the fracture site…so I will be notifying my doctor tomorrow. Sorry for your Moms discomfort, but she’s not the only one with this side effect.
Lorna
Interesting about the burning feet at night. That’s one of my symptoms too, a feeling as if I’m walking on hot coals. Never thought of this drug being the cause.
Cindy
I have been on Eliquis for a year and have the tingling sensation all over like my nerves are on overload. The Doctor said Eliquis does not have this side effect and changed my Afib meds but I still have the pulsating feeling. Did your Mother’s Doctor take her off Eliquis? If so, did the tingling stop?
AMB
England
Since being on Eliquis from a junior asprin, my general health has deteriorated – I now have pain in my back, legs and head and its unbearable will be coming off this medication and going back to asprin
Sandra
N.H.
I have had AFib off and on for many years and now that I am in my late seventies, doctor put me on Warfarin. I am doing well and quite satisfied with it. I would never take a blood thinner that does not require someone checking my levels, etc. Per my choice, have my INR checked every two weeks, soon to be three and then in time a month. Love the nurse I see and can ask questions etc. I have had no bruising, bleeding etc. and my INR is holding around 2.3 and 2.4 right where they want it. So, all good!!
Midge
PA
I am on the medication two months now and having terrible night sweats which are disrupting my sleep. Something is wrong and I will be getting in touch with my hematologist today.
Carol
Michigan
I have tried taking Eliquis for three weeks and after two days started to feel lousy. Decided to tough it out but things got progressively worse and started to have major joint pain especially in the legs and feet, also started to have bad night sweats.
Dr. took off of it yesterday still don’t feel great but hoping all of this will go away. Also lost about seven pounds that I did not mind but really did not feel like eating, anyone else getting any of these same symptoms please let me know.
Sharon
Columbus, OH
Carol, I have been on Eliquis for 4 weeks now after being diagnosed with DVT and PE. I too have lost 8 pounds, don’t really have an appetite, but drinking a ton of water. I don’t have any joint pains, but I do have headaches that come and go. I have been keeping a diary of my symptoms. I told my doctor but they don’t seem to be concerned. Other than that, I feel ok. How are you doing?
Laura
Alabama
Carol, yes I have been experiencing bad side affects from Eliquis. Been on it for three weeks and go back to cardio Dr in ten days to discuss plan for AFib. I have been extremely tired and have severe joint pain. This week started not being able to go to sleep. I’m assuming it’s the Eliquis and can’t wait to get off of it !!! I’m hoping that I will soon be feeling better when I stop the Eliquis.
Hope you are getting some answers also and begin to feel better.
Jan
Appleton, WI
I’ve been on Eliquis two weeks, and today I have bruises on my chest, neck, stomach,arm and face. I will be calling my doctor. Anyone have any suggestions?
Carol Caceres
I have just transistioned from Warfarin to Eliquist. So far so good. My equilibrium feels a little off, but I felt the same while taking warfarin. I wonder if it would be ok to eat lobster or shrimp while taking Eliquist.
Deb
I eat a lot of fresh oysters and other sea foods.
Linda
British Columbia
Taking eliquis for a fib started 2.5 for a year then raised to 5 last June.
Terrible night sweats, joint pains and pains in colon. Headaches. No energy
Never feel like doing anything
Al
BC Coast , Canada
My first week on Eliquis. Am awaiting side effects, if any.
richard
South Australia
I’m male and 77 yrs old … I took xarelto for three months and stopped them 16 days ago … during the three months my stomach was bloated and my weight increased seven kilos … my weight has reduced by four kilos but my stomach is still bloated and uncomfortable … I walk four kms every morning and am 175 cms tall with my weight normally at 79 kilos … I’d had a pulmonary embolism and am now on aspirin …
Margaret
Uk
Worst drug I’ve ever been prescribed but apparently it is not these apixaban yet all this started when I began taking this medication I couldn’t eat properly my Christmas dinner consisted of a cream cracker. I have been fainting my bp has gone through the roof my throat has been feeling as if it’s going to close things seem to be calming down now though I’m still giddy and have bp problems.
But I can eat and drink normally now and have periods where I feel quite normal so fingers crossed that it will settle down even further gp won’t take me off it been on omeprazole for a number of years and even had to double up on them since starting apixiban been taking it 2 weeks.
Joe
Georgia
Will a higher dose of Aspirin work as well as Eliquis?
I am about to have hip surgery on the 15th, and the V.A. will not pay for the Eliquis but my non-V.A. sent me 60 tabs at 2.5 mg for 30 days. I want a safer alternative.
Terry Graedon
In general, doctors don’t use aspirin as a substitute for Eliquis. Eliquis is more effective than aspirin at preventing strokes: https://www.ncbi.nlm.nih.gov/pubmed/27570467
Michelle
Texarkana, Arkansas
I take omeprazole and famotadine multiple times daily. Ask your doctor about protonix. It’s saved me several
times!
Nathan
Utah
I was prescribed Eliquis by my Internist in November of 2016 after suffering a PE to my right lung. After being on Eliquis for 13 months I noticed increasing symptoms that were becoming unbearable. First, I had difficulty swallowing (some days worse than others). Second, I have been experiencing increasing joint pain and swelling. The joint pain has been moving around my body from my hands to my shoulder to my neck and sometimes in several of these places at the same time. This joint pain would come on strong in the evenings. After detailing this joint pain in a personal health journal so I could keep a history of it my doctors today recommended that I stop taking Eliquis and switch to 120 mg a day of baby aspirin to help control any future clotting issues. BTW I do have factor 5.
Tracey
Ipswich
Australia, Qld:
My first day had fast heart rate and was talking really fast. Have never been so scared so I’m not touching any. Was on xarelto and started bleeding in stomach
Belinda
Kansas
Nathan, I too, have factor 5 and was hospitalized 10 months ago with a saddle PE and clots in both lungs. I was put on Eliquis 10mg twice a day for 10 days, then 5mg twice a day since. I had a miserable summer of nausea and extremely tired. I assumed it was the new BP med they changed me to during hospitalization, and the primary dr. changed it back to my previous BP med. I have had several anxiety attacks over these last 10 months since my PEs, but now I am having ankle swelling and joint pain; first in my back, right knee, hip joint pain both in the socket and front and progressing to my heel, my shoulder, pains in my fingers occasionally, and low energy. I also have intermittent head pain. Not really a constant headache, but just temporary pain in various areas of my head. I choke quite a bit too, approx. 3 to 4 times a week; however, I have a family history of choking. My mother and brother both experience this, so not sure if the Eliquis is a factor in my choking.
derek
UK
I was on 5mg twice a day since 2013 after T.I.A,s, gradually my energy went down & down till it was a great effort to cross the road, I have had about twelve angiograms over the years with rotoblations & six stents fitted. With a low kidney function my chemist said I should have been on 2.5mg twice a day,now reduced to that amount.
Looking at the rare side effects I seem to have every one of them,including esophageal problems, it says rarely cancer, that is now what I have, it also says increased sensitivity to food additives I have also got that. But my doctors say it is just not proven & it has kept me alive I am 76yrs old. Just had 13 doses of radium treatment. Six weeks now since last treatment gradually now starting to feel better energy wise but still have to eat little at a time.
Betty
Pennsylvania
My husband died within hour of being given Eliquis, and he was in a hospital. They added it to the plavix he was already on. They’re both black box warning drugs that doctors prescribe way too easily. Then there is the cocktail of poison when they prescribe multiples of black box drugs plus whatever other drugs the patient is on, and then they blame the pharmacist. We need new laws, like the doctors need to take these drugs before prescribing and make public their pharmaceutical investment portfolios. The medical field has been trying to kill my husband for over 2 years and finally succeed with incompetence and negligence!!!!! In America, someone dies of an overdose every 10 minutes. In America, many die from poisonous pharmaceutical meds every day!!!! Doctors aren’t erring on the side of caution and error but arrogance and investment!!! Doctors can say to you, “you know your family member better than anyone else” but they won’t listen when you tell them about side effects they’re having. I’m writing this out of grief but also anger and frustration of what I’ve seen and heard, not with just my husband but also my parents and self.
He had a VA doctor insist he be on metoprolol (black box), and then with some other symptoms another VA doctor said he might not need that med. For the most part his doctors weren’t VA but his Medicare doctors. What I see with doctors today is, they treat all as a classic text book clone case. I want to make clear, if anyone wants these drugs I don’t care but!!!!!!!
Remember, pharmacists, the doctors put it back on you. I had a doctor say that to me. So check your scripts and your symptoms and or find another doctor!!!!!
Maryam
MO
I am so sorry, Betty :(. I hope that one day you will find peace. I wish this never happened to you or anyone.
Peace and blessings.
Christina
Hawaii
I’m so sorry to hear that Betty. My heart goes out to you. My dad has DVT and his VA PCM totally disregarded him on how he couldn’t walk from taking Eliquis. And he also said oh we are over time and told my dad to stay on Eliquis. He said, ” Well you don’t have any bruising or bleeding from anywhere, so you are good to go.” Hello, my dad can’t walk, he’s on crutches and is immobile now after being on it after 4 days. It’s been a week and we are trying to find an alternative. He may go back on Coumadin, it worked great for him 4 years ago. These new drugs, Eliquis and Xeralto I don’t trust it, they are so new.
I understand how you feel with putting your trust in a professional doctor, but negligence is a major key factor and very scary and sad when your doctor is that way.
I’ll keep you in my prayers, sorry for your loss.
-Christina
RP
CHICAGO
I had afib and was on warfarin for a long time with no problems. Then my doctor changed me to Eliquis.
Since then I have had a bleed from a colonoscopy, was hospitalized, and had a blood transfusion.
Also, after two tooth extractions, I have had serious bleeds. My doctor has not allowed me to eat solid food for two months. Also, he will not let me drop the Eliquis and go back to Warfarin.
I’m going to get a new doctor.
Ronni
Ft Lauderdale Florida
Eliquis gave me headache, fatigue and blurred vision. Stopped and within 36 hours I feel normal again. I’m taking low dose aspirin and am hoping for the best.
Milford H G
Pennsylvania
I just had an issue with A Fib…got the shock thing and was OK for a month and a half or so… Then it came back. Got the laser thing removing some old scar tissue… Elquis was prescribed after the first issue. Blood pressure was excellent through out my hospitalization for the second episode. Then on my follow up with the cardioligist they found my BP extremely high?? I had also been put on Farxiga after my second round of A Fib. Can’t find any reported reaction like this for either.
Marc
California
I’d developed a DVT after recent surgery, and my doctors put me on Xarelto 10 mg/day. I’d never been on anticoagulants before, but the doctors were pretty insistent. Within days I began noticing that, right after I took my daily dosage, I’d have breathing problems. I thought it was curious at first, but then the problems continued. It felt like an asthma attack, and I don’t have asthma. I’d get into a hot shower and my lungs would close up, I would have multiple breathing episodes throughout the day where I felt like I was having an asthma attack, etc. As background, I’ve been a runner for over 35 years and have never had any breathing issues, so their appearance was obvious. My voice would get soft and I could barely speak, and my wife would ask “what’s wrong with your voice?” and I’d answer “I can’t breathe.”
After a few months I also developed dizzy symptoms, where dizzy spells would crop up randomly. Since I’m in a profession where I’m up in front of people a lot of the day (an entrepreneur and professor), presenting while fighting off a dizzy spell is a really big deal.
I began calling Xarelto my asthma pills – as in, when I take them, I give myself asthma. NOT GOOD.
My doctors finally agreed that the symptoms were serious enough and switched me to Eliquis, 5 mg 2x/day. Still waiting to see how that’s transitioned.
For me, Xarelto was pretty awful. I went from a very active person to a breathing-challenged/lightheaded homebody in just a couple months. I can’t imagine that this drug was somehow saving me.
inna
canada
Based on what the articles of many doctors and researches disclosed, the use of NOACs new anticoagulant is a good protection from stroke and blood clotting.
At the same time, I believe, the final stage of NOACs use is hard to estimate, and we are patients should be self-concerns, watching the organs function.
Laxmi
Florida
I am a 30 year old female. I was diagnosed with DVT in June 2017 and Antiphospholipid syndrome in November 2017. I was told to take Eliquis 5mg twice daily starting July 1. I started developing joint pain one month into taking the medicine, the pain became severe in month two so I asked my doctor to switch to Xarelto in October. I took Xarelto for a month and a half. Xarelto made my vision blurry. I used to have daily lightheadedness and feelings of nausea, my hair started falling and I would have randomly onset depression. I thought bringing Zumba back into my routine would help, but in stead, Zumba resulted in midcycle bleeding and other PMS symptoms. Because of the antiphospholipid syndrome, I have to be on blood thinners for life (or so I’m told). I am now back on Eliquis, the lesser of the two evils.
Emily
Va Beach, VA
I have been on Eliquis for 10 days and have felt so much better. I had muscle pains in my legs and some joint pain at first, but I believe this medicine must use potassium to process, because after eating a banana, my muscle soreness went away.
Now, I eat a banana everyday and have been sleeping much better.Exercise is still a challenge, because I am so tired. But I am beginning to feel stronger each day. Just getting myself out the door to walk, is tough.
KK
California
Update to my other 2 postings from the past:
I’m an Asian female in my 40s, educated at one of the top 3-rated universities in our nation, also having culinary training, diagnosed with small, bilateral PEs, basically minimized my length on Eliquis to 3 months after researching online and feeling miserably enslaved to the prescription, hating the side-effects all of us here seem to have endured.
I suspected that others on this comments board who eventually rebounded believing it might’ve been the way they discontinued their drug might’ve been wrongly blaming the drug in the first place- I reasoned I’d discontinue it without medical supervision by trying to eliminate possible root causes like a bodily environment friendly to clots. – I watched a movie called “Forks Over Knives”, taking the same holistic approach as I’ve taken to my entire view on bodily maladies overall and immediately turned vegan (with a 5% animal product allowance rate, because that’s the allowance in a study presented in that movie that didn’t affect the positive outcome) and added natural blood thinners to my diet like vitamin E, herbs, fish oil, capsaicin, and garlic.
Reasoning veganism rapidly eliminates hormonal and cholesterol-related clot-friendly problems in my bodily landscape, so to speak, I was so upset and frustrated, I looked forward to that potentially lifesaving, immediate change at my 2nd month on the drug, planning to wean myself off by reducing my dosage by half by the end of that month, and 2 weeks later, by another half until those two weeks ended.
(There were a few hiccups, when I felt chest tightness and pain, which I got through by dosing back up that dose and not making any sudden moves.)
Now, it’s been 3 weeks since coming off of Eliquis, and although I knew that my emergency dietary change was intended to be at least a 3 month-minimum just to re-set, it’s been surprisingly pleasurable to feel relieved of concern of ever re-creating significant emboli, so I’m going to continue this way of eating.
On a side note, I could feel that veganism made my circulation freer within weeks of starting!
I’m back here to share that I feel I’ve changed my circulatory environment sufficiently that I can rest assured, largely relieved and unconcerned about relapsing, unlike others, who have ended up succumbing to doctors’ orders to re-start anti-coagulants and stay on them for the rest of their lives!
If you want to be relieved, too, you might want to consider it. (Given my feelings, it was a relatively easy decision for me.)
I hope these words help.
PS- A holistic medical practitioner claimed online that table salt (which is made of 3 different components, not just sodium) scars blood vessels, causing cholesterol to seal the damaged lining, causing vessel walls to narrow, creating a potentially more stagnant, clotting environment. — Naturally, sea salt, being different ingredients, doesn’t do that. — That example supported my experience and notion that we, people, seem to be born to function most efficiently on what’s most natural, not come to disfunction by dietary contaminants, including pharmaceuticals.
Tanya
Canada
I am 59, very healthy and active. Diagnosed with a blood clot in my right leg 4 Nov. and had a nightmare week on Xarelto. Swollen lower belly (liver?), 24- hour nausea, terrible fatigue, finally two pain attacks in my kidneys, second one woke me in the middle of the night. Was switched to Eliquis, now down to 5mg twice a day. I am fighting through fatigue, trying to walk 3-4 km a day, despite snow, cold weather. Slight dizziness as well. Really hope to get off this after my next flight, a week in Cuba. Hope to switch back to wild salmon oil capsules, anyone have experience with that to share?
D
California
My dad has been taking Eliquis for about 5 months now. He just had a nose bleed yesterday, but was able to get it under control. Today, he had such a bad nosebleed that I had to take him to the ER. They put a balloon in his nostril to pack it and stop the bleeding. It was fine all evening but has been draining light pink (which is getting a bit more red). I googled Eliquis and nose bleeds and came up on this thread. Must be the Eliquis. We are supposed to see his Dr. Monday or Tuesday. He is the one who said warfarin is literally rat poison and put him on Eliquis.
Larry
Michigan
I was put on Eliquis after a successful cardioversion for AFib. Within two days, my knee went out and I could barely walk on it. This continued for the whole five weeks that I was on this med. I called the Dr. to report this and they assured me that it had no correlation at all to the Eliquis. I stopped taking the medication on Tuesday and by Friday my knee is back to normal. This must all just be a “coincidence.” I think not.
Holly
Kent, UK
I’ve just come out of hospital after having a hip replacement operation. I felt l was doing reasonably well while in hospital but since l’ve come home l’ve felt terrible, nauseas and migraine, feeling weak, very shaky, twitching legs which are driving me mad. I’mabsolutely terrified and will be ringing my doctor first thing in the morning. I’d rather be on aspirin as lm sure this could do the same thing, thin my blood, safely.
Lorraine
2
I am on eliquis as I have clots in my lungs. I have developed a very painful knee. I went to my Dr who gave me a referral for an ultrasound. I was unable to get in for this as they were booked out.
I went to emergency hoping I would get one but they would only give me an x ray which of course showed nothing. I have had to come home 2 hours away on the land. It is a weekend. The pain has spread and I feel pretty sure it’s a bleed.
I don’t know what to do being a Sunday, how serious it is. I am a 72 year old female. My knee is very swollen and painful.
Dallee
Had pretty much all the problems with Xaralto and Eliquis mentioned in the adverse comments. Taking magnesium supplements (NOT calcium) will help, and a spray magnesium gel is quickly absorbed through the skin, and Epsom salt baths will provide some magnesium.
I am currently on edoxaban (Savaysa) and don’t have the same side-effects; it operates on a different metabolic pathway as a blood thinner. It took about three weeks for the side-effects of the prior medications to vanish.
Everyone is different. I offer this comment only as an observation as to my experience.
Melissa Bongiovanni
Chicago ilIllinois
Hello,
My Mother was given Eliquis samples rom her Dr. She became ill after taking them for only two days.
She had to call the anbulance due to a SEVERE nosebleed. She used papertowels, washcloths, towels, to try and help her nosebleed.
The blood was in her sink, on the bathroom wall, kitchen sink.
She was taken by ambulance to emergency, they tried to control the bleeding. It was coming from her nose, from her eyes, tears from her eyes were bloody.
She lost ALOT of blood and was kept in the hospital for two days.
I DO NOT recommend anyone take this drug.
The Dr. said she had a nosebleed, yet considered it Hemorraghing on her discharge papers.
Thus was awful to witness as well.
H
Nottingham
my doctor prescribed Eliquis apixaban. I was told to take 2 a day. After a week I had so many aches in every joint, and both my kidneys ached. It felt that I had been punched in the kidneys, and when I turn around with my shoulders I feel like someone has stuck a needle in me. After 2 weeks I stopped taking them. The doctor then gave me a different table–Pradaxa 110mg. After 3 days I stopped them. I had the same problem. I think the Eliquis apixaban has damaged my kidneys. My Doctor now tells me I will have to go on Warfarin. I wish I had read these comments above before I had taken this tablet. My Doctor never told me about the side effects.
Robert
Lafayette, la
I have been on Eliquis since February 6th 2016 after a stroke. My legs constantly feel like there is no energy in them and all of this falls on the deaf ears of my internist as well as cardiologist. For some reason I have now also developed a chronic kidney disease and high blood pressure that does not seem to be controllable after reading all of these comments I believe the physicians and I are going to have a serious talk. The Eliquis is for AFib.
Steve
Dartford, Kent, England.
I was on wafrin since a PE in 2009 with no major problems apart from the 8 weekly checks. My doctor persuaded me in Jan 2017 to start taking Eliquis. Coincidently I developed a bone marrow edema which they said was from an impact to the knee. I am 56 and cannot remember falling or landing on my knee for years. I have felt since taking it that I have run a marithon my muscles ache all the time as well as my joints. Climbing stairs is a major problem. Total shortness of breath is scarry. I have always been fairly fit, and this is worrying. Will go to the quack and get myself back to waffrin.
DEZ
Merseyside
Dez age 84.
Ive been prescribed Eliquis on October 18th 2017. for 6 months for a DVT in my right lower leg. Since starting it, my walking has steadidly become more fatigued . And I can’t crouch down because of pain in my knees. I thought it was a result of the medication But after checking the leaflet for side effects there was no mention of physical effects. So I researched it on line. And I am shocked at the number of people with horrendess reports I have seen.
john
curra qld australia
Been on Eliquis 5mg twice daily for afib. Having resisted taking warfrin for some time my doctor talked me into eliquis saying much better and safer. Good for a few months until I started to experience breathlessness, which over time got worse until every step was a enormous effort.
Later chronic fatigue set in , lower limbs became numb , and a couple of months ago all over body aches which no medication could relieve . in desperation i weaned myself off the eliquis by cutting small pieces of the tablets , a bit more each day until after 5 days i finished the elquis , the last couple of days i added 75 mg of aspirin per day .
now 2 days off the last of the elquis , i can report i have a lot more energy , my pain has subsided by 50% , the numbness and swelling in lower legs has gone and my blurred vision has cleared up.
What i take from now on will be a heaped teaspoon of cayenne pepper in warm water and honed twice a day , this should dissolve any clots that may form due to the afib.
Also have moved to 3 capsules of Swansons hawthorn berry twice daily to calm the afib. I will put my trust in these and GOD rather than doctors and drugs. I am 78 and was very active till eliquis which ruined 2 years of my life.
Lorraine
Buckinghamshire
I am sitting next to my husband as I type this. He has fallen asleep again, trying to watch a film on TV.
He has nosebleeds, headaches, sore eyes, had a bad eye bleed recent!y, always hungry, has put weight on, cramps, dizziness, blurred vision, itching, pain in his joints, swelling in legs, numbness in face, pins and needles, and lots more. How the hell has this drug ever managed to be released? Where has my fun loving, happy husband gone?
How can they supply such a dangerous drug without an antidote? I am glad they are not testing this on animals as they cannot speak up and tell us the pain they are suffering – but we can – time this reached the world press. Come on everyone, get writing!!
brit
VA
just curious how you are doing now? I was put on Eliquis for Afib but I said I would only take lowest dose 2.5mgs bid. Cardiologist told me this is not sufficient but I feel fine on it plus take fish oil/CoQ10/E/hawthorn. I am wondering if this will work or if I should do the 5mgs which I am reluctant to do (I weigh 145lbs/5’8″ 79yo and other than afib in perfect health
Elvina
IL
Hello Brit, I am almost your age. I have had Afib for several years. In the beginning I did not take any blood thinners because I had just a few episodes of Afib. With time, episodes became more frequent. I was started on Coumadin but it was really difficult to do frequent blood work. About 3.5 years ago I had two stents put in my heart and was started on Plavix and tolerated it very well. In 2016 I had hip replacement, and they convinced me that I have to take Eliquis.
I am a physician and know more about medications and about pharmaceutical companies then other people. I rely mostly on myself because I know that many doctors follow recommendations of Pharmaceuticals. I stared on 2.5 BID and don’t feel very well. I can’t fall asleep, am very tired, and I gained weight, have pain in arms and legs, severe headaches, SOB and more. I decided to start lowering Eliqis very gradually by 1.25 for 1-2 weeks. Currently I am on 1/2 of 2.5 BID. I think if don’t have any problems, I will start 81 mg of aspirin.
I want to ask you if you tried Amiodarone for Afib. I have taken it for several years and don’t have Afib. This medication is rather dangerous but I have no problems so far.
Yvonne
Australia
Just wondering how you are going now on the aspirin, pepper, and Hawthorne berry. I have Afib, am age 79, and have been on elequis now for about 8 weeks. I am feeling horrendous with all these side effects. I am becoming very unhappy. I have to get right off all of these meds. And want to go natural and have a good diet always. Just wondering how you are now.
Edward
Virginia
Do eliquis suppress the bone marrow? Create severe anemia?
Terry Graedon
It can cause thrombocytopenia and anemia.
Dallee
On the connection between Eliquis and anemia, I note that I have cold feet since I started taking it and that side effect has not moderated even after the Eliquis was discontinued.
Mark
New York
I’m 56, in fairly good health, but suffered a PE in January 2017 following a phlebectomy to remove recurring leg clots. Began taking Elliquis upon diagnosis of PE. Within weeks, experienced asthma symptoms for the first time — mainly induced by exercise. Stuck with Elliquis into summer on heels of a second procedure on varicose veins. Exercise-induced asthma symptoms continued sporadically through summer. And general wellness declined. Respiratory troubles became more chronic into fall: chest tightness, exercise-induced shortness of breath, tight passages, wheezing, laryngeal stridor. Quit the Elliquis beginning October. Recovery and disappearance of respiratory troubles has been slow but sure. Pressing cardio-vascular exercises this week with no problems. Notably, the first time I mentioned to my prescribing MD these respiratory/asthma problems, he dismissed Elliquis as a probable cause. More recently, however, upon hearing my compliant a second time, he conceded Elliquis might be a factor — he did not dismiss the possibility.
Jim
Santa Cruz , CA
I take Eliquis for a pulmonary embolism. So far nausea is the only side effect I have experienced. I hope I only have to take the drug for 3 months, as long term use could cause some severe problems.
Marc
Southern Indiana
DVT & multiple clots in lungs 24 years ago. Prescribed Coumadin for 2 years. June 2017 had DVT & clot to lung again; because 2nd offense, am told must be on thinner the rest of my life. Eliquis 5mg twice a day. Almost immediately I developed dry nasal cavities. Causing difficulty breathing and must use spray saline several times a day to get relief. When “able” to blow, I expel small clots and bloody tinge. I have sores in my nostrils that will not heal up. I requested to be placed on Coumadin instead and was denied.
John D. P.
CA
This is directed to all of you having blood clots in particular,. I was on =Coumadin/Warfarin and felt horrible. Did research and have been on Nattokinase, vitamin E, Turmeric as my thinners since early 2015.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5372539/
Mari
TX
I had a stroke in May 2017. Was put on Warafin in the hospital. Blood tests weekly and then nurse came to the home with the PT ladies, Warafin adjusted weekly. The Cardio man put me on Eliquis 5mg, x 2 a day in August 1, 2017. I am 77 female. Side effects that I feel are all coming from Eliquis. Breathing Problems, (like shortness of breath) severe tiredness soon after taking a 5mg.
Great appetite especially for a carbo. Sleep interuppted in early evening and during the night.\. Swelling of the feet and low legs. I have alerted my doctor twice now thru his Medical assistant. She told me he will discuss all this at my next appointment in January. I do not think I will last that long with the side effects, especially the breathing problems. I want it lowered to 2 1/2 mg x 2 a day to see if this change lessens the side effects, I was told to remain on 5mg x 2 a day. They think the stroke was casued by A-Fib (not a valve) I am damned if I do and damned if i don’t) I have three teens who I help support their college. Talking to a pharmacists I wAS told the other three blood thinner meds may also cause the same side effects.
I am scared and beside myself. hERE IT IS 1:12am AND i AM UP DUE TO soB AND HUNGER AGAIN. I ALSO HAVE A COUGH. I will welcome Warafin. I had no issues except weekly blood test and certain foods. MRW
Linda W
Texas
I took a Warfrin for 7 years but felt very unhealthy from lack of vitamin K in my diet. Had major nose bleeds and awful skin bruising. I am on one 20 mg Xarelto and have gained about 20 lbs even though my diet is low carb and low sugar.
I have less bleeding problems but don t know if I am as healthy with additional weight gain and the other negative of the high cost of these new drugs. Where can we go to get answers? It’s scary when your doctor’s don t even know themselves. It’s like we are living time bombs or test subjects for the Manufactures of these awful drugs.
Frank
Nevada
I have been on warfarin now since 2004 and I am having a problem keeping my blood at the right level. My Dr wants to put me on Eliquis but after reading all the comments and the warnings, I believe I will stay on the warfarin, eliquis scares the hell out of me.
kathyaustralia
brisbane Australia
I feel just like you I had all the adverse to xarelto , aching bones, swollen and painful feet, weight gain ect, qwhen itold mydoctor he also denied that these were side effectsof zarelto,so haze today changed me to Eleqious, i decided to heck up this drug on the net, found this sight, i really feel that i have jumped from the frying pan into the fire, I feel so confused and don’t know what to do, do I just stop taking anything and take the chance and see how long I will live, i Have A F I am so scare
Mark
Asheville NC
It’s amazing how many folks are having trouble with this medication. I am 63, good health, exercise everyday, eat healthy. I’ve had several DVT / PE episodes over the last 15 years. Coumadin was unmanageable. Xarelto seemed to risky, so I changed to Eliquis. (the only medication that I am on) Four years later, no problems except for being tried most of the time. Which is a major side effect. I researched my symptoms to see if a natural approach would help me. I have since started eating more energy boosting fruits and vegetables, and some B complex vitamins. I have also been taking very small dose of apple cider vinegar. No matter how old you are, keep moving, exercise, stay off the couch. Do diligence with natural energy boosting foods. Good luck.
AFAM
CANADA ONT
I have been taking Eliquis since one year my Hemoglobin down to 119 and RBC 4.04 AND HEMATOCRIT 0.357 and ferritin 93
my family dr. and my self-tried hard to increase the Hemoglobin by improving the quality of food and iron supplements but the numbers stay low, also it seems no bleeding nothin MY DR.DID MANY TEST AND COLON SCOPY AND CT SCAN, I THINK THE ONLY REASON THE ELIQUIS I AM TAKING.
Becky
Saw your post regarding anemia on Eliquis. I have the same problem. As soon as I started taking it I became tired, had leg weakness, insomnia, and was cold all the time. Doctors kept saying I must have a virus. After a month on it developed shortness of breath and tachycardia with any exertion. Finally after 3 months on Eliquis got doctor to do blood test, and my hemoglobin was down to 4.7 (normal 12-15). In hospital for transfusion of packed RBC’s (3 units) and iron (1 unit). After a week hemoglobin finally up to 8.9 but no signs of bleeding anywhere. Getting endoscopy and colonoscopy today with camera capsule scheduled to check small bowel. Meeting with hematologist again in a week. He says if no sign of bleeding it was the Eliquis killing off my red blood cells. Have you found out anything else from your doctors?
Katrina
Australia
My 83 year old mother has been on eliquis for two years and has now been sufferring with dysphagia for the past year and a half with it getting to the point of limited food and fluid intake. She has been diagnosed with a paraluised vocal chord as well , which we believe may be a side effect of the eliquis.
Today we are going to try her on another blood thinner and see if this all dissipates.
B
United States
Do you have an update on your mother after you took her off the eliquis?
Mum
Portugal
I have been on Eliquis since May in preparation for a Laser leg surgery. Recently i have been suffering with cronic diorreaha, weakness, headackes (which I normally never have), and backpain in the kidney area. My Doctor says, “all drugs have side effects”, so where do you go from there. To prove it was the medicine, I stopped for 2 days, and they all disappeared, I felt my old self again. I am 80 years young and am going on to 100, if this doesn´t kill me first.
Bruce A
MA
Started taking eliquis10 days ago,went in hospital for colonoscopy,transfered to cardiac unit with a fib, heart beating to fast,put me on eliquis and metoperol, spent 4 days in hospital i am 62 , very healthy, a gym rat work out 5 days a week,all very upsetting, never took any scripts, alot of vitamins and supps,have gone back to gym,took a week off, all these negative comments are very scary so far i have noticed a little lightheadedness,eating seems to help this.
I noticed difficulty walking up stairs,ocassional short breaths, energy levels same, i am a poor sleeper so i cannot blame,see my cardio guy for first time next week,will relay all my concerns,allthis negative stuff leaves me scared
Joanne
Australia
I’m a 52 year old female and have only been on Apixaban for 3 weeks , in the last 10 days I have a uncontrollable Period which has stopped me from work and leaving the house.
The doctor has taking me off it for the weekend to ease the bleeding , come Monday I’m certainly asking to be taking off.
Rebecca
USA
After starting Eliquis for multiple bi-lateral pulmonary embolisms, I have developed severe migraines that happen daily. At first it was every three days, then every two and now every day. My daily life is spent in bed, crying, throwing up and in such severe pain that I ended up in the ER twice.
Since this was my second bout with pulmonary embolisms my doctor told me that I am on blood thinners for the rest of my life. I don’t want to stay on Eliquis. I wonder if there is an alternative that doesn’t cause the migraines. It also causes such severe muscle spasms of my neck, shoulders and back that I resorted in taking muscle relaxants that only work part of the time.
I started taking ibuprofen which can cause serious internal bleeding with the Eliquis but I don’t care at this point because the pain is enough to make me want to end my life.
Kate
Scotland
I’m 39 and had a cluster of small clots in my right leg and one huge clot in my right lung. My teenage daughter called an ambulance when I stood up to walk to the bathroom and could not breathe…just like that. No warning or symptoms I would recognize. Walking 10ft and boom, life changed forever. The right side of my heart became inflamed and impaired because of the massive stress and I was found to have very severe anaemia.
I was admitted to hospital and spent 12 days, 11 of those on oxygen and in that time was given apixaban 5mg twice daily. Three days in to taking apixaban they started giving me blood transfusions. I had three bags of blood the first time and felt a little better not so tired, that didn’t last. The following evening I was given a further two bags, all in all over nine days I had eleven bags of blood and four IV Iron before being put on iron pills.
I have a history of severe menstrual bleeding, in fact I’ve been admitted a couple of times because of it. Up until yesterday I thought I’d experienced the worst periods I’d ever have the last time I was admitted, but this time is horrific. I’d asked specifically about the risks involved because of my history of heavy monthly bleeds and was rather fobbed off by vague information.
I am so exhausted all of the time and while I appreciated that this drug is preventing future clots, I wish I had been given honest and transparent information about the risks involved with apixaban.
monique
Why do they give you eliquis if they know you can’t go off it? I want to know if there is a way I can not take it and not have a stroke and die
Jan
New York
Hi~comments on here are so upsetting! Wish I knew what to do…a week ago, I had some sharp pains in the middle of my chest. An ER visit & scan revealed two small clots and one larger one in my right lung. No absolute cause known. Best guesses: hip replacement back in May, or perhaps two falls recently, both “body slammed” my right side? I have a rather inactive right leg due to foot drop & a brace (which I hate). Who knows~anyway, I was on heparin (IV) in the hospital overnight and sent home on 10 mg of Eliquis, twice a day for this first week. Today, I began a lower dose, 5 mg twice a day. Now that I’m reading these terrible side effects, I’m so scared! Frightening bleeds, fatalities! I was on Coumadin years ago for A Fib but had severe bleeds of both knees…so I know I can’t take that but after reading all these comments, I wish I could! This is just too dangerous.
Tremaine
Belen
I like Eliquis. I live far from the big city and Eliquis is more usable to me since I have a lot of health issues. I already have to see the PCP monthly and already have a diet to control my diebeties and I just don’t want another thing to ultra control my diet. I have little left to make me happy and being forbidden to water my garden and to eat the green beans, lettuce and having to be monitored constantly and another place I have to go to the doctor again makes me so unhappy. They are trying to force me to take Warafin but I refuse.
Mika E.
Germany
Why no Warfarin? Is it as bad as Eliquis?
Rodney
East Midlands
Been on. Eliquis apixaban for 7 months now 6 on 5mg twice a day now 2.5 twice a day am 70 years old cyclists used to do 50 miles 2 or 3 times a week now 15 miles is all I can manage 1 or 2 a week I have to stop at the top of every incline it makes my legs hurt I can’t breath properly and I go a lot slower I hate this drug it’s side affects ruined my hobby.
Michael
Big Island Hawaii
12/15/16 had an extreme DVT episode…barely made it to ER..I am 68, have always been very active…had not been to a doctor in 24 yrs….prescribe Eliqus/aspirin…changed my diet and routine completely………..Major exhaustion, extreme pain in leg affected by DVT ..level 8 continuously..memory loss, balance thrown completely off..confusion…crave carbs…itching like I can’t believe…depression……before..happy, active, alert, now…I have to force myself to do the smallest of tasks…if I can remember
Ivan
Victoria
I am very fit but was prescribed Epixaban after a lung clot, told to come off it slowly after 6 months. After small skin bleeds and nosebleed I wanted to get off once clot was ok. It is very hard to get advice and feel ok about the risk level. It seems to me that if a haematologist or physician is not readily available, there needs to be a way of getting advice when moving from 2 x 5mg/daily to 1 x 5 mg daily, and then off the medication. This is a dangerous treatment unless there is proper monitoring of clotting and your GP can’t reliably advise. I don’t like the anxiety or interruption to sleep patterns, but the small clot however innocuous has led to me being caught up in a risky medication.
Gary
Maryland
Has anyone experienced intermittent pains in the head while on eliquis?
MD
NY
My mom was prescribed Eliquis in Dec 17th of 2015 due to her first episode of Afib. On March 17th of 2016, 3 months later the cardiologist took her off it, and told her to take low dose Aspirin. 8 days later she died of a massive brain hemorrhage. They say the Eliquis was not the cause because she was off it for 8 days. I say they are wrong, either being on Eliquis for 3 months, or stopping the Eliquis, I believe, caused her brain hemmorrage. It was massive and devistating. We didn’t even see it coming.
Patricia
FL
My Mother was 79. She had taken Coumadin for a few years when she was diagnosed with A-fib. When she started see the commercials for Eliquis, no blood work, eat what you want, etc., she contacted her Nurse Practioner (general) and was told she could take it. Not even 30 days later, my Mother had a massive hemorrhagic stroke. She had the stroke on a Friday night. Her brother who was with her at the time decided to have her placed on a ventilator so myself, my two sisters, and my daughter could see her before she died.
In my opinion, she was already dead Friday night. Her left side was paralyzed, she could not breathe on her own, she could not speak, she would be a vegetable if she were kept alive. My Mother and I were as close as close could be. She lived in Tennessee, I lived in Florida. We spoke daily, two or three times a day. I would fly up and see her monthly. This was a devastating blow to me. I did tons of research on the medication, as I filed a lawsuit in February 2015. The Eliquis lawsuits were all dismissed without prejudice.
However, in my research, I read all the results of the clinical trials, read the boxed label warnings, read everything. If I had to do it over again, I would place the blame on the nurse practitioner and her heart specialist. My Mother was in a high risk group to even be considering changing her blood thinner. The Federal Judge determined there was adequate labeling to sell this killer drug, but what she didn’t realize, is that the Medical community, doctors, nurses, nurse practitioners, etc., don’t take the time to read the fine print.
Eliquis might work well for some, but there are groups of people that are at high risk for bleeding events. I’m still fighting to have my case in court. I don’t want my Mother’s death to be for nothing. I miss her everyday. Eliquis is a very dangerous drug, and should not be on the market. Period.
B
Southeast
I am so very sorry about your mother. My thoughts and prayers are with you even if it’s been a while now. Losing someone unexpectedly is never easy.
Mika E.
Germany
So sorry, Patricia. As you did the research did you find a secure way to get off the eliquis? I’m on my first week of taking it and glad I found this site so I can go off it as soon as possible.
Any news about the lawsuit?
Bunty
Newcastle uk
Hi this is my 4th post on this fantastic site with requards to taking apixiban 5mg BD .ive been on it know for 15 months but I’ve aged 15 years in that time!!!!!.im exhausted all of the time taking this drug as I had a stroke and need it for anticoagulant.im also in the menapause so I’m rock bottom have difficulty walking breathless anxious and awful paplations.asked to change to warfarin but everyone says it’s a drug of the past.knowing people all over the world are feeling as ill makes me think I’m not alone.thank you all ?
Lisa R
Texas
In May, 2017, I awoke to a stroke. Normal except I could not see correctly out of my eyes. I could not sit as I did not know how to do it. 911 air lifted me to a hospital. (Worse place) They said I had a cerebellum stroke. Blood clot in a small artery Bad care and I lost almost 10 lbs in 5 days. Hubby had e transferrerd to a rehab center. It was better. I stayed there 4 weeks All this time I was on Warafin. Then transferred to Eliquis, 5mg x 2 a day. It seems I am getting worse. I am blaming Eliquis.
My head will not stop hurting and I am tipsy topsy without the waker. I am always hungry and want a muffin or a snack. My chest feels weird and again…so does my head. I fall asleep at a minutes notice. Plus, this med is very expensive. I have a MY CHART note into the Cardi doc. The Neuro is not all that interesting. I guess my only salvation is Warfarin again or off everything and just ,325 aspirin. Waiting to hear the verdict.
Mary W
TEXAS
Hello, I am Lisa Rose. I just wrote on Eliquis. I failed to mention that I am having difficulty in breathing and eye problems. I noticed how dry my eyes are and they crust up now. At 2:00 AM this morning I applied warm compresses to both eyes.
The left eye started to bleed sightly. I wish I did not take Eliquis. I hope the doctor will take me off of this and figure what to take so I can exist better.
Ellen
Please let me know what the decide. Thanks.
Ellen
Oceanside, NY
Please contact. My mom on elequis. Thanks.
Bea
Playa del Rey, CA
I was put on Eliquis when I was 88, playing tennis twice a wk, walking 1 1/2 miles 3x weekly, always felt so lucky to be feeling so well. Eliquis brought me down. I had horrible feet and leg cramps, feet & legs swelling, itching on my left side, shortness of breath, nights when I never closed my eyes to sleep, at 89 I got my period, a feeling there was a magnet pulling me to the right, dry mouth & eyes.
I am on warfarin & some of the side effects have subsided. Had to give up tennis, could not breath or run, I cannot walk any distance and if I do, I have to stop & rest many times. I, too, feel as if we are a bunch of lab rats.
B
Sourheast
I am so very sorry about your mother. My thoughts and prayers are with you even if it’s been a while now. Losing someone unexpectedly is never easy.
Jan W
Kent
Been on Apixaban for 6 months, 2 x 5mg a day. Have been told to drop it to 2 x 2.5mg now which is what i will stay on for rest of my life. I have had no side effects other than my hair falling out, badly thinning only, not clumps of hair. But found out from ICU that it was just being in Intensive Care for 2 weeks that would probably cause that, not the Apixaban. Doctor told me hair would probably fall out from 3 months after being in ICU and then be back to normal after about 6 months. This has shown to be the case, i am back to normal now. Happy to be on Apixaban.
Irene
Melbourne
I have recently found out that I have AF (arterial fibrillation). I was put on Sotalol 80mg and Eliquis (apixaban) 5mg twice a day.
Since I have been taking these medications my energy levels have dropped severely. My breathing is heavy, I feel foggy in the head, I have no energy and I have a an unusual craving for carbohydrates. Prior to taking these medications my energy was great, I did not eat much carbohydrates as a rule. My breathing became so restricted that I rang my cardiologist who advised my to stop taking the Sotalol until I see her again (3 weeks time). I am still on the Apixaban 5mg twice a day. The breathing is slightly better but cravings for carbs are out of control. Just don’t seems to be able to contain it which is very odd for me.
Does anyone else have carb cravings on Apixaban or is it just me. Love to hear from people who are taking Apixaban (Eliquis). Irene
Amy
Belen
Apixaban I think that different people have different results with all medicines. I personally want to stay on Apixaban. I was already immobile, I have sever chronic pain, I already have to see the doctor monthly and I just can not want to use warafin. In fact, it would take away the only happiness I have any more. They scare me saying I will become a vegetable. But I don’t care. If I am not allowed to water my garden and eat my veggies then I really don’t want to live any more.
Mika E.
Germany
Why no warfarin? Is it very bad with side effects like Eliquis?
Mary
Florida
My sister is on it for atrial fib. Has horrible carb craving. Found her eating a loaf of raisin bread every day. Dr. Said not related. Also, wakes up with trouble breathing even though she’s on oxygen. Again drs disregard and say it’s COPD and CHF which she has had.
She’s completely confused, had severe anemia requiring blood transfusions, can’t remember names and is showing signs of fear of dying. Don’t know what to do. Hospital treats then releases over and over. Please is anyone having these symptoms.
Becky
Yep, severe anemia (hgb 4.8 instead of normal 12-15) required 3 units of packed cells, cold all the time, shortness of breath, tachycardia, poor concentration, and insomnia. Wanted carbs for the fast energy because tired all the time and weakness in legs and arms. Couldn’t lift anything more than a couple of pounds. Can’t find any sign of bleeding, more tests today. Hematologist says if GI tests all negative it was the Eliquis. Luckily he does not believe in leaving people on blood thinners for life unless they have genetic marker for clotting disorder. He says better to treat clots if they arise for 3-6 months on blood thinners and get you off them as soon as possible.
peter
canada
I can relate to many of the comments I’ve read here. I have AF since 2004. I have had two Ablations and was told AF is now normal but told to maintain Aspirin 81 and Warfarin. Warfarin is time consuming and problematic because it restricts diet, ( I like vitamin K foods). The last year and a half I’ve been on Xarelto (urinated blood) then on Eliquis. I didn’t like the way I felt, but mostly my ability to walk and traverse stairs, I’m 78 but felt 88; mobility and pain were a daily struggle not to mention I lost interest in doing things.
I also suffered ED since taking Eliquis, I was still functioning on Warfarin. I had a tooth pulled recently and stopped taking Eliquis in the event of bleeding. Voila! I can walk and go down stairs again and I have less pain especially in my back and rash and itching are subsiding. These drugs maybe effective but at what cost to lifestyle. I’m not sure how many more years I have left but given my options I think I’ll take my chances as appose to the Medical Professions stats.
John k
Boston, MA
I started taking Eliquis 3 weeks ago. My dose is 5mg twice daily. I have been experiencing lightheadedness. Had anyone else experienced this side effect? Please share your experiences. Thanks.
Mika E.
Germany
Yes. Same here after only a week. I sleep 12 hours, have blurred vision, bad memory, and I’m only 37 years old. I have to get of this drug.
How are you doing now, John K ?
Bob
While on Eliquis I have had sharp quick headaches,light-headiness, dizziness, tightness in chest,itching,fatigue. Tight chest and itching are recent symptoms. Have been taking for 5 moths. I’m done with it.
michael
windsor Ontario Canada
i had been taking Xarelto for 28 days , i had shoulder pain i couldn’t sleep , my DR introduced Eliquis this was worst conditions loss of breathing back pain both shoulders and back pain much worse than Xarelto , today i am calling my Doc asking to be put on Xarelto again .
at least i could stand the minor shoulder and back pain of Xarelto
Eliquis was for me a very bad experience .
michael
my vision was also a serious concern with Eliquis
(example ) after first taking Eliquis six to seven hours later
i would be a person in pain and lazy condition with all the above causes
Ellen
Long Island
Please let me know what you decide. My mom on eloquis and I think affecting cognition.
She reduced dose from 5 to 2.5 x2 day. Thanks.
tom
Illinois
Hair loss with Eliquis. Appendix ruptured with Eliquis?
Paul
95650
Dr.s put me on Eliquis 5mg morning and night for 5 months after a blood clot in my lung, following a leg surgery, I did not experience any negative effects .I’m 52 years old. My concerns, is stop taking them and and effects I may experience from stopping.
Terry
Maryland
Have been on Eliquis for about 2-1/2 months before nosebleeds started. The first one scared the daylights out of me. It happened at 3:30 AM, awakening me. Sheets and pjs were bloodied. Guess I was in a daze at first before realizing what was happening. Grabbed a roll of toilet paper, sat down at the kitchen table, and pinched my nose until the bleeding stopped 30 minutes later. Since then I have had 7 more bleedings at various times of the day and night, without warning. The bleeding time now runs about 15 – 20 minutes before stopping. I have tried a number of natural remedies which have been helpful: cayenne pepper oil drink (5 drops to 1/2 cup warm water); cotton ball dipped in apple cider vinegar or witch hazel.
The bad thing is being afraid to go places for fear of a bleed. I find it’s best to do any errands after a bleed has been controlled and the probability of having another bleed right after is much less. Still I have to be prepared and take “stuff” with me, just in case.
My biggest concern is just how long the bleeding will last. Will it ever stop? Is t his forever? Myself, along with so many others, are just big pharma lab rats. That’s my story. I will see my doctor during the coming week, but I have more trust in God’s pharmacy (natural remedies) than a new RX—no way!
Alison
Swansea
My father has been on Apixaban for about 2 years now but this week his doctor told him he is anaemic and reduced the dose by half so I thought I had better see whats going on as no one explained to him why. Now I know why he has had the worse eye haemorrhage I have ever seen (he looked like the terminator), his anaemia , severe exhaustion and he sleeps all the time, unable to walk far at all and his difficulty swallowing which we put down to his stroke. I wish doctors would have the time to listen as I feel all this has gone unnoticed and we would not have known if I hadn’t been on this site. I am going to take him to the doctors and get them to put him back on the warfarin
margaret w
Georgia
I was on Coumadin for Afib and a previous stroke. Before long I started having horrible hallucinations and asked my doctor to change me to something else. He put me on Eliquis 5mg BID, and I feel horrible…Severe fatigue, all I want to do is sleep, sob and cant walk very far, head always feels like it is stuffed with cotton. anxiety and congested sinus all the time..This is is not living a quality life..The bruising is awful, I always look like I have been beaten up. I put myself on 2.5mg BID trying to taper off the horrible drug..Side effects still continue..I have it with all the anticoagulants and going back to ASA daily and searching for holistic medication
Susan
Just a correction to my post…..Where I said my quality of life has declined “Silent AFib”. Not what I meant to type. My quality of life has declined. I had ONE episode of AFIB very symptomatic. Thought..”well okay, I’ll know if I’m in AFIB. ” THEN I read about “SILENT AFIB”! Shouldn’t my cardiologist put me on a holter monitor for a period of time to see if I am having this? And not just assume? I’d wear the darn thing for a month to see if I have Silent Afib.
Rather than having to stay on Eliquis the rest of my life after one Episode of AFIB. And what’s the difference in whether you have a stroke from a blood clot or a stroke from a brain bleed cause by the Eliquis? Which type of stroke is the greater risk with AFIB that isn’t ongoing? And does my doctor just not want to confirm what type it is to keep the prescriptions rolling? He doesn’t have to live with the side effects and the pain. I’m not ready to become an invalid as my ability to function declines because I can’t tolerate any activity. Rant over.
Susan
Georgia
So once you start taking Eliquis, you can’t stop taking it because you will die???? Then why did my cardiologists PA tell me it would be no problem to come off of it a few days before a colonoscopy? Might I die during that time period?!
I started taking this med a little less than two months ago. I have back and hip problems and can no longer take my anti-inflammatory meds due to Eliquis. My pain is X10 now. I thought maybe it was just due to lack of the anti-inflammatory (just Aspirin) but I’ve tried going without Eliquis for a two separate 24 hour periods and feel MUCH better. When taking it I feel like I can barely walk around, my back hurts in my kidney area and between my shoulder blades. Feel like I can’t take a deep breath.
Nearly went to the ER last night because of feeling so bad. (no irregular heart beat). The bad feelings started subsiding close to time for me to take my second dose of the day. I skipped it. Feel better today. Don’t know if I should take my next dose or not. Don’t want to feel like I’m dying and don’t want to fear having a stroke. I’m so exasperated. My quality of life has declined silent AFIB” ! Dear Lord! What to do? my anxiety is through the roof now. I just want my life back!
;’
michael
windsor ontario canada
After reading others words i am reminded of the poor condition of the symptom’s i had been dealing with
far too many to remember
hope my doctor agrees to let me change my prescription today
this has to stop ,
my anxieties and pain never felt this way before taking Eliquis
hardly slept last night 10 visits to the washroom for voiding
K
I’m on about the same time frame as you were.
What did you do?
Gary
Late in 2015, after a cardio-version, I prescribed Eliquis and after about two weeks I had the worst nose bleed that I have ever had. I bled all over the pillows, the sheets, the floors, and all over myself. I called the cardiologist’s office the following day, and told him that this was the worst nose bleed in my lifetime,(then 78),. The PA told me have my nose cauterized. I immediatly stopped taking Eliquis. I am now 80 and I have not had a stroke or heart attack.
Isabella
Australia
I had a slight nose bleed in hospital and on first cleaning my teeth my gums bled. No bleeding since. Now, a month after starting Apixaban, my head feels as though I am bleeding in the area above the position of the dissolved clot. This feeling is when I retire at night. On questioning my cardiology about the huge list of sided effects of the medication given by the makers, I rang my cardiologist, who told me not to worry about that, as it is law that all side effects be listed even if only reported by one person!
CAPTAIN JACK
BOTHELL, WA USA
My primary care physician put me on Cumiden (warfarin) because he felt that at my age (76 at the time) I was at risk of stroke. Then he said that I had A-fib. Went in for cardio-version and while being prepped for the procedure the nurse noted that the A-fib on the ECG was gone. Cool…..then three months later during an exam he said I said still had it. Trip to Cardiologist: a-fib. I was unable to stabilize the blood numbers with the Cumeden, so they put me on Eliquis (50 times more expensive!!!). Now i have frequent unexplained bruising, as well as horrible gushing nosebleeds which require nasal plugs (tampons) and cauterizing. With the plugs in I cannot sleep and have great difficulty breathing. Both doctors say I am on Eliquis for life and once started cannot stop. This is not the quality of life I want. Strokes do not run in my family….I am going to stop the Eliquis
Les
TX
I have been in perfect health, 153 cholesterol, all arteries clear, all OK except AF started about 4 years ago. Had a stroke, lost all of right side, Monitor picked up AF, 7 days in rehab quick recovery. MD prescribed Eliquis
In 2-3 days had ringing in ears, in 5 days going to extreme dizziness from vert to horiz, from horiz to vert, extreme fatigue all over, legs felt like poisoned, shortness of breath, no sense of balance, falling in shower, blacking out, wobbly, nausea, extreme malaise. After 10 days saw local MD, who put me on aspirin 2x/ day instead. It took a week before I felt like myself again.
Something is badly wrong. I searched many pages on the drug Apixaban before I found anything negative
.
I am a highly educated, non-extremist, sober, level-headed retired professional.
Lee
Hi this is Lee again I wanted to come on this site because I wanted to also read the stories to see how people were doing on this well today I also have chronic illnesses so don’t get me wrong I don’t feel well today and I am a little scared because I’ve been sick for 3 days nauseated and I’m praying that it’s just my chronic disability God bless
Frank
Atlanta, Georgia
Lee, it’s been a week or so since your last message. How are you doing? Were you able to seek medical advice re the dark urine?
Eliquis has been described by the medical people I talked to as a top line medicine, and so I too am taking it 5mg twice a day.
In any event, we are all the same but yet each of us is different; no matter, the Lord knows all about us and is with us.
Keep in touch and best wishes.
Lee
Arizona
Hi everyone my name is Lee I have a blood clot in my lung in my heart artery I’ve been taking Eliquis and it was doing beautiful for me I had no side effects I had no bleeding until weeks later I start bleeding dark urine I got very nervous then I have to of course see another doctor upon my millions of specialist that I already have so I’m not sure the outcome of that situation would be of me bleeding from my urine but Eliquis may have save my life x 2 well x 3 LOL because I had 2 blood clots and now I’m bleeding from somewhere in my urine so I thank God for Eliquis thus far it has been a beautiful drug 4 me to take only with the Lord’s guidance that I am in great hands and in beautiful Health right now we will find out the outcome and I’m blessed that it will be great God bless everyone that is going through tough times with this drug and I hope that everything will be great for them also I pray that they will have a better outcome thank you
Dora
Jacksonville.Florida
Eliquis
Noni
Alberta
I am on blood thinners for life. Switched from warafin to Eliquis three months ago because It’s very hard to get blood from me. I have gained 11 pounds and have a lot of joint pain and fatigue. I am seriously considering going back to Warafin to see if all these issues go away.
James
Melbourne, Florida. USA
I am 76 years old and started Eliquis at 2.5mg twice per day. Doc increased dosage to 5mg twice per day in spite of red blood spots on both arms and taking 75mg per day of another blood thinner, Pradax. Test showed no blood in stool but still am short of breath and frequently exhausted. Pacemaker and stents cured AFIB. Also take 500mg Metformin four times per day for diabetes, two 40mg Furosemide tablets with one 20MEQ extended release potassium chloride tablet for fluid, and one 10mg Lisinopril tablet for high blood pressure (systolic only 135 and diasystolic in 605 to 70s with heart rate in 60s and 70s with no recurrent AFIB.. Slight bumps cause profuse bleeding on arms. Also white blood cell count is borderline to abnormal low).
BUT ANEMIA WITH ABNORMALLY RED BLOOD CELL COUNT (now 4.05) HAS POPPED UP ABOUT THE TIME I STARTED TAKING ELIQUIS! Also hemoglobin (12.6) and hemocrit (38.0) are also borderline abnormally low. Doc does not know why. I suspect bone marrow malfunction caused by the hormone erythropoietin (EPO) from the kidneys.
Thus by next year I plan to cease Eliquis and all other drugs except Metformin and switch to natural foods.
For blood thinners I plan to substitute nattokinase, garlic, vitamin E, and Omega-3 fish oils. For blood pressure will use celery for potassium. and vitamin K in form m7 to clean calcium out of the blood vessels into the bones where it belongs. Just to assure that AFID does not return I will use 2mg to 4mg per dat of taurine.
Regardless of whether I live or die, my main concern is QUALITY OF LIFE, not length of life. I just hope that by eliminating pharmaceutical poisons, this old body will heal itself with healthful replacements.
Mika E.
Germany
Hello James,
How are you doing right now? It’s been a year. Any news ?
I’m on Eliquis since a week and have pain in muscles and sleep 12 hours. I want to quit this.
Mike
CA
I am told I had a small stroke and while in the hospital I was found to have a fib. So the cardiologist prescribed Eliquis 5mg 2x per day and atorvastatin 20mg 1X per day. I got dizzy. Cardiologist did not want me to stop the Eliquis but did suggest I cut the atorvastatin dose in half. After that no symptoms of any kind. Interestingly, I stopped all caffeine, energy drinks, pain killers, and alcohol intake due to reading the small print with Eliquis. It has been over six months now and I feel good. Lots of the nagging pains I used to have went away! I asked the doc if the Eliquis acted as a pain reliever but he said no. My only concern is that I need dental surgery and must delay for now while on Eliquis. I’d rather not take it for the rest of my life either, but I am told not to stop without medical supervision.
GG
UK
I am 79 yrs of age and I broke my leg in Peru and then flew home to the UK in a full plaster. I developed 2 blood clots in my leg and was prescribed 5 mg of Eliquis twice a day for 3 months. My breath smells like the bottom of a birds cage but no other side effects have been experienced so I will see out the 3 months as my wife has no sense of smell whatsoever which is just as well really.
Mika E.
Germany
Hello GG,
Any News on your health?
Jem
North Tonawanda,N.Y.
On May 16th, 2017 I had my first attack of A-fib. I drove myself to the hospital, and after confirming my diagnosis they kept me two nights and treated me with Eliquis. After a follow-up with my cardiologist, my Eliquis was doubled to 5 mg. twice a day. I also take Metoprolol for my blood pressure. I have been a healthy, active woman for 82 years but this past month has been a nightmare. After reading many of the side affects readers are having from this blood thinner I feel that I fit right in expressing mine. I had never experienced such pain as last week when I woke up to the first attack of gout in my right foot big toe joint. Also the ringing in the ears and feeling lightheaded and never knowing what to expect next. I am going to my Cardiologist this week and hopefully she can recommend something more suitable for me. This site has been very helpful to me. Thank you, Jem
Laura S
Queensland
Not only are my mother’s legs and feet swollen, but the bones in her feet and toes have gone stiff and changed shape so that she can barely walk. She has been in and out of Emergency 5 times in the last 10 days, and no one really knows what to do.
Mum has had terrible BLEEDING from the bowel, and the Gastroenterologist does not know what to do either. He was the doctor who took her off the drug because of the side affects.
Laura H
Queensland, Australia
My mother was on Eliquis for 2 years before I researched the drug after terrible side affects. She stopped the drug 2 years ago but still has the terrible swollen legs and ankles which she never had in her life. She is still so tired, and she just can’t do a thing. She’s is now 80 but was active all her life before she was put on this terrible drug. We thought it would have worked its way out of the body by now. Is there a way to detox?
Hamida
London w 14
I am taking apixaban for over a year now. As Warfrin was not settling my INR , ( I took Warfrin for 3 / 4 years) I had A/Fib and 3 stents for blocked arteries ….I never had any side effect which was new. I am taking bisoprolol (A beta blocker. ), Bandro…zide, aspirin 75mg , Amiodarone. And Lsartan. I do get a slight blurred vision every day for a short while… and my ears get blocked occasionally , (but I had these symptoms before taking Eliquis. ) Apart from that I have found Eliquis very good …may be it interacts with other prescribed medicines.
I am happy with it , but I am sorry for others who have bad side effects ( specially when it is so expensive ) age 78.
Claire D
Vancouver, WA
MY son, 46 years old had afib..then had a stroke.
He has been on a Eloquis for a month now and metropolol….no problems, he feels great so far. He’s back to work. So scary hearing all these side effects.
Frank
CO
I am 79 years old Taking Eliquis less than one month for afib which started 6 weeks ago. Took warfarin for a week before cardiologist had me switch to Eliquis. Had been on 325mg aspirin (discontinued) and continue taking Losartan. Want cardioversion but have to be on Eliquis at least a month.
Previous afib 15 years ago after heart surgery for AVM. Needed to be on warfarin for 4 months until the pro time was right before having successful cardioversion. Now having diarrhea an have a mouth ulcer, have no energy and go to bed 2 hours earlier than before taking this medication.
See cardiologist next week. A three month supply was $1600. Covered by insurance for now but won’t take long to go into the “hole”.
Mika E.
Germany
Hello,
How is your son’s health right now?
Any news?
Lou
Idaho
I took Eliquis after knee surgery. I had the black stools and fatigue, then the last couple weeks the fatigue got much worse, I felt ill most of the time, nauseous and had terrible back pain that spread to other joints.
I’ve been off Eliquis for a week now and was wondering how long the symptoms would last. The pain is better, not gone by any means, sleep is difficult and nausea still comes and goes out of the blue. What a crazy dangerous drug to give anyone. I’m beginning to wonder if the damage it does is permanent.
Mika E.
Germany
Hi, LOU,
how did you get off this Eliquis: abruptly stopped it or slowly halved the dosage?
shelba
IL
my wife had afib so they put in a place maker. she got a blood clot in the left arm as a result. was put on eliquis and metoprolol. have been on this for about three years and doctor says she will have a stroke if she comes off the pills. metoprolol is for afib but I thought the pace maker took car of that.
Rob
Arkansas
Scared out of mind being on this drug. Reading these while having many of the same symptoms as others; at least it makes me feel I’m not crazy. Random headaches that appear out of nowhere in random locations in my head coming and going. Heart feels like it wants out of my chest. Stomach pain, tired, depressed, trouble breathing, leg and joint pain. Much of it has been blaming it on my recent knee surgery and the fact that I had several PE’s in early May as a result of the surgery. I had both my knees scoped and they put me on Eliquis until August. Friday I went to a new doctor who said I need to take it for life because I am in the 10% of people who can have another deadly PE! I am seriously considering taking my chances over living my life like this. I feel completely worthless. I workout or do a few things and I need to take a nap. Foggy and I don’t ever want to leave the house alone. This is no way to live life. I am 52 and was in perfect health with just hypertension.
Bob
Texas
I am a 70 year old male with a-fib and brady tachy syndrome. My heart both slows and misses beats with the brady and speeds up and fluctuates with the a-fib. My heart doctor put in a pace maker. This is for the brady and NOT the a-fib. The pace maker kicks in and keeps my heart at least 62 bpm. The a-fib is treated with flecainide. I also take metoprolal, diltiazem and benezepril. This treatment keeps my blood pressure around 120 over 70. Yes, there are some side effects from some of the meds but the alternative stinks.
Sherry
Virginia
I am a 59 year old woman, placed on Eliquis for a PE. I experienced hair loss, like a cancer patient, blurred and double vision, which hasn’t stopped after a week of no longer taking it, nausea, severe indigestion. With 2 episodes of thinking I was having a heart attack, extreme weakness and fatigue, and nose bleeds so bad I had blood behind my eardrums, and bruising. I pray my vision goes back to normal, as one eye turned red from a vessel bursting.
James
North Carolina
I was prescribed Eliquis for controlling my heart condition on 12-23-2016. Within 24 hrs I started to have a reaction, legs began to swell, started to gain weight(5 lbs) left message for cardiologist office about the problems this Eliquis was creating, Eliquis has a black box warning so I continued taking the medicine for 6 days and decided to quit it because I heard nothing from heart doctor”s office. In those 6 days gain 20 lbs, didn’t sleep for 6 days, legs swelled so bad they started to ooze blood and fluid making it very painful to walk. Had trouble breathing, swallowing and sinus started to drain down my throat, so I had to sit upright to keep from choking. Eliquis has created several thousands of dollars debt for me in medical bills, ER visit and doctor’s visits.
Susan Dayton
NC
Taking Eloquis now – 5 MG. 2 x a day – for about 3 weeks. Also Metroprolol. I have heart disease and AFIB. Doc says I am at risk for stroke. The AFIB episodes are coming now every day and the Metroprolol does nothing to stop it. What do I do ….HELP. I cannot sleep due to intense AFIB ….also have bad cramps in my legs when I try to go for a jog on the beach. I feel like I am dying….
larry
florida
Recently put on eliquis to control my afib and quickly developed blood in my right eye followed by bleeding from my kidneys. Went back to my old dose warfarin and everything cleared up.
Eliquis is a time bomb waiting in the wings to explode and can take you down very quickly. It is much better to adjust your vitamin K intake daily with wairfarin than to put yourself at risk no matter what any doc says. They don’t have to live with their end result but you do and then pay their bill.
Derrick
England
get some flecainide tablets 50mg these slow down the heart and set heart back into sinus rhythm
Jennifer
Belton, SC
This crap is kil!in me ! Eliquis is the worst drug ever!!!
Hair loss
Severs bone loss
Bone Spurs
Severe bleeding bouts
Skin just opens up and starts pouring blood
Horrible blood blisters under skin that open and bleed all over the bed…not to mention opening places just walking thru stores and bam, blood every where.
The worst exhaustion ever. I can’t stay up longer than 2 hours
Not to forget, the bone loss has been unreal (knees, hips spine); the pain alone is killing me (all of us) .
Dr says you can’t just get off of it it will kill you
Well, doc, this crap is killing me!
What in the heck are we all gonna do?
James
NSW Australia
I am an 86 year old male and two years ago I had bi-lateral knee joint replacement. During rehab, a blood clot was found by u/s in one knee.
I was put on warfarin to prevent further clots. There were no problems with warfarin except the weekly trip to the doctor for INR tests. I was told that warfarin should be taken for about 6 weeks after the operation, but because I had two incidents of rapid heartbeat, (Afib), I should stay on an anti coagulant for life.
Because of my complaints about the INR tests, my medication was changed to Eliquis 2.5 Mg twice daily. I soon noticed purple bruising on hands, legs and other parts of the body with just a small bump,profuse bleeding from small scratches, blood spotting on handkerchief, brown urine and then PANIC, black bowel motions.
Doctor said to stop Eliquis and after prompting said to take 100 Mg Aspirin daily. Bleeding stopped, life back to normal, no more bodily intrusions unless more symptoms.
Advice is generally to NOT stop Eliquis suddenly because this will increase chance of clotting, but after about 6 weeks, no problems so far.
I had no bad other symptoms other than a slightly dizzy feeling. I suggest extreme caution before agreeing to take this drug.
K
Are you still doing OK on 100mg aspirin?
Mika E.
Germany
Weird, no one ever replies to my answers.
Elizabeth
England
I had Vena Cava. Syndrome where the vein from my head to my heart was blocked with a tumour in my lungs, and I had two major blood clots. Was first on Heparin, then Cumadol, then changed to Warfarin, and I am now on 5mg twice a day on Apixaban. I am having pain which feels like my peptic ulcer is playing up and am living on Gaviscon for indigestion. I try not to let it affect me too much but one day sat and cried all day with the pain. I am not due to see the Haematologist for another 10 days. With Warfarin I was fine. What to do, I don’t know. I am frightened of having a stroke, frightened of bleeding from my peptic ulcer. I cannot go to the doctors again.
Dru
Texas
I took warfarin for almost 3 yrs without problems. Had internal hemmorhage from Pradaxa requiring transfusion and in Dec was put on Eloquis. Swelled terribly in my feet, legs and face. SEVERE body and joint pain so extreme in feet, ankles , legs, kneez and hops was barely able to get up or walk. Debilitating fatigue. Stopped taking it and after almost a month srill swelling, still have pain but less severe except my feet and hands. So severe in feet having great difficulty walking. These drugs are HORRIBLE!
Elaine
Nesconset ny 11767
I have been on eliquis for about 4 years, i am having shortness of breathe , constipation, fatique terrible, i take 5 mgs 2x a day. Could these be sideveffects after 4 years, drs. Cant find anything else wrong with me all of a sudden.
Maria
WI
My husband was recently put on Eliquis. Last Sunday while driving home (2 hour drive) and nearly home he experienced sudden He drowsiness – thought it was odd because he had slept 10 hours, nothing to drink, 200 in the afternoon. He said it was just odd but he was close to home so continued. He figured he dozed off without warning and crossed the centerline of the highway and hit a 5″ deep culvert driveway at 62 MPH.
But he didn’t feel like it was a normal nodding off and catching yourself and he didn’t hear the warning beep from the car. Something was odd. I have since heard from other friends that they suffer a lot of fatique since going on this drug. Except for the airbags and seatbelt and new car, he survived what everyone said would have been a fatal crash.
The car was totaled. I am trying to convince him that he needs to look into this. Is there a place to report this unusual event. He is 73 and in perfect health, no heart problems, low blood pressure, nothing but AFIB that has not reappeared for 7-8 years. The repaired all the damage from the safety equipment, cracked bones, cuts, bruises and did a complete workup and found no reason for what happened.
Sandra
U.K.
I have been taking apixaban for about 2 months and do not feel well with slight head pains and bouts of the worst indigestion I have ever expierenced so now I have to take another drug for my stomach!
I’m not happy but I don’t really want to go on warfarin either so I’m stuck with it – I’m currently taking 17 pills a day due to having 3 different chronic conditions it scares me but I know I have to take them it’s very hard to explain to the doctor how I feel and I sometimes think that they don’t really understand or take into consideration all the meds I’m taking which does concern me a lot!
Ann
Uk
After much consideration I have decided that this medication is not for me and will return to warfarin as it is long term tried and tested. These new drugs still have issues with long term problems as they have not been marketed long enough. Many people suffer as guinea pigs.
Kathy
Tennessee
I am a 57 yr old female with diabetes and HBP. All lab work to this point only showed issues with my A1C. I was diagnosed with AFIB in January of 2017. After 4 month ‘s on Eloquis I had my regular labs done, and now I am showing kidney problems. Eliquis is the only new med added toy regimen and the only thing I can find that would be affecting my kidneys. Plan on discussing with Cardiologist next week.
Ken
Wi.
After hip replacement surgery I was prescribed Eliquis for just 15 days near the end of the 15 days I experienced blurred vision and was found to have a deep retinal bleed that left my left eye at 20/200.Beware this side affect is not on the info sheet given at the pharmacy.
Joe
New York
I was switched from Coumadin to Eliquis after a slight stroke. My Creatinine levels went up from 1.8 to 3.2. after loweral the dose to 2.5 2xday, my levels dropped to 2.4. I feel weak and not myself, especially my concentration. Now I see that swithcing back to Coumdine may not be so easy. So unhappy with ll of this. Doctors please take note!
mk
Texas
78 year old female with AFIB. Have had an ablation and a cryoablation in the past 5 years.
Have had different docs put me on Pradaxa which made me really nauseous,tired and sluggish,nose and gum bleeding and I called FDA. Another put me on Xeralto which caused my hair to fall out and bruising very easy also bad headaches that were treated as migraines. Then another doctor put me on Warfarin for awhile but after a bleeding ulcer took me off.
Then was told to take a baby aspiring once a day and felt fine. Now a cardiologist has, this past week, put me on Apixaban and am nauseous, tired short of breath, jittery and anxious.
Also, I have Myleodysplactic anemia and have to take Aranasep once a month, and the cardiologist said to check with the Hemotologist who could not answer question of the possibility of decreased platelets. Am almost at wit’s end on these changes in medicines and the lack of clear information on reactions and outcomes.
How long does one give to overcome side effects? How long does one have to be on these blood thinners? Where does one go for true answers on reactions and interactions? Have check drug websites and other websites that deal with health issues and have not found answers.
Ann
Uk
I have also found myself jittery, anxious, insomnia and nauseous on eloquis. Nobody will give me a good answer about all this.
Jennifer
Dorking, Surrey, England.
Hi again,
I am an energetic 73 year old, slim and 5’9″,and have been on Apixaban for about four months after having Atrial Fibrillation.
Since reading the emails (above), I’m wondering if my strange tiredness and aching joints may be a side effect from the drug?
I also have problems now with tinnitus, in my right ear and a slight muggy headache
Most of the time, although I am giving myself inhalation three times a day to try and clear this bunged up feeling. I’m a musician and my hearing is so important to me.
However, snce reducing the dosage from 5mg twice a day to 2.5mg twice a day, the headache has improved somewhat.
At night, I also have much lighter sleep and anxious thoughts/bad dreams which is exhausting.
I make myself walk at least a mile every day on the Heath but get very tired sometimes whereas I didn’t before.
To be fair, I was also diagnosed with osteoporosis last year and am on a six monthly injection of Denosumab, so some of my symptoms (including the aFib) may have been caused by this drug.
I have always been sensitive to drugs and am not very good at coping with the side effects, although I know they are supposed to protect us and help us keep healthy.
Thanks for the website.
DT
California
Two years ago I had a blood clot in my leg. Which traveled thru my heart to my lung. It was missed at a Clinic. (the blood clot) which eventually traveled to my lung, again the local hospital missed it. I took myself to the hospital again and a DR. said my DDimer count was high, sent me to a bigger hospital where they found the PE. It was a huge clot and they were surprised I lived. I was given Shots in my stomach for a bit, then Warfarin, which never worked for me ( happens to only 1 in 1000) which my blood Dr. told me. So they prescribed Xarelto which caused bleeding in stool. Decided to stop it and bleeding stopped. Told blood Dr. I am not taking this any longer, I will take aspirin. He prescribed 325mg daily. Fine I said. Necessary…. seemed to work well….ver 2 years for now I have been given Eliquis,due to medical procedure needed. It seemed fine for approx. a month and a half. ( Curious to how long most experience side Effects) I have since had blurry vision, More frequent pain in legs, pain in my head ( temple area and frontal area), that is hard to describe. I have palpitations in my heart where I need to take deep breaths at times. Most recently I have experienced pain in my lower back. Which I am concerned may be may Kidneys. When I had recent blood test, I asked what tests they were ordering, one was to check my kidney functions, hmmm interesting. I believe that sometimes blood thinners are necessary yet I think that they could cause many issues. One wonders what to do to stay healthy. Listen to Dr’s who are practicing medicine? alot truly care….They are only human (because they cannot always predict each person’s reaction to blood thinners yet most it seems are having so many of the same adverse reactions, seems we all can’t be imagining them……I for one will eventually go back to coated aspirin. Seems like the best to keep for me. I am not a Dr. yet I know when my body is reacting to a medication. Each person, I believe is different and these medications are saving lives yet I am afraid that sometimes they take lives as well….. Blessings to all….
Sandra
Oh goodness me you are so right I’m suffering side effects with apixaban and it’s a worry I have been taking it for 2 months but trying to persevere….
Amy
Florida
This should be an eye-opener for all into seeing that we shouldn’t go above & beyond our own understanding to prevent something that’s out of our own control. When it’s your time, it’s your time & doctors can only go so far & then there’s God. Not trying to be all biblical but people are so blind to the real answers that just sit in front of their face. You explained, The doctors were amazed you were still alive. To me, that just shows how ineffectual doctors can be. Best of luck
anna
AR
I have been on eliquis since January this year. No negative complaints, other than now, I am losing great quantities of my hair!! Any suggestions??
Terry Graedon
It appears that most of the oral anticoagulants lead to hair loss (Watras et al, Drugs-Real World Outcomes, March 2016) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4819463/
Sadly, there doesn’t appear to be an easy solution.
Ann
Uk
I have been swapped from warfarin to apixaban at my request but find it giving me pain in back of lungs when breathing out. Also seem to have cough and insomnia. These are new since warfarin. Maybe should go back to it.
AJS
CO
After reading the messages above, it scares me, as I had a-fib episode in 2014, was kept on Warfrain for the amount of weeks known to be safe. I was told I was a low – risk and asked the doctor if I could take one full aspirin a day. The doctor approved it, and I felt like my old self, until October 2015. A nurse called and said it was urgent that I stop the aspirin. The doctor put me on Xarelto, which caused horrific nightmares, tiredness and depression. I started taking Eliquis four weeks ago. I have tiredness issues, and at times feeling sick after I eat, which lasts one to two hours. I am tempted to stop the new drugs and go on aspirin. Why don’t the doctors take regular blood tests to track these issues ?
Ann
Uk
Get off it now, side effects not worth it.
Judy
Michigan-USA
Be aware. Beware of the new drugs prescribed for afib. Warfarin’s been around for over 40 yrs. Yes, blood tests are needed, but I don’t mind that. It lets me know I’m still doing fine on Warfarin, with my numbers.
The new drugs have caused deaths, require no testing, and have huge law suits against them. I’ll stick w/Warfarin. BTW: I’m an 84 yr. old woman, walk every day and an active volunteer. Afib is mananageable!
Sue
Bristol UK
I have been taken apixaban for over 6 months. 2 weeks ago I had 3 massive bleeds from the bowel while on the toilet over a week. II suffer lower back pain, leg pain, pains in my head, knees, feet, and hips. Also tummy pains. I don’t sleep well and am always tired. My eyes don’ focus properly much of the time. I know it is the Apixaban. I had to stop it recently to undergo colon investigations. I felt better and slept better when not taking this med.
Bruce
South Africa
It’s all very confusing ! I had Pulmonary Endarterectomy operation, to remove blood clots from my lungs. I am 68. I was dying. Everything was shutting down. The op made history ! I am well and fit, I still surf, cycle, and gym 5 times a week. BMI for me is 74,2. I weigh 75,1.
I eat healthy. No drink, no smoke, no party. Loving life ! BUT since I came out of hospital I have been on Xarelto. Plus may other Vits & Drugs. I am experiencing Lower back pain & headaches that don’t go away, ever. Varing degrees, but always there. I looked up the side effects of Xarelto and to my astonishmen, top of the list was, lower back pain & headaches. So I came to this forum to try an achieve clarity. I wanted to change to Pradaxa, or Eliquis, but it would seem that Warfarin being tried and tested, is the better option. I have to find the cause of these headaches and lower back pain. They spoil my second chance I have been given. Thank you for your forum. Does anyone choose to comment.
Robert
Colorado
I would switch from Xarelto to Coumadin, I personally used Xarelto for about 3 months and it was horrible for me regarding side effects. The doctor sometimes acted like I was crazy when I told him strange things that occurred while on it. I have had almost zero side effects being on Coumadin 7.5mg daily. Hope this helps-
Jennifer
Dorking, Surrey. England.
Hi, I’ve been on Apixaban for about four months. I’m interested to know if anyone else has had these strange feeling, can I call them side effects? I’m feeling quite tired because I don’t sleep well now and I get really stressful anxious thoughts at night, and these make my dreams quite scary so I keep waking up. I am on 2.5mg of Apixaban twice a day. I also have a binged up head feeling and am trying to do inhalation to improve the situation. I also seem to have aching legs although I try to walk at l sat a mile every day. I did not have these problems before starting this drug. However, I’m not very good with any drugs, my body is very sensitive to any intrusion. I’d be very interested to know if anyone else is having similar side effects to this drugs.
Ann
Uk
Yes Jennifer, but how do we get our GPs to listen to us
Elaine
Watford
I have felt terrible since coming off warfarin and going on Apixaban, headache, dizziness, trouble with my ears, now consider going back on warfarin !!
Dennis
Cal usa
My doctor wants to,put me on a thinner at 73′ don’t know if it’s worth it . Aspirin has held off any trouble for six years now. Ekg says afib but I have never felt it. My stroke came in 2011while under the knife for a corrective heart valve operation. I’m living a pain free life style today, no worries. going on a blood thinner other than aspirin wil only add stress to my life. I’m not fearful of death but am afraid of being born in India or Mexico in my next life!
Patsy
Big Spring, Texas
I am a 78 year-old female. I have never had to take blood pressure meds or really any meds at all except thyroid medication. I have been on 2.5 mg of Eliquis twice a day for AFib for about 4 months. I have so many of the same side effect symptoms others have. Just had severe bleeding in my left eye, had to see the doctor for it. Have a headache most of the time, sometimes very bad. My weight has been the same for 40 years and suddenly I am hungry all the time and gaining weight. My insomnia is so irritating, never really get into deep sleep anymore. I am exhausted and shaky now most of the time, though to be honest I also felt that way when my heart would go into AFib before Eliquis. I hate this drug and the Multac I take with it. I am going to try the ablation procedure and hope it it works.
Mavis
Uk
I am 74 , I have had multi focal heartbeats from my 20 s with no treatment, however old age seems to trigger Doctors need for medication, on Warfarin for 10 yrs bought coagucheck machine so just an annual check to make sure OK?
New revelation , Eliquis, new nightmare more like, covered in a psoriasis type rash all over, still remnants after 6 weeks off drug, wheezy chest and worst still, just 10 steps and I need a chair, I am a very active person run a B&B but now can hardly move.
Seeing heart specialists in three days. Hope something can be done.
Dwina
Sunderland UK
I’m a 72 yr old female. I’ve had atrial fibrillation for two years, but it wasn’t confirmed until November 2016.
I was admitted to hospital and immediately started on apixaban and more medication for hypertension.
I wasn’t told of the side effects of apixaban, and certainly not about the fact of no antidote available.
Since starting it , I’ve had severe right temporal headache, extreme fatigue, tinnitus, insomnia, easy bruising, and depression.
I too have been craving carbs at night!
Now I have constant pain in the liver area, and have not been checked since I was started on the drug.
I see a cardiologist at the end of this month, and I’m going to ask to be changed to a different anticoagulant.
I’m at very high risk of a stroke due to years of uncontrolled high blood pressure and high cholesterol, also because of my family history.
My father died of a hemorrhagic stroke in his late 50’s.
I’ve nursed people with severe strokes, and I pray that if I do have one, it will be a fatal one.
I’m scared all the time, its no way to live.
William. L
Put toilet a little part on the toilet paper and position it on the corner
Ann
Uk
Fatigue, insomnia and depression all so much worse on apixaban
Gregory
Tulsa, Oklahoma
In 2015 I had completed radiation treatments for prostate cancer with successful results. Prior to the radiation treatments I had my colon fully examine with good results. In April of 2015 I had to undergo open heart surgery in which I had my aortic value replaced. Then a few months later I had started physical therapy and one day after stepping up the therapy I was advised I had some atrial fibrillation.
My cardiologist had me wear a monitor to find no significant fibrillation, but prescribed Eliquis. At first my only complaint on this drug was it was extremely expensive, even after insurance my part was $158.00 every month. However, I found other problems with the drug. I sometime at episodes of losing my breathe and having to stop.
Then, within a month I started finding blood in my stool. I at that time looked up the side effects to find both the breathing problem and the blood in my stool were side effects of Eliquis. I advise both my family doctor and the cardiologist of these issues. Both did not want to take me off of the Eliquis.
I am very concerned after reading the dangers of this drug, with some incidents of colon cancer and controllable bleeding. I am to see my gastroenterologist who I had seen prior to my radiation treatments to my prostate at the end of this month. No one told of some of the side effects of no antidote for bleeding and the colon cancer concerns. I also had skin cancer surgery in which I had quit using the Eliquis for one week prior and one week after my surgery. During the second week I notice I was not having the breathing difficulties and the blood quit showing in my stool.
Once I started Eliquis again, I start having more prominent blood in my stool and my breathing difficulties started up again. I wish the doctors would have consulted with me about the dangers associated with this drug prior to starting me on it. Both doctors do not want me to stop Eliquis until they get the results of my colonoscopy. I am distress and very concern about the doctor’s casual concerns about this matter.
Alta
NEW YORK
I am about to begin taking Eliquis. I have Afib but no other complications at all. I am a 69 years old female. 2 specialists have recommended blood thinners and I have always refused. Now, this specialist appears to be saying the same thing but also repeats that I am a great candidate for the oblation procedure; not sure about spelling.
I feel afraid of taking the blood thinners but have decided to do the procedure. Apparently, if I go for the procedure, I would have to do blood thinners in preparation anyways. It is difficult to decide after reading all these comments which are primarily negative experiences.
I am truly afraid of taking the blood thinner but feel kind of stock with my choices. If anybody can share some light I would greatly appreciated.
evelyn
Virginia
I want to start Nattokinase I have used it before it cured my dvt , but my dr will not acknowledge it. I had serious side effects to all of the thinners new and old. I had a PE couple of months ago, because I foolishly stopped taking the Nattokinase. I now want to start it again I am currently on Eliquis 2.5 mg AM and PM. I have not taken my AM pill was wondering if I should take Nattokinase Pm or wait for the eliquis to clear my system.
Sam
Norfolk uk
Hi..ask about warfarin coudamin, the common drug traditionally used for the preparation for ablation before all these new drugs appeared. It is monitored, which is more reassuring..and only taking for a short time reduces your ” risk” enormously. Best wishes for ablation sounds promising
Rgds Sam
Jenny H
Georgia
I am interested in Nattokinase also. I had a blood clot in my lungs and currently on elliquis. What do you know about taking Nattokinase? My doctor knows nothing about it.
b0bert
alberta, canada
I started taking eliquis 5 mg on the morning of the 5 March 2017. Today, 6 March 2017 after I ate dinner I went to the bathroom for a bowel movement ! WELL ! my
worst fears were realized, Rectal Blood after only 3 pills. I am nearing 83 years of
age and just had laparoscopic surgery after which I was put on supplemental Oxygen, as a result of over anaethetization. Now this, after having used 81 mg aspirin for over 10 years and no problems. Maybe more studying is required for these drugs, warfarin, coumadin,eliquis and the like.
John
Toowoomba, Queensland
Had a stroke Nov 2015 and got into hospital within the required 2 hours. So had the injection to disperse the clot.
Drs. put me on Apixaban/eliquis 5mg B.D. Have been taking that since. I have experienced no side effects, thank God, apart from a foggy head in the morning. However, I was only using 1 pillow, so started using 2, and the problem resolved.
I have blood checks every 6 months, no side effects that I am aware of so far.
Joyce h
Cheraw South Carolina
I have been on Eliquis for about 3 months. I am a liver transplant patient who developed a blood clot while in hospital with transplant. This clot formed at the end of a pick line inserted by hospital. I was put on Warfarin first and then switched to Eliquis because of the constant checking of blood.
My liver numbers have become elevated and my creatine is also elevated. I have spoken to my hematologist during 2 of my monthly checkups about this and was told both times it would be very rare due to the percentage of people this occurred with. I have now contacted my transplant doctor and transplant coordinator with the above possibility and they are also checking. My liver numbers and my kidney creatine numbers were both stable until the Eliquis was begun. I would rather pric my finger weekly if necessary instead of damaging my new liver and my very old kidneys.
I am 64 years old and barely made it into the transplant system even though my daughter was a total and very willing match. I eventually got 60% of her liver and am feeling very blessed. Have had very few MINOR signs of rejection. I do not intend to continue on eliquis if there is any possibility of damage. Have come too far to mess up now. Had my liver transplant 3/31/2015.
I praise God for every day I open my eyes and for a child to “volunteer” 60% of her liver to save her Mom. I never would have asked. It took her over 6 months of continuous testing before she was approved but we never gave up on our faith. Any small discrepancy in our anatomy would stop transplant. All veins, nerves and arteries had to match mine perfectly and they did. Who can say this was not a miracle??
Susan
Western Australia
About two years ago my partner was diagnosed with an irregular heart beat (enlarged ventrical), he was immediately put on Iliquis, High Blood Pressure, Anti Depression neds, he was on an asthma spray previously. In January 2017 he had a severe nose bleed and was hospitalised for 4 days. They stopped the Iliquis and he was advised to attend his doctor soon. The doctor has now put him on Praxada – he has never felt better, not depressed, more energenic, very little breathlessness. And at least the Pradaxa can be reversed in the case of a bleed. It is early days yet but he is currently very happy.
Gina F
NY
My mother had a stroke when she was on Coumadin. At the hospital, they didn’t want to administer the therapy that breaks the clot because her INR was 2.0. Her stroke wasn’t that bad, and because we weren’t sure the time of onset of stroke, the hospital held off administering that time -sensitive medication which they probably should have just given.
As a result, mom wasn’t as mobile after the stroke so her INR had to be checked by technicians coming to the house and drawing her blood each time. This was horrible because mama’s veins /arteries are so thin. When the cardiologist recommended Eliquis I was at first happy because now we no longer had to deal with all those difficult blood draws.
Shortly after being on Eliquis, mom started having blood in her stool. Then the diagnosis of colon cancer. Not sure if the cancer was caused by eliquis, as it was mama’s first colonscopy at age 84. No family history of c.c. And there are plenty of us.
Shelby
WV
Have been on Eliquis since aug 2016 for dvt in leg that traveled through my heart into my lungs. Was given a Coumidin drip for a week, then put on Eliquis since then to keep clots from occurring. Things had been ok until around Jan 17.
I have other problems such as high blood pressure, for which I take Lisinopril and Amplodine. Those meds have been ok for the few yrs I been on them. Now here’s what I’m going through: I constantly have joint pain, which I blame on my prior accidents which caused a broken back and neck injuries.
So is Eliquis doing it or just making my injuries worse feeling? I don’t know. But the major complaint is that I eat and then an hour later get so nauseas I cannot move. I have to lie on my left side. I cannot move. It’s so debilitating. It feels I will puke if I do. I lie there for approx. 4 hours before this feeling subsides. I then end up going to toilet, and my guts hurt afterward, like a burning sensation or raw feeling from upper gut out to rectum. But no blood in stool. So I have quit eating anything after 9 pm because I was also, and still am, waking up around 5am experiencing this nausea. I lie around a few hour, and it goes away. I was able to go out and about the rest of the day until a few days ago. Now I get this feeling like I will pass out. My ears have been ringing for around a week.
I went to doctor last week. They found I have a fatty liver now and slightly elevated blood sugar. So I totally cut out sugar and fat in my diet, eating only fresh veggies, fruit, nuts, and water. I want to lose weight to reverse the fatty liver issue and have better health from weight loss.
So here’s the question: is Eliquis ruining my liver, kidneys, and/or pancreas? I feel like my food’s not digesting. I think that’s what’s causing the nausea. It’s just lying in my gut or perhaps my insulin’s not working right, causing the nausea. I am experiencing severe depression during these stomach episodes too. When my stomach feels better,the depression immediately leaves. The stomach nausea also leaves. This is very scary, and I have asked my doctors if this may be a side effect of Eliquis. But they act like they do not want to hear that and say that it’s not the Eliquis.
I also get confused and have blurry eyesight a lot. I’m afraid to get off of it because the clots about killed me, going into my heart then into my lungs. I also get immediate sharp pains in eyes, on top of scalp, and along temples. I rub the areas, and it hurts right on those spots. Or I will get sharp pains that come on in arms and legs. And I also get this quivering of the organs, like in my stomach. They are uncontrollable. I just have to lie still and relax, not moving a muscle. Then this quivering will lessen after about an hour. I wonder as I sit for hours how they can know any long term effects of this medicine. It’s not like every person is the same, and it’s not like they’ve studied folks who have taken it for a lifetime. They study people on it a year? two years? Then say its ok? My throat’s often raw feeling too, and those lymph node things in my neck get sore to touch. But I get that checked, and there are no issues as far as strep throat,a cold,or anything.
kai
nh
So sorry to hear what you are going through that I had to tell you that. Hope all works out well for you. I think more research is needed on all medicines. Take care of yourself and keep getting other opinions.
Suzanne
Michigan
Been taking Equalis for about 6 weeks. Had cardio version three days ago and am noticing significant hearing loss in my right ear. I’m a 68 year old female with severe osteoarthritis. I was taking Celebrex at the same time. Will my hearing return?
Kristi
Utah
I’ve been on Eliquis for about 2.5 months for a DVT caused by birth control. Two and a half weeks ago I developed sudden and severe vertigo, nausea, vomiting, and hearing loss and tinnitus in my right ear. Currently being assessed for Ménière’s disease. Wondering if Eliquis is the cause and thinking I am going to stop taking it, without my doctors consent.
Aileen
Ireland
Hi Kristi,
I have been on Eliquis for 18months now and xarelto for 6 months prior after having multiple DVT’s and PE’s and the side effects have been horrible. The doctors won’t believe me about the side effects but I also ended up with severe vertigo for about 10 weeks, I also have insomnia, headaches, fatigue, pain my side, Joint pain, now torn ligaments and the list goes on.
I was a very active outdoor instructor and own my own adventure company but these days its very hard to keep up. GET OFF IT NOW. I will be demanding my doctors listen to me now after reading all these and looking for another alternative.
Chris
I am interested in hearing if you did get off of the medicine???
I too am very active and now have fatigue, joint pain and just had an MRI for possible torn ligaments.
Kathy
Nevada
I have been on Eliquis for 4 months for AFib and have had several times when I feel like I’m going to faint, the feeling lasts for about half an hour. My last blood test showed high creatin in my blood and my thyroid count was very high. I have taken thyroid mess for years with no problem. I am 82 and worry that my meds are doing more harm than good.
Alex Opal
CA
i have been on Eloiquis for 2 months, I was taking Plavix it may not have been as effective as eloquis, it did not cause me to start bleeding and now the doctors want to do some procedures of my rectum. i am going to see the doctor 27 of March and will try to have him take me of Eloquis. This Eloquis may cause you to have colon cancer and liver cancer if taken on prolong time. See FDA report 2015 which doctors dont want you to know. I need to get of this medicine for sure.
Michael
Newcastle, Australia
I am a generally fit 66 year old male and have been on Rivaroxaban (Xarelto) 20 mg daily since October 2013 after a pulmonary embolism. I experienced few side effects but was a little tired with muscle aches all the time. My Dr switched me to apixaban (Eliquis) 5mg twice a day in July 2016. The tiredness and muscle aches disappeared and all seemed well apart from the fact that I seemed to have less energy than normal. By January 2017 I was beginning to feel tired most of the time with little energy to accomplish physical tasks. A blood test showed that I was severely anaemic and subsequently a faecal occult blood test was positive in all 3 stool samples. It is now February 2017 and I am about to undergo a colonoscopy to check for gastrointestinal bleeding.
When I next visit my Dr I will enquire about switching to Pradaxa or back onto Warfarin (Coumadin) 9mg daily for me. I was previously on Warfarin for over a year from April 2012 until June 2013 after my first Pulmonary Embolism. The greatest problem I found with Warfarin to be the regular INR blood checks. I was stable the whole time I was on the Warfarin and my dose was a regular 9mg daily.
While in hospital for my first PE I met a gentleman in his 80’s who had been on Warfarin for 30 years so perhaps this may be the way to go. I will keep this forum posted, Micknor
Alun
Manchester UK
Yes, I’ve been on it since Dec. 2016, and I have had much of the same. Eyes out of focus, dry throat. I’m on it 4 DVT, knocked my shin and swelled up in hours, so it’s not bad lifestyle, it’s physical trauma.
Sweling gone now & back to normal, but must still take till end June… Why. GP let me drop from 4 a day to 1. I don’t they know, think we are Ginea pigs.
I took LSD in 60,’s in a rock band, and feels much the same…
But, without the sex!
Mike
The problem with Warfarin that Drs don’t tell you about is that it CAUSES atherosclerosis (plaque in the arteries). This is very serious and when it affects the coronary arteries can lead to cardiac arrest.
Mary
Michigan
I am a 70 year old female. I was hospitalized for 3 weeks with my first serious DVT in 1996. After Coumadin therapy for a month or two, I was sent on my way with permanent damage to the valves in the veins of my left leg.
Did not have another clot until 2011 and was put on a statin, just ignorance on the part of that doctor I think. Then, after a 2,000 mile road trip to my retirement location in 2012, I got another clot and was found to have the genetic blood disorder, Factor V, and was put on Coumadin therapy by a hematologist in my new town. Much to everyone’s surprise, I developed another DVT while on Coumadin. The hematologist immediately put me on Lovanox injections every 12 hours… permanently, which was not ideal to say the least. After two years of injections with no clots, Eliquis, strictly an AFIB drug, became approved to prevent clotting, and my GP switched me to 2.5 mg twice daily.
I have been on it for the past three years and am happy to be a positive commentator on this blog. I have all the aches, pains and indigestion mentioned by those who’ve commented here, but, considering my age, a hip replacement, a shoulder implant, a hiatal hernia and arthritic hands, I don’t think I’m looking at side-effects. Eliquis has been great for me and, after five years of caution, I’m ready to pack up my dog and attempt that road trip again!
Paul
Boston MA
I was a warfarin patient for years but didn’t like the constant blood tests so i switched to Eliquis. I’ve been on it for about 6 months and during that time I’ve become more fatigued and depressed. I can’t associate any other reason with these symptoms, I think it has to be the drug. Hoping to switch back to warfarin shortly
Ann
Uk
Definitely. I have been switched from warfarin to eloquis as it is supposed to be easier to take. I cannot shake the fatigue it is causing and to top,it all gp,says the orogonal 2.5 was wrong, Drug company now says 5mg twice a day. The tiredness is killing me. I think warfarin was a walk in the park compared to this.
DC
Oregon
After being diagnosed with arrhythmia and tachycardia my cardiologist put me on Eliquis. I never felt good while taking it, and three weeks in the constant nausea and extreme fatigue were debilitating. My cardiologist said that I was just “getting used to the drug”.
My MD recommended I take Warfarin instead, but I thought the cardiologist must know best because he was the specialist. About three weeks after taking Eliquis I had dental surgery and my new denture rubbed a bit on the outside of my upper gum. It was a VERY small abrasion, about the size of a pinprick. One night I bled out all night long. I didn’t go to the emergency room because my MD had said that there was no antidote for Eliquis and I figured that after 12 hours (I took 2 a day) it would be out of my system. But, after 12 hours I was still gushing from the mouth. I went into the ER where they put me on an IV and gave me gauze to bite on. After a half hour the bleeding stopped, then a doctor came in and told me that they DID have an antidote for Eliquis and he was going to give it to me.
I think I was in a state of shock by this time and didn’t question it. I had been up all night hemorrhaging, was exhausted, and just wanted to go home. What he said didn’t really register. Remember, the bleeding had STOPPED . . . about three weeks later I got a bill from the hospital for the drug he prescribed. The bill for the drug was $30,000.00! My portion was $800 and the insurance company handled the rest. How is this even possible?
I am now on 1 baby aspirin a day but have heard all the warnings from the doctors about risk of stroke If I don’t agree to take a proper blood thinner. Eliquis is a very SCARY, not to mention expensive, drug. The antidote is even MORE expensive. I don’t know what I would have done without the insurance. The $800 bill was an unwelcome surprise too!
Ann
Uk
Very interested in link between elequis and depression, any others?
Matthew
Chicago, IL
My Dad has been on Eliquis 2.5 mg twice daily for about 1 1/2 years now, due to his cardiologist diagnosing him with atrial fibrillation back then. My Dad was a sprightly and very healthy 86 year old dynamo who has always eaten right, never smoked, and never drinked his entire life. He has never been on any meds ever, except a lose dose (5 mg) Prednisone tablet for some muscle weakness as he never ate much meat protein, but got the protein through eggs, peanuts, and legumes.
His cardiologist ordered a heart ultrasound two months ago and they noticed a lot of serous plasma fluid encircling his heart, around the outside pericardium, with very little red blood. Pathology ruled out cancer, but the fluid was choking and crushing his heart. It had to be removed, so he went into surgery to drain all this fluid off his heart. They took him off the Eliquis to guard against internal bleeding, and he was recuperating from the surgery when the Eliquis apparently wore off and he had two mini-strokes in consecutive days due to the Eliquis being stopped.
Immediately, they put him back on the Eliquis but the strokes did little bits of temporary damage to his abilities such as chewing, swallowing, and talking. He got out of the hospital after three weeks, including 1 1/2 weeks of rehab with physical therapists, speech therapists, and nurses. We suspected the Eliquis was causing this leaking of plasma from the blood, but we had no proof.
Now, it is four weeks since he left the hospital and the cardiologist ordered another CT scan. Apparently, there is little bits of fluid around his heart again (not as much as with the surgery drain) and now fluid around his outer lungs. It is obvious to me that the Eliquis created the heart-burying fluid that caused the surgery, and is at work again building up fluid on his heart slowly.
We don’t know what to do, and ever since the strokes, the cardiologist moved him up to 5 mg of Eliquis twice daily, so the fluid build-up could be even more severe now. Add to that the fact that the MD has also got him taking a daily baby aspirin, and you have a real quandary. Do we take him in for another fluid drain in 6 months or so, and do we stop the Eliquis briefly like last time and go through the mini-strokes again when the Eliquis wears off due to stopping? I do not want to repeat that three week ordeal with the 8 weeks of therapy to regain his motor and cognitive abilities, again. Maybe, we should never have put him on Eliquis to protect against a small 5% risk of stroke. He does not really have any of the myriad of symptoms you all describe, except small nosebleeds and occasional tiredness. We want him back to 2.5 mg Eliquis twice daily, and wish this fluid problem would vanish, but we have never seen this strange side effect of fluid build-up from any other Eliquis patients.
Cathy
Phoenix, AZ
Nine trips back and forth from AZ to MA over a two and a half-month period apparently left me with bilateral pulmonary embolisms which were discovered the day after my last flight, Nov. 26, 2016. I was astounded to learn during my visit to the ER that night that none of the CT scans, leg ultrasound, xrays, or MRIs, detected a source of these blood clots! I had no DVT. I didn’t have cancer. I tested negative for any clotting disorder. I stayed in the hospital two days to complete the tests. I was given Lovenox and Warfarin during that time. The hematologist I was assigned prescribed Xarelto upon my release. For the 10 days I was on Xarelto I was doubled over in pain with the worst stomaches ever. I could not function while on this medication.
I called my hematologist to report this to her at the five-day mark, and she did not believe it was the Xarelto. (Hmmm, what else could it be doc? That was the only thing that had changed in my life, besides getting the PE’s.) While on it, I read the side effects of Xarelto, and 10 percent of patients on it experienced severe stomachaches. The doctor insisted I give it 10 days, so I did. On the tenth day I called her and said, “No more. Either give me another medication or I’ll find a doctor who will.” At this point my doctor switched me to Eliquis, 5mg, am and pm. Voila, no more debilitating stomachaches! (I made sure to report my experience while on Xarelto to both the FDA and the manufacturer. I don’t think enough people do this.)
I started out thrilled on the Eliquis because I could finally get on with my life without feeling nauseous. My stomach pain was gone, and I had my appetite and energy back. After a couple weeks, however, I developed throbbing headaches and an aching neck. I thought the severe neck pain was from sleeping funny or from the pillows I was using. I never thought it might be attributed to the Eliquis. After reading the testimonials on this site I’ve changed my opinion. I think both my head and neck pain are from this drug. My head feels like it could explode at times. Arghhhh. In March I’m due to have the Eliquis discontinued, and I sure hope it is. I can’t live like this. (The stories about hair loss have left me especially anxious, and although I’ve not experienced it, I’d really be po’d if this happened. There is no mention of this under “side effects” for Eliquis.)
Hopefully, the drug companies will perfect these newer, no-antidote anti-coagulants. Until then, if I need to go back on one I’ll stick with Warfarin and the annoying blood tests.
Larry
Chapel Hill
I am assuming my thoughts that I have written today meet your requirements for commenting policy and the terms & conditions. Please let me know if there is something I have not done correctly re your commenting policy and website terms and conditions.
Larry
Chapel Hill
Eliquis was prescribed 4 months ago. As a male of 77 I’m doing better than many I know in terms of side effects of the med, but it has not been a pleasant experience. Some of the symptoms I’ve experienced: generally uninterrupted loose bowels, blurred vision, increased aching in neck, back, fingers, lower legs. I hope my wt will not decrease significantly–currently 150-55 lbs. I now always experience mild to moderate laryngitis–especially at bedtime.
I continue exercise programs about 30 minutes daily for at least 4 days a week, including riding a stationary bike or elliptical for 15-30 minutes and 30 minutes of moderate weightlifting–5 varied muscular exercises in a gym. I walk our pet 1-2 miles almost daily. I also do NIA exercises 2-3 hours weekly and about 2 hours of hatha yoga with instructors–one general form of yoga and another gentle yoga for seniors taught by excellent instructors.
My afibs seem increasingly infrequent–these had begun in the wake of finding that I had a 4.3 cm ascending aortic aneurysm almost 2 years ago. Afibs are infrequent sometimes not any daily with recurrences every 2-5 days. Prior to eliquis, I took 91 mg aspirin daily and continued losartan and amlodipine for controlled hypertension averaging 100-120/60-70. I continue multiple vitamins–though stopping Vit K and avoiding any other supplements I had taken that would aggravate further anticoagulation–such as curcumin.
Mental status generally OK, but some mild to mod apprehension re possibilities of worsening side effects but also apprehensive about injuries that could be sustained in a significant fall or in a significant traffic accident or any other injury with significant bleeding with no quick antidote for such a bleeding. I believe the pharmaceutical companies supplying eliquis began in June ?? increasing their research to hopefully find a medication to more rapidly clot blood for someone hemorhaging heavily in internal organs or due to major accidents–especially in auto crashes.
Richard
Michigan
I am a 69 year old male who was diagnosed with persistent atrial fibrillation 4 months ago. I also have sleep apnea (10 years), use a BiPap nightly and was considered borderline diabetic, and have been on Simvastatin 20 mg for ten years.
Despite diagnosis of afib by ECG, I am “asymptomatic” (HR between 60-70 bpm and no physical symptoms of afib) I was initially placed on Pradaxa but switched to Eliquis after one week due to severe heartburn. Since the switch to 5 mg Eliquis twice daily, I have not noticed any side effects other than easily bruising or minor bleeding if I don’t protect my hands when working in the yard or on the car. I don’t like taking any medication for the long term, however, I don’t want a stroke either.
I have drastically changed my lifestyle to a modified whole food plant based diet and have lost 20 pounds and exercise (mild to moderate) two to three times weekly. It seems to me that many of the symptoms people have mentioned on this page are clearly symptoms of either heart failure and/or afib. Few mentioned why they are taking Eliquis or what they experienced from their cardiac diagnosis before being placed on Eliquis.
Dee
SLC, UT
Some three years ago, when I was age 59, I had an ultrasound that showed a long DVT in my right leg. I complained of trouble breathing soon after and the resultant scan with dye showed 4 clots in my lungs. After a few days in the hospital taking heparin and then lovenox I was released and put on coumadin. Keeping that balanced was difficult after 6 months so I was put on Xarelto. I stayed on that for a year, then I had a bad cold with cough. I felt like every capillary were about to burst when I’d cough. Very scary! I was put back on coumadin for a few months but could not find a balance. So enter Eliquis. I have been taking Eliquis 5mg 2X daily for six months now and am thrilled by the difference it has made in my life. I know it is similar to Xarelto in the way it prevents clots but I feel it is superior and more refined to exactly what’s best for me. I should be on TV commercials because I strongly believe it is the best for what it is designed to do. The posts I’ve read so far do not make sense to me. I do feel unenergetic and significant brain fog at times with peoples names etc. but I would never say it was Eliquis that was the cause. There are too many other things at age 63 that could be causing those symptoms. More than likely those symptoms are the consequence of poor glucose control from diabetes.
Jim
Las Cruces NM
More than 20 years ago I was diagnosed with Afib. Through all those years I have had five or more cardioguys. They all tried to control the condition with beta blockers. Without fail all the drugs tried, all caused goofy side effects, mostly turned me into a zombie.Included were couldn’t focus, no energy, confused and some caused mega pains. So bad that I went to emergency rooms , never got a diagnosis. I studied side effects and found pain as one of the more subtle conditions. Needless to say the pains stopped when the drug was discontinued
Twenty or so years go by and a number of cardioguys testing and prescribing various drugs that didn’t work all the while. I continue to have afib episodes.none of these cardioguys prescribed blood thinners. They would ask then move on. Latest , my primary care doc figured out that my 100 plus heartbeat was too high and prescribed verapamil. Moving on I went th the last cardioguy who continued the verapamil, even though I told him the stuff was causing severe shortness of breath. He blew that off and insisted that I add eloquis. 5 mg once daily. I started a short descent into hell and all he did was insist on changing dosage and frequency of the verapamil. I finally called a halt and stopped the verapamil. Couldn’t breafh, literally gasping for breath.
Now I have started with an electrophysiologist. He claims to cure the afib with either cardiac ablation or a pacemaker.
All that said I am still taking Eliquis. Can’t sleep because of severe pain in shoulders neck and back. I took my last dose of eloquis this morning and began wondering how I managed th stay alive all those years without eloquis?
Shelly
Denver
To Donna from Michigan – how did that go with the electrophysiologist?
Donna
Michigan
I am a 48 year old female with myalgic encephalomyelitis, hemiplegic/basilar migraines, and postural osteostatic tachycardia among other things. I was placed on Eliquis after having a procedure to remove a large blood clot due to a picc line. My neuro has tried me on multiple drugs and supplements and I was just getting worse. My POTS was causing me to be bedridden as well.
After a week of being on Eliquis, I noticed my HM had started to subside. I started having more energy. After being on 2.5 mg 2x/day my Dr. looked at my blood under a microscope and showed me on her monitor where my blood was still having fibrons and micro clots. She upped my dose to 5mg 2/day.
I was able to get dressed, then get a shower and get dressed. Then added in leaving the house. I went to my three month checkup for the clot and my Dr. lowered my dose back to 2.5 mg 2x/day and the migraines and fatigue came back.
We decided to put me back on 5 mg 2x/day. I am now 6 months post-procedure. I have not had any migraines, shortness of breath, syncope episodes, arm or leg weakness, like I had before the Eliquis.
I continue to improve and have started working one day a week. It has been several years since that was possible. I don’t know the mechanism, but I believe the Eliquis has prevented the hemiplegic migraines and improved my ME/POTS symptoms.
Cryss
Tennessee
I’m 56 years old. I have DVT which causes pulmonary embolism. I had been taking coumadin for 3 years before I was switched to Eliquis in October of 2016. I’ve experienced pain in my shoulders so bad I couldn’t lift my arms and been awakened from sleep due to leg and foot pain. My carpal tunnel has been exacerbated and I have to wear a brace. My hair is so thin at the top of my head I can see my scalp, and today I cried because a big chunk of my hair came out in my hands as I was doing my hair. As a woman, my hair is important to me. Had I known of this side effect, I would not have accepted taking Eliquis. Trading off being able to eat dark green veggies and having my blood tested or being able to eat what I want and no needles but loosing my hair, I’ll take the needles and dietary restrictions. I’m so upset by all this.
Mary
Newark, Calif.
I started Eliquis in March, 2016. Around the beginning of April I started getting heavy phylum, hoarseness, throat clearing and GERD. I have never had any of these problems before. Also I have been loosing hair at a fast rate. Almost going bald on one side of my head. Had a gastroenterologist check me for GERD. Said my esophagus is fine. I know Eliquis has started these problems. I need to convince my cardiologist. Will see him in a week as I am scheduled for knee replacement in February.
LYNDA
CHARLOTTE, NC
Started Eliquis November, 2016 because could not regulate INR. Approximately 3 weeks into the drug noticed some extra hair loss but did not think any further. Now February, 2017 my hair is becoming alarmingly thin. My energy level is not the greatest it should be at 68. Try to stay active (AKA from cancer 2004 = amputee) but unable to wear prosthesis. Feel totally HORRIBLE in the mornings till mid-day. Have to force self etc. Ready to go back to Warfin & deal with INR checks.
Lucille
NC
I am 81 yrs old in basic good health; had sudden rapid heart rate lasting three days before Cardiologist dx at fibulation and rx eloquis & metatropal.
Heart rate became normal and not procedures nec. However, immediately I began spasms of dry coughing and unable to even talk. The spasms continued and soon I was unable to sleep in bed; had to sit up in chair. My Primary Dr. after much testing, x-ray, blood wrk etc., concluded it was from the heart med or eloquis. BUT, insisted I continue or switch to Coumadin. MY CONCLUSION is different.
Why can I not take all of the natural blood thinners (list found on line)and stop taking any rx for same? I know MD’s cannot tell you that (fear of law suit) or they simply don’t know. I cannot find out how to stop Eloquis slowing and gradual and take naturals. Perhaps taking it once a day stead of twice (5mg) while starting daily regimen of natural.
Cayenne pepper;vit e;ginger;pineapple ;aspirin;mi so;turmeric; omega 3;ginko;drinking more water etc. Would appreciate comments.
Brian
I am a male, age 83 with a family history of massive heart attacks between 77-79 years of age. (Males only). Diagnosed with Afib. Given Sotalol (beta-blocker) and Eliquis. Had to change Sotalal, because of having Glaucoma at the time.
The day that I stopped both drugs was the best day for a long time. I felt ‘normal,’ which for me is up there most of the time. Now on Amiodarone and Eliquis. Back to crap feeling. Have read most of references to side effects. I have a good many.
What is the solution? Feel like chucking the lot and taking my chances! C’est la Vie.
Greg K.
ID
Been on Eliquis for 6 months. I notice the same side effects as everybody who wrote in: stiff neck, back pain, badly aching joints (hips and shoulders). In the morning when getting up I double over and tire very quickly.
So WHY are all these people having the SAME PROBLEMS ?? When Eliquis went through trials these symptoms must have shown up, don’t you think? Did they use older folks or just any one who walked in the door ??? Now Eliquis is $175 /$119 (insurance pays the $119 ) per MONTH. That’s crazy when older folks are on a fixed income. It costs an arm and a leg!!!
I am checking into natural blood thinners, Omega 3 fish oil, and aspirin. Will post about how it works .
Joan
Indianapolis
I have had severe hair loss since going on Eliquis, as well as swallowing restriction, rapid heart beat, bladder retention problems and fatigue. They don’t list hair loss on their inserts which they should in fairness to their patients.
Nina
Las Vegas
I am a woman of 75 years old. When I was 28 years old, I had thrombophlebitis after birth of a child. I was given heparin for a few months, after that nothing for almost 40 years!!! I got older, and last summer I got a blood clot in my ankle because of forcing my body going to GYM. So, my doctor gave me Lovenox for 2 months. After that he gave me Eliquis, saying that my body doesn’t want to receive anymore Coumadin. Almost immediately I felt my body getting ill: joint pain, dizziness, fatigue, nausea. So, I asked the doctor to change me to Coumadin. He gave me Lovenox again for 2 months. I have returned to another doctor telling him that I want Coumadin. He gave me the same thing: ELIQUIS!
I have been on Eliquis for 20 days now! How do I feel? Miserable!!! I have continued headaches (I have never have headaches before), all-joint pain and back pain. I sleep only with my face up because I can’t sleep on sides anymore because the pain is huge. I cry. My legs are weak, and I don’t want to break them so I’m walking with a cane!!!
So, today I’l call the doctor’s office to get an appt right the way, because I can’t go up on the 14 stairs to go to bed. I just hold the rail of the stairs and walk slowly step by step with huge pain and tears in my eyes. My body was very healthy before of taking Eliquis. I was jogging almost everyday. Now I walk as a woman of 90 years old. That’s stupid.
To Guy: Do what you have to do. Don’t wait!
Marion
Alabama
I have enough been taking Eliquis since 12/15. 65 yr old female. Having severe hair loss. Very self conscious. Hair is so thin can see my scalp. Wondering if other blood thinners cause similar problems. I did take Warfarin for four years, however after ablation doctor put me on Eliquis. I know there is something in eliquis and one of the other newer blood thinners that causes hair loss but I can’t find the information any more. Can anyone help. Doc said I could but I don’t want to take amother drug like eliquis.
Pamage
Cheshire
I have been put on Apixaban in November this year taken off aspirin which I was happy on. I ache all over not sleeping and upset toilet motions I am seeing my consultant on Tuesday so will be telling him how not well I feel since taking this drug. I am feeling really down.
Lizanne
California
I have been taking Eliquis for 3 months 5mg twice daily for DVT. The first two months I had trembling that subsided and now every joint in my body is stiff and painful when none were before plus my heart rate is rapid. I can hear it in my head like a base drum. The only Change is adding eliquis to my daily routine.
Heather
Essex
I am a 34 year old female and I started taking Apixaban at the start of October this year due to blood clots in and around my lungs because of the combined contraceptive pill. I am also type 1 diabetic and have an under active thyroid gland so I am already used to taking tablets and injections. The only problem I’m having with Apixaban at the moment is majorly bad period bleeding loads accompanied by headaches and very emotional crying at the slightest things. I can’t deal with this every month so I will be speaking to a doctor about it.
Gertrude M
fLORIDA USA
My heart Dr put me on Eliquis, I have two leaking valves in my heart. I got all the serious side effects listed, then started having black stools, heart dr said “no negotiation” and refused to take me off of it. My back broke and when hospital did a CT scan they found something in bladder. It turned out to be cancer, bleeding in GI track continued cancer removed, but severe constipation with the hard black stools, finally got a colonscopy and from straining now have diverticulosis, had several pre cancer polyps removed. Refused to go back on eliquis and went back to aspirin. Feeling a tad better, but digestive tract still messed up had to have blood transfusions and my blood sodium is low. This crap almost killed me and now have to keep getting checked for cancer reoccurring.
Jim
Boise,id
This is an interesting topic. I went on Apixiban in Sept, 2016 after suffering a pulmonary thrombosis while in the mountains in Montana. I have been doing great except for continual neck stiffness and pain. I have, however, experienced a loss of hearing and have had, for the past three weeks, an ear infection that seemed to have cleared up but has now recurred.
I have not had an ear infection since I was 15 and am now 76, so I can’t help but wonder of it is somehow related to the medication. Any thoughts on this? My blood pressure has dropped 20 points, which for me is a good thing.
avis
shrewsbury, ma
i was on warfarin for about a year and a half and automaticaly had major joint pain, not clear head, could not think, could not get to paint a to b. My legs felt so stiff in the morning that i could not walk and was in horrible pain, back pain so bad i could not get comfortable. Told doctors about it and they said it was not the meds. Came off warfarin for 9 days and felt more energy and felt like a real person again. Now was put on eliquis now having stuffy head, eye pain, can’t sleep, leg and back pain again. dizziness.
Have only take it for one day so far, will try again today and if i still have issues will have to let doctor know. I am chemically sensative to meds and i feel like a guinea pig. Spending all this money and getting nowhere.
Rosy
3222 vic
I’m a active 74 year old female who after a DVT in my leg went on to warfarin for 12 months, under a haematologist was put onto Eliquis and left for 2 months till next appointment. The worst 2 months of my life. I tried to contact the doctor but couldn’t, so tried to wait till appointment to see if my body would get used to it.
Severe pain in every joint, especially in the morning, chest and back pain continually, headache everyday, blurred vision, exhausted and weak, caughing up phlemb, not able to leave the house. At the 2 month appointment he replied he had around 100 patients on this drug and had never had a reaction like this, and sent me for a CT scan of my chest but result was Ok. I begged to be taken off Elequis and was put on Aspirin at my request. The first day off it, almost back to normal, but still a sore stomach and a little nausea but I’m able to leave the house everyday, energy back to normal, Christmas shopping, Ealing the dog along the beach everyday and only 5 days after stopping this terrible drug. I believe this drug Eliquis to be poison to some people and I am pleased to see there are many others with similar problems. If you have these problems, tell your doctor.
MAG
NY
Was placed on Eliquis for AFIB, and within a month I was in severe pain in hips, neck, and every joint in my body. My arthritis was out of control. I also had hematuria and a small vaginal bleed. I had a cough for about an hour after taking the medication and frequent migraine headaches. My sleep was constantly interrupted.
After a discussion with my cardiologist, he reluctantly agreed to take me off Eliquis for 3 months. He disagreed that my problems were related to the drug. He was very surprised when I told him all adverse symptons were gone 7 days after stopping the med. This is a nasty medication.
I am now on Coumadin, doing the blood test bimonthly, and watching my diet.
Ann
Maryland
Thanks for your post. I was put on Eliquis Dec 2, 2016. It had the exact same affect on me. I took myself off of it 4 days ago, and feel better already. I have a Dr appointment on Monday. No more of this kind of drug for me.
Gill
Essex
I have been taking apixaban for a few months now and am finding I seem to have a problem at night in particular.
I take my tablets before I go to bed and my throats is now so sore and full of mucus that makes me trip as I try to breathe until I feel sick. I don’t know if it’s the tablet or something else but it’s getting worse every day.
I thought I may have an allergic reaction to the apixaban and wondered if anyone else had the same problem? Gill
ron
north carolina
I am 53 black male with a second episode of dvt which no one can explain why. This time minor clots but I caught it early. Well they put me on Eliquis and in month 6 into 7 I started having cramps in my neck and upper back….wake up starving..irregular heartbeat..muscle twitches…..I concluded my potassium was getting high….I stopped med for two days (my choice) and my symptoms cleared up almost entirely. I started taking a natural enzyme for blood and I can’t say here….but just do some google and its out there. I fear over the next few years there will be more problems. My body is too synergistic to mess with one thing and think it doesn’t affect other functions.
Manny
New jersey
Hi. My name is Manny and I have been taken Eliquis for 6 months. All I can say seems Eliquis like poison in the blood. Pain in my neck all over with Weakness especially in the mornings. I also have back pain, nauseau, chest discomfort and mild pain, and ear pain sometimes. I also have some difficult swallowing when chest discomfort. I stopped for a while because of my colonoscopy and I had 10 days excellent without any side effects. After the colonoscopy I took Eliquis and even when my hematology gave me the dose down to 2.5 ml twice a day and I still had symptoms but a little less.
Thomas P
Auburndale, Florida
Since October 2016, I have been taking Eliquis twice a day for A-fib. It’s been a nightmare. Vision blur in my left eye only. Wake several times during night and toss and turn then suddenly asleep.
Get seriously tired during the day need to nap for 15 mins. Sudden sharp pains in my shoulder and goes away just as fast as it came on. I was told I need to get use to the new drug.
Kathy
Pa
Started Eliquis in August, since August to the end of September I have had six bouts of gout, 3 severe requiring prednisone to treat it. Also three less severe bouts in that time. I have not had gout in six years since changing my diet. I ache all over I am extremely weak, especially my knees. Loss of appetite, lost 24 pounds in the last two months, gout had a lot to do with that. Hurt so bad you don’t want to eat. I don’t walk a straight line, unsure on my feet. I just feel darn right lousy since starting this drug. I want my get up and go back.
Jana
Alabama
Hi! I am writing about my father, who was on pradaxa and started having weird health problems (me and my mother think the medicine is the culprit though doctors say otherwise). Then was switched to Eliquis and is still having those symptoms.
Nausea
Headaches
Blurred vision
dizziness
extreme fatigue
CONFUSION (he has been rushed to the hospital twice due to possible TIA)
high blood pressure
We feel so frustrated because we believe the medicine is the culprit. He has not felt well for a while because he had other issues (an infection undiagnosed and ended up septic and nearly died). Until the infection, he wasn’t in afib. We believe the infection threw him into afib. So now this afib medicine is needed. We believe these new symptoms are a whole other situation. This started about the same time he started pradaxa. Again, he was switched to Eliquis and is still having these symptoms. He went to a neurologist today who is beginning tests this week. Any thoughts or inputs I would appreciate it greatly!!
Theresa
Alabama
I AM A YOUNG 65 AND I started on Eliquis in June 2016…I have stiff neck muscle stiffness in the back of my neck and severy joint pain in my shoulcder and hips and also have sharp pains in the legs. I had an ablation in June and feel worse than ever since stated taking Eliquis.
Bunty
England
This is my 2nd post I’m now 6 months on apixiban and still feel shocking.cotton wool head anxiety chronic,panic attacks .terrified I’m going to have another stroke!!pins and needles and odd pains.im a nurse whitch I think does not help as I over think every issue.work as a cardiac nurse and gone back to work last week and I’m exhausted.wish I’d gone on warafin.
Laura
Brisbane Australia
My mother stopped Eliquis 2 years ago after being on this terrible drug for two years. She is still suffering the terrible side affects like swelling of ankles and legs, terrible tiredness, head aches just to mention a few. We thought the side affects would work their way out of her system but they haven’t. I have been on a drug that left me with side affects that never left me 8 years later. I happened to research the drug too late, it is unbelievable that this drug is not banned world wide.
Kim
Texas
I am 52, female. Developed a blood clot in my leg, (flights & birth control the culprits they said) and it went to both lungs and I ended up with a PE. I was in the hospital for 4 days. I started out on Coumadin and then they moved me to Eliquis. I am taking 5mg twice a day. It has been 30 days and I am doing great. The only possible problem might be hair loss however I was having this problem prior to this but I think it may be getting worse, have to wait and see. But as far as everything else I feel fine. Will be checking blood work again in a couple of weeks. Here’s hoping.
Faith
mASSACHUSETTS
I am 79 yrs old. Female. On July 16, 2016 I suffered a mild stroke. I had no paralysis or visual problems. Doctors put me on Eliquis, metropolol. Atrovastation and sent me home the next day. I have never felt so sick in my life. Anxiety, depression,Nausea, fatigue, night mares, huliciations . Numbness and tingling in one of both arms. 9 trips tp the ER, my cardiologist. Primary care doctor. Not one would admit it could be from the medication. At my request my primary ordered a blood test and took me off of the atrovastation. Help a little. A doctor in the Er on ,y 9th trip finally said it might be the generic medication and suggested Lopressor Name brand only. Seemed to get a little better.
I have had blood in my urine from the Eliquis, cardiologist had me take 2.5 2 xa day for two days and then told me to go back on 5.0 2x day. I am scared out of my mind.
It seems these doctors do not know enough about the side effects of these medications, are too busy, or they just don’t care.
Cathy
After starting Eliquis, I have had heart palpations. Feels like my heart is coming through my chest and back. I have had a headache as well. Used to take 325 mg of aspirin.
Mike
Kingston, Canada
I am VERY sad for the people above who clearly have had Eliquis problems. I must be one of the lucky ones. Have had AF for years (used to do the baby aspirin thing for it) but, after very sudden onset of Congestive Heart Failure 2 years ago was gradually titrated onto ACE inhibitor, Beta Blocker and Eliquis.
So far so good – cannot say I now have the energy of a few years back, but I am 76 years old after all. Living an active life in a house with 6 half-stories, so plenty of exercise! Having a good BMI and a wife who understands diet, food and likes cooking help massively, I suspect. My main objection to Warfarin was the number of foods that are good for one that would be removed from my diet, let alone the monitoring requirement.
I wish you all safe health and would be happy to be contacted if wanted, if feasible.
Sue
Mass
I have been on Eliquis since this April after I had my second AF episode. I had shortness breathiness and light headed feel every day for about two months. I started to notice my hair keep falling. and my heart beat lower than 60/minute, I had to do excise to increase my beat. I called my doctor explain my symptoms, they disagree with me. now my liver function is elevated from my annual physical lab results.. I am going to see my cardiologist to change Eliquis to one of oldest blood thinner medicine. I am worried about the Eliquis would to harm to my liver.
I worried every day since I am on Eliquis.
judi
Dallas
I had a fall in May and broke 3 ribs, result was total inactivity for a week when I developed dvt behind my left knee and pe in both lungs. I was hospitalized for a week and given heparin and warfarin for a week until my blood viscosity was correct.My swollen let and my lungs cleared up by the end of the week but my viscosity was fluctuating. I am in my 6th month on warfarin and I noticed at 4 months that my hair was coming out quite heavily in the shower and when styling. As the warfarin is the only unusual drug I am taking I can only say that I believe it is causing the loss. My doctor was skeptical, but I have since read much on the Web about hair loss and the blood thinners. nevertheless, I think I will stick to warfarin as it seems to have the least bad side effects.
Anna Jordan
London
Hello. I have been taking Rivaroxaban for just over a year as I have a protein deficiency and have had repeated DVT exposure. Taking this drug has been the worst experience of my life. Within 6 months I had lost 60 percent of my hair’s density. Now just over a year into treatment I hardly have any hair left at all. Any hair that I do have I’m scared to wash, dry, brush (forget about applying heat or colour to it. I’m convinced it would just fall out). I’ve now been forced into the situation of trying to find a wig to hide the hideousness of my hair loss. I’m so miserable about this that I’ve taken the very serious step of discontinuing my treatment.
I have made a detailed search online and have found research done in 2016 detailing the links between the newer blood thinners and hair loss, and in particular, the drug I have been taking. My doctor has been very unsympathetic and merely wants me to continue my treatment, citing that my long term care is more important than hair, but what he is failing to see is that due to the significant hair loss I have become a recluse; I have not gone out in 6 months, save just to go to local shops. For me, my life has been so severely impacted by this severe hair loss that I have decided that I need to cease treatment for the sake of my own sanity. Whilst I cannot recommend this course of action to others, I did want to raise my valid concerns over the link between blood thinners and hair loss, a link that is often casually dismissed by GPs.
Anne
Potsdam, NY
My husband has been on eliquis for over a year. Last month he fell asleep at the wheel! After totalling the car he went to the E.R. for 3 hours of tests and his Blood pressure, which is usually on the low side anyway, was VERY low, of concern.
He had also taken an E.D. drug before starting out with the car, and that can also lead to low blood pressure! He won’t be taking that again: so long intimacy! A lot of bug bites have resulted in little hemorhages and scabs in his legs also. I hate that the doctors put him on eliquis, and I think their motives are convenience and pressure from slick drug salesmen.
Claudia
Melbourne Australia
I have been on Xeralto for the past few months and am now having terrible bladder problems. I have pain and urgency constantly and it is impossible to get a good nights sleep. The doctors wont believe my opinion that it is Xeralto that is causing this and insist on giving me antibiotics ( I have been on 4 courses so far with no improvement) in spite of the fact that urine tests are normal. I am a person who reacts badly to drugs. Eliquis made my hiatus hernia play up badly and negated the effect of Nexium and again it took weeks of unnecessary misery before doctots would believe me. Has anyone got any helpful advice I am in misery.
SKIPPER
inomiiiin
I have been on Eliquis for two months. I feel awful and have had two trips to emergency room. It was for all the symptoms the people here are complaining about. The doctor set an appointment for 11/26, and calls to him are fruitless. I want OFF this med but I am terrified to stop. I have lost tons of hair. I can’t remember simple stuff, and of course the dizziness, noise in my head, sleeplessness, and tiredness. Well, now what do i do. This is just to say what I feel but where do I get answers????
Asli
New Jersey
I feel exactly the same way. I have been on Eliquis for 10 days and I have constant headaches that affects my ability to concentrate and work. Unusually heavy period scared me as well. I called the Dr and he said I can not stop it, it is dangerous. Now don’t know what to do , live with this headache??? I am thinking to take aspirin daily but I am so scared of getting a stroke. Anybody switching to aspirin from Eliquis and doing fine?
Betty
Please do not switch to aspirin. My brother was switched by his doctor to aspirin and had a stroke. It was mild and he has recovered. I am on eliquis and one thing I have discovered is all the blood thinners are dangerous, with bad side effects. I have headaches, shortness of breath, dizziness, loss of hair, heart palpitations, numbness in feet, and probably something’s I can not remember right now. None of these things except the hair loss are every day occurrences. Strokes and hear attacks are the bad consequences of not taking them! Both my parents had strokes and that is why I have learned to live with side effects.
Judy
Indiana
I am very concerned that my onset of severe hair loss may be related to Eliquis…I have been taling it for about a year anad a half. After 6 mos of treatment (June 2015-Jan 2016 I began noticing my hair was falling out alarmingly. I have been on a mission to find underlying cause so I will be investigating each drug I take. Eliquis was the newest drug I had been prescribed.
Latta
B.C.
I was on xarelto and gained 8. Pounds in 50 days. Now I’m on eliquis steadily while dieting. Does anyone know how this happens and how to stop it?
laura
Arkansas
I have been on Xarelto for 11 months and have gained 8 hard pounds. My cardiologist just changed me to Eliquis to see if this would help the weight gain. I do have balance problems, but she waived that off and told me to see primary care doctor for possible thyroid problem but it has been checked and I don’t think that the problem.
Has anyone changed from Xarelto to Eliquis and had better results with side effects – especially the weight gain?
Drew
Boston, MA
My mother at a 74 was being treated for minor Afib condition; she fainted twice but it was later attributed to dehydration due to alcohol consumption, and just lack of adequate water intake daily.
She was put on Eliquis for 40 days and suffered severe fainting spells, unusual low blood pressure symptoms, and was unable to remain standing for longer than 2 minutes – she has been in the hospital for the past 9 days. I asked them to take her off Eliquis since a major side effect is fainting and low blood pressure…they agreed and now we are monitoring to see if she recovers.
Freda
Arkansas
I will be 62 this coming Sunday, and I was hospitalized last year in August with shortness of breath and I couldn’t keep my eyes open there for about 12 hrs. I had one blood clot in my left lung and another one in my right upper thigh of my right leg.
They put me on Eliquis, and ever since then I have had a lot of weight gain, short term memory loss and fatigue. I have always been fairly active before this and now I just don’t have any energy or nothing. I’m depressed most of the time, and I’m afraid if I stop this, I will have more blood clots.
Bobbi
MIchigan
I started Eliquis about three months ago. I went to emergency room because I had problems trying to swallow. They said I had afib, irregular heart beat with flutter. Immediately after 3 days on Eliquis, I itched so bad I took showers at 3am and at least 3-4 times per day.
Also, pain in back and side. The dr said it was my nerves. Now my legs are weak and I’m gaining 3-4 pounds per week. Also, my speech is impaired and I have memory problems. Now, I feel a lump in my throat and have problems when I swallow again. Rash went away. I’m tired and will call doc tomorrow.
The cardiologist shocked me twice, which did not correct the AF with flutter. Primary dr gave me anxiety pills. I don’t use often. I’m too tired to do walk exercises or Anything! Help.
Eddie
Kentucky
I’m a 29 year-old healthy male and I work in the sawmill 8 hours per day. About a month ago I was hospitalized with a DVT in my right leg. The doctors think it maybe a clotting disorder but the tests have not come back yet. They put me on Eliquis 5 mg tablets and, to be absolutely honest, they seem to be working. Within two week the pain was gone. The swelling is all but gone. I’ve had no unusual bruising/bleeding, no dizziness or confusion, no nothing other than maybe some mild nausea. I’ve been reading all of the horror stories concerning Eliquis and other new blood thinner and truthfully I am a bit apprehensive. But so far so good. Hopefully it stays that way.
Cindy
NY
I switched in May from Coumadin to Eliquis. I was sick starting 3 weeks into taking it. Had so many side effects. High BP when I never did before. Balance issues, severe swelling in both legs, gained 15 pounds and meals did not change. Severe shortness of breath. I could go on and on.
I’m going back on Coumadin. Was on it for 2 years. Have problems with small views, which is why I changed. These side effects are not tolerable and I’m not sure how they get on the market.
Connie
Trevose
I have hereditary protein c diffency. I have had 29 blood clots so far, a pulmonary embolism, a major bleed to my stomach.
I was on coumadin awhile back tried Xarelto, allergic to that. Then I was on lovenox for about ten years.
About four weeks ago the Dr in hospital decided to put me on eliquis. Well I was having a lot of pain in legs and back before this drug but now I was using walker. But I woke up in middle of night with leg pain so bad I’m crying for help from my 80 year old parents which I’m fifty years old. I used a walker before this but now I can’t even get to bathroom without it or anywhere I’m afraid my body is going to collassped cause of the pain I’m in. My legs can’t take it; I can’t take walks around block no more.
I’m having severe swelling in both legs and feet I wish I could show you pictures you would not believe the swelling going on .I’m in the worst pain ever more than before I’m up early like 2:30 every morning crying. I get 1-4 hours sleep a night cause of this medicine ever since I’ve been taking it .
I don’t want to take it either. I’m crying now writing this at 230 in morning .nothing good is going to come from this new medicine, I know it. I’m asking drs to put me back on lovenox even if its two injections a day its better than this with my feet swollen so bad and legs I can’t get my shoes on either .hopefully something or someone can come up with something much better this drug is nothing but problems.thank you if you read this .connie
Jean
Florida
No bleeding yet. Only on eliquis for three weeks. Since I started eliquis my blood pressure is extremely low, always tired, always in bed and severe weakness. My Dr. put me on it because I am prone to nose bleeds. It is good for one thing and bad for another. I will speak to my cardiologist today.
Myron
North Carolina
I have been taken Eliquis for about 40 days. My hemoglobin has dropped, my liver enzymes have increase. Should I continue to take this drug?
erika
n.y
I am on Eliquis my blood pressure increased.
Gerri
USA
I have been on eliquis for two weeks and I am having problems with my balance. I am either wobbling, stumbling, or bumping into things. I didn’t see this listed as a side effect but I am just wondering if it could be.
Jay
Australia
Doctors should be held accountable for this drug. I have had fatigue, joint pain, increased AF, weight gain, dizziness, leg pain and cognitive disfunction. And they say I can’t stop it as it causes clots and strokes on rebound effect. Absolutely outrageous that the doctor would prescribe this terrible drug.
JOAN
Indianapolis
Since taking Eliquis I have had a speeded up heart rate, more breathless feelings, fatigue, and severe hair loss.
Urination seems more difficult, and I feel overall weaker. I would like a different drug.
jeff
ohio
memory loss
Debbie
LA
My husband was released from the hospital after being admitted 4 days previously. He had to go to the emergency room for horrible symptoms. Severe breathlessness upon any exertion, even just rising from chair. Went from walking to a walker and a wheelchair in 4 weeks.
His cardiologist changed him from well tolerated and controlled warfarin to Eliquis for long time a fib. The breathlessness began immediately along with much joint pain, personality changes, weakness, stomach pain, insomnia and in the last two weeks he had urinary incontinence whenever he tried to catch his breath. He noticed his stools were getting darker. Saw his cardiologist who denied any of these symptoms were caused by Eliquis and he ordered extensive heart tests and bloodwork which showed he was a little anemic. 1 1/2 weeks after the bloodwork in the er showed his blood count had dropped and was down to 24. Upon admittance, he was given two pints of blood, oxygen and fluids. His blood count went up to 28. Had a gastric endoscopy proving he had no bleeding ulcer. Blood count dropped to 24 again. Was administered another two pints of blood and a colonoscopy showed bleeding from a blood vessel in his colon. The dr cauterized it. His blood count has stayed steady at 30 so was discharged. Needs follow up blood checks and had been changed back to warfarin. Eliquis, pradaxa and xeralto are very very dangerous.
Please reconsider if your dr. recommends them for convenience’ sake. At least with warfarin one can follow their clotting factors. Not so with these others.
Gail
Australia.
I am 67 years old and had afib 10 months ago. Put on Apixaban 5mg twice daily. Total exhaustion, joint pain, weight up 9 kg, severe anxiety and depression. Cardiologists wont listen. Aneamia now too. Had knee injury last week with bleeding into joint after a fall. Apixaban stopped for “3 weeks” by emergency doctors in hospital. Doubt I will go back on it. Will try mini asprin or warfarin.
Jolynne
Texas
My 72 year old Dad was started on Eloquis 2x a day by his Cardiologist for Afib and now a week later he is very pale, and has no energy whatsoever. I am really concerned about him, and that this medication may not be beneficial for him. Help!! It is Sunday afternoon, and Doctor isn’t in office.
Sheila
Kent, UK
I have been on Eliquis for 1 month since having AF., and I am now completely covered in hives which is burning and itching so much I feel as if I am going mad. The Doctor put me on a strong antihistamine, which has done nothing. He stopped another tablet I was on, which he said caused the hives, but I am sure it is the Eliquis. I have difficulty in eating and drinking, and get severe pains in my chest and back , and I feel exhausted.
I am in absolute agony, and look as if I have a dreadful disease, so have to stay in, wrapped in cold wet towels to try and soothe the itching and burning. I am afraid to stop the drug as I have already had a heart attack and dvt some years ago. I was shocked to read all these comments today, and hope to see my Doctor on Monday, and ask him to change my blood thinner.
Janelle
Michigan
I’ve been taking Eliquis for 3 weeks without any side effects. I’m 35 and was diagnosed with PE. I was worried about starting a blood thinner knowing all of the possible side effects but, so far so good!
Devy
TX
My hematology Doctor along with my vascular Doctor made the suggestion for me to stop taking warfarin (Coumadin) and start me on Xarelto because there is no need for frequent blood tests and also because it is supposed to come out of your system faster in case of an emergency or any procedure.
So, I start taking it and also begin to notice a LOT of hair loss and joint pain. Also, I felt sofocating and sweeting at night. Went back to my Hematologist and he switched it again for Eliquis. I’m still losing a lot of hair and my joints still hurting a lot!
christo
Mississippi
so basically what happened was, i stopped using Eliquis altogether after a month from a PE/DVT hospitalization, simply because i forgot to take it. I ended up with a 104 fever, massive migraine (which i do not normally have), and cold sweats for about 10 hours. I had no other known problems until that time. When I was able to I took an Eliquis 5mg. and my normal Inderal for blood pressure ,which somewhat made me feel better….However, I needed a way to get rid of fever and headache, so i took ibuprofen…..which also lead to me leaking bloodage into my urine confirmed by my nurse practioner the next day.. Anyway, I am just confused on this particular medicine because i know the withdrawals are far more dangerous and worse than heroin, but i also know the benefit is life-giving even if it feels like a ghost.
Jacqueline
Runcorn cheshire
I had a tkr and developed a dvt in my calf . So I was put on apixaban and iron supplements as my iron was dangerously low. I have felt terrible taking apixaban, headaches fatigue stomach bloated weight loss and generally feeling low. I am due to finish course in 10 days and cannot wait to get back to my fit healthy old self again. I am 50 years old.
Herm
S.E. Missouri
My husband took Eliquis for 4 pills. After 3rd pill started severe joint pain, dizzy and fatigue. 4 pill started bleeding in the stool. This all was over a weekend, so couldn’t get reply from the Dr. who prescribed this. Finally Monday morning got our regular M.D. he said come in. Blood was sent to lab, his iron count was way low and a couple of other things. Still nothing from Dr. who prescribed Eliquis. Then his hands swelled in joints to point couldn’t use them, plus pain was severe enough he cried. Not something a big 6′ 4 300 hundred hard worker does. This is Thurs. and things are the same. Feeding him high iron foods and staying away from fat’s and fried foods per M.D. instructions. Still bleeding, dizzy and swelled joints M.D. says make take up to a month to overcome. Please do not take Eliquis without knowing everything and your Dr. knowing you.
LWD
Maryland
My hematologist prescribed Eliquis in April 2016, because CT scans revealed bilaterally lower lung clots and a DVT in my left thigh. Since taking the drug, I have experienced joint and muscular pain for several weeks. Currently, my left eye is blurring and teary. I am counting the days before I complete my dose in October. The hematologist implied that my symptoms were nerve-related.
I wish to thank you for reading my comments.
Sandra
Utah
I have been on eliquis for almost 2 weeks, following a cardiac ablation. At first I thought the fatigue was from the ablation, but after 3 days it was difficult to swallow and my stomach ached. I took pepto bismal-what I had on hand, and the stomach pain improved. I am still exhausted, have insomnia and a dry cough. I usually swim almost a mile a day and walk an hour. I have twice managed to walk a couple of blocks while hanging on to my husband. I get light headed standing up, and my appetite has drastically decreased-the only positive. I saw a gp a week ago and he said he has heard of these problems on eliquis. I have had 2 optical migraines in the last week. I had my oxygen levels taken at the gp’s and it was ok, 97. So my question is, what is the mechanism that is causing the extreme fatigue? I think I only have to take the eliquis for 30 days. I certainly couldn’t take it for more. This is miserable. I also have problems breathing. And muscle cramps. I have been on warfarin before and swore I would never go on it again, but it isn’t as hard to live with as this. Hope the drug manufacturer pays attention to this.
Steve
Am getting off eliquis today. Have ileostomy and gas is causing problems . Can not use any diary due to lactose causing gas and stomach pain. Oncologist can’t figure out why my small intestine won’t work due to gas blocking it. Just read that eliquis is lactose. Hope this solves the problem due to eliquis. They are wanting to take out the colon. Major surgery.
Tom
CA
I was put on Eliquis 3 days ago after they found blood clots in my lungs. I went in for a C-T scan, next thing I know is that I am in an emergency room. Upon finding my bed, I devoured a port-o-subs. I have been on marijuana edibles for months and my appetite was very good. I have already lost about 25% of my normal weight, so I need to eat. I started the Eliquis and by the next morning, the thought of food was not appealing, at all. Even liquids were hard to swallow.
They let me out after one night. Guess if I didn’t go belly-up after 2 doses, I was good to go. Well, if I don’t get my ability to eat back, I will be good to go sooner. Loss of appetite. You know you should eat, you need to eat, but you just do not want it. So, have a call into oncologist. I am getting off Eliquis.
Patrice
USA
My father had an unprovoked DVT in the spring of 2016, and afterwards he was placed on Eliquis. (We thought since it would be for 6 months or less this was the safest short term answer – were we ever wrong). His symptoms included breathlessness, fatigue, severe depression, extreme anxiety, insomnia and probably much more that we don’t know about. These came to a head when he tried to harm himself. My father is a 79 year-old, previously very active man with faith as close to a mustard seed as I’ve seen, and this drug changed his whole personality! I know he would have never done anything like this nor had he before he started this medication. Now he is on other medications for BP, cholesterol and diabetes so it could be the combination. However, I doubt it as he was on these for years without this impact. (I personally don’t believe he needed the cholesterol med, but that’s my non-medical school opinion. But I’ve read too much about statins to be convinced).
He and my mother told the physician of the extreme anxiety 4 days before he attempted to harm himself and she, like the other physicians reported on this site, wouldn’t discontinue, but offered medication for the anxiety! My parents refused, and she then offered Xarelto (plenty of samples provided) and stated that he only needed to take it for 6 more weeks. My father read the side effects before he left and took the samples back and declined! She then personally found more Eliquis and gave him the samples that he was told earlier they didn’t have.
We have to take control of our own health and insist on our physicians listening to us or find someone who can. I know that, for me, holistic and natural homeopathic therapies are the only way to stay healthy, along with exercise and healthy diets, as I’m convinced these meds do more harm than good when taken long term, and I’m now convincing my parents to do the same.
Thank you for this site!
Barbara
45429
Why is eliquis making me exhausted? I cannot even cut flowers in my garden. Exhaust!!
Sue
Melbourne
I have been on Xarelto after two DVTs and protein C defiency. Very quickly I noticed anxiety, vagueness, blanking out (drove though a red light) and depression like symptoms. Within two days of stopping the drug I felt like I was a new person.
The psychological effects of this drug was quite severe for me. I also had weight gain due to compulsive eating and severe body aches. I am now trying Eliquis but am very scared of similar side effects. I am 46 and too young to be on this type of medication for life!
Spencer
Alberta
I’m 29 and have already been doing warfarin for a decade! Only considering moving from warfarin because of not being able to eat so healthy… But I agree – we’re both too young.
Nancy
Boston
I am your age, Sue. I had a DVT this past Feb. (another 13 years earlier during my second pregnancy) and am now on Coumadin (lifelong). I want to switch to Eliquis so I can lose the 20lbs I have gained and eat healthy again, but I am so scared I may be moving from the frying pan to the fire. Worried about side effects.
Betty
California
I am wondering if anyone else has had this side effect from Xarelto- serious GERD and developing ulcer. I started on Xarelto prior to a cardiac ablation, then have to continue on it (or a blood thinner) for 90 days after.
About 1 month into taking it, now after the surgery, I didn’t feel any heartburn or acid in my mouth yet had a consistent dry cough if trying to breathe deeply. Then after eating I got serious pain in my upper abdomen. This then got worse into after eating or drinking anything, crushing pain in my chest radiating into my upper back.
Calling the cardiologist’s office and the nurse reported no known such side effect with Xarelto! I had no prior symptoms of GERD/ulcer. Yesterday in my follow up with the Electrophysiologist, guess what, she says YES, she has seen this side effect a number of times with Xarelto! Yet it is NOT listed anywhere.
I have reported this to MedWatch, the government site and I feel the manufacturers of Xarelto are negligent in not mentioning the risk of a bleeding ulcer developing as a possible side effect. They only say “bleeding”- which is vague. I am now taking strong medication to treat the ulcer and being switched to another blood thinner.
Hualani
Hawaii
after surgeries this spring, I returned home with fairly significant DVT, which I was unaware of until completely unable to walk with one leg more than twice the size of the other. I have a complicated medical history with several other things going on. Scans showed clots in left groin, left leg, and I’d had violent coughing since surgeries. The hospital Rx’d either Xeralto@30mg/day Or Eliquis@30mg/day which ever I could obtain over a weekend in the 20K populous town. to decrease to 20mg/day at 30days. Fortunately The pharmacists had Xeralto more readily available than Eliquis (5mg only)., and Xeralto is lesser out of pocket. When your in your 60s your skin is already thin, so the Xeralto topical bleeding was an issue as it was somewhat hard to slow to the point of administering a plaster (Band Aid)without bleeding through it.
At the 3month mark, A vein specialist re scanned the legs to find clots still present enough to be life threatening. They decided to try Eliquis to see if it might be better for the topical bleeding. OMG what a mistake! Yes I have immediate family ColoRectal Cancer fatalities, and myself a C survivor(ovarian). I also have post traumatic chronic headaches and other issues. after the first week, my Pulse Ox was below 88%, and I nearly missed the emergency room and collapsed in the hospital, requiring an asthmatic type treatment. not only did Ionly recoverto Pulse Ox 93% but Ihad the WORST headache!(day 4 today)First 2 days were pain level 10 on 1 to 10, or worst ever, lifting head off the pillow was immediate vomits and shakes. these have been managed for some # of years, and not this issue on Xeralto. I immediately went back to Xeralto, and will NOT be on eliquis again. You can keep it.
Joy
Australia
This is a follow-up to a previous post. I have gotten steadily more debilitated since taking the NOAC’s. Firstly, Xarelto and now Eliquis. I am suffering extreme exhaustion, mental foginess, can sleep 15 hours straight or can’t sleep at all and am depressed. I have terrible gut problems and severe chest pain. My AF HAS ACTUALLY INCREASED!
I am still gaining weight, which for me makes my vagal AF worse. I ache all over and have gone from walking 8-10 kms a day to zilch. I have always prided myself on being able to live a pain-free and happy existence. These drugs have not been tested enough and Drs and Cardiologists hand them out as if they were lollies. One cannot stop taking them as they can have a rebound effects and cause a stroke. The people who approve these drugs should be ashamed of themselves.
THAKUR
JANSHEDPUR , INDIA .
I was diagnosed with A F [Arterial Fabarillation ] on the basis of INTEROGATION of my PACE MAKER in the month of March 2016 at one of the best hospitals my country- INDIA [ C M C VELLORE]. A CARDIO VERTION was conducted and APIXABAN was prescribed to avoid a stroke in the future.
After few days I noticed a few red patches on my hands and legs. Believing it to be a skin problem, I went to a skin specialist who gave me some ointment to apply, but even after six week there was no improvement. Then I reported the matter to my local cardiologist who stopped the APIXABAN. Later on I contacted C M C Vellore who confirmed the advice of local Cardiologist and told me to discontinue the medicine. Even after 4 months, those skin rashes are still there. My platelet count has also gone down.
My advice:
1) Do not take APIXABAN if some other blood thiner is available.
2) Do not take this medicine if your PLATELET COUNTS are on the lower side (like mine). Please note that I am not a DOCTOR.
Mary
I have suffered most of these symptoms on Eliquis, plus the veins in my forearms bulge until I remind myself of The Incredible Hulk! And the back sides of my legs hurt from my hips to my calves – feels like I’ve been beat with a rubber hose. The pain is debilitating and has greatly reduced my quality of life, but my cardiologist says it’s better than a stroke.
P
I hope that people in the US who have these adverse things happen also report it to the FDA.
P
I think Eliquis may have caused severe weakness. Also I think that is may have cause dementia symptoms to get worse. I think there needs to be much more testing done on how this medicine might affect someone neurologically. I also run into the comments from some doctors that it’s a blood thinner. I have explained these symptoms only got worse when this medicine was started and they don’t seem to understand.
Sue
My husband has Parkinson’s and I think Eliquis has probably caused his disease to progress rapidly. He was doing pretty good before starting this med. Since starting it (5mg twice daily) I have seen him physically and mentally decline quickly over the past 4 months. He went from walking to a wheelchair.
John
Wisconsin
I have been taking 5 mg Eliquis for a blood thinner due to AFIB. I have had no side affects, bruising or bleeding. Love it except for cost !!!! I hope I will be able to continue taking it for that reason. I have been on it for one month, starting my second month now. I also take 2.5 mg Metoprolol.
linda
Florida
I was put on Eliquis in January 5 mg ,like so many craving carbs but I was handling it until this July when I was working at a friends I got a pain and could not move. Had to call 911, pain was unbearable and ended up in the hospital for 3 days! Acute iliopsoas muscle hematoma…… Had a black thigh and now after 5 weeks I have nerve problems in thigh. I am off Eliquis and plan not to go back on it!
Concern
at work
I was put on Eliquis 5mg. twice a day 3 months ago. Before that, i was taking baby aspirin once every other day. i had atrial fibrillation twice with 6 month interval. My ekg and echo were normal. My ejection fraction was 67. I experienced weakness, fatique, headaches, painful legs and arms, gastritis and nausea. and low diastolic after a week of taking eliquis. I suggested to my doctor if it is possible to lower the dosage to 2.5 mg. twice a day but was told no due to possibility of stroke, because i had hypertension since i was 40 years old. I am taking valsartan 160/12.5 hct. and metoprolol 50 mg/day. I saw him last Friday and mentioned those symptoms but did not change anything, except, instead of seeing him every
3 months, i will see him once a year. I need a second opinion. Suggestion please. Thank you.
Grace
‘Concern’, I just saw your post and hopefully you have a new cardiologist by now. That would be my number one advice. I’m also on Eliquis for almost a month now, 5 mg./2 times a day. I’ve had all kinds of side effects – shortness of breath, headaches, random pains in legs, low blood pressure, and now (and most concerning) low diastolic blood pressure only. I googled ‘what does low diastolic pressure mean’ and what came back was ‘new onset heart failure’. From another site, I read that ‘heart failure, kidney problems and swallowing problems’ were side effects that weren’t listed for Eliquis. I need to find myself a new cardiologist and get off of this quick. If you happen to read this, please let me know what you ended up doing and how you’re doing. Thanks
buddah25
Australia
I was on Xarelto for around 3 years and was recently changed to Eliquis because of gut problems. I have aching legs and arms, really painful and tight chest, and severe reflux, aching legs, fuzzy head and extreme fatigue. I get dizzy and lightheaded. This drug has ruined my life.
I have put on 10 kgs and feel really depressed. My cardiologist gets annoyed when I try to talk about it and says “its just a blood thinner”.
Jean
Arizona
After being on Eliquis for only 3 days, the leg pains started. My knees and thigh pain is debilitating. I went off the medication for 3 days in order to have a cardiac cath procedure, and the leg and knee pains stopped. My physician tells me I need to be on a blood thinner because I have infrequent atrial fib and at 72 my risk for stroke is high. Moving my legs while sleeping some times wakes me up because of the knee pain. Any suggestions for a remedy short of just stopping the Eliquis?
Camilla galles
USA
This is the worst drug I have ever taken! The joint pains were so bad, that I had to take steroids to drive to the grocery store or Doctor apps. I could not walk at times, or move my arms enough to get home! It caused insomnia, fatigue, loss of appetite, and no will to live! I stopped taking it, against doctor’s advice, and all symptom’s went away in 2 weeks! Went back on warfarin! Don’t take this drug! I also had a bleeding event, from intestinal.
Robert Nastally
Texas
My husband, always very active at 88 had an EKG and it showed fibrillation. He had a stroke 4 years ago but recovered all but a drop foot. He’s doing therapy for that now. Cardioligist put him on Eliquis and now he can barely do anything even get up. He takes 2.5 once a day. This is no way to live
Mae
Rockville
Help! Since taking Eliquis, I’ve experienced joint and muscle pain and cramps, and severe gastritis. When I notified my hematologist, he said that my symptoms were probably nerve issues. Also, I am totally exhausted most of the time.
Please offer suggestion on what I should do for relief.
Thank you so much.
Herm
S. E. MO.
Would like to hear the answer if you get one. My husband to Eliquis for 4 times and has all plus some other problems. He has extreme bleeding in his stool. Is getting very weak. Have been feeding him foods with high iron contend is getting better but bleeding is continue. Dr. said, couldn’t be Eliquis it was something else. He didn’t have that problem before, started after 3rd pill. Dr. need to wake up and listen to the patient. Each knows their own body better than a Dr. you see for 1 time.
Jo
Arkansas
I hate I will be on this drug for life. It has made me gain 30 lbs in 6 months. It is also affecting my brain…. memory, recall, multi tasking.
PHB27
uk
Ihave been on rivaroxaban (xarelto) for a second stint starting about a month ago.
I was very active before, walking the dog 3 times daily and playing squash and racketball. I am now suffering from debiltating exhaustion after the most minor exertion.
I can just about get around the block with the dog but can no longer make it to the park. Any thoughts of squash seem absurd.
I am currently on holiday but will look seriously into alternatives when I get back home.
I intend to change my dose time to the evening to see if that helps but this fatigue is not what I would describe as a mjnor side-effect.
I will yellow card the product as soon as I get back.
I will even consider herbal remedies if I can get my strength back (without futher dvts).
Lorelle
New York
I am 56 yr old female in excellent health. Athletic and strong. Put on Eliquis after DVT following meniscus knee surgery. After 2 months of exhaustion and joint pain my immune system gave out and I developed severe skin infection on my face and inside my mouth and throat. Nose bleeds ensued. I was put on antibiotics ordered to rest and increased fluids. I am convinced the Eliquis caused my entire white blood count to bottom out.. The Doctors didn’t agree. But I stopped the Eliquis anyway. Infection dissipated, energy returned. It is a poisonous prescription. The dangerous side effects are under reported.
Dee
USA
I have only been on Pradaxa for 2 months. I am miserable. The hair loss, indigestion, weight gain, etc. my doctor does not listen. He claims hair loss is not a side effect. I’m not sure he can read. I stopped taking it 2 days ago, and this morning my hair loss was the worst ever. This is a product that should be off the market. The FDA needs to get their act together. I am now looking for a new physician who listens. I also want to say that I have never had side effects from any meds, and I take quite a few. My advise, if your doc wants to put you on Pradaxa SAY NO!!!!
Mike
Nyc
I believe these doctors old an young , new an traditionally experienced care less about a patient and use these trial drugs just to allow the FDA to get there pockets fat an become team players to the FDA , eliquis is killing people however these doctors are handing out scripts like it’s candy with no concern for the patient…I was also handed an eliquis script 3 day ago an have taken it 10 mlgs X2 a day for the last 3 days an will immediately discontinue use of it ..for all the people that didn’t find out in time my heart goes out to you and thank god for cyber as so we are able to see these stories an share them among eachother , agaIn most young doctors out of school are no different than everyday people all they want to do is screw as many pretty nurses at thw hospital an go home drink and payoff there school tuition an can care less about the side effects of a medicine to the public, they have become hardened with hospitals hiring less help and having to do more with less. Good luck an god bless all that are still here due to there recent episodes, god pulled you all through this for a reason.
Ann
Utah
I thought that I was doing well with Eliquis. I had even had a knee replaced and a spinal anesthesia without problem. Then about a week ago I had 2 small bruises on my left knee that grew in a matter of hours to encompass the entire knee, all the way around and then the next day drifted down the leg stopping short of the ankle. The next day 3 of my toes (same leg) were engulfed in bruising. I did not fall on or bump into or drop on my leg or foot. I just started having a massive bruise. I showed it to my cardiologist who didn’t know what to do. I stopped the Eliquis out of fear and told him so. After reading many of the above comments, I’ve begun to wonder if I was having some adverse reactions and did not realize them. Hair loss, exhaustion, swelling legs and feet, carb craving–these were never problems for me before Eliquis. I feel so hopeless. There are things I need to have done, another knee, my back. A-fib is an issue for me. I’d like to avoid a stroke. I’m not sure what to do. I don’t even think the cardiologist knows either.
Ruth
London uk
I have been diagnosed with Antiphosphoslipid Syndrome, Lupus and Lap over Connective Tissue Disease, i have also suffered a Mi. I have only been taking Eliquis for 1 week, 5 mg twice a day after been taken of Warfrin as my INR results constantly fluctuated. I have been experiencing, confusion, burning in my stomach, coughing, sore throat and blurred vision and craving carbs, this morning I could barely get out of bed. All of which I can only assume are side effects of the Eliquis (apixabin), I experienced none of the above on Warfrin which appears to be the lesser of the two evils. Did any one else experience any of these symptoms and what did you do? Having read some of the comments I think I shall be seeing my GP and consultant and requesting to retry Warfrin.
Lyndal
Adelaide, South Australia
I was on warfarin following a DVT in my lower leg which sent multiple clots to my lungs. Two years later (just last week) I experienced the same symptoms of breathlessness and was diagnosed again withe multiple clots in my lungs. This time there was no DVT and doctors have no clue about why the PE happened. I may need further blood tests. I have been prescribed Eliquis, firstly it was 10 mg each morning and night, but a couple of days ago reduced to 5 mg each morning and night (12 hours apart). I remember the side-effects I had when I was on warfarin and I’m experiencing similar – mostly pain in my legs, which I assume is due to the drug increasing the blood flow through my varicose veins. I am also a little light-headed but would rather put up with that than risk dying from another pulmonary embolism.
What concerns me most is the number of people on this site who have stated that they have cut down on their medication (contrary to medical advice) by completely omitting one dose per day. This is dangerous. The reason Eliquis has to be taken twice a day is because it is quickly eliminated from your bloodstream. The average “half-life” time is 12 hours, so if it’s not taken every 12 hours it won’t be effective. Rather than cutting out a whole dose, it would be better to halve each one, but please check with your doctor first! The quick elimination from the bloodstream is also the reason there is no antidote for Eliquis. It only takes a couple of days to leave your body completely.
Sue
U.K.
Hello Lyndal,
My story of DVT and PE is identical to yours. I also have Hashimotos thyroid anti-bodies. The first time I had PE, it clearly came from a DVT which I had had for a few weeks. The PE manifested as increasing breathlessness, no pain and was described as being lots of small clots, spread out in both of my lungs. I was prescribed Rivaroxiban for 6 months and apart from having to take it with food or it would affect my stomach, I had no problem with it at all. It was stopped, by my GP after 6 months, no tests or preamble, just stopped.
The 2nd time around ( almost exactly 1 year later) there was no obvious DVT; they didn’t even look for one. This PE came on in 1 evening, pain on breathing and was apparently a very large clot. My lung was unable to expand and contract smoothly due to the size of the clot. I was given Apixaban. Almost straight away I started getting pain in my veins, throughout both of my legs. Most of my obvious vein issues have been in 1 leg only so this was concerning. After a month or so I asked to be put back on Rivaroxiban instead and the pains have lessened considerably, about 20% of what they were.
I suppose it is not a bad thing if the pain is being caused by increased blood flow but why the difference between the 2 drugs if they are both doing the same thing? It doesn’t seem logical that the drug with the shorter life in the body makes symptoms of leg pain worse.
Another question, why were my PE episodes so different? Is it because of the effect of the first drug on my veins? Was my 2nd PE caused by the changes in my blood clotting mechanisms brought on by the action of rivaroxiban and its subsequent rapid withdrawal?
What percentage of people who have taken this new generation of anti-coagulants for a DVT/PE end up having a second PE or die as a result of a clot? Do these same issues crop up with Warfarin?
I am considering asking to go on Warfarin instead and then monitoring my own INR after a while. Does anyone have experience of doing this?
Janay M
I took Xarelto for six months after two large clots in my legs that traveled to my lungs causing me a pulmonary embolism which almost ended me the end of October of this year. I don’t know that I would have survived if not for the paramedics who got me to the hospital on time. I was in the ICU for four days and spent two of them on a heparin drip and IV with great care from the hospital staff. I could not do anything and was bed ridden for days.
After I left the hospital my doctor put me on Xarelto a blood thinner for what was supposed to be a six month treatment as I had no risk of any clotting disorders from blood work taken and they don’t know the cause of the clots. Since I took the medication I had very weird symptoms such as being dizzy all the time, funny tingling in my hands and feet, strange sensations in my head, really blurred vision, stomach bloating almost looking pregnant, most of my long thick hair fell out from the beginning of using it, heart beating strange some days, constipation, and heavy bleeding during my cycle, tired a lot.
I feel I have aged tremendously in six months looking horrible and lifeless and before this happened I looked fine and felt fine most days. I honestly have not felt right during the use of it. I cannot comment on anything else other than my own experience. I have had another appointment six months later and my clots in legs dissolved however scans in my lungs will not be taken due to radiation exposure. The doctor would like me to continue on a low dose of Eliquis for maintenance or another six months or indefinite use of the blood thinner.
Honestly I am not too happy about this as I do not want my quality of life decreased further because of side effects of medications. I will prefer to look into natural ways to thin my blood and prevent clots or alternative medicine for clots. She says that if I have another embolism I might not survive it but I would rather take my chances than use blood thinners destroying the quality of my life further. It is a difficult decision however I am not too crazy about pharmaceutical drugs and their effects on all the organs of the body.
If I had not had this experience myself I would never I have thought that I could feel this horrible each day and the medication could make me look and feel worse while I was ill. What is the use of it if you feel this bad daily? I would like to know if any other people have these major side-effects like me? Do they ever disappear and you look and feel normal again? Again I can only comment on my own personal experience and wish all happy and good health days each day you are here.
Bunty
England
Thanks for your post. It’s 2am and I feel shocked. I have been on this medication 18 days and have had 2 small strokes. I wanted to take Apixiban instead of Warfarin. My god, it’s killing me. I can’t sleep. I have pins and needles in hands and face, weird headaches, am constantly tired with severe brain fog. What do I do? It is making me lose my mind!!!! Any ideas what do next? Am seeing my cardiologist and stroke doctors in 2 weeks.
joanna
La Grange
It is very unfortunate that cardiologists & EPs prescribe these newer drugs without researching the side effects. It makes me start to wonder about so many patients being put on newest drugs. I feel the doctors should know something about the side effects taking these newer blood thinners. Just needing to be checked monthly & not eating large quantities is not a good reason to be off Warfarin. My INR has been very consistent for the past ten years. I advise patients to call their pharmacist if they have any bad side effects from a new drug. They are much more knowledgeable about meds. Correction not eating large quantities of green vegetables. Thank you.
jamie
australia
Yes i also took xarelto 20mg 1 daily for 2 years 6 months ? identical sides absolutely shocking felt like i was being slowly poisoned to death Too many sides to list weird things going on in legs & only had dvt in 1 leg .
thanks to google have notifide docter that should be on prevention dose after 6-12 months. I chose Eliquis 2.5mg 2×day & docter agreed , yea i know ? !!
2nd day off xarelto felt how i used to i was back energy levels up cant believe how long i was in a dark tunnel i am more enlightened now i listen to mi body & google ? good doctors far & few..also doctors say 3days to leave system.at 2.5years it took 3weeks hope this has helped .
Dave
England
As Steve says, he has cut his dose of Ixaban by half. (5mg dayly)
Well I also decided to cut my dose down to just one x5mg after having several nose bleeds. I do not get nose bleeds now? However I am getting fed up with the amount of brusing to my arms eclt. Only have to touch something and a bruise appears!!!
I also am suffering from bad eye site , even though I have new glasses . I have had to give up reading because it’s just too frustrating.
Should I ask the specialist to put me on Wafarin ? He gave me the choice some two years ago. I’m bewildered?o
Lena Tawlks
Roseville CA
Immediately after starting on Eliquis, I had severe excruciating leg cramps at night. Both legs cramped full length and I could not even walk to relieve cramping. I had an RX for Orphenadrine which is a muscle relaxant so I took one of those which was helpful for relief. I stopped Eliquis for 2 days and the cramping stopped. So I resumed it to see if it was the problem. The same thing happened again.
I was on xarelto previously. I had problems with numbness in legs and still do not know what is causing this.
William G.
United Kingdom
My eyesight has gone from good to bad in a matter of weeks, due to the bleeding caused behind my eyes, accelerating macular degeneration. I have had good eyesight before, and now it’s very bad. I will be seeing the ophthalmology department next week. I had no problems when I was on Atenolol and a baby aspirin. I hope that they will take me off this stuff, I am 85 years old.
Aubrey
Ontario
AS I type this, my wife is in the hospital on the coronary care floor. She is a ”bleeder”- averages three nosebleeds per week.
Two days ago they started her on Eliquis. The next day her nosebleed started at 10:30 a.m. and continued until her nose was cauterized and packed at 4 pm–the longest nosebleed yet! She has been treated for anemia for the past four years. She has had three stents, a quadruple bypass, and a heart pacer since her adventure with Avandia. Since her Avandia days, she now has A-Fib and a severe leakage in a heart valve.
The reason for my rant?
The doctor came in this morning and told her they were going to continue with the Eliquis. The same doctor that had put her on Avandia five years ago.
We are old. We are at the end of our rope with medical stupidity.
Carmel
Brisbane
I have been put on Eliquis since 26 Dec 2015. About 2 weeks after taking this drug, I have been in terrible pain in my left leg. Told the Cardiologist this and his response was “no it wouldn’t be that,” just dismissed it. I went to my GP he looked it up and said I am right. I want to go off it now. I gave no confidence in this Cardiologist. Maybe I should be the doctor. Plus I have been very tired which seems to be another side effect. I have been in pain from January to now 2016. Can’t take anymore, can’t stand up or walk for long.
Sandy
Arcadia, CA
Of the three new anticoagulants, Pradaxa is the only one with a antidote. It is called “Praxbind”.
Hal
Texas
Was put on Eliquis for AFIB after aortic valve replacement. Was in hospital and rehab 46 days. Required three units of blood. Two liters of fluid removed from heart sac and from around lungs. Has been four months and still cannot swallow certain meats or some foods. Only sharing this in hopes it will keep someone off this drug.
Miriam
Auckland New Zealand
Have been given Apixaban as I have AF I take numerous other drugs, having had a Liver Transplant over 20 years ago. I haven’t felt well or happy about this drug since I went on it half way thru last year. I have experienced the extreme fatigue some days unable to get out of bed, at the start had two eye-bleeds just a few days apart. I am now having dizzy spells the latest has lasted over eight hours. I have talked to the cardioligist about this he reduced the dose about 4 months ago, still now am having the dizziness. GP and cardio seem to want to keep u on these drugs come hell or highwater. Spoke to my Gastro specialist who has looked after me thru my transplant he has told me it is a personal choice, I think I am going to go with the risk which is I am told about 4% over 65. I am 65 next year and would prefer to be able to function than live like this. I have also experienced lot of joint pain since going on this medication. The numerous side effects just aren’t worth it.
Margaret
Cheshire.
I have been on ( Eliquis Apixaban) for a couple of years now.t I am getting breathless, also finding it very hard to walk at any pace. My legs feel as if they are filled with lead. I find every day is an challenge and find each day is more tiring than the last. When I first started on this drug I developed psoriasis which I have never had in my life- nor have any of my family. I still have the psoriasis which I don’t think will ever go away. I have been very tempted to go back onto warfarin. I am going to see my doctor next week to try and sort this problem out. I am 75 years old , but was a very fit person who walked miles evey day and went to the gym before going on apixaban.
Sue
Shropshire
Hi Margaret, I am on Xeralto, for life after a 2nd bout of Pulmonary Embolism ( no cause found). I haven’t been fit for a long time but I am struggling with breathlessness and difficulty walking with severe pain in my pre-existing varicose veins which comes on at anytime of night or day. My eyesight seems to have deteriated rapidly and I am thinking about asking to go on Warfarin instead. Did you make the change back to Warfarin? How have things been?
Laura Smith
Brisbane
No you are right this drug has destroyed my mother, she stopped 2 years ago and still has the side affects. They should be sued like they are doing in USA.
Laura Smith
Australia
This drug left her unable to walk on the balls of her feet, her ankles and up to her knees are swollen and painfull. She once walked for miles and now can hardly get out of bed.
Sue
Shropshire
So sorry to hear about your mum’s problems. Did they find the reason for the damage to her legs? Could it have been that the Apixaban/Xeralto was preventing the body from healing minor damage to the veins? The next two paragraphs are copied from netdoctor.co.uk
‘Blood clots usually only form to stop bleeding that has occurred as a result of injury to tissue in the body. The blood clotting process is complicated. When blood begins to clot, a cascade of chemicals is activated within the body, resulting in the formation of an enzyme called thrombin.
Thrombin is central to the complete process of blood clotting. It causes a protein called fibrinogen to be converted into another called fibrin. Fibrin binds blood cells called platelets together and this forms the blood clot. This is the body’s natural way of repairing itself. Apixaban is used to prevent and treat these types of blood clots. It works by binding to a substance called factor Xa, which is required for the formation of clotting components thrombin and fibrin. By binding to factor Xa, apixaban helps prevent the formation of blood clots.’
I can’t lay my hands on it at the moment but I did read something which said that it also neutralises the Xa that is already formed as part of damage limitation in the veins. I wonder whether this is why I have extensive pain in my pre-existing varicose veins on these novel anti-coagulants and this may explain your mothers experience also.
If your bodies attempts to keep your veins viable is thwarted, what is going to happen to your veins in the long term? These drugs are so new and there are research results that were not revealed. I am going to ask to go on Warfarin instead, at least we know all about it :-(
‘The goal of Warfarin therapy is to decrease the clotting tendency of blood, not to prevent clotting completely’, whereas we have no clue to what extent the novel anti-coagulants are working.
Lina
Virginia
I also have severe knee pain muscle pain my vision is blurred I ask my doctor about he wants me to tire a different blood thinner . Well they also cause the same problem . So I have decided to take enteric coated aspirin
mo
usa
Has anybody experienced pain in the right upper quadrant since taking it? I thought I was having liver toxicity; my liver is allegedly “perfect,” but I am in extreme pain, and it sounds like (thanks to Google) pancreatic. Has this been problem for anyone?
Rosalyn
Arizona
My husband was given Eliquis when he left the hospital after having a cow valve put in his aortic valve. The only reaction he has had is a very severe rash with red lumps covering his back, neck, head, and his hands. It is so bad he has been given 2 steriod injections plus a medrol dose pack. It has cleared now and he will start Xarelto tonight. Not many of you mention this side effect but we are hoping it is from the Eliquis because where can we go from there? Our doctor has never seen this before.
Charlotte
Santa Barbara, CA.
How are you doing on Xeralto? I’ve been on it for five weeks and am now experiencing tingling and numbness in my feet and ankles, no swelling. I feel fatigued and absolutely exhausted. I hate this drug!
Dave
England.
I have been on Apixaban 5mgx twice daily. My nose started bleeding some months ago! So I reduced the dose to lx5mg! That was some six months ago? I had lung operation end of Jan this year ( I had to stop taking any some time prior to my op)
My cancer was removed by key-hole surgery. They had to remove the right lobe which I am fine with, the recovery is good considering I have. C.O.P D.
I am very concerned with this drug because I’m sure it is effecting my sight?? I have just had my vision tested, as advised, and it is fine! I now await an appointment to see someone to help me. I am 83 in July.
Dev
Seattle
I have been on Eliquis and dilitiazem since May 7th and I have hives and a rash. Told my cardio doctor and she changed me over to Coreg instead of dilitiazem to see which one gives me hives and a rash. I think it is the Eliquis myself. So I am taking a half a dose 2x a day. I have had a fib once a week since May 7th, so hopefully this will not have any repercussions.
Lorna
South Carolina
I was on Xarelto following ablation for AFib and AFlutter. I was changed because of a small eye bleed to Eliquis. In the past week I noticed a rash on my hands that has spread to my leg and back. I have also noticed hair loss. I thought it was perhaps grass allergy, although I have never experienced this before. I know if I go to GP, I will be put on Prednisone pack.
I am thinking I should either cut down or go off Eliquis after reading this site.
Joe Graedon
DO NOT STOP Eliquis without talking to your doctor!
Steve
Brisbane, Australia
I broke my foot and developed clots in my lower leg, from resting it. I was put on Xarelto and it caused my nose to block like bad sinuses. The doctor then put me on Eliquis with the same result.
I thought I would see if cutting back to one 5mg pill a day will make any difference? But scared to try it after reading these comments. I found it hard to sleep and don’t seem as sharp as I use to me. I struggle sometimes at work to complete some of the duties I use to excel in around strategic thinking.
Darlene
Maryland
My sister went into the hospital with breathing problems, and during the week stay they said she developed a blood clot in her arm, so they gave her eliquis.
I saw her several times and she kept getting worse and was spacing out and not herself. She developed nose bleeds when questioned the nurse she said oh it’s not bad. When I called my sister to check on her she said they kept giving her blood , and I talked with the nurse and she made light of it. We at the time were having a bad snow 2 days, when finally got out to see her she told me she will never leave the hospital. she felt awful and had blood all inside and outside her nose, and all inside her mouth, and the doctor said she was bleeding inside and they needed to put her on dialysis, she continued to bleed and they continued to give her blood, nothing was helping. Doctor said we can do nothing more for her. The head nurse said she hated eliquis that it was bad stuff.
At the time they were giving my sister her other meds which I have since learned should never be on if on a blood thinner…my brother had a PE in Dec 2015 and he was put on eliquis and had the insomnia, but the worse was burning of his feet. He was taking 5mg 2x’s a day, he started taking just one a day, and still burned. Went back to doctor he took him off and now no more burning…This killed my sister, and was causing harm for my brother and they need to take it off the market until they get an antidote for it.
Laura Smith
Australia
This drug has killed too many, if you have bleeding with this drug unlike Warfrin they cant give anything to stop the bleeding. They are killing and have been sued, this drug has left my mother with burning in feet and legs and she can hardly walk still after stopping the drug 2 years ago and going back onto Warfrin. This drug should never have made it to Australia after reading about the class action taken out against this company.
Phil leach
DECATUR, AL
XERELTO, After about 3-4 doses, 1 per day, I wound up at the ER in Pensacola. Had’t slept AT ALL for 24 hrs, though totally exhausted. Had restlessleg, shallow breathing, tightness in chest, radiating pain across back to shoulders, wheezing and lower back and hip pain. My Cardio Dr switched me to eliquis and after 3 doses, 2 per day I experienced nearly exact symptoms. At this writing I am feeling somewhat normal after a bad night with , I think, eliquis. It’s Easter Sunday so I’ll have to go back to asprin until I can consult with my DR.
joanna
Chicago
I was thinking of switching from Warfarin to Eliquis before reading these articles. I have AFib & been on Warfarin 10 years without serious side effects. The worse was hairloss which has lessened & upset stomach which also I seldom get in excess. I think most side effects do stabilize after awhile. 2 doctors recommended Eliquis as a better drug for AFib…however I M 82 years old & to start a new drug not knowing the results is frightening. I now prefer to stay on Warfarin as I know what I have. Those side effects are really horrible.
JOAN
nh
For having brain trauma you certainly wrote a very explanatory letter. I understood all of it maybe sometimes the medical RX can make us more negative then what we actually are. Good luck. I too have had medical issues heart related but I keep on moving forward and try and find the good in every new day and I won’t give up fighting until god says its time. Good luck to you. If you want to write to me I welcome your letters.
Freda
San Antonio, Tx
I was Dx with AFIB and a week later had a dry light stroke. They tried Pardaxa but it made my stomach burn. My cardiologist said only one percent of people who take Equalis have a stroke . So now, I take Eliquis twice a day 5 milligrams and I take once a day 75 milligrams of Plavix the neurologist that followed my stroke so he always wanted me to take Plavix even if they decided to take me off the Eliquis it’s really a bum deal I have no energy I had fibromialgia anyway and now it’s even worse so my question is why do more of you do not consider an ablation or a Cox minimal invasive surgery that actually gets rid of the afib I’m seeing a doctor Natal and Austin Texas who also practices in San Francisco and Italy about an ablation so maybe I can just get down to the plavix and not have to take Eliquis at all I’m going to see the man the end of May so I guess I’ll find out. Has anyone had ablation??
Gloria
California
I have had 2 ablations for a fib, the first in my town and the second I. San Francisco by Dr. Natale. Neither one stopped my afib. If I had it to do over I would stop after the first one. I have known many people who had a single ablation and no more problems.
Sharon
Indiana
At the end of January 2015 I was taken off of coumadin and put on Eliquis . At the end of May 2015 I started getting a rash went back to doctor and they treated me for allergies. Then My urine started to dark brown and my whites of my eyes turned yellow by the end of June 2015.So they took me off the eliquis at this time.After several test I was told I had a blocked bio-duct.Then I was told I have Pancreas cancer.I had the whipple surgery October 19 2015.To get ready for the whipple surgery I had over 200 hrs of chemo. I am back on chemo now with radiation to start later.I was pretty healthy till I took Eliquis.
lucy
australia
these comments all sound doom and gloom! However, I am 75 have been on Apixaban for nine months, and my episodes of AF have reduced in number (none for three months) and before that they only lasted minutes instead of hours. I walk twice a day, have done 12km walks at high altitude with no ill effects. I was previously on Aspirin and had AF several times a month, requiring cardioversion
several times.
Debbie
Staffordshire
I’m a very fit 50 year old woman I play golf, eat a well balanced diet, go to the gym regularly and walk everyday. I had 2 strokes in January 2013 and was also diagnosed as having a hole in my heart and I have atrial fibrillation. I was initially diagnosed warfarin but earlier this year I was prescribed Apixaban as my inr levels were regularly out of range.
I have found that since taking Apixaban I suffer with regular bouts of insomnia and every couple of weeks I seem inexplicably tired. This is very debilitating and at times depressing. I don’t know what to do, do I go back on warfarin or put up with these side effects. I do worry about the risk of bleeding too and the inability to stop bleeding.
Richard
Dublin
I have been prescribed Eliquis(apixaban ) two times per day but I take only one tablet per day. – I’m cheating a little. Am I being foolish – ?
Steve
Did you cut back and if so did it make any difference?
Melissa
New Jersey
45 year old female diagnosed with Factor V Leiden. In January, developed superficial thrombophlebitis. Not a DVT or PE, just clots in my Greater Saphenous vein. Because they feel it was not provoked and I have a greater tendency to clot as I age (because of Factor V), they put me on Eliquis for life.
I have not had any of the side effects listed here except for hair loss???? not sure its that because I’m perimenopausal and hypothyroid so take you pick…..I’m on 5mg am and 5 mg p.m. Hematologist said that in another 2 month he MAY lower me to 2.5 mg am and 2.5 mg pm. I’d rather not wait….I’m also curious as to how the you have faired with only 2.5 mg per day. While again, I’m not having any trouble, I really don’t want to have to take this at this dosage if I don’t have to and my hematologist is adamant about me taking this at the prescribed dosage….
William
Virginia, USA
I too was diagnosed with Factor V Leiden and other genetic blood conditions affecting clotting. Years earlier I had a DVT and was on warfarin for 9 mos. No noticeable side effects except having to be careful of food and meds. Went off warfarin (Factor V hadn’t been diagnosed yet), and a year later had a pulmonary embolism at work. Fortunately it wasn’t large enough to kill me. Went back on warfarin and saw a hematologist who said I’d have to remain on warfarin for life (Xarelto, Eliquis didn’t exist at the time). Have been thinking about switching to a maintenance dose of Eliquis but reading the comments on this site are causing me to rethink or at least wait until Eliquis has a better history of use.
Bunty
Newcastle upon tyne
Hi I’m 51 years old with a hole in heart had 2 strokes was previously fit and just took an aspirin.5weeks post stroke been on apiixiban 18 days and feel illcan’t sleep anxious weird feelings in head.im so tired how I’m I going to get back to work?
mary s
How long does the xraleto and prodaxa and other blood thinners stay in a human’s body?What are the unpublished side effects that they do not want us to know about? Why don’t the doctors pay more attention the the side effects vs just giving a drug that may help one thing?
Charlotte
I can only speak for myself, being on $$Xeralto for five weeks now, I still feel terrible all of the time. I feel fatigued and tire very easily and now experiencing pins and needles in my feet and ankles, headaches and feel really dumbed down. I cannot multi task of take interest in anything anymore. Yes, depression and fatigue will be a part of recovery from actual PE episode, but the question is, ” is the Xeralto making me feel even worse?” I’m meeting with a Hematologist tomorrow with 1000 questions. BTW, two doctors told me that Xeralto has NO SIDE EFFECTS….. BS!
mary s
texas
Have been put on prodoxa and xarelto from different doctors. Both are scary. They thin the skin, hair and cause bruising at the slightest bump. They cause nausea and headaches. Have caused anemia in me and now have to take blood tests monthly for the rest of my life to make sure the hemoglobin is within range. I do not believe they know or care what the long range effects are. Just sell, sell, sell a new product and get doctors to use it without regard to whole person.
Peter
Scotland
I too have suffered side effects since starting Eliquis. Breathless ness being the worst. But I get hungry very late at night and have put weight on! Weight which must be adding to my problems and is very difficult to lose? Something I have always found quite easy in the past. I am now also suffering insomnia which is so tiring.
Robert
Anchorage
I started taking Eliquis because my cardiologist said that since I have A-Fib, I need to have a blood thinner to guard against strokes and this one doesn’t require a serum level monitor. He totally neglected to tell me that there is no way to stop bleeding on it as there is with warfarin that can be neutralized with Vit. K . Since specialists are conisidered Dr. Gods as well in this society you don’t get any help from them after that unless you make an appt. and wait a month for your two minutes in their aura. I do believe the doc should have told me that I may want to speed up my pacemaker , minimum beat rate on this stuff, but I’m thinking that also may be an issue for my next avatar.
Kristen
Arroyo Grande, CA
I am 37 yrs old, and along with having Crohn’s disease my entire life! About 3 yrs ago I started having strange symptoms, such as weight gain, and with Crohn’s I’m normally under weight, and then I started getting weirder symptoms, such as whenever I would bend over, or have anything some what tight around my waist, or turned my head to the left, my whole face and temples would swell, and I can feel it, and see it. It looks like Frankenstein!
So after finally seeing a Dr. that would listen to me, he thought of SVC syndrome (Superior Vena Cava), which is the largest vein in your heart and helps with blood and oxygen flow from our hearts to our brain. So mine was blocked. So the first thing to try was meds. In which none worked. So then after a year or more they did a Angioplasty, and the first one helped for about 4 months, but then I started getting my symptoms back, so they did a second one, in which didn’t do ANYTHING!
I was completely sad and frustrated since I am also a mom of 4, and it wasn’t just swelling that was the problem but I wasn’t getting proper circulation from heart to brain, and so I grow tired very fast, and can’t walk very far, gained over 30lbs. And was put on Lasix, which didn’t really help. So the next step was Surgery. So I went to USC and once they went in they noticed how bad it really was, and that all the tests they’d done didn’t show this. So they went in and fixed it…. so I thought. After about a week in the hospital I was sent home, and 3 days later I woke up soon swollen and orange. So they immediately sent me back to USC by ambulance which is about 4 hrs away from where I live.
Once they went back in they saw my chest was full of blood clots. So they tried to remove them all, but were un able to reach one that was right next to my heart. So they used a clot buster, which I guess dissolves the clot. So later that night my husband and mom just left the hospital around 11pm to stay at a relatives house nearby, and shortly after they left I coded…. the clot buster caused the clot to bleed into my heart. So I coded not once, and not twice, but 3 times… I don’t know how long the first 2 were, but the 3rd, time was for 22 mins. In which they were trying to reach my husband and mom, but both happened to still have their ringers off. So once they woke up, they saw over a dozen calls from the hospital about me coding 3 times and that they had me in a induced coma and breathing tube.
My surgeon told them that normally after 5-10 mins of CPR the person is most likely to be a vegetable. And 22 mins is beyond that. But because I was young and a mother of 4 and that they couldn’t get a hold of my husband or mom, that they just continued to do CPR. But told them that most likely I will be in a wheelchair and need to be spoon fed and drooling my entire life. So after a few days in a induced coma, they woke me to see if I understood anything by asking me questions to move my toes and hands, and asked some simple questions. And once I was able to do this they were just in AWE!! They kept calling me the 22min Miracle!! Which I know it wasn’t just a miracle but GOD!!
So let me tell you though even though I am not in a wheel chair and I can feed myself, I have suffered SEVERE brain trauma, and they don’t know if I will ever get it back. I feel like I have the brain of a 12 yr old, but the memory of a 90yr old. And my short term is gone, I can’t remember anything from just a couple to few days. And even things like movies I had seen last year several times, I don’t remember them. but I am lucky to be Alive and am grateful. So I guess now is where Elequis comes in. After a month in the hospital I was sent home on Warfarin and Metoprolol along with many others. But since I only have a port a cath, in my leg now, after having 4 in my chest, they decided to change me to Elequis so that I wouldn’t have to do the weekly INR’s since mine were so irregular!
But since then, I have noticed a lot of everyone’s symptoms that I had read on this site, and others. I have been on Ambien for years, and now it’s not working at ALL and I’m also on pain meds, and Requip for restless leg syndrome, and yet I’m waking up all night with these problems. I have ZERO energy to even get out of bed most days and I’m so swollen I can’t stand to look at myself.`which is only leading to depression. I honestly would rather not be on any of these meds,and just Pray to God to continue to heal me then to take something that is only making me feel worse. I feel like my brain is getting even worse. I just saw a email I wrote a few days ago to someone I didn’t know. And I also opened a Savings account and don’t remember doing it at all. And these things seemed to have been getting worse since I started taking the Elequis! I’m sorry for such a long story, it’s hard to make something so big so short. But it’s nice to know that I’m not the only one that feels this way! I pray for you all to heal! And for anyone that reads this, thank you for hearing my story!
Laura Smith
Australia
Terrible what you have had to go through, dont take Elequis take Warfrin, as l have already written after this drug destroyed my mothers life you cant stop bleeding on these new drugs. Unfortunately l did not read about the side affects until mum had been on Elequis for 1 yr, 2 years she is still suffering the side affects so it seems you cant get this drug out of your system. She can still hardly walk, has put on weight, has swollen legs and ankles and can hardly get out of bed because of the fatigue.
Charlotte
Santa Barbara, CA.
Kristen, I am in tears as I read your story. I am so sorry this happened to you, and I joke and pray that you are getting answers and the help you need. After reading your story I gave decided not to feel sorry for my own misfortune (PE, Factor V Leiden Mutation, hating my Xeralto, wanting my old life and brain and stamina back again) but my problems pale in comparison to your story. Thank you for sharing. You have really helped give me the perspective that I needed. Thank you Kristen. And I so hope that you get better soon.
Debbie
pennsylvania
just want to read comments, but only ONE is showing with no other choice but to add this comment.
Laura Smith
Australia
Stay away from this terrible drug my mother stopped it after 4 months of terrible side affects, 8 months later she still has the terrible side effects. She can hardley walk and has had to go on Lasix for the terrible fluid in her legs. She has never had this problem before plus all the other problems it has left her with. Wish we had found rhis site earlier, it has destroyed her life.
Tucker
Keller, TX
My father is 54 years old and was in perfect health. After being diagnosed with A-flutter he was put on Eliquis on Nov. 3, 2015. He underwent a procedure on Nov 25 to fix the irregular heart beat and shock the heart. Several days afterward he continued his Elquis after telling the doctor he was light-headed and couldn’t walk more than 50 feet without having to stop and catch his breath. Also advised of a developed rash on chest and back. After the Procedure they raised his dosage of Eliquis.
Dec.1 2015 he had a major stroke after continuing prescription for Eliquis prescribed by his doctor. After spending 5 days in the Neuro ICU, we had no explanation on what caused the stroke (non-bleeding stroke).
After the stroke they wanted to put him on Coumadin right away. We declined, and he has been off blood thinners since. He is very healthy and walks 2 miles every day now with no blood thinners.
We are now seeking a NMD Doctor that is not paid by any major Pharmaceutical Company in better hopes of preventing a future stroke. My father will probably never be the same. I wish we would have researched more before taking such a drug.
Queenie
UK
I am so pleased to have found this site as I have just been prescribed Eloquis for an irregular heartbeat,although there seems to have been some confusion in the diagnosis.I am quite concerned about starting this drug after learning of some of the side effects and would like to find a natural way of thinning my blood
Tracey ebsworth
My mum been put on axiban 4 days ago , it’s the worst thing ever , she has not had a period in 30 years and is now bleeding heavily doctors have told her to stop taking . This drug seems very dangerous.
Jacque
Gainesville, FL
I have been searching for a forum like this to learn about side effects of eloquis. Five years ago I had a stroke and was put on coumadin and metoprolol. I stayed on coumadin with all the blood tests until two years ago. I did not like the limitations of coumadin and appreciated the freedom of the eloquis but my health has been getting worse. My symptoms have been diffuse and it has been only in hindsight that I am thinking how detrimental this drug was to me.
First let me report that I have lowered my metoprolol from 10 mg. to 2.5 mg. over three years so that alone helped free up my heart to pump without being slowed down unnecessarily.
The following side effects have decreased since I got off the eloquis six weeks ago: extreme exhaustion, itchiness especially in hands and forearms, dizziness, fluid in lower legs, breathlessness, choking, hair loss, headaches, muscle aches, bowel sluggishness, weakened kidney and bladder functions. All of these symptoms I have read today on this sight and I already had make a list of these problems for myself that I suspected were contributing to my poor health and the eloquis.
I knew the drug was harming me but I could not get my doctor is stop it because he was scared. I spoke with a naturopathic doctor who assured me that they help people get off heavy meds often. I had already lowered my eloquis from 5 mg AM and PM to 2.5 mg am and pm. Then I lowered it to 2.5 mg. at night. Then i began shaving off part of the 2.5 mg. at night. This took place over 8 months. Then I started taking nattokinase and upped my Vitamin D to 2500 mg. daily. When I shared this with my doctor he said he would support me in anyway he could, that this scared him a little but that he knew I had researched well and that I was the only one who could really speak in my best interest.
At 74 years I have learned over the years to trust my intuition more and more about what is best for me. I definitely appreciate the allopathic and the naturopathic branches of medicine. They both have a place in our health system. No one person can know it all. We have to think for ourselves with their valuable help and insight.
Janie
Springport, Michigan
Thanks Jacque. After reading your post, I too am going to research other avenues from Eliquis. I have been on it for 4 months now after CT scan showed DVT in my lungs, but do not know where it started as I did not have a clot anywhere in my body (that I knew of).
I have so many of the symptoms that I have been reading on these blogs, but brushed them off b/c I was not told of any side affects of Eliquis, only what is in the packet with the Rx. The itchy hands and arms drive me crazy and the heartburn every night, along with insomnia and a few more. Never had heartburn before. I was on Warfarin 2 yrs ago after mitral valve repair, but outside of blood tests ev. week, I had no side affects with the warfarin.
Now, I am extremely concerned about the Eliquis. It is supposed to be 6 month for me but my pulmonary dr. said he may keep me on it indefinitely, ugh!
delano
NC
None of these side effects not had before, with the new drug Eliquis, but coumadin is such a difficult drug. Eat the wrong veg and ck and now you are much too low, next time too high. You have to die sometime. Not interested in that, but ??
Scary stuff!!!!
Kelly
Bedfordshire UK
I have only just read up on the side effects on apixaban. I too have severe exhaustion and struggle to walk any were its a nightmare. I also have breathlessness I also feel like I’ve always got a head cold.I’m always tired I cant get any proper sleep. Ive also put on a lot of weight since taking this and a scary amount of fluid. Ive been on it since 4 Jan this year 2015 till now.
I had heart surgery the previous nov all went well untill 4 Jan I then had A-Fib I was told to take apixaban for 4 weeks then have a cardioversion but will need to stay on the apixaban as well as other heart meds.Since then Ive got worse than I was before I started taking it.Ive also had problems with my skin on my lower legs which Ive never had either.
My cardio guy sent me for a load of tests and a CT scan nothing showed up there. I was then centre who looked at the xrays and ct scan and still done know whats going on. As my heart and valve is fine no problems at all. I jkust have this breathing problem which I never had before. Now Ive got an appointment to have a lung biopsy as no one knows whats going on. If there still is no other result I will mention that others have same problem when on apixaban.
Is there some type of test the can be done to test if apixaban is a problem. I have been through hell this year. I must have been to my local hospital about 20 x for appointments I must have at least 60 blood tests done to still have no result. Fedup as I can no longer work either because of it…
Betty
Morganton, nc
Just recently put on eliquis, curious of others reaction to this medication.
dee
idaho
I had some of the same problems with shortness of breath and getting tired walking. My legs felt like lead. My dr. suggested Lasix, and I’m telling you it worked like a charm. I’ve never seen any claims that Eliquis causes you to retain water, but I can tell you on my echo, I was doing it, and never had before. I have never had CHF, so this seemed abnormal. We narrowed it down to the only new thing I was taking, and that was Eliquis. It also makes me itch, but Warfarin also did that. The itching I can tolerate, but not the other effects. The lasix fixed it. Please ask your Dr. about it. I recently had another echo, and no signs of fluid in the lungs. No way do I want to go back on Warfarin and checking my blood all the time. Eliquis is the safest of the three new drugs out.
goldie
Virginia
Greetings…I have a long and complex medical history…I was born 1938, doa a blue baby with a vial/cural …back then we babies did not live; I was sent back, a life of suffering and many surgeries…DR. failed to listen, the ASD was ignored all my suffering ignored…2005 emergency open heart surg. 3 by pass using the “small arteries/of my small artery disease as the grafts “I coded 3 times in 4 days and continue to have minor heart attacks etc; many TIA’s…A-Fib and my cardiopathy and heart failure along with 3 breast cancer surg. 2012-2014 and post-opt recovery “I have a rare and highly invasive type of cancer” no DR’s following me “it,s my age and with only medicare ins. I am left to “wait on God”…my faith is strong and I endure, where is all the help from “Cancer and Heart Society” where is the love and compassion…
My cardio Dr is trying to get me to try Eliquis , I feel this is not for me, BP up and down, in and out of life…I had a good journey I no longer feel “confident” about the new or old drugs…All is well with Lord, never give up, hope and a quite mind is the thread that keeps me connected to God, family and all the postings you had for me to read and focus on “each of you have validated me” it is my body suffering not my sanity”…
Sincere Love and Thanks,
Flying with Angeles…Goldie
Joyce L.
FL
Regarding price of the drug, try GoodRx. Google them type in your medication and they will list the stores/pharmacy and their price. I pay $115. for 3 months through Silver Script. I’ve been on Eliquis since May and have had minor nosebleeds and a ton of bruising keeps showing up all over my body but mostly on my arms. I no longer wear short sleeve tops because they look so bad.
Barbara E.
New York.
After taking Eliquis, 5 mg 2 times a day, I am now severely anemic and will be starting intravenous iron in 2 days. I can barely sit up at the end of the day. It was prescribed for me after hip replacement on Sept. 1 and continued because of an AFib that they found. I also am suffering from sleeplessness even with Ambien. I will be stopping this medication. I can barely walk from one room to another. Also, very short of breath. The doctor wants me to cut it out totally but I am afraid to do that. I will drop it down slowly.
THELMA
NC, USA
Before going on Eliquis, check the price, it’s expensive. Mine was (3 months) $236.00 with good insurance. I have been on it about 3 weeks & the main side effect has been retaining fluid, gained 3 lbs., two minor bleeds & fatigue. My doc’s nurse said to stay on it. Good luck….Thel
pat
m
dx with breast cancer and I am on warfarin for atrial-fib. I need greens and health food ,but inr is out of wak. My doc suggested eliquis but the cost to me is 278.39 how could I keep that up. I am 80 years old. glad to hear I am not missing anything. so back on warfarin and blood tests. i hope a rescue drug is on the way for eliquis.
Ron W
Houston, Tx
I have been on Xarelto and Amiodarone for about 4 months following a couple of Afib attacks and I have been experiencing a significant amount of hair loss. I have always been blessed with a goodly amount of hair and baldness did not run in my family. I have been taking a few other drugs for a long time without any problems. Could my hair loss be attributed to either of these drugs?
dee
Idaho
I had some of the same problems with shortness of breath and getting tired walking. My legs felt like lead. My doctor suggested Lasix, and I’m telling you, it worked like a charm. I’ve never seen any claims that Eliquis causes you to retain water, but I can tell you from my echocardiogram, I was doing it, and never had before.
I have never had CHF, so this seemed abnormal. We narrowed it down to the only new thing I was taking, and that was Eliquis. It also makes me itch, but Warfarin also did that. The itching I can tolerate, but not the other effects. The Lasix fixed it. Please ask your doctor about it. I recently had another echo, and no signs of fluid in the lungs. No way do I want to go back on Warfarin and checking my blood all the time.
Marie
Oregon
Very interested in all the above. 84 year old female.
Sue
Iowa
I was put on Metroprolol and Eliquis Dec of 2014 for unexplained high BP on 3 occasions in just a few days resulting in 3 ER trips. Nobody ever figured that out anyway and I’ve been to 3 or 4 cardiologists so they blamed it on AFIB. I had been diagnosed with AFIB 3 years prior but refused the pill they offered at the time. I only have fibrillations on occasion anyway. Now I seem to be stuck in a web with these drugs. I hate them both. Although the Metroprolol does seem to keep my heart pretty calm, I have no energy, weak muscles, hair loss, memory is crap, joints ache, etc. I thought it was all Metroprolol but after reading these posts, I may be blaming the wrong culprit. I want to get off both of these things and go back to taking my chances, but getting off them is a problem and now I don’t know what to do. Anybody every try going to Nattookinase instead of Eliquis? The main problem is getting off these drugs and switching to natural remedies without issue. I need t o find a doc who will assist with that — but good luck with that! A stroke is nothing to fool with but I wonder how much of these threats the docs put out are Big Pharma talking. HELP!
Brenda
York,pa
I was put on Eliquis about a month ago I had laparoscopic surgery on my knee was home three days and my calf started swelling and felt like a Charlie horse drove myself to the ER and was diagnosed with PE and was put in intensive care unit for a day the blood clot went from my leg to my lungs I was giving Eliquis and sent home the next day ! I’ve always been healthy I am overweight but always been healthy! I have to say this is one of the scariest things far as drugs that I ever taken ! Luckily so far I’ve had no side effects I pray to stays that way! I was told by my family physician that this is called the miracle drug ! I go back to my family physician on 23 October Just not sure about all of this it was so sudden! I must admit I’m very scared ! My younger sister had blood clotting she was a severe diabetic ! So because of that they told me I am a factor 5 so at first I thought I would only have to be on this 5 to 6 months but I got a feeling because of the family history I may be on these things for the rest of my life ! That’s the problem once you’ve had this happen you’re almost afraid to go off the drug because you don’t want it to happen again , Best of luck and God Bless!
Gerry
Colorado
I have recently received a pacemaker. The dang thing tattled on me with 3 Afib sessions. Now the doctor wants to put me on Eliquis. I have been researching natural remedies for the afib, actually there is quite a bit online on the subject. You can even find nutritional cardiologists. I am finding that this condition can be treated with diet and supplements, especially magnesium. I have a chiropractor who is willing to help me with muscle testing to see which supplements are right for me and what dosage. I think once you get on these drugs it is a vicious cycle of events. I have made up my mind that I am not going to let this doctor scare me into putting these drugs into my body.
Tammy
33328
I am 44 and had dvt from a simple trip and fall. I was given Zeralto which I only took for two days because clot broke off and went to my lungs. I was in and out of the hospital five times and emergency room another two times. I was taking coumadin after first admission but they couldn’t get the dosage correct. Finally end of July I switched to Eliquis. About two weeks into taking it I started having arm pain bilateraly. It felt like I worked it really hard. I advised doctor and she thought my body would get used to the drug and wanted me to continue. It for progressively worse until two weeks ago I couldn’t straighten my arms. The pain is incredible. I called the doctor who took forever to get back to me. Finally saw her and told her I wanted to go back on the Coumadin. I have been on the Coumadin for the last ten days and lovenox shots but just getting to 1.7 yesterday. My arms are no better as of today if anything the pain has radiated into the shoulders now. I am going no permanent damage is done. I filed a adverse reaction report with Bristol Myers as well.
I know that the newer drugs are easier but the side effects are not truly known yet. I will stick with Coumadin until more is known about these new drugs. In the mean time my suggestion is be very careful.
I have also found out I have Factor V and Chronic Venous Insufficiency so I am on this medicine for life.
G
Colorado
My Mother has had a similar but worsening problem with Eliquis. The pain started in her upper right arm and radiated to her shoulder. within 2 days her upper arm back and lower torso where completely blue in color due to popping blood vessels. The pain is incredible and she is now on oxydoyn She has been removed from the drug but no relief, it has now been 1 week since she stopped the drug. The popping of vessels is continuing and no one seems to have an answer.
RUTH ANN
Allentown, PA
After a botched attempt at correcting my AFib (2013) they started me on a series of Metropolol, Atenolol, Xarelto, Diltiazem, Furosimide, and Digoxin. First two made me so sick I refused to take them after a few days. In April of this year I started having frequent nose bleeds, bleeding gums, and stopped taking the Xarelto. Felt a marked improvement health wise……tiredness, insomnia, breathing issues, stomach issues all resolved. Did not mention this to my cardiologist and he didn’t ask at my 6 month visit. I am going to try nattokinnassee and see if I have any side effects from it.
WIDO
MONTREAL
My age is 76. I was hospitalized on June 6th.2015 with heart failure due to a Myocarditis virus and given the following drugs Eliquis, Metoprorol, Furosamide and Pro-Ramipril for 4 months. During my 5 days in the intensive Cardio care unit of the JGHospital followed by 4 days in observation I had a catheter in my Prostate and Bladder. When the nurses tried to remove the catheter on June 10th 2015 I could not urinate. The hospital discharged me on June 14th. 2015 with an Urine Bag strapped to my leg. I went to consult my Urologist he claimed no problem with my prostate. I carried the Urine Bag and Catheter for almost 3 months. On September 2nd. 2015 I switched to self-catherization (3 times daily every 8 hours). Neither the Cardio Doctor nor the Urologist addressed the issue of side-effect caused by the Cardio Drugs especially Eliquis, Metoprorol and Furosamide. Me the patient has to do the research into it and I am grateful I found on your website and the answer I was searching for namely that “Joe” reported having Low Blood Pressure end BPH after taking Eliquis. That is my case too mine is only 75 /56 instead of 115 /56 . And most important I have now BPH (Benign Prostatic Hyperplasia) also which is most probably the main reason for not being able to Urinate since I take “Eliquis” (Metoprorol and Furosamide) since June 7th. 2015. Prior to taken Eliquis, I never had Prostate and Bladder problems my nor Urinating problems when I was admitted to the JG Hospital in Montreal Canada from 6th to 7th June I urinated normally in bed bottle.
Lu Metz
CA
I have been on Eliquis about 4 month now and feel so weak, and lots of pain in my lower back where I had surgery 2 years ago. Also where I had a drop foot and finally was able to raise my right toe, I can’t do that any more. I used to walk at least a mile a day now barely able to walk a block. Can I taper off this drug? Labor Day Weekend…no doctor.
Beverly
New York
I had an episode 3 weeks ago with fluttering in my chest. Went to the ER where heartbeat was 150. Stayed the night & follow up with cardiologist. Diagnosed with A-fib & prescribed Eliquis. I have never had any heart problems & have always had low blood pressure. After great thoughts on that day, I know what brought on the heart fluttering. I had made iced-caps with espresso coffee, but had doubled the amount of grounds for the coffee. This coffee in itself is high in caffeine. I had been drinking it for 2 days as it had been almost 90* outside. I was living on this espresso drink. I haven’t had any problems since then. Wore a monitor, which was a joke as it kept coming off because of the hot weather & sweating. I don’t usually drink much caffeine anyway. I asked the cardiologist about the risks of these blood thinners & she said that we breathe poison every day. Not satisfied with the visit. I asked her if people were on this forever & she said that she had many patients that have been on blood thinners for years. Have not filled the RX yet. There are many tests they want to do. They don’t want to hear that maybe the strong caffeine I drank was the problem. Am exploring all natural remedy treatments. Don’t want to lock my self into something I can’t get out of. Any suggestions anyone?
lainie
NY
Why would someone add more medications to his list in order to fall asleep, when Calms Magnesium Citrate is natural. Start off with 1 teaspoon. See “how you go” in the morning and if you are able to sleep thru the nite. The powder cannister says 2 teaspoon but 1 teaspoon worked like a charm for me!
joanne
I have been on Warfarin for about 10 years for A-fib. I also now take Diltiazem for blood pressure & heart. Otherwise just vitamins…however since being on Warfarin I have had constant indigestion & stomach problems…plus extreme hair loss. I tried Pradaxa about 6 months ago & was so sick to my stomach I could barely keep food down. I ate before & after taking this med twice a day….stuffing myself with food I didn’t want twice a day. Finally after one month I was taken off it. Both the nurse of my cardiologist & pharmacist said this drug has serious stomach problems. Incidentally hair-loss continued!
joanne
Illinois
I am an 80 year old female & have been on warfarin for 10 years after developing A-fib. I suffered from severe stomach problems plus excessive hair loss during first year. My dosage is just 2 mg, daily plus 1 mg. once a week. Dosage has been consistent however because of above problems asked to try one if newer anticoagulants. Cardiologist wrote down all 3 names & said all were good. I chose Pradaxa since it was on market the longest. Terrible mistake….severe stomach pains & regurgitation. Hair Loss continued also. Ate before & after med twice a day …but didn’t help. Finally I was taken off drug after a month…both nurse & pharmacist told me this drug has most serious stomach problems. So I’m back on Warfarin and afraid to try a new drug.
Carolynb
I was told 5 years ago to go on Nattokinnasse an all natural blood thinner. I should have listened. I have gained 50 lbs being on lovenox shots twice a day and ELIQUIS twice a day now! I hate it my skin is horrible. I am getting off of it all and going all natural cayenne, Nattokinnasse vit E omega 3 and ginkgo biloba. Should have done it years ago
lainie
NY
I am sorry for the struggle you have had w/eliquis, Carolyn. I am also considering Nattokinnase. I take CoQ10, B12, D3 from Dr. Fuhrman’s website, a Women’s Multivitamin, DHA-EPA vegan oil, garlic pills and Magnesium Glycinate in a.m. and Calms Magnesium Citrate to sleep. That’s just me.
How did you get off the eliquis? Are you high-risk? I have never been sick before and I am on a plant-based diet so I’m doing very well and confident when I lost 10 more lbs. my #’s will be even better. I have a list of other natural remedies also from Bill Sardi’s website. Forget the 5 years you stayed on it and stay focused on going forward. Progress and peace, they belong to you.
Cynthia
New jersey
What are the dosages, I may try these also , thank
lainie
NY
I did not receive a reply yet. Hope all is well, Carolyn. lainie
Sue Sprick
Lavaca, AR
I am on Metoporol and Pradaxa for my A fib that was diagnosed last year. I didn’t like all the risks associated with Pradaxa so I decided to go with Natto 2000 fu and 160mg aspirin daily and stopped the Pradaxa. Was doing fine until recently I had my 6 mo checkup with my Cardiologist and was told by his nurse per phone call that the doctor would no longer treat me unless I went back on the Pradaxa. I am 67 years old so I guess they think my age puts me at greater risk. I felt pressured as I didn’t want to have to find another doctor, sure wish we had a holistic doctor in my area.
Adrian
27858
My regular EP and the EP who did my ablation both agreed that apixaban (Eliquis) was the preferred oral anti-coag. even over Warfarin. I’ve been on this med, 5 mg po bid for over a year now and the major drawback to me is that of bruising and subcutaneous hematomas that seem to last for a long time before being absorbed.
I’m nearly 71 and participate ACTIVELY in cycling, racquetball, swimming and some other non-contact sports. I did participate in a study run by Duke for patients who underwent RF ablation and it lasted 6 months. I had to wear a monitor during 4 periods of 8-10 days… the results showed NO afib but did show bi and trigeminies which I still experience on occasion during strenuous exercise because I wear a Polar heart monitor and it provides evidence of these irregularities. Needless to say, I’m concerned about any of the oral ACs and warfarin requires frequent blood testing and diet adjustments…even though it has an antidote. The thing is—if you don’t get the antidote in time you’re still in the same situation as with the oral ACs.
Just my 2 cents.
Lynn
USA
In 2007, at age 54, I had a DVT behind my left knee which sent blood clots to both lungs (I was waiting for surgery to have both hips replaced – 6 weeks apart, at The Cleveland Clinic). I nearly died from the pulmonary emboli, but the Cleveland Clinic pulled me through. It did delay my surgeries as no surgeon was eager to operate on someone who had a complication of the surgery before the surgery! The hip replacements were needed because I had something called Osteonecrosis. I have since developed many other auto immune problems, this was my first indication that I would have auto immune problems for the rest of my life. I came home from the hospital on Coumadin (warfarin) and have been on it since 2007. When the newer anti-coagulants started coming out, I asked my primary care doc about them. He referred me to a well respected hematologist at The Cleveland Clinic for an opinion. Basically, he said that the newer drugs generally have to be on the market about 5 years or more – and then you see the lawsuits begin. Coumadin is a pain to be on (I test my own INR weekly at home with a finger stick and a little machine that gives me my results within seconds). Bottom line, as the hematologist put it, better the devil you know. Coumadin has been around forever, studied extensively, and has few side effects with proper monitoring. Yes, the dietary restrictions are annoying, but I NEVER want to go through Pulmonary Emboli again! As much as I would like to get away from sticking myself every week – I’ll do it if it keeps me safe from blood clots! And after reading the comments on this forum about the newer drugs, I am reassured that I have made the right decision for me. Best of luck to everyone!
Thelma
28467
The comment about a six-month study at Duke for RF ablation sounds interesting. Could you tell me more about it. I know that Duke is doing an enterbronchial valve study just now as I have A-F and emphysema. Does anyone have any information on both of these studies. Also, I have just gone on Eliquis and so far, so good……………………….Thel
Annette
Rhode Island
I’m glad that I found this site. I had one A-Fib incident 2 years ago. I was immediately placed on 8 different meds. One of the meds made my legs swell so badly, that the skin was separating and splitting. One by one, with the help of my Cardiologist, I am off all of them except Lisinopril and 20mg. Furosemide…No more swelling at all. In addition, the lastest Catscan shows a node in one of my lungs. It could be cancer, however, I have had “scares” before only to find that it was a fungal infection. I am hoping it is the case now. However, since I was placed on Warfarin, I feel horrible. Joint pain, intermittent sleep, foggy brain, etc. I do have A 70% occluded carotid artery, which is the main reason for Warfarin. It is impossible to partake of all the foods that kept me healthy on this drug. The dietary restrictions are difficult. I follow nutrition very carefully, and there is no way I can include all the things I have used in the past to keep my health strong. I hate the thought of staying on this drug forever. I am 76 years old, and have a fine strong heart, and other organs.Coumadin/Warfarin is a measured Poison..and it will have serious impact on major organs. I am conferring with my Cardio Dr. this week to come to some conclusion as to what changes I can make. It appears that anything that is notably healthy such as leafy green veggies, berries, supplements, are taboo on Warfarin. I am also sick to my stomach most of the time. I can’t seem to “get it right” as far as eating. My numbers vary so much. Perhaps I will have to go ahead and purchase a book that gives interesting recipes that will allow my dosage to be lowered.
Ted
Boston
Annette, you said “anything that is notably healthy such as leafy green veggies, berries, supplements are taboo on Warfarin”. I don’t think that’s so and you should talk to your doctor about that. I believe that the important thing is to eat a consistent amount of food that has a high level of vitamin K, and as long as you’re consistent, the regular testing will find the level of warfarin that is appropriate to your diet. The “easiest” way to eat a consistent amount of food that has a high level of vitamin K is to eat none of it. It takes a bit more effort to eat high-vitamin-k foods and be consistent about it, but in my opinion it’s worth it. (If you google for “warfarin vitamin k” you’ll find many articles that say the same thing.) I’ve been taking Warfarin for 6 years, and I eat a lot of spinach, kale, broccoli, etc. However, if I go through a period where I don’t eat as much green stuff, my blood gets too thin. So be aware that if your diet contains a lot of greens it’s as dangerous to under-eat the greens as it is to take too much warfarin. And, don’t change your diet or warfarin intake without consulting your doctor!
Fil Navarra
Montreal, Canada
I was started on eliquis 5 mg about 3 months ago. This replaced by Coumedin.
I’m finding itching skin, mostly my arms and hands.
I’m also finding that I get tired more than usual.
Has anyone else had these effects?
Christine
Murray, Ut
I’ve been on Eliquis since October, 2014, after my second incident of Pulmonary Emboli. I’ve also experienced itching skin (mostly on arms, hands and legs), extreme exhaustion, very foggy brain especially upon awakening, increased appetite and subsequent weight gain, and insomnia. I’m 67 years old and have attributed most of these symptoms to old age. I recently retired in January of 2015, and have had over six month to recuperate and rest. However, I’m just as tired, if not more exhausted, as when I was working. Has anyone else experienced these symptoms? This is really no way to live.
Ruth
Salt Lake City
I was started on Eliquis while away from home, following an emergency visit where I was diagnosed with A Fib. When I got home, the cardiologist agreed it was the drug of choice. After almost 3 months living with the worst side effects I have ever experienced,( unrelenting fatigue, fuzzy-headed, loss of balance , shaky,very emotional ,irritibillity) I asked the Dr if I could try one of the other drugs. He agreed and have been doing well on Xarelto. I am in my senior years and feel like myself again. I experienced only a few of the milder side-effects that I had while on eliquis, for a couple of days and have been fine ever since. It’s so much easier taking a pill once a day rather than every 12 hours.
Nancy
I have been on Eliquis for a month. In that time I have gained 10 pounds, been continually exhausted, and have severe brain fog. When I mentioned these symptoms to my cardiologist she suggested I drink more water.
I will be looking for a new cardiologist. I hate this drug!
Danny
Utah
I’m a 65 year old man with a history of atrial fibrillation (a heart murmur), five minor heart attacks and one minor stroke. I also have nephrogenic systemic fibrosis, a relatively rare condition caused by gadolinium poisoning from the only MRI I’ve had, which was 15 years ago. Gadolinium is a highly toxic, heavy metal used intravenously as a contrast agent in MRIs. Most significantly, perhaps, I’m a renal transplant recipient from 2002 who has not taken immuno-suppressives of any kind since the spring of 2005.
I’m the sole family caregiver of my 91 year old father (who was diagnosed with metastatic prostate cancer 3 and a half years ago) and of my 93 year old mother, who has no particular diagnosis, but who rarely gets out of bed except to use the bathroom. Both are on hospice.
Within the last year, I was prescribed Eloquis as an alternative to warfarin. I also take metropolol and lisinopril for high blood pressure. I’ve developed severe insomnia over the last few years for which I’ve been taking 15 to 30 mg of temazepam. Within the last few months, I was also prescribed, at my request, Lorazepam and Flourazepam I was told to pick one each night and take it to assist in falling asleep but not two, or certainly not one of each of all three medications. I’ve foolishly, in an effort to counter my sometimes growing stress level, not followed that advice with regularity and, a few times, took one of each, one of two of the three and/or several of one or more.
I usually awaken feeling drugged and can’t seem to achieve some degree of relative alertness without then consuming some form of caffeine, although usually not coffee, rather green tea or one or more of the least offensive energy drink I can find. Of course, this creates a ‘viscous cycle’ and makes sleeping the following night even more difficult but, especially, if I can consume whatever form of caffeine during the afternoon, particularly if toward evening.
Lately, I learned that those three sleeping medications, in particular, as well as others in their class of drugs, can build up, especially in people of my age and older and cause a cumulative effect, which I’ve been experiencing ever more intensely during the last few weeks. That is, very poor balance – I use a cane or a staff outside and have to balance myself against furniture, at times, when I move around the house. I’ve started having an almost constant feeling that I’m going to fall forward, even when using a cane or a staff, and did fall recently. My elderly parents are both nearly completely deaf and, so, neither heard me fall, nor was I within either’s line of sight where they may have seen me – not that either could have helped much, anyway. I lay on the floor feeling too week to get up for at least an hour.
I feel ever more fatigued and, no matter how long I’ve slept, I don’t feel rested and think that if I had the luxury of doing so, I could easily sleep for two weeks or more, with pleasure, arising only for bathroom visits and to consume a little water. I know that I’m well past the age where death could occur at anytime. I’m not at all concerned and might even consider it a relief. However, now is not convenient for me to croak as my folk’s would almost surely, then, find themselves placed in a nursing home, by my siblings, rather than be allowed to live out whatever time that may be left to them, in their own home, as is my desire for them, as it’s theirs.
I realize I’m not managing my pharmaceutical intake very well (I rarely even have one glass of wine and do not use any other substances of any kind, although I do take some doctor suggested herbs to help my adrenal glands and several other herbal formulas which I think might help). I eat very little, weigh only about 120 lbs, although I’m about 5’8” height-wise. I’ve had extensive blood tests, see my cardiologist and post-transplant nephrologist every three to six months. Plus, I see an acupuncturist and my primary care physician. I think this is mostly psychosomatic. I even see a psychotherapist friend, who has helped me stay relatively sane and probably simply need to take better care of myself.
I realize there’s probably nothing you can say that I don’t already know: essentially, be more vigilant with my meds, exercise a bit more, develop a more regular sleep schedule and watch significantly less so-called news, which is almost always negative and, lastly and perhaps most importantly, take regular times to sit in meditation for at least a few minutes every day.
Thank you for reading this. I think that merely writing it was probably therapeutic in itself. Nevertheless, I apologize for my verbosity.
Carolyn
Texas
Oh I am so glad I found this site! I was on warfarin for 5 years after having a dvt behind my left knee . My INR was crazy up and down. Keeping my diet regular was another problem. My inr would not get above .06 and my Dr sent me to an oncologist hematologist to see what was going on. He put me on ELIQUIS 5mg two times a day. I have been gaining weight, tired all the time, ringing in my ears, and I have bumps under my skin on my arms and legs. Now I have dry patches from the size of a dime to the size of a fifty cent piece breaking out all over my hands arms and legs! Swelling I had to remove my wedding rings and put them on my pinky and they are getting tight there. Dr does not want to take me off of eliquist, now I’m scared to get off!
Jessica
Richmond, CA
45yr old woman, doctoral candidate [anthropologist], athlete, writer, artist, regularly carded and subject to arguments: no way am I over 20, blah blah… And now, after 3 weeks somewhat compliant with Eliquis rx [not indicated. I have, likely, aggressive systemic mastocytosis, Kounis syndrome triggered by a wasp sting 2yr ago, now caterpillar encounters, 2 in the past week sending me to ED] I feel like every day could be my last.
The cystoid macular edema, with profuse bleeding in both eyes, the nightly scream-provoking spasms in alternating-side calves, so intense the long bones’ integrity is questioned. Now my neck, and left arm, offer pain, swelling, failures. Bilateral cyanosis of fingers, left hand is just cold. Coughing, vomiting blood if I eat. Sleep: only 2min at a time, when driving if I dare. Walking the garbage bin to the curb: maybe next week, or the week after that.
I live alone, after 12yr domestic violence, need to flee stalking again, but am not quick witted enough to have conserved the meagre savings I’ve got by on while planning/avoiding what may pass as a best chance at survival / new life.
Don’t blame yourself for this hell. You can’t exercise more on this drug: that way lies more loss of function of extremities. It’s not your fault. Enough folks blame you already. If you can find a social worker or other advocate to help you lay this problem out for solving, do it. Not family. Not coworkers. Not anyone who must succumb to victim blame or face a world so bleak this crap is what follows from earnest compliance etc doing the right thing.
I thought lisinopril was bad, esp with furosemide and warfarin. Eliquis, and bumetanide: exponentially worse. Not just you.
I don’t have afib, nor knee or hip surgeries. Cardiogenic shock, vasospasm, sure. Persistent sciatic arteries, nicked by 3 fractured pars interarticularis [spine crush injury, a few years ago]. Nothing to suggest eliquis, unless one is willfully ignorant of mastocytosis. Probably have chronic congestive heart failure now, but not before. Just tumors pressing on lungs and heart, and a huge dying liver.
Good luck, and better support. Be well.
Shawna
Stuart, Florida
I am 40 years old. A year ago I developed bilateral pulmonary emboli after major surgery. I was immediately put on blood thinner and in ICU for a week, then sent home with xeralto. Everything has been downhill since then. I was also found to have MTHFR while in the hospital. I was put back in the hospital for five days a week later due to pulmonary strain on my heart. Sent home again with steroids, heart meds, blood thinner (xeralto) and others I don’t remember. I also have RSD in my leg and both arms, which seemed to flare up as well after the incident.
Then, in November right before Thanksgiving, I was back in the hospital for eight days for stomach paralysis. On top of everything, the fatigue was overwhelming, but I thought it was just from everything my body had gone through. Before the clotting incident I was a healthy, in shape woman. I exercised everyday and ate healthy. Since then, I am exhausted easily, my joints ache to the point of tears on a daily basis, I’ve had to quit my job that I loved because I never knew from day to day if I was going to be able to function. Muscles started spontaneously tearing in my leg as well as my elbows and shoulders.
I am constantly in pain with no fix in sight. The doctors don’t think it has anything to do with the xeralto, but my pulmonologist just switched me to eliquis to see if any of the symptoms subside. I’ve had more MRIs and tests that I can count. Now I have an appointment at the Cleveland Clinic in August. I hate what my life has become just when I was to the point to be able to travel, etc. with my husband. I stumbled across this forum when trying to compare the xeralto and eliquis to see what I should stay on.
My doctor told me that, due to the MTHFR that I have, I’m at a high risk of clotting if not on a blood thinner, so he thinks I’ll be on it for the rest of my life. From what I have read so far, it doesn’t look like one is better than another. Any thoughts on that?
Anil Getbourg
Oshawa, Ontario
Started on Eliquis last March 2015. Not sure which doctor prescribed it while I was in hospital. Feelings of great tiredness, swollen legs. After colposcopy-gastroscopy have liver problems. Cardiologist does not know why. One doctor wanted to know if I had ever been told that I had jaundice. I don’t remember this being the case. Will see my doctor next week.
beth
scotland
Hi ,
I was put on Eliquis after my doc spotted atrial fibrillation [to prevent stroke]
I have other medical issues and didn’t put 2 and 2 together until recently.
last year I had an endoscopy due to difficulty swallowing and they found acid reflux with stomach benign polyps that was that until I had a c.t. scan and a fine needle biopsy which showed I had enlarged thyroid wrapped round oesophagus surgery has been put on hold until another examination has to be carried as I have a muscle wasting disease so there is a lot going on.
Just 2 weeks ago I started having the most terrible cramp like pains with acidity and I was taken off omeprazole a ppi for acid reflux and put onto zantac 300mgs at night however during the day it has become indeed like bleach being poured down into my gut and as everything was o.k at endoscopy there is only one way that I have developed this yes its Eliquis.
Going on holiday and will see doc when I get back as I couldn’t live like this.
It is of great concern to me that there is no antidote to this drug along with such serious side effects. I think it’s shocking that your blood is only checked once a year!
Anil Getbourg
oshawa ontario
I started Eliquis last March. All of a sudden, great tiredness, difficulty walking, water retention. Do not know exactly who prescribed it for me, “too many chefs” etc. Liver problems not understood by treating cardiologist. Don’t know if I will continue with Eliquis; will see by doctor next week, after my appointment for a biopsy (enlarged nymph nodes in chest) is confirmed. Don’t think I should be on any blood thinner at all.
We shall see.
merle lewis
United States
in my 80th year. was taking plavix for blood thinner. suffer af and other heart problems. on plavix was able to exercise and ‘heartburn’ problems came from diet only. doctor switched to eliquis, within a few days, could not exercise, 2-3 miles down to a quarter mile and this was painful. cut dosage from 5 to 2.5 and heartburn, lack of energy is the same although not consistent in level of discomfort. is it safe to go back to plavix?
RIchard
Oakland, MI
I was diagnosed with AFIB. The Doctor put me on Xarelto. Within two weeks, the pain in my knees got to a point where I could hardly walk. I stopped taking the drug and waited two days. I took Aleve for the knee pain. The pain went away. The Doctor changed my medication to Eliquis. I have been taking it for about two weeks. My knees are aching as bad as they were on Xarelto. I feel like I am in no-win situation. Any suggestions?
Laura
Australia
Try Warfrin, Elequis nearly killed my mother.
The People's Pharmacy
Joint pain hasn’t been reported with either of these drugs, but you may be experiencing a side effect that no one else has encountered. There are alternatives, including warfarin. It requires attention to manage it properly, but many many people use it successfully.
lainie
ny
how are you doing stuart? are you off the eliqus – how did the ablation go?
progress and peace, they belong to you. a healing never leaves you where it finds you.
lainie
CAROL
Trying to decide whether or not to change to Eliquis from warfarin. I have always been very conscious of eating healthy–many greens. The warfarin is throwing me off my game. I need these veggies for other parts of my body that need attention. Elicit has less dietary restrictions. Now, reading these comments, I am afraid to make the change even though I believe this would be best for me. I really am not bothered by the INR checks; that does not play into my decision at all.
CATHERINE
North Carolina
What are the good side effects besides stopping blood clots with eloquis? My doctor just started me on the medication, 1 tablet 2 times a day, 5mg.
Stuart
Redcar, Yorkshire
I have been on Apixaban now for about 7 weeks I’m having side effects I can’t say for sure that they are related to this medication.
I’m 49 years old I have Afib I’ve had my cardioversion and my heart is now back in rhythm this is my second Cardioversion and now I’m just awaiting a catheter ablation in the next 6 week which I’ve been told after this I will be taken off the Apixaban if all goes well for me.
My side effects are blurred vision, extreme tiredness, headaches, Muscle aches, cold hands with pins and needles.
I’m worried about talking to my doctor about these as I feel I take up to much of her time and she may be getting sick of hearing my moans.
Doctors are stretched to the limits and you sometimes get the feeling that they think your just wasting their time.
Any advice or thoughts would be much appreciated thanks from Stuart.
Ken
United States
My friend,
Your concerns are valid. Its what the doctors are paid for. Please don’t minimise your complaints. The doctors can’t do their jobs if they dont know the symptoms. Not all ailments are qualifiable bt CT, Xray or MRI. God bless you.
Ken
Betty
largo fl
I was put on eliquis this past Oct, I immediately started extreme
tiredness, could not do anything, and loss of interest in anything.
I now am having ear problems, got up one morning and could not hear anything, went to the Dr, cleaned my ear out and one day later it
got better, now, less than one week am having the same problem,
I have a foggy feeling in my head, and having trouble walking, look like a drunk try to walk. Also, now having kidney problems, that I nave not had before. Have had the flu twice this winter. Begged my Dr to tell me how to stop this drug and she will not. I am going to do it myself, it is my body and I do not wish to be on Eliquis. I am 86 and WAS in good health for my age, before this.
Susan
Chicago
Betty, My advice is to get a new doctor. I had a wonderful doc who retired. I “interviewed” 2 internists and 4 cardiologists before deciding who to entrust with my health. Good luck on your ablation.
Brinley
US
At age 38 I was diagnosed with a post surgical DVT. Hematology discovered Factor V Leiden. Clot resolved after a few weeks on Coumadin. Therapy discontinued. Two years later clot return in same location. Started on Coumadin again and developed terrible GI side effects. After 5 months stopped Coumadin and symptoms resolved but clot retuned for the third time. Now taking Lovenox twice a day for past 8 months with zero side effects. I do not feel comfortable trying any of the new age anticoagulants at this time.
Edwin
N.C.
I have just been newly prescribed a new medication, according to my new cardiologist that i have AFIB..and he prescribed Eliquis..over a month ago..i still have not taken the medication… I am a type-2 diabetic and taking Carvedilol for shortness of breath..after reading the side effects by other people with Eliquis, I am now have even a greater hesitation on taking this medication..I know of two people who were taking Coumadin and they have passed away..
Kim
Cary
I am on Eliquis for a cardiac ablation due to my paroxysmal a-fib. The month prior to surgery I had no problems but 2 weeks after my surgery I was exposed to a nasty bronchitis and I have not been able to shake this. I too am someone who takes supplements and drinks green smoothies, eats well. Now on top of the bronchitis I have a fresh cold. I have worked with (sick) children for 35 years so have a good immune system but I think this drug which is the ONLY new thing I am on has wrecked my immune response. Thank goodness I will be weaning off in one month.
Katie
fl
I was put on Xarelto and experienced numbness and tingling on top of my feet. I went to a podiatrist and he found my legs were in good shape. My cardiologist changed me to Eliquis and I have been on it for one month, still have the same issue. It affects my walking and is a real problem, no pain is involved. I see the doctor next week and I really don’t know what to do??
Bill
Nevada
I had to go off Xarelto a week ago. I’m 54, have well controlled asthma and both Factor 5 Leiden and MTHFR. For two months, anything mildly strenous would cause severe dyspnea and tachycardia. Mountain biking was exhausting, even something as easy as puttering in my garden would have me gasping for air and my heart hammering away. Then I got a small, superficial clot in my leg and started reading online about the uncommon side effects, like dyspnea. I told my doc I wanted to trial being off Xarelto and back on Warfarin. It took about four days for the symptoms to stop, and I’m staying with Warfarin from here on out.
lainie
NY
Bill,
How are you doing now. My brother had Factor V Leiden. They can’t test active if you are on eliquis but genetic only. lainie
Kate
Sydney
For all who are posting how frightened they are to be on eliquis or xarelto and want to go back onto warfarin – remember this. Warfarin is not without major risk. The risk of major bleeding alone is far more likely with warfarin than with any of the new products and, even though it has vitamin k, it is not as simple as administering it and your home free. Vitamin k takes several hours to work (by which time the damage is done) and the bleeding volume from warfarin is generally much more than with the new agents.
I see many patients come into hospital on warfarin who have major complications from simply being on warfarin. Many more patients are dying or having major side effects on warfarin than on eliquie, xarelto or PRadaxa. The thing to remember is you are on an anticoagulant for a reason – to try and prevent a stroke from happening which will cause death or major disability. The treatment options all carry risks, but the risks of no treatment are often much worse. Always discuss your condition and the reasons for treatment thoroughly with your doctor and make sure you are fully aware of why you are on these medications. As for the new agents, they have all been approved for use because they have shown great reductions in stroke and bleeding rates and, for most people, are safer options which offer better rates of stroke reduction than warfarin.
Laura
Australia
My mother has just come off Eliquis after terrible side affects, all her feet and toes have swollen and changed shape. She had fine ankles and feet before this drug, she has all brown marks over her face and has a rash on her skin. She had terrible trouble with her bowel and had shortness of breath. This is a TERRIBLE drug and I don’t know how these drug companies get away with harming and killing innocent people.
Melitta
Florida
Thank you for all your comments!!
I take Eliquist 5 mg 2 times a day for several months for an episode of afib. I’ve been getting more and more exhausted, increase in episodes of shortness of breath. For the past month or so I’ve noticed decrease in my mental capacity. I find myself staring into outer space, nothing excites me. My emotions are all over the place.
I’m calling my Dr. tomorrow.
Thanks again!
Carolyn
Texas
I am having shortness of breath and haloes around my eyes as well as a horrible skin rash all over my arms hands and legs! I sometimes walk as if I have been drinking and I don’t drink! I have mthfr and told I have to be on a blood thinner for life! But my bowels are awfull, and swelling in hands face and legs….
Denise
Atlanta GA
My mother was recently taken off warfarin and put on xarelto. She’s 87. She wants to go back on warfarin but her doctor told her that she could never go off xarelto. Is this true? Is there no going back? Please help
Helen
Winnipeg, MB
Of course she can go off Xarelto. I’ve been off it twice for minor procedures, having to stop 2 days before each procedure and take daily shots of Dalteparin until the morning of the procedure, to give the Xarelto time to work its way completely out of my system so I was completely free of blood thinners for the procedure. Afterwards I went back to Xarelto, but could just as easily have gone back to Warfarin (which I hated) if I’d continued the Dalteparin another day or two in conjunction with Warfarin until the INR was acceptable.
First find out WHY your mom wants to go off Xarelto. If she has a legit reason, then help your mom find another doctor.
Hans
Canada
My wife of 85 suffered a blood clot in her left leg. Our GP send us to the thrombosis unit and she was given Xeralto . Almost immediately her mind was affected, she lost her memory and her manner of thinking was out of order. We went back to the specialist and he recommended a change to Eliquis . That did not improve the mental state of my wife. The specialist reduced the dose and the pharmacist became concerned by my wife’s tale and looked up her reference guide and found that it suggested that a person of her age should not take this medication , or only at a very reduced rate. Our MD with interests in alternatives came to our rescue with Nattokinase, a Japanese product, 1/3 of a capsule twice a day. ( a product around for 2000 years ) That was 13 months ago.
April 18, 2015
Rosalie
pueblo, co
i had two strokes and I am on Eluquis . So far so good. But reading
All the comments makes me scared.
Worried about having stomach bleeding now. Wish I had been put on warfarin. Can I switch?
Brandi
SC
I am on Eliquis (Apixaban) for having Factor V Leiden, which makes you have a higher risk of clotting. I have had a DVT in the past that damaged all of the valves in my leg, so I was told that I should be on anticoagulant from now on. I was on Coumadin/Warfarin for 5 years until 1 doc (we are military so we always see different docs) came along and took me off of it saying that it wasn’t worth the risk.
I recently went to another dr. who said that I should definitely be on an anticoag, so he started me on Eliquis just two weeks ago. He chose that one because I tend to drink a lot of green smoothies (with both fruits and greens) and/or drink powdered greens. This was almost impossible to regulate when I was on Coumadin because I wasn’t that good at keeping my intake of greens steady all the time.
So far, no side effects from the Eliquis, except that I’ve been having heartburn -but I get that from time to time anyway, so we’ll see. I’ll try to report back after a while-especially if I notice anything.
Bill
I’m in the same boat as you. I like my salads, and my green smoothies. My doc tried me on Xarelto which gave me severe dyspnea and tachycardia. I hope the new med works for you but I’m glad to be back on Warfarin.
Lee
Ottawa, Canada
I am in the nerve wracking process of stopping 5mg Eliquis – Apixaban returning to 3mg Coumadin – Warfarin after having been on it five years. My family doctor’s pharmacist is guiding me. Until my INR takes 2.0 secs, to coagulate, I must continue Eliquis -Apixaban two tablets per day 6 a.m. 12 hours apart & 6 p.m. I take Coumadin – Warfarin once per day. I am 89 years old.
It is very difficult to terminate Eliquis; My INR is 1.5 , so I must continue that anticoagulant ad nauseam. The pharmacist has sent me 14 Eliquis -Apixaban which MAY mean five more INRs. I’ll never complain about INRs again; at least I always knew that I was okay if it registered between 2 and 3.
With Eliquis – Apixaban, I never knew how things were, although my arms were covered with purple bruises, much worse than those I had with Coumadin – Warfarin. This new anticoagulant was supposed to alleviate a brain hemorrhage but would increase stomach hemorrhages – some choice, eh?
Here is a valuable tip: Coagucheks Test Strips are half-price at Costco’s wholesale price.
Beth
Phoenix
My story’s similar to yours
yours, and i have been on eliquis for ten months. I am gaining weight slow and steady. i am in fitness for a living. I eat no dairy, gluten, and just super foods. Cardio 6 days a week, yoga pilates etc i get weaker and weaker. Now not healing well when i.juried…Btw 54, ,
Elle
Ireland
My mother had been on Warfarin for 25 years without any ill effects. The GP changed her to Xarelto (rivaroxaban) in June 2014 and her health declined rapidly. She suffered loss of appetite, subsequent weight loss and tiredness.
Family and friends commented on her decline. She was hospitalised in September 2014 for an infection which was treated with antibiotics. After she was discharged I asked the GP to take her off Xarelto and put her back on Warfarin. Instead he changed her to Eliquis (apixaban).
She continued to decline and got a serious bowel infection. She was treated for this in hospital. I asked the hospital doctors to put her back on Warfarin but they would not. She came out of hospital for a week and then the infection recurred. Despite the best of treatment and care she continues to decline. None of them think that Xarelto or Eliquis could be at fault and say the infection is causing her decline. The infection is serious but I think that my mother would have had a better chance if she had been taken off Eliquis and put back on Warfarin in October or even November when she was back in hospital.
Now the hospital tells us that my mother is not responding to treatment. I fear that I will lose my lovely mother thanks to Xarelto, Eliquis and the medical profession’s pig-headed refusal to consider that these new generation anticoagulants are contributing to her decline. They will not put her back on Warfarin and it may be too late now. Eliquis is a slow agonising death.
My mother is not the only person I know whose health has declined since changing from Warfarin to a new generation anticoagulant.
A family friend’s husband was changed from Warfarin to a new generation anticoagulant a few months ago for a heart condition. He attends the same general practice doctor as my mother. Prior to this he would be hospitalized once or twice a year for about a week and was fine after discharge as long as he took care of himself. After he started on the new generation anticoagulant he started feeling tired and weak. He was admitted to hospital but didn’t recover as quickly as before. He was readmitted a few weeks after discharge and is taking longer to recover. His wife says that in her opinion his health has declined dramatically and he doesn’t respond to treatment in the same way since changing to the new generation anticoagulant.
I wonder if these drugs can suppress the immune system in certain people.
fbl
Las Vegas, NV
Xarelto caused my leg muscles to atrophy in less than a month. The pain was excruciating. I also had serious diarrhea. My Dr. did acupuncture and my muscles finally came back but the diarrhea is still with me.
After my valve job last April (mitral valve damage caused by a diet drug, Fen-pfen) the Dr. insisted I take Eliquis. The leg pain came back with a vengeance and the diarrhea got even worse. This time my brain was foggy and I couldn’t even drive.
I started taking natural blood thinners- nattokinase, cayenne, Gingko Biloba, Omega 3 and vitamin E. My family Dr. checked my blood and said it was good and to keep doing what I’m doing.
Laura
This sounds like the same thing that has been happening to my mother after being on Elequis for 8 months, she is now back on Warfrin and slowly getting better. Bowel problems and lots of other bad affects from ELEQUIS. If l hadnt researched to see if it was the Elequis causing these problems she would have just gotten worse and we would not have known all the terrible symptoms were from Elequis.
Paul M
York,PA
I have been on Pradaxa for about 6 months with no discernable side effects.
Betty B.
Spring Hill, Florida
After receiving my first infusion of reclast for osteoporosis I started to have problems with shortness of breath which led to a diagnosis of nonvalvular atrial I fibrillation (AFB) I recently found that AFB can be is a side effect of osteoporosis drugs of the reclast and fosomax class. I am taking Eliquis and hope to soon be able to discontinue its use because the AFB is under control. I will be glad I this happens so I can regain the energy and lose the tiredness I have been complaining of since I started taking the AFB medications.
edwin arbeit
manchester new jersey
I am a 70 year old male in good health. After being on Coumadin for 7 years because of my Atrial Fibralation I suffered a Subdural Hematoma in 2013 which presented as a stroke. Thanks to a great team of Neurologists who treated me I was lucky to be left without any lasting effects. Told I could never go back on Coumadin my Cardiologist said he had to find a replacement for the Coumadin and he consulted with a Neurologist at the Hospital he practices at.
I told him I was wary of the new drugs such as Pradaxa and Xarelto, due to the short time they have been in use and that there is no track record for them. I had to see the Neurologist for testing and he and my Cardiologist spent weeks debating what to do with me. They finally sat down with me and told me their recommendation was for me to start taking Apixoban 5 mg twice a day. They presented all the information that they had and discussed the side effects and also the upside of the drug and its improvements over Coumadin.
I then had to decide whether to try this drug or take my chances of having a stroke by not taking anything, [ i am allergic to aspirin ]. I have been on Apixoban for one year and so far I have not experienced any bad side effects.
I will certainly watch for any of the things you mention in the article and I will discuss it with my Cardiologist who is the type of Physician that talks to his patients.
Thank you
Ed Arbeit
Bill
florida
About a month after starting Xarelto ( afib precaution) my stools turned black. ( Sorry)
Stopped the med. Returned to normal shortly thereafter. But in meantime had to have upper and lower scopes. No problem identified. And get this my Gastro doc then wanted me to start Xarelto again and do a capsule endoscopy to see if he could identify the bleeding source. I refused.
With all this modern medicine it’s a wonder I’m still alive to tell about it.
ldq
Pennsylvania
There is never any need to take one of these dangerous anticoagulants. What is wrong with nattokinasse except that it is not a prescription drug?
Carol Vandenboom
United States
I took Prodaxa and it gave me migraine headaches. Normally I hardly ever get headaches. Then I was switched to Xarelto. That caused me to unexpectedly pass out. I had no warning that it was going to happen. I would go from full consciousness to waking up on the floor. Now I’m on Eliquis – so far so good (at least no obvious complaints).
Jerald Conklin
Ball Ground, Ga
I have been on 2.5 mgs of warfarin since 2010 with absolutely NO side effects and feel very safe being monitored monthly. My wife is on clopidigrel and likewise NO side effects. Neither of us will even consider switching to one of these newer drugs. Dr. Wolfe says to give it at least 5 years to make sure these newer drugs on indeed safe.